Neil Churchill Director of Patient Experience - (Domain 4 Lead) Measuring, Understanding and Acting on Patient Experience Insight Why is insight into patient experience important? “The data presented display that patient experience is positively associated with clinical effectiveness and patient safety, and support the case for the inclusion of patient experience as one of the central pillars of quality in healthcare” A systematic review of evidence on the links between patient experience and clinical safety and effectiveness British Medical Journal What does a “very good” experience mean? Q Overall, how would you describe your experience of your GP surgery? Very good 31% 32% 39% 43% 49% 60% Fairly good 49% 66% 65% 29% 29% 49% 46% 44% 41% 33% Neither Poor 13% 12% 10% 9% 5% 5% 4% 3% 7% 2% 5% 4% 4% 18 to 24 25 to 34 35 to 44 45 to 54 55 to 64 65 to 74 75 to 84 85 + All respondents who answered the question (948,758) Source: GP Patient Survey 2012-2013 How do we take our love of doctors into account? Q. “For each, would you tell me whether you generally trust them to tell the truth or not?” Doctors Teachers Professors Judges Scientists Clergyman/Priests The Police Television News Readers Social workers The ordinary man/woman in Civil Servants Managers in the NHS Pollsters Trade Union officials Local councillors Business Leaders Bankers Managers in local Journalists Government Ministers Politicians generally % Not trust % Trust 8 88 12 81 11110 74 17 72 17 71 20 68 27 63 26 62 25 60 25 55 34 47 45 40 37 39 46 34 57 31 55 29 62 29 57 26 70 19 74 17 80 14 Base: 1,026 United Kingdom adults aged 15+, 10-16 June 2011 Source: Ipsos MORI/BMA To what extent do we need to tackle “gratitude bias”? 80% Net satisfaction with the running of the NHS 60% 40% 20% 0% 1983 1984 1986 1987 1989 1990 1991 1993 1994 1995 1996 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010 -20% -40% Pre War (born before 1945) Generation X (born 1966-1979) Baby Boomers (born 1945-1965) Generation Y (born 1980 onwards) Data: BSA 1983-2010. Each data point represents >100 respondents So what impact will the changing demographic have on satisfaction? Proportion of UK population from each generational grouping 2010: All adults aged over 66 100% % sample universe from pre war generation 90% 80% 2010: All adults aged between 45 and 65 70% 60% 1983: All adults 50% % Baby boomers 2010: All adults aged between 44 and 31 40% 1983: All adults aged under 39 30% 20% % Generation x 2010: All adults aged under 31 10% 0% 83 84 85 86 87 89 90 Source: Eurostat 91 93 94 95 96 97 98 99 00 01 % Generation Y 02 03 04 05 06 07 08 09 10 How was your experience? (1) Adult Inpatient Survey 2012 Overall… 30% 25% 20% 20% 18% rated their overall experience lower than 7/10 15% 10% 5% 25% 24% 1% 1% 1% 2% 2% 0 1 2 3 4 12% 5% 6% 5 6 0% I had a very poor experience Base: 61399 (all respondents). Fieldwork: Sept 2012 – Jan 2013 7 8 9 10 I had a very good experience Source: CQC/Picker Institute How was your experience? (2) Adult Inpatient Survey 2012 BUT 62% reported at least one aspect of poor care 18% Poor overall experience 62% Experienced some form of poor care Overall experience measures good for tracking satisfaction but not for rooting out problems? Base: 61399 (all respondents). Fieldwork: Sept 2012 – Jan 2013 Source: CQC/Picker Institute Sometimes an overall measure can mask poor experience Paste cobrand logo here Female, white, 65+, in hospital for several months Her report… “… in [the hospital] they treated me well” “Oh yes I found it satisfactory” © Ipsos MORI Her experience… • On third day she asked for a bedpan • Nurse told her it wasn’t worth running back and forth, told her to do it in the bed • Nurse complained to her in the morning that she was soaking wet CASE STUDY “I went to the dentist, reported to the receptionist and the receptionist forgot about me. I’m not used to my sight loss and lost my orientation and couldn't bring myself to ask anyone for help and just felt too nervous to shout out or anything. I ended up sitting there for hours and it was an extremely frightening experience.” Patient experience is closely linked to patient involvement and engagement Being involved is part of having a good experience Experience Individual Involvement Involving patients is one means to understanding and improving experiences Individual and collective Means nothing if nothing is done UNCLASSIFIED http://www.kingsfund.org.uk /projects/ebcd/experiencebased-co-design-description www.institute.nhs.uk/theguide The priorities for patients with breast and lung cancer were different Lung cancer Breast cancer Communication of diagnosis Functioning of day surgery unit Information about treatment Appointments system and conduct of OP clinics Continuity and coordination of care Communication Information about symptoms Everyone Counts: Planning for Patients 2014/15 to 2018/19 – Plans are expected to demonstrate measurable improvement in patient experience as well as continued investment in generating feedback; • enhance feedback and insight from vulnerable patient groups; • measure and improve the experience of carers; • easier access to proven techniques and support for their implementation; • strengthen forms of staff engagement which can support improvements in patient experience through better staff experience; • learn from complaints and improve the experience of making a complaint. Putting Patients First: NHS England business plan 2014/2015 • NHS England’s Commitments to Carers published April 2014 • Introduction of Staff FFT April 2014 and support to engage staff on patient experience; • All NHS services provide real-time feedback through FFT by March 2015; • Insight strategy 2014; • Plans for ‘Always Events’ and a system-wide approach to improving patient experience by Sept 2014; • Patient Rights programme November 2014 and strategy to embed NHS Constitution; • Patient Centred Outcome Measures (PCOMs) by March 2015; • Accessible Information Standard and extension of PLACE to cover disability issues by March 2015; • Strategy for nutrition and hydration by March 2015 • Support for patient leaders. Friends and Family Test Overview Simple test based on Net Promoter Score methodology ‘How likely are you to recommend our <ward / A&E department> to friends and family if they needed similar care or treatment?’ 1 2 3 4 5 6 Extremely Likely Likely Neither Likely nor Unlikely Unlikely Extremely Unlikely Don’t know Friend and Family Test - outcomes Environmental issues • Soft closing bins have been purchased for inpatient areas as a response to patients feeding back that noisy bins kept them awake at night • Comments regarding disturbed nights led to Introducing the ‘Quiet Protocol’ to help patients sleep well at night Mid Staffs NHS Foundation Trust Sandwell and West Birmingham Hospitals NHS Trust Friend and Family Test - outcomes Medication issues • After negative feedback, the Trust has introduced medication cards for patients who are off the ward during drug rounds to alert them that their medication is waiting to be dispensed • "Was in pain on previous admission, felt ignored by staff" – comment led to self-medication programme - patients manage their own analgesic medication when they are in pain The Royal Wolverhampton NHS Trust The Royal Wolverhampton NHS Trust Nutrition and Hydration 3 million people in the UK are malnourished or at risk of... Of those: • A third are over the age of 65 - more than 1 million older people are malnourished • 93% are in the community, 5% in care homes, 2% in hospital • Public Sector expenditure is estimated to be billions of pounds a year. • NICE identifies better nutritional care as the sixth largest potential source of cost savings to the NHS Nutrition and Hydration Building on success and promoting what works Improving understanding of malnutrition and dehydration Making every contact with patients and carers count 23 Involving all staff and building collaboration between teams Embedding responsivene ss to patient voices Strengthening commissioning Building on Compassion in Practice to connect values with behaviours and make nutritional care an agenda that resonates within and beyond nursing ‘If you’d asked me the most important quality of a doctor, I would have said competence. When I became a patient I soon realised how important compassionate attributes in the people looking after me were’ Kate Granger 17 April 2013 Derbyshire Healthcare NHS Foundation Trust Opening Ceremony @GrangerKate Ensuring we listen and act on feedback from vulnerable patients Accessible Information Standard • There is a formal process to develop an Information Standard. • We are asking people for their views to inform the details of the standard, which we will start to write in spring 2014. • There will be a formal consultation on the draft standard in summer 2014. • We are expecting to have a final version of the standard approved in autumn 2014 – organisations will then have up to 12 months to comply. PLACE assessments Point of Care 2014 Staff Satisfaction = Improved Patient Satisfaction and Care