Post Liverpool Care Pathway Arundel: 14th May 2014 Dr Bee Wee National Clinical Director for End of Life Care • Pre-LCP • LCP • More Care Less Pathway report • Post LCP 2 NHS | Arundel / 14 May 2014 3 NHS | Arundel / 14 May 2014 National End of Life Care Strategy 2008:‘End of Life Care Pathway’ Step 1 Step 2 Discussions as the end of life approaches Assessment, care planning and review Step 3 Coordination of care Step 4 Delivery of high quality services in different settings Social care Spiritual care services Support for carers and families Information for patients and carers Step 5 Care in the last days of life Step 6 Care after death NICE Quality Standard for End of Life Care for Adults (20110) Quality statement 11: “People in the last days of life are identified in a timely way and have their care coordinated and delivered in accordance with their personalised care plan, including rapid access to holistic support, equipment and administration of medication” 6 NHS | Arundel / 14 May 2014 Independent review (Neuberger) 7 NHS | Arundel / 14 May 2014 Some key themes • LCP used well – and also used badly • System-wide approach • Culture of care • Education and training • Lack of evidence base • Accountability • Documentation 8 NHS | Arundel / 14 May 2014 Clinical issues • Individual care plan • Decision-making • Diagnosis of dying • Food and fluids • Sedation • Use of syringe drivers • Anticipatory prescribing 9 NHS | Arundel / 14 May 2014 Recommendations for…. • Department of Health • NHS England • Health Education England • Care Quality Commission • General Medical Council • Nursing and Midwifery Council • NIHR • Royal Colleges • and others……. 10 NHS | Arundel / 14 May 2014 Independent review (Neuberger) 11 NHS | Arundel / 14 May 2014 12 NHS | Arundel / 14 May 2014 13 NHS | Presentation to [XXXX Company] | [Type Date] Freebigpictures.com 14 NHS | Presentation to [XXXX Company] | [Type Date] Fundamental differences • Outcomes based approach • From DH to multiple ‘Arms Length Bodies’ • ‘Unprecedented’ financial constraints • Central – ‘National Support Centre’ • Matrix working • Local commissioning 15 NHS / Arundel / 14 May 2014 The new landscape: local agenda CCGs Healthwatch Health and wellbeing boards LETBs 16 NHS | Arundel 14 May 2014 Commissioning Support Units Local Area Teams Clinical Senates Strategic Clinical Networks Local authorities PHE National reports/reviews • Francis 1st report (2010): 18 recommendations • Francis 2nd report (Feb 2013): 290 recommendations • ‘More care less pathway’ (July 2013): 44 recommendations • Berwick report (Aug 2013): ‘ to specify the changes that are needed’: 10 recommendations Francis and Neuberger • Francis 2 – 8: • about culture and values • Francis 185 and Neuberger 34: • increased focus on compassionate care in nurse training, education and professional development • Francis 13 and Neuberger 39: • development of fundamental standards, which are to be drawn up by the CQC, working with NICE, commissioners, patients and the public • Coalition of bodies to set standards • Berwick ‘ and Neuberger • A promise to learn – a commitment to act: Improving the Safety of Patients in England’ • Acknowledging harm done and consider how best to ensure that EoLC plans help minimise harm and ensure no unnecessary harm • Wider actions to improve care in response to the Berwick report should reinforce specific actions being taken to improve care in the last days and hours of life • Berwick and Neuberger ‘ • Berwick 4 and Neuberger 33 and 35: • on making staff with the right skills available in the right locations to support effective end of life care • Berwick report stresses the need for continual learning: • calls for an “ethic of learning” in the NHS (1) • NHS to become a “learning organisation” (6) • “mastery of quality and patient safety sciences and practices should be part of initial preparation and lifelong education of all healthcare professionals….” (5) Francis and Neuberger: clinical links • Francis 236 and Neuberger 14: • senior responsible clinician in charge of a patient’s care • Francis 241 and Neuberger 18 and 20: • nutrition and hydration • NMC and GMC guidance • Francis 195 and Neuberger 27: • ward nurse managers - should know about the care plans relating to every patient on their wards • Named nurse per shift responsible for leading care of the dying patient Francis and Neuberger: clinical links • Francis 238 and Neuberger 30: • communication with and about patients • shared folder at bedside • Francis 242 and Neuberger 23: • medicines administration • starting syringe driver • Francis 243: • recording of routine observations • Pre-LCP • LCP • More Care Less Pathway report • Post LCP 23 NHS | Arundel 14 May 2014 Leadership Alliance for the Care of Dying People • Statutory organisations: DH and ALB • Regulatory organisations • Royal Colleges • National charities 24 NHS | Arundel / 14 May 2014 Priorities for Care 1. Recognise deterioration – reversible or dying? 2. Sensitive communication 3. Involvement in decision-making 4. Needs of those close to the dying person 5. Individual plan of care 25 NHS | Arundel / 14 May 2014