Marla Dubinsky, MD Director Pediatric IBD Center Claire and Abe Levine Chair in Pediatric IBD Los Angeles, CA Marin L et al J Gastroenterol DOI 10.1007/s00535-012-0700-2 Rates of depression in IBD are 15-35% A comparison of lifetime prevalence suggests higher rates of panic, generalized anxiety, and obsessive-compulsive disorders and major depression and lower rates of social anxiety and bipolar disorders in the IBD sample than in national samples in the United States1 Twice the rate of depression as in controls Depression reduces health-related quality of life and increases self-perceived functional disability irrespective of symptom severity 1. Walker Am J Gastroenterol 2008:103:1989-1997 Many patients with IBD are young and do not have co-morbid illnesses The gastroenterologist will often serve as their only physician Patients with IBD receive less preventive health services than general primary care patients1 Selby Inflamm Bowel Dis. 2008:14:253-258 364 patients from the PIANO registry Utilization obtained via questionnaires at 1 year post-delivery Immunosuppressant exposure: Azathioprine/6-MP or biologics during pregnancy or year follow-up Utilization rates within the 12 months Health Maintenance Immunosuppressants OR (95% CI) Yes No Pap Smear 102/151 (67%) 65/82 (79%) 0.54 (0.29-1.03) Influenza Vaccine 172/242 (71%) 81/122 (66%) 1.24 (0.78-1.99) Pneumococcal Vaccine 64/242 (26%) 22/122 (18%) 1.63 (0.95-2.81) Hepatitis B Vaccine 125/242 (52%) 61/122 (50%) 1.07 (0.69-1.65) Pap smear: 72% within the year Vaccines: Influenza: 70% within the year, Pneumococcal: 24% (ever), Hepatitis B: 51% (ever) Bone density in steroid exposed patients; 35% (ever) Predictors of utilization: Influenza: Caucasian vs non-Caucasian OR 3.15, 95% CI (1.26-7.89) Decreased trend towards pap smear utilization in immunosuppressed patients Sheibani S, et al. Presented at DDW; May 20, 2013. Abstract 563. 5 Higher incidence of abnormal Pap smears in women with IBD 4 tertiary care center studies Kane: 40 pts with 134 paps vs. 120 controls: on IMM: OR = 4.5 (1.5-12.3) Bhatia: 116 IBD18% vs. 5% controls abnormal pap (p=0.004) Venkatesan: 518 IBD: INF risk of abnl pap (OR 5.0, 2.11-11.85) Lees (Scotland) 362 IBD women;1644 controls: no difference 2 Population based studies Singh - >10 OCP, CS + AZA increased risk OR 1.41, CI 1.09-1.81 Hutfless - no increased risk cervical cancer (OR 1.45 CI 0.74-2.84) All women <age 26 with IBD should get HPV vaccination HPV: 0, 2, 6 mos. for females 9-26 yrs. Recommended age at 11-12 years Should men be vaccinated as well? The 3 dose series of HPV4 may be administered to males 9 through 26 years of age to reduce their likelihood of acquiring genital warts Increased anal dysplasia with perianal CD High Risk behavior Fecundity: Fertility: the ability to have children fecundation - aka fertilization (natural or IVF) the ability to conceive & become pregnant through normal sexual activity Infertility: failure to conceive s/p 1 yr of intercourse background rate – 1 in 7 couples (14%) Women In UC, normal fertility overall Voluntary childlessness higher in IBD patients Women with active Crohn’s disease may be at risk Post-surgical patients with pouches at increased risk for infertility Men Sulfasalazine causes reversible sperm abnormalities in 60%, not dose related Erectile dysfunction secondary to depression Meta analysis regarding risk of infertility Eight studies included in analysis RR of infertility for medically treated UC was 15%, and 48% after IPAA There were no procedural factors identified that consistently affected risk Colectomy with ileorectal anastomosis preserves female fertility Higgins P. Gut 2006; 7:1-6. Mortier PE. Gastroenterol Clin Biol. 2006;30(4):594-7. 21 women undergoing loop takedown after laparoscopic IPAA American Fertility Society Adhesion Score used 15 (71%) no adnexal adhesions 5 filmy enclosing <1/3 one adnexa 1 filmy enclosing 1/3 - 2/3rd of one adnexa 0 adhesions to both adnexae Lap IPAA led to fewer adhesions to abdominal wall or adnexa than open operations with or without Seprafilm Indar AA. Surg Endosc 2009; 23(1):174-7. IBD UC CD Preterm Birth** X X XX LBW X SGA ** with active disease) 1. 2. 3. 4. Kornfeld et al. Am J Obstet Gynecol. 1997 (n=756 IBD) Fonager et al. Am J Gastroenterol. 1998 (n=510 CD) Norgard et al. Am J Gastroenterol. 2000 (n=1531 UC) Dominitz et al. Am J Gastroenterol. 2002 (n=107 UC, 155 CD) – Knight, no c XX X Medication choices are similar Avoid new aza/6mp in pregnancy Avoid mnzl, CS in T1 Laboratory/Stool Tests LFT’s (Alk Phos), ESR may be elevated Albumin may be low; mild anemia normal C. dificile Imaging MRI preferred to CT, though no gadolinium in T1 Ultrasound! Endoscopy: Unsedated flexible sigmoidoscopy Surgery: Indications similar to non-pregnant patient ; T2 best time Delivery should be at the discretion of the obstetrician Most women with IBD can have an uncomplicated vaginal delivery Exceptions: Women with active perianal disease should have a cesarean section. Women with inactive perianal disease may deliver vaginally without increased complications (1) Women with an ileoanal J pouch should consider cesarean section, though vaginal delivery is possible (2) Preserve sphincter function and continence later in life 1. 2. Ilnyckyji A, Am J Gastroenterol 1999;94:3274-8 Juhasz ES, Dis Colon Rectum 1995;38:159-65. Spontaneous vaginal birth vs. C section (n=1011) Operative vaginal birth significantly increased the odds for all pelvic floor disorders, especially prolapse Stress incontinence (OR 2.9, 1.5-5.5) Prolapse to or beyond the hymen (OR 5.6, 95% CI 2.2-14.7) (OR 7.5, 95% CI 2.7-20.9). Forceps deliveries and perineal lacerations, but not episiotomies, were associated with pelvic floor disorders 5-10 years after a first delivery. Handa Obstet Gynecol. 2011 Oct;118(4):777-84 Handa Obstet Gynecol. 2012 Jan 5. Medication FDA Category 5ASA Asacol, olsalazine B C Corticosteroids Budesonide C C Azathioprine/6MP D Methotrexate X Anti-TNF B Odd ratio (fixed effect) Confidence interval P-value Status of heterogeneity (homogenous Congenital abnormalities 1.16 0.76–1.77 0.5734 P = 0.9697 Stillbirth 2.38 0.65–8.72 0.3231 P = 0.9594 Spontaneous abortion 1.14 0.65–2.01 0.7384 P = 0.2151 Preterm delivery 1.35 0.85–2.13 0.2621 P = 0.0768 Low birth weight 0.93 0.46–1.85 0.9636 P = 0.7057 Type of pregnancy outcome Rahimi R et al Reproductive Toxicology 25 (2008) 271–275 DBP ASACOL 400 mg ASACOL HD 800 mg DELZICOL 400mg Pentasa Apriso Lialda YES YES NO NO NO NO Has NOT been reformulated CD Pregnancies With Use of Steroid Outcome/Total (%) CD Pregnancies in the reference group Outcome/Total (%) Adjusted RR Low Birth Weight 5/73 (6.9) 31/628 (4.9) 1.1 (0.2–5.7) Pre Term Birth 9/73 (12.3) 41/628 (6.5) 1.4 (0.6–3.3) Low birth weight at term 1/73 (1.4) 9/628 (1.4) 0.9 (0.1–7.1) Congenital abnormalities 2/48 (4.2) 36/628 (5.7) 0.7 (0.2–3.2) Nørgard et al, Am J Gastroenterol 2007;102:1406–1413) Coehho J et al Gut 2011; 60: 198-203 • Fetal 6-TGN concentrations correlated positively with maternal 6-TGN levels (p<0.0001). • No 6-MMP was detected in the newborns, except 1 with pancytopenia and high alk phos (severe preeclampsia) • 60% had anemia at birth: Median Hb 9.25 [9.259.60]. • 6-TGN 230 vs. 90 in infants with anemia • No major congenital abnormalities were observed. Jharap B et al Gut 2013 Feb 19. [Epub ahead of print) Three studies on breastfeeding: Sau: 31 samples/10 women (AZA 75-150 mg) 1 patient had low levels in breast milk 6mp and 6tgn undetectable in neonatal blood Gardiner: 4 women aza 1.2-2.1 mg/kg/d 6TGN and 6MMPn not found in infant Moretti: 4 women aza Levels of 6mp undetectable by HPLC Sau: BJOG 2007; Moretti: Ann Pharmacol 2006:40:2269-72; Gardiner: Br J Clin Pharmacol 62:4 (453-6) References Medication N Congenital Anomalies Katz 2004 Infliximab 96 1 Tetralogy Fallot; 1 intes Malrotation Lichtenstein 2006 Infliximab 117 1 VSD, 1 anencephaly Mahadevan 2005 Infliximab 10 None Schnitzler 2007, 2011 IFX/ADA 35/7 --/1 trisomy 8 Zelinkova 2011 Infliximab 4 1 polydactyly Verstappen 2011 Infliximab Etanercept Adalimumab 9 48 14 All: 1 pyloric stenosis, 1 congen hip dysplasia, 1 trisomy 21, 1 megacolon Roux 2007 Adalimumab 1 1 VSD, 1 hemangioma Weberschoendorfer/Hultz 2011 IFX/ADA 25/28 1 renal agenesis/ 1 WPW, 1 neurofibromatosis Casanova 2012 Infliximab Adalimumab Certozlizumab 49 16 1 -1 Cardiac malformations -- Seirafi (Getaid) 2012 Infliximab Adalimuamb Certolizumab 89 42 5 1 missing finger Johnson 2013 (OTIS) ADA/CZP 589/18 No Pattern seen Cimiza Database Certolizumab 152 Adapted from Chambers Birth Defects Research 2012 INF and ADA are IgG1 antibodies Fc portion of IgG actively transported across placenta by specific neonatal FcR Highly efficient transfer in 3rd T leads to elevated levels of drug in newborn 20 B: Fetal r2=0.87, p<0.04 15 IgG (g/L) 10 5 0 0 10 20 30 40 50 Gestational age (weeks) Wiley-Blackwell Publishing Ltd. Malek A, Evolution of maternofetal transport of immunoglobulins During human pregnancy. Am J Reprod Immunol 1996; 36(5):248-55. Image Courtesy of Sundana Kane MD Infliximab: Adalimumab Study of 10 mothers on IFX In all cases, infant and cord IFX level were greater than mother. 6 months to clear Study of 10 mothers on ADA In all cases, infant and cord ADA level was greater than mother. Up to 4 months to clear ¾ pts who stopped ADA 35 days prior to delivery had a flare Certolizumab Study of 10 mothers In all cases, infant and cord levels were less than 2 mcg/ml even if mom dosed the week of delivery Mahadevan Clin Gastroenterol Hepatol. 2013 Mar Infliximab Breastmilk 1/200th mother’s level (n=1)1 Peak concentrations in BM 100 ng/ml Induction therapy: (n=1) infant levels 1700 ng/ml (maternal level 78,300 ng/ml)3 Adalimumab Breastmilk 1/200th mother’s level(n=1)2 ADA undetectable in infant serum (n=1)3 Certolizumab Not detected in breastmilk (n=1) 1. Benhorin J Crohn’s Colitis 2011; Ben-Horin CGH 2010 3. Friitzsche J Clin Gastro 2012 Debate: stop drug early or continue scheduled? Last dose infliximab at week 32 weeks gestation No real delay if patient gets next dose immediately after delivery (assume delivery around week 40 gestation) Last dose adalimumab at week 36-38 Stopping earlier may lead to flares If needed, can continue throughout on schedule Continue certolizumab throughout pregnancy If mom flares, treat her! No live virus vaccine for first 6 months for infants exposed to IFX or ADA during pregnancy Never switch drugs during pregnancy purely for placental transfer issues Mahadevan U. Am J Gastroenterol. 2011 Feb;106(2):214-23 Obstetrician: Most IBD medications are low risk in pregnancy (exception methotrexate) and can be continued during pregnancy and lactation Mode of delivery is per OB discretion except with active perianal disease at the time of delivery and perhaps J Pouch Pediatrician No live virus vaccines in the first 6 months if infant exposed to infliximab or adalimumab in utero All other vaccines can be given on schedule Monitor for infections