Relationships and IBD Debbie Pullen Liaison Mental Health Nurse Liaison Psychiatry What is a relationship? • Family, partners, children etc • Social – friends, community groups, leisure etc • Work Other People’s Attitudes to IBD What difficulties have you experienced in your relationships with others? What are the challenges? • Chronic disease with symptoms that impact on lifestyle eg pain, fatigue, toilet issues, diet etc • Taboo subject Challenge • The challenge is to improve and maintain healthy relationships alongside living with IBD Reflective Group Activities Examples of Roles Son Mother Manager Partner Teacher Family / Relationship Friend Driver Work / Task Related Carer Cook Lover Gardener Banker Writer Traveller Internet lover Interests / Passions Runner Socialite Bookworm Learner Listener Dreamer Personal Qualities Organiser Follower Carer Styles of Communication Direct Passive Aggression Indirect Aggression Assertive Direct Aggression ‘What you could do with…’ ‘do as I say’ ‘I don’t give a **** about you’ Traits: Bossy Arrogant Intolerant Opinionated Over-bearing ‘How dare you!’ ‘If I were you, I’d do it this way’ ‘I always win’ Result: Get what you want but at what price? Indirect Aggression ‘Don’t worry about me, I will manage…SOB’ ‘I’m never angry’ ‘I’ll be ill if you behave like that’ ‘Can’t you take a joke’ ‘I’m surprised that you’ve ‘Martyrdom's managed that’ my way of ‘You make me feel…’ life’ Traits: Manipulative Sarcastic Deceiving Insinuating Ambiguous Guilt inducing Result: Get your own way but people back away… Passivity ‘I’m so sorry’ ‘Nothing goes right for me’ ‘You decide for me’ Traits: Waiting Martyrdom Apologetic Indecisive Moaning Submissive ‘Whatever you want is OK by me’ ‘I’m waiting for my life to get better’ ‘I don’t matter’ Result: No responsibility for self, therefore no guilt feel resentful when others take responsibility Assertiveness ‘I’m not perfect’ ‘I feel…’ Traits: Open Direct Honest Positive Accepting Spontaneous Responsibility ‘I’ll take a risk’ ‘I’m OK – you’re OK’ Result: I like to be responsible for me and if I make mistakes, I will accept them - Balance - Not demeaning - Self respect - Control Assertiveness YOUR Feelings Needs Rights Opinions OTHERS Feelings Needs Rights Opinions Communicating effectively • • • • • • • Choosing important topics Choosing the right time Accepting it will take time Agreeing a language Saying no Repetition Scripting Strategies 1) I understand… However… Therefore… 2) Broken Record Technique 3) Scripting Tool Broken Record Technique Example: Jo – ‘Jane can you take me to the supermarket in the car because it is raining?’ Jane – ‘I am unable to take you right now Jo” Jo – ‘But it’s raining and I need to do a big shop. You know I would do the same for you. Jane – ‘I am unable to take you right now Jo. Jo – ‘It will only take 20 minutes’ Jane – ‘I know it wouldn’t take that long but I am unable to take you right now. You can borrow my umbrella if you like’ Jo – ‘Okay then, I’ll catch the bus’ Scripting Tool Even fish need confidence Even Event Fish Feelings Need Needs Confidence Consequences The ‘Toolkit’ of Assertion • • • • • • • Body language Setting the scene Disclose feelings Being clear Staying with it Empathising Working for a compromise Where to access help? • If you feel you are in need of help for any aspect of your mental health you can access counselling and therapy services through your GP. Just visit them and ask to be referred • If you feel you are not coping with IBD at all and would like help – liaison psychiatry can be accessed through your local IBD nurse • Samaritans 08457 90 90 90 • Carers Leeds 0113 246 8338 • Relate (relationship counselling) 0300 100 1234