Unlocking Attention Deficit Hyperactivity (ADHD) Diagnosis Characteristics Management Children with ADHD Estimated 1.46-2.46 million children with ADHD (U.S.) 3-5 % of student population More boys than girls are diagnosed (4 to 9 times more) While symptoms of the disorder may change many do not grow out of it. Core Characteristics result in unique differences Inattention: six of nine persistent symptoms (lasting at least 6 mos.) Hyperactivity-Impulsivity: six of nine persistent symptoms (lasting at least 6 mos.) At least some of the symptoms are present before the age of seven Must impair the individual in 2 or more settings Significant impairment in social, academic or occupational functioning. Diagnostic Statistical Manual of Mental Disorders (DSM-IV) Fidgeting with hands or feet, squirming in their seat, restless Difficulty remaining seated when required Difficulty sustaining attention, waiting turn Blurting out answers before questions are stated. Easily distracted Wide ranges in mood swings Difficulty following through on instruction and organizing Shifting from one unfinished activity to another Failing to give close attention to details, careless mistakes Losing things necessary for tasks or activities. Difficulty delaying gratification Three subtypes Predominantly inattentive Predominantly hyperactive- impulsive Combined Sometimes it is not just ADHD 20 to 30 percent of Children also have learning disabilities 30 to 50 percent (mostly boys) conduct or oppositional defiant disorders About 20 to 40 percent of ADHD children may eventually develop conduct disorder (CD) 13 to 51 percent anxiety or mood disorders A very small proportion of people with ADHD have a neurological disorder called Tourette’s syndrome. There are no accurate statistics on how many children with ADHD also have bipolar disorder. Differentiating between ADHD and bipolar disorder in childhood can be difficult. Things that affect Inattention Time Of day Place Setting Length of time Needed Sustained attention needed Coming to attention Allow for activity Activity Demands on attention Hands on tasks Encourage activity Inhibit activity Visual tasks Punish activity Mental tasks Oral tasks Things that affect Level of Activity Time Place Activity Time of Day Encourages or demands activity Discourages or limits activity Needs movement for success Can tolerate movement for success Movement interferes with success Length of Task Punishes Activity Impulsive behavior Typically not a knowledge deficit. They know and can tell you the rules. Typically not as influenced by time, place or activity. Typically global and stable in its manifestation. Typically spurred on if anxiety is an issue. Much more of the same. Who statistics Going in Boys are more likely to be referred and identified and are more likely to become part of clinic statistics Best practice suggests waiting until five years old or later Hyperactive and impulsive behavior results in more frequent referrals Where does it come from? "Why? What went wrong?" "Did I do something to cause this?" Little compelling evidence at this time that ADHD can arise purely from social factors or child-rearing methods – Environmental factors may influence the severity of the disorder and suffering the child may experience, but do not seem to cause the condition by themselves – Most substantiated causes appear to fall in the realm of brain organization and genetics – There appears to be an acquired variety connected to some childhood diseases such as strep throat – Our focus should be on finding the best possible way to help these children. Where does it really come from? Growing evidence that ADHD does not come from the home environment, but from biological causes. Studies have shown a possible correlation between the use of cigarettes and alcohol during pregnancy and risk for ADHD in the offspring of that pregnancy. High levels of lead in the bodies of young preschool children is not as prevalent as it once was but appeared to be a possible cause of behaviors. Brain Injury One early theory was that attention disorders were caused by brain injury. Some similar behaviors seem to exist, but only a small percentage of children with ADHD have been found to have suffered a traumatic brain injury. Food Additives and Sugar. In 1982, NIH held a scientific consensus conference to discuss this issue. Diet restrictions helped about 5 percent of children with ADHD. Mostly young children who had food allergies. This remains an important rule out if allergies are present in child or family. Some Sugar Studies Children whose mothers felt they were sugar sensitive were given aspartame as a substitute for sugar. Half the mothers were told their children were given sugar. Half that their children were given aspartame. The mothers who thought their children had received sugar rated them as more hyperactive than the other children and were more critical of their behavior. Another Sugar Study Using sugar one day and a sugar substitute on alternate days. Without parents, staff, or children knowing which substance was being used. Showed no significant effects of the sugar on behavior or learning. Genetic Factors Attention disorders often run in families. Studies indicate that 25 percent of the close relatives in the families of ADHD children also have ADHD, whereas the rate is about 5 percent in the general population. Many studies of twins now show that a strong genetic influence exists in the disorder. Researchers continue to study the genetic contribution, have identified some markers and predict there may be as many as twelve. Possibly as high as 80% of ADHD is genetic. The most inherited, more than IQ or height of any characteristic. Impact areas of the Brain The search for a physical basis for attention deficit hyperactivity disorder. frontal lobes of the cerebrum. The frontal lobes allow us to solve problems, plan ahead, understand the behavior of others, and restrain our impulses. (The executive, president or conductor) Brain continued All of these parts of the brain have been studied through the use of various methods for seeing into or imaging the brain. The main or central psychological deficits in those with ADHD have been linked through these studies. NIMH Study By 2002 the researchers in the NIMH Child Psychiatry Branch had studied 152 boys and girls with ADHD, matched with 139 ageand gender-matched controls without ADHD. A picture is worth…. The children were scanned at least twice, as many as four times over a decade. As a group, the ADHD children showed 3-4 percent smaller brain volumes in all. Showed that the ADHD children who were on medication had a white matter volume that did not differ from that of controls. Those never-medicated patients had an abnormally small volume of white matter. The Treatment of ADHD To determine what treatment will be most effective for a child. Needs to be answered by each family in consultation with their health care professional. National Institute of Mental Health (NIMH) has funded many studies of treatments for ADHD and has conducted the most intensive study ever undertaken for evaluating the treatment of this disorder. The NIMH is now conducting a clinical trial for younger children ages 3 to 5.5 years MTA Details One study is known as the Multimodal Treatment Study of Children with Attention Deficit Hyperactivity Disorder (MTA). The MTA study included 579 (95-98 at each of 6 treatment sites) elementary school boys and girls with ADHD, who were randomly assigned to one of four treatment programs: Study Groups (1) medication management alone; (2) behavioral treatment alone; (3) a combination of both; or (4) routine community care. In each of the study sites, three groups were treated for the first 14 months in a specified protocol and the fourth group was referred for community treatment of the parents' choosing. Study Details All of the children were reassessed regularly throughout the study period. An essential part of the program was the cooperation of the schools, including principals and teachers. Both teachers and parents rated the children on hyperactivity, impulsivity, and inattention, and symptoms of anxiety and depression, as well as social skills. Study Groups In the combined therapy group Received both treatments, that is, – All the same assistance that the medicationonly received, as well as – All of the behavior therapy treatments. Study Groups In routine community care – children saw the community-treatment doctor of their parents' choice one to two times per year for short periods of time – community-treatment doctor did not have any interaction with the teachers Study Results .The results of the study indicated that long-term combination treatments and the medicationmanagement alone were superior to – intensive behavioral treatment and – routine community treatment. the combined treatment was usually superior when – anxiety, academic performance, oppositionality, parentchild relations, and social skills issues were present and – children could usually be successfully treated with lower doses of medicine, compared with the medication-only group. (Treatment of ADHD in PreschoolAge Children) The NIMH is sponsoring an ongoing multi-site study, "Preschool ADHD Treatment Study" (PATS) It is the first major effort to examine the safety and efficacy of a stimulant, methylphenidate, for ADHD in this age group. – Enrollment in the study will total 165 children. – Same kind of groups Which Treatment Should My Child Have? For children with ADHD, no single treatment is the answer for every child. A child may sometimes have undesirable side effects to a medication that would make that particular treatment unacceptable. If a child with ADHD also has anxiety or depression, a treatment combining medication and behavioral therapy might be best. Each child's needs and personal history must be carefully considered. MEDICATION INFORMATION For decades, medications have been used to treat the symptoms of ADHD. The medications that seem to be the most effective are a class of drugs known as stimulants. Following is a list of the stimulants, their trade (or brand) names, and their generic names. "Approved age" means that the drug has been tested and found safe and effective in children of that age. Trade Name Generic Name Approved Age Adderall amphetamine 3 and older Concerta methylphenidate (long acting) 6 and older Cylert* pemoline 6 and older Dexedrine dextroamphetamine 3 and older Dextrostat dextroamphetamine 3 and older Focalin dexmethylphenidate 6 and older Metadate ER methylphenidate (extended release) 6 and older Metadate CD methylphenidate (extended release) 6 and older Ritalin methylphenidate 6 and older Ritalin SR methylphenidate (extended release) 6 and older Ritalin LA methylphenidate (long acting) 6 and older *Because of its potential for serious side effects affecting the liver, Cylert should not ordinarily be considered as first-line drug therapy for ADHD. Facts to Remember About Medication for ADHD They treat symptoms but do not cure the disorder. They will often assist the child to use knowledge and skills they already possess. About 80 percent of children who need medication for ADHD still need it as teenagers. Over 50 percent need medication as adults. You are your child's best advocate Learn as much as you can about ADHD and how it affects your child at home, in school, and in social situations. If you suspect the possibility of this diagnosis, talk to the teacher and see if a request for evaluation is appropriate. If you and the teacher disagree you can initiate the process yourself through either the director of Special Education or the Child Study Team. Special Education Process and Procedures A child diagnosed with ADHD may qualify for special education services, the school, working with you, must assess the child's strengths and weaknesses and design an Individualized Educational Program (IEP). You should be able periodically to review and approve your child's IEP. If special education is not needed a 504 plan may provide the safeguards necessary for success. Once Diagnosed Let his or her teachers know. They will be better prepared to help your child be successful. Identify your child’s unique strengths and weaknesses. Offer to supply additional information. Most likely impact is on writing Find support and resources Each state has a Parent Training and Information (PTI) center as well as a Protection and Advocacy (P&A) agency. Locally we have PREP (Sarah) at 9759400 Plan for transition Transition, unstructured times can be quite difficult for the child with ADHD. Do what works Recognize the skill lag problem Beware of the middle school and teen years – It’s a good time to have a complete reevaluation of your child's health. Behavior Strategies to consider Remember that inconsistency is a hallmark Recognize/Identify Unique Strengths and weaknesses. Go for fewer, clearer, straightforward rules Use punishment sparingly Time out may work Model and support organization strategies. Duplicate, duplicate, duplicate Prepare, review, set expectations Practice being firm Charts may work (self monitor or reward) Factors that affect success of selfmanagement Characteristics of Environment Gender of person in charge Match between ability and tasks demands Possibility of success or failure Degree of structure Frequency of feedback Characteristics of person Ability and desire to be compliant Intelligence Degree of impairment Internal vs External Control Gender Just some facts to consider… Children with ADHD are more likely to have; – – – – – Poor peer relationships (75%) Immature motor coordination (30-60%) Increased sleep disturbances Verifiable (MRI) brain differences Higher levels of substance abuse and addiction (25-35% as teens, 10-15 as adults) – More police involvement (50%) Court 20%) – More grade retentions (25-35%) Just some facts to consider… Children with ADHD have – higher than normal rates of injury – at least one close relative who also has ADHD – High rates of school difficulty (90%) – Low frustration tolerance – Low self-esteem (65%) – Misattribution of intent of others acts Just some facts to consider… Youth with ADHD, in their first 2 to 5 years of driving, – have nearly four times as many automobile accidents – are more likely to cause bodily injury in accidents – have three times as many citations for speeding as the young drivers without ADHD. The good news The absolute level of symptoms declines 60-70% have a satisfactory outcome Most are living on own and are self- supporting Predictors of Adult Outcome – Socio-economic status predicts work success and academic outcome – Degree of childhood conduct problems predicts social, legal and academic outcomes – Degree of peer relationship problems predicts ongoing social problems Reading, Dyslexia, Learning Disabilities Who What How Statistics ¼ to 1/3 of Children diagnosed ADHD also have learning disabilities 3.5 % of children ages 6-21(slightly more than 2 million are receiving educational services for a reading disability A probable underestimate of children with reading difficulties – Large scale surveys of reading proficiency finds 50 to almost 70 % measured read below grade placement. – Boys are 4 to 6 times more likely to be identified but this may reflect referral bias and gender issues the actual prevalence is not that dissimilar What is a learning disability (from the Greene County SE Handbook) A disorder in one or more of the basic psychological processes involved in understanding or using language, spoke or written, that may manifest itself in an imperfect ability to listen think, speak, read, write, spell or do mathematical calculations. The term includes such conditions as perceptual disabilities, brain injury, minimal brain dysfunction, dyslexia and developmental aphasia. The term does not include learning problems that are primarily the result of visual, hearing or motor disabilities ; of mental retardation, of emotional disturbance or of environmental, cultural, or economic disadvantage. Agreement on certain factors: These various definitions suggest The learning disabled have difficulties with academic achievement and progress. Discrepancies exist between a person's potential for learning and what he actually learns. The learning disabled show an uneven pattern of development (language development, physical development, academic development and/or perceptual development). Learning problems are not due to environmental disadvantage. Learning problems are not due to mental retardation or emotional disturbance. AREAS of Disability Reading – Decoding – Comprehension Mathematics – Computation – Reasoning Writing – Spelling – Grammar – Composition – Handwriting Language – Spoken (Expressive) – Listening (Receptive) What causes LD Little is currently known about the causes of learning disabilities. However, some general observations can be made: Some children develop and mature at a slower rate than others in the same age group. As a result, they may not be able to do the expected school work. This kind of learning disability is called "maturational lag." Where does it come from Some children with normal vision and hearing may misinterpret everyday sights and sounds because of some unexplained disorder of the nervous system. Injuries before birth or in early childhood probably account for some later learning problems. Children born prematurely and children who had medical problems soon after birth sometimes have learning Learning disabilities tend to run in families, so some learning disabilities may be inherited. More Ideas about cause Learning disabilities are more common in boys than girls, possibly because boys tend to mature more slowly. Some learning disabilities appear to be linked to the irregular spelling, pronunciation, and structure of the English language. The incidence of learning disabilities is lower in Spanish or Italian speaking countries Learning to Read What we now know Developmental Sequence for Reading Your Handout is complete 3-to4 year olds – Show an interest in the sounds of language – Identify ten alphabet letters (mostly own name) – Develop an awareness that words and sentences come apart 4-5 – Breaks words into syllables – Breaks words into phonemes – Recognizes more letters Chart continued 5-51/2 – Can compare to determine if words rhyme – Can provide rhyming words – Recognizes and names most of upper and lowercase letters – Can count the number of syllables in a word – Can match first letter of words to pictures Why early diagnosis and intervention is important 90% 90% 80% 70% 60% 50% 50% 40% 30% 20% 10% 10% 0% Reading Test Scores (Percentiles) < 1 minute = 8,000 words 4.6 minutes = 282,000 words 20 minutes = 1.8 million words Clues to Reading Disabilities Preschool– Trouble learning common nursery rhymes – Persistent baby talk – Difficulty learning letter names Kindergarten & First – inability to learn letter names and sounds – Inability to learn word families – History of reading problems in family See handout for complete list Clues to Reading Disabilities Second grade on – Mispronunciation of long, unfamiliar or complicated words – Hesitant speaking – Slow progress in acquiring reading skills – Lack of strategy to read new words – Fear of reading out loud – Avoidance of reading for pleasure Diagnosing reading problems History Evaluations Evidence of Potential phonologic weakness (rhyming pronouncing and deletion tasks) Relatively intact overall language abilities. Standardized measures of reading, writing, spelling Processing tasks Those Phono things Phonologic sensitivity = the ability to focus on the sounds of words. Phonologic awareness = all levels of awareness of the sound structure of words, parts of words etc. Phonemic awareness = ability to notice, identiy and manipulate the smallest parts that make up a word (called phonemes) Phonemic memory = the ability to store bits of verbal information Several types of Reading Problems Developmental Dyslexia =language skills in tact weakness in phonologic skills Language based learning disability =difficulty both with decoding and comprehension Hyperlexia=great decoding very poor comprehension Acquired alexia = a loss or lessening of previously mastered skills as a result of brain trauma Writing difficulties & Executive function What it takes Attention demanding Task Difficulty – Initiating: beginning – Sustaining: persisting – Inhibiting: stopping – Shifting: switching – Organizing: specific – Planning: predicting Seen as – Poor idea generation – Loss of thoughts, disjointed – Additions to words or ideas – Stuck on an idea – Frequent erasers – Poor spacing – Lack of cohesive ties What happens when there is both Underlying weakness requires more sustained effort and focus = greater affect in that area. Specific skill requires more focus (i.e. writing and inferential comprehension)=greater affect in that area. Specific skill requires organization=greater affect in that area (30% lag in skills, lifelong need for external plan) THANK YOU QUESTIONS