Cultural Competence: An Essential Journey for Perinatal Nurses Mary Lou Moore, PhD, RN, FAAN Merry-K Moos, MPH, RN, FNP, FAAN Lynn Clark Callister, PhD, RN, FAAN © 2010 March of Dimes Foundation The Need for Cultural Competence in the 21st Century • High rates of immigration in the late-19th and throughout the 20th centuries contributes to cultural diversity in the United States. • Differences, including language, ethnicity and religion, exist within population groups. • Nurses cannot make assumptions about an individual based on the person’s race or ethnicity. © 2010 March of Dimes Foundation The Need for Cultural Competence in the 21st Century (Continued) • Race is defined in biological terms, based on characteristics such as skin color and hair. • Ethnicity refers to a group of people who share certain cultural characteristics. For example, the terms Hispanic and Latino refer to ethnicity. • Immigrants choose to migrate to a country and can bring money and belongings. • Refugees commonly are fleeing from their country of origin, often with little or no preparation. © 2010 March of Dimes Foundation Percent of U.S. Population by Race and Ethnicity Race and Ethnicity 2000 Census 2008 Estimate White 75.1 79.7 Black or African-American 12.3 12.8 American Indian/Alaska Native 0.9 10.1 Asian 3.6 4.4 Native Hawaiian and Other Pacific Islander 0.1 0.2 Hispanic/Latino 12.5 15.4 Two or more races 2.4 1.7 U.S. Census Bureau, 2000, 2009a © 2010 March of Dimes Foundation Racial classifications in the 2000 U.S. Census • • • • • • • White Black or African-American American Indian/Alaska Native Asian Native Hawaiian and other Pacific Islander Some other race Two or more races U.S. Census Bureau, 2009b © 2010 March of Dimes Foundation Health Disparities • Health disparities are differences that occur in the incidence or prevalence of disease, or in morbidity or mortality. The term also refers to differences in the way patients are treated. • Disparities occur in race, ethnicity, gender, age, economic status, religion and sexual preference. • Among the greatest reproductive disparities in the United States are preterm birth, infant mortality and maternal mortality. © 2010 March of Dimes Foundation Preterm Birth and LBW by Race and Ethnicity, 2006 Race/Ethnicity Preterm Birth LBW Non-Hispanic white 11.8 percent 7.2 percent Non-Hispanic black 18.1 percent 13.6 percent Hispanic 12.2 percent 7.0 percent Asian/Pacific Islander 10.9 percent 8.1 percent American Indian/Alaska Native 14.2 percent 7.5 percent Kaiser Family Foundation, 2009; Martin et al., 2009 © 2010 March of Dimes Foundation Disparities in Infant & Maternal Mortality, United States, 2006 NonHispanic white NonHispanic black Hispanic Total Infant mortality* 5.56 16.06 5.52 6.69 Maternal mortality** 9.50 32.70 10.20 13.30 * Infant mortality is deaths in the first year of life per 1,000 births. **Maternal mortality is deaths up to 42 days after the end of pregnancy per 100,000 pregnancies. Maternal mortality measures deaths related to or aggravated by pregnancy or pregnancy management. It does not include deaths after 42 days of birth or those related to external causes. MacDorman et al., 2009 © 2010 March of Dimes Foundation Cultural Health Disparities • Failure of nurses and other providers to understand the importance of beliefs about health and illness • Unwillingness to coordinate care with traditional healers, when appropriate • Lack of minority staff members • Inadequate interpreter services © 2010 March of Dimes Foundation Strategies for Decreasing Disparities in Health Care • Ensuring equality in access to care • Using educational approaches that serve the needs of diverse populations • Ensuring cultural competence among health care institutions and professionals • Using evidence-based care • Maintaining diversity within the health care team • Conducting research to better understand the needs of patients from various cultural groups © 2010 March of Dimes Foundation Health Literacy • Health literacy is person’s ability to obtain and use health information. It is an important predictor of health outcomes (DeWalt et al., 2004). • Pregnancy may be the first time a woman with low or marginal health literacy skills encounters the health care system. • Barriers to health literacy o Language o Cultural traditions and beliefs © 2010 March of Dimes Foundation Definitions of Culture • Culture is a distinctive way of life that characterizes a particular community of people. • Culture encompasses beliefs about health and illness, including prevention of illness and care of persons who are ill. © 2010 March of Dimes Foundation Dimensions of Culture: Decision-making Childbearing decisions may be made by: • The woman • The woman and her partner • The woman’s extended family, including several generations • Males or male elders • Spiritual leaders © 2010 March of Dimes Foundation Dimensions of Culture: Concept of Time • Much of the world has a relaxed attitude toward time. Women and families may not understand the need for specific time commitments, especially for prenatal care appointments. • Cultures may be past-, present- or futureoriented. The dominant U.S. culture is futureoriented, which means people act today with expectations for future rewards. Cultures not future-oriented may not see the need for preventive care. © 2010 March of Dimes Foundation Dimensions of Culture: Naming • Nothing is more personal than a person’s name. • Societies follow different patterns of naming that may cause nurses difficulty in record-keeping and completing birth certificates. © 2010 March of Dimes Foundation Dimensions of Culture: Communication Communication characteristics of the dominant culture in the United States • Well-developed verbal skills • Willingness to disclose personal information • Direct eye contact • Relatively large personal space • Moderate use of gestures • Expressive faces with smiles representing positive or encouraging emotions © 2010 March of Dimes Foundation Dimensions of Culture: Religion Religion Percent of U.S. Adult Population Protestant 51.3 Catholic 23.9 Jewish 1.7 Buddhist 0.7 Muslim 0.6 Hindu 0.4 Pew Forum on Religion and Public Life, 2008 © 2010 March of Dimes Foundation Dimensions of Culture: World View • World view is the understanding of how human life fits into the bigger picture. It allows people to make sense of what seems unknowable, including evil, disease and death (Farnes, Callister, Beckstrand & Carlton, in press). • Disease etiology is the part of a person’s world view that explains illness. It may include ancestral displeasure, body imbalance (yin/yang or cold/hot), breach of taboo, evil eye, fright, germ theory, object intrusion, soul loss and spirit obsession. © 2010 March of Dimes Foundation Dimensions of Culture: Modesty and Gender • Modesty (exposure of the human body): Some cultures accept public nudity under specific circumstances. In others, women must cover almost all of their bodies. • Gender roles: For many societies, the norms for interaction between men and women are much more restrictive than they are in the United States. © 2010 March of Dimes Foundation Key Concepts in Working Toward Cultural Competence • Ethnocentrism: When people think their beliefs and practices are superior to the beliefs and practices of other groups • Cultural relativism: The concept that a person’s beliefs and behaviors should be understood in the context of their culture • Acculturation: The process for adopting the practices of another group • Stereotyping: An oversimplification that reduces the possibility of knowing people as individuals © 2010 March of Dimes Foundation Key Concepts in Working Toward Cultural Competence (Continued) • Emic perspective: An individual describing her own culture • Etic perspective: An individual describing another culture • Health practices o Functional traditions can enhance health. o Neutral traditions neither harm or help health. o Nonfunctional traditions are potentially harmful. © 2010 March of Dimes Foundation Preconception Care The main goals of preconception care are to provide health promotion, screening and interventions to women of reproductive age to reduce risk factors that could affect a future pregnancy. © 2010 March of Dimes Foundation Preconception Care: Issues Across Cultures • • • • • • • • Ideal age for a woman to first become a mother Preferred number of offspring Preferred interval between pregnancies Appropriateness of preconception testing for genetic and other disease risks Use and suitability of contraception Appropriateness of induced abortion Desired gender of children Appropriateness of fertility treatments © 2010 March of Dimes Foundation Preconception Care: Genetic Counseling Competent preconception care includes assessment of genetic risks so that parents can make informed decisions about reproductive options, including: • Prenatal diagnosis after conception • Artificial insemination or oocyte donation • Preimplantation diagnosis • Attempting conception and pregnancy, regardless of potential outcome Moos, in revision © 2010 March of Dimes Foundation Prenatal Care • In many cultures, prenatal care is not rooted in interactions with health care providers. Instead, family members and the community as a whole provide special attention and care for the pregnant woman. • The United States spends more for prenatal care than any other nation (Strong, 2000); yet in 2005, the nation ranked 30th in infant mortality compared to the rest of the world (NCHS, 2008a). © 2010 March of Dimes Foundation Prenatal Care (Continued) • Most prenatal care occurs in an examining room. The woman is required to adapt to clinic processes and the authority of the provider and other staff. • If a woman or her support persons leave any prenatal visit feeling disrespected, unwelcome or marginalized, they may avoid future visits or disregard the information they received. © 2010 March of Dimes Foundation Reasons Women Disengage from or Do Not Attend Prenatal Care • Difficulty accepting the pregnancy • Depression • Discomfort with the specifics of prenatal care, such as waiting times and payment requirements • Perceived judgments by staff • Inability to keep appointments because of work or transportation issues • Belief that the care lacks meaning • Lack of social support © 2010 March of Dimes Foundation Prenatal Care Approaches • CenteringPregnancy® is a program that provides prenatal care in a group setting. It purposefully empowers women to become active participants in their own assessments and education. • Taking care out of the examining room can eliminate barriers between health care providers and patients. • Home visitation is an important feature of many enhanced models of prenatal care. © 2010 March of Dimes Foundation Prenatal Education Topics • Weight • Exercise • Postpartum contraception • Domestic violence • Protection against STIs © 2010 March of Dimes Foundation • Nutrition • Breastfeeding • Avoiding harmful substances • Use of seatbelts • Screening and diagnostic tests and test results Prenatal Testing • The nurse’s role in prenatal testing is to facilitate informed choices by the woman and her family. • Culture mediates reasons for seeking testing, interpretation of results and decision-making. • Women and couples may find prenatal testing confusing, emotionally charged and uncertain. • Test results can create negative consequences for women. © 2010 March of Dimes Foundation Prenatal Nutrition • Food has symbolic and health connotations. • Nutritional counseling can be challenging when culturally determined practices, such as fasting, conflict with principles of good and safe prenatal nutrition. © 2010 March of Dimes Foundation Intrapartum Care: Birthing Environment The atmosphere and policies of bio-technological birthing units may present cultural challenges for women (Lauderdale, 2008). • They may be anxious and fearful as they are forced to conform to a medical center’s policies and procedures. • They may feel their privacy is being invaded. • They may find it hard to be far from the support of extended family members. • They may face language barriers. © 2010 March of Dimes Foundation Intrapartum Care: Support Persons During Labor and Birth • Expectations about who accompanies or supports a laboring woman vary across cultures. Nurses must know the traditions of the cultural groups they serve and the specific preferences of each woman. • In many cultures childbirth is exclusively a woman’s experience. The baby’s father is not present. © 2010 March of Dimes Foundation Intrapartum Care: Cultural Responses to Pain • A woman’s sense of personal control over pain management influences the quality of the birth experience (Carlton, Callister & Stoneman, 2005). • Perceptions of childbirth pain, pain behaviors and pain-management preferences are culturally bound (Callister, 2006b). o Some view pain as a normal part of childbirth and coping with pain as a maternal achievement. o Some view pain as suffering that requires aggressive pharmacological management. © 2010 March of Dimes Foundation Intrapartum Care: Cultural Responses to Pain (Continued) • Some women may: o Prefer to be active during labor o Use herbs, acupressure, massage, meditation, hydrotherapy, birthing balls and position changes to reduce pain o Prefer to squat to give birth • Nurses should facilitate the use of safe, nonpharmacological methods of pain management and respecting women’s preferences for pain management. © 2010 March of Dimes Foundation Intrapartum Care: Cesarean Birth and Birth Emergencies • Nurses should assess how each woman or couple prefers to make important health care decisions, including cesarean birth, before a crisis arises. Ideally this occurs in prenatal care. • Even when this assessment is available, the labor and birth nurse revisits preferences and reviews situational limitations with the woman and her support persons early in labor. © 2010 March of Dimes Foundation Postpartum Care: Restoring Balance to the Body • The dominant U.S. culture encourages women to leave the hospital quickly, resume their normal diet and participate in activities as they can. • Other cultures prohibit eating certain foods and engaging in most activities for several weeks after giving birth. • Much of the world believes that health is achieved by balancing hot and cold. Many believe that giving birth depletes the woman’s body of the hot element, which puts her in a cold state. © 2010 March of Dimes Foundation Postpartum Care: Activities and Relationships • Postpartum practices provide social support, help the woman adapt to the maternal role, allow for care of the newborn, and promote the woman’s physical recovery. • Some cultures believe that postpartum women are delicate or vulnerable. • Who cares for a woman after she leaves the hospital often is culturally prescribed. © 2010 March of Dimes Foundation Postpartum Care: Postpartum Depression (PPD) • PPD occurs in most cultures throughout the world, with similar levels of prevalence (10 percent to 15 percent) (Beck, 2008). • Culturally specific risk factors for PPD: • Placing a higher value on having male rather than female children • Immigrant or refugee status • Inability to practice postpartum cultural rituals • Lack of an effective social support network © 2010 March of Dimes Foundation Newborn Care • Circumcision: Cultural traditions and religious beliefs may be the basis of whether or not male infants are circumcised, and when. • Feeding: Some cultures consider colostrum essential to establishing nutrition and maternalinfant bonding. Others think colostrum is dirty, old or unfit for a newborn. • Names: As hospital stays become shorter, members of many cultures find it challenging to follow hospital naming conventions. © 2010 March of Dimes Foundation Care of Preterm and High-Risk Newborns: Family-centered Care • Family-centered care is an approach to planning, providing and evaluating health care that is grounded in collaboration between families, nurses and other health care providers (Institute for Family-Centered Care, 2010). • NICU staff provides ongoing opportunities for mothers, fathers and babies to be together and for parents to participate in care. • Discharge teaching includes discussion of transportation home and follow-up appointments. © 2010 March of Dimes Foundation Fetal and Neonatal Death: Assessing the Meaning of Loss and Grief • What are important cultural traditions and rituals for coping with dying, handling the deceased’s body and honoring the deceased? • What does the family believe happens after death? • What are expected expressions of grief and acceptance of loss? • What family roles exist in coping with death? © 2010 March of Dimes Foundation Cultural Competence Culturally competent nurses: • Acknowledge differences between people as valuable and enriching • Seek to understand the perspectives of those who are different from themselves and modify practices to accommodate those differences • Advocate for organizational change • Continue to develop knowledge and skills about those for whom they care © 2010 March of Dimes Foundation Cultural Competence: Assessing the Childbearing Woman • How does the woman’s culture value childbearing? • Is childbearing viewed as a normal physiologic process, a wellness experience, a time of vulnerability and risk, or a state of illness? • Is birth a private intimate experience or a societal event? • How is childbirth pain managed? What maternal and paternal behavior is appropriate? © 2010 March of Dimes Foundation Cultural Competence: Assessing the Childbearing Woman (Continued) • What support is given during pregnancy, childbirth and beyond? Who gives this support? • What maternal precautions or restrictions are necessary during childbearing? • What does the childbearing experience mean to the woman? • How does the culture view newborns? What are the customs regarding infant care and relationships within nuclear and extended families? © 2010 March of Dimes Foundation Cultural Competence: Nursing Education Diversity in nursing can help achieve culturally competent care and reduce health disparities (ANA, 2002; Giddens, 2008; IOM, 2003). Racial Distribution of RNs in the United States, 2008 Race Percent of all RNs Non-Hispanic white 83.00 Asian/Pacific Islander 5.87 Non-Hispanic black 5.40 Hispanic/Latino 3.60 U.S. DHHS Bureau of Health Professions, 2009 © 2010 March of Dimes Foundation Cultural Competence: Health Care Organizations • Title VI of the Civil Rights Act of 1964 mandates that no person shall be subject to discrimination because of race, color or national origin in any program receiving federal financial assistance (U.S. Department of Justice, 1964). • In 1999, the U.S. DHHS Office of Minority Health published 14 National Standards for Culturally and Linguistically Appropriate Services (CLAS). © 2010 March of Dimes Foundation Special Topics: Working with an Interpreter • The best choice for an interpreter is a trained medical interpreter. A friend or family member may not understand terms used by the health care provider. A woman may be discussing issues she wants to keep private. • Many health care agencies rely on phone-based interpretation services; disadvantages include the inability to observe nonverbal communications. © 2010 March of Dimes Foundation Special Topics: Female Genital Cutting (FGC) • FGC is the cutting of the female genitalia for nonmedical reasons. • 100 million to 140 million women and girls in the world have experienced FGC (WHO, 2001). • The United Nations condemns FGC. It is illegal in the United States, Canada and most western European countries. © 2010 March of Dimes Foundation Summary Nurses must understand the role of culture and cultural competence throughout childbearing, from the preconception period and care of the newly born infant through the postpartum period. They must understand the importance of attitudes, knowledge and skills in the development of cultural competence for individual nurses and health care organizations. © 2010 March of Dimes Foundation