02/12/2012 1 Agenda • DMICs and their place in the NHS • IG landscape • DMIC development project – DMIC Network – DMIC Technical 02/12/2012 SEPHIG 5-Dec-2012 2 CSUs and DMICs CSUs • • • CSUs will provide CCGs with external support, specialist skills and knowledge, e.g. business intelligence services, clinical procurement services, business support services such as HR, payroll, procurement of goods and services and some aspects of informatics etc. to support them in their role as commissioners. CCGs have the freedom to decide which commissioning activities they do themselves, share with other groups or buy in from external organisations. Will be externalised in April 2016 02/12/2012 DMICs • • DMICs will collate commissioning intelligence pertaining to a number of CCGs, and provide this to other elements of the health service infrastructure including other CSUs. The structure of DMICs is varied; some are hosted by a subset of the CSUs, others operate as collaborative shared service across a number of CSUs . What are DMICs? They are The official NHS data processing and linkage orgs Hosted by CSUs or operating as Shared Services They are not Virtual organisations 3 Old-world Organisation Relationships 4 x PAN SHAs (e.g. Y52) 10 x SHAs (e.g. Q38) 151 x PCTs (e.g. 5QE) (50-ish PCT Clusters) 8,500-ish GP Practices 02/12/2012 4 -0aa 02/12/2012 DMICs New-world Organisation Relationships 1 x NHS Commissioning Board 4 x Commissioning Regions (e.g. Y57) 27 x Local Area Teams (e.g. Q69) 22 x Commissioning Support Units 9 x Data Management and Integration Centres 211 x Clinical Commissioning Groups 8,500-ish GP Practices 5 Geography of CSUs and DMICs CCG/Practice mapping 23 Commissioning Support Units 9 DMICs http://www.connectingforhealth.nhs.uk/ systemsandservices/data/ods/ccginterim Stop press: 0AF + 0AN = 0CE NHS Cheshire and Merseyside 9 Data Management Integration Centres Indicative 02/12/2012 6 How intelligence will be delivered National Bodies incl: NHSCB (regional teams), PHE, Research, Commercial, CQC, Monitor & Public National National Data Feeds Provider National flows Audits Care.data ONS National/ International Surveys HSCIC Conformed data supplied back up to care.data Local Data Feeds Sub-national Safe haven Provider (Local flows) DMIC x ~9 Wider Determinants Alternative providers Safe haven 3rd Sector LATs DMICs may also provide data to wider stakeholders CSU X~27 X~23 Local Small no CCGs doing own intelligence CCGs CCG x~210 LAPH CCG X~150 Data Flows To enable the widespread use of de-identified data in the NHS, consistent data quality, validation checks & linkage need to be undertaken. Due to the vast amount of locally defined unconformed datasets, a small number of DMICs have been proposed to undertake the data processing on behalf of local CCGs, CSSs and LA PH 02/12/2012 7 CSU/DMIC schedule Apr 2013 Apr 2014 CSUs and DMICs operational Apr 2015 Apr 2016 CSU s externalised • What does DMIC operational mean? • Main issues are – – – – – But first .. Operational readiness Data Interoperability – both ‘up’ and ‘down’ Pseudonymisation PbR rules What about Industry liaison 02/12/2012 IG? 8 NHS Act 2012 and IG • Tim Kelsey’s vision • Many practical issues unresolved in the Act – Section 251 needed to support flow of PID outside the HSCIC – PCTs do much more than just commissioning (e.g. Urgent Care) – Patchy implementation of pseudonymisation • Sharing data and linking it together will improve – – – – whole system understanding enable pathway monitoring across health and social care identify system interdependencies facilitate correlations between treatments, experience and outcomes Section 251 - sets aside the common law duty of confidentiality for [direct] medical purposes • where it is not possible to use anonymised information and • where seeking individual consent is not practicable. 02/12/2012 9 Commissioning Intelligence Model The business intelligence needs to support health commissioners can be framed as a set of questions that need help answering. • How healthy? • What’s really happening? • How much? • How good? • Are Providers delivering? • Could things be better? • Have we made a difference? • What are our future plans 02/12/2012 10 Commissioning activities requiring PID The seven scenarios where Commissioners need access to PID 1. Integrated care and monitoring services including outcomes & experience requires linkages across sources 2. Commissioning the right services for the right people requires the validation that patients belong to CCGs and have received the correct treatments 3. Aspects of service planning and monitoring on geographic data basis require postcodes for certain type of analysis 4. Understanding population and monitoring inequalities 5. Target support for patients and population groups at highest risk requires data from several sources linked together 6. Specialist commissioning is commissioned outside local areas and can require wider discussions about individual patients and their associated costs 7. Ensuring appropriate clinical service delivery and process requires access to records 02/12/2012 11 Caldicott2 review and need for interim position • It is agreed by all that there is a need for a holding position • To enable commissioning, PID including NHS no, DOB, Postcode data needs to flow to DMICs – The DMICs need to have similar powers and controls to the HSCIC to process data – In order for processing of PID at DMICs to be undertaken legally, a change in legislation will be required – Legislative changes can not be achieved by April 2013 • Caldicott2 report expected Jan/Feb 2013 • DMICs need to be operational in April 2013 02/12/2012 12 Proposed organisational access to PID for commissioning uses Organisation HSCIC Safehaven DMIC x ~9 safe haven Require PID flows For data linkage & validation for national flows (by small no defined roles) LATS X-27 Facilitates wide use of quality linked de-id data for wider agencies Facilitates wide use of quality linked deid data for commissioners between national and local flows(by small no defined roles) X~23 Small number roles which can not be done without use of PID via role based access Enables types of Commissioning (as per slide 12) Small number roles which can not be done without use of PID via role based access Enable aspects of service monitoring Access to postcode level data Enables geographic via role based access analysis To monitor at risk Access to PID data populations LAPH X~150 Patient level de-identified data suitable for all aspects of work May require PID if do not use CSU or LAPH CCGs x~212 02/12/2012 as per previous slide For linkage & validation CSU Clinicians Exceptions requiring controlled Justification access to PID Identifying at risk patients Enables proactive patient care 1 3 DMIC interim options • What are the options? – Do nothing - illegal – Send all data flows to HSCIC - impracticable – DMICs part of NCB & apply for section 251 - limiting – DMICs linked with IC + IC special powers – continuity 02/12/2012 • General agreement that DMICs need PID • NCB will not allow anything illegal • Continuity option may still need section 251 14 How intelligence will be delivered National Bodies incl: NHSCB (regional teams), PHE, Research, Commercial, CQC, Monitor & Public National National Data Feeds Provider National flows Audits Care.data ONS National/ International Surveys HSCIC Conformed data supplied back up to care.data Local Data Feeds Sub-national Safe haven Provider (Local flows) DMIC x ~9 Wider Determinants Alternative providers Safe haven 3rd Sector LATs DMICs may also provide data to wider stakeholders CSU X~27 X~23 Local Small no CCGs doing own intelligence CCGs CCG x~210 02/12/2012 LAPH CCG X~150 Data Flows To enable the widespread use of de-identified data in the NHS, consistent data quality, validation checks & linkage need to be undertaken. Due to the vast amount of locally defined unconformed datasets, a small number of DMICs have been proposed to undertake the data processing on behalf of local CCGs, CSSs and LA PH 1 DMIC development • DMIC network and technical groups meet monthly • DMIC Network concerned with authorisation – – – – CP2 (Jun 2012) authorised 9 DMICs to proceed CP5 (Feb 2013) will accredit DMICs as viable Liaison with industry groups ISO standards • DMIC technical focusses on service delivery – Interoperability • SUS • Customers – Pseudonymisation 02/12/2012 16 DMIC Technical issues • Access to SUS extracts – DME marts proposed – db 2 db data transfer – IG issues to resolve • Input to DMIC – six data feeds supported GP data SUS inpatients Community SUS outpatients Mental health SUS accident&emergency • Output from DMIC data processing in the form of Logical Data models – 3 logical models submitted to standards (IP, OP, A&E) – 3 more under discussion (GP, Mental health and Community) – 3 more proposed for 2013-14 (111/OOH, Ambulance and Referrals) • Common Pseudonymisation policy • Re-identification and web service • Common algorithm • Simple implementation in advance of Caldicott2 02/12/2012 One possible interoperability set-up 17 Data service in 2013-14 • Reality check – Not everything will happen by April 1st 2013 – SUS will not shut down PCT SUS feeds – New organisation hierarchy on some national systems from January – CCG IG function not fully operational – Many CSU BI systems will not be ready by April 1st 2013 • Therefore, – BAU systems will continue to operate through early part of 2013-14 – IG guidance will gradually be applied – The dust will settle as newly authorised organisations take on their statutory duties 02/12/2012 18 Thank you for listening Any questions? 02/12/2012 19 Hand-out - commissioning activities requiring PID 02/12/2012 20