fragile
youth/young
adults
A Parents Perspective
Kausha King
Youth Transition
17 year
old medically complex
scenario
youth with chronic health
issues
Has Medi-cal insurance
Dependent on others for care
Frequent hospital admissions
Current care includes his
primary physician and 5
specialty clinicians
Attends school
Ideal planning age
Because of the medical
complexities of this child an
ideal age would be between
14-16 years old
Transition
concerns
Medical care
Equipment needs
Medical supplies
Therapeutic services
School program
Who should be
involved in this
Parents
process?
Primary physician
Specialty physicians
School district
Regional Center case
manager
CCS therapist and nurse case
manager
Example Record
Keeping systems
Electronic device with
pertinent medical information
Binder system
Challenges in
finding
adult
care
Medical insurance not
accepted
Diagnosis is too complex
Physician not accepting any
more patients
Recommended physician is
too far away
Success in finding
Asking
your child’s
Primary
adult
care
physicians and/or specialty
clinicians for
recommendations
CCS staff
Peer families
Schedule an appointment with
a physician that may be
qualified to provide healthcare
to your child
Helpful
information
Start the dialogue with your
child’s team
Know your health care options
Inquire about a
Conservatorship before your
youth turns 18 if necessary
Find out if your child qualifies
for SSI