Measuring Quality Outcomes John N. Morris, PhD, MSW Director Emeritus Institute for Aging Research Hebrew SeniorLife, Boston November 2011 Key Question: How does care at your nursing facility stack up against external standards? Agenda • interRAI and interRAI Suite • Application of interRAI data – the QIs • Conclusions Agenda • interRAI and interRAI Suite • Application of interRAI data – the QIs • Conclusions Who are We? • A non-profit, international group of researchers and clinicians • Key interests: – Science (e.g., cross-national comparisons) – Assessment instrument development – Support of implementation in countries across the globe • Holds copyright to RAI assessment instruments • Grants royalty-free licenses to governments and care providers • License software vendors around the world • www.interrai.org interRAI Suite of Assessment Instruments • interRAI has created a multi-domain suite of assessment instruments, providing a common language to describe persons across sites of care • The instruments support assessment and care planning in aged care, mental health, and disability services • Each assessment instrument has: – Items common to other instruments – e.g., ADLs, cognitive function, mood, pain, falls, – As well as specialized items that are exclusive to that setting __ e.g., suicide and criminality items in the mental health tool InterRAI Assessment Instruments • First what we do not do • interRAI instruments are more than just a cobbled together set of measures Why are interRAI Assessments Different? • Developed by international panel of experts: geriatrics, gerontology, assessment, and health services research • Carefully tested psychometric properties • New design: assessment drives decision-making at all levels, from clinical to policy – Collect data once, use many ways • Develop compatible systems across health care sectors Why are interRAI Assessments Different? • cover all relevant domains – individuals’ strengths and weaknesses – include items on caregivers, environment – tradeoff of breadth and length • not only self-report – use all possible sources of information • include full definitions, time delimiters, examples, exclusions • training manuals Examples of Domains Covered Intake/Initial History Cognition Communication/Vision Mood/Behavior Psychosocial Well-being Functional Status Continence Disease Diagnoses Health Conditions Oral/Nutritional Status Skin Condition Medications Treatment/Procedures Responsibility Social Supports Environmental Assessment Discharge Potential/Status Discharge HC F C LT AL Core Items PAC CMH PC CHA MH Field Test – Can we trust the items • interRAI has looked at user acceptability – the results are most encouraging • Completed reliability in many countries • Used Kappa statistic – below .4 poor, .41 to 60 moderate, higher scores considered substantial agreement Average Weighted Kappa, by Instrument and Type of Item Good Acceptable Agenda • interRAI and interRAI Suite • Applications of interRAI data – the QIs • Conclusions It’s not enough just to measure….. Applications of interRAI Data Care Planning Policy Case-Mix ASSESSMENT Screening Quality Nursing Home Quality Indicators: So What is a “Good” Home? Different Ways to See Quality • Tender loving care -- a focus on daily life, social engagement, and happiness – Focus on an ideal image of what happens in a home setting. • Standards set by the service industry – Nature of facility -- Friendliness of staff, clean and comfortable rooms, the quality of the food – Qualifications of staff – Staffing levels – Adherence to standard care guidelines • Resident satisfaction self reports • Maximize resident outcomes–“Quality Indicators” ALL ARE IMPORTANT! • Unfortunately, the correlation among these measures is low • This holds for: – Survey results generated by government agencies – Person-based satisfaction surveys – Staffing levels – Person change measures Different Types of Quality Indicators -- Examples • Problem prevalence • Proportion of residents physically restrained • Proportion with daily pain • Problem Incidence – “Occur over time” • Falls over prior 90 days • Urinary tract infection • Change in Status over time • Rate of Decline in Physical Functioning • Rate of Improvement in Mood Defining Quality • Process standards – Tender loving care – a mirror of life at home – Adherence to specified care protocols • Environmental standards – – – – Cleanliness, quality of food Caregiver credentials Caregiver staffing levels Physical environment • Person’s satisfaction • Person’s status and how changes over time - Quality Indicators Thus We Have To Make a Decision on How to Assess Quality • For interRAI how the person changes over time matters – what happens with respect to functional, clinical status, and social aspects of daily life • Such outcomes are measured with program-based Quality Indicators – QIs Our Goal is Clear • Once in such a program the person has the right to expect staff to take every step possible to: – Solve immediate problems – Maximize the person’s functional potential – Enhance the person’s quality of life But the Challenges are Many • What specific quality measures should we use – what are the most appropriate yardsticks? • What can we reasonably expect a facility or program to achieve? • Looking at nursing homes, for example, we have to comprehend the person’s underlying potential for change High Decline Rates for Persons in NHs Are Not Inevitable! 35 30 Percent 25 20 15 10 5 0 Overall Hygiene Dressing Locomotion Transfer Nature of ADL Change Over 90 Days DECLINE IMPROVE Toileting Bed Mobility Eating Inter-Program Variability • Inter-program variability in outcome rates can be enormous • The next two graphs depict mean (or average) mobility change rates for nursing facilities in Canada and the United States Technical Issues • Access the computerized interRAI longitudinal assessments of the program participants • Transform these person-level data into program level QIs -- – introduce risk adjustment – decide how “different” is different” – Ultimately identify the “bad” and “good” providers • Establish the relationship among quality indicators • Create a summary Quality Composite Risk Adjustment of QIs • Necessary to compare “apples to apples” • Account for bias due to variations in program admission practices • Three ways to adjust – Stratification – Exclusions – Regression-based adjustment • Individual risk factors (covariates) • Direct stratification ADL Adjustment Example • The country is Japan • The comparison is across three types of facilities • The outcome is the proportion of residents who decline in “late loss” ADLs over a 90day period Example Risk Adjustment : ADL Decline in the Three Types of Japanese LTC facilities 15.0% Hospitals HFE Nursing homes 10.0% 5.0% 0.0% RAW ADJUSTED History of QIs • Development goes back two decades • We have worked to define what matters – it is something the industry in each country must face • In our cross-national work, interRAI created standardized versions of 80+ NF QIs • Through analysis and deliberations, the set has been reduced to 19 measures Functional QI Items QI Measure ADLs Locomotion Falls Cognition Communication X X X X X Clinical QI Items QI Measure Continence Behavior Infection Pain Mood Behavior Pressure Ulcer X X X X X X X Utilization QI Items QI Measure Catheter Feeding tube Restraint X X X Let us Look at Rates of Change In Nursing Facilities • First we will look at the individual QIs • We contrast Michigan facilities against the interRAI cross-national standard • With exceptions – Detroit facilities look pretty good id Co mm Co gn it iv e un ica t io n ne De cli ne De cli ne De cli ne De c li ne De cli ne De cli ne ad de r Bo we l Bl ot ion DL De c li dl De c li ne AD L Lo ss A Lo ss Lo ss A Lo co m Ea rly M La te Percent FUNCTIONAL DECLINE QIs -- High is Bad 25 20 15 Reference 10 Detroit Other Mich 5 0 id Co mm ad de r un ica t io n Co gn it iv e Bo we l Bl ot ion DL pr ov e pr ov e pr ov e Im pr ov e Im pr ov e Im Im Im pr ov e Im pr ov e pr ov e Im dl Im AD L Lo ss A Lo ss Lo ss A Lo co m Ea rly M La te Percent FUNCTIONAL IMPROVEMENT QIs -- High is Good 30 25 20 Reference 15 Detroit 10 Other Mich 5 0 Us e Inf ec ti o n Tu be es t ra i nt s 24 all s Be ha vi o r of R ce rS tag e Re ce nt F Inf ec tio ns Tr ac k Ul ina ry Pr es su re Ur Fe ed i ng ath ete r W or se nin g De cl i ne Ind we l li n gC Pa in Mo od Percent CLINICAL DECLINE QIs -- High is Bad 18 16 14 12 10 Reference 8 Detroit 6 4 Other Mich 2 0 Multi-Dimensionality of QIs – Facilities that perform well in one dimension may perform at a more average or even poor level in other selected dimensions of quality – How do we identify the “best” facilities or programs? • If a facility does poorly in any one dimension is the facility poor? • If it does superbly in multiple dimensions, is it best? A NH Example • Facilities with the lowest rates of falls are no more likely than other facilities to have low rates UTIs, antipsychotic use, cognitive change, and pain change. • On the other hand, they are somewhat more likely to experience an improvement in early loss ADLs and incontinence Creating The QI Composite • 8 functional change QIs -- employing both decline and improvement variants) • 10 clinical complexity QIs – e.g., incontinence, pain • 80% of composite score from functional measures • 20% of composite score is from clinical complexity measures Distributional Properties of NH QI Composite • The next table is based on data from 2 Canadian provinces and 5 US states • Data are weighted NH QI Composite - USA and Canada 30 25 Percent 20 USA 15 CANADA 10 5 0 -0 1 2 3 4 5 6 NH QI Composite Score - 10 Best, 4 Median 7 8 9 10 An International Standard • Given the cross-country relative equivalency in rates, interRAI has adopted this North American Distribution as its International Standard • And we show that the distribution differs from one jurisdiction to another NH QI Composite - International Standard 30 25 Percent 20 15 10 5 0 -0 1 2 3 4 5 6 NH QI Composite - 10 Best, 4 Median International Standard 7 8 9 10 NH QI COMPOSITE - TWO STATE COMPARISON 35 30 25 Percent 20 15 10 5 0 -0 1 2 3 4 5 6 7 NH QI COMPOSITE - 10 BEST, 4 MEDIAN International Standard Massachusetts Illinois 8 9 10 Several Use Examples for Quality Indicators • The type of report provided to a facility • Assessing inter-state variability • Measuring change in facility performance over time – an example from Massachusetts Key points • The position of your QI score – are you better, worse, or about average of other facilities in the comparison group (e.g., a state) • The range of scores across facilities in the state – some are in similar ranges others are quite diverse • If you are doing poorly in an area – is this a key issue that must be reversed? • If you are doing well in an area – do you understand why, does it make sense? If it does not, how can you expect to maintain this QI area as positive over time? 50 Example: Mid-Loss ADL Improvement TECHNICAL DEFINITION • Percent of residents who improve in Mid-Loss ADL functioning (transfer, locomotion) or remain completely independent in these areas NUMERATOR – two types of persons: • Residents at the follow-up assessment who are more independent than they were at the prior assessment • Residents who were independent at BOTH the baseline and follow-up assessments DENOMINATOR: • All residents with a valid follow-up assessment and a valid prior baseline assessment 51 Explanation of Example • Higher scores on this measure imply better quality of care. • The adjusted QI score over the reporting period is trending downward. The amount of change is trivial. – Regardless, performance is suffering over the reporting period. • Performance is above the reference sample median at the end of the period. 52 0.47 .95 0.34 .75 0.25 .50 0.16 .25 0.03 .05 2010Q3 2010Q4 2011Q1 Percentile Rank Adjusted QI Score Proportion of residents who improve in Mid-Loss ADL functioning (transfer, locomotion) or remain completely independent in Mid-Loss ADLs – A HIGH Score is Good 2011Q2 Quarter 53 More Detailed Data – Gives you the count of the number of residents who experience the condition referenced by the QIs Quarter 2010 Q3 2010 Q4 2011 Q1 2011 Q2 Adjusted QI Score 0.37 0.38 0.41 0.33 Raw QI Score 0.40 0.39 0.42 0.35 # of # of Residents Residents in at risk Numerator 38 35 41 35 94 94 97 99 54 Inter-State Comparison Summary NH Quality Indicator Index – States and Provinces Summary QI - State/Provincial Distribution 40.0 35.0 CC % 30.0 CH 25.0 IL 20.0 MA 15.0 OH PA 10.0 Reference 5.0 0.0 Worse -4 -3 -2 -1 0 1 QI Summaey Score 2 3 4 Best Changes in Quality Over Time • A 21 quarter comparison of quality in Massachusetts Nursing Homes – there is real improvement 57 QI Composite Score – 21 Quarter Trend in Massachusetts NHs 4.2 4 QI Composite Score 3.8 3.6 Mean QI 3.4 3.2 3 2.8 Q1 Q2 Q3 Q4 Q1 Q2 Q3 Q4 Q1 Q2 Q3 Q4 Q1 Q2 Q3 Q4 Q1 Q2 Q3 Q4 Q1 04 04 04 04 05 05 05 05 06 06 06 06 07 07 07 07 08 08 08 08 09 QI Composite - 21 Quarters For Massachusetts Nursing Homes 60 50 Percent 40 30 % QI Low -- 0-2 % QI Mid -- 3-4 % QI High -- 5-10 20 10 0 Q1 Q2 Q3 Q4 Q1 04 04 04 04 05 Q2 Q3 Q4 Q1 Q2 Q3 Q4 Q1 Q2 Q3 Q4 Q1 Q2 Q3 Q4 Q1 05 05 05 06 06 06 06 07 07 07 07 08 08 08 08 09 Agenda • interRAI and interRAI Suite • Applications of interRAI data -- QIs • Conclusions Final Comments • interRAI Quality Indicators represent – A large set of measures – They cross multiple dimensions – They challenge providers to improve functional outcomes and relevant clinical complexities • Choices have been made and as one considers the local situation on the ground you can select from among these measures – setting local standards and comparisons to international standards Final Comment • Choices have been made and one can select from among these measures to assess program performance – setting local standards and comparisons to international standards