2002-2012
10 YEARS OF LIFE
Dr. Joan Lluis Vives-Corrons
Head of ENERCA project
Head of the Red Cell Pathology Unit
Hospital Clínic - IDIBAPS of Barcelona
“Rare Diseases a model of EU Solidarity”
¿Why ENERCA ?
Visit your
doctor…
You feel
ill…
The doctor
prescribes
iron pills…
The doctor
does some
tests…
…and says:
you have
anaemia!
ENERCA
2012 2012
ENERCA
With the
RIGHT
DIAGNOSIS
you feel better
How ENERCA reduces Health Inequalities?
Recommendations
Clinical
Patient care
Training courses
European Symposium on
Rare Anaemias
THE FUTURE: Networking
Moving forward to the creation of a
European Reference Network (ERN) of
Expert Centres on
Rare Anaemias
ENERCA WHITE BOOK
THEMedical
FUTURE:Advice
Telemedicine and Telediagnosis
ENERCA has tools and experts for a better diagnosis…
Why not sharing knowledge and expertise ?
MEDICAL ADVICE
Second opinion /
Interprofessional support
Case manager
Experts
Diagnostic orientation
Experts information
Diagnosis
MEDICAL ADVICE
THE FUTURE: Research
Collaboration with
NEW TRENDS
Why CIBERER?
The Biomedical Network Research
Centre on Rare Diseases (CIBERER) is
one of the 9 public consortiums set up at
the initiative of the Carlos III Health
Institute (ISCIII)-Ministry of Science and
Innovation, to act as a reference to
coordinate and foster research into Rare
Diseases in Spain.
Mission
The knowledge generated is
translated from the laboratory
to clinical practice
Translational Research
Network Structure
• 60 Research Groups
29 Consorted Institutions
• Universities, Hospitals, Research
Centers thanks to CIBERER have
created an innovative network
structure: offers opportunities of
research actions and public-private
collaboration
• The centre encloses clinical and
basic researchers promoting
Cooperative Research in RD
¡THANK YOU!
Enerca Coordination Team
Head of Project - J.L. Vives Corrons (jl.vives@enerca.org)
Project Manager - María del Mar Mañú Pereira (maria.manu@enerca.org)
Project Assistant - Laura Olaya Costa (laura.olaya@enerca.org)
Red Cell Pathology Unit
Hospital Clinic i Provincial
University of Barcelona
c/ Villarroel 170
080036-Barcelona
Phone: +34 934515950
www.enerca.org