The Magic of Music: Children with Hearing Loss Christine Barton, MM, MT-BC June 28, 2014 Music Experience Today is Saturday, it’s time for music Today is Saturday all day long Today is Saturday, it’s time for music So, won’t you sing along? Christine Barton 2014 2 How did you get here… or… where did your journey start? Christine Barton 2014 3 For me, it began here… C. Barton © 2014 4 Then here… C. Barton © 2014 5 And here… C. Barton © 2014 6 Then here… C. Barton © 2014 7 Finally here! C. Barton © 2014 8 Agenda •Introduce music therapy profession •Introduce selected current research on deafness and co-existing conditions • Highlight key issues in music perception in children who are deaf or hard of hearing •Provide music experiences and resources to support communication in children with hearing loss and co-existing conditions Christine Barton 2014 9 Music Therapy Defined The clinical and evidence-based use of music interventions to accomplish individualized goals within a therapeutic relationship by a credentialed professional who has completed a music therapy program. -American Music Therapy Association, 2005 Christine Barton 2014 10 MT-BC Credential Music Therapist-Board Certified • Earn a Bachelor, Equivalency, or Master’s in MT from an accredited university • Complete a six month internship at accredited site • Pass the Certification Board Exam for Music Therapy • Earn CEUs or retake exam on 5 year cycle Christine Barton 2014 11 Why Music Therapy? • Takes advantage of the child’s innate musical abilities • Current meta-analysis reveals music therapy to be effective in developing communication, interpersonal, personal responsibility and play skills (Kern & Humpal, 2013) • May involve families in shared music-making experiences which can be carried over in the home • Can target gross and fine motor skill development through playing instruments or creatively moving to music • The structure and sensory input inherent in music help to establish response and role expectations, positive interactions and organization (AMTA, www.musictherapy.org) My Current MT Practice • 200+ children/week – D/HH – ASD – Dev. Preschool – Elementary Life Skills – Montessori (PTT) – Private Practice Christine Barton 2014 13 My Current MT Practice • Dual Diagnosis: – ASD/HL (5) – Down Syndrome/HL (2) – Mitochondrial Disorder/HL (1) – Bronchio-oto-renal/ASD/HL (1) – Intellectual Impairments/HL (3) – Medically Fragile/HL (1) Christine Barton 2014 14 CDC Prevalence of HL 2014 http://www.cdc.gov/ncbddd/hearingloss/facts.html • 1 to 3 children per 1000 are born with a hearing loss • 9 out of 10 deaf children are born to hearing parents Christine Barton 2014 15 Music/Language Similarities • Share terminology – Pitch, timbre, timing, intensity • Both have melodic contour • Similar strategies used when listening to music or language • Early exposure is critical for acquisition of both • Both follow a time-ordered sequence of skills or milestones Christine Barton 2014 16 Children learn their native language by hearing it, then speaking it, and finally reading and writing it. Music learning follows the same sequence. Christine Barton 2014 17 Music/Language Differences • Music encompasses a greater spectral range • Music can exist without language • Language can be altered in music without changing the music itself • Spoken language surrounds most children whereas music may not Christine Barton 2014 18 Music and Hearing Loss •HA and CI children perceive rhythm nearly as well as their hearing peers (Gfeller, 2000) •CI users less accurate than hearing peers in song recognition (Stordahl, 2002) •Pitch perception and production more of a challenge •For some, music may not be as enjoyable, but for others it is very motivating and desirable Christine Barton 2014 19 Music and Hearing Loss A handful of studies have shown that music training for individuals with hearing loss can have positive effects in cognitive, linguistic, memory, and music perception domains. (Abdi, Kahlessi, Khorsandi, & Gholami, 2001; Galvin, Fu, & Nogaki, 2007; Peterson, Mortenson, Gjedde, & Vuust, 2009; Yuba, Itoh, & Kaga, 2007). Christine Barton 2014 20 Deafness and Comorbid Conditions Gallaudet Research Institute (2009-2010) • 40% of D/HH children have comorbid conditions • 1 in 59 D/HH children receive services for ASD • More children (35.4%)with profound loss have the dual diagnosis • Result: deaf children receive ASD diagnosis later than hearing peers (Vernon and Rhodes, 2009) Christine Barton 2014 21 Deafness and ASD Rosenhall et al., 1999 • 1-6% of children who are deaf also have ASD • 1.6% unilateral • 7.9% mild to moderate • 3.5% profound Christine Barton 2014 22 CDC Prevalence of ASD 2014 http://www.cdc.gov/ncbddd/autism/data.html • 1 in 68 (eight year old) US children identified with ASD • Increase of 30% from 2008 • Boys 5 times more likely than girls • Most not diagnosed until after 4 Christine Barton 2014 23 Music and Autism Leo Kanner, 1943 • At the age of 1 year "he could hum and sing many tunes accurately.“ • About 2 1/2 years, he began to sing. He sang about twenty or thirty songs, including a little French lullaby. Christine Barton 2014 24 Music and Autism Heaton, P. (2005) Journal of Autism and Developmental Disorders, Vol. 35, No. 6, December 2005 Experimental investigations have highlighted exceptional pitch discrimination and memory in individuals with ASD. Christine Barton 2014 25 Music and Autism Ehlers, S., & Gillberg, C. (1993). Journal of Child Psychology and Psychiatry, 34, 1327–1350. Absolute Pitch (AP) in ASD individuals was at least 20 times the prevalence of the general population Christine Barton 2014 26 Music and Autism Brenton JN, Devries SP, Barton C, Minnich H, Sokol DK. (2008) Pediatric Neurology 2008;39:137-138. Absolute pitch is thought to be attributable to a single gene, transmitted in an autosomal-dominant fashion. The association of absolute pitch with autism raises the speculation that this talent could be linked to a genetically distinct subset of children with autism. Further, the identification of absolute pitch in even young children with autism may lead to a lifelong skill. Christine Barton 2014 27 Music and Autism Whipple, J. (2004) Journal of Music Therapy, Vol 41(2), 2004, 90-106. Meta-analysis revealed: All music intervention, regardless of purpose or implementation, has been effective for children and adolescents with autism. Christine Barton 2014 28 Music Experience for Benjamin • Improvisational in nature, incorporating his utterances, name or familiar phrases • Drums, guitar in open tuning or pre-tuned xylophones Christine Barton 2014 29 Music Experience for Yeahsen It rained on Yeahsen and Yeahsen got wet Pitter patter, pitter patter, pitter, patter, pat Use other names of family members, neighbors, classmates, baseball team, animals, food Christine Barton 2014 30 Music experience for William • Sing the Lings, syllables with xylophone or drum accompaniment Christine Barton 2014 31 Music Experience for Nathan • Write a Music Experience Book • Write a song Christine Barton 2014 32 Assessment Tools • SJI Music Assessment Rubrick, Barton, 2008 • Auditory Learning Guide, Developed for First YEARS by Beth Walker • FLAQ Parent Survey • Gordon PMMA Christine Barton 2014 33 Strategies • Utilize the team with the family at the core • Enlist and coach parents to help generalize targeted goals across multiple settings • Provide structure/routine – Visual schedule/class rules • Provide music experiences/instruments that require no formal training Christine Barton 2014 34 Strategies • Simple directions (use fingers as mnemonics) • Get attention first (“show me you are thinking about me”) • Appeal to all the senses • Repetition • Choices and alternatives • Tell them what they can do • Do not ask rhetorical questions! Christine Barton 2014 35 Considerations/Observations • Each child is unique • Hearing loss is usually addressed first • Intervention/placement is chosen based upon the most current need • Spoken language (and even reading) can occur after 5! • Hearing devices make a positive difference in the quality of life for individuals and families • Music offers the potential to create relationships and provide life long enjoyment Christine Barton 2014 36 Resources • The Listening Room (Advanced Bionics) – www.hearingjourney.com • Perspectives on Deafness and Autism Webinar Series – http://www.audiologyonline.com/ce/adv ancedbionics/events/details/23774/deafnesswith-autism-music-therapy Christine Barton 2014 37 Resources • Gallaudette Clerc Center – http://www.gallaudet.edu/clerc_center.html • More Than Meets the Eye: An Introduction to Autism Spectrum Disorders – http://www.gallaudet.edu/clerc_center/webinars /more_than_meets_the_eye_an_introduction_t o_autism_spectrum_disorders.html • Managing Behavior by Managing the Classroom: Making Learning Accessible for Deaf and Hard of Hearing Students with Autism Spectrum Disorder – http://www.gallaudet.edu/clerc_center/webinars /sharing_autism_research_on_deaf_or_hard_o f_hearing_students.html Christine Barton 2014 38 Resources • Autism Research Institute – http://www.autism.com/services_visualhearing • American Society for Deaf Children: http://www.deafchildren.org/deaf-autismamerica • Autism Speaks: www.autismspeaks.org Christine Barton 2014 39 Resources • West Music – www.westmusic.com • American Music Therapy Association – www.musictherapy.org • Guidelines for MT Practice in Developmental Care - Chapter 9: Children with Hearing Loss (Barton, 2013) Barcelona Publishers http://www.barcelonapublishers.com/index.php?ro ute=product/product&product_id=269&type=epub Christine Barton 2014 40 For More Information … Central Canal Creative Arts Therapies Chris Barton, MM, MT-BC, Director, Music Therapy Services/Consulting www.christinebarton.net Phone: 317-475-9914 E-mail: cgbarton@sbcglobal.net Christine Barton 2014 41