AGGRESSION IN DEMENTIA AND THE ROLE OF NON-PHARMACOLOGICAL INTERVENTIONS Kim Schlegel, MSW, RSW Lisa Joworski, TRS, R/TRO Brynn Roberts, MSc. OT, OT Reg. (Ont.) Case Study – Ms. Josephine Allegro 91 year-old widow currently living in long-term care. Diagnosis of Alzheimer Dementia in moderate stage. Josephine came from home where she was previously living independently. Recently reverted back to native Italian language. Josephine has shown increasing physical aggression and verbal aggression during bathing care. At times she requires 3 or 4 staff members to complete the task. Josephine paces continuously during the afternoon until dinner and is verbally nonaggressive as she calls out in Italian. Staff worry about her risk for exhaustion or falls. When staff approach her she becomes verbally aggressive and on two events she has struck out when staff try to redirect her. Josephine worked as a seamstress and was a homemaker. She raised 6 children with her husband. Why is studying this important? Dementia is on the rise- at home and internationally Behavioural and Psychological Symptoms of Dementia Agitation and Aggression Defining Aggression Physical/Aggressive Physical/Non-Aggressive Verbal Aggressive Verbal Non-Aggressive The Four Models of Behavioural Assessment Behavioural/Learning Model Reduced Stress Threshold Model - Behaviours are: Used because they have been reinforced over time. - Behaviours are: Responses to heightened vulnerability to the environment Biological Model Unmet Needs Model - Behaviours are: Symptoms of the underlying brain damage - Behaviours are: Communication to staff that there is an unmet need Hierarchy of Needs In Dementia Scholzel-Dorenbos, Meeuwsen & Olde Rikkert (2010) Integrating unmet needs into dementia health-related quality of life research and care: Introduction of the Hierarchy Model of Needs in Dementia. Retrieved from Aging & Mental Health, 14.1, p.117 Case Study: Josephine How would each of these four models explain Josephine’s responsive behaviours? Behavioural/Learning Model Reduced Stress Threshold Model - Behaviours are: Used because they have been reinforced over time. - Behaviours are: Responses to heightened vulnerability to the environment Biological Model Unmet Needs Model - Behaviours are: Symptoms of the underlying brain damage - Behaviours are: Communication to staff that there is an unmet need Alzheimer’s Disease Stage Mild MMSE 21-26 Functional Deficits Forget names and current events Complex tasks are difficult Items of value go misplaced Complicated interests abandoned Prompting for self-care required Denial of having a problem exists Withdraws and develop behaviour problems Moderate MMSE 10-20 Greater assistance required Sleep disturbed Difficulty remembering important things Orientation affected Greater independence early. Then greater dependence later in this stage Become agitated, isolated and anxious May become delirious with infection Things to Consider Help to feel competent and valued Can do old habits and routines and likes familiar May want full attention or less contact Change is difficult Tells the same stories and asks the same questions Want to feel like they have a purpose Gets lost in past life, places and roles, so go with the flow Memory leads to thoughts of others taking their memorable items Needs help, but does not know it or like it Can become emotional quickly Alzheimer’s Disease Stage Severe MMSE 0-10 End Stage MMSE 0 Functional Deficits Remembers own name, but can forget partners Unable to solve problems Full assistance with bathing and toileting. Difficulty with walking and falls risk starts Delusions and hallucinations may continue Anxiety, aggression and agitation occurs Sleep disturbance continues Unable to talk Only recognize spouse May scream out at times Full assistance with eating and drinking Resistant to care Unable to walk Increased risk and incidence of infection. Things to Consider Likes rhythmic movements and actions Fascinated by watching others Like to pick-up, hold, carry, rub or grip things Fine motor movements are lost Big movements are kept Limited visual awareness One direction – forward, cannot back up Likes pleasant sounds and familiar voices Like warmth and comfort feelings Aware of the world around them for short periods Limited movement Hard to connect with them Frontotemporal Disease (FTD) Stage Functional Deficits Consider: Mild • • Disinhibition, apathy and overeating Problems with planning, organization and memory Impaired judgement with financial decisions Social Withdrawal: less interest in family, friends, babies. May be inappropriate with strangers and lose social manners. Impulsive actions • Behaviours can be managed with changes in lifestyle & environment • May still be capable of managing household tasks • Independent with self care with little help Symptoms more pronounced Compulsive behaviours Cognitive: Mental rigidity, forgetfulness, Severe deficits in planning and attention. Further deterioration with motor co-ordination, cognition, emotions and learning depending of side of brain affected. • Utilize compulsive behaviours as a strength (ie. hole punching, cleaning, painting, wordsearches, math sheets) • Modify/decrease steps in activities to ensure the task is failure free • • • Moderate • • • • • Severe • Apathy, loss of empathy, disinhibition with language difficulties and memory loss. • Focus on remaining strengths , interests (music, counting) Semantic Dementia: Stage: Functional Deficits Consider: Mild: • Left side of brain: Difficulty finding words or name for something. • Right side of brain: Decline in empathy or awareness of other’s emotions • Moderate: • Left and right begin to appear similar. • Some behaviours similar to FTD. • Difficulty understanding expressive communication, recognizing names/faces. • Reading/ writing declines. • Some remaining strengths with numbers, colours and shapes. •Try simple wordsearch games, large piece jigsaw puzzles (25-100pc) •Sorting: artificial money, dice, coloured stickers poker chips Severe: • Language significantly impacted. • Behaviours similar to FTD. Left side: more interest in non -verbal activities (ie. expressive arts, music) Right side: may prefer games with words and symbols. • • Offer communication techniques (ie. pictures, model actions, note pad, whiteboard) Use humour for + redirection Ask for help with tasks that require modified, repetitive steps Progressive Non Fluent Aphasia: Stage: Functional Deficits: Consider: Mild: • Increased difficulty speaking and producing languages • Symptoms incl. slowed speech, trouble getting words out • can understand expressive communication and knows what he or she wants to say Moderate: • • • • Try board or number of pictures to help express their meaning. Skills remain intact with numbers, colours, shapes Able to read emotion – empathize and validate Reading/writing still good Significant problems with speech Increased use of short sentences May use extra articles and/or adjectives (ie. “that thingy over there”) • • • Severe: End stages • Essentially mute • BPSD similar to FTD • Some develop Parkinson’s like motor problems like muscular rigidity and stiffness. • • • • Non Verbal Communication is key. Use a pro-attention plan Know psychosocial history: interests in music, animals, spirituality Sensory Stimulation • involves difficulty with swallowing, chewing, moving, bladder. • • +Time needed to process task at hand, Comfort measures Lewy Body Dementia Common Change: Description: Consider: * Distorted Perceptions • Very common, up to 80% of people experience hallucinations. Often of children and animals. • Do not argue or rationalize. Use validation. Visual/Spatial difficulties • Difficulty judging depth/recognizing distance between self and objects • Monitor for falls; utilize high contrast colours (colourful tape) Parkisonian symptoms • Slowed movements, difficulty walking, balance impairment, rigidity, stooped posture, shuffling walk, tremor at times, reduced facial expression, difficulty swallowing, weak voice, small handwriting • Monitor for risk of falls; refer to PT/OT for assessment Sleep • • • REM sleep disturbance, active dreams, sleep walk, talk in sleep. Increases in frequency as dementia progresses Have a plan for nighttime; provide low stimulation and appropriate activities to engage in at night; music, tea. * Rapid mood changes • • Can shift rapidly through anger, depression, tearfulness. Heightened sensitivity to stimuli (noise, quick movements) • Keep stimulation low, be mindful of movements (move slowly!); Keep predictable, consistent schedule. * Rigidity • Unable to move past a topic of conversation or to physically move • Validate, allow time for processing, provide time and space, do not try to re-direct, answer questions/ comment each time as thought it is new Types of non-pharmacological interventions reviewed: 1. 2. 3. 4. 5. Sensory intervention Music, Massage/touch, White noise, Sensory stimulation Social contact One to one, Pet visits, Simulated presence therapy and videos 6. 7. Behavioural therapy Differential reinforcement, Cognitive, Stimulus control Staff training Activities Structure Walks Physical activities Environmental interventions Wandering areas, Natural and enhanced environments, Reduced stimulation environments Medical/nursing care interventions Light therapy, Sleep therapy, Pain management, Hearing aids, Removal of restraints 8. Combination therapies 9. Individualized Interventions Social Contact Successful Interventions Pet Therapy / Animal Assisted One to one interaction Simulated Interactions / Presence Reminiscence Take Home Thought: • Any contact was found to be effective in reducing verbally non-aggressive behaviours • Reminiscence was found to be effective in reducing resistance to care • Real human contact was found to be the most effective Exercise and Activity Therapy Successful Interventions: Interventions to consider: Low intensity work-outs Walking programs Free access to outdoor area Activity programs ADL’s Stage of dementia Take Home Thought: • Low intensity programs can be successful in reducing physical aggression and agitation- but know the person’s stage & needs • Activity is Prevention: Activity is important in maintaining capabilities! Caregiver Training Successful Interventions Formal and informal caregiver education: Focused on education on recognizing, preventing, and planning for aggressive behaviours Focused on dementia, and using the ABC model or behavioural mapping “Culture shift” Caregiver modelling Bathing without Battle Take Home Thought: • This is our “time saving” intervention! • Even 3 sessions with nursing home staff could lead to less aggressive acts! Nursing and Medical Care Correlations: • Pain: Verbalizing, Physical aggression • Sensory impairment: Agitation • Discomfort: Verbal aggression and non-aggressive behaviours; Physical aggression Interventions to try: 1) Pain Management: http://pda.rnao.ca/content/managem ent-pain-non-pharmacologicalmanagement 2) Deep breathing 3) Modified daily activity 4) Changing the pace 5) Allowing breaks 6) Scheduling to allow for downtime 7) Changing body position during care and rest 8) Increasing pleasant activity 9) Offering sensory aids (hearing aids) Environmental Changes Successful Interventions Interventions with Limited EVB effect Covering doorknobs and doorways with Covering doorways has some curtains/blinds* contradictory results* Having free access to outdoor Covering doorways with mirrors can lead environments & gardens (greater freedom to increased agitation. of movement). Evidence on special care environments is Normal natural light versus bright light. mixed. Smaller tables and group sizes Take Home Messages: Neutral wall colours 1) Create choice & freedom Moderate noise level; Low volume 2) Home-like environment: Use television, radio, and telephones natural light and sounds Structured daily routine 3) Maintain low stimulation Nature songs with large matching photos 4) Coverings are Engagement more successful in afternoon contradictory- but try them! (between 2:00-5:00 p.m.) versus the Depends on the person. morning Sensory Interventions • Successful Interventions Interventions with Limited EVB effect Glider-swing/Rocking chair Music Music vs. music therapy Recreation Therapy Spa baths Massage and touch Bright Light Therapy Aromatherapy Snoezlen/multi-sensory room Natural Elements Music Length of effect Person-Centered Care Successful Interventions Getting to know the person: Who is this person? What is their personality? What do they like? Dependent variable in care- we cannot change the person! We must accept them for who they are Utilize this information in their care plan: Shows significant reductions in behaviours! Take Home Message: Person-centered bathing - The first step is accepting this Use of music person for who they are Person-Centered vs. Person-Driven Care - Know the client: Formal and informal caregivers working closely together is our best tool for success! - Use the All About Me to help gather information Stimuli Table 2. Predetermine Stimuli: The order of stimuli was randomized. Stimulus Category Stimuli Used Live social A real baby, a real dog, and one-on-one socializing Reading Reading a large print magazine. Self-Identity Individualized stimuli matched to each participants past identity with respect to occupation, hobbies or interests. Music Listening to music. Work Stamping envelopes, folding towels and sorting envelopes. Simulated Social A life-like baby doll, a childish-looking doll, a plush animal, a robotic animal and a respite video. Manipulative A squeeze ball, a tether ball, an expanding sphere, an activity pillow, building blocks, a fabric book, a wallet for men, a purse for women, and a puzzle. Baseline No stimulation provided / usual care Cohen-Mansfield, J.S., Marx, MM.S., Dakheel-Ali, M., Tegier, N.G., Thein, K. & Freedman, L. (2010). Can agitated behaviour in nursing home residents with dementia be prevented with the use of standardized stimuli. Retrieved and adapted from Journal of American Geriatric Society, 58, p. 1461 The Ten Absolutes of Caregiving Never Argue – Instead Agree Never Reason – Instead Divert Never Shame – Instead Detract Never Say “Remember” - Instead Reminisce Never Say “I told you” – Instead Repeat & Regroup Never Say “You can’t” – Find out what they CAN DO! Never Command or Demand – Instead Ask or Model Never Condescend – Instead Encourage and Praise Never force – Instead, Reinforce Take Home Messages Physical Aggression Physical NonAggression Verbal Aggression Verbal NonAggression Pain Discomfort Low-intensity programming (walking) Caregiver training/education Any type of social contact Task-specific activities Person-centered care plan Music (Bathing) Reminiscence social contact Low-intensity programming (walking) Unrestricted outdoor space Door/window coverings Sensory aids Social interventions (recreation) Person-centered care plan Music (agitation) Any type of contact Home-like environment Low stimulating environment Discomfort Music Social opportunities (recreation) Task-specific tasks Touch/Massage Pain Discomfort Live social contact Task-specific activities Music Social interventions (recreation) Touch/Massage Resources & Links Dementia Care Leaders for long term care homes: Eden Alternative: www.edenalt.org Sherbrook Community Centre: www.sherbrookecommunitycentre.ca Dementia Village: www.cnn.com/2013/07/11/world/europe/wusholland-dementia-village/index.html Positive Video Links: Eden Alternative: http://www.youtube.com/watch?v=ZKRMd-r2dN8 Wattle’s Innovative Program for People Living with Dementia: www.youtube.com/watch?v=1LCRrcxlrXE. Resources & Links Montessori : https://globalnews.ca/video/1360548/a-new-way-of-caringfor-those-with-dementia Dementiability Free Resources: www.dementiability.com Teepa Snow (Dementia Care Educational Resources): www.dementiacareacademy.com Music Resources: Java Music Club: www.javamusicclub.com Room 217: www.room217.ca Ipod Project: www.imnf.org Resources & Links Animal Assisted Therapy/Visits: Canada’s Guide to Dogs: www.canadasguidetodogs.com St. John Ambulance: http://www.sja.ca Hand Massage: https://www.youtube.com/watch?v=tAJ6JsITQo0&feature=youtu.be Multi Sensory: http://www.youtube.com/watch?v=IpuYfZQGN8&list=PLeepEjmy_AglymCxHgUivtcwyziSyVZvL&index=4 Activity Resource Catalogues/Websites: Concepts du Sablier: www.sablier.com Nasco Seniors Spectrum: www.enasco.com Thank You! Questions? References Ahn, H., Stechmiller, J, & Horgas, A. (2013). Pressure ulcer-related pain in nursing home residents with cognitive impairment. Advances in Skin and Wound Care, 26(8), 375-80. 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