The Many Losses of Alzheimer’s Chantel Bishop RN Sharing the Knowledge in Hospice Palliative Care October 22nd, 2011 A little bit about myself What I hope you will learn from today’s presentation…… • An understanding of dementia and how it affects brain function. • The “Silent Epidemic” it is • The particular losses individuals and their families experience with dementia What is Dementia? • Umbrella term – decline in multiple cognitive functions • Usually gradual onset but progressive • Generally not reversible • Causes damage to different areas of the brain Types of Dementia • Over 70 different types • Alzheimer’s Disease most common The Silent Epidemic Canadian numbers.... • ~ 500 000 have Alzheimer’s or other dementia (ADOD) • 70 000 < 65 living with dementia • 1 in 11 > 65 have ADOD • 2008 – 103 700 new cases of dementia (1 new case every 5 minutes). • 2038 – projected to be 257 800 (1 new case every 2 minutes) Rising Tide: The Impact of Dementia on Canadian Society Alzheimer’s & The Brain The 7 A’s of Dementia – Useful tool to categorize and explain losses of dementia. – How dementia affects the brain – Each A will represent damage to a particular area of the brain – Not likely to experience all of them #1 - Anosognosia • No knowledge of illness or disease • Lives in present but with past memories. • Lack of insight. • Often behaviour and safety concerns. #2 - Amnesia • Loss of memory • Short and long term • Memory loss is in reverse order – like peeling an onion • Their reality is not ours. #3 - Aphasia • Loss of language • Expressive aphasia o Unable to express self • Receptive Aphasia o Understanding of what is said • Non-verbal communication usually very much intact. #4 - Agnosia • Loss of Recognition o people, objects, sounds • Perceived but not recognized – disconnect between senses and memory • Can lead to altered behaviors and interactions. #5 – Apraxia • Loss of purposeful movement – even though physically able and desire to do so. • Results from impaired motor planning and sequencing. #6 - Altered Perception • Altered depth perception • Visual distortions. • Altered tactile perception. #7 - Apathy • Loss of initiation. • Often interpreted as a sign of depression • Involves frontal lobes and limbic system. Other common losses • Having to retire from work • Managing finances • Transition from independent living to care • And one of the most difficult losses – driving! Driving Family and loved ones • They experience loss too. • While the loved one is still alive. • Physically present but not psychologically. • Loss of shared history, sense of humor, ability to communicate, role within the family. In summary............. • Dementia is a chronic, progressive disease; with no cure. • Individuals and their families suffer multiple losses throughout the course of the disease. • Think about ways you can help someone living with dementia.