Partnership Working
and Developments in
Cancer Care
Paula Kealey
Senior Macmillan Development Manager
8th May 2014
The cancer landscape is changing
In the past most people died
some were cured
Today people with cancer are
living longer
•Earlier detection
•Advances in technology
•New targeted therapies
•Cancer research
Data from the Scottish School of Primary Care’s Multimorbidity Research Programme.
Some of our achievement in 2008
What is the Northern Ireland
picture?
67,000
today
9
The focus of cancer services is on
the actual disease
Cancer can impact on all aspects of a
person’s life
FINANCIAL
To help people make the transition after
treatment we need to focus on recovery
Finding out “what matters to
you” as opposed to
”what’s the matter with you”?
The Five Survivorship Stages
Information &
Support from
point of
diagnosis
Promoting
Recovery
Sustaining
Recovery
Improving Survivorship Intelligence
Managing
consequences
of treatment
Supporting
people with
active and
advanced
disease
The NCSI defined four priorities
1.
Redesigning follow-up
2.
Recovery package
3.
Physical activity
4.
PROMs and consequences of treatment
http://www.youtube.com/watch?v=5Lw7pu9l6I8&f
eature=youtu.be
To bring about this change we have
formed a partnership
Public
Health
Agency
Health &
Social Care
Board
Involving
people
affected by
cancer in
the process
NI Cancer
Network
Macmillan
Cancer Support
Transforming Cancer Follow-up
AIMS
Improve patient experience after treatment and health
and wellbeing
Reduce inefficiencies in hospital follow up
Enhance service coordination and integration
Redesigning Follow Up
Promoting Recovery
Assessment and Care Planning
Treatment Summary
Cancer Care Review
Cancer health and wellbeing events
Macmillan Information & Support Services
Financial Advice Services
Getting help to get back to work
Physical activity is important for
ongoing health
Exercise to music DVD
Evidence
Reviews
Macmillan local
projects
Jam packed
website
Patient Packs
Self Management Programmes
Rehab across the patient journey
Diagnosis &
Treatment
Rehabilitation
Early
monitoring
Later
monitoring
Progressive
illness*
End of life care
[Year 1 deaths]
’
32
33
34
35
37
Cancer Rehabilitation Scoping:
Activities so far
• Over 60 stakeholder meetings
• Literature review and full review of key
activity in cancer rehabilitation (Mac and
non Mac)
• Survey of Macmillan rehabilitation
professionals (n=120)
• Close liaison with ‘trusted others’
• Identification of key themes and next steps
Partnership Working
Cancer Lifeline
To find out about services to support
you go to the following web site...
www.survivorship.cancerni.net
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