Patient centred care and vulnerability in old age: An overview of qualitative empirical research undertaken as part of a PhD Presentation for BGS Nurse Consultant SIG - September 2010 Clare Abley Nurse Consultant for Vulnerable Older Adults – Newcastle Clare.abley@newcastle-pct.nhs.uk Overview of thesis • • • Background and policy context: patient centred care and vulnerability Methods What can we learn from older people about patient centred care: – Getting back to normal, improved function, feeling good about oneself, not knowing that you are getting old. • Barriers to providing patient centred care (3 levels) – – – – • Uncertainty as to what constitutes patient centred care Dilemmas: balancing the needs of older person with needs of others When older people have mental health problems When older people have alcohol problems Overcoming the barriers: – Build on good practice – involvement, creativity, flexibility – Patient centred care with selective focus on others Overview………. • Introducing vulnerability in old age: • Older people - being in a particular situation ‘at the mercy’ of others • Volunteers – social isolation, dependence on others for care, occurrence of a critical event, whole systems failure • Professionals – mentally and physically frail and lives alone, no significant other, crime victim, at risk or having a number of risk factors, unable to manage own risks, in abusive or potentially abusive situation, imbalance in care needed and care provided which is detrimental to person • Vulnerability: What can we conclude from its social construction? • Vulnerability comprises at least 2 concepts: insider and outsider vulnerability - this equates to feeling and being vulnerable Overview……. • Patient centred care for vulnerable older people: key findings – Those who consider their care to be patient centred do not see themselves as vulnerable – Those who see themselves as vulnerable do not consider themselves to be in receipt of patient centred care • Conclusions: A matrix taxonomy of patient centred care and vulnerability in old age • Recommendations Recommendations Policy Research Practice • Professionals to focus more on insider vulnerability • Use of indicators to determine if practice is patient centred (handout) • Ask older patients: Do you ever feel vulnerable? If so, when and in what situations? • Use of patient centred interactions to reduce older people’s feelings of vulnerability • Teams to acknowledge uncertainties (about PCC), but still agree a way forward • Explicit discussion of dilemmas – aim for patient centred care with selective focus on others • Improved communication between staff from different organisations • Proactive development work to eradicate negative stereotypes of old age Any questions?