CYP IAPT measure and data
structures
CYP IAPT Data Managers Training
28 Feb 2012
http://www.iapt.nhs.uk/cyp-iapt/routineoutcome-monitoring-as-part-of-iapt/
Plan
• A guide to the overall structure of the CYP
data spec
• Timetable for data submissions
• The export specification
Assessment
Treatment
session 1
Treatment
session 2
…
Review
Assessment
Both:
• Strengths and Difficulties Questionnaire (SDQ)
• Revised Child Anxiety Questionnaire (RCADS)
Session-by-session
• Symptom tracking:
– At least one measures from the resource pack
– (If none apply, then use the “how are you doing”
Impact measure)
• One of
– Goals, or
– General well-being (CORS)
• Feedback
– CSRS, or
– Feedback questionnaire
Example symptom measure: Panic
Review
• SDQ
• RCADS
• CHI-ESQ
Data hierarchy
Demographics
Period of
contact
Event
Questionnaire
Period of
contact
Event
Questionnaire
Questionnaire
Event
Questionnaire
Event
Questionnaire
Questionnaire
Event
The data specification
• Specifies what data should be collected
• What format it should take
Ordered
0
1
2
3
4
999
No problem
Minor problem
requiring no action
Mild problem but
definitely present
Moderately severe
problem
Severe to very
severe problem
Not known
Demographics
NHS_ID
SERVICE_ALLOCATED_PATIENT_ID
SERVICE_ID
DOB
GENDER
ETHNICITY
NHS ID
Locally service assigned patient
ID, used if and only if NHS
number is not available.
Assumed to be unique at local
level but not across global
dataset.
Service identifier, e.g., a trust or
specific service
The date on which a PERSON
was born or is officially deemed
to have been born.
Gender
Ethnicity
Period of Contact examples
PERIOD_OF_CONTACT_START
CASE_CLOSURE_STATUS
PERIOD_OF_CONTACT_END_DATE
CASE_CLOSURE_REASON
Period of contact start date
Case status
Period of contact end date
(case closure date)
Closure reason
Event examples
EVENT_DATE
EVENT_TIME
EVENT_TYPE
COMPLETION_POINT
APPT_ATTENDED
Event/session date (e.g.,
therapy session, homecompleted questionnaire,
telephone follow-up). Date of
event rather than of data
entry.
Event/session time
Event/session type
Point in period of contact
when event occurred
Attendance at appointment
Questionnaire examples
PANIC_QUESTIONNAIR Panic Subscale of Revised Child Anxiety and Depression (PANIC) E_VERSION
questionnaire version
PANIC_COMPLETED_B Panic Subscale of Revised Child Anxiety and Depression (PANIC) Y
completed by
PANIC_01
Panic score (RCADS) 1. When I have a problem, I get a funny feeling
in my stomach
PANIC_02
Panic score (RCADS) 2. I suddenly feel as if I can't breathe when there
is no reason for this
PANIC_03
Panic score (RCADS) 3. When I have a problem, my heart beats really
fast
PANIC_04
Panic score (RCADS) 4. I suddenly start to tremble or shake when
there is no reason for this
PANIC_05
Panic score (RCADS) 5. When I have a problem, I feel shaky
PANIC_06
Panic score (RCADS) 6. All of a sudden I feel really scared for no
reason at all
PANIC_07
Panic score (RCADS) 7. I suddenly become dizzy or faint when there
is no reason for this
PANIC_08
Panic score (RCADS) 8. My heart suddenly starts to beat too quickly
for no reason
PANIC_09
Panic score (RCADS) 9. I worry that I will suddenly get a scared
feeling when there is nothing to be afraid of
Windows for data submission
Quarter
Dates
Submission window
Q1 2012
January – March
1–15 April 2012
Q2 2012
(Q1 refresh)
April – June
1–15 July 2012
Q3 2012
(Q2 refresh)
July – September
1–15 October 2012
Q4 2012
(Q3 refresh)
October – December
1– 15 January 2013
Q1 2013
(Q4 refresh)
January – March
1– 15 April 2013
Data to extract
Records which have been either
– Created, or
– Amended
during the submission period
File types
Data Submission File Type
1
File
Prefix
DEM
2
POC
Period of Contact
3
EVENT
Individual Contact File
4
QUES
Questionnaire Files (one for
each questionnaire)
Hierarchy
Demographic File
Data hierarchy again for export
Demographics
Period of
contact
Event
Questionnaire
Period of
contact
Event
Questionnaire
Questionnaire
Event
Questionnaire
Event
Questionnaire
Questionnaire
Event
Data hierarchy
• Questionnaire (QUEST) submissions also need an
associated
– Individual Contact (EVENT) file,
– period of contact file (POC), and
– Demographic (DEM) file.
• Individual Contact/Event record (EVENT) submissions need
an associated
– Period of contact file (POC), and
– Demographic (DEM) file.
• Period of Contact (POC) submissions need an associated
– Demographic (DEM) file.
• Each Demographic (DEM) record submitted will not have an
associated parent as it is at the top of the file hierarchy.
Upload process
Upload page
Service IDs for submissions
London
(UCL/KCL)
Manchester
Reading
(Salford Cognitive Therapy
Training Centre)
101
Cambridge
201
North Pennine
301
Oxford
102
Hertfordshire
202
South Pennine
302
Buckinghamshire
103
Sussex
203
Manchester &
Salford
303
Swindon
104
Greenwich
204
Derby
304
Wiltshire
105
Lambeth &
Southwark
205
Barnsley
305
Bath & NE
Somerset
106
Haringey
306
Bournemouth
107
South London &
Maudsley
307
Dorset
108
Westminster
308
Poole
109
Wandsworth
309
Glouchestershire
QUESTIONS?