AHEAD 2012 Presentation

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Applying

Disability Studies in

Disability Services

Wendy S. Harbour, Ed.D.

AHEAD/PEPNet Conference

New Orleans, Louisiana

July 11, 2012

© 2012

Introductions and Overview

 PowerPoint and handout online

Purpose of presentation: “Disability Studies 101” for disability services providers

Models of disability

Ableism

Disability studies

“Cripping the curriculum:” Infusing disability studies into courses

Foundations of Disability Studies

1.

Disability and disability-related barriers are socially constructed ; disability does not have to be an inherently negative, pathological condition.

2.

Ableism and oppression are part of the shared experience of disability.

The Medical Model of Disability

The Medical Model and

Disability:

It’s a problem with the person who has a disability

Disabilities need to be fixed

Professionals are the only hope for a cure or normality

“Over-coming” and normality are goals

Socio-Political Models of Disability

The Social Model and

Disability:

Disability is neutral

Barriers are “socially constructed” and primarily exist in the environment

Disability is part of the human experience

Anyone can create change

Goal is to change environment to reduce barriers

Socio-Political Models of Disability

The Cultural Model and

Disability:

Disability defined by time, culture, ethnic group, etc.

Disability is part of the human experience

Attitudes about disability can teach us about our societies

The goal is changing values and attitudes, and keeping

“disability” in context

Socio-Political Models of Disability

The Political Model and

Disability:

Disability is defined by law, policy, and who has power or resources

Political and legal definitions reflect trends in society

The goal is distributing resources and re-defining concepts like “deserving”

Summary of the Models

Medical

Model

Cultural

Model

Legal/Political

Model

Social

Model

Individual

Society and

Values

Interactions and

Environment

Law and

Policy

Models Reveal Ableism

“…[T]he devaluation of disability results in societal attitudes that uncritically assert that it is better for a child to walk than roll, speak than sign, read print than read Braille, spell independently than use a spell-check, and hang out with nondisabled kids as opposed to other disabled kids, etc.

In short, in the eyes of many educators and society, it is preferable for disabled students to do things in the same manner as nondisabled kids .”

Hehir, T. (2002). Eliminating ableism in education. Harvard Educational Review , 72 (1), 1-33.

Connections…

So how can we connect the

Models of Disability and

Ableism?

Models of Disability Ableism

The Traditional Models of Disability

“Bad”/ “Good”

Cultural

Model

The Medical Model is viewed as

“Bad” and ableist

Medical

Model

Social

Model

Legal/Political

Model

Other models dealing with the environment are seen as progressive,

“Good” and empowering

The Traditional Models of Disability

“Bad”/ “Good”

Cultural

Model

Medical

Model

Social

Model

Legal/Political

Model

What if all the models and aspects of disability can be “good” OR “bad”? Empowering or ableist?

Examples: Ableism and the Models

Medical Model

Ableism

Labels are used to define and segregate individuals

Empowering

Labels and impairments are viewed in context and may be empowering

Social Model

Ableism

Focus on environment overlooks intrapersonal characteristics, creating oppression

Empowering

Environment is changed to reduce disability-related barriers

Ableism and Disability Services

Ways to apply the theory/models and address ableism:

Universal Design

Disability Studies

Disability in Curriculum

Universal Design in Education

Designing the environment for the maximum diversity of learners

Courses, Work, and Activities Services and Policy Architecture Technology

Universal Design

 Present information in a variety of ways

 Assume there will be a variety of users/learners

 Allow people to engage or be motivated in different ways

 Plan for possible access needs or services

(e.g., physical accessibility, interpreters, braille) and ask whether these work for everyone

 Provide choices and flexibility

What is Disability Studies?

Disability studies is a lens for thinking about the world.

Disability Studies: Interdisciplinary

Art

Identity

History

Disability Studies: Interdisciplinary

Deaf Studies

Pop Culture

Attitude and

Activism

Disability Studies: Attitude/Language

http://vimeo.com/10023901

Disability Studies: Identity

 Having pride in oneself

 Finding a community

Coming out as “disabled”

 Promoting disability as part of campus diversity

 No apologies for rights and accommodations –

“independence” is what we do with supports and services (everyone is interdependent anyway)

Beyond UD and Disability Studies:

“Cripping” the Curriculum by Infusing Disability

Avoids disability as just “Disability

Awareness Days” or disability accommodations issue; disability becomes part of diversity

 Examples:

“Right to Die” in philosophy

 class

Coding of “norms” in statistics

Disability and the Holocaust in history

Inclusion of authors with disabilities in English/literature courses; finding disability subtext or including disability in discussions of “difference”

So What? Applying Critical Thinking

Controversial issues:

New AHEAD documentation guidelines

Disability cultural centers and activist student groups

“Disability” vs. “Condition”

Disability services providers as gatekeepers

Faculty concerns about faking or special privileges

Students who don’t want to use disability services

Additional Resources

Handout online

Bibliography of resources:

Disability studies in disability services, universal design, and first-person accounts of disability in higher education

Q and A

Contact information:

Wendy S. Harbour, Ed.D.

Taishoff Center,

Syracuse University

805 South Crouse Avenue, 101 Hoople Building

Syracuse, NY 13244-2280

Phone: 315-443-1288 or VideoPhone: 866-270-1281 wharbour@syr.edu

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