Report from the MPDF Organising Committee to
Disability Support Advisory Committee of CCDHB & HVDHB
13 August 2012
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Overview
1.
To provide an update from the 2010 Hui/Fono and highlight
service changes.
2.
To provide a safe space for Māori and Pacific disabled people to
come together
3.
To provide a means for the voices to these communities to be
heard, and understood.
4.
Gain further understanding of issues, and identify ways to
facilitate better healthcare access
5.
Develop recommendations to inform CCDHB disability
responsiveness strategy & education programme
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Discussion Themes
1.
Needs Assessments/Service Coordination
2.
Consumer Engagement
3.
Equipment Management Services
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
1. Needs Assessment
 Presentation by Mr David Darling (Service Leader, Capital Support)
1.
Disparities of access by Māori and Pacific
2. Lack of cultural awareness/ empathy
3. Lack of agency collaboration → duplication
of assessments/ forms
4. Client ‘focus’ rather than ‘process’ focus →
more timely responses
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Needs Assessment/ Service Coordination
Issues/feedback
Recommendations
Statistics/Data of those accessing services vs. those
that don’t
Advocate for research project to collate this
information
Lack of demonstrated cultural awareness amongst
health professionals
Evaluate cultural training, content, providers, post
course accountability
Lack of demonstrated cultural empathy
Evaluate cultural training, content, providers, post
courses accountability
Improve and catered Needs Assessment processes
Consumer involvement in design & development
phases- ONE MULTIAGENCY FORM
Consumer-friendly Needs Assessment process /
Assessors
Consumer involvement in training and implementation
Lack of agency collaboration & services for consumer /
duplication
The development of a standard Needs Assessment
process across medical fields
More client focussed, rather than ‘process’ or
compliance focussed
The development of client focuses/driven approach to
collaborate with DHB
Response timing reflects NEED of the person rather
than process
Review current process – Consumer engagement
Support services more available and accessible
Develop a call centre (Hotline) that can access
services at all times
Training consumers to provide services for consumer
Provide training opportunities for consumers & build
capacity. Recruitment of staff with “lived experiences”
of disability
Support Services: Need to be experience, not just
qualifies
Recommend all providers are trained in cultural
awareness/ ethnic specific areas (see above)
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
2. Consumer Engagement
 Presentation by Mrs Kerrie Hayes (Director Nursing/ Midwifery CCDHB)
1. Lack of cultural empathy/ understanding by staff of
how to engage in culturally appropriate manner
2. Staff lack staff training in disability-specific support
for inpatient services
3. Inadequate opportunities for consumer
input/engagment
4. Need for capacity-building of disabled people to be
involved in service provision
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Consumer Engagement
Issues/feedback
Recommendations
One size fits all approach
More adaptable approach for all peoples
Nurses / staff: “Robotic” vs. “Human”
Cultural training all cultures and understand ways and
beliefs
Lack of demonstrated cultural empathy
Consumer engagement in cultural training
Nurses not trained appropriately to support people with
disabilities
Consumer engagement in specific training
Equipment in hospitals not designed with needs in
mind
Database for disabled peoples needs
Methods of communication not ideal to reach ALL
peoples/communities
More appropriate communication equipment/ services
Lack of consumer in involvement at a strategic level &
decision making
Māori/Pacific Disability Consumer Engagement Group
Lack of consumer input in the community with
implementing funding & services
Māori/Pacific Disability Consumer Engagement Group
Recognition of different pacific identities in delivery
Māori/Pacific Disability Consumer Engagement Group
Training consumer to engage with consumers
Māori/Pacific Disability Consumer Engagement Group
Irregular and erratic opportunities for consumers to
collaborate
More regular engagement meetings/ opportunities
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
3. Equipment Management Services

Presentation by Rachael Tatham (on behalf of Equipment Services Manager, MoH)
1. Lengthy, convoluted process → long delays
2. Inability to readily view/ access trial equipment →
poorly suited equipment (poor selection)
3. Inadequate ‘lifetime’ entitlements
4. Lack of holistic approach/ responsiveness to client
needs (funding driven process)
5. Lack of availability of communication
equipment/services
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Equipment Management Services
Issues/feedback
Recommendations
Long and convoluted process
More timely and appropriate equipment
Limited equipment options
Loan equipment more easily available. Loan instead of
buy/ rent (Toy Library model). Loan instead of buy/ rent
Trial equipment not easily available
Warehouse to trial equipment (better system for
returns)
Lack of communication for deaf and people with
speech impairment
Improved access to deaf communication aides
(outpatients, emergency department etc).
Lack of communication for deaf and people with
speech impairment
111 text service. SMS text communication
Deaf communication aides
TTY/ Voice interface first appointments/ in hospital
Lifetime entitlement (Vehicle modification etc.)
Review of entitlements to remove lifetime limit.
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Recommendations
Needs Assessment/ Service Coordination
1.
Advocate for a common, shared, electronic
disability assessment tool for use with all
NASC’s & providers
2.
Identify barriers to access of NASC services
3.
Address the lack of culturally appropriate
processes & staffing
4.
Evaluation of service effectiveness for Māori
& Pacific
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Recommendations
Consumer Engagement
1.
Improved & more regular consumer
interaction with Māori and Pacific disabled
communities
2.
Establish Māori and Pacific Consumer
Engagement Group to regularly liaise with
CCDHB (service delivery & staff training)
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Recommendations
Equipment Management Services
1.
Improved communication equipment/
services for inpatients/outpatients with
disability
2.
Audit effectiveness of current service
processes from client/ outcomes perspective
3.
Improved access to trial equipment with
selection of types and sizes available
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Māori and Pacific Island Disabled Peoples Hui/Fono 2012