The Center for IDEA Early Childhood Data Systems More than Referral: Linkages between Early Intervention and Child Welfare Data and Improved Child Outcomes Taletha Derrington DaSy Center @ SRI International Improving Data, Improving Outcomes Washington, DC ~ September 16, 2013 Session Context • Keeping Children and Families Safe Act of 2003 (reauthorized the Child Abuse Prevention and Treatment Act, CAPTA) • ‘‘(xxi) provisions and procedures for referral of a child under the age of 3 who is involved in a substantiated case of child abuse or neglect to early intervention services funded under part C of the Individuals with Disabilities Education Act • Individuals with Disabilities Education Improvement Act of 2004 (IDEA) • “(6) a description of the State policies and procedures that require the referral for early intervention services under this part of a child under the age of 3 who—``(A) is involved in a substantiated case of child abuse or neglect…” 2 Session Context “CAPTA Referrals” 3 Session Overview • CAPTA referral implementation issues and implications for data • State presentations: 10 minutes each + 5 minutes for state-specific questions • Oregon – Bruce Sheppard (EI/ECSE Specialist) • Colorado – Ardith Ferguson (Part C Coordinator) & Christy Scott (Part C Data Manager) • Alaska – Kenneth Smith (Part C Analyst Programmer IV) • Full group discussion: 15 minutes 4 Implementation Issues & Data Implications: Financial resources and policies • Federally mandated referrals, no additional federal funding • Average referral increase estimate: 44% (range 2-143%) • Average enrollment increase estimate: 22% (range 2-87%) • State/local reimbursement & productivity policies • Incentivize or disincentivize serving child-welfare-involved children & families and collecting quality data 5 Sources: Derrington & Lippitt, 2008; Derrington, 2012. Implementation Issues & Data Implications: Cross-system buy-in • Need for EI among this population • Understanding the other service system & data system • Local variation/ inconsistency of implementation 6 Implementation Issues & Data Implications: Collaboration & System Capacity • Different organizational cultures & priorities • Confidentiality & data sharing • Expertise & supports • Availability of data 7 Implementation Issues & Data Implications: Focus and scope of state policy • Going beyond the federal minimum: referral for children < 3 with substantiated maltreatment • Who should be referred? • What data need to be collected? Linked? • What privacy laws apply? • What happens after referral? 8 State Presentations • Oregon’s ecWeb EI/ECSE Data System: Capturing CAPTA, Early Intervention and Child Outcomes Data in One Program • (Colorado) Spotlight on Data: The Role of State Leadership in Using CAPTA Data to Improve Quality • Alaska Part C: Linking Outcomes and CAPTA 9 Taletha Derrington, taletha.derrington@sri.com, 650.859.6932 References Derrington, TM and Terreault, S (2007). Rhode Island’s Experience with Federally Mandated Referrals from Child Welfare to Part C Early Intervention. 22nd National Training Institute, ZERO TO THREE: National Center for Infants, Toddlers, and Families, Orlando, FL. Derrington, TM & Lippitt, JA (2008). State-level impact of mandated referrals from child welfare to Part C Early Intervention. Topics in Early Childhood Special Education, 28(2), 90-98. Derrington T (2012). Drug-Exposed Young Children and Early Intervention: What influences service engagement? Ann Arbor, MI: UMI/ProQuest Dissertations and Theses. Gomm, A (April 2007). CAPTA Implementation in New Mexico. Presentation at the Georgetown National Technical Assistance Call. Herman, B (2007). CAPTA and Early Childhood Intervention: Policy and the role of parents. Children & Schools, 29(1), 17-24. Individuals with Disabilities Education Improvement Act of 2004, 20 U.S.C. § 1400 et. seq., Pub. L. No. 108-446. Keeping Children and Families Safe Act of 2003, 42 U.S.C. § 1 et. seq., Pub. L. No. 108-36 Kinavey, E (August 2008, personal communication). Roper, K (January 2007). Massachusetts Early Childhood Linkage Initiative: Taking CAPTA pilot to scale. Presentation at the Early Childhood Partners Meeting. Lamar, RR (2008). Alaska’s Early Intervention/Infant Learning Program: The impact of CAPTA FY06-FY08. Anchorage, AK: University of Alaska at Anchorage Center for Human Development. Lamar, RR (2008). Alaska’s Early Intervention/Infant Learning Program: EI/ILP extended eligibility pilot examination of child outcomes. Anchorage, AK: University of Alaska at Anchorage Center for Human Development. 10