The Maori preventable mortality project: an indigenous partnership initiative. A Sporle, C Kiro, N Pearce, A Lee, D Jansen IAOS 2014 1 The Context of Maori Health Development Persistent Disparities Intra Ethnic Variation National Health Policies + Regional Funders Maori Service Providers – local – prevention focussed URGENTLY Need more …. • Information that is • Accessible • MAORI focussed • Timely • LOCAL • Usable • Flexible • Rates not just counts • Future predictions 2 Persistent Disparities SRR Maori : NonMaori Rate Ratio 3.5 3.0 2.5 2.0 1.5 Source MoH 2010 1.0 0.5 Male Female 0.0 1996 1997 1998 1999 2000 2001 Year 2002 2003 2004 2005 2006 3 Amenable Mortality Rate per 105 Intra-Ethnic Variation in Outcomes 1600 1400 1200 1000 Non-Maori Maori 800 600 400 200 0 1-2 3 4 5 6 Social Class 4 Indigenous Diversity by Geography Differences in: • Colonisation history • Years of contact • Social conditions • Language • Land retention • Governance • Resources 5 Why do this? “to transform Maori mortality rates from being a measure of disparity to being a driver for action to improve Maori health at the local and national levels. “ 6 Needs to: • plan services • monitor outcomes Requires information: • local • recent • high quality 7 Why Mortality? Key Public Health Measure: - Good quality ethnic data - Accessible by researchers - Regional data not published Preventability: 50-60% of difference in mortality due to PREVENTABLE causes Great EXEMPLAR for improving access and use 8 The Research Team Maori Provider Organisation Researchers Andrew Sporle – social epidemiology Alan Lee – statistician (Auckland) Neil Pearce - epidemiology (LSHTM) Cindy Kiro – social policy (Victoria) Tony Blakely - epidemiologist (Otago Uni) Antony Raymont – health services District Health Board Advisory Groups Stakeholders – StatsNZ, Govt. ministries, local Maori organisations Maori Researchers 9 Research Questions How does preventable mortality vary by: • Time • Gender • Age group / cohort • Level of preventability • REGION Purpose: To identify the best places and ways to intervene 10 www.stat.auckland.ac.nz/~wild/iNZight/ © Departments of Statistics, The University of Auckland S11 Data Visualiser Select: Population Region Gender Age Range Males Māori Non-Māori Ratio Pacific Non-Pacific Ratio Asian Non-Asian Ratio Amenable 320.5 296.7–345.7 113.6 109.1–118.3 2.82 248.2 216.8–282.9 128.2 123.5–133.0 1.94 63.8 51.5–78.0 138.3 133.3–143.4 0.46 Non-amenable 249.0 228.4–270.9 123.5 118.8–128.3 2.02 216.9 187.7–249.3 133.1 128.3–137.9 1.63 76.2 62.7–91.7 140.5 135.6–145.6 0.54 Females Amenable Non-amenable 189.6 197.9 172.2–208.3 180.1–217.1 63.1 88.3 59.8–66.5 84.4–92.2 3.00 2.24 160.0 139.5 136.1–187.0 117.5–164.5 72.4 97.2 69.0–76.0 93.3–101.2 2.21 1.44 43.8 44.2 34.1–55.3 34.2–56.3 78.5 103.0 74.8–82.2 98.9–107.2 0.56 0.43 Male, total New Zealand, 2006 Age standardised rates per 100,000 Standard Population 700 600 500 400 Comparison 300 200 Projection 100 0 Amenable Non-amenable Maori Total Amenable Non-amenable NonMaori Total 12 Improving Data Access Secure Data Archive Datasets Epi Methods Protocols Data visualiser Regional Funders © Departments of Sociology and Statistics, The University of Auckland Public Access Interface • Region • Gender • Age • Ref Population • Relative Risk • Confidence Ints. • Graphs and Tables Maori Providers S13 Project Impact in 12 months Results: • Regional differences in data quality • Data visualiser pilot • Too early for other results Other Projects: - Mortality by migration and age cohort - Longitudinal mortality study Student placements with providers: Teaching • Community • Providers • Students Networks • Data users • Maori researchers 14 Maori Wellbeing Research Independent Maori Statutory Board Maori Development Plan • • • • • Maori Values Key Directions Domains and Focus Areas Maori Outcomes Indicator wish list 15 © Departments of Statistics, The University of Auckland S16 The Future ? Improving responsive of official statistics leads to - Increased use - Improved perception - Improved quality - New ideas If there is data – then make it available and useable 17