THE WORLD OF THE “D’S” ASD, ADHD, LD, DD & IDD Emily Boncek M.S., CRC & Lucy Gafford M.S., CRC Training Developed by Jennifer Kaut M.Ed.,BCBA Board Certified Behavior Analyst DARS-DRS Developmental Disorder Specialist Looking at July 2014 TEA DATA: Our Total Numbers Age Group with the Greatest Numbers Rate of Growth Percentage by Age, Grades and Severity Level Numbers Graduating in 3 -5yrs. & 10 -12 yrs. Possible Financial Effects Created by: Jennifer Kaut, M.Ed. BCBA Data obtained by TEA July 2014. Data reporting Levels of Severity are based on the DSM 5 definitions. Data for Levels of Severity nor financial costs are not validated. Number of ASD Elementary School Age Students: 24,932 2,308 5 yrs 3,396 3,675 3,719 4,011 4,055 3,768 6 yrs 7 yrs 8 yrs 9 yrs 10 yrs 11 yrs Number of ASD Middle School Age Students: 9,809 3,590 3,242 2,977 12 yrs 13 yrs 14 yrs Number of ASD High School Age Students: 8,275 2,643 2,300 15 yrs 2,054 16 yrs 1,278 17 yrs 18 yrs Number of ASD 18 + Age Students:1,579 689 19 yrs 488 402 20 yrs 21 yrs Percentange of ASD Students in Pre-K, Elem, Middle, High & 18 + 18 +(19-21) 3% Pre-K(3-4) 6% High School(15-18) 17% Middle (12-14) 21% Elem (6-11) 53% Current Number of ASD Students Ages 3-21 broken down by the DSM Level of Severity 25,000 20,000 Data provided by TEA July 2014. The levels are estimates only. They are not reported numbers 15,000 10,000 5,000 0 3-5 yrs (4,986) 6-14 yrs (32,433) 15-18 yrs (8,259) 19-21 yrs (1,579) In total: 47,527 broken down by level Level 1 "Requiring Support" 1,114 14,296 3,662 87 19,159 Level 2 "Requiring Substantial Support" 2,122 5,938 1,540 114 9,714 Level 3 "Requiring Very Substantial Support" 1,750 12,199 3,057 1,378 18,384 DSM Definition of Level 1: DSM Definition of Level 2: DSM Definition of Level 3: Social communication: Without supports in place, deficits in social communication cause noticeable impairments. Difficulty initiating social interactions, and clear examples of atypical or unsuccessful response to social overtures of others. May appear to have decreased interest in social interactions. For example, a person who is able to speak in full sentences and engages in communication but whose to- and-fro conversation with others fails, and whose attempts to make friends are odd and typically unsuccessful. Social communication: Marked deficits in verbal and nonverbal social communication skills; social impairments apparent even with supports in place; limited initiation of social interactions; and reduced or abnormal responses to social overtures from others. For example, a person who speaks simple sentences, whose interaction is limited to narrow special interests, and how has markedly odd nonverbal communication. Social communication: Severe deficits in verbal and nonverbal social communication skills cause severe impairments in functioning, very limited initiation of social interactions, and minimal response to social overtures from others. For example, a person with few words of intelligible speech who rarely initiates interaction and, when he or she does, makes unusual approaches to meet needs only and responds to only very direct social approaches. Restricted, repetitive behaviors: Inflexibility of behavior causes significant interference with functioning in one or more contexts. Difficulty switching between activities. Problems of organization and planning hamper independence. Restricted, repetitive behaviors: Inflexibility of behavior, difficulty coping with change, or other restricted/repetitive behaviors appear frequently enough to be obvious to the casual observer and interfere with functioning in a variety of contexts. Distress and/or difficulty changing focus or action. Restricted, repetitive behaviors: Inflexibility of behavior, extreme difficulty coping with change, or other restricted/repetitive behaviors markedly interfere with functioning in all spheres. Great distress/difficulty changing focus or action. Percentage of Students with ASD by Level of Serverity Level 3 39% Level 1 40% Level 2 21% How Many Are We Sending for 18 + Services? 18 yrs: Total: 2,296 19 yrs Total: 688 (30%) 20 yrs Total: 488(21%) 21 yrs. Total: 392(17%) Level 1: 434 71 Percentage that go on to 18 + services: 16% 70 Percentage that go on to 18 + services:35% 547 Percentage that go on to 18 + services: 86% 10 Percentage that go on to 18 + services:.02% 30 Percentage that go on to 18 + services:15% 448 Percentage that go on to 18 + services: 68% 6 Percentage that go on to 18 + services:.01% 4 Percentage that go on to 18 + services:.02% 382 Percentage that go on to 18 + services: 58% Level 2: 201 Level 3: 661 In the next 10-12 years… Texas will TRIPLE the numbers of students graduating with Autism 2017-2019, Texas will have 9,838 students with Autism graduating. 2024-2026, Texas will have 32,433 students with Autism graduating Number of ASD Students Graduating 3 to 5 years 10 to 12 years 32,433 9,838 3 to 5 years 10 to 12 years Number of ASD Students Graduating by Level of Severity 10 to 12 years Level 3 (very substantial supports) Level 2 (substantial supports) Level 1(needs supports) 3 to 5 years 12,199 4,435 5,938 1,654 3,789 14,296 What Supports Did These Graduates Need in School and How Will These Reflect Their Transition Needs? (Predications based on the DSM 5 Levels of Severity) LEVEL 1’s (Need Supports) In 3 to 5 years 3,749 students received their instruction in the least restrictive instructional setting. They were in their regular classroom approximately 80% of the time. They may need to stay in school 1 or 2 more years to further develop life and social skills, if their academics, were the primary focus during high school. They may need VR services in order to obtain/maintain employment or attend higher education In 10 to 12 years 14, 296 students LEVEL 2’s (Substantial Supports) In 3 to 5 years 1,654 students received their instruction in a moderate restrictive instructional setting. They were in their regular classroom approximately 40% 79% of the time. They will most likely need 18 plus school services, as well as, VR services in order to obtain or maintain employment. These students are at a crossroad: there are 3 directions these students can take. 1) If provided, intense intervention with the expectation of independence, they could move up to a Level 1 2) They stay the same and will most likely never reach full independence 3) Or due to a lack of intervention and supports, this group is at risk for dropping to a Level 3, thus needing lifelong supports. In 10 to 12 years 5,938 students LEVEL 3’s (Very Substantial Supports) In 3 to 5 years 4,435 students received their instruction in the most restrictive instructional setting. They were in their regular classroom less than 40%. These students will require intense long term supports. In 10 to 12 years 12,199 students 2012’s Top 5 Reasons for ASD Unsuccessful closures… 1. Making eligibility decisions largely based on a psychological report People with ASD need time to transition to new people & places and struggle to generalize skills from one environment to another. In this contrived setting, with an unfamiliar person & place, it is not possible to get a valid snapshot of this person’s ability to work. 2. Ignoring the validity of school assessments 3. Instead sending for a psychological even though the school assessment was recent and accurate. Problem behaviors that were identified but not treated 2 main types: Challenging behaviors or social skill deficits. 4. Problem behaviors that were identified but treated with psychotherapy Research tells us that traditional psychotherapy has little success at decreasing problem behaviors and increasing skill deficits. It is unlikely that an ASD individual can replicate a skill learned in a contrived setting and generalize it. Furthermore, the only way to decrease problem behavior is determine what factor/s are maintaining them, and address the environment in which it is occurring. 5. Failure to recognize characteristics of ASD 63 year old consumer “failed to cooperate” when he would not work anywhere but the one county he has lived in his entire life. ASD causes rigid patterns of behaviors and inability to be flexible. rd Consumer “refused services” after his 3 new counselor introduced herself. Inability to transition is part of ASD. Consumer “failed to cooperate” when he missed several appointments. Social phobia & severe anxiety is a characteristic of ASD. Consumer was closed because he was “happy” with his Whataburger job and did not want to change (he got it himself). ASD causes a person to resist change. Consumer stopped showing up to DARS appointments after being fired. Closed as “refused services”. Once a negative event occurs, people with ASD will associate all involved with that negative experience. Created by: Jennifer Kaut M.Ed.,BCBA What’s with all this Autism Stuff?? Why does it matter to me? I don’t have that many on my caseload! WHY? Because anything you do for ASD, is best practice for ANY developmental disorder. They are the largest disability population and we are the least successful with them…. OLD Way What WORKS Immediately sending for psychological If they are not college bound, what will this tell you? Using the same psychological tools If you need a diagnosis for Autism, use the ASD psychological battery Traditional vocational assessment Viewing these consumers in a contrived setting will not give you an accurate assessment of work abilities, many are not “generalists” No other vocational assessment options IN PROGRESS: Environmental Work Assessment that measures HOW a work envirnoment either increases the disability characteristics or decreases. Treating with psychotherapy Only use if the mental illness is barrier not the developmental delay Not treating social skill deficits and/or challenging behaviors Use Applied Behavior Analysis (ABA) providers to address these issues BEFORE work. IN PROGRESS: Updated policy Using CRP’s who have little experience with developmental disorders IN PROGRESS: Creating ASD/DD CRP specialists No choices if the consumer needed specialized support that was not therapy but outside the duties of a job coach IN PROGRESS: ASD/DD Supports Simply put: ABA is a methodology whose goal is to socially significant behavior. So what is “socially significant behaviors”? Any behavior that effects a person’s quality of life Communication Verbal Language Academics Self Help Skills Social Skills Vocational Skills Problem Behaviors • Applied: ABA takes what we know about behavior and uses it to bring about real-world, meaningful change • Behavior: Behaviors are defined in observable and measurable terms in order to assess change over time • Analysis: Behaviors are analyzed within the environment to determine what factors are influencing the behavior 3 levels: • BCaBA: Bachelor’s + behavior classes +supervised hrs.+ board exam • BCBA: Master’s + behavior classes +supervised hrs +board exam • BCBA-D: Doctorate +board exam All must have degree’s in Education, Sp. Education, Psychology , Social Work or Behavior Analysis. What they can do: • BCaBA/graduate student in a behavior analysis program • Cannot do assessments • Can only conduct intervention plans supervised by a BCBA & all reports on progress must be signed by a BCBA • BCBA: • Can do assessments • Can do all interventions • BCBA-D: • Can do assessments • Can do all interventions How do I find one in my area? 2 ways: 1. Check Rehab Works 2. www.bacb.com (click on the page that says “find certificates”) • Has a problem behavior that presents a barrier to employment • You need to DECREASE these behaviors • Has a deficit in social skills that present a barrier to employment. • You need to INCREASE these behaviors What if it looks like there is several problem behaviors and several deficits? You can call in a behaviorist to assess: • Skill level • Social skill level • Communication ability • Environments that would support their autism • Environments to avoid • Determine the function of any problem behaviors • Identify triggers • Identify preferred interests & reinforcers • Determine if they have natural supports • IF needed, provide a treatment plan to address these behaviors Their parents are glued to them and speak for my consumer Parents might sabotage what we are doing Need more information to develop a plan CCSA is a great pairing with a FBA A behaviorist would work with ALL environments- if the environment presents a barrier to employment then we can address it. What is the work goal? EX. If your consumers work goal is to work at a gaming company that provides tele-work or cubicles, little interaction, low lighting, then what social skills does he need? If he can respond when spoken to, follow supervisor’s instructions, accept feedback, has transportation and shows up dressed appropriately, then does he have a barrier? Autism DOES NOT = ABA Challenging Behavior Skill Deficits • Social Skills Support (Consumer does not have challenging behavior but displays skill deficits) • Social Skill Assessment (up to 4 hrs) • Intervention (group or individual up to 30 hrs) • Behavioral Intervention (Consumer has challenging behaviors that need to be decreased) • Functional Behavior Assessment(FBA) (up to 8 hrs) • Behavior Intervention Plan(BIP) (group or individual up to 30 hrs) ***Any combination of individual or group can be used but the total is not to exceed 30 hours *** • ABA is short term • You should see progress • Receive frequent updates on the mastery of the consumer’s goal • A good therapist will redo the plan if progress is not shown quickly • You should see generalization of skills in all environments • People in the environment that is being treated should be trained in any plan or recommendations RPM: Chapter 5 (5.3.7) • Located after Mental Restoration Services Rehab Works • Level 1- Evaluation Services • Level 2-Behavior Analysis (will be changed to APPLED Behavior Analysis) DARS COMMON MYTHS REVIEWED MYTH: YOU MUST BE AT LEAST 16 YEARS OLD TO APPLY FOR DARS SERVICES MYTH: HIGH SCHOOLS SHOULD REFER A STUDENT TO DARS ONLY WHEN THEY ARE A SENIOR MYTH: DARS IS A SCHOLARSHIP PROGRAM MYTH: DARS CAN’T ASSIST A TRANSITION AGED STUDENT WITH FINDING WORK, UNTIL THEY GRADUATE HIGH SCHOOL MYTH: DARS IS A LONG TERM SERVICE PROVIDER MYTH: DARS PROVIDES EMERGENCY SERVICES MYTH: DARS CAN’T WORK WITH A STUDENT IF THEY ARE RECEIVING 18+ SERVICES WITH THE HIGH SCHOOL MYTH: APPLIED BEHAVIOR ANALYSIS(ABA) SERVICES ARE RELEVANT ONLY TO INDIVIDUALS DIAGNOSED WITH AN AUTISM SPECTRUM DISORDER MYTH: ABA CAN ONLY BE APPLIED TO BEHAVIOR PROBLEMS MYTH: ABA SERVICES ARE ONLY EFFECTIVE FOR YOUNG CHILDREN DD Regional Point of Contacts… Region 1 Rick Bullard Region 2 Gena Swett Region 3 Dae Eun Region 4 Marilyn Gilbreath Region 5 Emily Boncek 2014 Statewide Developmental (ASD/DD/IDD/ADHD) Disorders Team Team Lead: Jennifer Kaut M.Ed., BCBA Total ASD VR Counselors: 56 (updated 9/4/14) Total CRPs: 33(updated 9/4/14) Total: VR/CRP: 89 Region 1 Region 2 Region 3 Region 4 Region 5 TOTAL: 7 & 2 VACANT w/CRPs: 13 TOTAL: 14 w/CRPs: 24 TOTAL: 12 w/CRPs: 20 TOTAL: 7 & 1 VACANT w/CRPs: 9 TOTAL: 16 w/CRPs: 23 Ellen Dingus Wichita Falls Trinetta Powell Plano Michael Marler Round Rock VACANT Conroe Ruby Wilkins/ Cinda Alvarado San A. Northeast Jonathan Perkin(UPS) Abilene Tina Shaffer Garland Elsa Perez/Stanley Bell South Austin Veronica Comeaux North Houston Erlinda Leal/Blanca Perez/Becky Ashton San A North Mary Ellen Pate San Angelo Diana Terry Ft. Worth South Lori Charlton Cleburne Debbie Browne East Austin Karen Williams Southwest Houston Steven Martinez/Alma Alvarez San A South Della Moore & David Enrique El Paso Central Kelly Holloway Lewisville Patrice Rabalais Beaumount Eligio Hinojosa Houston Central Debbie Rodriguez San A West Ashley Richardson Lubbock South Mary Faltaous Carrollton Teresa Frechette Temple Kristie Sekmistrz South Houston Sherri Eddy Harlingen Debbie Edwards Lubbock West Kellie Harrison/Lucy Gafford(AM) Denton Jennifer McCurley Tyler Catherine Guillory Houston West Gabby Martinez McAllen VACANT Odessa Katharine Bowdre Sherman Lhea Homesley Waco Solomon Ambani Houston West Leigh Ann Godinez McAllen VACANT Amarillo Deanna Layfield Dallas Southeast Giovanne Bell College Station Nichole Rideux Humble Sasha Esparza/Michael Day Corpus Christi Angela Gonzalez Dallas Northeast LeAnn Bolwerk Longview Nick Boyko Texas City Jacqueline Gutierrez/Esmeralda Lopez Laredo Jennifer Reynolds/Brian Loftus/Virginia Shutt Arlington Susan Payne Paris/Texarkana Salynda Bryson Rosenberg Maricela Ponce New Braunfels Jacklyn Meade Fort Worth West Kelley Downey Lufkin Regional Point Person: Rick Bullard Regional Point Person: Gena Swett Regional Point Person: Dae Shin Regional Point Person: Marilyn Gilbreath Regional Point Person: Emily Boncek El Paso Area & Back up: David Enrique Back up’s: Audra Ressel & Lucy Gafford Back up’ s Nick Boyko Back up: Blanca Perez Additional Regional staff: Joe Morris, Mike Lawson Shannon Johnson (trainer) Additional Regional staff: Rosla Hocker, Betty Davis Additional Regional staff: Stephanie Jenkins Additional Regional Staff: Ron Garza, David Dehoyos, Johnny Weddington Additional Regional staff: Merry Straube, ,Frank Donaldson, Kelly Yarbrough 2014 Statewide Developmental (ASD/DD/IDD/ADHD) Disorders Team CRPs Region 1 Region 2 Region 3 Region 4 Region 5 ASD CRP TOTAL: 6 ASD CRP TOTAL: 10 ASD CRP TOTAL: 8 ASD CRP TOTAL: 2 ASD CRP TOTAL: 7 -Texas Employment Consultants -El Paso Helping People -Strassler Employment Services -After Mile Inc. -Ability Solutions -Burkhart Center (pending CRP status) -LauchAbility -Autism Treatment Center -Easter Seals-temple mays -UNT JobFit -Life Path Systems -Ability Solutions -Association for Independent Living -Bryant Guidry -Spectrum Services - Work Ready -Client Services of East Texas -Dverse Solutions -Goodwill(Central) -Debby Puckette -Bruce Bloom -Ability Solutions -Opportunity Center -Austin Dog Alliance -Easters Seals Greater Houston -University of Houston at Clearlake -Job Adventures -Goodwill (South TX) -Compass Resource Group -Autism Treatment Center -Gatehouse Supportive Services -HELP -Business Resource Center