DAFT DAY CONFERENCE Systemic and Intergenerational Approaches and Practice relating to Autistic Spectrum and Attention Deficit Disorders Respect and Regard “Remember that the person sitting opposite you is seeking happiness just like you are, and deserves to be cared for and respected, just like you do.” Timetable 09.30 10.00 10.30 11.00 11.30 12.30 13.15 13.30 13.45 14.15 14.45 15.15 16.00 Welcome and Opening: Lesley and Gary Effects of Autism on the Family: Laura Autism Spectrum Research and Practice: Lucia Coffee Break Autism Spectrum Research and Practice continued: Lucia Lunch Break Butterflies: Dave and Anne Frantic Families: Leigh and Tracey Lisa: ADHD and Family Life Gary: Top 10 Tips relating to ADHD Tea Break Steve and Gary: Neurodevelopment Service Developments Home Time Laura Hatton What effects can Autism have on the whole family “When I am feeling unwell, perhaps with a cold and my voice sounds different, my sister can tell when I am ill. If I am lying on the settee feeling low I will suddenly see a cuddly toy whizzing round the door and usually hitting me in the face. This is usually followed by my sister clutching a blanket which she throws over my head. She often accompanies these actions with the words ‘All better now’.” Leigh Morton & Tracey Goodrum Frantic Families Gary Robinson ADHD: Top Ten Tips For young people, parents/carers and for helpers Folio goes here 1 Step back Never try to cuddle a hedgehog (Without permission) Folio goes here 2 Strengths and abilities “It is easy to focus on what is wrong and to ignore what is right. To complain that roses have thorns instead of appreciating that thorns have roses!” Tish 3 You can only change yourself “The only way to endure an earthquake is to adjust your position! You cannot avoid daily tremors, but you can find a different place to stand!” Tish 4 Success Stories “When everything looks hopeless, it is the chance to grow into something better. What the caterpillar calls the ‘end of the world’ we call …a butterfly” 5 Look after yourself “You can long for where you could be or relax into where you are. You can live in a state of constant stress or breathe into every moment as it arises.” Tish 6 Acceptance “Life is about letting go, ceasing to insist on having your own way, or always having to be right. It’s about acceptance and being with what is! Anger, hurt & bitterness are like thieves in the night who steal your ability to love and care. Let go of past pain so you can find your peace!” ” Tish 7 Take a breath “Getting angry is like casting a stone into a wasps nest, you will not only cause an outraged buzz, but you are the one most likely to get stung.” Tish 8 Avoid premature knowing “Maintain a beginners mind, curious, questioning and inquisitive, so that you never stop growing.” Tish ??? ?? ?? ? 9 Banging heads on closed doors “If you are looking at a closed door, you will never see the open one. The way ahead may take many diversions, so be prepared for surprises...” Tish 10 Detail and Slow down! “Remember, the tortoise beat the hare! Don’t rush so fast that you miss the details, it’s the small things that make life worth living.” Tish Steve Edgeley & Gary Robinson What Families have told us they want • • • • • • • Joined up thinking, communication and services Reduced waiting times and Quicker (Expert) Assessment Family focused services, including siblings and wider family Assessment and medication is not enough Range and choice of services Not to be passed on or passed about = consistency Greater understanding and training = stop parent blaming Steve Edgeley & Gary Robinson Derbyshire Healthcare NHS Foundation Trust Neurodevelopment and Family Focused Initiatives • • • • Thinking Families Safeguarding Multi Systemic Therapy Developing Systemic Training & Posts Steve Edgeley & Gary Robinson Derbyshire Healthcare NHS Foundation Trust Neurodevelopment and Family Focused Initiatives • • • • • • • Neurodevelopmental Approach and Pathway Piloting ADHD Services for Adults in Chesterfield Supporting Butterflies and Service User Involvement Rapid Group work for young people Parent Support Groups Family Focused assessment and support Multi-agency, multi-professional working Discussion, Questions and Feedback • • • • In groups of three Complete and discuss feedback forms What have you liked and disliked? What will you take away from today? Feedback/suggestions for DAFT/Trust/Parents? Please contact us Gary Robinson Principal Family Therapist Rivermead Goods Road Belper Derbyshire DE56 1UU Tel: 01773 880554 Fax: 01773 880921 gary.robinson@derbyshcft.nhs.uk 21 22