THEME 1. METHODOLOGICAL APPROACHES IN CREATION OF INCLUSIVE SOCIETY AND WORKPLACE. THE BASICS OF DEFECTOLOGY AND VICTIMOLOGY FOR MEDICAL PERSONNEL PLAN 1. Philosophy of inclusion. 2. The history of inclusive practice. 3. Models of inclusion. 4. Signs and categories of social inclusion. 5. Fundamentals of defectology in the context of inclusion 6. Fundamentals of victimology in working with people with disabilities PHILOSOPHY OF INCLUSIVE There are two directions of the socio-philosophical approach to inclusion: person-centred (W. Stern, W. James, K. Rogers, G. Allport, A. Maslow, etc.) socio-phenomenological (W. Dilthey, G. Nohl, E. Spranger, T. Litt, E. Weniger, V. Flitner, K. Mollenhauer, O. Bolnov and others) Philosophical approaches are focused on establishing respectful, spiritual, and responsible relationships between people in the process of dialogue communication FEATURES OF A PERSON-CENTRED APPROACH Personality is characterized by such aspects as: exteriorization is the orientation of the individual to self-realization in society internalization is the orientation of the individual to internal interests transcendence is the focus of the . on the highest spiritual individual values, the search for a personal life mission exteriorization interiorization transcendence The main idea is the possibility of individual development, contributing to the building of an independent personality during the interaction with society FEATURES OF THE SOCIOPHENOMENOLOGICAL APPROACH The goal of social development is a person who is included in social relations, having an expanded supply of situational patterns, social behavior BASICS of the CONCEPT "situation" includes an objective analysis of a life situation "social and anthropological factors" are factors that affect a person (family, living conditions, individual character) MAIN IDEA - PERSON CAN CHANGE SELF IF THE IMPACT OF SOCIETY IS TOLERANT THE BEGINNING OF THE CONCEPT OF INCLUSION DEVELOPMENT CONSIDERED FROM THE MIDDLE OF THE 20TH CENTURY LEGAL ORIGINS OF INCLUSIVE Humanization of the world after World War II. Creation of the UN Adoption of the Universal Declaration of Human Rights in 1948 Adoption of the Declaration of the Rights of the Child in 1959 Adoption in 1989 of the Convention on the Rights of the Child, ratified by 193 countries of the world Adoption of the Convention on the Rights of Persons with Disabilities in 2006 THE HISTORY OF INCLUSION STAGES OF INCLUSIVE DEVELOPMENT The beginning of the 20 century - the middle of the 1960s - the "medical model" - segregation. Persons with disabilities in conditions of exclusion.. Mid-60s - mid-80s of the 20th century - "normalization model" – integration. Adaptation of person with disability to living conditions The mid-80s of the twentieth century - to the present - the "inclusion model" - inclusion in society . Adaptation of the social environment for maximum inclusion of persons with disabilities in the life of society. OVERVIEW OF DISABILITY MODELS* Medical Model of Disability Economic model of disability Models of Disability Social model of disability Biopsychosocial model of disability *Professor Alina Zajadach, Adam Mickiewicz University, Poznań, Poland MEDICAL AND ECONOMIC MODELS Medical model Economic model Proposed by the American sociologist T. Parsons in 1951. The model is based on the idea of usefulness for society. The main idea is that disability is connected to the individual features of a given person and is above all their own personal tragedy. Any action undertaken (medical treatment, physical rehabilitation) is aimed to adaptation to the environment. A person with disabilities may feel stigmatised in general if seen only from the perspective of their dysfunction. Persons with disabilities are seen as physically or mentally handicapped, and able to work with “less workload” than healthy people, or unable to work at all. therefore, they are less productive and economically disadvantaged, require special state protection (benefits, monetary compensation) SOCIAL AND BIOPSYCHOSOCIAL MODELS social model Biopsychosocial model Proposed by WHO 2011 (Oliver 1996; Darcy 2010; Pegg 2011) Proposed by George Engel in 1977, based on the ideas of the sociologist Hoffmann концептуальный подход, который показывает, что инвалидность не связана с индивидуальными особенностями, а является результатом существующих ограничивающие факторы в окружающей среде (включая социальные и ментальные барьеры), которые умножают дисфункцию человека и препятствуют его/ее участию в полноценной жизни общества suggests that to understand a person's medical condition it is not simply the biological factors that need to be considered, but also the psychological and social factors. Bio (physiological pathology) Psycho ( emotions and behaviours such as psychological distress, fear, coping methods) Social (socio-economical, socioenvironmental, and cultural factors such as: work issues, family circumstances and benefits/economics) THE CONCEPT, SIGNS, CATEGORIES OF SOCIAL INCLUSION. The term "inclusion" was declared in 1994 by the Salamanca Declaration about а principles, policies and practices in the field of education for persons with special needs. SOCIAL INCLUSION • Inclusion is a process of real inclusion in the active life of society of people who have difficulties in physical development or mental disabilities. • Social inclusion is the participation of all individuals in society as successful members who are equally respected and able to contribute to this society. MAIN SIGNS OF INCLUSION Respect and recognition • it is the recognition of individuals with disabilities and respect them. It includes recognition of developmental differences and does not compare inferiority with pathology; • supporting public institutions that are sensitive to difference; • Spread of the ideas of humanistic philosophy and recognition of the dignity of all people. MAIN SIGNS OF INCLUSION Human development • help develop skills, gives opportunities and choices to live lives that people value. • this means providing opportunities for learning and development for all, recreational programs that aim to promote and stimulate development and personal improvement, and not just looking after people with disabilities MAIN SIGNS OF INCLUSION Involvement and participation • these are laws that protect the rights and necessary support of the individual in order to take part in decision-making that concerns the individual, family and life in society. • the state grants persons with disabilities the right to participate in public life, in those manifestations in which they want to take part. CATEGORIES OF SOCIAL INCLUSION A person with an inferiority •this is a person with certain psychophysical characteristics that limits their capacity. Disability •it is an injury or illness that lasts for a long time and as a result of which a person becomes different from others and society determines their status as a disabled person. Inclusion •it is a process of increasing the degree of participation of all people in a full-fledged social life, regardless of their characteristics INTEGRATED APPROACH BY V.M. BEKHTEREV • V. M. Bekhterev (psychiatrist, neurologist, physiologist, psychologist) was a supporter of an integrated approach to the study of man. • The main idea of Bekhterev was the need for the relationship of individual’s behavior with the behavior of other people. THE THEORY OF EMOTIONAL DEVELOPMENT G.YA. TROSHIN. Ideas of the theory of anomalous development: - recognition of the potential of the psychological development of an abnormal person; - reliance on the unity of the laws of normal and abnormal development; - a holistic study of person; - it is necessary to focus in medical care for people with disabilities not on a defect, but on the compensatory capabilities of the individual. AUTHORS OF DEFECTOLOGISTS Louis Braille (1809-1852), French tiflopedagogue. Hauy Valentin (1745–1822) – French educator alphabet for the blind teaching methods for the blind AUTHORS OF DEFECTOLOGISTS MONTESSORI Maria (1870-1952) - Italian teacher, creator of a free system of preschool education for children with various disabilities DEFECTOLOGY Defectology is a branch that studies deviations in mental development (congenital and acquired), and ways to compensate for them. an integrated field of scientific knowledge that connects the clinicalphysiological and psychologicalpedagogical areas of research into the development processes, training and education of people with special needs of psychophysical development CATEGORIES OF DEFECTOLOGY Term Definition Correction A system of psychological, pedagogical, medical and social measures aimed at correcting or reducing physical and (or) mental defects Compensation Compensation for lost functions and condition through restructuring or increased use of preserved functions Adaptation Adaptation of the individual to existence in society in accordance with the requirements of this society and their own needs, motives and interests CATEGORIES OF DEFECTOLOGY Термин Определение Rehabilitation Restoration of impaired functions of the body and ability to work, achieved by using a complex of medical, pedagogical and social measures Habilitation The initial formation of a disturbed ability to do something (applied to young children with special needs of psychophysical development) Socialization is the process of internalizing the norms and ideologies of society. Socialization encompasses both learning and teaching and is thus "the means by which social and cultural continuity are attained" L.S. VYGOTSKY, AUTHOR OF DEFECTOLOGY Vygotsky's citation «…defectology studies development, which has its own laws, its own pace, its own cycles, its own disproportions, its own metamorphoses, its own displacement of centers, its own structures; that this is a special and relatively independent field of knowledge about a deeply peculiar subject». GENERAL PATTERNS OF COGNITIVE DEVELOPMENT L.S. Vygotsky formulated the general patterns of cognitive development 1. Integration is the unification of mental processes that were disparate at the beginning into stable, but flexible functional systems. 2. Irregularity of mental development. For each mental function, there are optimal terms (sensitive periods). 0-1 years - perceptions 1-3 years - memory 2-5 years – forth preschool age - visual forms of thinking and imagination. School age - verbal-logical thinking. 3. Normally, for each mental function, there are optimal terms for development. THE STRUCTURE OF THE DEFECT ACCORDING TO THE VYGOTSKY THEORY Cause of defect Primary defect Secondary defect system Saved Functions COMPLEX DEFECT STRUCTURE The defect structure includes 3 components: 1. Primary organic defect (genetic factor) 2. Hierarchical system of secondary defects. (visual problems, psychological problems, communication limitations, character traits). 3. Preserved functions (for example, good hearing). L.S. Vygotsky introduced the concept of "extrasensory", which means the hypercompensatory work of preserved functions. THE THEORY OF COMPENSATION IS BASED ON THE IDEA OF THE POSSIBILITY OF COMPENSATION DUE TO RELIANCE ON PRESERVED FUNCTIONS.. Compensation theory Saved Functions Prevention of secondary defects Correction of secondary defects Defect Compensation by Strengthening Preserved Functions ACCORDING TO THE EFFECTIVENESS OF THE ADAPTATION PROCESS, VYGOTSKY SINGLED OUT THREE TYPES OF COMPENSATION. real (ends with overcoming the defect) fictitious (ends with "flight into disease") middle VICTIMOLOGY IN THE CONTEXT OF INCLUSION Victimology (lat. victima - victim, lat. logos teaching) - an interdisciplinary field that explores the process of becoming a victim of a crime. Victimization – it is the ability, under certain circumstances, to become a victim of a crime. Victimization personality is formed as a result of the influence of various factors. Disability often leads to the fact that there are prerequisites for the victimization of a person with a disability. FACTORS OF VICTIMIZATION OF DISABLED PEOPLE objective subjective • Stigmatization and negative attitude towards people with disabilities in society; • discrimination, exclusion of people with disabilities; • low standard of living, lack of money; • physical helplessness. • existential crisis; • low self-esteem; • self-doubt, selfconfidence, abilities; • increased stress levels, emotional instability, pessimism; • loss or decrease in volitional activity (aboulia). SOCIO-GENETIC VICTIMOLOGY (PROF. E.V. RUDENSKY). the personality of a person with a disability - a victim of sociopsychological deprivation (restrictions) adaptive gap syndrome (loss of adequate adaptability of the personality) social status of a person with a disability - a socially defective person unable to overcome the adaptation gap The disabled person has a deficit of social, psychological and socio-psychological competence DEFICIENCY IN SOCIAL AND PSYCHOLOGICAL COMPETENCE Subject Autonomy: initiative; making decisions; self-realization Authenticity, control from within An object Addiction: expectation; rejection of decisions; subordination to others External control, reactive response STAGES OF REHABILITATION: I. convalescence, II. adaptation (readaptation) III. resocialization CONVALESCENCE the stage of recovery of the biological and psychological functions of the body. The process of active treatment is aimed at eliminating painful biological (physiological) pathological manifestations. ADAPTATION (READAPTATION) Adaptation - adaptation of the organism to the conditions of existence. There are 2 types passive (adaptations to real circumstances) active (environment changes) Readaptation - adaptation to living conditions at a new functional level using reserve, compensatory abilities. RESOCIALIZATION resumption of contacts of the individual during or after illness with family, neighbors, friends, exit from a state of isolation LECTURE 2. TECHNIQUES FOR BUILDING AN INCLUSIVE ENVIRONMENT. CONTENT 1. The concept of a barrier-free environment. 2. Categories of citizens in need of a barrier-free environment. 3. Basic principles of a barrier-free architecture. 4. Methodology for creating a barrier-free environment for people with disabilities and reduce mobility BARRIER FREE Barrier Free is pertaining or referring to structural or architectural design that does not impede use by individuals with special physical needs. McGraw-Hill Concise Dictionary of Modern Medicine. © 2002 states in the online The Free THE MAIN PRINCIPLE OF THE “BARRIER-FREE LIVING ENVIRONMENT” is the accessibility of residential and public buildings and the social environment for people with disabilities. ACCESSIBILITY Accessibility is the degree to which a product, service or environment is available for use to the people that need it. • For example, a person with visual impairments cannot read printed paper ballots, and therefore does not have access to voting that requires paper ballots. A change that improves access. • For example, if voting ballots are available in Braille or on a text-to-speech machine, or if another person reads the ballot to a person and recorded the choices, then a person would have access to voting. CATEGORIES OF CITIZENS IN NEED OF A BARRIER-FREE ENVIRONMENT person with reduce mobility (PRM) — generally accepted definition for people who have problems with independent movement, orientation in space, obtaining information and services. A PERSONS WITH REDUCE MOBILITY people with disabilities children under 7 pregnant women senior citizens parents with prams people with temporary trauma people with heavy loads PEOPLE WITH DISABILITIES The Convention on the Rights of Persons with Disabilities, adopted by the United Nations General Assembly is based on a social model of disability, and defines disability as including “those who have long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation in society on an equal basis with others“ INVISIBLE DISABILITY invisible disabilities, also known as Hidden Disabilities or Non-visible Disabilities (NVD), are disabilities that are not immediately apparent, or seeable. Some examples of invisible disabilities include intellectual disabilities, autism spectrum disorder, mental disorders, asthma, epilepsy, allergies, migraines, arthritis… EPISODIC DISABILITY People with health conditions such as arthritis, bipolar disorder, HIV, or multiple sclerosis have periods of wellness between episodes of illness. During the illness episodes, people's ability to perform normal tasks, such as work, can be intermittent. INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH • ICF is a classification of components of health, disability and functioning. Under the functioning of a person is meant not only the full-fledged work of all body functions and the presence of all anatomical parts of the body, but also human activity, which is associated with environmental factors and personal factors of the patient. INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH Domains* are described from the point of view of the organism, individual and society through the following parameters: 1. functions and structures of a body 2. activity and participation 3. contextual factors *A domain is a practical and meaningful set of interrelated physiological functions, anatomical structures, activities, tasks, and areas of life. HEALTH DOMAINS AND HEALTHRELATED DOMAINS Organism's functions – are the physiological functions of various body systems (including mental functions). Body structures – are the anatomical parts of the body such as organs, limbs and their components. Violations of the functions and structures of the body – are “problems” arising in functions or structures (significant deviation or loss). HEALTH DOMAINS AND HEALTHRELATED DOMAINS Activity is the performance of a task or action by an individual. Activity restriction – are difficulties in carrying out activities that an individual may experience. Participation – it is the involvement of the individual in a life situation. Restriction on Participation – are problems that an individual may experience when involved in life situations. FUNCTION CODING ICF-code=prefix+domain cipher+ score functions (b) Structure(s) Activity and participation (d) Environmental factors Example coding: b167.3 to indicate a severe impairment in specific mental functions of language HOW TO USE ICF GROUPS OF PEOPLE WITH LIMITED MOBILITY reduce mobility group RM № 1 RM № 2 RM № 3 RM № 4 Characteristics People who do not have mobility restrictions, including those with hearing impairments. People whose mobility is reduced due to aging of the body (old-age disabled); disabled people on prostheses; blind, people with mental disabilities. People using additional support (crutches, sticks) when moving. Wheelchair users. ORGANIZATION OF A BARRIER-FREE ENVIRONMENT Ensuring accessibility consists in changing the environment of person with disability. According to international terminology, the environment can have different external influences on the functioning and limitations of an individual's life: contain barriers or facilitating factors ENVIRONMENT PARAMETERS INCLUDE THE FOLLOWING COMPONENTS: barriers facilitators factors of the physical, social environment that limit the functioning (presence of obstacles on the way movements) factors of the physical, social environment that facilitate the functioning (ramp, pictogram for the disabled, etc.) PRINCIPLES OF ORGANIZING A BARRIER-FREE ENVIRONMENT Principle of «Universal Design» Principle of «Reasonable accommodation» "REASONABLE ACCOMMODATION" “is a necessary and appropriate modification and adjustments not imposing a disproportionate or undue burden to ensure a persons with disability the enjoyment or exercise on an equal basis with others of all human rights and fundamental freedoms" Accommodations can be religious, physical, mental or emotional, academic, physical, or employment related and are often mandated by law. SEVEN PRINCIPLES OF UNIVERSAL DESIGN UNIVERSAL DESIGN: • The design of products and environments to be usable by all people, to the greatest extent possible, without the need for adaptation or specialized design. • Seven Principles of Universal Design may be applied to evaluation of existing designs, guidance of the design process and education specialists and consumers about the characteristics of more usable products and environments. PRINCIPLE 1: EQUITABLE USE The design is useful and marketable to people with diverse abilities. Guidelines: 1a. Provide the same means of use for all users: identical whenever possible; equivalent when not. 1b. Avoid segregating or stigmatizing any users. 1c. Provisions for privacy, security, and safety should be equally available to all users. 1d. Make the design appealing to all users. PRINCIPLE 2: FLEXIBILITY IN USE The design accommodates a wide range of individual preferences and abilities. Guidelines: 2a. Provide choice in methods of use. 2b. Accommodate right- or left-handed access and use. 2c. Facilitate the user's accuracy and precision. 2d. Provide adaptability to the user's pace. PRINCIPLE 3: SIMPLE AND INTUITIVE USE Use of the design is easy to understand, regardless of the user's experience, knowledge, language skills, or current concentration level. Guidelines: 3a. Eliminate unnecessary complexity. 3b. Be consistent with user expectations and intuition. 3c. Accommodate a wide range of literacy and language skills. 3d. Arrange information consistent with its importance. 3e. Provide effective prompting and feedback during and after task completion. PRINCIPLE 4: PERCEPTIBLE INFORMATION The design communicates necessary information effectively to the user, regardless of ambient conditions or the user's sensory abilities. Guidelines: 4a. Use different modes (pictorial, verbal, tactile) for redundant presentation of essential information. 4b. Provide adequate contrast between essential information and its surroundings. 4c. Maximize "legibility" of essential information. 4d. Differentiate elements in ways that can be described (i.e., make it easy to give instructions or directions). 4e. Provide compatibility with a variety of techniques or devices used by people with sensory limitations. PRINCIPLE 5: TOLERANCE FOR ERROR The design minimizes hazards and the adverse consequences of accidental or unintended actions. Guidelines: 5a. Arrange elements to minimize hazards and errors: most used elements, most accessible; hazardous elements eliminated, isolated, or shielded. 5b. Provide warnings of hazards and errors. 5c. Provide fail safe features. 5d. Discourage unconscious action in tasks that require vigilance. PRINCIPLE 6: LOW PHYSICAL EFFORT The design can be used efficiently and comfortably and with a minimum of fatigue. Guidelines: 6a. Allow user to maintain a neutral body position. 6b. Use reasonable operating forces. 6c. Minimize repetitive actions. 6d. Minimize sustained physical effort. PRINCIPLE 7: SIZE AND SPACE FOR APPROACH AND USE Appropriate size and space is provided for approach, reach, manipulation, and use regardless of user's body size, posture, or mobility. Guidelines: 7a. Provide a clear line of sight to important elements for any seated or standing user. 7b. Make reach to all components comfortable for any seated or standing user. 7c. Accommodate variations in hand and grip size. 7d. Provide adequate space for the use of assistive devices or personal assistance. THE SYSTEM FOR CREATING AN ACCESSIBLE ENVIRONMENT FOR THE DISABLED AND OTHER PEOPLE WITH REDUCE MOBILITY INCLUDES THE FOLLOWING COMPONENTS methodological (scientific knowledge, ideas, terminology, principles, etc.) regulatory (laws governing the creation of a barrier-free environment) financial (funding for the creation of an accessible environment); expert (organizations, institutions and experts conducting expert assessment of social infrastructure facilities); public (public associations of disabled people and parents of disabled children, patient organizations, etc.); personnel (development of new professional competencies by employees). STRUCTURAL AND FUNCTIONAL ZONES OF THE OSI (PARTS OF THE OBJECT OF SOCIAL INFRASTRUCTURE) The area adjacent to the building Entrance(s) in the building Path(s) of movement within the building (including escape routes) The zone of the intended purpose of the building (target visit to the object) Sanitary accommodation Site information system (devices and means of information and communication) ZONE 1 THE AREA ADJACENT TO THE BUILDING consists of the following functional and planning elements: Entrance (entrances) to the territory (adjacent to the building); Path(s) of movement within the territory; Staircase (external); Ramp (outdoor); Car parks. UNIVERSAL DESIGN ZONE 1 THE AREA ADJACENT TO THE BUILDING ZONE 2 "ENTRANCE(S) IN THE BUILDING" The main functional and planning elements of the "Entrance in the building" zone include: Staircase (outdoor) Ramp (external); Entrance area (in front of the door); Door (entrance) Doorway. ЗОНА 1 «ТЕРРИТОРИЯ, ПРИЛЕГАЮЩАЯ К ЗДАНИЮ (УЧАСТОК)» состоит из следующих функциональнопланировочных элементов: Вход (входы) на территорию (прилегающую к зданию); Путь (пути) движения на территории; Лестница (наружная); Пандус (наружный); Автостоянки и парковки. ZONE 3 "PATH(S) OF MOVEMENT INSIDE THE BUILDING (INCLUDING ESCAPE ROUTES)" The main functional and planning elements of zone 3 "Ways of movement inside the building" are: Corridor (lobby, waiting area, gallery, balcony ); Staircase (inside the building); Ramp (inside the building); Passenger elevator; Door (doors – if there are several on the same path of movement); Escape routes (including security zones). UNIVERSAL DESIGN ZONE 3 "PATH(S) OF MOVEMENT INSIDE THE BUILDING (INCLUDING ESCAPE ROUTES)" ZONE 4 "ZONE OF THE INTENDED PURPOSE OF THE BUILDING (TARGET VISIT TO THE FACILIT Y)" General requirements for service areas for citizens provide for at least 5% of places for the disabled and other MGN of the total capacity of the institution or the estimated number of visitors (including when allocating specialized service areas for MGN in the building). UNIVERSAL DESIGN ZONE 4 "ZONE OF THE INTENDED PURPOSE OF THE BUILDING (TARGET VISIT TO THE FACILITY)" ZONE 5 "SANITARY ACCOMMODATION» The functional planning elements of zone 5 include: Toilet room; Shower/bathroom; Household room (dressing room). ЗОНА 5 «САНИТАРНО-ГИГИЕНИЧЕСКИЕ ПОМЕЩЕНИЯ» К функционально-планировочным элементам зоны 5 относятся: Туалетная комната; Душевая/ванная комната; Бытовая комната (гардеробная). ZONE 6 "INFORMATION SYSTEM AT THE FACILIT Y" Media systems should be comprehensive – for all categories of people with disabilities (visual, sound, tactile). Signs and symbols must be identical within the building, the complex of structures, the area where the objects are located; they must comply with regulatory documents on standardization. UNIVERSAL DESIGN ZONE 6 "INFORMATION SYSTEM AT THE FACILITY" UNIVERSAL DESIGN A HEARING LOOP DESIGNED FOR INDIVIDUALS WITH REDUCED RANGES OF HEARING UNIVERSAL DESIGN INFORMATION BOARD WITH PICTOGRAMS Topic "Confidentiality in Medicine" If the rule of truthfulness ensures the openness of partners in social interaction the doctor and the patient, then the rule of confidentiality is designed to protect against unauthorized intrusion from the outside. The information about the patient that he transfers to the doctor or the doctor himself receives as a result of the examination cannot be transferred to third parties without the permission of this patient. Medical secrecy is a medical, legal, socio-ethical concept, which is a prohibition for a medical professional to provide third parties with information about the patient's health status, diagnosis, examination results, the very fact of seeking medical help and information about personal life obtained during examination and treatment. The prohibition also applies to all persons to whom this information became known in the cases provided for by law. The disclosure of medical confidentiality is the communication of such information to at least one person (with the exception of the patient himself, his legal representatives or medical staff involved in the treatment of this patient). At the same time, it does not matter to whom they became known: an acquaintance, a colleague of the victim or strangers. Special rules apply to the patient's family members. The disclosure of medical secrets can be done both orally and in writing - in particular, by phone, by publication in the press, etc. The communication by a medical professional of information about the state of health to the patient himself does not constitute disclosure of medical secrets from a legal point of view and does not constitute a corpus delicti. For example, according to article 5 of the Law of the Russian Federation "On psychiatric care and guarantees of the rights of citizens in its provision," all persons suffering from mental disorders, when providing them with psychiatric care, have the right to receive information in an accessible form for them and taking into account their mental state about the nature of the available they have mental disorders and the methods of treatment used. Ethical aspects of medical confidentiality Medical secrecy as an integral and mandatory part of medical activity is one of the most important principles in deontology and professional medical ethics. The ethical norms of society assume that each person should keep a secret entrusted to him by another person. However, the concept of "secrets" is of particular importance in the field of medicine, where information about the patient, his current state of health and prospects, and often about the person's future, are closely related and intertwined (whether he will be able to stay at his workplace after the end of the disease, will he become disabled etc.). Many facts of personal life in the process of treatment are transmitted by the patient to the doctor as necessary for the diagnostic and treatment process, therefore, the relationship between people in society is significantly different from the relationship between the doctor and the patient. Ethical aspects of medical confidentiality There is evidence that the concept of "medical secrets" originated in ancient India, where the aphorism acted in the confidential relationship between the doctor and the patient: "You can be afraid of a brother, mother, friend, but never a doctor!" Since ancient times, the physician has vowed to keep this secret and to keep this promise. Medical secrecy also applies to the main postulates of the Hippocratic Oath: ... Whatever during treatment - as well as without treatment - I see or hear about human life from something that should never be divulged, I will keep silent, considering such things a secret ... Legal aspects of medical confidentiality Unlike other concepts of deontology, medical secrecy is also characterized by the fact that it simultaneously refers to legal concepts: the safety of medical secrets is guaranteed by the state and is ensured by law by fixing certain prohibitions and legal responsibility for its disclosure. The requirement to keep medical confidentiality is guaranteed by the following international legal acts: Universal Declaration of Human Rights (art.12) International Covenant on Civil and Political Rights (article 17) Convention for the Protection of Human Rights and Fundamental Freedoms (Article 8) Principles for the Protection of Persons with Mental Illness and the Improvement of Mental Health Care, adopted by the UN General Assembly Resolution (Principle 6) Lisbon Declaration on the Rights of the Patient (point "e") World Health Organization Framework for Patient Rights in Europe (Section 4.1) The World Medical Assembly Principles for the Provision of Health Care in Any Health System (Principle 6) Hawaiian Declaration II, approved by the General Assembly of the World Psychiatric Association (item 8) Declaration on Ethical Standards in Mental Health Practice, adopted by the General Assembly of the World Psychiatric Association (item 6) Council of Europe Convention for the Protection of Individuals with regard to Automatic Processing of Personal Data (Article 6) The content of the concept of "medical confidentiality" The concept of "medical confidentiality" includes information: of a medical nature (information about the presence or absence of any disorder, disease in a person, about his diagnosis, as well as other information characterizing his state of health) non-medical nature: information about the very fact that a person sought medical help (made an appointment with a doctor, was at a doctor's appointment, called a doctor at home, was hospitalized in a hospital, etc.) or underwent a medical examination or was involuntarily hospitalized all other information obtained during examination and treatment, including: anthropometric data, body characteristics, blood groups of a citizen his behavioral features, details of intimate and family life, interests, experiences, fantasies, memories, actions (committed and planned), addictions, bad habits, relationships with others, etc. confidential information about the patient, his relatives, friends of the patient, if such information became known to the doctor in the performance of his duties Medical secrecy includes both information that a patient entrusted to a doctor or other person when receiving medical care, and information that has become known to a doctor or another person in connection with the performance of official and other duties, including information obtained in the process of medical intervention, in the provision of care. behind the patient, etc. Submission of information constituting a medical secret without the consent of a citizen or his legal representative is allowed: for the purpose of examining and treating a citizen who, due to his condition, is unable to express his will; with the threat of the spread of infectious diseases, mass poisoning and injuries; at the request of the bodies of inquiry and investigation, the prosecutor and the court in connection with an investigation or trial; in case of rendering assistance to a minor under the age of 15 to inform his parents or legal representatives; if there are grounds to believe that the harm to the health of a citizen was caused as a result of unlawful actions. " Free informed consent rule The rights of patients in medical interventions are protected not only by the observance of the rule of truthfulness and the rule of confidentiality, but also by the rule of voluntary informed consent. According to this rule, any intervention, including when conducting experiments on humans, must include the patient's voluntary consent. In turn, the doctor and nurse should inform the patient about the goals, methods, side effects, possible risks, duration and expected results of the study. It is the moral duty of the nurse to inform the patient of his rights. Considering that the function of informing the patient and his relatives is primarily vested in the doctor, the nurse has the moral right to transmit professional information only with the agreement of the attending physician as a member of the team serving the patient. For the first time, the rule of "voluntary consent" is formulated in the Nuremberg Code (1947) - the first "Code of practice on conducting experiments on humans." Then the principle of "free consent" began to be taken into account in the United States in the proceedings for compensation for harm in case of negligent treatment. The term “informed consent” took root in Europe 10 years later. In practice, a situation of natural inequality really develops between the doctor and the patient. The patient, not possessing special medical knowledge, entrusts his life to the doctor. The legal protection of the patient eliminates this inequality, and the principle of free informed consent reinforces new norms of the relationship between the doctor and the patient. This is reflected in Russian legislation in the Constitution of the Russian Federation "... No one can be subjected to medical, scientific or other tests without voluntary consent," in the "Fundamentals of Legislation of the Russian Federation on the Protection of Citizens' Health" A necessary precondition for medical intervention is informed voluntary consent of the citizen "," The right of citizens to information about the state of health. " The concept of voluntary informed consent enshrines the doctor's obligation to inform the patient, as well as to respect the patient's privacy, to be truthful and to keep medical confidentiality on the one hand, but on the other hand, this principle obliges the doctor to make the patient's subjective decision for execution. The incompetence of the patient can render such a model of the relationship between the doctor and the patient sterile and even harmful to the patient himself, as well as cause alienation between the patient and the doctor. The competence of the patient or subject is a prerequisite for participating in the informed consent procedure. The law establishes a fairly simple rule that presupposes two states the competence of the patient or the subject, or incompetence. Persons under 15 years of age are recognized as incompetent, as well as citizens recognized as legally incompetent. The right to give informed consent from an incapacitated patient is transferred to his legal representatives. A positive feature of voluntary informed consent is that it is aimed at protecting the patient from the experimental and test intentions of the doctor and researcher, at reducing the risk of causing moral or material damage. At the same time, in a situation where harm has occurred, although a voluntary informed consent was issued between the doctor and the patient, it is a form of protection for the doctor, weakening the legal position of the patient.