Cheshire & Merseyside Cancer Screening Programme Bowel/Breast Screening Improvement Project Project Initiation Document Project name: Bowel/Breast Screening Non-Responder Project Date of current version: 04/10/19 Version: 2.6 Gemma Hockenhull David McKinlay Author(s) Louise Vernon Marie Coughlin Note: Document location: The version-controlled copy of this document is available at: 1 Cheshire & Merseyside Cancer Screening Programme Revision History Revision Date 25/07/2019 25/07/2019 02/08/19 20/08/19 13/09/19 04/10/19 04/10/19 Previous Revision Date Summary of Changes Changes Marked Updated approvals list Update to project rationale Update to milestones/approvals/project aim Overall update and removal of acronyms Updated NHSE milestones Updated project roles and resources Addition of logo’s Approvals This document requires the following approvals: Group Cheshire and Merseyside Cancer Alliance SMT Group Champs Public Health Collaborative Cheshire & Merseyside Directors of Public Health Public Health England Screening & Immunisation Team NHSE/I North West Name (on behalf of group) David McKinlay Signature Date of Issue Version Helen Cartwright Sandra Davies Hayley Mercer/Marie Coughlin Julie Kelly 2 Cheshire & Merseyside Cancer Screening Programme Table of Contents 1. PURPOSE OF DOCUMENT............................................................................. 4 2. PROJECT BACKGROUND .............................................................................. 4 Strategic context .................................................................................... 4 Project rationale ..................................................................................... 5 3. PROJECT AIM, BENEFITS AND DELIVERABLES ......................................... 8 Project aim and objectives ..................................................................... 8 Project timescales .................................................................................. 9 Project benefits and evaluation framework .......................................... 10 4. PROJECT PLANNING .................................................................................... 10 High level project milestones ............................................................... 10 Project scope ....................................................................................... 11 5. RISK AND ISSUES MANAGEMENT .............................................................. 11 6. PROJECT INTERFACES ............................................................................... 12 7. PROJECT ORGANISATION AND GOVERNANCE ....................................... 13 Organisation ......................................................................................... 13 8. PROJECT ROLES / RESPONSIBILITIES ...................................................... 14 9. PROJECT RESOURCES ............................................................................... 14 3 Cheshire & Merseyside Cancer Screening Programme 1. Purpose of document The purpose of this document is to define the bowel and breast screening non-responder project, to form the basis for its management and to help with the assessment of the project’s overall success. This document gives the direction and scope of the project, defining the main aim, objectives and deliverables to be achieved. In terms of definitions used: Uptake, is the percentage of women who, having been sent an invitation for screening, attend a screening unit and undergo mammography in response to that invitation. Coverage is defined as the percentage of women in the population who are eligible for screening at a particular point in time, who have had a test with a recorded result within the last 3 years. The three primary uses of the document are: To ensure that the project has a sound basis before full initiation of the project activities. To provide a baseline document against which progress, issues and on-going viability can be assessed. To provide a single source of reference for the project, enabling stakeholders to quickly understand the details of the project and how it is being managed. This document will be monitored and updated following each phase of the project to reflect the current status. It therefore reflects the status of the project at the point of phase completion. Each Version of the document will be preserved so that progress of the project can be monitored and the original Project initiation document (PID) will be used as a baseline against which to measure success at the end of the project. The PID addresses the following fundamental aspects of the project: What the project is aiming to achieve. Why it is important to achieve the stated aims. Project scope, budget and stakeholder information. Who will be involved in managing the project, and what are their roles and responsibilities. Methods of risk and quality management. How and when the arrangements discussed will be put into effect. 2. Project Background Strategic context The NHS long term plan (2019) sets out ambitious aims for cancer, with cancer alliances playing a key role in delivery. The plan highlights that by 2028: • • An extra 55,000 people each year will survive for five years or more following their cancer diagnosis; and, Three in four cancers (75%) will be diagnosed at an early stage. 4 Cheshire & Merseyside Cancer Screening Programme In February 2019, the National Cancer Director wrote to Cancer Alliances confirming cancer transformation funding for 2019/20. The funding allocation for Cheshire & Merseyside Cancer Alliance this year has been confirmed as £5.9m, subject to an agreed delivery plan. The National Cancer Team identified transformation funding priorities for the following with clear associated ‘must-do’ deliverables: • Sustainable operational performance including delivery of the 28 and 62 day standards. • Screening and early diagnosis. • Personalised care. Development of Cheshire and Merseyside priorities for transformation funding was led by Cheshire & Merseyside Cancer Alliance through engagement with key partners and stakeholders. This included establishment of a number of priority project working groups, a region wide engagement event and a call for proposals. Over 100 proposals were received and tested against the national funding criteria. From this a programme of transformation work for 2019/20 was developed and submitted for approval to the national team. This project represents one of those key priorities for Cheshire and Merseyside. A summary of the Cheshire & Merseyside Cancer Alliance programme can be found below. Cancer Alliance Delivery Plan 19 20.docx Project rationale Cheshire and Merseyside Cancer Prevention Steering Group identified improvement in cancer screening performance as a key priority for Cheshire and Merseyside. In December 2018 the Screening and Immunisation Team and Cheshire and Merseyside Cancer Alliance supported collaborative stakeholder workshops to discuss screening programmes and identify initiatives to improve screening uptake and coverage. These workshops identified initiatives to improve bowel, breast and cervical uptake and coverage. Improvement in screening uptake and coverage was identified as a priority due to the significant impact of late detection on mortality from cancer. Deaths from bowel, breast and cervical cancer are shown in table 1. It was identified that the current commissioning and delivery landscape for cancer screening is complex. It was therefore felt that there would be benefit in a series of focused projects working with all key stakeholders to influence and directly contribute to improvements in screening uptake and coverage. This is further highlighted in the interim report of the Independent Review of Cancer Screening Programmes in England (Sir Professor Mike Richards, 2019). Workshop attendees identified a number of opportunities to improve uptake and coverage. In particular the role of screening support workers was highlighted with evidence presented from a number of sites including Halton Council, Beating Bowel Cancer and Liverpool Public Health volunteer model. 5 Cheshire & Merseyside Cancer Screening Programme Table 1 Mortality from Cervical Cancer, Breast Cancer and Colorectal Cancer1 Bowel screening Bowel screening is offered to men and women aged 60- 74 with another one off screening test offered to men and women aged 55. Bowel cancer screening saves approximately 2400 lives per year in England. The current position for bowel cancer screening is as follows: • • • • • • 1Source The national bowel screening coverage target is 60%. Coverage across Cheshire & Merseyside varies from 52.8% to 64.3%. Numbers need to reach target - additional 7,752 men and women in Merseyside should have been screened (Q3 17/18). There is a very strong relationship between bowel screening coverage rates and deprivation: deprivation explains 91% of the variation in coverage rates. Between 2012 and 2016, there have been 3,248 deaths from bowel cancer in C&M. Bowel cancer mortality appears to be associated with both screening coverage and deprivation, with mortality reducing as coverage increases and deprivation decreases. PHE Fingertips 6 Cheshire & Merseyside Cancer Screening Programme Table 2 highlights the current position across Clinical Commissioning Groups in Cheshire and Merseyside. Table 2 % Population Aged 60-74 Screened within the last 2.5 Yrs 2 Breast Screening Breast cancer screening is offered to woman aged 50-70 with women over 70 able to self-refer. Breast screening saves 1 life for every 2000 women screened and approximately 1300 lives per year. The current position for bowel cancer screening is as follows: • • • • • • 2Source The national breast screening coverage target is 70%. In C&M, 9/12 CCGs are above the 70% threshold, with coverage varying from 65.0% to 79.2%. Numbers need to reach target - an additional 3,272 women in Merseyside should have been screened (Q3 17/18). There is a strong relationship between breast screening coverage rates and deprivation: deprivation explains 63% of the variation in coverage rates. In the past five years there have been 2,358 deaths from breast cancer in Cheshire & Merseyside. There is no association between breast cancer mortality rates and either screening coverage or deprivation. PHE Fingertips 7 Cheshire & Merseyside Cancer Screening Programme Table 3 highlights the current position across Clinical Commissioning groups in Cheshire and Merseyside. Table 3 % Women aged 50-70 Screened within the last 3 Yrs 3 3. Project aim, benefits and deliverables Project aim and objectives To develop and begin implementation of a model to improve uptake and coverage of bowel and breast cancer screening. The model will target those who are due to attend/ complete their first screening, non-responders to screening appointments/ reminders and people who do not progress to endoscopy for colonoscopy following a positive Faecal immunochemical Test (FIT) test. FIT (Faecal Immunochemical Test) is a stool test designed to identify possible signs of bowel disease. It detects minute amounts of blood in faeces (faecal occult blood). The model will utilise support workers who will engage directly with patients and support them to participate in screening. Delivery of this project will support the ambitions to: 3Source PHE Fingertips 8 Cheshire & Merseyside Cancer Screening Programme Improve screening uptake and coverage across Cheshire and Merseyside Reduce variation in cancer screening programmes across Cheshire and Merseyside, focused on population groups who are particularly vulnerable to screening inequalities identified in national PHE Screening Inequalities Strategy (2019) including; People living in poorer areas People with a learning or physical disability Black, Asian or people from other ethnic minority groups Lesbian or bisexual women Men – who are less likely to be screened than women The project will do this by: Working with provider organisations to define and recruit patient navigators Developing a training and support package for patient navigators Ensuring an appropriate governance mechanism is in place to enable access to patient information by the patient navigators Reviewing current data to identify inequalities of uptake and coverage of access across Cheshire and Merseyside and developing approaches to improve this Designing a patient engagement approach for example targeting patients from practices with lower uptake and coverage, focussing geographically etc. Working with provider organisations, Screening and Immunisation Team, the hub and patient navigators and other stakeholders to identify structural barriers to access and plan work with partners to improve this Working to establish improvement trajectories Working with provider organisations to manage capacity and demand as the result of increased cervical screening Establishing a robust evaluation and monitoring approach across all sites participating Working with partner organisations to develop cases for sustainability of roles if shown to be effective. Project timescales Early work has taken place from December 2018 including stakeholder engagement and establishing project leadership in anticipation of national funding. The project is due to be formally mobilised in July 2019. The project milestones run until March 2020 however it is expected that some aspects of the project will run beyond the formal lifecycle of the project, for example where timescales for recruitment for 12 month fixed term posts results in a contract running beyond March 2020 and evaluation activities need to continue. 3Source PHE Fingertips 9 Cheshire & Merseyside Cancer Screening Programme Project benefits and evaluation framework Evaluation support will go out to procurement 4. Project planning High level project milestones The project will deliver the following high level milestones: Key Project milestone Associated NHSE milestone (if relevant) Establish governance, clinical leadership and project management resource. Engage secondary care, primary care, local authority and commissioning organisations in project. Develop PIDs. Prioritise project workstreams. Develop patient navigator role and initiate recruitment. Project initiation activities completed, including draft milestones, project initiation document approved, risks identified, project plan and risk log established. Stakeholder engagement plan developed and stakeholders engaged Role description for patient navigators developed Host organisations identified and engaged in recruitment process Outline training and support package development initiated Review data to identify inequalities of uptake and coverage Develop draft evaluation plan Fully define patient navigators role Initiate recruitment for patient navigator role Work with local stakeholders to define plan for patient navigator activity (which patients are engaged first) Establish governance framework to ensure access to patient information by patient navigator Finalise evaluation plan and delivery mechanism Support on-boarding of patient navigators and deliver training Go-live- mobilise patient engagement activities Initiate evaluation data capture 3Source Expected delivery date Q2 2019 Q3 2019 Patient navigators in post. Evaluate implementation progress and impact. Q4 2019/2020 PHE Fingertips 10 Cheshire & Merseyside Cancer Screening Programme Q1 20/2021 Interim evaluation Initiate development of case for sustainability Project scope This project will involve the following stakeholders: All local authorities/ public health in Cheshire and Merseyside Clinical Commissioning Groups in Cheshire and Merseyside Cancer Research UK Screening and Immunisation Team CHAMPS Public Health Collaborative Cheshire & Merseyside Cancer Alliance Directors of Public Health Primary Care via Clinical Commissioning Groups and Primary Care Clinical, Quality and Governance Public Health England Cancer screening providers of endoscopy, cytology and breast services Provider trusts for bowel and breast screening services Primary Care Network leads This project encompasses all services provided in Cheshire and Merseyside. 5. Risk and issues management Risks have been scored in line with Clatterbridge Cancer Centre policy as illustrated below in Figure 3: Figure 6; Risk scoring through application of a. Impact chart; b. Likelihood chart; c. Risk matrix a. Impact chart b. Likelihood chart c. Risk score matrix The following risks have been identified at the time of writing: 3Source PHE Fingertips 11 Cheshire & Merseyside Cancer Screening Programme Post mitigation scores Risk type Quality Quality Quality Identified Risk There is a risk that endoscopy, pathology and radiology cannot meet the demand that may be created by the project There is a risk organisations are not prepared/ in a position to receive funding There is a risk that primary care will not engage with the project uniformly Mitigating Factors Likelihood Impact Overall Project manager to engage with services to model impact and mitigating actions with providers 3 3 9 Project manager to engage early with organisations. PM to seek support from DsPH and CMCA if required 3 3 9 PM to begin engagement activities early and seek support from PCCQG and CCG leads 3 2 6 6. Project interfaces Other projects/programmes which it is known will interface with the project (i.e. will need to factor into local project plans) are: Screening & Immunisation team activities Cheshire & Merseyside MECC programme Cheshire & Merseyside Health & Care Partnership Prevention Programme Endoscopy programme Radiology Programme Cancer Research UK delivery plan Cheshire & Merseyside Cancer Alliance programme Local area cancer action team plans It is acknowledged that further interfaces may be identified throughout the course of the project. 3Source PHE Fingertips 12 Cheshire & Merseyside Cancer Screening Programme 7. Project organisation and governance Organisation The project team structure and governance are outlined below in figure 1. The Project Manager will ensure coordination of the project with regards to work streams and with other interdependent Cancer Alliance Projects. All relevant project documentation will be produced for the project. Figure 1; Project team overview and governance structure. 3Source PHE Fingertips 13 Cheshire & Merseyside Cancer Screening Programme 8. Project roles / responsibilities Title Name Organisation Role Senior Responsible Officer Sandra Davies Liverpool City Council DPH for Liverpool City Council and Chair of Cheshire & Merseyside Cancer Alliance Board Champs Accountable Lead Helen Cartwright Champs Public health Collaborative Head of Commissioning and Mobilisation Programme Lead Marie Coughlin NHS Screening & Immunisation Manager England/Improvement NHS England and NHS Improvement – North West Programme Manager Louise Vernon Champs Public Health Collaborative Cheshire & Merseyside Cancer Screening Programme Manager Project Support Officer Rosie Murphy Champs Public Health Collaborative Cheshire & Merseyside Cancer Screening Project Support Officer 9. Project resources A detailed budget statement for each project is to follow 3Source PHE Fingertips 14 Cheshire & Merseyside Cancer Screening Programme Reference List NATIONAL HEALTH SERVICE, 2019. The NHS Long Term Plan. Available from: https://www.longtermplan.nhs.uk/wp-content/uploads/2019/08/nhs-long-term-plan-version-1.2.pdf [Accessed 8 November 2019]. SIR PROFESSOR MIKE RICHARDS, 2019. Independent Review of National Cancer Screening Programmes in England. Available from: https://www.england.nhs.uk/wp-content/uploads/2019/02/independent-review-ofcancer-screening-programmes-interim-report.pdf [Accessed 8 November 2019]. PUBLIC HEALTH ENGLAND, 2019. Supporting the Health System to reduce inequalities in screening. Available from: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/816245/PHE _Screening_inequalities_strategy_2018__1_.pdf [Accessed 8 November 2019]. 3Source PHE Fingertips 15 Cheshire & Merseyside Cancer Screening Programme 16 Cheshire & Merseyside Cancer Screening Programme 17