Chapter 2: Literature Review Introduction Begin writing here… Checklist: ☐ Include an introduction that begins with a summary of the purpose statement, describes the content, scope, and organization of the review as well as the strategy used in the literature search. Do not simply cut and paste the Purpose Statement section from Chapter 1. Theoretical/Conceptual Framework The theoretical framework guiding this research is Culturally Responsive Leadership. Culturally Responsive Leadership (CRL) theory is centered on practices and pedagogy to focus school policy on creating and maintaining an environment which is inclusive and supportive of students and families from all ethnicities and cultural backgrounds (Johnson, 2014). It is relevant to the educational needs of African American girls with anorexia because school leaders assist in implementing programs for all manner of chronically ill children so that academic and educational progress is forward moving (Arnett, 2018). Hayes (2017) reported that there is a scarcity of literature addressing the needs of school leaders when supporting students with chronic illnesses such as anorexia. The subset of this population, African American girls in middle and high school who also have anorexia, create and maintain their own sense of culture and norms within the school setting.(cite) The three main parts of Culturally Responsive pedagogy are institutional, personal, and instructional, and reflect the leadership focus and priorities, the emotional and cognitive investment of the teachers, and the materials, classroom activities, and strategies used (Richard., Brown, & Forde, 2007). How school leaders can effectively serve minoritized students is a focus of Culturally Responsive School Leadership (Khalifa, 2018) According to Andersen (2017) school leadership is critical to student performance and school achievement. Culturally Responsive Leadership, within the school setting, challenges the established norms of school leadership practices in order to create better ways to engage students, including chronically ill students, such as those with anorexia, to take ownership of and responsibility for harnessing their knowledge, skills, and values to create social change (Guthrie, 2017). Culturally Responsive Leaders recognize that they possess the power to influence students through the creation and maintenance of positive institutional culture and climate for all students, but with special focus on inclusion of the students who become marginalized for any number of reasons including chronic illness. (cite) For the purposes of this research, the Culturally Responsive Leadership practices outlined hereafter will focus on the ways in which school leaders can support and maintain educational growth for African American girls with Anorexia in the United States. This theory guides the research such that school leaders may gain insight into possible programs to be implemented to academically support African American girls with anorexia. It is important to point out that some of the difficulties faced by African Americans and the need for this study are already in place due to the existing institutional racism in the United States’ educational system (citation). Using Culturally Responsive Leadership and Critical Race theories as the framework for the research will allow the expression of the lived experiences of African American girls with anorexia to inform school leadership practices such that academic achievement is maintained for girls with anorexia Theme or Subtopic Begin writing here… Level 3 Heading. Text... Level 4 Heading. Text... Anorexia While Anorexia Nervosa is equally prevalent in all ethnic groups, the utilization of mental health services is much lower for all ethnic minorities than for non- Latino White persons (Marques, et al., 2011). The American Psychiatric Association (2018) noted that while the prevalence of mental health issues is equal across all ethnicities, African Americans may receive inferior services and often do not have access to care which is sensitive to cultural differences. According Mental Health America, (2019) the historical adversity African Americans in the US have experienced, including slavery, sharecropping and race-based exclusion from health, educational, social and economic resources, has created socioeconomic disparities today, which, in turn, is linked higher risk for poor mental health. Girls with anorexia often have comorbid depression and anxiety, which can interfere with schoolwork and academic gains over and above the potentially life-threatening consequences of the anorexia (Sinbourne & Touyz, 2007). The National Eating Disorders Association (2018) studied more than 2,400 eating disorder patients and found that 94% also suffered from a mood disorder and 92% suffered with a depressive disorder. It was discovered that 32-39% of the patients presenting with anorexia also struggled with Major Depressive Disorder and that 4851% were also diagnosed with an anxiety disorder, including 20% with OCD (National Eating Disorders Association, 2018). Children and adolescents with a chronic illness such as anorexia tend to demonstrate diminished physical and social functioning and often have school attendance issues, which can lead to diminishment of achievement (Emerson, et al., 2015). DSM Criteria DSM-5 Criteria for Anorexia Nervosa A person must meet all of the current DSM criteria to be diagnosed with anorexia nervosa: Restriction of food intake leading to weight loss or a failure to gain weight resulting in a "significantly low body weight" of what would be expected for someone's age, sex, and height. Fear of becoming fat or gaining weight. Have a distorted view of themselves and of their condition (Examples of this might include the person thinking that they are overweight when they are actually underweight, or believing that they will gain weight from eating one single meal. A person with anorexia might also not believe there is a problem with being at a low body weight; these thoughts are known to professionals as "distortions.") The DSM-5 also allows professionals to specify subcategories of anorexia nervosa:5 Restricting type: This is a subtype typically associated with the stereotypical view of anorexia nervosa. The person does not regularly engage in binge eating. Binge-eating/purging type: The person regularly engages in binge eating and purging behaviors, such as self-induced vomiting and/or the misuse of laxatives or diuretics. The binge eating/purging subtype is similar to bulimia nervosa, however, there is no weightloss criterion for bulimia nervosa. As in previous editions of the DSM, anorexia nervosa "trumps" bulimia nervosa, meaning that if a person meets criteria for both anorexia nervosa and bulimia nervosa, then anorexia nervosa (binge-eating/purging type) is diagnosed. Diagnostic guidelines in the DSM-5 also allow professionals to specify if the person is in partial remission or full remission (recovery), as well as to specify the current severity of the disorder, based on BMI.6 https://blackdoctor.org/bmi-and-african-american-women/ African-Americans tend to have less visceral fat (fat around their organs) and more muscle mass. An African-American with a BMI of 28, considered overweight by the standard chart, may be as healthy as a Caucasian person with a BMI of 25. There are a lot of differences in BMI and health risk among multicultural groups according to Richard L. Atkinson, MD, a researcher and editor of the International Journal of Obesity. For Black women in particular, here are five interesting aspects to consider regarding BMI: Home / BMI: Is This Scale Broken For Black Women? … the density of lean mass in different ethnic groups. Based on direct measures of body fat, such as dual energy x-ray absorptiometry (DXA), researchers found that an African American woman may not be overweight or obese even though the BMI formula indicates that she is. The statistical risk for disease; high cholesterol, diabetes and high blood pressure would increase at BMI of 30 /180 pounds in a Caucasian women and at BMI 33 /198 pounds in an African American women according to researchers. According to researchers in the study Body Size Perception Among African American Women, 56% of overweight women (BMI 25 or greater) and 40% of obese women (BMI 30 or greater) did not classify their body size as overweight, obese, or too fat. The cultural threshold for overweight was determined to be about a BMI of 35, which is higher than the medical definition of ≥25. African American women have the highest obesity prevalence of any demographic group and are more likely to underestimate their body weight than white women. According to new research from Rush University Medical Center, cultural norms for body size may prevent awareness among many African American women about the potential health benefits they and others in their cultural group might achieve through weight loss. Why BMI Is Still Important For Black Women BMI is not the only way to size up your shape. However, the BMI ranges are based on the relationship between body weight and disease and death, and knowing your number can be life-saving. Overweight and obese individuals are at increased risk for many diseases and health conditions, including the following: 1. Discrepancies in BMI may be due to variations in bone mineral content, hydration state and… https://www.quora.com/What-is-a-good-weight-for-a-teenage-girl-that-is5%E2%80%B23%E2%80%B3-What-would-be-considered-underweight Epperson, Song, Wallander, Markham, Cuccaro, Elliott, and Schuster, (2014) found that methods for promoting healthy weight control and for correcting disordered eating in youth may need to target racial and ethnic groups differently. The National Heart, Lung, and Blood Institute (2013) suggests portion control as a method for maintaining a healthy weight but reports that serving sizes and portion sizes have increased over the last 20 years causing the American population to have a great deal of confusion over how healthy eating really looks (We Can, 2013). They also recommend limiting fats and sugar and increasing the intake of fresh fruits and vegetables and carefully reading the labels on foods to determine true nutritional content and correct portioning. The Institute for the Psychology of Eating recommends 3 step process for correcting disordered eating: observing and investigating eating personal behaviors without judgement, listening to and identifying the reasons for the disordered eating, and finding and securing a community of support for eliminating negative behaviors and replacing them with more positive ones (3 Steps for Healing from Disordered Eating, 2014). However, Salinas, Wang and DeWan (2016) conducted a genome-wide association study of body mass indexes in Hispanics and African Americans and concluded that there are genetic differences in the ways body mass is maintained in these populations, most specifically for African Americans, indicating the need for ethnicity dependent differences in the treatment of conditions such as obesity and underweight. The results of this study signal that the bodies of African Americans function differently than other ethnicities in terms of creating and maintaining body mass and that previous comparisons of healthy weight norms across ethnicities may be erroneous. Further study is needed to determine the more accurate measure of healthy and unhealthy weights in African Americans as criteria for determining and ameliorating eating disorders such as anorexia. Differences exist among racial and ethnic groups of youth in how they perceive the size of their bodies in relation to acceptable body norms and the need to lose weight (Adams et al., 2000; Martin, May, & Frisco, 2010; Mikolajczyk, Iannotti, Farhat, & Thomas, 2012). The addition of standards of measurement which are more reflective of the experience of non -White anorexic patients is needed, as the criteria used to determine disordered eating, i.e. weight relative to height and age, may not be accurate for all due to cultural differences in which eating disorder symptoms present themselves in a given population; (Alegria, Woo, Cao, Torres, & Meng, 2007). African Americans were at higher risk of developing eating disorders than are Hispanic and Asian Americans (Walcott, 2003). Minorities, such as Latina and Native American women, despite the severity of their symptoms, were less likely than Caucasians to receive a referral for further evaluation (Edwards, 2010). The criteria for diagnosing and treating anorexia and other eating disorders may not be accurate for all ethnic groups (Conger, 2009) The Diagnostic and Statistical Manual, 5th Edition, details the criteria necessary for diagnosing anorexia as: the reduction of caloric intake to the degree of causing significantly lower than expected body weight relative to age, sex, physical health and developmental expectations; an intense fear of gaining weight or becoming overweight and behavior that interferes with weight gain even at lower weights than considered healthy; a persistent disturbance in one’s perception of body size and weight coupled with overfocus on body size and weight as a measure of worth and a lack of comprehension of the seriousness of maintaining less than minimal weight (American Psychiatric Association, 2013). These criteria are less easily indicated in the absence of a generalizable definition of “healthy weight” for all ethnicities. However, more study is needed to determine racial/ethnic differences in body shape and size, and there need to be more racial and ethnically specific ways to determine health and normalcy for weight and size (Heymsfield, Peterson, Thomas, Heo, & Schuna, Jr., 2016). African Americans African American women are underrepresented in eating disorder research (Bell, 2013), leading to the conclusion that anorexia is a relatively new phenomena in African American women and girls (Konstntinovsky, 2014). The prevalence of eating disorders within the U.S. African American population varies by type of disorder, age cohort, gender, and ethnic group among adults, and by type of disorder among adolescents, and treatment providers require specialized training to recognize and treat eating disorders in ethnically-diverse patient populations. (Taylor, Caldwell, Baser, Faison, & Jackson, 2013). African American patients are often subjected to unnecessary and invasive tests before the diagnosis of anorexia is established and, by the time proper treatment is made available, patients are often very ill with conditions such as: emaciation, bradycardia, insomnia, cold intolerance and hyperactivity (Becker, 2003). Delays to proper diagnosis for African American patients mean greater misdiagnosis, and longer, more medically focused treatment before psychological interventions are put into place (Smedley, 2003) The result of the delay in proper treatment is longer periods of time out of school for school aged sufferers of anorexia, leading to more significant deficits in learning outcomes (Lindstedt, Kjellin, and Gustafsson, 2017.) A gap in the research can be found in the differences in the manifestations of disordered eating behaviors based on race and ethnicity, such as African American woman and girls (Reba-Harrelson, et al., 2009; Edwards, 2010; Sala, Reyes-Rodriguez, Bulik and Bardone-Cone, 2013). Educating African Americans According to Brownstein (2016) under the same educational conditions as any other group, only 73% of African American students graduate on time. This demonstrates the already existing difficulties for African American students and creates a markedly less optimistic future for African American students with anorexia. Steele (2011) noted that educational mediocrity has stigmatized African American children for more than a generation and is an offshoot of the ways in which the society at large views and treats children of color in both the educational and political arenas. It can be concluded that African American do not share the same educational supports and opportunities as do other groups and therefore struggle to achieve and acquire the same societal advantages (Andersen, 2016.) Despite the gap in research regarding anorexia and ethnicity, it can be cited through Rose, Lindsey, Xiao, Finnegan-Carr, & Joe (2017) that African American girls with a chronic and debilitating mental health conditions such as anorexia will face even greater difficulties in educational achievement. Societal Views of the Black Woman Even as Black women report emotional eating as a means of coping with strong feelings associated with traumas stemming from abuses suffered in childhood, clinicians deny that Black women experience anorexia (Ross, 2019). Because clinicians are less likely to conform the prevalence of anorexia in the Black community, Black women are equally unlikely to believe the condition is prevalent (Ives, 2017). In 2003, NIMH studied 985 white women and 1,061 black women and concluded that that health professionals need to be more alert to the possibility of eating disorders in all women, even as eating disorders, especially anorexia nervosa, are more common among white women than among black women(Striegel-Moore, Dohm, Kraemer, Taylor, Daniels , Crawford, and Schreiber, 2003). Ross (2019) reported that African-American women are more likely to experience pervasive stress associated with poverty, than their white counterparts. She further reports that Black women experience racism and daily microaggressions, including: discrimination and sexual harassment in the workplace with limited mean to effectively redress the issues recourse. She advanced that disordered eating can become the coping mechanism for handling these stresses. Striegel-Moore RH, Wilfley DE, Pike KM, et al. (2017) report that Black women experience higher rates of depression that their white counterparts. In addition to the trauma of abuse and neglect, foster care placement , the lack of one or more viable parents or other strong caregiver, and recurrent domestic abuse are also traumatic and can lead to attachment disorders and repeating relational turbulence for many women (Ross, 2019). Clinicians will improve their ability to treat Black women with anorexia when they can conceptualize the disorder as an explicable strategy for coping with ongoing stress and trauma rather than as a reflection of the desire to reflect thinness as a body ideal (Ross, 2019) How black women have been conditioned to cope with stress from life experiences relies heavily on this strong black woman archetype, or Superwoman role. (Ross,2019) The Hottentot Venus Recy Taylor Annette Butler Medical Exploitation of Black Women 1840s, James Marion Sims Anita Hill Omerosa https://theundefeated.com/features/our-patriarchal-society-doesnt-always-tell-thestories-of-black-women/ The Voice of the Black Woman Summary Begin writing here… Checklist: ☐ Briefly restate the key points that were discussed in the chapter. Review the headings and/or table of contents to ensure that all the key points are covered. ☐ Highlight areas of convergence and divergence as well as gaps in the literature that support the need for the study. This discussion should logically lead to Chapter 3, where the research methodology and design will be discussed.