CHC08 Disability Behaviour Support Skill Set Learner Resource Suite Learner Workbook 4 Community Services and Health Industry Skills Council Ltd This resource is under license and copyright restrictions. Please refer to the licensing agreement for complete information. Published by Community Services and Health Industry Skills Council Ltd ABN 96 056 479 504 PO Box 49 Strawberry Hills, NSW 2012 Telephone: (02) 9270 6600 Fax: (02) 9270 6601 Email: admin@cshisc.com.au © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 1 of 42 Workbook 4: Provide Services to Support Complex Needs Complex Needs ................................................................................................................... 3 Assessment of Needs........................................................................................................ 5 Role of the Carer ............................................................................................................. 17 Person Centred Planning ................................................................................................. 21 Developing an Individual Plan ......................................................................................... 25 Developing Positive Support Strategies ........................................................................... 32 Supporting Resources ..................................................................................................... 34 Delegating Services and Care Activities .......................................................................... 37 Monitoring and Evaluation ............................................................................................... 39 The Review Process........................................................................................................ 39 Feedback ........................................................................................................................ 41 © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 2 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Section 1: Complex Needs People with complex needs have multiple health, functional or social conditions where one condition affects other conditions. For example, depression may complicate the communication of someone who has an intellectual disability, or poverty and social isolation may impair a person’s capacity to meet medical or physical needs. Complex needs include a person with one or more of the following disabilities – physical, intellectual, psychiatric, sensory and/or speech, acquired brain injury, and have one or more of the following: Chronic health condition. Communication difficulties. Behaviours of concern. Drug or alcohol use. Lack of suitable housing. Lack of family or other social supports. ACTIVITY 1.1: Think of a client you work with who has complex needs. Fill in the table below to describe how their disability impacts on their quality of life: Disability Cause Impact on Body Functions © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Complex Needs Page 3 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Chronic Health Conditions A chronic health condition is an ongoing physical and/or mental health condition which varies in severity. The condition is typically incurable and requires continuous or intermittent management by professionals or carers. A chronic health condition may affect your client’s mobility, independence, change the way they live, how they see themselves and how they relate to others. ACTIVITY 1.2: Research some of the common health conditions experienced by your clients. How does it impact on their disability? What is the impact on their quality of life? Dual/Multiple Diagnosis A dual diagnosis in the disability sector is as one of the following: Two disabilities are present, such as an intellectual disability and a hearing impairment. A disability and a health condition are present such as a cognitive disability (learning and problem-solving) and mental illness. A multiple diagnosis is when there are more than two disabilities and health issues, such as an intellectual disability, autism spectrum disorder, depression and diabetes. According to the Australian Institute of Health and Welfare Analysis more than half of all people with a disability reported having more than one disability. The following points are of note: The average number of long-term health conditions associated with disabilities ranged from 3.5 for people with two disabilities to 6.2 for people with five disabilities. Dementia, autism, Parkinson’s disease, schizophrenia, speech problems and stroke were more commonly associated with multiple disabilities. The support needs of people with early-onset multiple disabilities vary depending on the nature of their disabilities and their life stages. As they grow older, they may have higher support needs at an earlier age than people with single or late onset disability. A substantial proportion of care for people with multiple disabilities was provided by their family members and friends. Among people with four or five disabilities, 30 per cent were unable to go out as often as they would like to participate in community activities, more than 40 per cent were living in institutions and the majority (77 per cent) was aged 65 years or over. © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 4 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs ACTIVITY 1.3: Think of the clients you work with. How does multiple/dual diagnosis impact on their needs? Assessment of Needs When developing a plan to address complex needs with the client it is important to identify the priority for different services and support requirements and work with the client to identify the best fit for their needs. A person centred approach is used to ensure services fit the client and if they do not it is the service provider who assists in finding services that do fit the client’s needs. Some needs are more urgent than others such as a crisis situation for a life-threatening selfharm, or acute chest pain and severe bleeding in a person’s left side around their heart. These people have a greater priority for emergency services before addressing their complex needs. A person who is homeless, has an intellectual disability, severe depression, alcohol addiction , is hungry and tired has a greater priority for accommodation that provides food and a bed, before stabilising their medication and looking at their addiction. Besides health and physical needs, consider the client’s ability to travel and willingness to access a service. Cost and availability of services is also a factor. ACTIVITY 1.4: Think about the clients you support. What needs do they view as a priority? ACTIVITY 1.5: Consider Agnes who is a 34-year-old woman with Multiple Sclerosis, Agnes uses a wheelchair for mobility and has been diagnosed with clinical depression and incontinence. One on occasion Agnes soils her bed but does not want to get out of the bed. She is not talking to anyone and has begun to pull at her hair and rock herself. How would you prioritise Agnes’ needs? © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 5 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs There are a number of formal assessment tools which assess, refer and identify broader needs. ACTIVITY 1.6: Research the functional screening tools used in your State/territory. How do these compare to the forms used in your Workplace? While purpose designed tools can assist you to assess the needs of your client, you also need to remember that formal tools may not always be relevant because symptoms can often present in hugely varied ways. Therefore, your knowledge and skills provide informal assessments through: • • • • • Looking at reports from carers and the client’s history and reputation. Observing changes. Being able to exclude physical problems by organising a comprehensive health assessment. Recognising if there is a stigma attached to a certain diagnosis. Seeking a diagnosis from qualified professionals from a range of disciplines to determine a prognosis and treatment. ACTIVITY 1.7: Identifying the interests, abilities and requirements of a person with a disability who has complex needs can be undertaken in a variety of ways. What are some of the assessment tools and less formal ways that can be used to do this? © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 6 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Your Role in the Assessment of Complex Needs Your role as a support worker is to provide a service within the scope of your service provider, which is delivered within the framework of legislation, funding, the society your client belongs to and historical factors. You work within your service provider’s philosophy, mission and goals and are guided by them in the following ways: Your work role is to be a direct support to the client to maximise their quality of life, to ensure their physical and mental wellbeing as you work with other professionals. These may include health professionals such as speech pathologists and therapists, physiotherapists, occupational therapists, general practitioners, the client’s workplace managers and supervisors, interpreters or other government and non-government agencies that can assist them with funding and financial matters. You provide an indirect support to your client’s carers. You monitor the setting the client is in to ensure you balance your duty of care and manage the risks of what they do as they learn new tasks and skills. You consider the people and environment they interact with such as where they live, who they visit and if they participate in work and leisure activities Collecting data and supporting the implementation of your client’s Individual Plan within your work role. This will include consulting with others and giving indirect support to your client’s carers. As a disability services worker you are not expected or able to diagnose complex needs in your clients, or assess relevant data on your own. Instead you should seek advice from health professionals and personnel, relevant to your client’s needs and disability. ACTIVITY 1.8: Who is involved in the assessment of complex needs in your workplace? ACTIVITY 1.9: Use the following Functional Assessment Tool to identify the needs and behaviours of your clients. © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 7 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Functional Assessment Tool Name (surname) Date of Assessment (first) (middle) Gender Date of Birth Date/s of prior assessments (if applicable): _______________________________________________________ Person completing this assessment: _______________________________________________________________ Communication skills (tick all that apply): Verbal Hearing impairment Non-verbal Uses hearing aids Signs Uses communication board Other relevant information: ________________________________________________________________________ ___________________________________________________________________________________________________________ Personal medical history: ___________________________________________________________________________ ___________________________________________________________________________________________________________ ___________________________________________________________________________________________________________ ___________________________________________________________________________________________________________ ___________________________________________________________________________________________________________ ___________________________________________________________________________________________________________ ___________________________________________________________________________________________________________ ___________________________________________________________________________________________________________ © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 8 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Current medications (note* if this is a recent change): Medication Dose Frequency Reason drug prescribed Family medical history (parents, siblings, eg. Heart disease, hypothyroidism, cancer, psychiatric illness, depression): ______________________________________________________________________ ___________________________________________________________________________________________________________ ___________________________________________________________________________________________________________ ___________________________________________________________________________________________________________ ___________________________________________________________________________________________________________ ___________________________________________________________________________________________________________ ___________________________________________________________________________________________________________ ___________________________________________________________________________________________________________ Mobility: Independent, no assistance needed Independently uses assistive devices (wheelchair, walker) Needs assistance (no adaptive device) Needs assistance (with adaptive device) Is dependent for mobility Comments: © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 9 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Dressing: Independent Independent with verbal prompts Minimal physical assistance (zipper, button) Significant physical assistance (include comments) Is dependent for dressing needs Comments: Bathing: Independent Independent with verbal prompts Minimal assistance required (water temperature) Significant physical assistance (include comments) Is dependent for bathing needs Comments: Personal hygiene (toothbrush, deodorant, grooming, menses): Independent Independent with verbal prompts Minimal assistance required Significant physical assistance (include comments) © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 10 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Is dependent for hygiene needs Comments: Routine – memory (s/he remembers the location of commonly used items – clothes, bathing articles, dishes): Always (rare exceptions) Frequently Occasionally Rarely Never Comments: Wandering (s/he leaves residence or workplace without notice): Never (rare exceptions) Rarely (monthly) Occasionally (weekly) Frequently (daily) Always (rare exceptions) Can the person be easily redirected by simply calling their name? Yes No Comments: Incontinence, urine: © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 11 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Always (more than once a day) Frequently (more than twice per week) Occasionally (once or twice per week) Rarely (less than once a month) Never (rare exceptions) Is the person on a toileting program? Yes No Yes No Comments: Incontinence, faeces: Always (more than once a day) Frequently (more than twice per week) Occasionally (once or twice per week) Rarely (less than once a month) Never (rare exceptions) Is the person on a toileting program? Comments: Orientation (can s/he find the bathroom?): Always (rare exceptions) Frequently Occasionally Rarely Never © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 12 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Is the person able to communicate the need to use the toilet? Yes No Comments: Leisure time: Always active Usually active Needs prompting to participate Rarely participates, even with prompts Never participates, even with prompts Comments: Routine performance (is s/he able to perform tasks on a routine basis?): Always (rare exceptions) Frequently Occasionally, with prompts Rarely, even with prompts Is dependent on others for guidance Comments: Gait (has there been a change in the way s/he walks?): No © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 13 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Yes, minimal changes (explain) Yes, major changes (explain) Comments: Time (is s/he aware of the day, week, month, year and seasons?): Never knew them Always (rare exceptions) Frequently Occasionally Never Comments: Behaviour of concern (does s/he express excessive anger or unreasonable demands?): Never (rare exceptions) Rarely Occasionally Frequently Consistently Does this person have Individual Plan? Date of last review: Can this person’s anger/behaviour be easily redirected? Yes No Comments: © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 14 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Danger to self/others (does this person behave in ways likely to be injurious to self/others?): Never (rare exceptions) Rarely Occasionally Frequently Consistently Does this person have an Individual Plan? Date of last review: Can this person’s anger/behaviour be easily redirected? Yes No Comments: Memory – recall (can the person easily recognise and recall everyday items?): Always Most of the time Never Not able to communicate Comments: Eating (have there been changes in the person’s eating patterns unrelated to known reasons?): No Yes, needs prompting © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 15 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Eating poorly, even with prompts Comments: Sleep (have there been changes in the person’s sleep pattern?): No Yes, minor changes (explain) Yes, major changes (explain) Comments: Personality (have there been changes in the person’s interaction with others, or changes in mood?): No Yes, minor changes (explain) Yes, major changes (explain) Comments: © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 16 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Role of the Carer A carer is a family member and/or significant other who supports a person with a disability in their daily living. Carers might be the children whose parents have a disability and they can also be the siblings of clients with disabilities. It has been recognised by governments that carers make a significant contribution to the health and wellbeing of our community. Unlike child care caring, or other caring responsibilities with unpaid work, caring for someone with a disability, a mental illness or who is aged is not necessarily seen as care carried out during an ordinary life transition. The lack of certainty and choice around caring for a person with a disability and the likelihood of the role intensifying as time goes by impacts on other relationships. Carers often do not receive adequate recognition or understanding from the government, community and family. There are approximately 13% of Australian households which provide care for people who have a disability, who are ageing, or both. The Australian Institute of Family Studies, in 2007 in a collaborative project between the Australian Government and the Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA) summarised the impact on carers of providing this care. This study showed that carers: Were 1.46 times more likely than the general population to have low face to face social contact with friends and relatives living outside the household. Social isolation, financial hardship and their level of general health are linked. There is a need for policies and services to enhance the lives of carers and consider carers’ needs for more intensive supported assistance. Are reluctant to reveal their own health and support needs because they feel their needs are secondary to those they assist and studies show they have a higher risk of health issues than non-carers. Have the greatest barrier to the workforce as there are a lack of services and understanding in the community Research shows the benefits of staying connected to the workforce gives carers a sense of identity, breaks from caring and financial benefits. The Centre for Public Policy, 2007 showed that carers, particularly young carers, are disadvantaged in terms of education and entry into the workforce and that a caring role early in life affects many decisions made by that person later in life. This can lead to social exclusion, lack of communication skills and opportunities of furthering their work skills and this can negatively impact on a carer who has not had a chance to prove their capabilities. For all carers the range of issues regarding caring and the workforce include: Inflexible employment conditions Perceived disadvantage in the workforce due to absence from the workforce Lack of recognition of skills obtained during the caring role that have relevance in the workplace such as complex care tasks, advocacy skills, patience, reliance, perseverance and communication skills Concern that receiving benefits such as carers allowance might be jeopardised if they take up work hours. Carers have a need to be affirmed, reconsidered, educated and informed about referral services for those they care for as well as services that cater for their needs. As a disability services worker you have control over where you work, which clients you work with and are protected by workplace policies surrounding WHS and fair workplace conditions. Carers © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 17 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs never clock off and go home – they are always on-call, and are required to attend to the full range of complex needs around the clock. As a worker you can affirm them by: Recognising what they do and how they support the client. Reminding them of the importance of their involvement in designing and implementing Individual Plans for the person needing support. Suggesting options for respite from their caring role. Identifying support groups such as peer support and community recreation involvement in developing Individual Plans. ACTIVITY 1.10: Think about the carers of your clients. How can you support them to feel their role is important for those they care for? © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 18 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs ACTIVITY 1.11: What mechanisms are there in your organisation for providing feedback to carers about activities of the organisation? Impact on Those Who Care The impact of behaviours of concern on carers can be upsetting, frightening and sometimes even harmful; the clients engaging in the behaviour may feel the same way.. Providing Support and Respite for the Carer/s Families and carers are the most important support to people with a disability. The role of families and carers in providing this support will be assisted by: • • • • Providing services that meet the changing needs of people with disabilities, their families and carers, including improved access to flexible respite options Recognising the specific needs of older carers at Commonwealth and State levels, which provides funding through disability services for eligible carers to receive up to four weeks respite a year Supporting and protecting both people with a disability and their carers where one or both people in the relationship provide domestic support and personal care to the other Working to develop specific, targeted and responsive early intervention services, particularly for children with disabilities, to ensure that existing networks and support structures provided by families and carers are maintained, coordinated and enhanced. ACTIVITY 1.12: What services can the carers of your client’s access? ACTIVITY 1.13: How would you find more information about the needs of your client’s carers to seek respite support? © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 19 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs ACTIVITY 1.14: Massey is the mother and full-time carer for Ellie, her daughter. Ellie has an intellectual disability, cerebral palsy and has bouts of depression which are managed with medication. Ellie needs daily assistance with personal care, medications, meals, transport, appointments and her finances. Your role is as one of a team of respite workers supporting Ellie to live at home with her mother. You have noticed that Massey’s arthritis is getting worse and making it more difficult for her to care for Ellie. One morning you arrive and Massey and Ellie are still in bed. a) What would you do? b) Identify Massey’s issues: c) Identify Ellie’s issues: © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 20 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Section 2: Person Centred Planning Your role and the role of all staff working in the disability sector is to constantly look for opportunities to involve clients in the things happening around them, so they gain more control over their lives, become more included in their community, pursue their own interests and gain independence. This person centred approach is about: • • • Increasing the levels of everyday engagement and interactions between staff and people with disabilities living in group homes or accessing disability services organisations, and documenting this via a planning process which records and monitors activities, allocates staff time to ensure activities occur, and regularly reviews a person’s progress. Ensuring people with a disability enjoy spending time participating in different activities. Challenging disengagement which sometimes happens in people with a disability where staff do most things for them and clients become non-participating spectators in their own lives, resulting in a loss of skills, confidence and motivation. The approach is planned, provided and regularly reviewed and includes the following components: • • • • Staff involving the client in proactively planning opportunities for the client. Staff documenting the activities to be pursued, their responsibilities and allocating time to support activities. Staff supporting participation (where required) by supplementing verbal instruction with gestures or physical prompts, demonstrating how to undertake the tasks or activity and providing physical guidance. Staff regularly monitoring and reviewing the opportunities provided. A person centred approach is based on the premise that all of us enjoy spending time participating in different activities and participating in social, personal, household, leisure or other pursuits typical of everyday living, as opposed to having little to do, being passive or engaged in aimless activity; this is a measure of quality of life. A person centred approach is not concerned with forcing or coercing people to undertake chores or household tasks they do not want to be involved with, but involves gathering information about the activities they wish to pursue (at home and in the local community), and having in place a structured way to ensure engagement with such activities occurs. ACTIVITY 2.1: With these strategies and principles in mind, how well do you think you: a) proactively plan opportunities for your clients? © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 21 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs b) document the activities to be pursued, their responsibilities and allocating time to support activities? c) support participation (where required) by supplementing verbal instruction with gestures or physical prompts, demonstrating how to undertake the tasks or activity, or providing physical guidance? d) regularly monitor and review the opportunities provided? Case Management Framework Case management is a collaborative process of assessment, planning, facilitation and advocacy to meet an individual’s holistic needs. The framework for case management focuses on a collaborative, person centred and strengths-based approach. The focus is on the client’s quality of life and includes the maintenance of support structures in their Individual Plan in accordance with the service provider’s agreement. This is an ongoing process and should occur at least every 12 months, or when the needs of the client change. ACTIVITY 2.2: What are the steps in the Case Management Framework? How does this relate to your workplace procedure for developing, monitoring and reviewing Individual Plans? Individual Plans An Individual Plan is a detailed document which must be developed in conjunction with the client so the plan remains client-focused, as well as involving the client’s family, primary © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 22 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs carers and other significant people to ensure the plan is realistic. The purpose of an Individual Plan is to achieve an outcome for the client which may include: Changes to the environment. This involves an understanding of relevant environmental factors that may be contributing to the behaviour of concern. Working as a team to analyse the STAR charts will have identified possible factors which may include undiagnosed medical conditions or possible side effects to medication. In addition you need to plan how you will change the environment to ensure a smooth fit between the individual and where they live and work. Teaching skills. This involves selecting and implementing skill development strategies (skills the person can be supported to learn), instead of engaging in the behaviour of concern. Short-term change strategies to reduce the reliance on the behaviours of concern. These may be required for a short period of time to produce a rapid change in behaviour. These strategies are used to facilitate a more immediate change to the behaviour Immediate response. Strategies implemented by workers and carers when the person presents with behaviours of concern. These strategies are used to minimise risk to the person and others by planning responses aimed at de-escalating or managing a serious episode of the behaviour. These strategies provide all those involved with a strategy for immediately responding to the behaviour as it occurs. These strategies do not promote long-term behaviour change; they are only intended to manage a serious episode of the behaviour. All Individual Plans need to have realistic, measurable and person centred goals and use positive support strategies to address these goals. It is also important that there are clearly stated roles and responsibilities to implement the strategies. ACTIVITY 2.3: Who is involved in the development of Individual Plans in your workplace? ACTIVITY 2.4: Provide an example of the forms you use in your workplace for designing Individual Plans. Do they meet the criteria above? © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 23 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Example of an Individual Plan Individual Plan Date Strategies From Meeting (those in attendance) Long-term Goal Changes to the Environment Teaching the Client and Others Recommendation: Short-term Strategies Immediate Response Strategies Short-term Goals of Individual Plan Client’s views/requests/opinions Long-term goal Short-term goals Strategies Person/s Responsible By When © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Resources Required Page 24 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Developing an Individual Plan To ensure that all service providers and relevant stakeholders understand their roles and responsibilities within an Individual Plan they should be involved in the development process which includes the following steps. The following flowchart outlines the steps for creating an Individual Plan: © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 25 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Individual Plan Flowchart Primary Worker Role Client Services Coordinator Role Ensure primary workers are familiar with the process Ensure family and other stakeholders are informed of the meeting Request and collate reports from external service providers Inform manager of upcoming plan /reviews. Ensure primary workers are familiar with the process Ensure family and other stakeholders are informed of the meeting Request reports from external service providers Either chair the meeting if the case is complex or delegate to key worker. Ensure IPs are up-to-date and relevant through supervision of primary workers Monitor effectiveness of strategies Monitor timeframes of IPs Monitor the risk assessments and implementation of risk reduction strategies Monitor implementation of crisis response and use of psychoactive medications Eight Weeks Prior to Meeting Review Meeting IP Meeting Talk to client regarding meeting Ensure Nomination of Support Person form is in client’s file Review Client Risk Assessment Send invite to families and other stakeholders Appraise progress towards goals Develop Primary Worker Progress Report Chair meeting if delegated to do so by senior worker Ensure all parties have opportunity to present information Ensure client has opportunities for involvement Ensure all parties input into the identification of goals and development of strategies. Draft the IP, ensure all information is documented and all parties sign the draft. Submit the draft IP to manager Implementation Ensure all house/unit staff have knowledge of IP goals and strategies. Discuss barriers to implementation of IP with the manager Quarterly Report (monitoring) Review progress against stated IP goals and review strategies if required. © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 26 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Step 1 - Prior to the Individual Planning Meeting Before the review of the client’s Individual Plan, the manager of the disability services organisation will discuss the planning process with the client. The discussion will cover: • • • • • • The purpose of the meeting. The opportunity for the client to choose who they want to attend the meeting based on who can assist them with the development of their plan. The role of each attendee. Whether the client wants to involve a support person, disability services worker or interpreter. Any matters the client wants to contribute to the meeting, or any issues the client doesn’t want discussed with all service providers and attendees. What assessments will be conducted and why. At least eight weeks before the Individual Plan meeting, the manager must ensure that the appropriate people are invited to attend. This must include: • • • • • • • • • The client. The client’s family. The client’s guardian. Friends. The client’s advocate. An interpreter. The client’s therapist. Day program staff. The client’s primary worker. Although it is important that the relevant people attend, there should be a limited number to make the proceedings manageable To maximise the participation of those at the meeting, the manager will: • • • Choose an accessible and suitable meeting location. Use accessible communication Create an agenda which includes opportunities for discussion and participation in decisions, but which remains flexible enough to allow meaningful contribution from the client at any time. The client’s primary disability services worker must prepare a report assessing the client’s skills and evaluating their progress towards the goals of the Individual Plan. This report must be prepared in consultation with the client and the other workers at the organisation. The manager must also ensure the goal suggestions from family, guardian or advocate are shared with all attendees. The manager will also request reports and assessments at least two weeks before the meeting, from: • • • • Caseworkers from other service providers. Speech therapists. Dieticians. Any allied health professional staff working with the client. The manager will then use these assessments and reports to consult with the client and write a draft of the Individual Plan. If a draft plan is developed it should be discussed with the © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 27 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs client or their guardian where appropriate. If there are contentious issues surrounding the draft of the plan they should be discussed with the relevant people before the meeting. If the case is complex the meeting must be chaired by a manager of the disability services organisation. Otherwise the manager can delegate a primary disability services worker to chair the meeting. If the family, guardian, advocate and/or financial administrator indicate that they are not comfortable expressing their ideas or asking questions during the meeting, the manager will encourage them to contribute their ideas in another way, such as over the phone or in person before the meeting. Where any service provider is unable to attend the meeting, the manager will request that a report be provided and distributed to all invited stakeholders. The report should include the following where appropriate: • • • • • • • All health, medical and dental reviews. Nutritional and swallowing assessment checklist. Client annual budget. Client profile. Client risk assessment. Risk reduction plan. Goal suggestions from the family guardian, advocate and/or financial administrator. ACTIVITY 2.5: What is your role in preparing for the meeting? ACTIVITY 2.6: What cultural protocols do you need to be aware of in the individual planning process with people with disability? ACTIVITY 2.7: Who is involved in the planning meetings with your clients? Fill in the table below to include each person present. Person Role © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 28 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Step 2 - During the Planning Meeting It is important that the client attends the planning meeting, and if they choose not to be present the manager must ensure that the client’s preferences and goals are raised at the meeting. The client’s primary disability services worker, case worker and other service providers will then present their reports and recommendations. All attendees will then draft an Individual Plan which specifies the prioritised client goals and planned service activities for the coming year. There are four broad areas of the client’s life to consider when establishing goals and developing intervention plans: 1. 2. 3. 4. Lifestyle and environment requirements. Skills development. Health and wellbeing. Social and recreational. Within these four areas there are a number of sub-categories to consider: • • • • • • • • • • • • • • • Health. Self-care. Mobility. Communication. Domestic. Leisure and recreation. Vocational and educational. Socialisation. Personal development. Relationships. Behaviour support. Financial. Advocacy. Family support. Other. When staff of the disability services organisation cannot provide a service or activity which is required to meet a client’s goal, the manager will contact other relevant providers such as the Behaviour Management/Mental Health Team to discuss the possibility of a referral. All decisions made at the Individual Planning meeting are to be recorded and the client, their family, guardian, advocate and/or financial administrator must show their agreement to the draft Individual Plan by signing it. Twelve monthly review dates are determined and also recorded on the draft Individual Plan. The manager will endorse the Individual Plan when the services identified to meet the client’s goals are written within the scope of the disability services organisation, and in consultation with other relevant staff. © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 29 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Copies of this endorsed plan are sent to the following stakeholders, ensuring the document is in a format each person can understand: • • • • • • The client. The client’s family. The client’s guardian. The client’s advocate. The client’s financial administrator. Relevant service providers. The manager will record the endorsement date in the client database, along with the plan review dates and other relevant information. ACTIVITY 2.8: What is your role during the meeting? Who should you report to? Step 3 - Implementing the Individual Plan Implementing an Individual Plan involves developing and carrying out specific strategies and client routines to assist the client to meet their goals. The primary disability services workers, in consultation with the client, their family, their guardian, advocate and/or financial administrator will develop strategies and routines for achieving goals. These strategies may also be developed by case workers who provide specialist services. If there are goals in the Individual Plan which need to be met by service activities provided by external agencies, the manager will forward these requests to the manager of the relevant service for inclusion in their service request register. Any information needed for the manager to prioritise the request should also be forwarded. Where an Individual Plan goal requires a referral to another service provider, the manager of the disability services organisation will arrange the referral. Once the Individual Plan is in place, it is the responsibility of the manager to inform disability services workers about the plan, and monitor its implementation. If barriers to the interventions being implemented are identified they must be raised with the manager. All disability services workers must implement the client’s routines and strategies as outlined in the Individual Plan, and complete relevant progress notes. The manager will support staff to implement the client’s plan through quarterly supervision meetings. © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 30 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs It is the manager’s responsibility to ensure all clients have current Individual Plans and that their plans are reviewed annually or as required. The manager will also monitor the implementation of Behaviour Intervention Plans and the use of psychotropic medications in accordance with the workplace’s behaviour management policy and restrictive practices policy. The manager will review the Individual Plan goals and interventions through an audit of intervention practice, including the use of psychotropic medication. ACTIVITY 2.9: What is your role in implementing the Individual Plan for your clients? Who should you report to? ACTIVITY 2.10: Provide an example of the policies your workplace uses when assessing, implementing and reviewing Individual Plans Implementation of an Individual Plan or strategy begins with a trial period of around two to three weeks where: Any issues can be closely observed by the team and actions taken to ensure that the client is supported consistently in the way intended by the written plan. The capacity of the support team to monitor and address implementation issues in accordance with the written Individual Plan or strategy in the long-term is enhanced. After the trial period, monitoring continues in accordance with the written Individual Plan or strategy. Long-term responsibility for monitoring implementation is also part of the support team’s role. © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 31 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Developing Positive Support Strategies Each state and territory has their own action plans, framework and guidelines for service providers for people with a disability. All of these policies and frameworks give guiding principles for the development of strategies to meet the needs of clients. The below policies are considered current best practice in choosing strategies to address the complex needs of your clients: State/Territory Best Practice Guidelines Qld – Department of communities Qld Government Positive Futures NSW – NSW Department of Ageing, Disability and home care Behaviour support : Policy and Practice Manual www.communities.qld.gov.au www.adhc.nsw.gov.au/ Victoria – Dept of Human Services Positive behaviour support – getting it right from the start www.dhs.vic.gov.au South Australia – Dept of Families and Communities Disability, Ageing and Carers Promoting Independence Promoting Independence: Disability Action Plans for SA www.familiesandcommunities.sa.gov.au Western Australia – Government of WA , disability services commission Western Australia- Positive Behaviour Framework www.disability.wa.gov.au Tasmania – Department of Premier & Cabinet, Tasmania Disability Framework for Action 2005-2010: a whole-of government framework for Tasmanians with disabilities. www.dpac.tas.gov.au ACT – Department of Disability, Housing and Community Services Future Directions: Towards Challenge 2014 ACT Government www.dhcs.act.gov.au Northern Territory – Territory Health Services The Northern Territory Disability Service Standards Disability Services Program www.health.nt.gov.au © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 32 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs ACTIVITY 2.11: As a group, research and discuss the guidelines in your State/Territory. What evidence based approach does your workplace use? To ensure that strategies that have been discussed are implemented and that everyone involved understands what is expected of them they need to be well documented. When writing up your reports you need to ensure all the vital information is included and the detail and presentation of the information does not pose a barrier to people understanding what needs to be done. When reporting on the strategies in your clients’ Individual Response Plans, your documentation should: • • • • • • • Be time limited, that is, must be completed within 24 hours Include a clear description of the behaviour, what happened before and what happened after Include all observations and actions Report all witnesses and injuries or damage Explain what strategies you tried and if they worked or not Say whether yourself or the client or others need debriefing Take the opportunity to say what might help in the future to better manage the behaviour. ACTIVITY 2.12: Provide an example of how your workplace promotes person responsible strategies? © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 33 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Supporting Resources Resources which you can use to help your clients achieve their goals include the following financial resources, aids and equipment, and qualified health specialists. Financial Resources For most people with a disability, financial support and assistance comes mainly from family and friends. However, governments provide a range of services both directly and indirectly to help those with disabilities, and the private and community sectors also provide significant resources in this regard. As well as disability specific services and support, the government, private and community sectors also provide a range of mainstream services (for example, health services) that people with a disability have access to. As there is a mix of mainstream and disabilityspecific programs and services it is difficult to get an accurate picture of the extent of funding and support to the disability population. ACTIVITY 2.13: Which are the government departments and interest/welfare groups in your state or territory which would be available for your client to access? Aids and Equipment Your client may be able to utilise the following aids and equipment which will help them achieve their goals: • • • • • Hearing aids. Mobility aids, for example, walkers/walking frames, wheelchairs, walking sticks or scooters. Communication aids such as communication pictures, photographs, communication diaries, chat books, voice output devices, Braille, videos and audio. Shower chairs and recliner chairs. Cooking and eating utensils. ACTIVITY 2.14: Give an example of aids/equipment your workplace uses to assist your clients achieve their goals? © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 34 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Qualified Health Specialists Health professionals who can help your client achieve their goals may include: • • • • • • • • Occupational therapist. Speech pathologist. Doctor. Dietician. Psychologist. Physiotherapist. Music therapist. General practitioner. ACTIVITY 2.15: What types of health professionals do your clients access? Other Stakeholders Teachers. Your client may have contact with a number of teachers who facilitate their education, or teach them new skills. Sporting coaches. Anyone involved in the direction, instruction and training related to a specific team or individual sport. Some sporting coaches specialise in working with people with a disability. At other times a particular sport may be modified to meet the needs of a group of people with a disability. For example Goalball is a sport specifically for people with vision impairment, and the sport nicknamed Murder Ball is a modified version of rugby designed for people in a wheelchair. Work supervisors. Any person in a management or supervisory role who the client spends time with in a work environment, whether in a paid, voluntary or community position. © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 35 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Community Services There are a range of government and non-government organisations who can be contacted for support, including the following: Domestic violence Mental health Aboriginal and/or Torres Strait Islander health Juvenile justice HACC Needle exchange Support groups Help lines Medical clinics Child protection ACTIVITY 2.16: List six different types of community services in your area that might be able to support your clients with complex needs and the services each provides. © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 36 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Delegating Services and Care Activities In working with people with complex needs and providing positive behaviour support for their behaviours of concern there is a continuum for the roles and responsibilities. As you implement their Individual Plan recognising and using the strengths of the client and others, you support and create a positive environment in which to implement the Individual Plan. When you are working with others to implement your client’s Individual Plan, there are the three basic principles of delegation: 1. 2. 3. Principle of expectations. Suggests that before delegating a task to anyone the person delegating should be able to clearly define the goals and the expected results. For example, if your manager delegates you to investigate the cost of a device to help your client communicate more effectively, you will need to know exactly what equipment is required, how many quotes are needed, preferred suppliers, how to report the information and when it needs to be delivered. Principle of authority in doing the task. According to this principle, if you are given a responsibility to perform a task, then you need to be given enough independence and power to carry out the task effectively. In the above example you can seek the information in the way that suits you, within the guidelines of the organisation, reporting using your own words using the suggested template. Principle of absolute responsibility. Suggests authority can be delegated but the ultimate responsibility remains with the person delegating the task. In this case your manager will be responsible for ensuring the quotes are accurate, presented in an acceptable way and meet the needs of the client and the organisation. ACTIVITY 2.17: When delegating work to others what are the important principles to remember to ensure it is successful? It is particularly important that advice and assistance from relevant health professionals is sought when the person’s goals are not being reached; people such as doctors, psychologists, medical specialists, pain specialists and social workers. © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 37 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs ACTIVITY 2.18: How do you seek advice and assistance when goals are not being met? ACTIVITY 2.19: What can you do if your organisation is no longer able to provide the level of service required? © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 38 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Section 3: Monitor and Review A client’s Individual Plan must be reviewed at regular intervals to ensure goals are being met, to accommodate their changing needs and to consider their needs for the future. Review dates must be set at the Individual Plan meeting, and reviews must be conducted in consultation with relevant people. Individual Plans should be reviewed every 12 months, with an Individual Plan progress report submitted quarterly by primary disability services workers. If the Individual Plan contains a communication objective it should be reviewed at least every six months. An Individual Plan will also be reviewed more frequently if there is a demonstrated need, and/or if circumstances have changed. Strategies will also require consistent implementation and a concerted effort from all those involved. There is little point in persisting with strategies if after a reasonable period of time there does not appear to be any change in the behaviour nor an improvement in the person’s quality of life. This can actually have a negative effect on the person with a disability and on the enthusiasm of staff and their feelings of hope for the future. When reviewing it is important to: • • • • • Establish a reporting system appropriate to each part of the program or strategy – all parts of the program need to be evaluated. While diaries may be useful a lot of important information can get lost or is not recorded because people don’t think to keep it centrally recorded. A formal shift record sheet can be a useful prompt, and structure the reporting to clearly define what you hope to achieve with respect to the person’s environment, skills, support network and specific behaviours Plan and conduct formal review meetings. At the beginning of the program, meetings may need to be held at least weekly and they can be scaled back later. Work through each area systematically to avoid focusing on just the most recent or most critical occurrence. Meeting needs to be recorded and reports given in the different areas being developed, for example, proactive strategies or Individual Response Plans, and these reports need to be provided to other stakeholders who are not able to make the meeting. Keep open channels of communication between the stakeholders, the client, family members, workers and all agencies involved. Plan regular review meetings. The Review Process The date for each Individual Plan review is agreed to at the Individual Plan meeting and recorded on the Individual Plan and in the client database by the organisation manager. The manager will first discuss the Individual Plan review with the client using accessible communication, and then arrange the review meeting with the client, their family, advocate and/or financial administrator. If the review meeting is to occur on a date other than the date scheduled, the manager will notify the attendees. At the meeting the current goals on the client’s Individual Plan will be reviewed. © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 39 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Three weeks before the Individual Plan review, the manager will check the status of all the client’s goals and intervention plans, considering the following: • • • • • Have the primary workers developed strategies and/or routines to implement the plans for which they are responsible? Have services requested through external providers been allocated a caseworker? Has the intervention commenced? Have the identified milestones been met? If not, why not? Do the strategies need to change? If so, how? The manager will also review the client’s risk assessment and risk reduction plans as the client’s risk assessment is updated at the Individual Plan review meeting to reflect any changes. Participating in the review meetings will be the client, their family, guardian, advocate, financial administrator and/or any professional staff. All of those involved in the review can participate by: • • • Attending the review meeting. Commenting on the scheduled reports which the manager may have sent to the client’s family, guardian, advocate and/or financial administrator. Discussing the progress of interventions through phone calls to the organisation. A primary disability services worker may report to their manager a priority which arises from an Individual Plan review prior to the meeting. This item will then be considered in the Individual Plan review, and if agreed to by the client, their family, advocate and/or financial administrator, the manager will revise the Individual Plan accordingly. If there is any disagreement between any parties working with the client, if an Individual Plan review indicates the need for further requests for service activities or if the existing services are no longer relevant, this information is provided to the higher management team of the organisation. After the review, the manager will discuss the results with the client, as well as forward copies of the reviewed Individual Plan to: • • The client, their family, guardian, advocate and/or financial administrator. Relevant service providers. The manager will also make sure the disability services organisation client database is updated. ACTIVITY 3.1: How do you monitor the implementation of Individual Plans in your workplace? © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 40 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs Strategies for Effective Meetings Whether you are conducting planning meetings and reviews or simply attending, there are a lot of people involved and with such a high level of organisation required you want to make sure effective outcomes are reached as easily as possible. You can do this by: • • • • • • • Being clear about what your client wants from the meeting. Knowing who else needs to be at the meeting and what they are offering your client. Being clear about the objective/s of the meeting, you can ask your manager to clarify the objectives if you are unsure. Creating an agenda for the meeting to ensure all points are covered. Being prepared with the necessary documentation and information before the meeting. Being aware of your own personal agenda or expectations and if you have concerns about your personal position you should speak with your manager. Thinking about whether there are things which would make it hard for you to be objective when leading the meeting and finding ways to fix this issue such as having someone else chair the meeting. ACTIVITY 3.2: What strategies would you employ to make sure a planning meeting was effective? Feedback Feedback is a process by which all organisations gather and receive information about program delivery, its appropriateness and its effectiveness. This information is used to evaluate the success of programs, address shortfalls and for future planning. It is used to ensure that client needs and goals are correctly identified and catered for. Feedback mechanisms include: • • • • • • Face to face interviews Questionnaires Focus groups Observation Input from experts Input from behaviour support providers Feedback is constantly collected from a variety of sources, including clients, client families, care workers, case coordinators external consultants, service providers and other stakeholders. © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 41 of 42 CHC08 Disability Behaviour Support Skill Set Learner Guide Book 4: Provide Services to Support Complex Needs ACTIVITY 3.3: What is the process for providing feedback in your workplace? ACTIVITY 3.4: What do you do when you receive feedback? You are able to provide feedback to your client’s carers regarding the activities of your disability services organisation through: • • • • • • AGMs. Individual planning meetings. Carer group meetings. Client representative group meetings. House meetings. Including your client’s activities and achievements in the organisation’s newsletters. To effectively analyse and interpret feedback from all service providers, the client and their advocates you need to make sure that the data is current and complete, and that those collecting the data understood the purpose of the collection and remained consistent. Always be aware of any limitations on the data collected and feedback provided. When analysis of feedback demonstrates that current methods or work practices are not being successfully implemented or are unsuccessful in a client plan this indicates a need for change, and possibly external input. The importance of regularly monitoring the implemented strategies cannot be understated. ACTIVITY 3.5: How could you improve the feedback process in your workplace? © Community Services and Health Industries Skills Council Ltd www.cshisc.com.au Page 42 of 42