Physical disabilities and sensory impairments Connected Care Solutions Key information for health, housing and social care professionals and carers 1 with, and less than half have some choice over where they live • 29,000 adults with a learning disability live with parents aged 70 or over, many of whom are too old or frail to continue in their caring role • Just 1 in 3 people with a learning disability take part in some form of education or training • People with a learning disability are 58 times more likely to die aged under 50 than the general population, and 4 times as likely to die of preventable causes Introduction Connected Care and Connected Health technology such as telecare and telehealth has a key role to play in supporting people with physical disabilities and sensory impairments in a way that promotes independence as well as contributing to safeguarding. Technology can make a difference to people with all kinds of abilities. From managing risks such as fires or falling, to aiding communication and helping to deliver greater privacy or dignity, technology can enable people to have more control over the way they live their lives. With public sector funding under increasing pressure, it is more important than ever that we realise the potential of enabling technologies to make a significant and positive difference to the lives of people with disabilities, and help our health, housing and social care systems to support their needs effectively. This guide outlines some of the ways technology can contribute to improving the everyday lives of people with physical disabilities and sensory impairments as well as those who care for them. Almost 1 in 5 people in the UK have a disability 10 million people have some form of hearing loss Disabled people’s living costs are 25% higher than those of non-disabled people Physical disabilities and sensory impairments Only 17% of disabled people were born with their disabilities 1.87 million people have sight loss that has a significant impact on their daily lives Source: Disability in the United Kingdom 2013 Facts and Figures, Papworth Trust 2 1/3 Disabled people make up around one third of the NHS users in Britain What is Connected Care? Tunstall offers a range of Connected Care and Connected Health solutions, which use advanced technology underpinned by high quality, high touch services to provide enhanced care for all kinds of people, including those with disabilities. Solutions are tailored to the needs of the individual and their circumstances, and designed to evolve over time as the user’s requirements change. Telecare forms part of Tunstall’s Connected Care solutions, and is a system of devices which supports people in their own home by helping to manage risk. Appropriate, unobtrusive sensors are placed around the home, which if triggered send an alert via a Lifeline home unit to a specialist monitoring centre, where trained operators can alert a carer, keyholder or the emergency services as appropriate. Telecare can also be used by carers in the home or in supported or residential care environments, in which case alerts from sensors will be received on a pager. Telecare can provide assistance to the person to help them to do things (e.g. allow access to their home or be alerted to the phone ringing), and give them the means to easily ask for help by pressing a button, which can be worn on the wrist or around the neck. Telecare can also alert others of dangerous situations (e.g. if they were to have a fall or leave the gas on). 1 Personal trigger or telecare sensor raises alert 5 Response from carer, keyholder or emergency services 2 Alert raised via the home unit 4 Operator or carer decides appropriate course of action 3 Alert received at monitoring centre or on carer pager Examples of technology in use and further details on the types of products developed by Tunstall are detailed in the following pages of this brochure. 3 Case Study Telecare supporting independence for a wheelchair user The situation James Porteous is in his late sixties, and contracted polio at the age of six. As a result, his breathing was severely affected and he became paralysed. Although he made a slow recovery, James has been a wheelchair user ever since. This limited mobility has not restricted his achievements; James has had a long and successful career, and is very active in his community, gaining an MBE for his charity work. As James gets older he is finding that some of his symptoms are worsening, and he has some pain and needs a respirator at night to help him with this breathing. His wife Gill has also recently been diagnosed with Parkinson’s disease. The solution James and Gill have been using the Be Independent telecare and response service for several years, with James wearing a personal pendant to enable him to call for assistance in an emergency from anywhere in his home or garden. This has been a great reassurance to him, and has also given peace of mind to Gill when she has left James alone in the house. As both their needs are increasing over time, Gill now also wears a pendant, and Be Independent staff continue to make regular calls to assess whether they can provide any other equipment or services to help make life safer and easier for them. The outcome James says, “ Telecare acts as a safety net for us. We live a very independent and fulfilling life, but at the same time we are aware that one day there may be circumstances that mean we need urgent help and the system gives us that back up. It also helps our daughters feel better that we have easy, 24 hour access to help from people who know our situation. It’s really a fantastic support for the whole family, and we would all be much more anxious and stressed without it. ” Read the full case study at uk.tunstall.com/beindependent 4 Case Study A new approach to supporting people with complex needs using integrated technologies The situation There is an urgent and growing need across the UK for cost effective accommodation and care for adults with a variety of disabilities. How is technology helping to deliver a new model of care which is more cost effective than traditional provision and ensures vulnerable adults are given the same life choices as others? The solution Tunstall and ATEL offer a range of technology enabled care solutions for people with a range of complex needs living in supported living environments. Moorgate Mill in Blackburn is a development containing 20 apartments for people with complex needs including physical and sensory, learning disabilities, and some with behaviour that challenges. This Inclusion Housing run site was designed by HB Villages with the technology provided through a collaboration with Tunstall and ATEL and care provided by Lifeways. ATEL and Tunstall have worked together to provide a managed service for the provision of a communications platform, telecare, environmental controls and access control at Moorgate Mill. Systems are provided according to the needs of the individual following assessment, but include sensors to detect risks such as falls, fires or floods and aids such as lighting and heating controls, automatic door openers and blind/curtain openers. The outcome Moorgate Mill is an exciting mix of care, accommodation and technology designed to create an environment that supports independence and is more cost effective than traditional provision. Not only empowering, the financial benefits of the concept will, it is envisaged, over time generate savings of around 20% on care and support costs. Jayne’s story Jayne is profoundly physically disabled, and has been dependent on others for her care all her life. Moving to Moorgate Mill is the first time Jayne has been able to live in a flat on her own. She has 24-hour background support, and uses a reassurance pendant that allows her to speak directly to the office at the touch of a button whenever she needs assistance. Jayne can now operate her own blinds, lights, television and keep in contact with her family and friends via Skype, all at the touch of a handset or with a pillow control. Jayne also has a wet room with a Clos-o-Mat toilet, giving her more privacy and dignity with personal care. For the first time Jayne has a sense of control and independence. Read the full case study at uk.tunstall.com/moorgatemill 5 Case Study Telecare providing reassurance and supporting independence The situation Wendy is a 53 year-old social worker for Hull City Council who lives in Hull with her partner, Pete. Wendy has muscular dystrophy, a genetic muscle-wasting condition that over time leads to an increasing level of physical disability. Wendy uses a wheelchair and is supported by carers for day to-day living. Wendy also has a Canine Partners assistance dog called Connor, a Labrador retriever cross. Connor helps Wendy with such tasks as putting washing in/out of the washing machine, pressing buttons and opening doors. A former lecturer at the University of Lincolnshire, Wendy works for Hull City Council with adults who need support to live their life, as well as looking after her grandson every Thursday. The solution Determined not to allow her condition to compromise her independence and safety at home, Wendy started using the Hull City Council Telecare Service in 2009. Wendy’s telecare includes: • A MyAmie personal trigger that Wendy can press at any time if she needs to summon help from anywhere in her home or garden • Smoke detectors to raise an alert at Kingston Care monitoring centre in the event of a fire • A Lifeline home unit, which can receive alerts from Wendy’s MyAmie and smoke detector sensors linked to the monitoring centre, so that an alarm can be raised 24-hours a day The outcome For Wendy, telecare reduces the risks of independent living and gives her peace of mind. For example, on one occasion, Wendy became separated from her house keys and ended up being locked in her home, unable to get to the phone. Having trained Connor the dog to push the alert on her telecare unit, Wendy told Connor to press the button. Connor pressed the button and staff at the monitoring centre called a locksmith. Wendy says, “ Telecare gives me some ‘me time’, because I don’t always want somebody to be supporting me in my own home, but it’s nice to have the reassurance that I can get help if I need it. ” Read the full case study at uk.tunstall.com/hullwendy 6 Case Study Telecare in extra care The situation Broadacres Housing Association provides a comprehensive range of services to over 5,300 homes in North Yorkshire, supporting various client groups. Upon commissioning its Rivendale Extra Care facility, Broadacres worked in partnership with North Yorkshire County Council, Hambleton District Council, the Homes and Communities Association and Tunstall to ensure the scheme provided attractive and accessible accommodation which allows people to live independently with the appropriate level of care available when they need it. The solution Rivendale in Northallerton has 51 apartments and a range of facilities, including 24 hour onsite care staff. Tunstall’s Communicall system was incorporated into the build specification for Rivendale in order to provide staff with a reliable means of communicating with each other and with residents, as well as offering a future-proofed platform for telecare. Each apartment has a door entry and intercom system, enabling residents to contact staff and control access to their homes. All residents have personal triggers to enable them to request assistance at any time, and a range of telecare sensors are available to support residents according to their individual needs, including smoke detectors, flood detectors, fall detectors and door sensors. The outcome Judith Beardsmore, Scheme Coordinator - Extra Care said, “ Without Communicall the responsibility on staff would be much greater and we would need to provide larger packages of care. This way, we can monitor for risks and emergencies 24/7, enabling the residents to be more independent and freeing up staff time. It also provides us with a form of lone worker monitoring for our staff. This is quite a big building and the Communicall system means we can easily check on the wellbeing of staff, no matter where they are. ” Anthony is 27 and is a wheelchair user with some physical disabilities. He moved to Rivendale 18 months ago from his parents’ home, seeking more independence. He uses a personal trigger and his apartment is equipped with pullcords, a flood detector and an epilepsy sensor. Anthony says, “ I really enjoy having my own home and having more control. Having the back-up from telecare has taken away my nervousness of being on my own. I get on really well with everyone here and having the epilepsy sensor means I can go to bed at night and not be disturbed by people checking on me. ” Read the full case study at uk.tunstall.com/broadacres 7 Case Study Telecare supporting visual impairment The situation Mr and Mrs Jones are both severely visually impaired. Mr Jones is often away with work and Mrs Jones also has asthma. Close friends experienced a burglary involving men claiming to be from the police. As this couldn’t be visually confirmed, Mrs Jones was fearful of any doorstep caller she didn’t know. The solution Mr and Mrs Jones contacted their crime prevention officer who recommended the Lifeline unit with intruder functionality and PIRs. Mr and Mrs Jones each had a MyAmie pendant, enabling them to contact the monitoring centre from anywhere in their home, 24 hours a day, who can then send appropriate help. A bogus caller button was also fitted close to the front door. Mrs Jones can press the button if worried about a visitor to the house, and the monitoring centre can listen in to the conversation and talk directly to the visitor if needed. The involvement of the monitoring centre is often enough to deter bogus callers and all voices are recorded and can be used for evidence if required. The outcome The system has given Mr and Mrs Jones a great sense of reassurance, knowing help is at hand should they ever be unsure of visitors to their home. Mrs Jones said, “ I didn’t want to take any risks. I wanted to be sure that the same frightening burglary wouldn’t happen to us. So now I feel so secure and safe. I can easily feel the buttons and I know which one activates the alarm. I feel so confident and peaceful at night. I often have no idea who is at the front door so the voice contact with the monitoring centre is ideal. ” 8 Solutions - Safety Lifeline Vi and MyAmie CareAssist The Lifeline Vi home unit receives alerts from telecare sensors placed around the home and automatically raises an alarm with a carer or monitoring centre. The MyAmie pendant can be worn on the wrist or around the neck and allows the user to call for help simply by pressing the red button. CareAssist is an extremely easy to use, portable device that provides onsite carers with a means to receive instant alerts from a range of telecare sensors. This means that carers can be quickly made aware of any incidents allowing them to respond, but removes the need for them to continually observe the person they care for. iVi intelligent pendant Property exit sensor The iVi intelligent pendant is a small, lightweight device which allows the wearer to press a help button to generate an alarm call, and will also automatically generate a call for assistance if it detects a fall.* This sensor specifically monitors for people leaving a property at unusual times of day and night. It can also detect if a main exit door has been left open and can be linked to external lighting to provide added protection. Bogus caller/panic button Bed shaker Fitted near the door, the discreet bogus caller button can be used to call for assistance at a 24 hour monitoring centre if a stranger requests entry into the home. Operators can advise the user, and all calls are recorded and can provide evidence admissible in court. The bed shaker generates powerful vibrations to wake the sleeping user. Placed under the pillow and linked to a carer pager it can alert the user to events such as a smoke alarm or bed occupancy sensor being triggered. *Due to the wide variety and type of falls some falls may not be detected. In the event of a fall the service user should always be advised to try and press the help button on the iVi. 9 Smoke detector Natural gas detector/shut off valve Tunstall smoke detectors provide increased reassurance by raising an alarm call at the monitoring centre while also activating a local audible alarm, if they detect smoke. The natural gas detector provides an early warning of dangerous levels of gas. Enuresis sensor Placed between the mattress and sheet, this sensor provides immediate warning on detection of moisture, allowing effective action to be taken. The sensor eliminates the need for carers to make physical checks during the night, promoting dignity and independence. Bed occupancy sensor This specially designed pressure pad fits under the mattress and provides an early warning by alerting that the user has left their bed and not returned within a pre-set time period. The sensor can also be programmed to switch on lights, helping people find their way to and from bed easily. 10 When combined with the shut off valve, this solution automatically cuts off the gas supply to an appliance when a leak is detected. Epilepsy sensors Epilepsy sensors are used to monitor people with epilepsy while they sleep. Patented sensor technology detects a person’s movement in bed and is able to differentiate normal movements from epileptic seizures. DDA flashing beacon The DDA flashing beacon links to a carer pager and flashes to indicate when different types of alarms have been activated. Solutions - Health mymedic and myclinic Telehealth systems (mymedic for single users and myclinic for multiple users, e.g. in residential homes) which enable vital signs and symptoms to be monitored. Readings outside of parameters set for the patient will raise an alert with a clinician, enabling early intervention. Can be particularly helpful for people with disabilities who may not be able to communicate their symptoms. Solutions Activity monitoring Canary Canary is a discreet, easy to install system which discreetly monitors activities of daily living using sensors to monitor movement and temperature. The system can detect, for example, whether someone is in or out of bed at their usual time and kitchen useage. Unusual events raise an immediate alert via text or email, and patterns of behaviour can be viewed using an online portal. Medication dispenser Automatically provides access to medication over a 28 day period, providing audio and visual alerts to the user and/or their carer each time medication should be taken, and raising an alert if the user fails to access their medicines. Solutions Mobile alarm CareClip The CareClip is a wearable, mobile device ensuring the user can easily access help when away from home. Features such as location monitoring, fall detection, boundary alerts and two-way speech ensure formal or informal carers can respond quickly. Location information is updated every three minutes and a true global roaming SIM is included, ensuring accuracy and reliability. Solutions - Environmental Controls Tunstall systems can also be configured to operate with a range of third party devices, such as sensors to control curtains, heating, lighting and windows, access control, aids to support bathing and toileting, cognition and communication aids, medical and therapeutic products and audio visual aids. Photos in this document have been posed by models in some cases and names may have been changed to protect individuals’ privacy. 11 About Tunstall Tunstall Healthcare Group offers a range of Connected Care and Connected Health solutions across each of its main regions - UK, Nordics, Southern Europe, Central Europe, North America and Asia-Pacific. Through the use of smart technology underpinned by high quality, high touch services we support older people and those with long term needs to live as independently, securely, healthily and happily as they are able. As the market leading provider of technology-enabled care, we have been working with health, housing and social care partners for nearly 60 years. By effectively supporting health, independence and wellbeing, our Connected Care and Connected Health solutions improve outcomes and deliver efficiencies when compared to traditional models of hospital or residence-based care. Tunstall Healthcare (UK) Ltd Whitley Lodge Whitley Bridge Yorkshire DN14 0HR t. 01977 661234 e. ENQUIRIES@TUNSTALL.COM w. UK.TUNSTALL.COM 12 @TUNSTALLHEALTH