DISABLED PEOPLE, EVERYDAY LIVES CONTENTS A MESSAGE FROM THE CEO FAMILIES COMMUNITIES SUPPORTS LIVES CONTACT ImagineBetter is a not-for-profit charitable company A MESSAGE FROM THE CEO It is with great pleasure that I am able to introduce you to the work of ImagineBetter. “There will be moments when we simply must move beyond what is to what might be.” Michael J. Kendrick ImagineBetter works with disabled people, their families, service agencies and communities to both ‘imagine better’ and act on ‘better’ in sharing the richness of our community with all people. Our primary endeavour is to challenge how New Zealand society understands the life potential and opportunities of disabled people. ImagineBetter encourages people to imagine and realise a lifestyle of supported independent living within the ordinary world. We do this by means of thought leadership, education, individual service design and mentoring. We believe that we are all citizens with our own resources, abilities and support networks. We encourage people to move from accepting a dependent lifestyle within a closed world of disability. We are not a hands-on service provider. Disabled people and families use our organisation to help imagine and articulate their vision for the future and then go on to enlist help from ourselves or other service organisations to realise this future. ImagineBetter operates four major strategies for change: 1. 2. 3. 4. ImagineBetter – Families ImagineBetter – Communities ImagineBetter – Supports ImagineBetter – Lives This small publication is designed to provide a brief overview of what is available through the ImagineBetter network. Lorna Sullivan CEO ImagineBetter FAMILIES “No one knows a person with a disability better than a loving, supportive family. They have the greatest commitment, staying power and knowledge about that person.” Jill Hole, the Homes West Experience ImagineBetter believes that advancing the capacity for families to have control over their destinies and personal decisions is the key to securing equality of opportunity for young disabled people and launching towards self sufficiency, independence in living and full participation in society. Families engaging with ImagineBetter are supported to develop and attain a positive future for themselves and their disabled family member; to recognise the impact of social isolation and loneliness in people’s lives and to better prepare for when as families they are no longer able to be there. ImagineBetter does not work with families as ‘clients’, rather as active partners in change. Our role is to stand with families to sustain their own sense of resilience, to ensure they are well informed, well networked and have greater confidence, that it is families that have the power and authority to change futures. As professionals we are there to assist, but direction always belongs to the family. “ImagineBetter not only gave us the tool to capture our dreams, but also the road map to get where we wanted to be. It is pivotal, empowering and appreciated beyond words.” COMMUNITIES “We must realise that competent and beloved communities just don’t happen. They are made and sustained by the work of dedicated citizens.” Jimmy Toyama Despite all of the rhetoric, policy and good intent the lives of disabled people continue to be lived very much at the margins of our society. Their lives are typically being lived within the managed spaces of segregated and congregated service environments, while the rest of us live within the shared spaces and abundance of our neighbourhoods and communities. For our communities to be whole the gifts, strengths and capacity of disabled people must be recognised. ImagineBetter works directly with community to support the development of opportunities which create a ‘new conversation’ to emerge. We believe that doing more of the same (no matter how much faster, efficiently or enhanced it is) will not open access to the inner life of community to those who live on the margins. We also believe that our communities are replete with individuals and collectivities who desire to be engaged in a movement for social change but they have never been invited into a new conversation about what that might look like and what their role could be. By supporting neighbourhoods and communities to have the confidence and competence to engage in sustaining relationships with disabled people and their families, a true sense of belonging grows through our shared humanity. “Community is about the experience of belonging. We are in community each time we find a place where we belong.” Peter Block SUPPORTS “There is more to life than services … and our leaders seem to have failed to appreciate that there is an abundance of resources that they don’t control.” Bob Rhodes The lives of disabled people have increasingly become defined and determined by the programmes and services they receive. What would a good life look like to you? What is really important to you? What really matters? These services are generally disability specific, government funded and operate in ways in which people’s lives become determined by what it is the service is able to provide. As such, many disabled people live their lives with very few freely given relationships, little or no influence over where they live or who they live with, in situations where their gifts and capacities are secondary to the stereotypes and assumptions held about them. Imagine services and supports that no longer ask “What services and programmes do you need?”, but rather ask: ImagineBetter works in support of agencies and services: - to enable them to become more skilled in thinking outside of the box and in responding to what people really want and need rather than to a menu of services. -to better recognise the need everybody has for: family, friends, loving and caring relationships respect, contribution and participation in community hope for the future which has purpose, aspiration and ambition a home of their own a sense of safety and security. “It is wisdom that is at the heart of the selection of the values that are most likely to lead to authentic service.” Michael J. Kendrick LIVES “While they were saying among themselves it cannot be done, it was done.” Helen Keller ImagineBetter recognises that: where a person is surrounded by a loving, committed family; where they have found a place in their community where their uniqueness is acknowledged and their contribution and participation accepted; where the supports they receive are offered with dignity, humility and a genuine desire to be of service; then good lives for all people, irrespective of their ability, are possible, attainable and already being lived. ImagineBetter believes that: good lives are possible for all people planning for the future for a person with a disability is a courageous act as it is a key step in letting that person go; letting them grow and enabling them to become the person that is possible for them to become all that they can be the initiative, dedication, creativity, tenacity and commitment of families are the key to the creation of a powerful future for any child, irrespective of ability the wishes, dreams and desires of disabled people will come to fruition when those supporting them are committed to being of service to that potential communities have inherent within them the capacity and competency required to nurture the lives of all of their citizens regardless of ability. “A good life may be a mystery, but it is a delicious mystery. It is not the kind of mystery that can’t be solved, but a mystery that must be approached with the heart and soul, not just the head. It is a mystery best approached with curiosity and openness, not logic and certainty.” Al Etmanski P O Box 13227 Tauranga 3141 New Zealand 0800 787 587 info@imaginebetter.co.nz www.imaginebetter.co.nz