DBC Briefing The PIP 20 Metre Rule “The Personal Independence Payment (PIP) is a benefit that provides a cash contribution towards the extra costs associated with an impairment or health condition. It provides support for those disabled people with the greatest needs in overcoming barriers to live independent lives” The above statement is a definition of Personal Independence Payment (PIP) taken from a DWP fact sheet about the benefit. This briefing will set out a number of arguments, developed and supported by the Disability Benefits Consortium (DBC), that demonstrate how the new ‘20 metre rule’ to qualify for the enhanced rate of the mobility component of the benefit will, in reality, leave many – almost half a million - of those in the greatest need without the financial support they rely on to live their lives. The government is re-consulting on the criteria for the mobility component of the benefit, following intense criticism and a legal challenge about the lack of consultation around the introduction of the 20 metre rule. The consultation1 is a vital opportunity for the government and MPs to properly examine the impact of the policy and assess its validity. What is the Disability Benefits Consortium? The Disability Benefits Consortium (DBC) is a national coalition of over 50 different charities committed to working towards a fair benefits system. Using our combined knowledge, experience and direct contact with millions of disabled individuals and carers, we seek to ensure Government policy reflects and meets the needs of all disabled people. What is the 20 metre rule? The 20 metre rule is the new distance that has been introduced for people to qualify for the enhanced rate of the mobility component of PIP. It is less than the length of two buses, and differs from the distance of 50 metres typically used to assess people for the upper rate of the mobility component of Disability Living Allowance (DLA). The PIP criteria state that only those who, ‘Can stand and then move more than 1 metre but no more than 20 metres, either aided or unaided’ will qualify for the enhanced rate of the mobility component. Individuals must be able to complete the distance safely, to an acceptable standard, repeatedly and in a reasonable time period, but can use aids such as walking sticks, crutches and prostheses. The impact of the policy The enhanced rate of the mobility component of PIP is worth £55.25 a week. Those that no longer qualify (but still receive the standard rate) will lose £33.25 a week or, crucially, access to their Motability vehicle. Government projections show that over 428,000 people will no longer qualify for the enhanced rate of the mobility component of PIP by 20182 The DBC believe that the impact of this policy will include: • Disabled people dropping out of work, education or volunteering activities • Increased poverty and isolation of disabled people, with the associated risk of worsening health • Rising costs elsewhere, such as unemployment benefits, the Access to Work Scheme, social care and NHS 1 See https://www.gov.uk/government/consultations/consultation-on-the-pip-assessment-moving-around-activity P54, The Government’s response to the consultation on the Personal Independence Payment assessment criteria and regulations, December 2012, https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/181181/pipassessment-thresholds-and-consultation-response.pdf. 2 The DBC believe that the use of the 20 metre rule is flawed. Below we will explain in detail our reasoning behind this statement and provide examples of individuals who will be wrongly affected by this policy. Our view It will always be extremely challenging to use a set distance to assess the impact of different individuals’ ability to mobilise. Factors such as where people live have a substantial bearing on the extra costs they face to maintain a reasonable level of independence. However, we recognise that the department must find a workable solution in the context of the current assessment. For this reason, we urge the government to reinstate the use of 50 metres to identify those in the greatest need. While this is not a perfect solution it is based on a degree of evidence to suggest that 50 metres is a realistic measure to gauge whether a person is ‘virtually unable to walk’. The distance of 20 metres is an arbitrary figure that lacks an evidence base and automatically discounts thousands of disabled people who really do need the benefit the most. We are concerned that the distance of 20 metres may have been set to restrict the size of the group deemed to be ‘in greatest need’ and keep costs down as a result. We strongly reject this approach and call on the government to introduce criteria that realistically identify those that fit into this group based on the extra costs they face, not simply the amount of money deemed to be available. 20 metres as a measure of ‘extra cost’ is flawed In evidence we have gathered from the disabled people we represent, many of those that can mobilise for more than 20 metres (but less than 50 metres) face the same ‘extra cost’ as those that can only mobilise for this distance. No longer qualifying for the enhanced rate of the mobility component of PIP will have a devastating impact on their lives. We are particularly concerned about those that live in rural locations with poor access to public transport or community schemes. Quotes from disabled people who are likely to be affected by the 20 metre rule: “In my opinion I can walk 20m with my crutches"but after the 20 metres when things start getting really wobbly/slow/stiff etc etc, I wonder what I am supposed to do then? Getting onto a bus for instance would be VERY difficult (if I lost my beloved Motability car which enables me to take my 4 year old to school and participate in a meaningful existence). The fact remains that I can walk 20 metres (aided). I just wonder what is the use of being able to walk 20 metres? If I can walk only 20 metres does this mean I can leave the house for 10 metres but then have to turn around and walk back into the house? I doubt many people have a bus stop or train station within 20 metres of their house therefore I just wonder where this idea of being able to walk 20 metres constitutes being "mobile" enough to no longer qualify for a mobility benefit?” “I live with Primary Progressive MS and severely restricted mobility in a rural location, miles from shops/hospitals, and rely on my Motability car to live, as well as to 'have a life'. There are no bus routes through our hamlet - nearest bus stop is over a mile away. 20 metres isn't far even in a town. 20 metres in the countryside is meaningless - have 'the powers that be' considered this?” “If I lose this benefit I will be totally housebound. I am not able to walk as far as the nearest bus stop or train stop. I could not afford to use taxis. I have no family or friends who live near enough to chauffeur me around (nor could I expect them to do this). We could not afford to purchase a car, and would not be able to get a loan to buy a car. I could not attend hospital or GP appointments, go to the dentist, the library, the bank, the post office or to any social engagements. My life (and that of my wife's) would grind to a halt, and life would simply not be worth living.” The activities in the PIP assessment are designed as a proxy to identify the barriers that disabled people face, and therefore the level of extra cost they might be met with. To our knowledge, and after significant questioning of the DWP, no evidence was gathered by the department to suggest that 20 metres is a suitable point at which it can be deduced that the extra costs disabled people face start to reduce, or even differ from those who can walk a shorter distance. In addition, no impact assessment was carried out to establish how people currently receiving the higher rate mobility component of DLA, but who may lose out under the new rule, would be affected by this policy. Cost will be pushed elsewhere We have been overwhelmed with the response we have had from disabled people who are fearful about the impact this policy will have on their daily lives. In particular, those that work, and those that are worried about how they will attend doctor or hospital appointments. The mobility needs of these people will not disappear, but are likely to be pushed to other areas of (potentially more expensive) government spending, such as unemployment benefits, the Access to Work Scheme and social care. It will also place significantly increased pressure on unpaid carers. We also believe that there has been a lack of consideration of the impact of this policy on other areas of government spending. A clear example of this are the recent reports that the Department of Transport has had no discussion with the Department of Work and Pensions on the implications of PIP reform on use of the Motability scheme.3 In addition, despite PIP being introduced from April 2013, the DWP has issued no public information or guidance as to how PIP eligibility impacts on help from Access to Work. Quotes from disabled people: “I work for the DWP and rely on my mobility payment through Motability to get to & from work. I still work 34 hrs per week over 4 days. Without this component I will lose my car and rely on Access to work to cover my taxi fares (I should qualify for this).This would mean the DWP paying £400 per month in taxi fares as opposed to approx. £250pm for DLA. The present changes will cost the DWP more money”. “I was awarded the higher rate mobility component of DLA indefinitely in 2007 , I have a Motability car and this has been my life line and allowed me to get out and about and enabled me to continue working part time at the Jobcentreplus contact centre which is 10 miles away from where I live. If I was not awarded the enhanced element of the mobility side of PIP I would lose my Motability car and would be unable to continue working because I would have no transport to get to work as I would not be able to run a car on my part time wage. I want to and need to keep working for as long as possible, I don't want to sit at home staring at 4 walls feeling sorry for myself watching myself gradually get worse. I can walk 20 meters with crutches and I use a wheelchair or my mobility scooter if I need to go for example into town or anywhere were walking is involved. The Jobcentreplus contact centre have been very supportive and are doing everything possible they can to keep me in work, so I don't want to have to tell them I can no longer work due to a decision made by the DWP (my employer) which has meant I am no longer eligible for a Motability car because I can walk 20 meters”. The policy is inconsistent with government guidelines A 50 metre benchmark distance is a well-established and research based measure of significant mobility impairment – notably in relation to other disability benefits including DLA, the blue (disabled) parking badge and in official guidance on creating an accessible built environment, including the siting 3 http://disabilitynewsservice.com/2013/06/minister-defends-lack-of-action-on-motability-pip-concerns/ of disabled parking spaces adjacent to public and commercial buildings. Indeed, in the notes to the second draft of the PIP criteria, dated November 2011, DWP admits on page 61: “50 metres is considered to be the distance that an individual is required to be able to walk in order to achieve a basic level of independence...” The introduction of the 20 metre measure has not been made as a result of any new research, and directly contradicts the previously well-embedded distance of 50 metres. Loss of access to Motability will be devastating The loss of access to the Motability scheme as a result of the 20 metre rule is a particularly terrifying prospect for many disabled people. Those that have contacted us refer to their car as a ‘lifeline’ - the means by which they take part in everyday life. In discussions with Motability we have been told that those who no longer qualify for the scheme will be given the option to purchase their car, but typically these will cost in excess of £8000 - a sum far in excess of the resources many disabled people will have available to them. Losing access to the scheme not only means losing access to a car, but also the added benefits of cheaper insurance and means of looking after the vehicle. Taking on these costs, even with a cheaper vehicle, will be unmanageable for many disabled who are reliant on benefits to cope with the additional costs they face. In addition, the policy does not just apply to those who depend on a car. Those making new claims to PIP who can only walk a very short distance – but even slightly further than 20 metres – will no longer be able to access motorised scooters or electric wheelchairs from Motability either. Many of these people will be confined to their homes. This is directly contrary to the government’s stated intention that PIP exists to help people live ‘independent lives’. Quotes from disabled people: “My Motability vehicle is absolutely essential to my being able to still work as without it I cannot go to meet with my customers in person or even get to a Post Office to send my goods to them. It’s also my only means of getting to the shops for basics like food, soap etc. There is NO public transport available within more than about 1/2 a mile of where I live! Without the Motability vehicle I will be virtually housebound. I cannot affford to buy, maintain, insure etc any vehicle on my own”. “Without the enhanced rate of PIP I would be unable to afford a car and would be confined to the house and totally dependent on friends or family to get me out. My social life would be non-existent and I would need to order an ambulance to take me to see my neurologist. I see him every 4 months. I am depressed enough at times but this would make it much worse. The current uncertainty about PIP is also making me worse”. “I cannot afford to buy an automatic car - they are just so much more expensive. I cannot possibly walk the mile to the bus - what do I do? Stop working? Or work to pay the car loan off?” How you can help Please write to the Secretary of State for Work and Pensions, the Rt Hon Iain Duncan Smith, and the Minister for Disabled people, Esther McVey MP, to express your concern about the 20 metre rule, and urge the government to reinstate the qualifying distance of 50 metres that was used for DLA. For more information If you have any questions please contact DBC Co-Chair Claire Nurden on 02084380753 or at cnurden@mssociety.org.uk, or Georgina Carr, Senior Public Affairs Officer at the MS Society on 02084380750 or at gcarr@mssociety.org.uk .