Connecticut Concussion Tracker (CT)2 October 9, 2014 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut 75 N. Eagleville Road, U-3156 Storrs, CT 06269-3156 860 486 8338 joanne.conover@uconn.edu Steven A. Demurjian, Ph.D., Professor Computer Science & Engineering Department University of Connecticut 371 Fairfield Road, U-4155 Storrs, CT 06269-4155 860 486 3719 steve@engr.uconn.edu Thomas P. Agresta, M.D., M.B.I, Professor Department of Family Medicine – Medical Informatics University of Connecticut Health Center 263 Farmington Avenue Farmington, CT 06030-6029 860 679 3198 agresta@uchc.edu © Copyright 2014, 2015, J. Conover, S. Demurjian, and T. Agresta, University of Connecticut. 1 Objectives of (CT)2 Suite of Applications for Concussion Tracking in support of new CT Law HB5113 Mobile and Web Versions Single system for all CT Schools • Nurses, Trainers, Coaches, Principals, etc. Provide Additional Policy/Regulatory Capability Data Collection: Causes, Symptoms, Followup, Return to Class/Participation Track Students from K to 12 Establish Longitudinal Repository Advanced Reporting Capabilities for both Schools and State 2 Initial Screens * 3 Selecting State/City/Town/Region/District/School 4 List of All Students/User and Summary 5 Remaining Summary Screens 6 Basic Student Info and Cause of Injury 7 Basic Student Info and Cause of Injury * 8 Symptoms within 48 hrs * 9 Following up with Student * 10 Returning to Learn and/or Play 11 Reporting Capabilities Ability to examine data by variety of factors Age Gender Symptoms Duration Sport Football, Soccer, Basketball, Hockey, etc. Days lost Region/School Longitudinal Analysis Tracking trends over time Under Current Development by M. Morton, CSE4701 Intro to Databases, Honors Project 12 Sample Reports 13 Sample Reports 14 Sample Reports 15 Next Steps for (CT)2 Establishing (CT)2 Team Involved UConn/UCHC Personnel Department of Education Representatives Identify Schools to Participate in Early Stages Requirements Gathering for Security Access Survey schools - who enters or accesses data Design security/role based access User Centric-Design and Implementation Session Reports, user interface, content modifications Deploy Test Version by Dec. 1, 2014 to gather input Objectives: Put into Hands of Potential Users Admin, Nurses, Coaches, ADs, etc. Adjust UI and Process 16 Current (CT)2 Team Physiology and Neurobiology Dr. J. Conover/Ms. R. Acabchuk (PhD student) Computer Science & Engineering Dr. S. Demurjian, Ms. X. Shao (PhD student), Joshua Diffenderfer (MS Student), M. Morton (Ugrad) Kinesiology Dr. Lindsay Distefano Nursing and Public Engagement Dr. Carol Polifroni School Nurse Ms. L. Demurjian, RN, MBA, Nurse Medical Doctor & Medical Informatics Dr. Tom Agresta, MD, MBI 17 Interactions with Uconn Athletic Training Identify Collaborators from UConn AT Potential Usage of (CT)2 by UConn AT Taking the App into the Field User Interface and Usability Testing Sharing the App with Members at Schools Nurses, Coaches, Trainers, etc. Suggestions for Changes/Enhancements What are Other Potential Collaborations? 18 Next Steps for (CT)2 Deploy Wider-Scale Pilot Version Develop Pilot rollout and evaluation strategy Pilot Version Very soon Android application Secure Data Exchange and Encryption in Database UI Design, Performance, and Load Testing Wide Range of Schools – Urban, Suburban, Rural, Public, Private, etc. Identify Stakeholders and Obtain Feedback Plan Later Increments Statewide Deployment in Fall 2017 (Very Optimistic) Add iOS version Add Canned and Ad-hoc Reporting Add additional data capture screens to facilitate more robust reports (total participation in each sport, out of school sports participation – other as requested) 19 Connecticut Concussion Tracker Vision 20 Other Relevant Issues for (CT)2 Data Retrieval Security Requirements Role-Based Authentication/Access Control Identity Management Data Storage Requirements 21 Data Retrieval Enabling schools to self-evaluate and identify areas for improvement De-identified incident level data available for canned and ad hoc reports by authorized school users. De-identified aggregate & comparative reports available for canned and ad hoc reports by authorized school & state users. Who has access to what type of reports would be determined in concert with Department of Education during project period 22 Security Requirements for (CT)2 Encryption: All Communication (mobile app or web version) FERPA Compliance: Insure Concussion Records are Available to Parents/Students HIPAA Compliance: Electronic Medical Records to establish a Backend Repository Mobile App Web App https No Cookies Backend Storage No Data left on Phone Encrypted Transmission All HIPAA Fields Encrypted Take Advantage of EMR Secured Report Environment 23 Role-Based Authentication/Access Control Assigning and Maintaining User Privileges: Who will have access to various features such as view data, update/delete record and close incident? Who will create, assign & manage Admin accounts? Who will assign and maintain user roles? Plans for turnover. Generic Security Levels: Security Administrator Simple User Advanced User Identifying Potential Users: Principal, Nurse, Athletic Trainer, Coaches, Administrators, Athletic Director 24 Identity Management Student ID Maintenance Consider requirement of tracking multiple incidents for individual students longitudinally If so, student identification be tracked across schools Long term goals Track diabetes, asthma, allergies, other health issues Integration with student health record for complete healthcare record 25 Data Storage Requirements Review/finalize App specifications, security, system admin, student ID management, data storage Items to be determined Intellectual property: work UConn Tech Trans Potential expansion – other states or CT colleges Server location options: Initial development and staging at UConn Potential hosting of production at UConn (hosting expense for HIPAA compliance, etc.) Transfer production to State servers Support staff Software maintenance Yearly updates/improvements 26