Connecticut Concussion Tracker (CT) 2 October 9, 2014 Joanne Conover, Ph.D., Associate Professor

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Connecticut Concussion Tracker (CT)2
October 9, 2014
Joanne Conover, Ph.D., Associate Professor
Department of Physiology and Neurobiology
University of Connecticut
75 N. Eagleville Road, U-3156
Storrs, CT 06269-3156
860 486 8338
joanne.conover@uconn.edu
Steven A. Demurjian, Ph.D., Professor
Computer Science & Engineering Department
University of Connecticut
371 Fairfield Road, U-4155
Storrs, CT 06269-4155
860 486 3719
steve@engr.uconn.edu
Thomas P. Agresta, M.D., M.B.I, Professor
Department of Family Medicine – Medical Informatics
University of Connecticut Health Center
263 Farmington Avenue
Farmington, CT 06030-6029
860 679 3198
agresta@uchc.edu
© Copyright 2014, 2015, J. Conover, S. Demurjian, and T.
Agresta, University of Connecticut.
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Objectives of (CT)2

Suite of Applications for Concussion Tracking in
support of new CT Law HB5113
 Mobile and Web Versions
 Single system for all CT Schools
• Nurses, Trainers, Coaches, Principals, etc.

Provide Additional Policy/Regulatory Capability
 Data Collection: Causes, Symptoms, Followup, Return to Class/Participation
 Track Students from K to 12
 Establish Longitudinal Repository
 Advanced Reporting Capabilities for both
Schools and State
2
Initial Screens
*
3
Selecting
State/City/Town/Region/District/School
4
List of All Students/User and Summary
5
Remaining Summary Screens
6
Basic Student Info and Cause of Injury
7
Basic Student Info and Cause of Injury
*
8
Symptoms within 48 hrs
*
9
Following up with Student
*
10
Returning to Learn and/or Play
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Reporting Capabilities

Ability to examine data by variety of factors
 Age
 Gender
 Symptoms
 Duration

Sport
 Football, Soccer, Basketball, Hockey, etc.
Days lost
 Region/School
Longitudinal Analysis
 Tracking trends over time
Under Current Development by M. Morton,
CSE4701 Intro to Databases, Honors Project



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Sample Reports
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Sample Reports
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Sample Reports
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Next Steps for (CT)2



Establishing (CT)2 Team
 Involved UConn/UCHC Personnel
 Department of Education Representatives
 Identify Schools to Participate in Early Stages
Requirements Gathering for Security Access
 Survey schools - who enters or accesses data
 Design security/role based access
User Centric-Design and Implementation Session
 Reports, user interface, content modifications
 Deploy Test Version by Dec. 1, 2014 to gather input
 Objectives:
 Put into Hands of Potential Users
 Admin, Nurses, Coaches, ADs, etc.
 Adjust UI and Process
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Current (CT)2 Team






Physiology and Neurobiology
 Dr. J. Conover/Ms. R. Acabchuk (PhD student)
Computer Science & Engineering
 Dr. S. Demurjian, Ms. X. Shao (PhD student), Joshua
Diffenderfer (MS Student), M. Morton (Ugrad)
Kinesiology
 Dr. Lindsay Distefano
Nursing and Public Engagement
 Dr. Carol Polifroni
School Nurse
 Ms. L. Demurjian, RN, MBA, Nurse
Medical Doctor & Medical Informatics
 Dr. Tom Agresta, MD, MBI
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Interactions with Uconn Athletic Training


Identify Collaborators from UConn AT
Potential Usage of (CT)2 by UConn AT
 Taking the App into the Field
 User Interface and Usability Testing
 Sharing the App with Members at Schools
 Nurses, Coaches, Trainers, etc.
Suggestions for Changes/Enhancements
What are Other Potential Collaborations?


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Next Steps for (CT)2


Deploy Wider-Scale Pilot Version
 Develop Pilot rollout and evaluation strategy
 Pilot Version Very soon
 Android application
 Secure Data Exchange and Encryption in Database
 UI Design, Performance, and Load Testing
 Wide Range of Schools – Urban, Suburban, Rural,
Public, Private, etc.
 Identify Stakeholders and Obtain Feedback
Plan Later Increments
 Statewide Deployment in Fall 2017 (Very Optimistic)
 Add iOS version
 Add Canned and Ad-hoc Reporting
 Add additional data capture screens to facilitate more
robust reports (total participation in each sport, out of
school sports participation – other as requested)
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Connecticut Concussion Tracker Vision
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Other Relevant Issues for (CT)2





Data Retrieval
Security Requirements
Role-Based Authentication/Access Control
Identity Management
Data Storage Requirements
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Data Retrieval

Enabling schools to self-evaluate and identify
areas for improvement
 De-identified incident level data available for
canned and ad hoc reports by authorized
school users.
 De-identified aggregate & comparative reports
available for canned and ad hoc reports by
authorized school & state users.
 Who has access to what type of reports would
be determined in concert with Department of
Education during project period
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Security Requirements for (CT)2



Encryption: All
Communication
(mobile app or web
version)
FERPA Compliance:
Insure Concussion
Records are Available
to Parents/Students
HIPAA Compliance:
Electronic Medical
Records to establish a
Backend Repository

Mobile App



Web App



https
No Cookies
Backend Storage



No Data left on
Phone
Encrypted
Transmission
All HIPAA Fields
Encrypted
Take Advantage of
EMR
Secured Report
Environment
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Role-Based Authentication/Access Control



Assigning and Maintaining User Privileges:
 Who will have access to various features such as view
data, update/delete record and close incident?
 Who will create, assign & manage Admin accounts?
 Who will assign and maintain user roles?
 Plans for turnover.
Generic Security Levels:
 Security Administrator
 Simple User
 Advanced User
Identifying Potential Users: Principal, Nurse, Athletic
Trainer, Coaches, Administrators, Athletic Director
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Identity Management


Student ID Maintenance
 Consider requirement of tracking multiple
incidents for individual students longitudinally
 If so, student identification be tracked across
schools
Long term goals
 Track diabetes, asthma, allergies, other health
issues
 Integration with student health record for
complete healthcare record
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Data Storage Requirements


Review/finalize App specifications, security, system
admin, student ID management, data storage
Items to be determined
 Intellectual property: work UConn Tech Trans
 Potential expansion – other states or CT colleges
 Server location options:
 Initial development and staging at UConn
 Potential hosting of production at UConn (hosting expense
for HIPAA compliance, etc.)
 Transfer production to State servers



Support staff
Software maintenance
Yearly updates/improvements
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