RADS ROADS In This Issue “Has it been 15 years already?” Greetings Alumnus look back A Fond Farewell Goodbye, for now Exploring the lives of the Ryerson Alumni of What are Disability Studies students and alumni up to? Reviews Greetings From the RADS Roads is written by students and alumni for students, alumni and the DST community. Director’s Desk Congratulations All DST students and alumni are encouraged to and Awards contribute pieces of writing and resources. Out from Under Together we make this newsletter. Submissions for the newsletter are welcome at any time. Moves to the Please send content to Sandra Phillips at: National Stage s.phillips@sympatico.ca or s.phillips@nhcia.ca. Press from the Content can also be submitted to Kim Collins at: kimberlee.collins@ryerson.ca. partnership agreement Disability Studies in the news Keeping in Touch June 2014 Sandra Phillips and Kim Collins are the editors of RADS Roads 1 Alumnus Look Back To the left is a picture of Paula Murphy. 15 years of Disability Studies at Ryerson? Wow, has it really been that long since I took a huge chance and returned to school after being the in the workforce for a decade? As soon as I saw the flyer for the program I knew that was what I needed to do. I was in the very first class for the program (but certainly not the first to graduate). I still remember so many of my class mates as well as Melanie, Kathryn, Catherine…so many fantastic role models and advocates. I said after taking that very first course DST 501 that anyone getting paid for any type of support for anyone with a disability should HAVE to take it. It literally changed me. 7 years after I started the program, 2 jobs, a marriage, 3 moves and 2 children later, I graduated. It was definitely one of the proudest moments of my life and I am still proud to say I have a degree in Disability Studies from Ryerson University. I am currently the Director of Services for New Visions Toronto and am still passionate about advocacy for people with disabilities. Congrats School of Disability Studies! You have done well! To the left is a picture of Heather Willis "The most important lesson I learned in Disability Studies..." The lesson which I relearn on a daily basis here in my role as Accessibility Coordinator at Ryerson, is about "defining the problem" and how the way you define a problem has a direct impact on how it is addressed. In other words - make sure you are addressing the right problem! 2 Alumnus Look Back To the left is a picture of Sandra Phillips. 15 years my how that time has flown by. I can hardly believe it has been 10 years since graduating. I have some awesome memories of this program, truly life changing. That first summer and witnessing the beginning of Art with Attitude, how transforming that was to watch the validation of such an important aspect of Disability Culture. The opportunity to share ideas, viewpoints and challenges faced by others becoming activists. The wonderful and hilarious experiences of living in ‘residence’ for the two week summer experiences and how that made the working online experiences to come so much more engaging. Listening to David Lepofsky speak about the creation of ODA before it had become real. So many great lectures that made me feel less isolated as I returned to my day to day work. The opportunity to become a part of ‘Out from Under’ and the surreal experience of seeing the installation at the ROM as well as accompanying it to the Para Olympic games in Vancouver. Attending some ground breaking classesHuman Rights and Disability with Catherine Frazee. Spending time with such great mentors- Malcom Jefferies. Being part of the creation of RADS Roads that helps people hopefully stay connected. Not to mention making some great friends and connecting professionally with so many wonderful people who have remained in my circle. To anyone contemplating taking this program I would so highly encourage you to take it and all the fantastic opportunities it will provide. Happy 15th Anniversary to Disability Studies at Ryerson. To the left is a picture of Jenn Patterson It's hard to believe that it has almost been fifteen years since the first DST 501 class in July, 1999. Walking into that classroom, I had no idea how profoundly I would change. I began the program intending to become a teacher but so far I have ended up doing nothing that I set out to do and everything has worked out as it was meant to. 3 The school will be planning some events to celebrate this momentous anniversary. Emails will be sent out when the details are finalized. We look forward to seeing you this summer! As many of you know, I was the school's student engagement coordinator until a few years ago. I left the position to pursue sexual health promotion. It was a very difficult decision and I miss everyone and the work very much. That being said, I am enjoying the challenge of doing disability work outside of the comfort of the program. Certainly, working in public health is a daunting place for someone with a critical disability studies perspective but its really important work. I am creating and delivering sex positive sexual health education with a disability lens and tackling a lot of disability and accessibility issues. My job is a great example of the endless ways a degree in Disability Studies can be used. Just over a year ago, I adopted a beautiful toddler who brings my partner and I so much joy and teaches us a lot. Their life has been shaped by disability issues and my critical disability lens informs how I parent and move through the world. My love for learning and keeping up with Disability Studies is still a big part of my identity. My plans to complete a PhD are on hold for a couple of years to focus on parenting and working in the sexual health field. I am very interested in talking about adoption, disability issues and queer families so please get in touch if that interests you: jpatersontoronto@gmail.com. A Fond Farewell To the left is a picture of Kirsty Liddiard. This summer, the Ryerson School of Disability Studies says farewell to one of its leaders. Dr. Kirsty Liddiard, the much loved Ethel Louise Armstrong Postdoctoral Fellow, will be returning to her native UK to begin a new and exciting chapter in her career. While we are sad to be losing such a passionate advocate, academic and friend, we are fortunate to have had Kirsty’s imprint on our community for the last two and a half years. 4 A Fond Farewell Continued Since arriving in our urban sprawl in early 2012, armed with her PhD from the University of Warwick, Kirsty has become a dedicated member of Toronto’s disability community. Her academic record and innovative research has been a huge asset to the School of Disability Studies, where she has seemingly done it all. She has taught and inspired countless students, contributed innovative research to disability studies literature and represented the school at countless conferences. She even worked on crutches during the 2013 Summer Institute, proving once and for all her commitment to the school, the students and her colleagues. Kirsty’s impact has been just as profound beyond the classroom, and the wider disability community will miss her equally. Barely two months after moving across the Atlantic, Kirsty volunteered to sit on the Board of Directors of the Rose Centre for Young Adults with Disabilities. With no paid staff, the Rose Centre relied on Kirsty to bring her expertise and dedication to what we do. Not only did she deliver beyond expectations, she became an integral reason that the fledgling organization got to the place that it has for the last two years. The Rose Centre will never forget the influence that our resident Britain has had on our organization. The Rose Centre is not the only organization to have benefited from Kirsty’s extracurricular brilliance. Project Revision and its digital storytelling journey has also seen what Kirsty can do. In everything she has done, she has helped make Toronto a more vibrant and disability-aware city. That is a pretty cool thing. We will all miss Kirsty deeply. We will miss her trays of delicious baking. We will miss her innovative and thought-provoking research. We will miss her pushing the envelope in everything she does. Above all, however, we will miss Kirsty, and who she is. Good luck in the next stage of your journey, Dr. Liddiard. You will always have a place in Toronto’s disability heart. By: Tim Rose Friend and Colleague 5 Goodbye, for now To the left is another picture of Kirsty Liddiard. For a petite person, Kirsty leaves pretty big post-doctoral boots to fill. As my colleague Tim notes, Kirsty has amassed an impressive list of academic accomplishments during her 30 months in the School of Disability Studies. I’d like to try to point to some of the more intangible contributions and give you sense of the impression she left on myself and others in the School of Disability Studies’ office. In the post-modern, high theory world that is the Toronto Disability Studies ‘scene’, Kirsty held the experiences, feelings and worlds of her fellow disabled people near to her heart. One of the earliest impressions I have of Kirsty is her insistence in centering the voices of disabled people in the work she did. One of her first projects in the School was to translate her thesis into an accessible document for disabled people whose sexual lives were reflected in its pages. That’s not the usual course of activities for a newly defended PhD. More often, the new grad tries to insert herself into the privileged milieu of senior scholars. By taking a different route, Kirsty ensured her work remain relevant to her disabled comrades. I have a vivid memory of Kirsty at the Summer Institute Awards ceremony introducing herself as a ‘proud disabled woman’. For the new students in our School, and possibly some of our stalwarts, there’s complexity in that simple statement. It places an analysis on the table, it is a claim to a political and social identity, and it challenges the all too enduring misconception that disability is a site of shame. That pride is also infectious. In a School that is continually thrust into serving as evidence of the academy’s moral and social conscience, it somehow refuses to be simply a marker of diversity. It’s a statement that takes up space, creating a little room for the rest of us to make similar claims in solidarity. Another aural image I have is Kirsty’s renditions of Celine Dion (and other pop artists) as she sat behind her big computer and her even bigger desk. Kirsty has demonstrated the most impressive work ethic. She is seemingly tireless. Continued on next page. 12 Goodbye, for now And while I have email evidence documenting her belief that we should all take to ourselves away from work – perhaps even taking the weekends off (!!!), I notice Kirsty seemed to always have a ‘virtual’ presence – responding to late night/early morning messages, posting the latest Guardian clip on Facebook, decrying the latest patronizing and disablist marketing initiative. In fact she seems constantly vigilant for the next disability representation in the cultural realm to be explicated in an article or dissected for its pedagogical possibilities. Her office light at the far end of the Disability Studies office is often on when I come in the morning and burns well into the evening. She’s well rewarded for her diligence, with a long list of articles, media interviews and even films. I would never diminish her labours by suggesting they look effortless – they don’t. She’s a hard worker who enjoys the work. I can also picture Kirsty’s emails just before grades were due, wondering what to do when most of the students did brilliantly. Was it possible to give 11 A’s in a class of 15 students? I had the pleasure of co-teaching with Kirsty on several occasions over the last couple years. Students rarely get to see what goes on behind closed doors (or at home by our computers). I believe they would be gratified to see how thoughtful Kirsty was each time she contemplated the classroom. She thought through issues of access, learning style, academic background, job preparedness and FUN. I would often hear students worry about how serious Kirsty might be – “it’s something about that English accent” was uttered more than a few times by a nervous student. However, Kirsty blow those fears out of the water as soon as she integrated a little Miley Cyrus, Beyonce and even erotica into the class! With a knack for finding free stuff (ebooks, bootleg documentaries come to mind), Kirsty brought ideas and images into the class to which students might not otherwise have exposure. And in front of the class, Kirsty was warm and passionate…and very smart. By the way, Kirsty resolved her grading dilemma by eschewing the normal grade distribution. Of course. Continued on next page 13 The other image I have of Kirsty is in Victoria BC. It was a sunny Friday afternoon, sitting in a cocktail lounge with a cotton candy martini in hand… and Kirsty was regaling us with her thoughts on epistemic violence. Kirsty is a valued colleague, who can make all the hard work seem fun. I’ve appreciated her positive energetic demeanour in the office. Always up for a little chat, Kirsty is quick to engage in scholarly banter. Always humble, she shares her insights, ideas, opinions and even her books readily. Always patient, she has been a generous audience for my endless praise of Canada! My only regret is that we never took her and Luke (her partner) on a School canoe trip to Algonquin. Next time maybe….. In the office we will miss her deplorable taste in candy, her baking, her bouncing up and down in her chair when there was a grievous instance of disability injustice and her songstress solos. Safe travels dear colleague. Good luck in your new post at the University of Sheffield. And keep the spare room ready for your Canadian friends who will be visiting. Below are more pictures of Kirsty Liddiard. 12 What are students and alumni up to? To the left is a picture of Kevin Jackson receiving the Jake Edelson Award in Community Organizing last summer from David Reville. Kevin Jackson, one of the DST 99 students who recently presented his final paper, is currently co-authoring a chapter for a UBC collection of writings entitled Canadian Disability Activism Beyond the Charter: Locating Artistic and Cultural Interventions. The chapter will report the unique history of the Toronto Disability Pride March from its creation in 2011 up until its current development as an inclusive, cross-disability social and cultural movement. Inspired by the events of the Occupy movement, and the marches against cuts to disability services that were happening in the UK, the march strives to address the intersectional nature of disability while reshaping the meaning of what disability rights and advocacy can be in Toronto. In the years since the Occupy movement began we are noticing oppression in the form of cuts by stealth, and a political scene that divides us by our various disabilities. For too long, the rights and oppression of people with disabilities have been discussed behind closed doors, or not at all, but through actions like the Toronto Disability Pride March we find our voice, and make ourselves heard in the chorus of movements. All founding and organizing members are people who claim diverse academic and cultural backgrounds who proudly self-identify as disabled. The focus of this paper will be on the importance of creating a visible cross-disability movement, as well as strategies that the organizers use to make the march happen in light of an almost non-existent budget. The paper concludes with a section on lessons learned and a discussion of future issues and opportunities for the Toronto Disability Pride March and for cross-disability activism in Canada. We look forward to reading the chapter, Kevin. “Cripping” the Comic Con: Take away the suit and what are you? By: Robin Kellner To the left is a picture of presenters at Cripping the Comic Con. The 6-hour drive to Syracuse was well worth the mileage. Held by the Disability Cultural Center at Syracuse University, the symposium discussed representations of disability in the media. I was invited to present my short story “Undone,” that I wrote for an elective called “Writing for Disability Activism.” 13 Behind our name tags were three cards: green, yellow and red. Labeled in black for those who don’t see colour, they represented your level of comfort being approached by someone new. If you did feel overstimulated, the symposium space was equipped with a low-stimulation room for breaks. 13 interpreters ensured accessibility for those who are deaf or hard of hearing. “Inclusion is practice,” are words that are true to Diane Wiener, lifelong activist, professor and director of the Disability Cultural Center at Syracuse University. The symposium launched with a one-woman show by Naomi Grossman who plays ‘Pepper’ in American Horror Story: Asylum. She then opened up about her experience playing a character who has a disability as a non-disabled actor. From comic books to paintings, short stories to movies – all art forms were welcomed. International motivational speaker Becky Curran worked in casting at CBS and she presented on disability in mainstream media. Curran happens to be a little person she shed a light on the impact of media portrayals of dwarfism; “If someone has seen us in a positive light, I’m treated with respect and if someone sees us in a negative light, they’re likely to approach me with fear.” “Cripping” the Comic Con was truly an enriching experience. It taught me the importance of viewing media representations of disability with through a critical lens. As stated by Curran, “If someone has never met a person with a disability, most of their initial reactions are based on what they’ve seen on TV or in movies.” More information about “Cripping” the Comic Con can be found at http://crippingthecon.com/ Sources: Curran, Becky. "The Ultimate "Mainstreaming." Disability and Mainstream Media." "Cripping" the Comic Con: Take Away the Suit and What Are You? Syracuse University, Syracuse, New York. USA. 10 Apr. 2014. Speech. Wiener, Diane. Director of Disability Cultural Center, Syracuse University. Personal interview. 10 Apr. 2014. To read a copy of Robin’s work, Undone please go to the Vision, Passion, Action blog… 12 Reviews To the left is a picture of “Good Kings, Bad Kings” by Susan Nussbaum. I was once told that you can tell the tenor of a book by the first few lines. “My tia Nene said three is the magic number and when three things happen to you are so, so bad and you feel like the whole wide world is just throwing up on your shoes, don’t worry. Your bad luck is about to change” (Nussbaum, 2012). This is the opening of Susan Nussbaum’s award winning debut novel, Good Kings, Bad Kings. The those first lines drew me in and for the next day all I could do was read, cry, rage, laugh and read some more. The story revolves around the lives of seven people; young disabled pre-teens and adults, staff, and recruiters, whose lives are shaped by their involvement or incarnation at the Illinois Learning and Life Skills Center. Nussbaum writes the classic coming of age story for a group of young adults who happen to be disabled and for a variety of reasons end up at this state run nursing home. We would love to feature a review (book, blog, play, movie, art exhibit, etc…) by you. Send your submissions to Kim at kimberlee.collins @ryerson.ca The novel is based research that Nussbaum had been doing while she was working at an Access Centre. In an interview for Bitch Magazine she states that “the whole staff would get frequent emails detailing horrifying incidents that occurred at various nursing homes or other institutions. I started keeping the articles, and after a while I started gathering studies, law journals, newspapers, whatever I could get my hands on. I suppose I knew I'd write a book, or try to, and that it would be a novel.” Good Kings, Bad Kings, is written as a play; you can see in your mind’s eye characters coming to the front of the stage to relate their part of the story. The scenes are so vividly described that you can lose yourself in the novel. The brilliance of the work is that it not only shows the good and the bad, but all of the varying shades of gray in between. While, there are clear heroes and protagonists, these lines blur at points in the novel. It does not focus on pity nor do the main disabled characters require non-disabled people to ‘free’ them, rather it tells the story of resistance, pride and humour. Susan Nussbaum, a disabled activist, and playwright won the 2012 Barbara Kingsolver’s PEN/Bellwether Prize for socially engaged fiction for Good Kings, Bad Kings. She states in Bitch that, “I can't stand the way disabled characters are used in most books, and for that matter in TV and film. We always see the lone disabled character surrounded by non-disabled characters, and there's only one reason there's a disabled character in the story in the first place and that is to have a disability, which serves as The Problem.” Good Kings, Bad Kings turns the idea of ‘disability as the problem’ on its head and creates disabled characters which run the plot rather than fill a stereotypical need. It is an engaging story which I would recommend you read. By Kim Collins 13 From the Director’s Desk To the left is a picture of Kathryn Church. I can hardly grasp the passage of time (naively, I had promised to write regularly ‘from the director’s desk’), the complexity of issues that have presented themselves, and the insistent demand for personal and organizational learning. Thank you for bearing with me and for supporting your faculty, staff and instructors in the many ways that you do. Like all universities, Ryerson is reorganizing rapidly in the squeeze between decreasing government funding for education and the explosive impact of digital technologies on life and learning. It is creating more openness in its (full-time) curricular arrangements and more entrepreneurialism in its financing. It is positioning itself to take advantage of the diversity of its student population and the diverse possibilities of e-Learning as an emergent strategy. Disability Studies is celebrating its 15th year in this volatile context. We are considering new pathways for program delivery – specifically, a two-year full-time option for program completion. But first – in response to university-wide budget cuts -- we need to generate more mass in terms of student admissions and course registrations (fees). So, program students! If you have not registered in a while…..please come back to us. Let us assist you to get going again and complete your degree. And alumni! If someone you know -- perhaps someone you work with -- is a good candidate for admission to the School….please recruit them. The Dean has asked us to increase our yearly admissions from our historical average of 75 to 121. Towards that end, we need your active assistance as most of our students reach us through personal networks and recommendations. 12 Congratulations and Awards We are always interested in profiling alumni. Please let us know about a project that you are working on, an award that you have received or if you have been accepted or completed another degree. Please email rads@ryerson.ca Congratulations to all of the DST 99 students who presented their final projects to each other, faculty and eager DST 88 students. Well done! Below is a picture of the 99 students who presented their work. Congratulations to Nicole Meehan who received the Mentee of the Year award from the Tri-Mentoring program at Ryerson. Congratulations to alumnus Carrie Plum Leo. She was named Instructor of the year for Mohawk Fennell Campus 2013-2014. Congratulations to Kevin Jackson. Kevin received the Dennis Mock Student Leadership Award. This award recognizes students who have made outstanding voluntary contributions to their school or their academic Program or to Ryerson as a whole. Below is a picture of Kevin Jackson receiving his award. Congratulations to Heather Willis, alumnus and Accessibility Coordinator at Ryerson. She recently received the Alan Shepard Equity, Diversity and Inclusion Award for university faculty/staff. To the left is a picture of Heather Willis. 13 Congratulations and Awards Continued Congratulations to all the students who graduated this year and recently had their convocation. We wish you all the best! Below is a picture of most of the graduating class. Congratulations to Neeta Pol who recently completed her Consecutive Bachelor of Education from York University. Congratulations to Nusrat Perveen who will be attending the B.Ed. program at OISE. Congratulations to Kevin Jackson who will be entering the Critical Disability Master’s Program at York University. Congratulations to Deirdre Boyle who will be attending the Masters of Arts, Public Policy and Administration program at Ryerson University. Congratulations to Carolyn Branch-Spadaro who will be attending the Occupational Therapy Master’s program at MacMaster University. Congratulations to Carmela Caputo-Figliomeni who is attending Teachers College at Tyndale University College. And finally, congratulations to all Ryerson faculty, students and research assistants who presented at this year’s Canadian Disability Studies Association conference at Congress! 16 Out from Under Moves to a National Stage To the left is a picture of Catherine Frazee. This was written by her and was read at the signing ceremony between Ryerson and Canadian Human Rights Museum. Three hard-working women whom we have come to know as May, Audrey, and Mathilda. Two pioneers – one woman and one man – at their full powers two decades apart – Mae Brown and Al Simpson. A spirited nine-year-old boy named Jean Paul, and 600 km away, a seven-year-old boy we know as James. A bright–eyed girl named Sheila and a precious baby named Kristen Anne. History is personal. It is personal and full-bodied, even when we don't know it by name. Wary adolescent faces accosted by a camera's ruthless lens. Calloused hands gripping a rusty shovel. Sweaty palms wrapped around a pencil, performing to the strange rhythms of a tester's stopwatch. Heads of all shapes and sizes – bald, bristled, braided, shaggy and cropped – pulled through indifferent sweatshirt collars. Real people live in, through and in ever-expanding circles out from this exhibit. Real people seeking freedom… franchise… dignity… livelihood… place. Those of us who have conspired and collaborated to evoke their histories, have found ourselves awakened to voices and yearnings rooted deeply in the human condition. From our different vantage points as exhibit contributors, designers, curators, promoters and supporters, we have felt our own lives quiver with the recognition of history's sacred trust. Today we honour real people, people whose lives and struggles and everyday indignities are inextricably bound up in our own habits of heart and circumstance. Today we can be assured that these real lives and struggles and everyday indignities will be held in due regard. They will be seen, heard, reckoned with and valued in the clear light of a covenant first authored by another disabled Canadian, John Peters Humphrey – the Universal Declaration of Human Rights. The lives and struggles of disabled Canadians are now firmly rooted in human rights history. This afternoon, in the full resonance of Professor Humphrey’s text, we proceed toward a milestone partnership. In doing so, we commit our very best to the project ahead – our diligence and respect, our passion and fearless conviction. Because, for all of us, it's personal. Catherine Frazee 17 Press Releases from the Partnership Agreement • Listen to CBC Winnipeg’s report on the partnership agreement between the Canadian Museum of Human Rights and the School of Disability Studies • Read Ryerson Today’s coverage of Out From Under moving to the Canadian Human Rights Museum. • Read the Canadian Human Rights Museum’s press release about the partnership agreement • Read about the partnership agreement in Leisure Management. • To learn more about the Canadian Human Rights Museum go to their website. Below is a double picture of Kathryn Church and Melanie Panitch at the ceremony. 16 Type to enter text How to keep in Touch Check out the school’s Facebook group page https://www.facebo ok.com/groups/23 87431727/ Follow the school on Twitter at @DS_Ryerson Follow the school’s blog at http://radssite.wor dpress.com If you would like to submit an entry for the blog, please write 450600 words and send it to kimberlee.collins @ryerson.ca Email us at rads@ryerson.ca 17 Disability Studies in the News Continued • Watch Dr. Winnie Ng discuss her history as an activist. Please note, this video is not yet captioned. • Watch Mia Mingus discussion disability justice at a recent event in Ottawa. Transcription is provided. • Watch AMI’s Blindsighted discuss Out from Under when it was exhibited in London. The video is captioned. • Read about the School’s activity in the Faculty of Community Services newsletter. • Read Dr. Kirsty Liddiard article in Shameless entitled, Storying Disabled Women’s Sexual and Intimate Lives • Check out this article in the New York Times about the growth of Disability Studies. • Read about Melanie Panitch in Ryerson’s Leadership Spotlight. • Mad Matters has been reviewed by the Scandinavian Journal of Disability Research. Read the full review. Read post-Doctoral fellow, Kirsty Liddiard’s discussion • about Pistrious, Patriarchy and Disability in her article, (Re)Producing Pistorious: Patriarchy, Prosecution and Problematics of Disability in the Sociological Imagination • Read about Heather Willis who received the Alan Shepard Equity, Diversity and Inclusion award. • Read Catherine Frazee’s op-ed piece in the Toronto Star, “A respectful postscript to Edward Hung’s end of life letter” • Watch Jess Sachse Ted talk about Disability, Art and the Internet. Please note, the video is not yet captioned. • Watch Kirsty Liddiard discuss intersecting identities at a Ryerson Soup and Substance lunch. Please note, the Ryecast is not yet captioned. • Read Catherine Frazee piece in the Montreal Gazette about Quebec’s Bill 52. • Ryerson University will be hosting the Congress of the Humanities and Social Sciences in 2017. • Watch Dr. Jennifer Poole discuss Madness and Sanism. Please note the video is not captioned. • Read Ryerson Today discuss how Mad People’s History has been adapted for Queen Margaret University. • Read Imprints, the Faculty of Community and Social services magazine and see the large impact that the School of Disability Studies has had. Don’t forget to update your email. Send your current email address to rads@ryerson.ca to stay in touch