ICD Dr. T. Bedirhan Üstün Classifications, Terminologies, Standards. World Health Organization

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ICD

Dr. T. Bedirhan Üstün

Coordinator, Classifications, Terminologies, Standards.

World Health Organization

Background

• WHO +International Standards

ICD

• Classification

– Common language for definitions:

• Applications :

• Mortality: Counting the dead

• Morbidity: Monitoring & Evaluation

• Primary Care: Diagnosis

Management

• Research: Epi, Genetics, Pharma…

1666  2011

ICD Revisions

100000

10000

1000

100

10

1

1853 1893 1900 1909 1920 1929 1938 1948 1955 1968 1975 1979 1993 1993

ICD-10 Medical Devices

associated with adverse incidents in diagnostic and therapeutic use

• Y70 Anaesthesiology devices associated with adverse incidents

• Y71 Cardiovascular devices associated with adverse incidents

• Y72 Otorhinolaryngological devices associated with adverse incidents

• Y73 Gastroenterology and urology devices associated with adverse incidents

• Y74 General hospital and personal-use devices associated with adverse incidents

Y75 Neurological devices associated with adverse incidents

Y76 Obstetric and gynaecological devices associated with adverse incidents

Y77 Ophthalmic devices associated with adverse incidents

Y78 Radiological devices associated with adverse incidents

Y79 Orthopaedic devices associated with adverse incidents

Y80 Physical medicine devices associated with adverse incidents

Y81 General- and plastic-surgery devices associated with adverse incidents

Y82 Other and unspecified medical devices associated with adverse incidents

WHO Family of Classifications

RELATED

Classifications

International Classification of Primary Care (ICPC)

International Classification of External Causes of

Injury (ICECI)

The Anatomical, Therapeutic,

Chemical (ATC) classification system with

Defined Daily Doses (DDD )

ISO 9999 Technical aids for persons with disabilities

– Classification and

Terminology

REFERENCE

Classifications

I nternational

C lassification of

D iseases

I nternational

C lassification of

F unctioning,

Disability & Health

I nternational

C lassification of

H ealth

I nterventions

(under development)

DERIVED

Classifications

International Classification of

Diseases for Oncology , Third

Edition (ICD-O-3)

The ICD-10 Classification of

Mental and Behavioural

Disorders

Application of the International

Classification of Diseases to

Dentistry and Stomatology, Third

Edition

(ICD-DA)

Application of the International

Classification of Diseases to

Neurology

(ICD-10-NA)

ICF, Children & Youth Version

(ICF -CY)

WHO Classifications in HIS

ICD

ICF

ICHI

Classifications

Population Health

• Births

• Deaths

• Diseases

• Disability

• Risk factors

Clinical

• Decision Support

• Integration of care

• Outcome

Administration

• Scheduling

• Resources

• Billing

Reporting

• Cost

• Needs

• Outcome

Placing WHO Classifications in HIS

&

IT

e-Health Record

Systems

Linkages

KRs

Terminologies

ICD

ICF

ICHI

Classifications

Population Health

• Births

• Deaths

• Diseases

• Disability

• Risk factors

Clinical

• Decision Support

• Integration of care

• Outcome

Administration

• Scheduling

• Resources

• Billing

Reporting

• Cost

• Needs

• Outcome

Health Information Systems:

Analog to Digital

How do we optimize our health services

ICD-11 Revision Goals

1.

Evolve a multi-purpose and coherent classification

– Mortality , morbidity , primary care , clinical care, research, public health…

Consistency & interoperability across different uses

2.

Serve as an international and multilingual reference standard for scientific comparability and communication p urposes

3.

Ensure that ICD-11 will function in an electronic health records environment.

Link ICD logically to underpinning terminologies and ontologies (e.g.

SNOMED, GO, …)

• ICD Categories

“defined” by "logical operational rules" on their associations and details

Construction of ICD-

10

:

Revision Process in the 20

th

Century

• 8 Annual Revision Conferences (19 82

- 89 )

• 17 – 58 Countries participated

– 1- 5 person delegations

– mainly Health Statisticians

• Manual curation

– List exchange

– Index was done later

• "

Decibel

" Method of discussion

• Output: Paper Copy

• Work in English only

• Limited testing in the field

Construction of ICD-

11

:

Revision Process in the 21

st

Century

• Internet-based permanent platform

– All year round

– Open to all people in a structured way

– Content experts focus

• Digital curation

– Wiki enabled collaboration

– Ontology based

• Enhanced discussion & peer review

– TAGs serve as the Editorial Group

• Electronic copy  print version

• Work in multiple languages

• Planned field tests

– Based on Use Cases

Definition of Disease

a set of dysfunction(s) in any of the body systems including:

• with a known pattern of signs, symptoms & findings

» symptomatology - manifestations

• probably with an underlying explanatory mechanism

» etiology

• a distinct pattern of development over time

» course and outcome

• a known pattern of response to interventions

» treatment response

• with linkage to underlying genetic factors

» genotypes, phenotypes and endophenotypes

• with linkage to interacting environmental factors

What is

Ontology?

• Ontology (philosophy)

– the Organization of Reality  !!!

• Ontology (computer science)

– the explicit – operational description of the conceptualization of a domain:

• Concepts: entity and quality

(properties and attributes)

• An ontology defines:

– a common vocabulary  a shared understanding/exchange:

• among people

• among software agents

• between people and software

– to reuse data - information

– to introduce standards to allow interoperability

THE CONTENT MODEL

Any Category in ICD is represented by:

TITLE of ENTITY: Name of disease, disorder, or syndrome…

1 . ICD Concept Title

1.1. Fully Specified Name

2. Classification Properties

2.1. Parents

2.2 Type

2.3. Use and Linearization(s)

3. Textual Definition(s)

4. Terms

4.1. Base Index Terms

4.2. Base Inclusion Terms

4.3. Base Exclusion Terms

5. Body Structure Description

5.1. Body System(s)

5.2. Body Part(s) [Anatomical Site(s)]

5.3. Morphological Properties

6. Manifestation Properties

6.1. Signs & Symptoms

6.2. Investigation findings

7. Causal Properties

7.1. Etiology Type

7.2. Causal Properties - Agents

7.3. Causal Properties - Causal Mechanisms

7.4. Genomic Linkages

7.5. Risk Factors

8. Temporal Properties

8.1. Age of Occurrence & Occurrence

Frequency

8.2. Development Course/Stage

9. Severity of Subtypes Properties

10. Functioning Properties

10.1. Impact on Activities and Participation

10.2. Contextual factors

10.3. Body functions

11. Specific Condition Properties

11.1 Biological Sex

11.2. Life-Cycle Properties

12. Treatment Properties

13.

Diagnostic Criteria

i

CAT

• Open and collaborative process

– Users are empowered

– Web based

– Like WIKI – Trip Advisor

• But structured

• Editorial Oversight

iCAT

ICD11 Components

Foundation: ICD categories with

- Definitions, synonyms

- Clinical descriptions

- Diagnostic criteria

- Causal mechanism

- Functional Properties

Find Term

Linearizations

Mortality

Primary Care

Morbidity

SNOMED-CT,

International Classification of Functioning,

Disability and Health (ICF)…

18

Why work together?

– WHO & IHTSDO

– Coverage & Adequacy

– Quality – Reliability - Utility

– MultiLingual Applicability

– Interoperability

– Sustainability

– Member States :

Enable health care delivery and compile health information

SNOMED & WHO Classifications are synergistic and not antagonistic

ICD & WHO FIC

• International Public Good

– Openly Accessible

– Free for WHO Member States

• Available in multiple formats:

– Printed Book editions

– Internet-edition

– Various computerized tools

ICD & WHO FIC

– Simultaneous development in Multiple Languages

– ضارملأل يلودلا فينصتلا

– 國際疾病與相關健康問題統計分類

– International Classification of Diseases

– Classification internationale des maladies

– Международная классификация болезней

– Clasificación internacional de enfermedades

ICD & WHOFIC

• Multiple Settings:

– Primary Care

– Clinical Services

– Research

• Specialty Adaptations:

– Children and Youth

– Oncology

– Mental Health

– Neurology

– Musculoskeletal

– Dermatology

– Dentistry e.g. ICD-10 Diagnostic Guidelines for

Mental Health in Primary Care

Desiderata for a global terminology (1)

1. Comprehensiveness:

– Coverage for all aspects of health care

2. Adequacy:

– Is it fit or purpose – multiple purposes?

– Does it have a good information model and ontological basis?

3. Multilingual applicability

– language independen t formal concept representation

– Representation in multiple languages – more than translation

4. Utility:

– Is it beneficial for:

• Care providers

• Consumers

: decision making, outcome evaluation

: participation – ownership – evaluation – risk reduction

Policy/Decision Makers : informed decision making on costs, benefits, efficiency

5. Reliability:

– does it give the same results in different users

Desiderata for a global terminology (2)

6. Validity:

– Does it indicate the right things – and does the indication make sense

7. Comparability

Does the data in different context have same properties to be compared?

8. Interoperability

– Technical: Can information systems exchange information and use it?

Semantic: Can information systems interpret the data with the same meaning?

9. Quality Assurance

Product: Annotation and Content

Process: Use and Usability

10.Sustainability

Secured maintenance : commitment to stability with earlier versions

– Openness to address emerging technical issues

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