GIRLS IMPACT ALIQUIPPA: A COMMUNITY HEALTH CAPACITY AND NEEDS ASSESSMENT PROPOSAL by Lannea Artrice Adamson BSW, Slippery Rock University, 2006 MSW, University of Pittsburgh, 2007 Submitted to the Graduate Faculty of Behavior and Community Health Sciences Graduate School of Public Health in partial fulfillment of the requirements for the degree of Master of Public Health University of Pittsburgh g 2013 UNIVERSITY OF PITTSBURGH GRADUATE SCHOOL OF PUBLIC HEALTH This essay is submitted by Lannea Artrice Adamson on July 29, 2013 and approved by Essay Advisor: Patricia I. Documét, MD, DrPH ______________________________________ Assistant Professor Department of Behavioral and Community Health Sciences Graduate School of Public Health University of Pittsburgh Essay Reader: Valire Carr-Copeland, MSW, MPH, PhD ______________________________________ Associate Professor School of Social Work and Graduate School of Public Health Director, School of Social Work Ph.D. Program University of Pittsburgh Essay Reader: Mary Hawk, DrPH, LSW ______________________________________ Visiting Assistant Professor Department of Behavioral and Community Health Sciences Associate Director, Institute for Evaluation Science in Community Health University of Pittsburgh ii Copyright © by Lannea Artrice Adamson 2013 iii Patricia I. Documét, MD, DrPH GIRLS IMPACT ALIQUIPPA: A COMMUNITY HEALTH CAPACITY AND NEEDS ASSESSMENT PROPOSAL Lannea Artrice Adamson, MPH University of Pittsburgh, 2013 ABSTRACT Communities with low income families as well as communities of color experience a disproportionate burden of morbidity and mortality. These health inequities are associated with lack of access to community services, inadequate housing and low employment opportunities. The public health significance that these inequities can have on adolescent females is that of higher rates of dropping out of high school, use of drugs and teenage pregnancy. Aliquippa, Pennsylvania is a city that may encompass the above disparities. This master’s essay describes a detailed plan for a community health needs and capacity assessment for the city of Aliquippa to help determine the health issues girls face and the city’s capacity to address their identified health needs. I believe this is the first step in developing interventions and enhancing current programs to address the needs of the adolescent girls in the community. The proposed community-based participatory assessment includes engaging the community through developing an advisory board, collecting existing data, conducting surveys and implementing focus groups. iv TABLE OF CONTENTS 1.0 INTRODUCTION................................................................................................................... 1 2.0 BACKGROUND ..................................................................................................................... 4 2.1 HISTORY OF ALIQUIPPA .................................................................................................. 4 2.2 PUBLIC HEALTH SIGNIFICANCE OF TEEN PREGNANCY ...................................... 8 2.2.1 Consequences of Teenage Pregnancy ........................................................ 10 2.2.2 Risks Factors for Teenage Pregnancy ....................................................... 12 2.2.3 Conceptual Approaches.............................................................................. 14 2.2.4 Preventing Teenage Pregnancy ................................................................. 16 3.0 BACKGROUND ON COMMUNITY HEALTH ASSESSMENTS ................................. 21 3.1 NEEDS ASSESSMENTS...................................................................................................... 21 3.2 CAPACITY ASSESSMENTS .............................................................................................. 22 3.3 FORMATION OF ADVISORY BOARD ........................................................................... 23 4.0 COMMUNITY BASED PARTICIPATORY APPROACHES ........................................ 24 5.0 NEEDS AND CAPACITY ASSESSMENT PROPOSAL FOR ALIQUIPPA ................ 26 5.1 OBJECTIVES AND METHODS ........................................................................................ 26 5.2 COMMUNITY ENGAGEMENT ........................................................................................ 29 5.2.1 Relationship Building ................................................................................. 29 5.2.2 Formation of the Advisory Board ............................................................. 30 v 5.2.3 Windshield Tour ......................................................................................... 31 5.3 SECONDARY DATA COLLECTION ............................................................................... 32 5.4 PRIMARY DATA COLLECTION ..................................................................................... 33 5.4.1 Survey Service Providers ........................................................................... 33 5.4.2 Focus Groups ............................................................................................... 34 5.4.3 Community Surveys.................................................................................... 40 5.4.4 Core Group Discussion ............................................................................... 43 6.0 CHALLENGES OF PROPOSED COMMUNITY ASSESSMENT ...................... 44 7.0 CONCLUSION........................................................................................................... 45 BIBLIOGRAPHY ....................................................................................................................... 46 vi LIST OF TABLES Table 1. Median Household Income ……………………………………………………………7 Table 2. Comparison Data ……………………………………………………………………...7 Table 3. Methods for a proposed community health assessment for Aliquippa …………...28 Table 4. Focus Group Guide for Adult Women ……………………………………………..36 Table 5. Focus Group Guide for Adolescent Females ……………………………………….37 Table 6: Sample Survey for Girls ……………………………………………………………..42 vii LIST OF FIGURES Figure 1. Aliquippa Past and Present .........................................................................................5 viii 1.0 INTRODUCTION Low-income communities and communities of color disproportionately experience the burden of morbidity and mortality.[1] These health inequities are associated with numerous sociocultural, structural and physical environmental determinants of health status, such as poverty, inadequate housing, racism, lack of access to community services, low employment opportunities, air pollution, and exposure to toxic substances.[2] Aliquippa, Pennsylvania is a city that encompasses the above disparities for reasons that I will explain below. Aliquippa is a unique city and as such has unique challenges. However, its citizens have unparalleled pride in their community. It is their relentless pride that is one of the city’s assets and I sense that is why the heart of the city still beats. As I grew up in Aliquippa, it never seemed strange to me that the local playground was called the “dump” or that as I walked home from the bus stop I had to pass drug dealers that were not much older than I was. Although these seemingly negative things were commonplace, it was also comforting to know that everyone knew who I was. If they did not know who I was, they knew my brother, father or grandfather, which meant people rarely bothered me. I lived down the street from grandparents, aunts, great uncles and friends and I was at least the fifth descendant to live in this community. Like so many other residents of Aliquippa, generations of extended families continue to dwell there. One challenge that I observed growing up and that still has my attention as I work with adolescent girls in the community has been the health issue of teenage pregnancy. It is also 1 evident that others in the community are starting to focus attention on teen pregnancy prevention by starting groups for girls in the community such as “A Future Anticipated Cohort” for girls which focuses on girl’s developmental assets and L.A.D.Y (Learning, Achieving, Developing, You!) Rites of Passage Program for girls which focuses on life skills and etiquette training. Because of the emergence of these new programs for girls and my own interest in adolescent female health, I began wondering if teenage pregnancy is more of an issue in Aliquippa than in other cities or if teenage pregnancy is even an issue at all. If it is a prevalent health issue for girls in the city, my next question was, “does the city have the capacity to address this health issue”? Furthermore, I have wondered what other health issues are prevalent with adolescent girls such as whether or not smoking marijuana or dropping out of high school before graduating are more of a problem. As I continued to work with others in the community to support the needs of girls I realized I did not know the needs of this population. A community health needs and capacity assessment can answer some of these lingering questions. The overall objective of this essay is to explain in detail the importance of a community health needs and capacity assessment and why it would be a valuable tool for the city of Aliquippa. The proposed assessment will give details of an effective way to confirm the needs of the adolescent girls in the city and also the city’s capacity to address their identified health needs. This essay will begin with the history of Aliquippa, Pennsylvania. The history will be followed by a literature review of the public health significance of teenage pregnancy. A background on community health assessments with an emphasis on community based participatory approaches will follow and to conclude, a detailed plan of a proposed community health needs and capacity assessment for Aliquippa is presented. The desired result of the 2 proposed assessment is to be able to provide the community of Aliquippa with information on how to increase awareness of the health concerns of the adolescent girls and shed light on the capacities that exist so that a plan can be devised to address these needs. The desired outcome is to provide a plan to obtain a clearer picture of what the girls in the community need. Therefore, a clear vision of the public health initiatives which should exist in the future is focused on the evidence based needs of the girls in the community. The ultimate goal is to improve the health of the adolescent girls in the community of Aliquippa. 3 2.0 BACKGROUND 2.1 HISTORY OF ALIQUIPPA Aliquippa, Pennsylvania is the former home of the largest integrated steel mill in the world, which stretched 7 miles along the Ohio River. Jones & Laughlin (J&L) Steel Company bought the island in 1900. In 1908, businesses and homes were built to accommodate the influx of new immigrant steel workers.[3] The borough was laid out in “plans” to separate people of different racial and ethnic backgrounds. For example, Serbians, Croatians, Slavic, and African Americans were separated to reduce language and social conflict.[3] Presently, people are no longer separated by ethnicity; however different neighborhoods in the community are still called plans. For example, Plan 11 is in the middle of a hill called Monaca Road and Plan 12 is presently the neighborhood near the Aliquippa Junior and Senior High School. In 1910, Aliquippa (what was then called Woodlawn) was considered the “jewel of Pittsburgh-area communities” with its “hundreds of pretty homes, its clean paved streets, its dozen of modern stores, churches, schools, lodges, clubs and ample transportation facilities” according to an article in a Pittsburgh newspaper.[3] The article went on to discuss the school systems as splendidly organized and its opportunities for delightful home and neighborhood life were not equaled anywhere in this end of Pennsylvania.[3] 4 During the middle of World War II, when the demand for steel was the highest, J & L Works employed an estimated 9,000 people and Aliquippa’s population was 27,000.[3] This prosperity continued until 1984, the year I was born. The J&L closed most of the plant and 8,000 workers were laid off. It was the last and greatest big steel plant to fall in Pennsylvania. The once bustling downtown of Aliquippa became a ghost town. In 1987, Aliquippa was finally incorporated as a city but continued to plunge into depression and the federal government declared it a distressed community that same year.[3] Figure 1. Aliquippa Past and Present (The above figure shows downtown Aliquippa in the early 1900’s and currently)[3] In 2011, the population of Aliquippa was estimated to be 9,422.[4] The African American population was 39.8% compared to the African American populations of 3.9% and 2.7% respectively in the neighboring townships of Center and Hopewell.[5] As stated previously, since it is known that there is a disproportionate burden of morbidity and mortality that can exist in communities with low economic and social resources and in communities of color, this fact may leave the estimated 500 teens (age 15-19) vulnerable to the negative impacts of a financially distressed region.[5] 5 Among the negative factors that can impact girls in particular are risky sexual behaviors, dropping out of high school, engagement in criminal activity and teenage pregnancy. In 2010, 3.5% of girls age 15-19 were pregnant in Beaver County[6] compared to 2.7% in Pennsylvania[7] and 3.4% nationally.[8] However, I suspect, because I grew up in the community and because of my present work with girls age 14, that there may be a disparate amount of teenage pregnancy among African American girls in Aliquippa. This has also been brought up as a past concern in meetings with the principal and teachers at Aliquippa High School. Table 1 and Table 2 represent data for Aliquippa and Pennsylvania. Table 1 displays that the median household income in Aliquippa is almost $20,000 less than the entire state’s median household income.[4] Table 2 shows the percentage of African American persons in Aliquippa is far more at 38.6% than in Pennsylvania as a whole at 10.8%.[4] Furthermore, Table 2 also displays that only 13% of persons from Aliquippa have obtained a Bachelor’s Degree compared to 27% from Pennsylvania as a whole and 20% of Aliquippa’s people live below the poverty level compared to 13% of people who live in Pennsylvania.[4] 6 Table 1. Median Household Income $60,000 $50,000 $40,000 $30,000 Aliquippa $20,000 Pennsylvania $10,000 $0 Median Household Income 2007-2011 Table 2. Comparison Data 90% 80% 70% 60% 50% 40% 30% 20% 10% 0% Aliquippa Pennsylvania White Persons Black Persons 7 Bachelor’s Persons Degree or Below Higher Poverty Level 2.2 PUBLIC HEALTH SIGNIFICANCE OF TEEN PREGNANCY Pregnancy among adolescent females is not a new health issue, but it continues to be a significant public health concern.[9-11] Despite substantial declines in recent years, nearly 800,000 adolescents in the United States become pregnant each year, which is unacceptably high.[12, 13] The teenage pregnancy rate in the United States is the second highest among 46 industrialized countries; only Russia has a higher rate.[14] More than 4 in 10 adolescent girls have been pregnant at least once before 20 years of age and 82-90% of them describe their pregnancies as being unintended.[15, 16] After steadily rising in the late 1980s and peaking in 1991, childbearing rates in the United States among teenagers fell steadily throughout the 1990s and early twenty-first century”.[9, 17] By the year 2002, the overall teenage pregnancy rate declined from 111 per 1,000 in 1980 to 83.6 per 1,000 women aged 15–19, whereas the birthrate declined from 53.2 per 1,000 in 1980 to a record low of 41.7 per 1000 women aged 15–19 in 2003. [9] From 2007 to 2011, the birth rate for females aged 15-19 years continued to decline by 25%, from 41.5 to 31.3 births per 1,000, the lowest rate ever recorded for the country. girls age 15-19 in 2010 was 11,959. [7] [18] In Pennsylvania, the number of births to Of those births, 3,500 were born to non-Hispanic Black teens which is a over-representation for this race. The birth rate to non-Hispanic Black girls 1519 was 56.2 per 1,000 compared to 18 per 1,000 for non-Hispanic whites. [7] Despite declines across all ethnic and racial groups, epidemiological data continues to document wide disparities in teenage birth rates by race and ethnicity. [9, 18] Young women from all socio-economic and ethnic backgrounds face unintended pregnancies; however, poor youth and youth of color are more likely to become adolescent parents.[9, 19] Although pregnancy rates among Black teens decreased by 48% between 1990 and 2008, Black and Hispanic women have 8 the highest teen pregnancy rates (117 and 107 per 1,000 women aged 15–19, respectively).[15] The majority of all births to non-Hispanic Black teen girls are to unmarried mothers. For example, in 2010, 98% of births to non- Hispanic Black teen girls age 15-19 were to an unmarried mother.[20] Finally, Black girls are approximately 1.7 times more likely to experience an adolescent pregnancy than their White counterparts.[21] Disparities also exist regarding risky sexual behaviors. In 2011, the rate of high school students who have had sex are highest among non-Hispanic Black students (60%), followed by Hispanic and non-Hispanic White students (49% and 44% respectively). [21, 22] Furthermore, the percentage of non-Hispanic Black students who have ever had sex was significantly higher among students in higher grades, ranging from 48% of 9th grade students to 74% of 12th grade students.[22] Approximately two-fifths (41%) of non-Hispanic Black high school students reported being sexually active —meaning, they had sex in the previous three months.[22] NonHispanic Black male students (21%) are significantly more likely than female students (7%) to report having had sex by age 13. Finally, non-Hispanic Black students (25%) are more likely than their Hispanic (15%) and non-Hispanic White peers (13%) to report that they have had four or more sexual partners.[22] For the past three decades, the prevalence of engaging in sexual behaviors contributing to adolescent pregnancy and Sexually Transmitted Infections (STI’s) has been the highest among Black youth compared with other ethnic groups. [21] Given these statistics, Black teens are the group most vulnerable to the negative consequences of early sexual behavior.[21] 9 2.2.1 Consequences of Teenage Pregnancy There are various consequences of adolescent pregnancies. Among these consequences are those related to the health of the teen mother and child.[9] Pregnant teens younger than 17 years have a higher incidence of medical complications such as anemia, preeclampsia, and premature delivery, although these risks may be greatest for the youngest teenagers.[16, 21] The incidence of having a low birth weight infant (<2500 g) among adolescents is more than double the rate for adults, and the death rate of a newborn baby (within 28 days of birth) is almost three times higher.[16] Young adolescent mothers (14 years and younger) are more likely than other age groups to give birth to underweight infants, and this is more pronounced in Black adolescents.[16] Although it is low, the mortality rate for adolescent mothers is twice as high than for adult pregnant women.[16] Adolescent pregnancy has been associated with other medical problems including poor maternal weight gain, pregnancy-induced hypertension, and STI’s.[16] Biological factors that have been associated consistently with negative pregnancy outcomes are poor nutritional status and low pre-pregnancy weight and height.[16] Adolescents also have high rates of STDs, substance use, and poor nutritional intake, all of which contribute to the risk of delivering their baby preterm.[16] Many social factors have also been associated with poor birth outcomes, including unmarried status, low educational levels, smoking, drug use, inadequate prenatal care, and poverty.[16] Poverty is not only a consequence of teenage pregnancy, but it predisposes teenagers to become pregnant which seems like a never-ending cycle. Women who become mothers in adolescence, along with their children, are far more likely to live in poverty than women who postpone childbearing until their twenties. [7, 10, 21] Furthermore, fifty-six percent of teen births occurred to young women who were poor, which is almost 10 times the rate of higher-income 10 adolescents.[19] This has an affect on their children as well. A child born to an unmarried adolescent mother without a high school diploma is nine times more likely to live in poverty than other children.[10] Since lack of education is linked to poverty, the elevated rate of school dropout among adolescent mothers remains at the forefront of concerns.[10] Across the nation, more than 60% of adolescents who give birth before age 18 drop out of high school.[10] Only about 50% of teen mothers receive a high school diploma by 22 years of age, versus over 90% of women who had not given birth during adolescence.[15, 23] Fewer than 2% of teens who have a baby before age 18 attain a college degree by age 30 compared to teens who do not have a baby.[15] Not completing high school or a GED by the age of 20 is a decisive indicator of future poverty.[10] In addition to lower educational attainment,[9, 24] adolescent childbearing is associated with an array of other critical social concerns such as limited future employment opportunities, welfare dependency, mental and physical health challenges, child health and well-being, child abuse and neglect, separation from the child’s father, repeated pregnancy and criminal activity.[9, 16, 24] These effects trickle down to the children of adolescent mothers. “The children of teenage mothers are more likely to have lower school achievement and drop out of high school, have more health problems, be incarcerated at some time during adolescence, give birth as a teenager, and face unemployment as a young adult.”[23] These effects perpetuate a cycle of poverty and teen pregnancy. One of the most significant consequences of teen childbearing is financial. Teen pregnancy accounts for nearly $11 billion per year in costs to U.S. taxpayers for increased health care and foster care, increased incarceration rates among children of teen parents, and a loss of tax revenue because of lower educational attainment and income among teen mothers.[23, 11 25] Specifically, between 1991 and 2008 there have been approximately 268,930 teen births in Pennsylvania, costing taxpayers a total of $10 billion over that period.[26] Teen childbearing in Pennsylvania costs taxpayers at least $463 million in 2008. Of the total teen childbearing costs in Pennsylvania in 2008, 28% were federal costs and 72% were state and local costs.[26] The Department of Health and Human Services annual budget of approximately $33 million to fund adolescent pregnancy prevention programs, and the presence of programs in 2,200 communities provide evidence of ongoing concern.[10] 2.2.2 Risks Factors for Teenage Pregnancy Given the cost to adolescents and their children, it is crucial to identify life experiences and pathways for girls at increased risk for early sexual activity and adolescent pregnancy.[24] Various studies have attributed many predictors that have an effect on early sexual intercourse and teen pregnancy rates. Among the predictors are early pubertal development, early age at first menarche, a history of sexual abuse, poverty, lack of attentive and nurturing parents, cultural and family patterns of early sexual experience, lack of school or career goals, substance abuse, and poor school performance or dropping out of school.[11, 16] Peer attitudes toward sexual activity and sexually active friends have been associated with the initiation of sexual intercourse as well.[11] There are various other predictors for adolescent pregnancy. Some studies have indicated early dating and having multiple sexual partners was linked to teen pregnancy.[11] Adolescents’ perceptions of their boyfriends’ level of desire for them to conceive may also be an important predictor of pregnancy risk.[12] The concurrent use of alcohol, drugs, and risky sexual behaviors has also been documented.[11, 12] Finally, many studies have identified the absence of the 12 biological father from the home as a major risk factor for both early sexual activity and teenage pregnancy.[24] Family structural effect on teen pregnancy has been the focus of several studies. Families with pregnant and parenting teenagers versus those with never-pregnant teenagers had lower monitoring of their daughter’s activities.[27] Other studies have indicated the importance of communication between parents and children for delaying sexual activity.[27] Being in a singleparent family or family of lower socioeconomic status and having a sister who had a teen pregnancy has also been said to put teen girls at risk.[11] Milne et al. [28] posit that some young women who are restricted in life choices (due to family circumstances, low income levels, low educational levels, for example) may see early parenthood as something to aspire. Literature supports pregnancy and childbirth as strategies used among certain subpopulations to find value and purpose in an otherwise depressing or chaotic environments.[17] A somewhat new factor that researchers are exploring as affecting teen pregnancy is “ambivalence”. Recent research has documented the potential importance of ambivalent attitudes towards pregnancy as predictors of pregnancy in adolescence. [13, 29] Some researchers have suggested that adolescents may not be motivated to avoid pregnancy because they have ambivalent feelings about, or feel positively towards becoming pregnant.[13] The majority of female teens report that they would be very upset (58%) or a little upset (29%) if they got pregnant, while the rest report that they would be a little or very pleased.[15] Although adolescent pregnancies are largely unintended or unplanned, several studies have found that a significant proportion (24%-64%) of adolescents feel some desire or ambivalence about becoming pregnant, suggesting the importance of these feelings in understanding sexual risk behavior.[17] 13 Adolescents who expressed pregnancy desire or ambivalence were likely to be older, have been younger at sexual debut, in shorter term relationships, and have greater perceived stress.[17] 2.2.3 Conceptual Approaches Certain theories and models are consistent with the above research because they support co-occurring behaviors and the affects life history has on behavior. The Problem Behavior Theory posits that a syndrome of health-compromising and socially non-normative behaviors cooccur among some adolescents.[12] “Behaviors such as substance abuse, delinquency, and risky sexual behavior have often characterized application of this theory.”[12] Life Course Adversity Models of early sexual activity and teenage pregnancy posits that a life history of familial and ecological stress—poverty, exposure to violence, inadequate parental guidance and supervision, lack of educational and career opportunities—provokes earlier onset of sexual activity and reproduction.[24] The Theory of Reasoned Action, a social cognition model that provides a framework for understanding an individual's voluntary behavior, supports the idea that an adolescent engagement in consensual sexual behavior is, therefore, predicted by her intention to engage in early sexual behavior.[21] An extensive review of programs to reduce teen pregnancy found that a teen's beliefs about sex, and their values, attitudes, and intentions were the most important factors related to sexual behavior.[21] Positive or permissive attitudes toward sex have been directly linked to early sexual behavior with positive attitudes viewed as risk factors.[21] Intervention efforts should target young women who desire or are ambivalent toward pregnancy, such as those involved in new romantic relationships, and promote positive coping skills to help reduce rates of adolescent pregnancy.28 Researchers go so far as to suggest that an 14 intervention designed to delay or prevent early sexual behavior should possibly begin by sixth grade or age 10–11 years among African American girls.[21] Given the growing salience of pregnancy desire in predicting risk, having an understanding of its correlates is important to effectively target intervention efforts.[17] There has been a previous focus on risk-taking behaviors that have often resulted in a primary emphasis on measuring and preventing problem behaviors rather than on developing and strengthening young people's assets.[9] Factors that are related to avoidance of early pregnancy were older age at menarche, living with both parents in a stable family environment, regular attendance at places of worship, higher family income, better problem-solving skills, more educational aspirations, having an older sibling in the home and beginning to date at an older age.[11, 16] Also, adolescents are less likely to engage in risk-taking behaviors if they have a sense of physical, emotional, and economic security; are able to make a contribution to the community; have input into decision making; and have opportunities to participate in engaging and challenging activities that build skills and competencies. [9, 10, 19] Recently, parental supervision, setting expectations, and parent/child “connectedness” have been recognized as clearly associated with decreasing risky sexual behavior and other risky behaviors among adolescents.[16] Studies point to the significant role played by home, school and after-school environments on adolescents' health-related decisions.[9] Thus, a key ingredient in reducing adolescent pregnancy is providing youth with a supportive environment and a positive sense of the future.[9] Therefore, even though the Theory of Reasoned Action provides support for individual’s beliefs and attitudes towards sex in playing a significant role in sexual behavior this 15 theory is limited because it does not take into account the role one’s social surroundings have on such behaviors. 2.2.4 Preventing Teenage Pregnancy Government has influenced prevention efforts to reduce teenage pregnancy by implementing policies that affect this population directly and indirectly.[9] Policy decisions have had far-reaching consequences by simply increasing or reducing the resources available to support programs and services.[9] Such decisions are laws and appropriations regarding the availability of birth control and family planning services; policies on sex education in public schools and government-funded media campaigns; programs to improve parent-child communication; policies related to the availability of emergency contraception; laws that restrict access to public funding of contraception; and the availability of abortion.[9] These efforts have been effective in lowering teen pregnancy rates; however more specific prevention efforts need to be geared toward minority populations. While adolescent pregnancy prevention has emerged as a major health and social policy issues, the difference in views about the root causes contributing to the high incidence of adolescent pregnancy, as well as the conflicting social, religious, and ideological positions on what to do about it, have resulted in an unwillingness to acknowledge that different segments of the adolescent population most likely require different policy responses, rather than attempting a one-size-fits-all approach.[9] Therefore, the challenge remains to consider a number of policy options that respond not only to observable behaviors, such as adolescent childbearing, but also to their underlying antecedents.[9] So, in order to effectively address teen pregnancy both 16 policymakers and others stakeholders need to recognize that the behavior of youth must be altered, in concert with changing the attitudes and behaviors of peers and adults with whom they have relationships.[9] Furthermore, a teen’s social and financial situation must also be taken into account. There are specific policies that have been put into place recently that have had a positive effect on teenage pregnancy. In December 2009, Congress replaced the strict Community-Based Abstinence Education Program with a new $114.5 million teen pregnancy prevention program to support evidence-based interventions. Less than a year later, in March 2010, Congress created, through health care reform, a five-year Personal Responsibility Education Program (PREP).[30] The purpose of PREP is to educate adolescents on both abstinence and contraception and to prepare them for adulthood by teaching them such subjects as healthy relationships, financial literacy, parent-child communication and decision-making.[30] Also, through a provision in the health care reform legislation, Congress renewed the Title V abstinence-only program for five years.[30] This funding stream makes available $50 million annually for grants to states to promote sexual abstinence outside of marriage without any other option for contraception.[30] While a growing body of research clearly documents that teaching comprehensive education pertaining to abstinence and contraceptive protection will not hasten the sexual debut or increase the frequency or number of sexual partners, opponents continue to argue that teaching abstinence-only is the sole means of reliably restricting young people from sexual activity.[9] As of 2006, a number of reviews of abstinence programs found no scientific evidence regarding its efficacy in delaying the initiation of sexual intercourse.[9, 30] Moreover, research shows that abstinence-only interventions may in fact deter sexually active teens from using contraception which increases their risk of unintended pregnancy and STIs.[10, 30]Therefore, it is 17 suggested that successful sexuality education programs use a variety of teaching methods, personalize the information about the risks of and avoidance of unprotected intercourse, and provide opportunities to practice communication, negotiation, and refusal skills.[9] It is not only up to educators and health professionals to have an impact on the knowledge and views of teens regarding sexual activity and pregnancy. Parents and boyfriends play an influential role in prevention of teen pregnancy as well. Crosby et al.[[12] state that adolescent female’s perceptions of their partners’ desire for pregnancy may be an important point at which to intervene. The authors also suggest that a component of behavioral intervention programs be to recognize and challenge female adolescent’s perceptions of their boyfriends’ desire for pregnancy and provide females with the skills and resources required to effectively prevent pregnancy despite potential lack of support or cooperation from their partner.[12] Furthermore, parent-adolescent communication about sexual risks, maternal disapproval and the quality of the relationship between the parent and adolescent can have an impact on the attitudes of adolescents about sexual risk behavior and getting pregnant.[13, 31] Therefore, pregnancy prevention programs may need to extend their efforts to the parents and families of teen mothers to help build their problem-solving and communication skills.[27] Problem-solving and communication skills are needed in negotiating the use of contraception. The majority of the decline in teen pregnancy rates in the United States (86%) is due to teens’ improved contraceptive use; the rest is due to increased proportions of teens choosing to delay sexual activity.[11, 15, 25, 30] In 2011, 65% of sexually active non-Hispanic black students reported using a condom the last time they had sex, and 10% of sexually active nonHispanic black students reported using birth control pills.[22] A woman who is sexually active and not using contraception has an 85% chance of becoming pregnant within a year.[15] Because 18 there is a high percentage of African American teens not using contraception, prevention efforts need to assist in improving these rates. Finally, social scientists have begun to examine the relationship between religious commitment and adolescents’ views and behaviors regarding premarital intercourse or premarital childbirth.[32] It has been shown that one of the most pervasive influences among AfricanAmericans is religion.[33] African-Americans are one of the most religious population subgroups in the industrialized world.[33] It has also been suggested that this high level of religious involvement is beneficial in that it may modify the negative consequences of stress and promote psychological well-being. Therefore, it might be advantageous to encourage religious involvement in pregnancy prevention programs regarding this population rather than discouraging it.[32] There are many influences and factors that affect pregnancy rates among African American adolescents. Ongoing efforts to understand and target interventions to decrease disparities in teen pregnancy are necessary.[34] The Social Ecological Model provides a useful framework in order to understand the effects of multiple levels of influence such as individual, dyad, family, peer/community, media, policy and other social systems on the behavior of adolescents.[9, 35] Rather than looking to correct deficiencies in adolescents themselves, this model turns attention to creating healthy and supportive environments.[9] Such strategies to create these environments could be individual health education, counseling, family education, initiatives to strengthen educational and occupational opportunities, social marketing to foster health peer and societal norms and policies and programs to address socioeconomic, racial and ethnic health disparities.[28, 35] Programs should also include abstinence promotion and contraception information, contraceptive availability, sexuality education, school-completion 19 strategies, and job training.[16] Programs are needed that pay particular attention to adolescents who are at highest risk of becoming pregnant and innovative programs that include males.[16] Parents, schools, religious institutions, physicians, social and government agencies, and adolescents all have important roles in successful prevention programs.[16] 20 3.0 BACKGROUND ON COMMUNITY HEALTH ASSESSMENTS Many health promotion programs fail to reach their goals because they are built upon invalid assumptions about what people need, want and will do about it.[36] Therefore, in order to develop, implement, and evaluate health education strategies for health promotional purposes, needs and capacity assessments have to be a part of the process early on.[36] I will define needs and capacity assessments in detail and describe a community based participatory approach to assessments and why it is imperative that such assessments are done in the community of Aliquippa in order to implement effective health programs for African American girls. 3.1 NEEDS ASSESSMENTS “A need is the difference between the present situation and a more desirable one.”[36] A needs assessment is a planned process that identifies the needs of an individual or a group. Existing data is collected and people are equally important sources of information. Individuals in the community draw upon their experiences, observations, ideas, opinions, and feelings to guide them toward conclusions about their needs. Needs assessments are conducted to provide a starting point before program development is initiated. Instead of basing the development of a proposed program on the perceptions of 21 outsider’s research of the community, a participatory assessment gets the target population involved in purposeful activities to be a part of the process. [37] The goals of a community assessment are to: (1) examine data from existing sources; (2) gain clarity on the problem and study it in greater detail; (3) identify the structural, social, cultural, and other resources that can be utilized; and (4) identify a direction for action and expand partners and stakeholders who can help address the problem.[38] 3.2 CAPACITY ASSESSMENTS Capacity on the other hand, refers to both individual and collective resources that can be brought to bear on health enhancement. It can provide certain protective influences that affect whether people engage in certain risk-related behaviors.[36] At the group level, capacity can be considered as unique histories, cultures, structures, personalities, politics, and systems that come together to enhance health.[36] A capacity assessment is a measure of actual or potential individual, group, and community resources that can be utilized for health maintenance and improvement.[36] Capacity assessments are conducted to provide an opportunity to engage multiple stakeholders such as community organizations, churches and others in a review of actual and potential resources that can influence current and future partnership efforts.[36] It is informs what resources can be used to address the problems that exist. Together, needs and capacity assessments go hand in hand in the program planning process.[37] 22 3.3 FORMATION OF ADVISORY BOARD There are two types of groups involved in community assessments. One group is comprised of professionals that are directly involved in the planning, coordinating or facilitating of the assessments. They bring to the process health-related expertise, and often previous experience in community assessments. The second group consists of the target audience (and those that support them), which contributes in identifying a range of needs, wants, interests, and capacities. The latter should be engaged from the outset so that their contributions can be made during the planning, implementations, and evaluation phases, as appropriate.[36] The two groups made up of both the practitioners and stakeholders (i.e. those involved in and affected by the issues being addressed) make up the planning and advisory board. This committee can help to plan and conduct the assessments.[36] The committee can determine which kinds of needs and resources to consider, from whom to gather information, and which strategies to use. They can also assist with data collection and analysis. They will ensure that the program is based on culturally appropriate needs and the available and potential resources of the intended participants.[36] Additional insights can be gained from contact with key informants who are able to express their perceptions of the needs of others. These individuals can include community leaders, health and human service professionals, leaders of religious organizations, public officials, educators and the like. Many times these key informants help to frame key areas of needs which are then followed up by more definitive needs assessment strategies.[36] There should be consensus among the stakeholder group and the advisory group is committed to this shared goal. 23 4.0 COMMUNITY BASED PARTICIPATORY APPROACHES An essential part of community-based assessment activity is to work in partnership with the community, rather than viewing it as a setting in which professionals conduct investigations known only to them.[36] This awareness by health and human service professionals and community members has led to the emergence of community-based participatory approaches where in community members become involved in the essential phases of project planning, implementation, and evaluation. Community Based Participatory Research (CBPR) in public health is a partnership approach to research that equally involves, for example, community members, organizational representatives, and researchers in all aspects of the research process. All partners contribute their expertise and share decision making and ownership.[1] The principles of CBPR can also apply to evaluations or assessments. Even though there is not one “best” set of principles for CBPR, there are a set of principles that are suggested as a goal to strive for: 1.) CBPR acknowledges community as a unit of identity (for example, social networks or geographical neighborhood) 2.) CBPR builds on the strengths and resources that are within the community 3.) CBPR shares decision-making and control regarding collection, interpretation and dissemination of data while developing relationships based on trust and mutual respect 24 4.) CBPR fosters co-learning and capacity building among all partners by acknowledging that everyone brings diverse skills, expertise and experiences 5.) CBPR integrates and achieves a balance between both science and knowledge to help the community 6.) CBPR focuses on the local significance of public health problems and on ecological perspectives that attend to the multiple determinants of health 7.) It involves developing systems using a cyclical and iterative process 8.) CBPR disseminates results to all partners and involves them in the wider circulation of results in ways that are understandable, respectful and useful 9.) CBPR involves a long-term process and commitment to sustainability.[1] Participatory Community Assessments (PCA) are a collective approach to assessing how a community is defined and organized and assessing who is best to discuss a joint effort with. Also, PCA assesses what issues and needs exist from a community perspective and what structural and other factors explain them. Furthermore, it assesses what resources and assets are available that residents could mobilize to resolve a community problem and what changes might take place that could address existing disparities in new and transformative ways.[38] A good PCA involves a partnership between community members (most often a coalition or advisory board) and academically trained researchers to accomplish a shared practical goal – the collection of information that leads to community improvement and transformation. [37] 25 5.0 NEEDS AND CAPACITY ASSESSMENT PROPOSAL FOR ALIQUIPPA 5.1 OBJECTIVES AND METHODS The objective of this proposed assessment is to provide the community of Aliquippa with a plan to identify the needs of the African American, adolescent girls in Aliquippa and also develop the community’s capacities and abilities to effectively address these health needs. More specifically, the proposed assessment will focus on answering the question of whether or not teenage pregnancy is a health issue and will serve to identify other issues that may be problematic regarding this population. There are many interventions already in place and opinions and ideas circulating about the best way to improve the health of young women; but how many of these ideas will actually work in the city of Aliquippa? It should not be assumed that just because an intervention has worked in a similar community (even in Pennsylvania or the surrounding counties) that these same interventions will work for the adolescent girls in Aliquippa. Aliquippa is a unique city and as such the people have unique skills, challenges and issues. Engaging the community and carrying out an assessment will foster an environment where members of the community can get involved in the process of making things better for young women in their community. A thorough health needs and capacity assessment can prevent lack of awareness of the health issues most pressing in the lives of these girls and subsequently 26 will provide a place to start when developing interventions. The individuals who live in Aliquippa can become truly empowered if they have the knowledge required to assess their situation.[39] Not only that, but the assessment can foster ownership of the results and lead to action. Because I would like to engage a broad spectrum of people in the community for the assessment, I believe that it is appropriate to use an approach called Locality Development. This approach is characterized by community participation, increased awareness, community capacity building, problem-solving and empowerment.[40] As opposed to social action and social planning approaches, Locality Development involves a broad cross section of people in determining and solving their own problems and seeks to build the communities capacities to make collaborative and informed decisions.[40] Leadership is drawn from within and direction and control are in the hands of local people.[41] The proposed assessment will be implemented in several phases. Table 3. displays the proposed methods that can be used in each phase and what specific information/advantage each method will provide. The below is a plan, but it may be modified with community input. These methods will be described in detail. 27 Table 3. Methods for a proposed community health assessment for Aliquippa Phase II Phase I Methods Relationship Building To engage the community and elicit their help with the assessment Advisory Board Formation To collaborate with members of the community so that the assessment is a joint effort Windshield Tour To experience the community on the ground level, cement relationships and draft a list of resources available Secondary Data Collection To gather demographical and descriptive data on the city and its people Survey Service Providers Phase III Objectives To gauge the city’s current capacity to address the health issues of girls in the community which helps to compile the list of resources. To obtain information on what the service providers deem as important issues to address with adolescent girls Focus Groups To elicit opinions and suggestions from women in the community regarding their main concerns for girls in Aliquippa Survey Girls To collect information on the health behaviors of girls in the community from their point of view. 28 5.2 COMMUNITY ENGAGEMENT 5.2.1 Relationship Building Engaging the community will give me a chance to solidify existing and new relationships with stakeholders in the community who have an interest in the health and well-being of girls. By building upon these relationships, developing an advisory board and getting to know the community on the ground level through windshield tours it will allow me to lay the groundwork to collaborate with the community in this endeavor. This is an important phase because without community involvement the assessment may not be accurate or successful. Because I was raised in Aliquippa and still work in the city I will have an advantage over someone who may have an initial barrier in building relationships if they are an “outsider” to the community. It will not be difficult for me to build relationships in the community because I can build off of existing relationships that have already been developed over years of living and working there. However, this can also be a limitation because even though I can quickly establish rapport, they might want to please me and report false information. People that I will reach out to in the community are: the mayor of Aliquippa; directors of local non-profit organizations such as the Council of Young Men and Fathers and Aliquippa Impact, Inc.; directors of community centers such as the Tyler Community Youth Center and Linmar Community Center; church leaders from local churches such as Triedstone Baptist Church, Sound the Alarm Ministries and Crestmont Alliance Church; the principal, vice principal and teachers at the Aliquippa Junior and Senior High School; and other family members and friends. I will also attend community meetings that already occur regularly at the B. F. Jones Library and Uncommon Grounds Cafe (especially those that are focused on 29 adolescents). Finally, and most importantly I will reach out to African American girls in the community since they are the focus of the assessment. 5.2.2 Formation of the Advisory Board These new and existing relationships that will be developed lay the ground work to form an advisory board. This core group composed of people and girls from the community will help me in facilitating the assessment process. This core group’s role is to help plan, coordinate and evaluate responsibilities throughout the whole process of the assessment.[40] This group will help me keep the needs assessment on task. The goal is to empower community members, leaders and stakeholders to assist me in developing and implementing the assessment. However, I will be doing the majority of the work. Along with the above, my role is to introduce the assessment, train and provide updates to the broader community by sending emails and letters to organizations, churches and leaders to introduce the advisory board, the reason for our presence, and explain the assessment purpose in order to prime the community for future participation. The advisory board will be made up of approximately 7-12 members and leaders from the community. The goal is for the members of the advisory board to be comprised of the new and existing relationships that I have already developed in the community. It is desirable to have a diverse group of people e.g. a pastor, a teacher, a business owner, an organization leader, a parent and other community members, so that different experiences and capacities of the individuals can be brought to the table. I will seek members that are adolescent girls or that have shown interest in adolescent girls either by profession or volunteerism so that hopefully they are more likely to join the advisory board and stay engaged. 30 The board will meet once a month in a community setting such as the Linmar Community Center or Uncommon Grounds Cafe so that everyone is on the same page and so that the assessment stays on track. Everyone will have decision making power and we will use a majority vote to make decisions. A convenient time and day will be selected to meet to accommodate everyone’s schedule and the meetings will last approximately one hour and a half. A challenge that may arise while working with the advisory board is to maintain interest and attendance among the members. Also, since the members will have different opinions and agendas it may be challenging to make sure that there are no arguments or fights. Since the advisory board’s role in the assessment is extensive, it is important for me to find ways in which to empower and show appreciation for all of their work either by compensating them and/or presenting them with a certificate of recognition.[42] 5.2.3 Windshield Tour The next phase will be to get to know the community on the ground level. Even though I was born and raised in Aliquippa, that does not mean I know everything about the city. I will plan to engage in windshield/walking tours to gain an impression of daily community life and a feel for Aliquippa. This is something that the advisory board and other community partners can do with me. They can also be a valuable resource because they live in the city and can give me insight and information on the composition of different neighborhoods. Furthermore, I can learn a great amount of valuable information from getting out of my car and walking and noticing how many dilapidated buildings there are, how many places are available for kids to go, how many businesses are running, whether there are sidewalks to walk on and whether people drive, ride 31 the bus or catch “jitneys” (informal taxis). Also, this will give me a chance to make a list of the assets that I see in the community such as the number of churches, community centers, and businesses that are supporting the community as a whole. While I am walking around I can also get a chance to talk to local people and get their opinions about their community. I will also concentrate on getting the opinions of teenagers in the community. I will write a short internal report for the advisory board about the information obtained to elicit further feedback and to keep them informed.[42] 5.3 SECONDARY DATA COLLECTION The following phase will be for me as the primary researcher to collect secondary quantitative data regarding adolescent girls in Aliquippa. The racial makeup and socioeconomic status of Aliquippa is quite different from the surrounding communities. Therefore, information will be collected for the county, but as much as possible information will be collected for solely Aliquippa. Demographic factors such as race, socioeconomic status, average household size and income, and the like will help me anticipate the issues the girls in the community may face. The information collected such as the local health indicators regarding adolescent girls will be compared to state and national statistics as well as data from local counties to compare and get a clear picture of the community. Data will be collected from the following sources: Pennsylvania Department of Health: This source will provide me with data regarding state and county health statistics such as birth and death records, incidence of teen pregnancy and burden of specific diseases. 32 Census Bureau: This source will provide rates regarding population, education, income, etc. on the state of Pennsylvania, Beaver County and specifically, Aliquippa. Pennsylvania Department of Health – Beaver County Office: This source will add to the health information specific to Beaver County and the city of Aliquippa such as immunization records and birth and death certificates. Aliquippa High School: The school can provide information regarding number of pregnancies, school attendance, graduation rates, and number of suspensions for fighting and other bad behavior. Centers for Disease Control and Prevention (CDC): I can obtain a plethora of facts and information regarding adolescent health and other relevant public health data for the U.S. from the CDC website. Also, I can use the information gathered to compare and put into context the information obtained from Aliquippa. 5.4 PRIMARY DATA COLLECTION The next phase is to collect primary data. The goal will be to collect data from people in the community through focus groups, questionnaires and surveys. 5.4.1 Survey Service Providers I first will survey individuals and organizations that are already providing services to girls age 13-18 in the community. The services that these organizations provide can be specific 33 to girls and that apply to their age group in general. A list of individuals to contact will be gathered while engaging the community, from people I already know in the community and through referrals from the advisory group. The objective in surveying them first will be to identify services that each individual or organization provides in order to review the community’s current capacities regarding this population. By gathering this information, I can then complete the list of existing available resources that these individuals or organizations provide. Also, I will look on the city’s website and the community boards in the B. F. Jones Library and local coffee shops such as Uncommon Grounds Café and Mac’s Donuts. To survey the individuals, I will send electronic surveys through the internet since most people and organizations have email. The pros in using the internet is that it requires less time and resources, however, the con is that it may result in a lower response rate and it also can not reach those who do not use social media.[43] To alleviate this, I will suggest sending weekly reminders for the duration of a month to remind the individuals to complete the survey. Examples of questions I will put in the survey are, “What specific services do you provide to girls age 13 to 18 in Aliquippa?” or “How many girls do you provide services to on average each week?” Furthermore, I will ask questions in reference to what I have researched in the literature. 5.4.2 Focus Groups After gaining a grasp on the capacities that the above individuals and organizations bring to bear I will conduct focus groups with the help of the advisory board. The objectives of the focus groups are to elicit the opinions and suggestions of the women in the community regarding adolescent girls and specifically to learn their main health concerns particularly regarding teenage pregnancy. I want to know if they feel the current services that are in the community are 34 effective, their feelings about the neighborhood as a whole and the health behaviors that put them at risk. I also want to know if they think teen pregnancy is an issue in their community. Furthermore, I want to find out if what the community deems as relevant health issues lines up with what the data obtained from secondary data collection displays. I am solely focusing on women because I believe that they will have more opinions to bring to bear because they have experienced it themselves. The first step before conducting focus groups is to define the population which will help determine the questions I ask. The Life Course Adversity model will also inform how and what questions are asked. Second, the advisory board and I will develop an interview guide.[36] The focus group guides for each group will be very similar; however the wording will be different to take into account participants for the separate groups. Table 4 and Table 5 display examples of appropriate focus group guides for adult women and young women respectively. We will recruit participants through word of mouth, emails to organizations and leaders, and flyers in community settings and schools. The flyers will state the date and time of the focus groups and why they are being conducted. 35 Table 4: Focus group guide draft for the adult women focus group Adult Women Focus Group Guide Draft Introduction: Introduce moderator, co-facilitator, and anyone present from the advisory board. Then everyone else can introduce themselves/the aliases they have chosen. Establish rules, location of bathroom, etc. Purpose: The purpose is to elicit women’s opinions on the subject of adolescent female health in Aliquippa. The focus group will be audio recorded. All discussions, names and audio-recordings will be kept confidential Questions: 1. Let’s think back to when you were in high school. What do you remember? PROBE: What were the main issues girls faced? 2. Now come to the present. Tell me what you think the main issues are for teenage girls in Aliquippa today? 3. What kind of support do girls have regarding these issues? PROBES: counseling, places to seek refuge, medical facilities… 4. Do you think that teenage pregnancy is an issue? 5. How can teenage pregnancy be prevented? PROBES: communication, role models, school support, parents 6. What types of supports did you have or would have liked to have had as a teenager? 7. What types of community programs currently exist as a distraction from risky behaviors? 8. Any last comments/remarks? Closing: Thank you for participating 36 Table 5: Focus group draft of questions for the adolescent girls Adolescent Girls Focus Group Guide Draft Introduction: Introduce moderator, co-facilitator, and anyone present from the advisory board. Then everyone else can introduce themselves/the aliases they have chosen. Purpose: To learn girl’s opinions on the subject of adolescent female health in Aliquippa Questions: 1. Tell me about your favorite activity to do during this time of year? PROBE: ride your bike, take a walk, eat at barbeques 2. What do you like about living in Aliquippa? PROBE: What don’t you like? 3. What are the positives about your community? PROBE: What are the challenges? 4. What are some issues that you think girls in Aliquippa deal with? 5. What kind of support do girls have regarding these issues? PROBE: What places can girls go to get help? 6. What are some things that you would like to see in Aliquippa for girls to do? PROBE: camps, community center activities 7. What do you think that girls need that will help them? 8. Any last comments or remarks? Closing: Thank you for your help. 37 The next step is to enlist a well trained, experienced moderator that is similar to the participants in the groups.[36] They should be experienced in moderating groups and be familiar with the research and assessment purpose.[36] The moderator will use the focus group guide to direct the discussion. The guide is important so that all topics are discussed, however new topics may emerge depending on the conversation that develops amongst the participants and these topics will be pursued. It is important to let the group take more of a lead in discussing the questions that are asked by the moderator.[36] After securing a relaxed and informal setting to have the focus groups in the community, such as the Linmar Community Center, the next step is to conduct the focus group. The participants will be given time at the beginning to get to know each other.[36] After this period, the conversation can start with introductions. The moderator will be the first to introduce herself. All participants of the focus groups will then be given information regarding why the focus groups are being conducted, the main discussion topic(s) (e.g. to discuss the health of young women in Aliquippa) and to get their permission to audio record them. Because real names should not be used during the group, participants will be called on by an alias that they choose. They can put the names they choose on name tents to be placed in front of them and that is how they will be identified. However, this may be limitation since the participants may know each other. In that case, I would ask them to sign a confidentiality agreement. A clear explanation of the participation guidelines: such as speak one at a time and be honest with what you think and feel should also be given.[36] After the initial introductions are completed, the moderator will begin posing questions about the topic and guiding the discussion with the help of the focus group guide. The discussion will be continued on each topic until no further ideas are generated.[36] There may be an issue in 38 getting the true opinions of the participants particularly with the girls because they may simply follow their social leaders. I along with the moderator will address this by reminding the participants through out the group that their individual opnions are important. The groups will last one hour to an hour and a half and near the conclusion of the groups each participant can be asked to give one final comment. The moderator will then summarize the key issues raised and end the meeting. All sessions will be audio recorded to capture everything that is said. Since it will be difficult for the moderator to run the group and take notes at the same time, a co-facilitator will take notes during the focus group to capture body language and other details that may be missed on the recording.[36, 43] If it is possible, the participants should be given a monetary compensation for their time, such as gift cards to local businesses.[36] The goal is to conduct four focus groups: two with adolescent girls, two with women, so that we can obtain both viewpoints on the same topic. The target will be to have 6-12 members (ideally 8) in each focus group and participants should be homogeneous.[36] Saturday during the afternoon is a good time and day to have the focus groups as most people are not working and are available to participate. For example, there may be better attendance to the group on a Saturday than there would be on a Wednesday. Finally, we will provide lunch as another incentive to participate. While the focus groups are being conducted, I will transcribe the recordings of the groups for qualitative analysis.[43] I, along with one or two members of the advisory group, will analyze the transcripts by looking for similar themes. I will train them on how to recognize themes and together we will look for repeated ideas from several participants that have to do with the health of young women in Aliquippa. For instance, if several participants state (even in different ways) 39 that girls in Aliquippa usually date older boys, this is a relevant theme that has emerged from the group discussion. The themes will then be categorized and grouped together (coded) so that similar topics and suggestions can be highlighted. I expect to find themes related to teen pregnancy and/or dropping out of high school, however other topics may emerge. Furthermore, I will analyze and interpret the data with both pen and paper or with the aid of qualitative data software called Atlas. ti.[37] I will produce an internal report of the information gathered for the advisory board. 5.4.3 Surveys with Adolescent Girls After we conduct and analyze the focus groups, the core group and I will develop a questionnaire to survey girls in the community. The objective in surveying girls in addition to the focus groups is to collect self-reported information on the health behaviors of girls in the community. The survey will need to be pilot tested to make sure the wording is clearly understood by the participants filling out the survey. The questions will be tested out on a group of five girls so that suggestions and improvements to the questions can be made.[37] After taking the recommendations into account and implementing suggested revisions we will develop a final survey. The core group will then need to decide how and where the surveys will be implemented. Since we want to survey the target population of adolescent girls in Aliquippa it will be important to have a sampling strategy. I will get a list of girls from Aliquippa Junior and Senior High School and attempt to survey as many girls as possible of the approximate 150 girls in the school. I will stratify the list of girls by grade and attempt to survey an equal amount of girls from each grade. The surveys will be self-administered during a free period during school hours with the assistance of someone from the advisory board who has been trained to implement the 40 survey. Furthermore, it may also be convenient (especially for the youth) to look into having participants complete surveys on hand-held devices. This can be costly, however it may yield a better response rate from the girls since most of them are probably used to using technology.[36] The confidentiality of the girls would be protected by not asking them to put their name or any other identifiers on the survey. Below in Figure 4 is an example of some of the questions that will be used for the survey. The questions will focus on topics such as sex initiation, fights, dating violence, etc. A majority of the survey questions have been tested, proven effective and are used by the Centers for Disease Control and Prevention for their Youth Risk Behavior Survey.[44] In a final version of a survey I would intersperse more “soft” questions throughout the more threatening questions. An example of a soft question is, “Do you like your school?’ An example of a more threatening question is, “During the past 12 months, how many times were you in a physical fight?” The information that I expect to get from the surveys is information on the health behaviors of the girls in Aliquippa. The sample questions can adequately elicit that information. Frequencies of the survey responses will be calculated with the use of a quantitative data tool such as SPSS. I will describe the data collected in a report that will be shared with members of the advisory board and the broader community. 41 Table 6: Sample Survey for girls [44] Sample Survey Questions This survey is about health behavior. It has been developed so you can tell us what you do that may affect your health. The information you give will be used to improve health education for girls like yourself. All information you give will be kept confidential DO NOT write your name on this survey. The answers you give will be kept private. No one will know what you write. Answer the questions based on what you really do. Thank you very much for your help 1. How old are you? A. 12 years old or younger D. 15 years old G. 18 years old or older 2. In what grade are you? A. 9th grade D. 12th grade B. 13 years old E. 16 years old C. 14 years old F. 17 years old B. 10th grade C. 11th grade E. Ungraded or other grade 3. What is your race? (Select one or more responses.) A. American Indian or Alaska Native B. Asian C. Black or African American D. Native Hawaiian or Other Pacific Islander E. White 4. Do you like your school? A. Yes B. No 5. I am liked by my classmates. A. Strongly Agree B. Agree C. Disagree D. Strongly Disagree 6. During the past 12 months, how many times were you in a physical fight? A. 0 times B. 1 time C. 2 or 3 times E. 6 or 7 times F. 8 or 9 times G. 10 or 11 times 7. Would you consider yourself a happy person? A. Strongly Agree B. Agree C. Disagree D. 4 or 5 times H. 12 or more times D. Strongly Disagree 8. During the past 12 months, did you ever feel so sad or hopeless almost every day for two weeks or more in a row that you stopped doing some usual activities? A. Yes B. No 9. During your life, how many times have you used marijuana? A. 0 times B. 1 or 2 times C. 3 to 9 times E. 20 to 39 times F. 40 to 99 times G. 100 or more times D. 10 to 19 times 10. Have you ever been on a date? A. Yes B. No 11. Have you ever had sexual intercourse? A. Yes B. No This is the end of the survey. Thank you very much for your help. 42 5.4.4 Core Group Discussion After both the completion of surveys and the implementation of focus groups, the core group will reconvene to analyze and organize the data that has been collected. With the reports that I have already given the board, we will determine if there is any difference between secondary data collected about the adolescent females in Aliquippa and the girl’s responses concerning their health and what they want and need to know. Also, we will organize the themes, opinions and suggestions that have been collected from the community. Finally, a community health assessment report will be generated with the support of volunteers from the core group. We will invite the girls back that participated in the assessment in order to share the results of the assessment with them and get their opinions on whether they agree with the findings. It may even be appropriate to present the report to the community in a public meeting.[36] We will hopefully give the community of Aliquippa a great insight into where program efforts for girls should be focused and what the true needs of this community are and how to take action to address them. Organizations and leaders that are already working with the girls in the community will have a broader knowledge of the health issues that girls face and if teenage pregnancy is one of them. The entire process of the assessment can last anywhere from 6 months to two years. It all depends on how engaged the community is and how helpful the volunteers and the advisory board is. It is my guess that teen pregnancy will emerge as an issue, however we will be open to if teen pregnancy does not emerge as the main issue. 43 6.0 CHALLENGES OF PROPOSED COMMUNITY ASSESSMENT One challenge in implementing a community assessment may be to get and keep interest from the community. However, this may not be an issue due to the fact that I already have made connections and relationships with people in the community and will plan to cultivate those relationships during the assessment. It is my expectation that there will already be a level of trust between me and the community and my intentions in doing the community assessment. Conducting community health assessments can be a strenuous task; however because I will be eliciting a lot of help from the community it may not be as laborious. Furthermore, the outcomes of such a task are well worth the effort especially if the community builds ownership of the project. Having a firm foundation for which programs can be built on is an invaluable gift to a community. 44 7.0 CONCLUSION The proposed community health capacity and needs assessment for the city of Aliquippa stemmed out of my desire to help the community address the needs of the young women who live there. Not only do I want to support interventions and programs that have been proven to work, but I want to make sure that energy is placed where it needs to be, which is on the true health needs of the girls. A more desirable outcome would be that because of the proposed assessment steps will be taken to actually implement it. If it was implemented I will consider the assessment successful even if the community adopts no change, because at the least, through the process of doing the assessment they will be more educated and aware of the personal and social issues the young women in their community face. It is my desire that current and future interventions aimed at adolescent female health will actually address the accurate needs of the community of Aliquippa and will be based on evidence and not just educated guesses of what girls need. 45 BIBLIOGRAPHY 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. Israel, B.A., et al., Introduction to Methods for CBPR for Health, in Methods for Community-Based Participatory Research for Health, B.A. Israel, et al., Editors. 2013, Jossey-Bass: San Francisco, CA 94104-4594. p. 6, 8-11, 14. 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