Information Sheet
Sharing Stories to Improve Health and Social Care
We are from a regional group called CETL4HealthNE and we are made up of
people from the North East’s NHS, carers’ groups, and universities. We call
ourselves the People-with-Experience work group because we are particularly
interested in developing Health in the North East by learning from people’s
experience.
We believe that health and social care can be improved by listening to what
people say about their experiences. Our project is to help health and social
care students see how important it is to listen to people’s experiences.
We are collecting stories from people who want to share their stories in
public. We will use the world-wide-web to share these stories so that health
and social care students in the North East of England can learn from them.
Invitation
We would like to invite you to tell your story of your experiences as a user of
health or social care services. This information sheet tells you what you need
to know to decide whether to take this invitation. You can read this
information, ask questions and you can change your mind about whether to
be involved or not at any time.
Telling your Story
We would like to record your story using a video. We have specially trained
people who will arrange to meet with you and listen to your story and help
you make your recording. These people have had Enhanced Criminal Records
Bureau checks. The recording will happen in the place that you decide on. It
could be your home, or it could be in an outside place like a park. It will
probably take a couple of hours to complete. You will be able to look at the
video during the recording and you will be able to edit the video if you want
to after the recording. You will see the recording before it is put on the
internet. The recording will be for use in the education of health and social
care students and professionals in the North East. You will be asked to
choose a name for yourself rather than being referred to by your real name.
The recording will be put on the internet and this means that anyone
browsing will have open access to your recording. This includes professionals
from health and social care.
Consent
We will not record your story unless you have given your consent to be
included in this project. It is important to us that you understand that the
final version of your story will be put on the internet for the education of
health and social care professionals with open access to all internet users.
You will be able to change your mind and withdraw your recording at any
time. You can contact Dr Anna Jones at the address at the end of this
information sheet. Whilst CETL4HealthNE will clearly state that unauthorised
use of any material is forbidden, other people may make use of the material
in ways outside CETL4HealthNE’s control.
Support
Interviewers will offer emotional support during and after story telling, and
many people find that there are therapeutic benefits to telling their stories.
Reimbursement
You will be able to get back the expenses that you have incurred making the
recording of your story.
Permission
This CETL4HealthNE project aims to gather together stories that can be
shared across the North East for use in the education of students in health
and social care by using internet technology. You will have the ability to edit
your story and control the final version of the recording and you also retain
the legal ownership of your story. The material that you record must not
infringe any law. CETL4Health will ask you to give permission for he use of
the recording on its web pages.
CETL4HealthNE will make sure that:
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Your story can be used for the education of health and social care
professionals in the North East
No profit will be made from the stories
The meaning of your story is maintained
You are acknowledged, but your confidentiality is maintained
You are contacted within two weeks of consenting to be involved to
arrange collection of your story.
Contact Person
If you have any questions at any time please contact:
Dr Anna Jones
CETL4HealthNE Fellow
School of Health, Community and Education Studies
Northumbria University
Coach Lane Campus
Coach Lane
NEWCASTLE UPON TYNE
NE7 7XA
Telephone 0191 215 6722
Anna.jones@northumbria.ac.uk
Thank you for thinking about taking part in this project and for taking the
time to read this information sheet. If you decide to take part you will be
given a copy of this information sheet to keep. Please note that this
information sheet can be made available in appropriate accessible formats.