Electronic annex 2f Formal evaluation and record of diagnosis of VS or MCS All aspects need to be completed and signed off by a designated expert physician in prolonged disorders of consciousness (PDOC). Patient name: Registration number (Database): Date of injury: Expert physician: Minimum requirement Detail Date of assessment: 1 TIME FRAME Time since injury: Has remained continually in DOC for a minimum of 4 weeks post injury 2 SPECIALISED SETTING Admitted to a designated specialised PDOC unit or managed in an appropriate setting under the supervision of outreach team for an appropriate period of time – minimum 6 weeks but more usually 3–4 months NB: If not in a designated unit Managed and assessed in a unit (usually Level 1 or 2 neurorehab setting) with appropriate staffing levels, expertise in management and formal assessment of PDOC, and all requirements below have been met Completed and signed/ Date Unit Unit 3 MEDICAL MANAGEMENT General medical condition has been stabilised as far as possible, including: a Medically stable: Free from major sepsis and other serious inter-current illness affecting consciousness b Medications have been reviewed to minimise sedation c Clinical examination of sensory pathways has been undertaken d Imaging/investigations As appropriate to eliminate remediable cause of PDOC (cont’d) 1 Minimum requirement Detail 4 SPECIALIST MANAGEMENT PROGRAMME All essential requirements for management are addressed: a Tone: Active spasticity management in place, including medication b Positioning: A 24-hour programme of positioning is in place with a range of positions available including bed and chair (unless contraindicated) c Has appropriate seating system and sitting tolerance at least 1 hour at a time – preferably up to several hours/day or, if in bed – at least sitting up in profile in midline for 1 hour d Arousal levels recorded: Measures have been taken to maximise arousal e Optimised environment: Consideration has been given to optimising the environment for interaction (adequate light, avoidance of distraction/ overstimulation, rest periods) f Facilitated communication: Has been assessed by clinicians experienced in PDOC to explore ability to access switches/use of communication aids etc g Controlled sensory stimulation programme: Patient has been exposed to a range of controlled stimuli 5 FAMILY/IMPORTANT RELATIONSHIPS Family informed and educated re sensory stimulation and responses etc, and involved in the programme (if able). 2 Completed and signed/ Date 6 Detail FORMAL ASSESSMENT (cont’d) Checked and signed/Date FOR CONTINUING VS OR MCS Has undergone formal assessment as follows: Acute setting/ITU : ‒ WHIM (at least 10 occasions) Rehabilitation/post-acute: VS or ?MCS minus No awareness or no consistent responses seen, ie VS or MCS WHIM at least 2–3 per week over 4 weeks or full SMART other assessments (eg CRS-R) optional MCS Clear evidence of awareness and response albeit inconsistently WHIM at least 2–3 per week over 4 weeks SMART (optional) other assessments (eg CRS-R) optional Long term: WHIM SMART – only indicated if: significant change identified by family/team and reviewed by trained assessor to establish if full re-assessment is necessary or – required to inform key decisions, eg application for withdrawal of CANH I hereby confirm that ………………………………………………………………. (Patient name) has met all of the above criteria for: ☐ Continuing vegetative state ☐ Continuing minimally conscious state (delete as applicable) Date: ……/……/……. (………………….weeks since brain injury) Signed: …………………………………………………………. Print name: ………………………………………………….. (Expert in assessment of prolonged disorders of consciousness) 3 7 Detail FORMAL ASSESSMENT Checked and signed/Date FOR PERMANENT VS OR MCS Has undergone formal assessment as follows: Time frame Date of review: VS: Non traumatic – at 6 months post injury or Traumatic – at 12 months post injury MCS: Non traumatic – at 3 years post injury Traumatic – at 5 years post injury Medical management No evidence of remediable medical condition contributing to low awareness Specialist management Patient has had an adequate period (at least 3 months) of specialist management, meeting the conditions laid out in section 4 above. Formal assessment SMART has been done …………….. Serial WHIMs over time show no significant change since the previous assessment I hereby confirm that ………………………………………………………………. (Patient name) who was diagnosed as in continuing MCS/VS on ………………………… (Date) has met all of the above criteria for: ☐ Permanent vegetative state ☐ Permanent minimally conscious state (delete as applicable) Signed: ………………………………………………………….. Print name: ………………………………………………….. Expert in assessment of prolonged disorders of consciousness Source: Royal College of Physicians. Prolonged disorders of consciousness: national clinical guidelines. London: RCP, 2013. 4