Tenth Annual Student Human Rights Conference Beyond Words: Freedom of Expression and its Contemporary Challenges Saturday 14th March 2009 Panel Theme: Currrent Challenges to Freedom of Expression Paper Title: Refusal of Perspective Author: Ciara Staunton Medical Treatment and Relgion-An Irish It is a well established principle that one must consent to medical treatment. 1 The corollary of this is the right of a competent person to refuse medical treatment. 2 A patient may refuse medical treatment for rational or irrational reasons or for religious reasons.3 Article 44.2.1 of the Irish Constitution states that “Freedom of conscience and the free profession and practice of religion are, subject to public order and morality, guaranteed to every citizen.” As Ireland becomes more multi cultured, there has been a rise in the number of different religions being practised. This change can be seen quite clearly in the influence of religion on a patient’s medical choices. However how have the courts reacted? Have the courts acknowledged that a person’s religion dictates that they refuse treatment which can save their life or has a much more paternalistic approach been adopted? Due to time constraints, I will only focus upon Irish cases in this presentation. An analysis of English cases is contained in the paper. Case law on refusal of medical treatment on religious grounds has centred around children. However the Irish courts have not dealt with it in the same way as the English courts. In North Western Health Board v H.W. and C.W. 4 the child’s parents were Jehovah Witnesses who refuse to consent to the PKU test for their child. The PKU test is a test carried out on children within the first 72 to 120 hours after birth. It tests for a number of diseases which are treatable. It is a blood test and the parents objected to the test. If damage has been caused by the diseases, it is reversible. The test is not carried out under legislation, but it is carried out as a matter of course. While the parents objected to giving a blood sample, they were prepared to supply hair and blood samples. In this case, and indeed with all Irish childcare cases, the impact of the Irish Constitution is of vital importance. Article 41.1.1 states that the family is “the natural primary and fundamental group of Society” and as such possess “inalienable and imprescriptible rights, antecedent and superior to all positive law”. However, Article 42.5 notes that: “In exceptional cases, where the parents for physical or moral reasons fail in their duty towards their children, the State as guardian of the common good, by appropriate means shall endeavour to supply the place of the parents, but always with due regard for the natural and imprescriptible rights of the child. 1 An exception would be in emergency situations where there is often no possibility of obtaining consent. As stated in Schloendorf v Society of New York Hospital: “Every human being of adult years and sound mind has a right to determine what shall be done with his own boody; and a surgeon who performs an operation without his patient’s consent commits an assault, for which he is liable in damages.” (1914) 105 NE 92 at 93. 2 See Sidaway v Board of Governors of Bethlem Royal Hospital [1985] A.C. 871, Cruzan v Director, Missouri Department of Health 497 US 261 (1990), Rogers v Whitaker (1992) C.L.R. 479. 3 In Ireland this was recognised in In re a Ward of Court (No 2) [1996] 2 IR 79 at 156. 4 [2001] 3 IR 622. Author: Ciara Staunton University: Law Reform Commission of Ireland Programme: Bioethics: Advance Care Directives Tenth Annual Student Human Rights Conference Beyond Words: Freedom of Expression and its Contemporary Challenges Saturday 14th March 2009 In this case, the court did not order the test to be carried out. It was not deemed to be “exceptional” circumstances which would require the state to become the default parent. However, the court did not state what would be “exceptional” circumstances. Must a child be on their death bed before the court is willing to intervene? J.M. v The Board Management of St. Vincent’s Hospital 5 and Fitzpatrick v FK6 saw the court ordering a blood transfusion despite objections to the treatment from both women as they were Jehovah’s Witnesses. In JM the court felt that the woman was “preoccupied with her husband and his religion as Jehovah’s Witness rather than with whether to have the treatment and her own welfare.”7 This is despite the fact that her husband told her that she should not feel obliged to refuse to consent to the transfusion. In the K case, Laffoy J ordered the blood transfusion to be carried out as she felt that Ms K did not understand the implications of her refusal. This is despite the fact that Ms K stated that she knew it was a matter of life and death and that she told the Master of the Hospital that she would die as a result of her refusal. It appears that the court will find that a patient is incompetent and order the transfusion rather than respect a patient’s refusal on the basis of their religion. While the paternalistic attitude is understandable, refusing to allow a patient to exercise their free practise of their religion not only is contrary to their right of privacy and autonomy but could be considered to be contrary to the constitution. Freedom of expression of one’s religion includes the freedom to follow the teachings of that religion. Jehovah’s Witnesses carrying a “no blood” card is now so common that many hospitals have policies in place for treating members of the Jehovah’s church. Yet there appears to be a reluctance from the courts to follow the refusal of treatment. A Jehovah’s Witness has made the decision to follow the teachings of the church and part of the expression of their religion is to refuse blood transfusions. However there is a tendency from the courts to find that a patient does not have the capacity to make the decision as evidenced in JM and the K case. However, while the court should respect a patient’s expression of their religion by upholding their refusal of medical treatment, this should not be absolute. Death is final, thus the courts must proceed with caution. Certainly the Irish courts seem to be adopting this approach. However this approach must not be adopted as a matter of course if respect is to be given to a person’s religion. A balance must be struck between a bias in favour of preserving life and the right to refuse medical treatment for religious reasons. A balance which the Irish courts need to work on. 5 [2003] 1 IR 321. [2008] IEHC 104. 7 [2003] 1 IR 321 at 325. 6 Author: Ciara Staunton University: Law Reform Commission of Ireland Programme: Bioethics: Advance Care Directives