EU-CHINA HUMAN RIGHTS NETWORK SEMINAR ON THE RIGHTS TO HEALTH AND SOCIAL SECURITY UNIVERSITY OF ESSEX, 27-28 APRIL 2004 BACKGROUND PAPER: THE RIGHT TO HEALTH OF WOMEN Judith Bueno de Mesquitai Introduction Neglect of women’s health is a pervasive problem in all parts of the world. Women often face de jure or de facto discrimination on grounds of their gender and sex, which has a serious impact on their enjoyment of their right to health.ii Gender is a social construct that encompasses “personality traits, attitudes, feelings, values, behaviours and activities that society ascribes to the two different sexes on a differential basis.”iii Sex refers to biological characteristics that define humans as men or women.iv Discrimination on grounds of sex derives from, among others, taboos and dysfunctions relating to women's reproductive system. The comparative neglect of women's health, combined with more general global health challenges, results in a sobering picture of health problems and inequalities facing women. In 2000, an estimated 529,000 women died from pregnancy-related causes, most of which were avoidable; 99 per cent of maternal deaths occur in developing countries.v Around the world, 42 million people are living with HIV/AIDS. Approximately as many women as men are infected. At least one in five women has been physically or sexually abused by a man or men at some stage in their lives.vi Women often lack of access to health care services and health information, and sometimes face a lack of privacy or confidentiality within health services that may deter them from seeking treatment or advice. International human rights law contains a wide and increasing range of standards that are of central relevance to women's health, including access to health care and the underlying determinants of health. In recent years, the international human rights community has given renewed attention to unpacking the normative content of the right to health, including women's right to health, and the resulting obligations on States. The focus of this paper is the protections afforded to the right to health of women in international human rights law. The paper does not offer a comprehensive account of international law relating to women's right to health. Instead, it focuses on provisions in key international human rights instruments, and on other selected important provisions concerning key issues for women's right to health such as the principle of non-discrimination; sexual and reproductive health rights; and the impact of violence against women. International human rights law and the right to health of women A general critique of international law is that its principles are inherently biased against women.vii For example, it operates primarily in the public sphere in areas 1 traditionally associated with men, while it does not so adequately address the private sphere (e.g. the home and family), which is traditionally the realm of women. In many countries, women are increasingly participating in the public sphere. However, their needs, including their health needs, also remain as important as ever in the private sphere. International human rights law is beginning to address this dichotomy. However, given the traditional bias, it is unsurprising that there is no single provision in international human rights law that comprehensively addresses women’s health, including underlying determinants. Broadly speaking, there are four types of provision that are particularly relevant: (i) general provisions on the right to health; (ii) prohibitions on discrimination on grounds of sex/ recognitions of the equal rights of women and men to the enjoyment of human rights, including the right to health; (iii) provisions that address health issues which are of particular concern to women; (iv) recognitions of other human rights closely related to the enjoyment of women’s health. A holistic human rights approach to women’s health requires that these types of provision be read in conjunction with one another.viii Key international instruments include: Universal Declaration on Human Rights, which recognises the right to protection against discrimination (article 7); the right of everyone to a standard of living adequate for health and well-being, including a right to medical treatment; and an entitlement to special care and assistance for motherhood (article 25). International Covenant on Economic, Social and Cultural Rights (ICESCR), which recognises the right of everyone to the enjoyment of the highest attainable standard of physical and mental health (article 12), proscribes discrimination on grounds of sex (article 2.2), and emphasises the equal right of men and women to the enjoyment of economic, social and cultural rights (article 3). Convention on All Forms of Discrimination Against Women (CEDAW), which emphasises the rights to equality and non-discrimination in the context of the right to health; and recognises the entitlement to appropriate services in connection with pregnancy, confinement and in the post-natal period (article 12). Convention on the Rights of the Child (CRC), which recognises equality of the sexes (preamble); proscribes discrimination (article 2.1); and recognises the right to the child to health (article 24). Included within article 24 are provisions particularly related to health protection for women and the girl child, including pre and post-natal care for mothers (article 24.2.d) and the abolition of traditional measures which are prejudicial to the health of children (article 24.3).ix These instruments do not give detailed attention to women’s health (and arguably do not all integrate explicitly a fully gendered health perspective). However, other instruments and documents address additional health issues of fundamental concern to 2 women and the protection of their right to health. The General Assembly has adopted several declarations of relevance, perhaps most notably the Declaration on the Elimination of Violence Against Women.x The outcome documents of the International Conference on Population and Development (Cairo, 1994) and the Fourth World Conference on Women (Beijing, 1995), and their plus-fives, include important commitments and language relating to women’s right to health, including sexual and reproductive health rights.xi Other relevant documents include General Comments adopted by UN treaty bodies concerning the health of women, in particular General Comment 14 on the right to health adopted by the Committee on Economic, Social and Cultural Rights; General Recommendation 24 on women and health adopted by the Committee on the Elimination of Discrimination Against Women; and General Comments 3 on HIV/AIDS and on adolescent health and development adopted by the Committee on the Rights of the Child. These General Comments add jurisprudential insights to the terms of international human rights treaties. Norms and obligations International human rights law provides protections for women in an array of circumstances connected with their health. This paper does not extend to a comprehensive examination of women's right to health, but instead considers several key issues that are especially relevant to women's right to health. xii This paper should be read in conjunction with the Working Paper on the right to health provided for this Network Seminar, as this provides a more general introduction and comprehensive information on the normative content of the right to health and corresponding obligations on States. Determinants of women’s health, and human rights responses The right to health in international human rights law goes beyond a right to health care, and also extends to a right to the underlying determinants of health. Frequently mentioned underlying determinants of the right to health include access to clean water and adequate sanitation, nutrition and environmental and occupation health.xiii Determinants of women’s health are wide ranging and are often distinct from determinants of men's health. International human rights law includes many standards relating to the determinants of women's health, and gives rise to corresponding obligations on States. Determinants of women's health and some relevant provisions in international law include:xiv (a) Biological factors, such as those associated with women’s reproductive health; menopause; and the greater biological vulnerability of women to sexually transmitted diseases. The right to health should be understood as a right to "the enjoyment of a variety of facilities, goods, services and conditions necessary for the realization of the highest attainable standard of health." Clearly these should respond, as far as possible, to a woman's biological needs at different states of her life. Particular examples include the entitlement to measures to improve maternal health, including pre and post-natal care and access to emergency obstetric care.xv (b) Socio-economic and cultural factors, such as poverty (which disproportionately affects women); unequal power relationships between women and men in the 3 workplace or in the home; educational attainment of women; violence against women, including sexual abuse; and cultural or traditional practices which pose significant health risks, such as female genital mutilation. Various human rights address some these underlying determinants of women's health, including the right to equality in the workplace, the right to adequate food and shelter, and the right to education.xvi Protections in relation to violence are considered in more depth below. (c) Mental disorders, and psychosocial conditions such as depression, post-partum depression, and eating disorders such as anorexia and bulimia. The right to health encompasses both physical and mental health, although the right to mental health has been comparatively neglected by the human rights community, as well as by health policy makers. The issue of mental disorders and psychosocial conditions have recently been considered by the Committee on the Rights of the Child in the context of adolescent health and development. The Committee has emphasised that States must provide adequate treatment and facilities for adolescents with mental disorders, if possible through care in the community rather than through institutionalisation, and protect adolescents from undue pressures, including psychosocial stress.xvii (d) Lack of respect for privacy and confidentiality of patients within medical establishments, which may deter women and adolescent girls from seeking advice or treatment. The right to health includes a right to have personal health data treated with confidentiality. Health care facilities, goods and services must also be sensitive to gender.xviii Given the sensitivity and taboo surrounding some women’s health issues, including violence and sexual and reproductive health issues, and the broader socio-economic position of women in society, confidentiality and privacy are often considered particularly important in the context of women’s right to health. (e) Legal protections afforded to women, including protections of their human rights. While the value of legal rights has been challenged by some feminist commentators who argue that these do not challenge power imbalances in society between men and women,xix national and international legal protections of human rights may play an important role in addressing some element’s of women’s right to health. The legal prohibition of discrimination on grounds of sex is often particularly important, as are legal protections relating to privacy and confidentiality. The incorporation of international human rights treaties including CEDAW and ICESCR into domestic law is an additional important legal step towards the protection of women's right to health. In relation to some women's health issues, in particular sexual and reproductive health issues, the absence of legal protections, and laws that actively discriminate against women, have had a harmful impact on their health in some countries. (f) Participation of women in political structures, and their participation in other decision-making processes relating to the health of women. As well as being a human right in itself, participation of women in decision-making processes, whether political or otherwise, increases the chance that decisions benefit women as well as men. The Committee on the Elimination of Discrimination Against Women has recommended that States parties should “involve women in the 4 planning, implementation and monitoring of such policies and programmes and in the provision of health services to women.”xx (g) Public policy, including policies concerning the health sector and other related sectors; budgetary allocations towards health; and whether (or not) a gender dimension is mainstreamed in public policy. The Committee on Economic, Social and Cultural Rights has also recommended that States integrate a gender perspective into all their health-related policies, planning, programmes and research in order to better promote the health of women and men. xxi Particularly important in the context of public policy (but also important in other contexts) is the human rights principle of gender equity. Gender equity has been defined as “fairness and justice in the distribution of benefits and responsibilities between women and men.”xxii This often requires women-specific programmes and policies to end existing health inequalities. (h) A woman’s age, or her place in the life cycle. While some health problems affect women throughout their lives, others predominantly or exclusively affect a woman at particular times of her life, eg in infancy, childhood, adolescence, during her productive or reproductive years, or in old age. While international human rights law does not deal explicitly with all women’s health needs at different stages of life, it is broadly speaking sensitive to this life-cycle approach.xxiii The law contains a variety of provisions overtly relating to the health problems faced by a woman at particular stages of her life, from infancy to old age. Equality and non-discrimination Interlinked with all of the above factors are overarching issues of the human rights principle of non-discrimination and the right to equal treatment. Discrimination on grounds of gender impedes women’s access to health and hampers their ability to respond to the consequences of ill health for themselves and their family.xxiv Women living with disabilities, with particular health conditions including HIVAIDS; elderly women, and women from some racial or ethnic groups are among those at risk from double or multiple discrimination. The protection of human rights on basis of non-discrimination and the promotion of gender equality are key determinants of women’s enjoyment of good health. Nondiscrimination is a fundamental human right. CEDAW defines discrimination against women as: "Any distinction, exclusion or restriction made on the basis of sex which has the effect or purpose of impairing or nullifying the recognition, enjoyment or exercise by women, irrespective of their marital status, on a basis of equality of men and women, of human rights and fundamental freedoms in the political, economic, social, cultural, civil or any other field" (article 1) This definition is intended to encompass not only overt forms of discrimination, but also "pervasive and subtle" forms of discrimination that are integrated into the fabric of societies.xxv 5 CEDAW obligates State to take all appropriate measures to eliminate discrimination against women in the field of health care in order to ensure access to health care services on a basis of equality between men and women.xxvi While many appropriate measures are necessary, an important step is the collection of health and socioeconomic data disaggregated by sex. This can help identify and, together with other measures remedy, inequalities.xxvii Sexual and reproductive health rightsxxviii The term 'sexual and reproductive health' includes a wide range of health issues, including maternal mortality, sexually transmitted diseases (STDs) and sexual violence issues, some of which are extremely sensitive and controversial within many cultures. Nevertheless, international human rights documents, and the Cairo and Beijing outcome documents, do address and provide some relatively clear protections in relation to many elements of sexual and reproductive health. Sexual and reproductive ill health gives rise to nearly 20 per cent of the global burden of ill health for women.xxix Causes include biological and socio-economic problems, such as the low social status of women and girls, poverty, and traditional views about sexuality which can obstruct the provision of essential health services and information. Adolescents and young girls under 25 are particularly vulnerable in the context of sexual and reproductive health. While adolescence is a period characterised by sexual and reproductive maturation, adolescents and young people frequently lack access to information and services necessary for their health. Globally, 16 percent of HIV infection occurs among adolescents, and 42 percent of infection among those aged 15-24. Sexual and reproductive health are integral elements of the right to health. Many, if not all, of the normative elements of the right to health are closely related to sexual and reproductive health. In the context of sexual and reproductive health some other rights are also, of course, important e.g. the right to education, and the equal rights of men and women to decide freely and responsibly on the number and spacing of their children and to have access to the information, education and means to enable them to exercise these rights.xxx The scope of this paper does not permit a full examination of these linkages. However, I would like to mention several key normative elements of the right to health which have special importance to sexual and reproductive health rights. The right to health includes freedoms, including a right to control one's health and body. Sexual violence, non-consensual contraceptive methods and harmful traditional practices related to reproduction function and sexuality all represent breaches of sexual and reproductive freedoms. The right to health also includes entitlements, including to a system of health protection which provides equality of opportunity to enjoy the highest attainable standard of health. Under international human rights law, States have an obligation to ensure reproductive, maternal and child health services, including appropriate services for women in connection with pregnancy, granting free services where necessary.xxxi More particularly, States should improve a wide range of sexual and reproductive health services, including access to family planning, pre- and post-natal care, 6 emergency obstetric services and access to information, and ensure that women's right to privacy and confidentiality are respected within these services. Services associated with sexual and reproductive health should, of course, be available on a nondiscriminatory basis. The right to health gives rise to an obligation on States to prevent, treat and control epidemic, endemic, occupation and other diseases. By implication, this includes STDs, including HIV/AIDS (itself a pandemic), as well as other sexual and reproductive health diseases. The prevention, treatment and control of STDs requires a multifaceted approach which is rooted in reliable, evidence-based assessments of the biological, and socio-economic causes of these illnesses. Important right to health entitlements include: The entitlement to access health information and education, including for adolescents, in the context of sexual and reproductive health.xxxii This entitlement is particularly important because awareness about STDs, their mode of transmission and safe and effective methods of prevention, including contraception, is an important way to prevent infection, as well as an important tool to combat discrimination against people living with HIV/AIDS and other stigmatised STDs. Available and accessible health care services, including family planning.xxxiii Available and accessible treatment. In recent years the Commission on Human Rights has recognised that access to medication in the context of pandemics such as HIV/AIDS is a "fundamental element" for achieving the progressive realisation of the right to health.xxxiv Medication is obviously important for the treatment of HIV/AIDS and other STDs. But treatment, including through medication, also plays a role in prevention and control, since the availability of treatment can help encourage people to seek testing. The availability of treatment also helps combat stigma. Available and accessible testing and counselling services, which are compassionate and provide voluntary and confidential services, including for adolescents.xxxv All of these entitlements must be exercised on the basis of non-discrimination. For example, health education and information must be equally accessible for women and men, and services in connection with sexual and reproductive health should be available on the basis of equality in law and in fact. Violence against Women World wide, violence against women is as serious a cause of death and incapacity among women of reproductive age as cancer, and a greater cause of morbidity as malaria and traffic accidents combined. This violence takes many forms and may affect women at all stages of the life cycle. The Declaration on the Elimination of Violence Against Women defines violence as: 7 "Any act of gender-based violence that results in, or is likely to result in, physical, sexual or psychological harm or suffering to women, including threats of such acts, coercion or arbitrary deprivation of liberty, whether occurring in public or private life" (article 1) This definition of violence against women encompasses violence in the public and private spheres and highlights forms of violence to which women are particularly at risk, including: "(a) Physical, sexual and psychological violence occurring in the family, including battering, sexual abuse of female children in the household, dowry related violence, marital rape, female genital mutilation and other harmful traditional practices harmful to women, non-spousal violence and violence related to exploitation; (b) physical, sexual and psychological violence occurring within the general community, including rape, sexual abuse, sexual harassment and intimidation at work, in educational institutions and elsewhere, trafficking in women and forced prostitution; and (c) physical, sexual and psychological violence perpetrated or condoned by the State, wherever it occurs" (article 2) The obligations on States to respect, protect and fulfil the right to health all have important application in relation to violence. States, and stage agents should refrain from violent conduct against women. The State should also protect the right to health of women from harm by third parties. This includes for, example, an obligation to take measures to protect vulnerable or marginalized groups, including women, in the light of gender-based expressions of violence. Such measure may include integrating a gender perspective into policies, planning, programmes and research. Obligations to fulfil includes providing information campaigns about domestic violence, as well as accessible, good quality services for victims. Since health care may often sought by victims of violence, in particular at the primary level of care, it is essential that relevant health personnel receive appropriate training so they can deal sensitively with the issues arising from violence.xxxvi Conclusion A woman's right to health is fundamental to her well-being and survival. Many determinants of women's health are distinct, on account of reasons connected to a woman's sex and the gendered role ascribed to women by society. As well as promoting women's health through the elimination of discrimination in society and in access to health care, additional measures are required to respond on an equitable basis to the health needs of women. International human rights law includes an increasingly detailed normative framework relating to women's right to health and creates a range of obligations on States. Increasingly this body of law has developed to take into account the needs and rights of women at different stages of their life, as well as the underlying determinants of their health. i M.A., LL.M., Senior Research Officer, Human Rights Centre, University of Essex. R. Cook, Women, Health and Human Rights, World Health Organisation: 1993, p. 6. iii WHO, Women's Health Across Age and Frontier, 1992. ii 8 iv WHO draft working definition. See www.who.int/reproductive-health/gender/glossary.html E/CN.4/2004/49, Report of the UN Special Rapporteur on the right to health, February 2004, para. 11. vi WHO, Violence Against Women: A Priority Health Issues, 1997. vii H. Charlesworth, Human Rights as Men’s Rights, in J. Peters and A. Wolper (eds), Women’s Rights, Human Rights, Routledge: 1995. viii Since this paper focuses on women’s right to health, it does not give detailed attention to the consideration of the fourth category of relevant provisions. Its main focus is on provisions focusing on health, women’s health concerns, discrimination and equity. ix Harmful traditional practice may also, of course, affect boys, although harmful traditional practices affecting girls are more widespread. Examples include female genital mutilation and early marriage. x UN doc. A/RES/48/104, adopted by the General Assembly on 20 December 1993. xi e.g. See UN doc. A/CONF.171/13/Rev.1, Programme of Action of the International Conference on Population and Development, 1994; UN doc. A/CONF.177/20, Beijing Declaration and Platform for Action, 1995. xii A more comprehensive account of norms and obligations in relation to the right to health, applying equally in the context of women and men's health, is provided in the Working Paper on the Right to Health for this Network Seminar meeting. xiii Eg. See General Comment 14, para. 4. xiv IWRAW Asia Pacific, The CEDAW convention and women’s health. Available online at http://list.iwraw-ap.org/lists/d_read/cedaw4change/. xv General Comment 14, paras. 9 and 14. xvi ICESCR, articles 7 and 11. xvii General Comment 4, para. 30. xviii General Comment 14, para. 12. xix See N. Hevener Kaufman, S Lindquist, Critiquing Gender-Neutral Treaty Language: CEDAW, in J. Peters and A. Wolper (eds), Women’s Rights, Human Rights, Routledge: 1995. xx General Recommendation 24, para. 31.a. xxi General Comment 14, para. 20. xxii WHO, Transforming health systems: gender and rights in reproductive health, 2001. xxiii General Comment 14, para. 12.c. xxiv UN doc. E/CN.4/2003/58, Preliminary Report of the UN Special Rapporteur on the right to health, 2003. xxv R. Cook, Women's Health and Human Rights, WHO: 1993, p. 20. xxvi Article 12. xxvii General Comment 14, para. 20. xxviii This section includes a summary of some of the points made by the Special Rapporteur on the right to health on the issue of sexual and reproductive health rights in his report to the Commission on Human Rights, E/CN.4/2004/49, paras. 7-56. xxix E/CN.4/2004/49, Report of the UN Special Rapporteur on the right to health, February 2004, para. 11. xxx ICESCR, article 13; CEDAW, article 16.1.e xxxi CEDAW, article 12.2. xxxii CESCR General Comment 14, para. 11; CEDAW General Recommendation 24, para. 18; CRC General Comment 3, para. 18. xxxiii CEDAW, article 12. xxxiv Eg Commission on Human Rights resolution 2003/29 on access to medication in the context of pandemics such as HIV/AIDS, tuberculosis and malaria. xxxv CRC General Comment 4, paras. 22-24. xxxvi E/CN.4/2004/49, Report of the UN Special Rapporteur on the right to health, February 2004, paras. 81-86. v 9