Draft Agenda of the Supporting CSOs fighting cancer Study Tour

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Supporting CSOs fighting
against cancer
P2Pstudtours 44500
organised in co-operation with
European Cancer Leagues
and European Cancer Patient Coalition
Please check venue for each day
Brussels,
24 May - 27 May 2011
For more information on TAIEX assistance and to download
presentations of
this event, please go to : http://ec.europa.eu/enlargement/taiex.
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Aim of the meeting :
The P2P Programme intends to offer to civil society organisations from the beneficiary
countries the possibility to visit EU institutions, as well as relevant EU platform
organisations, or whenever relevant for the topic of the study tours, also other
European, international or national organisations, in order to familiarise themselves
with EU structures, policy making process, programmes, policies and best practices.
The aim of this study tour is to give participants the opportunity to familiarise
themselves with the EU policies and programmes related to the fight against cancer, as
well as to offer them exchange and networking opportunities among themselves and
with other European-level civil society organisations active in these fields. Some
examples of practical actions will also be presented to the participants.
Participants will represent mainly associations of parents of children with cancer,
women fighting cancer, health CSOs, organisations promoting healthy lifestyle and
others form the candidate countries and potential candidates to EU accession.
Around 35 persons are expected to take part in the study tour.
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Day 1 : Tuesday 24 May 2011
Chair : -TBC
Venue: Infeuropa,
rue Archimède/Archimedesstraat 1,
1040 Brussels
09:15
09:45
10:00
11:15
11:45
12:30
14:00
15:00
15:15
16:30
Arrival and registration of participants
Distribution of welcome package with the list of participants
Welcome note: introduction on the purpose of the People 2 People
Programme (P2P)
Ms Magdalena Kleim, Head of Section, People 2 People
Programme, Unit D2 - Institution Building, DG Enlargement, European
Commission
Round of table/Ice-breaking: brief verbal presentation, accompanied
by materials if available, max. 3 minutes per participant.
 Self-introduction by participants
The work of the organisations represented
coffee break
European Commission support to civil society in candidate countries
and potential candidates: The Civil Society Facility (CSF)
Mr Henk Visser, Programme Manager, Unit D3 – Regional
Programmes, DG Enlargement, European Commission
lunch
The EU institutions and decision-making process
Mr Béla Béres, Member of the Legal Service, European Commission
coffee break
introduction to DG SANCO programmes on cancer issues to which the accessing
countries are eligible,
Speaker TBC
Meeting with the geographical units of the DG ELARG
Venue: rue de la Loi 170, 100 Brussels
Charlemagne Building
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Day 2 : Wednesday 25 May 2011
Chair : - European Cancer Leagues
Conference in the framework of the European Week Against
Cancer (EWAC)
Programme will follow
Venue:
Committee of the Regions
Rue Belliard, 1040 Brussels
Jacque Delors Building
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Day 3 : Thursday 26 May 2011
Venue: 09:00
Session I
People to People: ‘Cancer Patient to Cancer Patient’
09:15
Chair : Mr Tom Hudson (ECPC President)
Participatory Approach to involve cancer patients
10:00
Ms Doris Kiefhaber, Austrian Cancer Leagues
Mr Francesco de Lorenzo, FAVO
European Parliament – The Citizens’ Chamber
10:30
11:00
12:00
12:30
13:45
14:30
15:00
Ms Marisa Matias Member of the European Parliament
Mr Jo Leinen, Member of the European Parliament
coffee break
Patient-to-Patient as Proactive People in supporting the Partnerships
Against Cancer,
Mr Jacek Gugulski, Polish Cancer Patient Coalition,
Mr Salih Yuce, Turkish Cancer Patient Coalition;
Questions and Answers
lunch
Session II: People- to- People Volunteering – Civil Society
Volunteering in Oncology
Chair: Mrs Nessa Childers, Member of the European Parliament
The involvement of patient volunteers in cancer care in Germany and
Austria
Mr Johannes Bruns (German Cancer Society)
Ms Doris Kiefhaber (Austrian Cancer Aid)
Oncology Volunteers in Central and Eastern Europe


15:30
16:00
A friend in the hospital (Ms Evgenia Adarska, APOZ –
National Association of patients with Oncological Diseases,
Bulgaria)
Offering a helping hand (Tande Kazda, CML and GIST Cancer
Advocacy, Hungary)
Coffee Break
Session III: Civil Society: A new era of European Cancer
Patients-to-Patients Dialogue
Chair: Mr Jacek Gugulski, Polish Cancer Patient Coalition
16:15 Wishes and reality in Patients Civil Society,
Ms Patricia Garcia Prierto or Ms Isabel Oriol, Spanish Association
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Against Cancer or Ms Jana Pelouchova
16:45 Young people – Shaping the Health Agenda:
Mr Tom Hudson, ECPC President
17:15 Questions and Answers
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Day 4 : Friday 27 May 2011
Venue: European Economic and Social Committee
Rue Belliard, 1040 Brussels
Jacque Delors Building
Room TBC
09:00
09:30
Arrival and registration
Session I: European Economic and Social Committee and the cancer
policy of the civil society in the EU

10:15
10:30
12:30
13:00
An introduction to the European Economic and Social
Committee
 The work of the EESC at the are of health
Speakers TBC
Visits and Seminars Unit of the EESC
Session II: Learning from the Community / Best Practice
Chair: Mr Tom van der Wal (ECPC Board Member)
 Toolbox: Creating a social media page in 60 minutes (Social
Media specialist), Marie-Thérèse Giorgio, French physician
webmasters
 Multi-linguality: how to bridge the language gap (Translator,
software), Denise Silber, Founder of Basil Strategies
 Internet to help patients report symptoms or to promote
adherence, Speaker TBC, Head of e-Health Wing
Closing session: feedback and evaluation
End of the study tour
This meeting is being organised by the
Technical Assistance Information Exchange Instrument
of the European Commission
CHAR 03/149 , B - 1049 Brussels
Telephone: +32-2-296 73 07 , Fax: +32-2-296 76 94
Web site http://ec.europa.eu/enlargement/taiex
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