©Jared Stewart, M.Ed. No claim is made to any of the images in this document. Autism and ADHD Forests and Trees… A couple of broad (but accurate) generalizations: = (Forest…) = (Trees…) A Little History • • • • • ADHD has been around since at least 1902 Autism has been around since late 1930’s Both have seen massive increases since 1970’s ASD is believed to describe 1-3% of all people ADHD is believed to describe 3-10% of all people • Both more common in boys • Diagnosis of ADHD is still controversial Chart/map from www.cdc.gov What is Autism? New DSM-5 criteria: Currently, or by history, must meet criteria A, B, C, and D: A. Persistent deficits in social communication and social interaction across contexts, not accounted for by general developmental delays, and manifest by all 3 of the following: 1. Deficits in social-emotional reciprocity 2. Deficits in nonverbal communicative behaviors used for social interaction 3. Deficits in developing and maintaining relationships B. Restricted, repetitive patterns of behavior, interests, or activities as manifested by at least two of the following: 1. Stereotyped or repetitive speech, motor movements, or use of objects 2. Excessive adherence to routines, ritualized patterns of verbal or nonverbal behavior, or excessive resistance to change 3. Highly restricted, fixated interests that are abnormal in intensity or focus 4. Hyper-or hypo-reactivity to sensory input or unusual interest in sensory aspects of environment; C. Symptoms must be present in early childhood (but may not become fully manifest until social demands exceed limited capacities) D. Symptoms together limit and impair everyday functioning. What is ADHD? DSM-5 Criteria for ADHD • Inattention: Six or more symptoms of inattention for children up to age 16, or five or more for adolescents 17 and older and adults; symptoms of inattention have been present for at least 6 months, and they are inappropriate for developmental level: 1. 2. 3. 4. 5. 6. 7. 8. 9. Often fails to give close attention to details or makes careless mistakes in schoolwork, at work, or with other activities. Often has trouble holding attention on tasks or play activities. Often does not seem to listen when spoken to directly. Often does not follow through on instructions and fails to finish schoolwork, chores, or duties in the workplace (e.g., loses focus, side-tracked). Often has trouble organizing tasks and activities. Often avoids, dislikes, or is reluctant to do tasks that require mental effort over a long period of time (such as schoolwork or homework). Often loses things necessary for tasks and activities (e.g. school materials, pencils, books, tools, wallets, keys, paperwork, eyeglasses, mobile telephones). Is often easily distracted. Is often forgetful in daily activities. What is ADHD? DSM-5 Criteria for ADHD • Hyperactivity and Impulsivity: Six or more symptoms of hyperactivity-impulsivity for children up to age 16, or five or more for adolescents 17 and older and adults; symptoms of hyperactivity-impulsivity have been present for at least 6 months to an extent that is disruptive and inappropriate for the person’s developmental level: 1. 2. 3. 4. 5. 6. 7. 8. 9. Often fidgets with or taps hands or feet, or squirms in seat. Often leaves seat in situations when remaining seated is expected. Often runs about or climbs in situations where it is not appropriate (adolescents or adults may be limited to feeling restless). Often unable to play or take part in leisure activities quietly. Is often "on the go" acting as if "driven by a motor". Often talks excessively. Often blurts out an answer before a question has been completed. Often has trouble waiting his/her turn. Often interrupts or intrudes on others (e.g., butts into conversations or games) What is ADHD? DSM-5 Criteria for ADHD In addition, the following conditions must be met: • Several inattentive or hyperactive-impulsive symptoms were present before age 12 years. • Several symptoms are present in two or more setting, (e.g., at home, school or work; with friends or relatives; in other activities). • There is clear evidence that the symptoms interfere with, or reduce the quality of, social, school, or work functioning. • The symptoms do not happen only during the course of schizophrenia or another psychotic disorder. The symptoms are not better explained by another mental disorder (e.g. Mood Disorder, Anxiety Disorder, Dissociative Disorder, or a Personality Disorder). What is ADHD? Based on the types of symptoms, three kinds of ADHD can occur: 1. Combined Presentation: if enough symptoms of both criteria inattention and hyperactivity-impulsivity were present for the past 6 months 2. Predominantly Inattentive Presentation: if enough symptoms of inattention, but not hyperactivity-impulsivity, were present for the past six months 3. Predominantly Hyperactive-Impulsive Presentation: if enough symptoms of hyperactivity-impulsivity but not inattention were present for the past six months. Because symptoms can change over time, the presentation may change over time as well. (But ADHD is usually a life-long condition.) Is It Real? Lots of Overlap… ASD ADHD Is it possible they are on the same spectrum? Classic Autism • • • • • “High Functioning” Autism ADHD? Symptom similarities Personality similarities Co-morbid disorder similarities Genetic similarities Treatment similarities Sources: Kennedy, 2002; Anckarsater, et al. 2006; Kotte, et al. 2013; Polderman et al. 2014 Is it Possible to Have Both? • • • • • Always thought to be exclusive DSM-4 said it was not possible Research, however, kept finding both… DSM-5 (2013) says yes! Tons of new research needed on the relationships between the two and the effects of what is called “co-morbidity”! Co-Morbidity • Between 25%-66% of those with ADHD also demonstrate significant ASD symptoms (Mulligan, et al. 2009) • Between 30-75% of those with ASD also demonstrate significant ADHD symptoms (Atwood, 2007; Lee & Ousley 2006) Co-Morbidity • Recent research indicates that if only the ADHD is identified first • Children initially diagnosed with ADHD received their autism diagnosis 3 years later on average • The delay in diagnosis proved true regardless of the child’s age or severity of autism symptoms (Miodovnik, et al, 2015) A Whimsical Portrait of a Young Man with ADHD and Autism Spectrum Disorder… Guess the Success • Did not speak until age 4 • Suspected of being “mentally retarded” by his doctors • Significant learning disabilities—termed “hopeless” and “disruptive” by teachers • Had to be taken out of class at age 7 and home-schooled • Unconscious of his personal appearance • Irregular sleep patterns • Difficulty maintaining steady employment—often fired • Emotionally detached • Told exaggerated stories—often altered the truth to fit his needs • Experienced frequent anxiety and depression • Loved to perform for others • Distant and indulgent as a father • Extremely easy to approach, but distant and “mysterious” even to his friends • Neglected personal needs in favor of focused activity • Intensely interested in science experiments • Unaware/uncaring of the effects of his experiments/actions on others • Perfectionistic and extremely routine oriented • Highly ambitious—determined to be rich and famous • Started over 100 companies and received over 1000 patents for his world-changing inventions! Answer: Thomas Edison The combination of ASD and ADHD symptoms turned into a unique strength for Edison; And Changed the World!!! ASD in the Classroom Autism = Disorder of Extremes!!! Interruptions or over-talkative Non-responsive or extremely quiet Correcting instructor or classmates Mannerisms or noises (nonverbals) Great difficulty with “changes”/transitions Hygiene, dress, and grooming Meltdowns, shutdowns, or outbursts Sensory integration issues (“stimming”) Meltdowns and Shutdowns… • STAGE 1: RUMBLING During this stage, the student exhibits behaviors that are minor (e.g. shaking their foot, clearing their throat, tapping their fingers) but still out of the ordinary. The behaviors may become more overt (e.g. threatening a classmate) as a student becomes increasingly anxious or frustrated. • STAGE 2: RAGE (OR MELTDOWN) During this stage, the student has been hijacked by his or her own emotions and loses control. These behaviors can be external (e.g. hitting or screaming) or internal (e.g. withdrawal), and have the potential to impact the safety of that student or other students. As a teacher, you should do everything in your power to keep rumbling behaviors from escalating into a full blown meltdown. • STAGE 3: RECOVERY During this stage, the behaviors have stopped, but the student is not yet ready to learn new material. Do not punish!!! ASD Sensory Issues Students with ASD often experience significant challenges from simply being in the classroom as a result of sensory issues!!! • Too Much or Too Little? • Major source of Meltdowns • Think in terms of “replacing” rather than “extinguishing” • Behavior (“Stimming”) Sensory issue Possible Strategies Examples: • Chewing gum vs. constant nose-blowing • Carpet swatch under desk or “fidget” item vs. picking at skin • Doodling on paper vs. head down during lecture ADHD in the Classroom • Inability to pay attention/listen • Distracted by external stimuli • Wanting to leave the room • Attendance poor or not at all • Poor organization • Loud and disruptive Dr. Tony Attwood: “ Professionals and service agencies tend to see children and adults with [these disabilities] who are having problems that are highly conspicuous and difficult to treat or resolve, and this may lead to an overly pessimistic view of the long-term outcome.” The Complete Guide to Asperger’s Syndrome, 2007; emphasis added ADHD Strengths • • • • • • • • • • • • • Great imagination Creative Leadership Abilities Risk taker Persuasive Animated Hyperactivity (Productive) Impulsivity (Decisive) Exciting Presenters Intuitive Spontaneous Trusting (sometimes too much so) Forgiving (sometimes too much so) • • • • • • • • • • • • • Sense of Humor Passionate Flexible Curious Fun-loving Adventurous Sensitive Warm Hearted Musical Artistic Incentive driven Visionary Idealistic ASD Strengths Powerful learning style strengths (implicit; vis/spat.; log/math; naturalistic; etc) Exceptional rote memory (often vast stores of facts and figures) Exceptional visual abilities (static spatial, illusions, patterns, colors, etc) Exceptional auditory abilities (hyperconnected auditory brain centers) Superior ability to process/locate information Laser-like focus of energies/attention on topic of interest Highly deductive/analytic Strongly logical—able to make more rational decisions than NT’s Ability to put ideas together in a unique manner—highly creative Exceptional ability with puzzles, mazes, and word games Ability to thrive on routines and clear expectations Valuable employment characteristics: persistent, accurate, logical, reliable Five times more likely than “neurotypicals” to have perfect pitch Ten times more likely to have savant skills (music, art, calculation, etc) Great honesty and respect for rules Deep concern, caring, and love for “safe” beings Deep curiosity and desire to learn (usually prefer independent learning) Idealism and a strong sense of right and wrong/social justice Often natural leaders Perfectionism Exceptional ability to systematize Sources: Attwood (2007); Baron-Cohen (2008); Dolan et al (2008); Happe (1999); Heaton et al (2008); Grandin (2008); Remington et al (2012); Reser (2011); Samson , et al (2011); Stewart (2007); Xiong (2012) “Recent data…suggest it’s time to start thinking of autism as an ADVANTAGE in some spheres, not a cross to bear.” ~Dr. Laurent Mottron, University of Montreal Challenges when you have both… • Individuals with dual ASD & ADHD are more impaired • Challenges of one can cancel out Strengths of the other • Higher risk for personality disorders in adulthood • More research needed!!! • There may also be unforeseen positives • Distraction may be worse (perhaps more reasons for the brain to lose focus?) • Distraction is bad enough for so-called “neuro-typicals” in the Age of Distraction Sources: Saccani, et al (2013); Anckarsater, et al (2006) The Age of Distraction (“Pearls Before Swine” by Stephan Pastis) Forests and Trees… “Differential Diagnosis” Some Questions to ask: • Why are they not paying attention? – ADHD = distracted, racing thoughts, often external – ASD = processing, deep thought, usually internal – Both = Sensory issues (more extreme in ASD) • What are they paying attention to? – ADHD = something with high feedback/novelty – ASD = something in line with special interests • Why are they struggling socially? – ADHD = impulsivity or hyperactivity – ASD = lack of interest or ability to process non-verbals (Davis & Kollins, 2012) ASD, ADHD, or Both? Behavior Issue More Like ASD Could be Either/Both More like ADHD Friendships Not terribly interested in making friends, tends to be socially anxious or see peers as objects Bullied (or a bully); Lonely— avoided by peers; Perceived as overbearing; Often interested in performing for others Makes friends easily, but loses them quickly; Likes to “show off” Video Games Likes to focus on the rules, setting, and mechanics of the game; often shows repetitive or asocial quality to their play Plays games for hours; Difficulty regulating interest; Seems obsessed or addicted Likes the instantaneous feedback, high stimulation, and fast pace of the game; often sees it as a way to socialize Reciprocity/ Sharing Creates for self first; often neglects basic social reciprocity Perceived as rude or anti-social; Interrupts; Grabs objects Trouble waiting for turn or for instructions; blurts out answers Poor planning and organization Gets stuck in the details; lacks “big picture” or ability to see main ideas; loses track of time pursuing special interest Difficulty with deadlines; difficulty “caring” about the expectations of others Difficulty keeping track of assignments/materials; difficulty seeing the steps; forgets about commitments/appointments Movement/ Motor issues Repetitive, rhythmic, selfstimulating movements; poor at sports; stiff or uncoordinated; doodles constantly; anxious Constantly moving or fidgeting; Poor handwriting; “sloppy” work; difficulty staying seated; hits others; trouble relaxing/slowing Movement more coordinated and energetic; movement aids concentration and executive function; good at sports ASD, ADHD, or Both? Behavior Issue More Like ASD Could be Either/Both More like ADHD Nonverbal difficulties Poor eye contact; rigid posture; inexpressive face (flat affect); needs lots of personal space Mismatched or unstylish clothes; poor hygiene and grooming; fails to read others’ body language Often touches or invades others’ personal space; misses facial or body cues because of inattention Verbal difficulties Monotonous or odd prosody; uses words that are “wrong”; Very quiet; talks endlessly about the same subject(s); echolalia Excessive talking; interrupts or injects self into conversations that may or may not involve them; quotes movies/TV a lot Switches topics frequently; Makes constant ongoing comments/noises/narration; Asks people to repeat information/instructions Perseverative Interests Fascinated with inherent systems; stereotypical fixation on movement, objects, rules, maps, schedules; difficulty with change Capable of focusing for hours on areas of interest; hyperfocused Often “burns through” an interest and moves on to a new object of hyperfocus Dangerous/Risky Behaviors Doesn’t understand the physical or social consequences/context; Is hyperfocused or hyperstimulated Seems oblivious to danger; tendency to be accused of stalking and/or harassment Makes decisions impulsively, without taking the time to think through the consequences Poor grades School and schoolwork is high stress; gets caught up in the minute details and perfectionism Learning disabilities; Dislikes school; Dislikes group work; Lots of incomplete or missing assignments Loses assignments and materials, starts a project but doesn’t finish, unable to spend the time needed DEALing with Inappropriate Behaviors 1. D • ABC’s (antecedent, behavior, consequences)? • Sensory/Biological factors? • Purpose of behavior? (what were they TRYING to do?) 2. E • Comprehension or communication deficits • Physical/Biological Factors (health, pain, comorbid, etc) • Sensory Factors (hyper/hypo stimulation, boredom, etc) 3. AL • Facilitate Communication! (student, family, & educational team) • Teach social/emotional coping skills as well as academic skills • Therapy as necessary (CBT, ABA, Group, etc) Effective Interventions: 1. Work with a provider that knows enough about ASD and ADHD to differentiate behaviors 2. Differential diagnosis can help identify a specific target and its likely source – E.g., Differentiate what is ADHD v. ASD and then measure either the specific ADHD or ASD symptoms during intervention 3. Choose evidence‐based interventions for your target behavior (use online resources for most up-to-date) 4. Not a bad idea to try to focus on interventions that will work for BOTH conditions! Effective Interventions: • Interventions for combined ASD/ADHD are still untested • Interventions effective for each are readily available • Try combinations based on the target symptom(s)! Effective Interventions For BOTH: Instructional Strategies 1. Antecedent intervention strategies 2. Scaffolding/Task Analysis 3. Explicit instruction 4. Literacy strategies 5. Active-learning strategies 6. Graphic organizers 7. Video Modeling 8. Self-Management (Fluery et al., 2014) Effective Interventions For BOTH: Antecedent Interventions: 1. Priming 2. Academic Modifications 3. Visual Supports/Schedules 4. Planners/Organizers 5. Environmental Modifications • • • • • • Environmental Modification Arrangement and seating Color Lighting Temperature Distractions Stimulation Level Effective Interventions For BOTH: Behavioral Strategies 1. ABA 2. “Home Base” 3. Token Economies 4. Social Skills Training 5. Planned Distractions 6. Relaxation Techniques 7. Problem Solving Systems 8. Procrastination/Delay Systems 9. Know when/how to disengage! 10.Occupational Therapy and/or Sensory Integration Therapies (“Mindfulness”) Effective Interventions For BOTH: Home-coordinated Strategies 1. Homework supports – Build in rewards – Build in breaks (20/5 Timer) – Set times/places (low distraction) 2. Planner supports (reinforce the system) 3. Sleep supports (sleep hygiene, Melatonin) 4. Teacher supports (invite teacher to home!) 5. Medication supports (make sure it’s addressed) Pharmacotherapy • Most ADHD medications have also shown to be some help with ASD symptoms (though not as effectively) • Methylphenidate (brand names: Concerta, Methylin, Medikinet, Ritalin, Equasym XL, and Quillivant XR) • Amphetamine/phenethylamine (brand name: Adderall) • Atomoxetine (brand name: Strattera; better for both?) • Guanfacine (brand name: Estulic, Tenex, and Intuniv) (Davis & Kollins, 2012; Saccani, 2013) Medication Concerns… If you can get the results without it… avoid it. But if you can’t, the positives seem to outweigh the negatives. Other Effective Intervention Tips : • Use the “Rule of 2” • Get your MBA— “Master of Being About” • Find ways to say YES [but] (avoid “No”, “Stop”, and “Don’t”) –focus on what it is you WANT them to do! • Always give PURPOSE for desired actions • Teach SYSTEMS that break down tasks for specific results, and help them to run these independently • Social Stories (often in the form of videos) • PRAISE – PRAISE - PRAISE! (make things feel GOOD!) • Pick your battles! • Don’t forget Sleep, Exercise, and Diet! The Ziggurat Model Developed by Dr. Ruth Aspy and Dr. Barry Grossman, 2008 1. Take care of issues first 2. Set up appropriate to the student (and tied to their interests, if possible) 3. Set up to make the task more easy, concrete, and comprehensible 4. Use to make sure that the steps of the system are the right size and taught in the right order (& include supports) 5. Finally, you are ready to ! Some Closing Thoughts… 1. See through the behaviors to see the disorder symptoms (your plans to address the symptoms) • Remember: Kids want to do well! If they believe that can succeed at a reasonable request, they will usually try! Thank You For Your Time! • If you missed something, or want copies or whatever, please feel free to contact me! • jareds@svacademy.org