Advancing Ireland’s National Disability Strategy: Building on Comparative and International Innovation Centre for Disability Law and Policy, National University of Ireland Galway/ Ollscoil na hÉireann, Gaillimh December 10, 2010 Using indicators of disability equality to measure progress in implementation of CRPD Jerome Bickenbach Swiss Paraplegic Research Convention on the Rights of Persons with Disabilities Article 31 - Statistics and data collection 1. States Parties undertake to collect appropriate information, including statistical and research data, to enable them to formulate and implement policies to give effect to the present Convention. Article 33 - National implementation and monitoring 2. States Parties shall … establish a framework, including one or more independent mechanisms, as appropriate, to promote, protect and monitor implementation of the present Convention. Standard Monitoring Scheme Rights determine the goals Targets operationalise goals Indicators are measurements of targets Data sources provide measurement data MDG’s: Monitoring in terms of Goals and Targets The benefits and dangers of rights The benefits and dangers of rights Gaining the benefits but avoiding the dangers… Take care to interpret rights… concretely narrowly realistically focused but flexable … So that implementation can be monitored and MEASURED Choice of indicators must satisfy these criteria: • Population data available • Data can be disaggregated for PwDs and others • Longitudinal ***** • A change in the measure clearly represents progress towards equality. UK Office for Disability Issues, 2005 Path A … Does the State Party have an disability antidiscrimination law? Cost of obtaining monitoring data c. 0 Value of data for monitoring of CRPD c. 0 European Disability Strategy 2010-2020: A Renewed Commitment to a Barrier-Free Europe (15.11.2010) 3 — Statistics and data collection and monitoring The Commission will work to streamline information on disability collected through EU social surveys (EU Statistics on Income and Living Conditions, Labour Force Survey ad hoc module, European Health Interview Survey), develop a specific survey on barriers for social integration of disabled people and present a set of indicators to monitor their situation with reference to key Europe 2020 targets (education, employment and poverty reduction). The EU Fundamental Rights Agency is requested to contribute to this task, within the framework of its mandate, by data collection, research and analysis. The Commission will also establish a web-based tool giving an overview of the practical measures and legislation used to implement the UN Convention. EU action will support and supplement Member States’ efforts to collect statistics and data that reflect the barriers preventing people with disabilities from exercising their rights. Supplement the collection of periodic disability-related statistics with a view to monitoring the situation of persons with disabilities. European Disability Strategy 2010-2020: List of Actions Article 27 - Work and employment 1. States Parties recognize the right of persons with disabilities to work, on an equal basis with others; this includes the right to the opportunity to gain a living by work freely chosen or accepted in a labour market and work environment that is open, inclusive and accessible to persons with disabilities. States Parties shall safeguard and promote the realization of the right to work, including for those who acquire a disability during the course of employment, by taking appropriate steps, including through legislation, to, inter alia: .... Article 27 - Work and employment (a) Prohibit discrimination on the basis of disability with regard to all matters concerning all forms of employment, including conditions of recruitment, hiring and employment, continuance of employment, career advancement and safe and healthy working conditions; (b) Protect the rights of persons with disabilities, on an equal basis with others, to just and favourable conditions of work, including equal opportunities and equal remuneration for work of equal value, safe and healthy working conditions, including protection from harassment, and the redress of grievances; (c) Ensure that persons with disabilities are able to exercise their labour and trade union rights on an equal basis with others; (d) Enable persons with disabilities to have effective access to general technical and vocational guidance programmes, placement services and vocational and continuing training; (e) Promote employment opportunities and career advancement for persons with disabilities in the labour market, as well as assistance in finding, obtaining, maintaining and returning to employment; Article 27 - Work and employment (f) Promote opportunities for self-employment, entrepreneurship, the development of cooperatives and starting one’s own business; (g) Employ persons with disabilities in the public sector; (h) Promote the employment of persons with disabilities in the private sector through appropriate policies and measures, which may include affirmative action programmes, incentives and other measures; (i) Ensure that reasonable accommodation is provided to persons with disabilities in the workplace; (j) Promote the acquisition by persons with disabilities of work experience in the open labour market; (k) Promote vocational and professional rehabilitation, job retention and return-to-work programmes for persons with disabilities. IS COMPROMISE POSSIBLE? Relevant CRPD indicators …supported with data that can be feasibly collected? Central Statistics Office National Disability Survey, 2006 Section 1 Type of Disability Section 2 Caring and Help from Other Persons Section 3 Attitudes of Other People Section 4 Transport Section 5 Built Environment Accessibility Section 6 Education Section 7 Work and Training Section 8 Social Participation Section 9 Sport and Exercise Section 10 General and Demographic Information Central Statistics Office National Disability Survey, 2006 Section 1 Type of Disability [Seeing, Hearing, Speech, Mobility and dexterity, Remembering and Concentrating, Intellectual and Learning, Emotional, Psychological and Mental Health, Pain, Breathing] Do use USE any of the following aids for your difficulty... Are there any of the following aids that you are aware that you need but do not have? Cf Canadian Participation and Activity Limitation Survey 2006 Are there any aids, specialized equipment or services for persons who are deaf or hard of hearing that you think you NEED but do not have? Central Statistics Office National Disability Survey, 2006 Section 7 Work and Training Have any of the following reasons discouraged you from looking for work in the last 6 months? • You would lose some of your current income if you went to work • Lack of accessible transport • Information about jobs is not accessible • You worry about being isolated by other workers on the job Encuesta sobre Discapacidades, Autonomía personal y Situaciones de Dependencia 2008 Discapacidad sin ayuda Tipo de ayudas Discapacidad con ayuda WHAT‘S AT ISSUE? Without appropriate CRPD indicators, supported by relevant and available data, there is no monitoring no meaningful implementation no meaningful rights….