Social Media and the Digital Physician #UCIMedGrandRounds UC Irvine Department of Medicine Grand Rounds October 16, 2012 Robert S. Miller, MD, FACP, FASCO Clinical Associate, Breast Cancer Program Johns Hopkins University School of Medicine Oncology Medical Information Officer Sidney Kimmel Comprehensive Cancer Center Objectives Describe social media tools and applications relevant to healthcare and medicine Define current levels of social media adoption by physicians Demonstrate how social media can be used by physicians for professional education/continuous professional development, networking, clinical trials promotion, and patient education through authoritative health messaging Identify institutional and individual best practices for social media Social media is user generated content that is shared over the internet via technologies that promote engagement, sharing and collaboration.* * Definition from The Social Media Guide.com weill.cornell.edu Social media is the second Internet revolution. Used w/ permissions GNU License http://en.wikiversity.org/wiki/File:Web_2.0_elements.png http://en.wikiversity.org/wiki/File:Web_1.0_elements.png weill.cornell.edu http://www.flickr.com/photos/interactegypt/6882960792 Attribution-NonCommercial-ShareAlike 2.0 Generic (CC BY-NC-SA 2.0) “Facebook hits milestone of 1 billion users” --Washington Post 10/4/12 (CC) JD Lasica, socialmedia.biz Attribution-NonCommercial 2.0 Generic (CC BY-NC 2.0) “Presidential Debates 'Most Tweeted' Event In (Post-Twitter) U.S. Political History” --Forbes 10/4/12 http://blog.twitter.com/2012/10/dispatch-from-denver-debate.html Social media categories & applications • • • • • Blogging – WordPress, Blogger (Google) Microblogging – Twitter, Tumblr Social networking – Facebook, Google+, LinkedIn Collaborating – wiki’s, Google Docs Multimedia content sharing – YouTube, Flickr, podcasts, Instagram, Pinterest, Prezi, Slideshare • Social bookmarking – Diigo, Delicious, CiteULike • Rating/reviewing – Yelp, Epinions • Location-based social networking – Foursquare http://instagr.am/p/nm695 via @DouglasWRay “Why would any physician bother with this stuff?” “Isn’t it risky and a total waste of time?” “I don’t get Twitter.” Our patients are online, and they expect us to be there, too… Pew Internet & American Life Project Peer-to-peer healthcare February 28, 2011 80% of Internet users (59% of all U.S. adults) search for health information online 34% of Internet users have read someone else’s commentary or experience about health or medical issues on an online news group, website, or blog 24% of Internet users have consulted online reviews of particular drugs or medical treatments 18% of Internet users have gone online to find others who might have health concerns similar to theirs (especially those with chronic diseases) http://pewinternet.org/Reports/2011/P2PHealthcare.aspx http://www.pewinternet.org/~/media//Files/Presentations/2012/Sept/FoxMed2Panel_PDF.pdf Our institutions are online… 3 ways physicians might use social media 1. To treat – engaging directly w/ patients about care 2. To teach – providing timely & credible education 3. To learn – sharing of medical information/knowledge Bucket 1 Bucket 2 Bucket 3 Bucket 1 Bucket 2 Care Info Bucket 3 Info Data re physician adoption of social media Reviewing social media use by clinicians (von Muhlen & Ohno-Machado) Systematic review of 370 articles indexed in PubMed (50 in final data set, 15 addressed adoption) Shortcomings – variable definitions of social media Wikipedia: 70% junior physicians use as medical reference Facebook: Use by 64-96% health sciences students, 13-47% of professionals Extent and impact of use of social media by clinicians not well characterized; lack of common terminology & research methods J Am Med Inform Assoc 2012;19:777-781 doi:10.1136/amiajnl-2012-000990 Physicians who use social media and other internet-based communication technologies (Cooper, Gelb, et al.) Epocrates-sponsored DocStyles survey 2009: 1750 physicians in 4 primary care specialties + dermatology Surveyed use in the preceding 6 months of “Internetbased communication technologies” Participation in social networking sites = 59% Downloading podcasts = 41% Subscription to RSS feeds = 19% Blogging = 13% Age 35-44, male sex, and practicing in a teaching hospital modestly correlated with increased use Personal vs. professional use not distinguished J Am Med Inform Assoc doi:10.1136/amiajnl-2011-000628 http://www.quantiamd.com/q-qcp/DoctorsPatientSocialMedia.pdf http://www.quantiamd.com/q-qcp/DoctorsPatientSocialMedia.pdf The “Meaningful Use” of Social Media by Physicians Brian S. McGowan, Ph.D. Senior Director, Oncology; Medical Education Group, Pfizer Inc Chair, Committee on Emerging Technologies in Education Alliance for Continuing Medical Education Consult Columnist, Social Media Connections Medical Meetings, A MeetingsNet Magazine Presented at “Medicine 2.0” September, 2011, Stanford, CA A collaborative study Adoption and Use of Social Media by Physicians to Share Medical Information McGowan B, Vartabedian B, Miller R, Wasko M: The “meaningful use” of social media by physicians for learning. Presented at Medicine 2.0 ‘11, 4th World Congress on Social Media & Web 2.0 in Health, Medicine, & Biomedical Research, Stanford, CA www.medicine20congress.com/ocs/index.php/med/med2011/paper/view/764 Defining ‘Sharing Medical Information’ • Sharing medical knowledge is defined as the exchange of information, advice, ideas, reports and scientific discoveries with other physicians in the medical community. Bucket 3 Survey Sample Demographics Oncology n = 186 Primary Care n = 299 100% 100% 24 years/10 24 years/9 75% 72% 100 patients/56 124 patients/73 Urban Suburban Rural 47% 44% 9% 23% 60% 17% Solo Practice Group Practice Medical School Non-Government Hospital 12% 68% 9% 5% 34% 60% 1% 3% Demographic Characteristics Degree MD/DO Years since graduation from medical school Mean/St. dev. Percent Male Patients seen per week Mean/St.dev. Practice Location Practice Setting Sharing Medical Knowledge Email 1 10 Restricted Online Communities 2 5 Texting 1 9 Cell Phone Apps 3 9 i-Tunes 5 Wikipedia/Wikis 3 YouTube 4 Facebook 2 Podcasting Blogs 52 14 31 18 16 21 43 26 47 33 13 19 25 Not Aware Will Never Use 23 Unlikely/Not Sure 19 17 54 19 27 10 48 21 13 10 43 16 22 36 37 21 3 40 38 14 0% 19 35 2 RSS Feeds 71 22 5 LinkedIn Twitter 18 Likely/Very Likely 13 7=Current user 13 11 9 11 50 8 7 49 10 6 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% Adopters versus Adamant Non-Adopters % of Physicians 80 71 70 60 52 50 40 33 30 20 10 26 21 13 6 40 36 7 19 11 11 16 13 19 21 23 27 25 16 18 9 0 Will Never Use Current user 9 5 1 Adamant Non Adopters: ONCs vs PCPs % of Physicians 40 35 Oncologists more skeptical overall than PCPS 30 25 20 15 ONC 10 PCP 5 0 • • • • http://www.jmir.org/2012/5/e117 24% use SM daily to explore/share medical information; 14% use SM daily to contribute 60% say SM improves quality of pt care Oncologists more likely to use SM due to “personal innovativeness” PCP’s more likely to use SM to have access to peers January 2010 Sept 2012 http://rsm2800.blogspot.com http://jop.ascopubs.org/site/podcasts/index.xhtml Costs Twitter = $0 (Twitter account) $0 (TweetDeck for Mac/PC) $2.99 (TweetBot for iOS) $2.99 total Blog = $0 (Google Blogger account) Podcast = $0 (cost of posting to iTunes) $0 (Skype account/software) $0 (additional cost of GarageBand) $99 (USB studio microphone) $99 total Why I like Twitter Low barrier to entry Platform agnostic Minimal requirements for content production (140 character tweets vs. 500-word blog posts) Emphasis on frequency, breadth not depth Asymmetric (“following” does not require reciprocation) Ability to embed shortened links #hashtags = metadata Instantaneous dissemination of information Diagram of a Tweet “@” + username calls that user’s attention to message “shortened” link Actions you can take after posting Science at the heart of medicine 6/21/2016 | 45 Diagram of a ReTweet 2nd RT indicates @EinsteinMed is fowarding this message RT + @user = referencing original message creator # Hashtags = easier way to find groups of tweets Science at the heart of medicine 6/21/2016 | 46 How I use Twitter every day - outbound • Part of my daily online workflow – share content with my 2200+ followers • What I tweet: o Usual topics – breast oncology, health IT/informatics especially EHR’s, social media o News stories (e.g., AMA News, MedPage, WSJ, NYT) o Journal articles (NEJM, JCO, JOP, Annals, JAMIA, etc.) o Blog posts o Occ. random observations & pictures o Almost never what I ate for breakfast • Embed links to extend content How I use Twitter every day - outbound How I use Twitter every day - inbound • Twitter accounts I follow: o Oncologists & other MD’s o Thought leaders in organized medicine & IT o Journalists, bloggers, patient advocates, public figures o Professional societies, institutions o Not necessarily everyone who follows me • New insights – patient empowerment, patient-centered health IT, safety/quality How I use Twitter (cont.) • Is there enough time? o Interaction with this personal learning network replaces time spent surfing news & journal sites • Crowdsourcing questions o Kent Bottles, MD: “My research department works for free and is scattered across U.S.” Professional opportunities that resulted from my use of social media • Invited to participate in IRB-approved research study on social media (manuscript published) • Invited commentary in national oncology periodical • Interviewed by AMA News on health IT topics • Invited to lecture at class for physician writers at Johns Hopkins • Developed ties to national breast cancer advocacy community • Increased visibility but no academic advancement…yet 1. Highly tweeted articles were 11 times more likely to be cited than less-tweeted articles 2. Top-cited articles can be predicted from toptweeted articles with 93% specificity and 75% sensitivity How to use Twitter at a medical conference • • • • • • • Twitter before, during, and after Twitter as conversation starter Twitter as feedback monitor Twitter as influence generator Twitter as event planner Twitter as goodwill creator Twitter as impact maker Sinclair C (2011, Sept). How to use Twitter at your next medical conference http://www.kevinmd.com/blog/2011/09/twitter-medical-conference.html Use of Twitter at medical conferences Twitter usage at ASCO Annual Meeting • #ASCO10: 684 users, 4456 tweets (14 MD’s=979 tweets) #ASCO11: 1537 users, 8188 tweets (34 MD’s=1477 tweets) Chaudhry A, Glode LM, Gillman M, Miller RS (2012). Trends in Twitter use by physicians at the American Society of Clinical Oncology Annual Meeting, 2010 and 2011. J Oncol Pract 8:173-178. http://jop.ascopubs.org/content/8/3/173.full Blogging: Promoting participation in clinical trials YouTube Promoting clinical trials Promoting Participation in Clinical Trials Providing links to Clinicaltrials.gov Social media & clinical trials Engage your institution’s media department and the sponsor before creating Facebook page/Twitter account Determine if IRB review required No proprietary information Avoid claims about efficacy or discussion about side effects No disclosure of trial results Monitor posts to avoid HIPAA violations No screening of subjects via social media Link only to sites for more info (e.g., clinicaltrials.gov) No blogging about conduct of study (can be viewed as advertising) Adapted from Table 3 in Dizon DS et al J Oncol Pract Sep 1, 2012:e114-e124 Additional considerations re the value of social media for physicians Defining your own digital footprint Reputation management/crisis control Creation/dissemination of authoritative content >> misinformation and pseudoscience online Vaccine/autism example Required literacies for the digital physician Network awareness/collaboration Input management Creation/translation Mindfulness --Dr. Bryan Vartabedian, 33charts.com http://33charts.com/2012/09/new-physician-literacies.html http://33charts.com/2011/12/physicians-risk-opportunity-social-media.html JAMA. 2012;307(11):1141-1142. doi:10.1001/jama.2012.330 Professionalism in the Use of Social Media (AMA Policy 11/8/10) Always maintain patient privacy/confidentiality. Monitor own Internet presence/use privacy settings on SM (know they are not absolute). Maintain boundaries when interacting with patients online. Consider separating personal & professional online accounts. Police colleagues’ online behavior. Online behavior can affect reputation & undermine trust in the medical profession. http://www.ama-assn.org/ama/pub/meeting/professionalism-social-media.shtml J Oncol Pract September 2012 vol. 8 no. 5 e114-e124 Mayo Clinic 12 Word Social Media Policy Don’t Lie, Don’t Pry Don’t Cheat, Can’t Delete Don’t Steal, Don’t Reveal --Farris Timimi, M.D., Medical Director, Mayo Clinic Center for Social Media http://socialmedia.mayoclinic.org/2012/04/05/a-twelve-word-social-media-policy My version… Don’t be anonymous Don’t be stupid Remember everyone’s watching Developing trust in your online community takes time – maintain a healthy skepticism How to get started • Be a lurker first o Read blogs, listen to podcasts, learn how to use RSS feeds for journals & news sites • Join Twitter o Pick a short, descriptive handle, use a real photo as an avatar o “Who to follow” Twitter suggestions, follow people others follow o Give it time to grow • Share content – links to articles and stories that interest you • Create content – blog • Cultivate your network – RT’s, #FF, @replies Conclusions Social media (SM) has become embedded in our culture, and its impact on medicine is undeniable. The Internet has democratized information and eliminated traditional filters that constrained access to medical knowledge; SM is the communication channel resulting from this change in paradigm. Physicians can effectively use SM for connection and networking with other physicians and scientists both inside of and outside of traditional spheres of influence. SM provides an unparalleled opportunity for the authoritative voice of the physician to be heard in patient education & health messaging. Conclusions (cont.) Physicians will soon have an obligation to move from being passive observers of online conversation to being curators and creators of content. Concerns about patient privacy, liability, and time commitment do not negate the value of participation in SM. Physician professionalism and patient-centered focus trump all other considerations. Track this grand rounds on Twitter: #UCIMedGrandRounds Follow me on Twitter: @rsm2800 Read my blog: rsm2800.blogspot.com