NEURO REHABILITATION UNIT CONTACT DETAILS Switchboard: 0845 1555 000 Ward Administrator: ext. 83094 Nurses Office: ext 83094 Medical Secretary: ext 83486 Department Fax: 020 344 83711 NRU Patient Payphone: 020 7419 0175 Website: www.uclh@nhs.co.uk VISITING TIMES: 10AM TO 8PM In exceptional circumstances, visiting at other times can be authorised by the nurse in charge. Therapy sessions are scheduled throughout the day and these sessions take priority over seeing visitors. Please ask visitors to check your therapy timetable before scheduling visits. 1 Welcome to the Neuro Rehabilitation Unit Clinical Lead: Dr Diane Playford (Consultant Neurologist) The Neuro Rehabilitation Unit (NRU) is a specialist team of health and social care professionals who have special expertise in neurorehabilitation. Rehabilitation helps people to make the best of their potential to regain their functional independence wherever possible. This involves looking at the most appropriate way of carrying out daily tasks such as washing and dressing, moving around, communicating, working and being involved in leisure activities. This includes, for some people, looking at the effects of thinking skills (e.g. memory, concentration) on everyday tasks. In addition, rehabilitation involves addressing the emotional needs of both patients and their family. We are committed to research and audits to ensure we develop the best rehabilitation programme possible for our patients. 2 Your stay on the NRU What to Bring to the NRU If possible, please bring the following items with you when you come to the NRU: Toiletries Your usual wheelchair if appropriate Clothing suitable for use in the therapy gym, e.g., tracksuit/loose clothing, vest tops for ladies, shorts and trainers. Small aids or equipment that you use regularly, e.g., walking frames/sticks, any splints you may use. Please bring your current medication. Contact name and numbers for anyone involved in your care at home e.g., your GP, district nurse, and therapists. When you arrive on the NRU: On the day of admission, please arrive by 10.00am, as the medical team need to meet with you and a joint assessment meeting will be arranged for you. You will be allocated a ‘key worker’ who will be a contact person for you, your family, and your carers. A member of the nursing staff will formally admit you to the NRU. This involves asking questions to ensure that we have accurate information for our records. You will be provided with a welcome folder which will include a weekly timetable indicating your sessions for the week. 3 Please do let your key worker know if you have any particular religious, cultural, dietary or other needs. We will do our best to accommodate your needs. During your first week: You will have a ‘joint assessment’. This is an opportunity for you to meet the team who will work with you and for the team to assess your individual needs. A member of your family, a friend or a carer is welcome to attend the joint assessment. You will also meet each of your therapists individually and they will carry out more detailed assessments of your individual needs. You will meet the consultant on Thursday during the weekly ward round. One of the psychotherapists based on the unit will meet with you briefly to explain their service and ask you to complete a brief questionnaire about how you are feeling. At the beginning of your second week: You will be given a statement outlining what the aims are for your admission (i.e., your long term goal). Your therapy goals and predicted length of stay will be discussed with you by your key worker. Your therapy goals take into account your individual hopes and the team’s professional opinions. Your length of stay on the NRU is determined by your individual needs on a case by case basis. Short term goals are set and reviewed regularly in collaboration with your team and your progress will be monitored. 4 Throughout your stay: All meals are served in the dining room at the following times: Breakfast: 8.30am Lunch: 12.30pm Supper: 6.00pm Therapy sessions will take place at variable times but the main sessions are Monday -Thursday 8:30am – 4:30pm Therapy and Rehabilitation Assistant sessions Friday 8:30am – 12:30pm Therapy sessions Friday 8:30am – 4:30pm Rehabilitation Assistant Sessions Ward Round The weekly ward round takes place on Thursday at 9am. This is an opportunity to ask the medical team and representatives from the therapy team any questions you may have. Every Friday you will be provided with a timetable for the following week. During the weekends and at the evenings, the nurses will assist you to carry out exercises as needed, such as using the standing frame or exercise bike. It is the transfer of skills learnt in the gym to the ward environment that makes the NRU a rehabilitation unit, rather than a medical ward. 5 Family members are encouraged to be involved in the rehabilitation programme and are welcome to attend therapy sessions. Children are welcome to visit and remain the responsibility of their parents whilst on the unit. Please do contact your key worker if you would like your family/carers to attend therapy sessions. During your admission a meeting involving you, your family and/or friends may take place with the team. This will be an opportunity to discuss your therapy to date with your family, carers and the NRU team. Preparing for discharge is an important part of the rehabilitation process and plans for your discharge will be discussed with you regularly during your stay. 6 The NRU Multidisciplinary Team You will be allocated to one of 2 multidisciplinary teams (BLUE or RED). Each team consists of Nursing staff, Physiotherapists, Occupational Therapists, Speech and Language Therapists and Rehabilitation Assistants. Working closely with both teams are Neuropsychologists, Social Workers and Psychotherapists. 7 Further information on the NRU Team: Medical team: The medical team assess and manage your medical needs and are available to discuss your condition with you and your family. Nursing team: The Nursing team assist you to transfer the skills learnt in therapy sessions into your daily routine. Nursing staff are available to discuss and help manage any problems you may have with skin, bladder, bowels and sexual function. Physiotherapists: The Physiotherapists assess and manage difficulties with physical mobility, balance, co-ordination and strength. Occupational Therapists: The Occupational Therapists assess and manage your ability to participate in activities of daily living (e.g. dressing, meal preparation) and address leisure and work issues. Speech and Language Therapists: The Speech and Language Therapists assess and manage communication (e.g., speaking, listening, writing and reading) and swallowing difficulties. Neuropsychologists: The Neuropsychologists identify a patient’s strengths and weaknesses in their thinking skills (memory, attention, planning and problem solving) and work with other therapists to put in place strategies to manage any weaknesses. Neuropsychologists also assess and support patient’s emotional wellbeing. Rehabilitation Assistants: The Rehabilitation Assistants carry out rehabilitation exercises with you under the guidance of therapy and nursing staff. Social worker: The Social Worker provides help and advice regarding housing, finances, and benefits and will liaise with your local Social 8 Services department if you need a care package when discharged home. Social work sessions also provide an opportunity for you and your family to talk about your feelings regarding your disability/situation and the way it may be affecting you. Ward Administrator: The ward administrator is involved in the day to day administration of the unit, including booking transport and distributing weekly timetables. Psychotherapy Team: Rehabilitation involves problem solving not only physical but also emotional and psychological issues. The Psychotherapists work using a confidential problem solving approach which identifies and focuses on individual psychological strengths. On admission all patients meet one of the Psychotherapists for 10 minutes. Following this, psychotherapy sessions are available for patients, family members and carers every Thursday and participation in psychotherapy sessions is confidential and entirely voluntary. Other people you may meet during your stay: Dietitian: The Dietitian provides advice on special diets and supplements if required. Chiropodist: A chiropodist visits once every three weeks. Please do contact the nursing staff if you wish to see the chiropodist. Volunteer: There is a ward based volunteer who visits twice a week. The volunteer can help you with any shopping you may require. Hairdresser: There is a hairdresser who is able to visit the unit on request. 9 Accommodation and Facilities The NRU comprises a ward area, dining/lounge room, a ‘quiet room’, individual therapy rooms, a gym and a kitchen. There are 18 beds divided into 4 single sex rooms and 2 individual side rooms. Allocation of individual rooms is based on medical and therapeutic needs. Each bed space has a wardrobe with small locking cupboard and a hand-held call bell for nursing assistance. We appreciate the importance of you having the same bed area throughout your stay, but occasionally we may need to ask people to change beds. During the course of the admission, your treating team may offer you the option of staying at a local hotel whilst attending the NRU during the day for your therapy. You would be provided with a private room and breakfast and have all other meals on the unit. This would also give you an opportunity to put your rehabilitation goals into practice in preparation for returning home. 10 Useful Information Food and drinks There is a hot drinks machine and water dispenser in the dining room for patient use. There is also a fridge where you can store food and drinks. Please label clearly all items with your name and date otherwise they may be removed. Restaurant The hospital has a restaurant for visitors that is located in the basement and is open seven days a week. Washing Machine A washing machine is available if washing is one of your therapy goals, or if you do not have anyone who can do your washing for you at home. The washing machine is only available before 8.30am and after 4.30pm. Please do inform a member of staff before using the machine and provide your own washing powder. Telephones Friends and family are able to phone the ward to speak to a member of the NRU team. Please use your mobile considerately (i.e., not at night or during therapy sessions). There is also a pay phone on the unit which only accepts coins. 11 Activities The NRU has a pool table, television, a selection of board games and reading materials. Smoking Smoking is not permitted anywhere on Trust premises. Please consult your key worker if you would like support with giving up smoking. Alcohol We regret that we are unable to permit the consumption of alcohol on the NRU. Transport If you are being admitted to the NRU from your home and require transport you will need to ask your GP to arrange this for you. When you are discharged, you may be eligible for hospital transport and your key worker will liaise with you regarding discharge transport arrangements Security We regret that we can not guarantee the safety of personal items of value and, therefore, strongly advise that any such items (either monetary or sentimental) are kept at home. In addition, we recommend that visitors do not leave their bags and coats unattended whilst in the hospital. A small amount of loose change is useful for buying newspapers, etc., but you are urged not to keep items such as bankcards with you. We can store these items safely in a safe until your discharge. 12 Leaving the Ward Areas If you would like to leave the ward areas please inform the nursing staff or the ward administrator and please return before 9.00pm. Please ensure that you are on the ward for all sessions. If it is appropriate, you may be able to go home for the weekend. You will need to arrange your own transport home if you take weekend leave. Students The National Hospital for Neurology and Neurosurgery (NHNN) is a teaching hospital which means that students of all health care professions have work placements on the Unit. A qualified member of the NRU team will supervise all students during their work placements. Research The NHNN is an international centre of excellence with close links to the Institute of Neurology and other departments at University College London. You may be asked to help with research and your involvement is entirely voluntary and dependent upon your consent. You are able to refuse to participate in research and this will not in any way affect your care. 13 Patient Feedback We actively seek your opinion of our service, so that we can identify areas for improvement. Please do not hesitate to let us know if you have any comments or feedback. Patient Information Please refer to our information rack in the dayroom where we keep up-todate information of relevant Trust policies and local resources. Please do ask your key worker if there is any further information you require. Additional Notes Produced: June 2009 Last updated: October 2009 Review due: October 2010 Copyright: University College London Hospitals NHS Foundation Trust 2009 14