AAAI Technical Report SS-12-05 Self-Tracking and Collective Intelligence for Personal Wellness Design Probes into Nutrigenomics: From Data to User Experiences Denisa Kera National University of Singapore denisa@nus.edu.sg Abstract merge with everyday situation like dining. We hope to understand the various ways in which we can connect the science labs with our kitchens and dining tables with data travelling across various scales. How will these future services and interfaces for data harvesting, crowdsourcing, and visualizations work in our everyday life? What type of new collectives and ecologies these data make apparent or create? In this position paper we identify and discuss design issues involved in future nutrigenomics and nutrigenetics interfaces and services based on connecting heterogeneous data from food flows (farm to fork) to food consumption and body interaction of nutrients with DNA, microbiome etc. How to connect data from farm to fork to phenotype and what type of user experiences these data enable? What should be the function of these interfaces connecting such heterogeneous data from DNA molecules, bacteria, food economy to social and cultural practices of eating? In order to answer these questions, we conducted critical design probe into the future of dining in the form of a personalized DNA dinner and envisioned several future scenarios on the future of eating. Data and User Experience Who is interacting with who and with what on services monitoring and visualizing data from tweets, automatic tracking of software use on Mypoyozo (http://mypoyozo.com/), citizen science projects on sampling of microorganisms in Bioweathermap (http://bioweathermap.org/), and similar initiative on health, environmental, and food data? Do quantified and tweeting, heavily monitored and selfreporting animals, humans, environments and food create some new uniformity, a dangerously homogenous, objectified and standardized collective or these data offer some new opportunity for interaction? Are we creating new symbiotic relations over these data that can lead to a new sense of community or we are witnessing some depersonalization and objectification? How to make meaning out of large quantities of data and how to bring user experience to data seem to be the key issues in any debate on the new interfaces using heterogeneous data harvesting and monitoring. The preference of soft forms of interaction over these data via monitoring, visualizing, reminding and persuading seem to be the main functions of these new interfaces connecting data across scales and environments. Understanding these new generation of services related to data is important for personal genomics projects that want to involve citizens in epigenomic studies or other emergent fields, such as nutrigenomics and nutrigenetics. While the scientific community is trying to understand the interactions between our genome and the environment, the general public seems to enjoy he serendipity behind interactions involving DNA profiles as we can see it in the Introduction We are reaching a momentum in which various forms of data related to food (monitoring food authenticity and origin) and molecular aspects of our bodies like DNA can converge. Consumer genomics websites, crowdsourcing of biodata but also social networking over genes, together with services monitoring food flows and food authenticity can create new models of research in nutrigenomics and projects related to dieting, health and lifestyle choices. How to connect various scales from molecules to institutions and what will be the function of these interactions and interfaces? How to create meaningful interaction across scales and large datasets? What are the functions of such massive data objectifications of food, bodies etc.? Are we redefining the new patterns in seemingly stochastic and chaotic large datasets? How will these future apps for data savvy users that are crowdsourcing data influence their everyday life and practices? In order to answer these questions we used a design probe in form of a personalized DNA dinner to see how lay and expert knowledge interact and how specialized databases Copyright © 2011, Association for the Advancement of Artificial Intelligence (www.aaai.org). All rights reserved. 26 case of match-making and family tracing applications that connect complete strangers (Kera, 2010). Integration of genomic science with nutrition and lifestyle variables such as cigarette smoking and alcohol consumption has not only scientific value but also personal value for dieting and improving lifestyle choices. The main challenge in most health and diet oriented application is to connect the expert and lay knowledge, persuasion with participation in a science project, and to simply give meaning to the monitoring efforts, to define the user experience related to data. The nutrigenomics and nutrigenetics interfaces present a convergence of three important trends in recent years related to healthy lifestyle, new media technologies and new forms of participatory and citizen science projects. The rise of self-improvement and enhancement interfaces based on crowdsourcing, monitoring and visualising personal and bio-data connected to the global Quantified Self movement http://quantifiedself.com/ and various Lifeblogging and assistive technologies (http://daytum.com/ and http://research.microsoft.com/enus/projects/mylifebits/ ). Related to this is the emergence of clinical 2.0 trials in the form of social networking services connecting DNA (SNP) data with data about lifestyle, eating habits and nutrients consumption (for example vitamin B and D) on platforms such as http://www.DIYgenomics.org/. The third trend relates to the importance of open data frameworks and the need for a creative commons licenses supporting safe and ethical monitoring, sharing and crowdsourcing of data among users and various actors. other excesses. Understanding our genetic, microbial etc. connection with other people and our environment is as important as these most obvious functions. Based on our design probe into the future of dining in the age of personalized dinner based on DNA data and data about the food, we see a potential of integrating citizen science projects with persuasive design. Our design probe conducted in May 2011 in Prague based Hackerspace consisted of a social dinner for two people with 23andme profiles and for the rest we served meals based on most common genetic profiles related to given genes. We were interested how these DNA and health data influence an everyday social situation like a dinner, how will users connect objective data with their personal experience and a given social situations. The performative, design probe, which we conducted, resulted in defining some scenarios and problems related to the emergent scientific field of nutrigenomics and nutrigenetics. The issues of privacy and reliability of data, but also questions of synergy between the personal, lay knowledge and objective data and its function were less important than questions on how data create a feeling of belonging to a group and interacting with our environment. That is why we became interested in various diet tribes and food cults, in ways people build social and personal identity around their dieting habits. By hacking kitchen gadgets, creating special diets and practicing extreme eating practices are testing the limits of metabolic, technical and political exchanges in the world today. Paleodieters identified with DIY and hacked sous-vide (slow cooking) appliances, locavores with foraging practices and interfaces monitoring food authenticity, molecular gastronomes with liquid nitrogen DIY protocols, future nutrigenomics enthusiasts with interfaces for crowdsourcing biodata, already present thus convergence of participatory design with citizen science (Kera, Tuters, 2011). Convergence of Persuasive Design with Citizen Science Designing services and interfaces that support individuals and communities in their commitment to monitor health or change habits and lifestyles and take active responsibility (self-care, empowerment) is part of a growing body of research in persuasive technologies and so called captology (Fogg 1998, 2009). We expect our technologies to help us understand and manage the different limits of our biological, social and political existence rather than to support the narrow technooptimist forms of enhancement and extension. That is why user experience related to connecting heterogeneous data is more about supporting reflection and empathy rather than interaction between a user and some systems per se. In most obvious cases this involves managing our physical fitness and health or monitoring and warning us against energy consumption or The design fiction scenario of our DNA dinner - Eat What was envisioned as a social dinner in the age of personal genomics inspired by the emergent field of nutrigenomics (Ferguson, 2009; Kaput et al., 2006; Ordovas et al., 2004). We tested the idea of personalized DNA dinner with people that have 23andme profiles as a design probe into the future of dinning. The guests were supposed to enjoy food but also interact over available information on genes and play with a near future scenario on dinning in the age of personalized genomics where DNA decides on our Copyright © 2011, Association for the Advancement of Artificial Intelligence (www.aaai.org). All rights reserved. Copyright © 2011, Association for the Advancement of Artificial Intelligence (www.aaai.org). All rights reserved. Design Probe into Future of Dining 27 menu and we negotiate between taste and data. The menu and the social interaction was tested only in Prague (http://brmlab.cz/event/denisa_kera) and the original proposal was developed in Singapore. In the future we would like to connect the DNA data with data on the ingredients with the help of a GoodGuide.com type of application. The starter in this dinner was envisioned as an introduction into the genealogical d was served in portions of different sizes depending on the individual sugar intake efficiency status (ADRA2A gene). The right balance of green veggies like asparagus, spinach and broccoli was supposed to balance the individual needs for folates (MTHFR gene). We also checked the 8q24 region, SMAD7, LOC120376 and 15q13.3 regions which relate to intestines and an alternative portion of salmon was upport meat consumption. Drinks were served based on the opioid receptor gene (OPRM1) that was used to decide on how much drinks were served. The final cup of green or black tea was based on COMT gene that also reveals some dopamine related behavioral issues and secrets surrounding also problem of alcoholism and dependencies. an ancestry map where genes and food meet & create your meaning with this starter that uses food to represents your genetic & culinary inheritance and the closest region where our design probe we created such plate for one of our Discussion Tuscan, 24% Lithuanian, and the rest Middle Eastern. The spot on the map, which is probably a good guess, is near Trieste. The chromosomes show clear, recent, Middle Eastern mixing. The parts of the chromosomes showing the Mideast are roughly 50% Middle Eastern, perhaps Jewish, whi The probe into the future of dining was following the limits of current scientific knowledge and technical possibilities in order to understand how people negotiate and connect expert knowledge with their everyday life. We observed the personal and social identity. The serendipity behind these interactions and the hybrid knowledge created through connecting objective data with often humorous personal stories makes such experience likable but also motivates people to take the information seriously and contribute data to potential research. Future interfaces for nutrigenomics and nutrigenetics are not only about self-care but also community building related to crowdsourced data on bodies, habits and health. Their main motivation is often search for serendipitous interactions with strangers as much as curiosity about the personal genetic profile and its relation to food. To design nutrigenomics and nutrigenetics interfaces, which will serve the needs of the public but still provide valuable data source to the science community, is an immense challenge. We need to combine the expertise from various fields starting with health communication and public participation in science studies and ending with interactive media design, user experience design and social networking research with a specific focus on food science and food studies. Most of the citizen science experiments by now seem to concentrate on the technical and scientific issues related to the use of AI and databases rather that the issues of communication and interaction with the user which in the case of food raise further specific questions. How to model the interaction between lay people and experts over plate Tuscany brochette with pecorino which is 70% of your plate meets Ashkenazim and East European stuffed mushrooms and to add to uncertainty we put 6% of hummus to refer to that Middle Eastern mess. The hummus is a celebration of your 6 chromosome which is your most Middle Eastern part and which plays important role in the immune response but also sexual attraction since it is the base for the 100 genes that are part of the Major Histocompatibility Complex closely linked olfactory The guests at the dinner in Prague (two had profiles, the profile) immediately switched plates for their computers to do research rather than to eat, and to compare genes and discuss data rather than food. The future of eating involved digesting data as much as food which opened some interesting question about self-discipline and reflection but also possibility of rebellious behavior: the challenge of eating something poisonous. What we were following was how information and data influence taste, how scientific knowledge influences personal experience with food and the ways in which individuals negotiate this knowledge and build a sense of community and belonging around such knowledge. The main course was made for the whole group of guests describing how we metabolize important nutrients. Genetic e group was placing them somewhere in France and that is why Beef bourguignon Copyright © 2011, Association for the Advancement of Artificial Intelligence (www.aaai.org). All rights reserved. 28 nutrigenomics data to create meaningful and useful mobile an internet services with functions from research to health coaching? How to build interfaces that connect very objective and scientific data such as DNA with very subjective experiences such as tasting and eating? What are the challenges and dangers involved in the future nutrigenomics and nutrigenetic services? What are the design principles and models that govern these emerging interfaces and interactions? How will personal genomics and availability of DNA data over different on line and information services change our understanding of food and eating? These are some of the questions that the DNA dinner provoked. References Akrich M. From communities of practice to epistemic communities: health mobilizations on the Internet. Sociological Research Online. 2010;15(2):10. Callon M. The role of lay people in the production and dissemination of scientific knowledge. Science Technology & Society. 1999; 4:81. Callon, M. Lascoumes, P. and Barther, Y. 2009. Acting in an uncertain world, an essay on technical democracy, MIT press, Cambridge. Dyson E. Why participatory medicine? J Participat Med. 2009(Oct); 1:e1. Available at: http://www.jopm.org/opinion/editorials/2009/10/21/whyparticipatory-medicine. Ferguson, LR. 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Available at: http://dces.essex.ac.uk/Research/iieg/papers%282011%29/ CS11_Kera%2816%29.pdf Kaput, J., Astley, S., Renkema, M., Ordovas, J., van Ommen, B. (2006) "Harnessing Nutrigenomics: Development of web-based communication, databases, resources, and tools" Genes Nutr 1(1): 5-11. Mamykina, L. and Mynatt, E. and Kaufman, D. 2006. Investigating health management practices of individual with diabetes, CHI Proceedings, Montreal, Quebec. Mamykina, L. et al. 2008. MAHI: investigation of social scaffolding for reflective thinking in diabetes management, Proceeding of the 26th annual SIGCHI, New York, USA. Conclusion We need interfaces that will help the consumers negotiate complex and novel information on gene food interaction, monitor food consumption and improve eating habits in online and real-time support groups. These interfaces can also provide valuable data to the scientific community that can be crowdsourced and shared in order to support advancements in epigenomics research related to food and define a more collaborative, participatory and fair model for the use of personal data in science. Last but not least, tools and interfaces for involvement of citizens in serious scientific research can prevent irresponsible selfexperimentation and pseudo-health cults that are spreading on the internet around the illegal trade of substances such as melanotan and similar nootropics. The personalized used of nutrigenomics and nutrigenetic science over nutrigenomics interfaces will balance the rules most of the discussions related to healthy lifestyle and eating. Our bodies are not a thermodynamic machine that runs on calories but a complex, living community of organisms and molecules for which we need more complex metaphors in order to understand and influence them in the right way. 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