NATIONAL HEART FAILURE AUDIT Application Notes Dataset version 3 Valid from 26th March 2012 Contents Contents 1 Introduction_______________________________________________________________________________________________________3 2 Contact details____________________________________________________________________________________________________4 3 Data collection____________________________________________________________________________________________________5 4 5 3.1 Which patients to include______________________________________________________________________________________5 3.2 Number of patients___________________________________________________________________________________________5 3.3 Ensuring representativeness___________________________________________________________________________________5 3.4 Patient confidentiality and identification_________________________________________________________________________5 3.5 Patient consent______________________________________________________________________________________________5 3.6 Using the data application and submitting data__________________________________________________________________6 3.7 Use of National Heart Failure Audit data_________________________________________________________________________6 3.8 Ensuring data quality_________________________________________________________________________________________6 3.9 Reporting timescale__________________________________________________________________________________________6 The dataset________________________________________________________________________________________________________7 4.1 The data application__________________________________________________________________________________________7 4.2 New core fields______________________________________________________________________________________________8 4.3 New fields___________________________________________________________________________________________________9 4.4 New options within fields____________________________________________________________________________________ 10 4.5 Deleted fields______________________________________________________________________________________________ 10 Core dataset definitions__________________________________________________________________________________________ 11 5.1 Patient record______________________________________________________________________________________________ 11 5.2Admission/readmission_____________________________________________________________________________________ 11 5.2.1 Admission and symptoms____________________________________________________________________________ 11 5.2.2 History_____________________________________________________________________________________________ 12 5.2.3 Physical examination_________________________________________________________________________________ 12 5.2.4Investigations_______________________________________________________________________________________ 12 5.2.5 Treatment on discharge_______________________________________________________________________________ 13 5.2.6Diagnosis___________________________________________________________________________________________ 14 5.2.7Discharge___________________________________________________________________________________________ 14 5.2.8 User defined fields___________________________________________________________________________________ 15 5.3 Unscheduled event_________________________________________________________________________________________ 15 5.4 Life status_________________________________________________________________________________________________ 15 6 Clinical guidelines________________________________________________________________________________________________ 17 7 National Heart Failure Audit pro forma, version 3___________________________________________________________________ 22 8 National Heart Failure Audit core dataset, version 3________________________________________________________________ 24 9 National Heart Failure Audit full dataset, version 3__________________________________________________________________ 33 National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 1 Contents 2 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Introduction & contact details 1Introduction The National Heart Failure Audit was established in 2007 with the In 2010/11 85% of all Trusts in England and Wales submitted aim of collecting and disseminating national comparative data data on 54% of all patients discharged from hospital with a on the diagnosis, treatment and management of heart failure primary diagnosis of heart failure (compared with HES data). patients in secondary care. National clinical audit data is reported Building on this foundation, the audit hopes to include data from to hospitals and Trusts, Cardiac Networks and NHS regulatory 90% of Trusts by 2011/12, which will not be possible without the bodies in order to drive the improvement of heart failure services continued support and participation of hospitals across the UK. and to achieve better outcomes for patients. We are very grateful to all of our colleagues who have submitted The National Heart Failure Audit is managed by NICOR (the National Institute for Cardiovascular Outcomes Research), which data and taken part in the audit over the last 5 years. This document details a revised dataset, version 3, which came is based in the Institute of Cardiovascular Science at University into effect on 26th March 2012, and which replaces the existing College London. NICOR manages seven national cardiac clinical version 2 of the dataset. The new dataset contains a series of audits. Specialist clinical knowledge and clinical leadership for additional data items that will allow the audit to monitor the the National Heart Failure Audit is provided by the British Society implementation of the NICE quality standard for chronic heart of Heart Failure and the audit Project Board, which determines failure which was published last year. Additional fields will also the strategic direction and development of the project, and which enable the risk adjustment of data, which is necessary for the includes stakeholders from hospitals, Cardiac Networks and development of accurate comparative mortality analysis. The patient groups. aim of the revision is firstly to facilitate more comprehensive The audit is funded and commissioned by HQIP (the Healthcare Quality Improvement Partnership) and is one of 29 audits in the National Clinical Audit and Patient Outcomes Programme (NCAPOP).1 Data from the audit is included in clinical indicators feedback, giving hospitals more data about their own performance and their implementation of recommended clinical guidance, and secondly to allow comparative Trust level data to be reported to stakeholders and the public. that are used by regulatory bodies such as the Care Quality Commission and the NHS Information Centre to measure performance of NHS organisations. 1http://www.hqip.org.uk/national-clinical-audit-and-patient-outcomes-programme. National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 3 Introduction & contact details 2 Contact details Clinical queries General enquiries The National Heart Failure Audit provides a helpdesk during National Heart Failure Audit working hours for all clinical queries and general enquiries about NICOR, 3rd Floor, 170 Tottenham Court Road, London W1T 7HA the audit, managed by Polly Mitchell, the audit project manager. If your hospital does not currently participate in the audit, please contact Polly to set up an account. Email:enquiries-nicor@ucl.ac.uk Tel: 020 3108 3929 Email:polly.mitchell@ucl.ac.uk Tel: 020 3108 3927 Technical queries All technical enquiries concerning Lotus Notes or any other IT issues should be directed to the NICOR helpdesk. Email:nicor-helpdesk@ucl.ac.uk Tel: 020 3108 1978 4 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Data collection 3 Data collection 3.1 Which patients to include The audit collects data on all patients discharged from hospital 3.4 Patient confidentiality and identification with a diagnosis of heart failure in the primary position (the main The National Heart Failure Audit collects patient identifiable data condition treated or investigated during the episode of care) for in order to track life status by linkage with MRIS mortality data, the following ICD-10 codes:2 and to enable linkage with the other cardiac databases, such I50.0 Congestive heart failure as MINAP (Myocardial Ischaemia National Audit Project) and CRM (Cardiac Rhythm Management). However, there are strict I50.1 Left ventricular failure rules for the use of potential patient identifiers; although patient I50.9 Heart failure, unspecified identifiers are entered into the National Heart Failure Audit, these I11.0 Hypertensive heart disease with (congestive) heart failure can only be seen by staff at your own hospital with access to the database, and by specific NICOR staff who manage the database. I42.0 Dilated cardiomyopathy I25.5 Ischaemic cardiomyopathy I42.9 Cardiomyopathy, unspecified. The National Heart Failure Audit reports only on heart failure patients in secondary care; Primary Care Trusts can use the When datasets are released to third parties for secondary research purposes, the following safeguards are in place to protect patient identity: Patient name is not released for research purposes. NHS number and hospital number (patient case record database for local auditing, but as yet their data will not be number) are pseudonymised. This is done using an encryption included in the audit. key that the third party using the data does not have access to, which means that they cannot convert the details back to 3.2 Number of patients Ideally hospitals should be submitting data on all of their heart failure patients, but participation in the audit is defined as their original, identifiable form. Date of birth is converted to age at admission. Postcode can be an identifier where small numbers of each Trust submitting a minimum of 20 cases per month to individuals share a post code in rural areas. Postcode is the database. If a Trust discharges fewer than 20 heart failure used to derive dependant variables such as Index of Multiple patients in a month, the total number of cases should be Deprivation (England only), and only these derived fields are submitted. The percentage of the overall heart failure patient available for secondary use. population included in the audit will be tracked using HES data on heart failure discharge coding. Readmissions, including readmissions of the same patient in one Hospital identifier is also pseudonymised, so that third parties outside of NICOR cannot undertake identifiable hospitalspecific analysis. month, count towards the monthly total of cases submitted. 3.3 Ensuring representativeness 3.5 Patient consent NICOR has section 251 approval from the NIGB, which allows Because the National Heart Failure Audit does not require you it to collect and process patient identifiable data for all of the to enter all of the heart failure patients discharged from your cardiovascular audits, including the National Heart Failure Audit, hospital, it is essential that the patient sample entered into without requiring consent. However we recommend that you tell the audit is representative of your overall heart failure patient patients that their anonymised data will be used for national audit population. The most effective way of ensuring this is to enter and research purposes to improve patient care. all heart failure patients into the database, but in the event that this is not possible patients included in the audit should be randomly selected (for example, the first 20 heart failure patients A patient leaflet, along with more information about NICOR, is available on the NICOR website.3 discharged each month) to avoid selection bias. 2 For more information on ICD-10 codes, see http://apps.who.int/classifications/icd10/ browse/2010/en#/IX. 3http://www.ucl.ac.uk/nicor/audits. National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 5 Data collection 3.6 Using the data application and submitting data Help notes on using the Lotus Notes data application can be found on the NICOR website,4 or in the “Audit Information” section of the left hand navigator in the database. These manuals also include information on importing records from existing local databases. A pro forma to facilitate data collection, the core dataset and the full dataset are reproduced in this document (§7, 8, 9). The dataset and pro forma can also be downloaded from the NICOR website.5 You can export the data that you submit to the audit to Excel in order to analyse clinical practice and check data quality. This is done by using the Export option under Import/Export in the Lotus Notes left navigator panel. You can choose to export the core or full dataset, and can limit your export by year or by date range. Please note that admissions and readmissions are exported separately. ‘Clinical audit data, detailing the performance of publicly funded clinical teams in treating key healthcare conditions, will be published from April 2012. This service will be piloted in December 2011 using data from the latest National Lung Cancer Audit, commissioned by the Healthcare Quality Improvement Partnership (HQIP) as part of the National Clinical Audit and Patient Outcomes Programme (NCAPOP)’.10 National Heart Failure Audit data will be published on data.gov.uk following the publication of the 2011/12 annual report in October 2012. There are future plans to provide heart failure data, by hospital, to Cardiac Networks and commissioners. National Heart Failure Audit annual reports, containing national aggregate data, are also available for download on NICOR’s publicly accessible website. 3.8 Ensuring data quality National Heart Failure Audit data is used for performance monitoring and management purposes, so it is essential that the 3.7 Use of National Heart Failure Audit data data you submit to the audit is accurate and representative of the heart failure patients in your hospital. The NICOR heart failure data application has a number of validation checks built into it Participation in the National Heart Failure Audit has been to ensure that the data entered is not contradictory and is within mandated by the NHS standard contracts for acute hospital permitted ranges, but those responsible for entering data need to services.6 Audit data are used by increasing numbers of groups monitor the quality of their data entry on top of this. Hospitals are outside of your hospital which have a legitimate interest in the bound by the Data Protection Act 1998 to ensure that the data analysis. These include: should meet the necessary standards of completeness, accuracy Indicators for quality improvement: The NHS Information and relevance. Centre and the Department of Health have identified an initial, but You should register the National Heart Failure Audit with your evolving, set of ‘Indicators for Quality Improvement’ to describe Trust data protection officer, and identify someone in your the quality of a broad range of healthcare services.7 hospital with overall responsibility for the audit. One person These indicators include participation in the Heart Failure Audit, should be given overall responsibility for data collection, with which is defined as a Trust submitting 20 patient admissions per month to the National Heart Failure Audit between 01/04/2010 additional clinical support if needed. Backup support must be identified for periods of leave; it is the responsibility of your Trust and 31/03/2011.8 to support you in this. The NHS Choices website also includes details of participation in Current data collection manuals with definitions should be made the audit in its ‘scorecard’ for Trust performance. available to all staff involved in data collection and entry, and data Care Quality Commission Quality Risk profiles:9 The QRP is has been discharged to ensure the greatest possible accuracy. a tool used for gathering together key information about your organisation to support how the CQC monitor your compliance with the essential standards of quality and safety. The QRP enables compliance inspectors to assess where risks lie and may prompt front line regulatory activity, such as further enquiries. Initially participation rates will be provided to CQC but they are should ideally be entered as soon as possible after the patient You should establish systems to routinely check case inclusion/ exclusion and to monitor the accuracy of discharge coding in your institution. 3.9 Reporting timescale keen to use further data in future. The audit year runs from 1st April to 31st March. Unless Transparency agenda: Clinical audit was one of six key areas otherwise stated, all data for the financial year must be uploaded raised under the heading ‘NHS’ in the Prime Minister’s Letter to Cabinet Ministers on transparency and open data which stated: 4www.ucl.ac.uk/nicor/audits/heartfailure/datacollection. 5www.ucl.ac.uk/nicor/audits/heartfailure/dataset. 6 See clause 35: http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/ documents/digitalasset/dh_131998.pdf. 7http://www.ic.nhs.uk/services/measuring-for-quality-improvement. 8https://mqi.ic.nhs.uk/Search.aspx?query=heart%25failure&ref=1.05.27. 9http://www.cqc.org.uk/organisations-we-regulate/registered-services/quality-and-riskprofiles-qrps. to the database by 31st May. Data will be exported for analysis on 1st June, and no data submitted after this point will be included in the audit report. 10http://www.number10.gov.uk/news/letter-to-cabinet-ministers-on-transparency-andopen-data/. 6 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 The dataset 4 The dataset The National Heart Failure Audit database now contains over 47 of the 59 fields are now mandatory, i.e. data items that must 125,000 records of patients discharged from hospital with a be filled in for the record to be saved. Most mandatory fields diagnosis of heart failure. This large amount of data can be used (apart from basic patient data) have an ‘unknown’ option, so if to monitor trends in the management of heart failure patients and you are unable to obtain some data items the record can still to determine key clinical indictors for heart failure patients. be saved. Those core items that are not mandatory are mainly The core dataset, on which all reporting is based, has been revised and now contains 59 items. The new data items and changes to the existing core dataset have been added following the publication of clinical guidelines for chronic heart failure (2010) and a quality standard for chronic heart failure (2011) by NICE.11 The dataset now allows the audit to collect data to analyse the implementation of nationally recognised clinical indicators for the optimum treatment and management of heart failure patients. Section 6 of this document justifies the items in the core dataset by mapping them onto the NICE standards and explaining why the audit collects each data item. numerical fields (referring to the results of blood tests and physical examinations, for example), and therefore there is no possibility for an unknown option. Hospitals are nonetheless expected to fill in these fields, but they should be left blank if the value in question was not measured, or if it is not known. 4.1 The data application In order to accommodate the new fields, the National Heart Failure Audit data application has been modified. The updated NICOR application will be available to you automatically on the NICOR servers. Hospitals using commercial applications or With the audit now collecting a substantial amount of data each locally developed applications to import data stored on local year, it will be possible to analyse outcome data at the level of databases must ensure that these are updated to include all of individual Trusts, in addition to national, aggregate analyses. In the modifications in the revised dataset. Commercial software order to do this, it is necessary to risk adjust the data for known companies have been notified of the changes, but check with confounders – certain factors, such as age, index of multiple your provider if in doubt. If your software is locally developed, deprivation and medical history, have a large impact on morbidity you will need to update the locally held options dictionary. and mortality outcomes for heart failure patients Several fields have been added to allow the audit to create risk adjustment models, which will facilitate the publication of mortality and morbidity data at regional, Trust and hospital levels. A full dataset is available for download from the National Heart Failure Audit website.12 The dataset contains information on the import format to be used when uploading data to the audit database from commercial or locally developed databases. A pro forma, to assist in the collection of data, can also be downloaded from the NICOR website, and can be found in §7 of this document. 11 NICE (2010), Clinical guidelines CG108 Chronic heart failure: management of chronic heart failure in adults in primary and secondary care, http://guidance.nice.org.uk/CG108. NICE (2011), Chronic heart failure quality standard, http://www.nice.org.uk/guidance/ qualitystandards/chronicheartfailure/home.jsp. 12www.ucl.ac.uk/nicor/audits/heartfailure/dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 7 The dataset 4.2 New core fields The following data items are non-core fields in version 2 of the dataset, which are being changed to core fields in version 3. (M) denotes a mandatory field. # 4.07 Field description Previous device therapy (M) 4.17 Previous COPD(M) Short code Long code Field Type 0 0. None Text (single value) 1 1. CRT-D Text (single value) 2 2. CRT-P Text (single value) 3 3. ICD Text (single value) 4 4. PM Text (single value) 12 12. Declined by patient Text (single value) 0 0. No Text (single value) 1 1. Yes Text (single value) 9 9. Unknown Text (single value) 8.01 Height Height (cm) Numeric (real) 8.02 Weight Weight (Kg) Numeric (real) 8.04 Heart rate Heart rate (bmp) Numeric (integer) 8.06 Blood pressure - systolic Blood pressure - systolic (mmHg) Numeric (integer) 9.01 Hb Full blood count Hb (g/dL) Numeric (real) 9.02 Urea Full blood count urea (mg/dL) Numeric (real) 9.03 Creatinine Full blood count creatinine (mmol/L) Numeric (integer) 9.04 Electrolytes: Sodium (Na) Electrolytes-NA (mEq/L) Numeric (integer) 9.05 Electrolytes: Potassium (K) Electrolytes-K (mEd/L) Numeric (real) 9.16 QRS duration QRS Duration (ms) Numeric (integer) 15.01 Cardiac rehabilitation (M) 0 0. No Text (single value) 1 1. Yes Text (single value) 8 8. Not applicable Text (single value) 9 9. Unknown Text (single value) 12 12. Declined by patient Text (single value) 1 1. A heart failure pre-discharge management plan is in Text (single value) 15.11 Discharge planning (M) place NB: 15.11 was previously a multivalue text field, and is now a single value text 2 2. A heart-failure management plan has been discussed Text (single value) with the patient field. 3 3. A heart failure management plan has been Text (single value) communicated to the primary care team 4 4. All of the above Text (single value) 5 5. None of the above Text (single value) 9 9. Unknown Text (single value) 8 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 The dataset 4.3 New fields The following data items are entirely new fields in version 3 of the dataset. (M) denotes a mandatory field. # 2.04a Field description Long code Field Type 0 0. No Text (single value) 1 1. Yes Text (single value) (M) 9 9. Unknown Text (single value) Which of the following did 1 1. Consultant cardiologist Text (multivalue; Did the patient receive input from a multidisciplinary HF team? 2.04ai Short code the patient see? (M) separated) 2 2. Other consultant with interest in HF Text (multivalue; separated) 3 3. HF Specialist nurse Text (multivalue; separated) 4 4. Other Text (multivalue; separated) 9 9. Unknown Text (multivalue; separated) 4.14a 7.40 Previous Asthma (M) 0 0. No Text (single value) 1 1. Yes Text (single value) 9 9. Unknown Text (single value) 0 0. No Text (single value) 1 1. Yes Text (single value) 9 9. Unknown Text (single value) Ivabradine dose Numeric (real) 0 0. No Text (single value) 1 1. Yes Text (single value) 9 9. Unknown Text (single value) Treatment ivabradine dose Numeric (real) 0 0. No Text (single value) 1 1. Yes Text (single value) made? (M) 9 9. Unknown Text (single value) Date of HF review Date of review appointment Date (dd/mm/yyyy) 0 0. No Text (single value) 1 1. Yes Text (single value) 9 9. Unknown Text (single value) 0 0. No Text (single value) 1 1. Yes Text (single value) Ivabradine (non-core) 7.41 Ivabradine dose (non-core) 11.40 Treatment ivabradine (noncore) 11.41 Treatment ivabradine dose (non-core) 15.12 Was a review appointment with the specialist multidisciplinary HF team 15.13 appointment 15.14 Was the patient stable on oral therapy after discharge planning? (M) 15.15 Patient died? (M) National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 9 The dataset 4.4 New options within fields The following data items are additional options added to existing mandatory fields. # 11.01 11.04 11.06 11.09 11.11 11.13 11.20 15.01 15.05 Field description Treatment ACE inhibitor Treatment ARB Treatment beta blocker Treatment loop diuretic Treatment thiazide diuretic Treatment ARA Treatment digoxin Cardiac rehabilitation Palliative care Short code Long code Field Type 11 11. Contraindicated Text (single value) 12 12. Declined by patient Text (single value) 11 11. Contraindicated Text (single value) 12 12. Declined by patient Text (single value) 11 11. Contraindicated Text (single value) 12 12. Declined by patient Text (single value) 5 5. Other loop diuretic Text (single value) 11 11. Contraindicated Text (single value) 12 12. Declined by patient Text (single value) 8 8. Not applicable Text (single value) 11 11. Contraindicated Text (single value) 12 12. Declined by patient Text (single value) 3 3. Other ARA Text (single value) 11 11. Contraindicated Text (single value) 12 12. Declined by patient Text (single value) 8 8. Not applicable Text (single value) 11 11. Contraindicated Text (single value) 12 12. Declined by patient Text (single value) 8 8. Not applicable Text (single value) 12 12. Declined by patient Text (single value) 8 8. Not applicable Text (single value) 4.5 Deleted fields # 8.12 Field description Peripheral Oedema Short code Long code Field Type 0 0. No Text (single value) 1 1. Yes Text (single value) 9 9. Unknown Text (single value) 10 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Core dataset definitions 5 Core dataset definitions The core dataset contains 59 fields, 47 of which are mandatory, Birth date (1.06) Date of birth is crucial for verifying mortality i.e. the record will not be saved without them. If you cannot find data and identifying missing NHS numbers. It is also used for risk the relevant information needed to satisfy mandatory core data adjustment and to measure potential inequalities in access to care, items in the patient’s notes, you should use the “Unknown” and to monitor changes in patient demographics. option. A patient must be over 16 years of age to be entered into the In the list below, † denotes non-mandatory, core fields. Although heart failure database. Date of birth should be in the format dd/ you can save a record without these fields, you are encouraged mm/yyyy. to collect and enter the data for them. They are no less important for clinical monitoring purposes than mandatory core fields, and their non-mandatory status is on the whole due to technical features of the database, rather than clinical subordinacy. If Patient gender (1.07) Patient gender is used to measure potential inequalities in access to care, and to monitor changes in patient demographics. the patient died in hospital, the fields relating to treatment on Postcode (1.09) This is the postcode nominated by the patient discharge and referral to follow-up services are not mandatory. as their main permanent residence. Pseudo postcodes should See §8 for a list of all of the field options for core dataset items, and §9 for the full dataset. The full dataset, which contains 242 fields, is optional and intended for local use only. There are five types of record in the National Heart Failure Audit database: Patient Record, Admission, Readmission, Unscheduled Event and Life Status. be used for foreign nationals; a list of pseudo postcodes can be found in the NHS Postcode Directory.13 The postcode is used for local morbidity/mortality analysis, and is also used to calculate the patient’s index of multiple deprivation. 5.2Admission/readmission Once you have created a patient record you can add an 5.1 Patient record When entering a patient’s first admission into the database you will first need to create a patient record, which contains personal admission and subsequently multiple readmissions for the patient. A readmission can only be created if there is already an admission for that patient. If you are entering data via the Lotus Notes application the core and demographic details. Hospital identifier (1.01) The three-letter code that identifies your hospital site. Your hospital code should default from your user ID. fields are divided into the following sub-headings: Admission and Symptoms, History, Physical Examination, Investigations, Treatment on Discharge, Diagnosis, Discharge, and User Defined Fields. Local patient identifier (1.02) A hospital number is used to identify patients if the NHS number is not known. Local patient identifiers are also used to identify multiple entries and to categorise readmissions within the same hospital. Readmissions are a key outcome measure and used as an indicator of the quality of follow-up care. NHS number (1.03)† The patient’s NHS number is the unique national identifier that will be used for event and mortality tracking. The NHS number also allows patients to be tracked across the other cardiac audits. The ten-digit number should be entered with no spaces. There is an algorithm in the Lotus Notes software to check the validity of the NHS number. Although the NHS number is not a mandatory field, it is important for accurate mortality tracking and data linkage that as many 5.2.1 Admission and symptoms Date of admission (2.00) The date on which the patient was admitted to hospital. This is used to calculate the length of stay, and to measure year-on-year improvements in care. Date should be in the format dd/mm/yyyy. Breathlessness (3.01) This is a standard breathlessness score using the New York Heart Association (NYHA) Classification. Breathlessness should be measured on admission. 1. No limitation of physical activity: Ordinary physical activity does not cause fatigue, breathlessness or palpitation (NYHA Class I). 2. Slight limitation of ordinary physical activity: Patients are patients as possible have their NHS number entered accurately. comfortable at rest. Ordinary physical activity results in Patient name (surname) (1.04) The patient’s name is used for fatigue, palpitation, breathlessness or angina pectoris (NYHA mortality tracking in the instance that there is a discrepancy between any of the other patient identifiers, or if the NHS number Class II). 3. Marked limitation of ordinary physical activity: Although is missing. patients are comfortable at rest, less than ordinary activity will Patient name (forename) (1.05) lead to symptoms (NYHA Class III). 13 http://nww.connectingforhealth.nhs.uk/ods/downloads/officenatstats/. National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 11 Core dataset definitions 4. Symptoms at rest or minimal activity: Symptoms of congestive mandatory fields, but are important for risk adjusting mortality cardiac failure are present even at rest. Increased discomfort and for morbidity analysis. Height and weight are used to with any physical activity (NYHA Class IV). calculate patient BMI. 5.2.2History 5.2.4 Investigations Previous IHD (4.00) Does the patient have history of myocardial For all investigations, if multiple tests were performed the results infarction (MI), angina, ECG evidence of MI, CABG or angiogram of the last test should be recorded. For all blood tests and QRS documenting coronary artery disease? duration, leave blank if test was not done or the result is not Previous AMI (4.01) Has the patient had a previously validated known. episode of acute myocardial infarction (MI), including ECG Hb (9.01)† A record of the patient’s haemoglobin level in grams evidence of MI (for example Q-waves on admission)? per decilitre (g/dL). Previous valve disease (4.09) Does the patient have a history of Urea (9.02)† A record of the patient’s urea level in milligrams per clinically diagnosed valve disease, moderate or severe stenosis decilitre (mg/dL). or regurgitation on imaging, or an operative valve replacement/ repair? Previous hypertension (4.12) Is the patient already receiving treatment (drug, dietary or lifestyle) for hypertension or have they had a recorded blood pressure >140/90 mmHg on at least two occasions prior to admission? Previous diabetes (4.14) Has the patient been diagnosed Creatinine (9.03)† A record of the patient’s creatinine level in micromoles per litre (μmol/L). Electrolytes: Sodium (Na) (9.04)† A record of the patient’s sodium level in milliequivalents per litre (mEq/L). Electrolytes: Potassium (K) (9.05)† A record of the patient’s potassium level in milliequivalents per litre (mEq/L). with diabetes prior to admission? This could include any NB: The above blood tests are not mandatory fields, but these of: a confirmed diagnosis of diabetes, the use of an oral measurements are a NICE recommended diagnostic tool for heart hypoglycaemic agent or insulin, a fasting blood glucose >6.7, or failure, so it is recommended that these tests are both performed a random blood glucose >11 mmol/L. and subsequently recorded in the audit. Previous asthma (4.14a) Does the patient have a history of BNP (9.13)† A record of the patient’s B-type Natriuretic Peptide asthma? This can be a previous clinical diagnosis or known (BNP) level in picograms per millilitre (pg/mL). significant reversible airways obstruction. BNP is not a mandatory field, but the measurement of BNP Previous COPD (4.17) Does the patient have a history of COPD is a NICE quality standard for chronic heart failure, so it is (chronic obstructive pulmonary disease), including chronic recommended that BNP level is measured and recorded in the bronchitis, emphysema or their co-occurrence? Must be audit. indicated by pulmonary function testing evidence i.e. FEV1<75% QRS Duration (9.16)† The QRS duration in milliseconds (ms), if predicted value or use of beta agonist/steroid inhalers. known. QRS Duration is not a mandatory field, but if an ECG was performed then QRS duration should be known. 5.2.3 Physical examination ECG (9.21) Was an electrocardiogram was performed during this Peripheral Oedema (3.04) Did the patient exhibit ankle or sacral admission, and if so, what did it show? If not done, has an ECG oedema on admission? been planned? ECG is recommended as a diagnostic test in the 0. No 1. Mild: Pitting oedema to the ankle. 2. Moderate: Oedema between ankle and knee. 3. Severe: Oedema above the knee. 4. Unknown: Information about oedema is not available – e.g. not recorded in notes. Height (8.01)† Height in centimetres (last available recording). Weight (8.02)† Weight in kilograms (last available recording). Heart rate (8.04)† Heart rate, measured in bpm (last available recording). Blood pressure – systolic (8.06)† The systolic blood pressure of the patient (last available recording). NB. Height, weight, heart rate and systolic blood pressure are not NICE quality standard for chronic heart failure. 1. Sinus rhythm: An electrocardiogram was performed, and heart rhythm was normal. 2. Atrial fibrillation: An electrocardiogram was performed showing atrial fibrillation. 3. LBBB: An electrocardiogram was performed showing left bundle branch block. 4. Previous MI: An electrocardiogram was performed showing previous myocardial infarction. 6. Not done – planned after discharge: An electrocardiogram has been planned post discharge but not yet undertaken. 7. Not done – not yet planned: An electrocardiogram has not been not undertaken, and has not yet been ordered. 8. Other: An electrocardiogram was performed showing a 12 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Core dataset definitions rhythm not listed above OR an electrocardiogram was performed but information about heart rhythm is unknown. 9. Unknown: Information about electrocardiography is not available – e.g. not recorded in notes. Multiple options can be selected but note that 6, 7, and 9 cannot be selected in combination with any other values. ECHO (9.23) Did the patient receive a gold standard diagnostic test? This could include ECHO, MRI, Nuclear scan, angiogram, CT scan etc. If so, what diagnosis was given? If the patients had a gold standard test on a previous admission or outpatient visit, options 0 to 4 are still valid. If not done, has a test been planned? 0. Normal: A gold standard test was undertaken, and heart 9. Unknown: Information about the prescription of the treatment is not available – e.g. not recorded in notes. 10. Drug therapy stopped: The treatment was prescribed but was stopped before discharge. 11. Contraindicated: The treatment was contraindicated in this case, or the patient was intolerant. 12. Declined by patient: The treatment was offered, but was declined by the patient. Treatment ACE inhibitor (11.01) Was the patient prescribed angiotensin converting enzyme (ACE) inhibitors on discharge? 1. Captopril 2. Enalpril function was normal. 1. LV systolic dysfunction: Moderate or severe left ventricular systolic dysfunction (for example, a left ventricular ejection fraction (LVEF) <40% or eyeball method of assessment). 2. LV hypertrophy: Moderate or severe left ventricular 3. Lisinopril 4. Perindopril 5. Ramipril hypertrophy reported on an imaging test (for example, LV 6. Trandolapril posterior wall dimension in diastole >1.3cm and/or septal 7. Other ACEI dimension >1.3cm). Treatment ARB (11.04) Was the patient prescribed angiotensin 3. Valve disease: Moderate or severe stenosis or regurgitation on imaging, or an operative valve replacement/repair. Prosthetic valves do not need to be included here. 4. Diastolic dysfunction: A gold standard test was undertaken and showed diastolic dysfunction. 6. Test not done – planned after discharge: A gold standard diagnostic test has been planned post discharge but not yet undertaken receptor blockers (ARBs) on discharge? 1. Candesartan 2. Losartan 3. Valsartan 4. Other ARB Treatment beta blocker (11.06) Was the patient prescribed beta blockers on discharge? 7. Test not done – not yet planned: A gold standard diagnostic test was not undertaken, and has not yet been ordered. 8. Other: A gold standard test was undertaken, and some other 1. Bisoprolol 2.Carvedilol 3. Nebivolol diagnosis was given. 9. Unknown: Information about the performance of a gold standard test, or its outcome, is not available – e.g. not recorded in notes. 4. Other beta blocker Treatment loop diuretic (11.09) Was the patient prescribed loop diuretics on discharge? Multiple options can be selected but note that 0, 6, 7, and 9 cannot be selected in combination with any other values. 1. Bumetanide 2. Ethancrynic acid 5.2.5 Treatment on discharge If a patient died in hospital, fields relating to their treatment on discharge are no longer mandatory.14 Treatment dosages are not mandatory, but clinical outcomes are associated with titration 3. Furosemide 4. Torasemide 5. Other loop diuretic levels, so if the dose is known you are encouraged to enter it. Treatment thiazide diuretic (11.11) Was the patient prescribed Dose refers to total daily dose. thiazide diuretics on discharge? For all treatment on discharge fields: 1. Bendroflumethazide 8. Not applicable: The use of the treatment was not indicated 2. Metolazone in this case, e.g. the treatment was not clinically appropriate, the patient did not have heart failure. 14 Dataset items 11.01, 11.04, 11.06, 11.09, 11.11, 11.13, 11.20. 3. Other thiazide Treatment ARA (11.13) Was the patient prescribed aldosterone receptor antagonists (ARAs) on discharge? National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 13 Core dataset definitions 1. Eplerenone 2. Spironolactone clinical staff and specialists saw the patient during their admission? NICE quality standard for chronic heart failure recommends that patients see specialist heart failure/cardiology 3. Other ARA staff. Treatment by specialists is a key clinical indicator for heart Previous device therapy (4.07) Has the patient had device failure patients. therapy either during this admission or at a previous time? 1. Consultant cardiologist 1. CRT-D: The patient has been referred for a cardiac 2. Other consultant with interest in heart failure: This may be a resynchronisation therapy (CRT) defibrillator. 2. CRT-P: The patient has been referred for a CRT pacemaker. 3. ICD: the patient has been referred for an implantable cardioverter defibrillator. 4. PM: the patient has been referred for a pacemaker. 5.2.6Diagnosis Diagnosis of heart failure (14.00) Was the patient diagnosed with heart failure on this or a previous admission? 0. No: A diagnosis of heart failure was excluded by a cardiologist on the basis of imaging or BNP level or 1. Yes: The diagnosis of heart failure has been confirmed by imaging or BNP testing either during this admission or at a previous time. In some cases a clinician may justifiably diagnose heart failure in the absence of echocardiography. 9. Unknown: No information about imaging or BNP is available to support a diagnosis of heart failure – e.g. not recorded in notes. care of the elderly physician or a non-cardiologist consultant with a specified responsibility for heart failure patients within the hospital. 3. Heart failure specialist nurse: A heart failure specialist nurse is a nurse with specific remit for the care of heart failure patients in hospital or the community. 4. Other: This could be a general medical consultant or other speciality consultant within the hospital. 9.Unknown Multiple options can be selected but note that 9 cannot be selected in combination with any other values. HF liaison service (15.00) Has the patient been referred to a heart failure specialist nurse for follow-up? This can be in the community or in hospital. The NICE quality standard for chronic heart failure recommends that heart failure patients should receive a clinical assessment by a multidisciplinary team within two weeks of discharge, and a clinical assessment at least every six months after that. Cardiac rehabilitation (15.01) Was the patient referred to a 5.2.7Discharge cardiac rehabilitation programme? Cardiac rehab usually involves an exercise-based programme that includes educational and Some fields referring to discharge instructions and follow-up psychological support, but can occur without an exercise services are not mandatory if the patient died in hospital.15 component if the patient cannot tolerate exercise. Main place of care (2.04) In your opinion, the ward in which The NICE quality standard for chronic heart failure recommends the patient received the majority of their care. “3. Other” will in that people with stable chronic heart failure and no precluding many cases be a geriatrics ward. Being admitted to a cardiology condition or device are offered a supervised group exercise- ward is a key determinant of good care and treatment for patient, based cardiac rehabilitation programme that includes education which results in reduced morbidity and mortality rates. and psychological support. Did the patient receive input from a multidisciplinary HF Palliative care (15.05) Were the palliative care services involved team? (2.04a) Did the patient receive input from any member of or planned for on discharge? the multidisciplinary heart failure team during this admission? COTE/medical follow up (15.06) Was the patient referred to A multidisciplinary heart failure team is led by a specialist and follow-up in a geriatric or general medical ward, or were care of consists of professionals with appropriate competencies from the elderly (COTE) services involved or planned for on discharge? primary and secondary care. The term ‘specialist’ denotes a physician with subspecialty interest in heart failure (often a consultant cardiologist). The team may involve other services (such as rehabilitation, tertiary care and palliative care) in the care of individual patients.16 Cardiology follow up (15.07) Was the patient referred for followup by a consultant cardiologist? GP (15.08) Was the patient discharged to the care of their GP? Date of discharge (15.10) The date on which the patient was The input of a multidisciplinary heart failure team is discharged, transferred to another hospital, or the date of death recommended by NICE quality standard for chronic heart failure. if patient died in hospital. Date should be in the format dd/mm/ Which of the following did the patient see? (2.04ai) Which yyyy. This is required to measure length of stay which is a key patient 15 Dataset items 15.00, 15.01, 15.05, 15.06, 15.07, 15.08, 15.11, 15.12, 15.14. 16 This definition of a multidisciplinary heart failure team is taken from NICE (2010), Clinical guidelines CG108 Chronic heart failure: management of chronic heart failure in adults in primary and secondary care, http://guidance.nice.org.uk/CG108. outcome for the audit. 14 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Core dataset definitions Discharge planning (15.11) Did the patient die? (15.15) Did the patient die during this The discharge plan may cover discussion of discharge medication and future up-titration of treatment, follow-up appointments, management of heart failure, dietary and lifestyle advice, weight management and exercise. Discharge planning may include admission? If the patient died, fields referring to follow-up care and treatment on discharge are not mandatory. 5.2.8 User defined fields discussion of the stability of the patient’s clinical condition, and For local audit purposes, data can be collected on fields not may take into account patient and carer wishes, and the level of included in the audit. The full dataset has 242 items, so much of care and support that can be provided in the community. the data relevant to heart failure patients can be collected using NICE quality standard for chronic heart failure recommends existing fields. that people admitted to hospital because of heart failure have a You can add user defined fields by going to the “Settings” link in personalised management plan that is shared with them, their the left navigator of Lotus Notes. Choose “Hospitals”, find your carer(s) and their GP. hospital and double click it. Select the “User Defined Fields” tab 1. A heart failure pre-discharge management plan is in place and double click next to “Field 1” to add a new field description. 2. A heart-failure management plan has been discussed with the patient These descriptions will now appear as free text fields in the “User Defined Fields” section of each admission and readmission you create. 3. A heart failure management plan has been communicated to the primary care team Note that user defined fields can only be used if data is uploaded via Lotus Notes, and cannot be included in imported comma separated value files. 4. All of the above 5. None of the above 5.3 Unscheduled event 9.Unknown Was a review appointment with the specialist multidisciplinary HF team made? (15.12) Was an appointment with any member of the multidisciplinary heart failure team made for the patient on discharge? An unscheduled event record can be created in order to record major events in a patient’s medical history, including death in hospital, in-patient admissions to hospital for heart failure, other cardiovascular and non-cardiovascular conditions, and unscheduled out-patient hospital visits. A multidisciplinary heart failure team is led by a specialist and consists of professionals with appropriate competencies from primary and secondary care. The term ‘specialist’ denotes a physician with subspecialty interest in heart failure (often a consultant cardiologist). The team may involve other services (such as rehabilitation, tertiary care and palliative care) in the care of individual patients. This is for local use only – for audit analyses, life status and readmission to hospital will be ascertained by linking data from the National Heart Failure Audit database with MRIS mortality tracking and HES discharge coding data. Event date (16.01) Event (16.02) NICE quality standard for chronic heart failure recommends that heart failure patients should receive a clinical assessment by a multidisciplinary team within two weeks of discharge. Date of heart failure review appointment (15.13)† Leave blank if the date of this appointment is not yet known. Date should be in the format dd/mm/yyyy. 5.4 Life status A life status record can be created to indicate whether the patient is alive or dead at a given date. This is for local use only – for audit purposes life status is obtained from MRIS mortality tracking. Was the patient stable on oral therapy after discharge planning? (15.14) Was the patient established on oral medication for at least 48 hours without further decompensation of heart Life status date (17.01) Life status (17.02) failure and with stable renal function? National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 15 Core dataset definitions 16 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 NICE quality standard 1119: People admitted to hospital because of heart failure receive input to their management plan from a multidisciplinary heart failure team. Local patient identifier NHS number Patient name (Surname) Patient name (Forename) Birth date Patient gender Postcode Date of admission Main place of care Did the patient receive input from a multidisciplinary HF team? 1.03 1.04 1.05 1.06 1.07 1.09 2.00 2.04 2.04a 17 Department of Health, 2011/12 Standard Terms and Conditions for Acute Hospital Services (Gateway Reference 15458), Clause 12.1.2, http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_124518.pdf. 18ICE, Chronic heart failure (CG108) (2010), http://publications.nice.org.uk/chronic-heart-failure-cg108/guidance. 19NICE, Chronic heart failure quality standard (2011), http://www.nice.org.uk/guidance/qualitystandards/chronicheartfailure/home.jsp. healthcare community. NICE CG108, 1.5.3.1: Heart failure care should be delivered by a multidisciplinary team with an integrated approach across the heart failure that can no longer be managed effectively in the home setting. heart failure that does not respond to treatment severe heart failure (NYHA class IV) and the management of: NICE CG108, 1.1.1.4: Refer patients to the specialist multidisciplinary heart failure team for the initial diagnosis of heart failure Used to establish whether access to key diagnostics, clinical treatment and follow up care is determined by ward of admission. Used to calculate length of stay. Also used to establish correct cohort of patients and measure year on year improvements in care. Numbers. Derived data, such as PCT and multiple index of deprivation, are used for analysis. Full postcode is crucial for MRIS list cleaning purposes, to allow us to link to mortality data and to discover missing NHS NICE CG108, 1.2.2.3018: The principles of pharmacological management of heart failure should be the same for men and women. onset in women. Patient gender is used to measure potential inequalities in access to care, and to monitor changes in patient demographics e.g. also used for risk adjustment, to measure potential inequalities in access to care, and to monitor changes in patient demographics. Date of birth is crucial for MRIS list cleaning purposes, and allows us get mortality data and to discover missing NHS numbers. It is name also enables analysis by birth cohort and assists linkage at MRIS/NHSCR. Collecting the patient’s name enables age at diagnosis to be established for epidemiological and survival analysis. The patient’s encrypted before data transfer. Any other event or procedure recorded by NICOR will be linked using the NHS number. The patient’s NHS number is the unique national identifier that will be used for event and mortality tracking. This will be quality of follow up care. multiple entries and to categorise readmissions. Readmissions are a key outcome measure and used as an indicator of the A hospital number is used to identify patients if the NHS number is not known. Local patient identifiers are also used to identify clinical audits within the National Clinical Audit Patients Outcome Programme (NCAPOP) relevant to the Services. 1.02 2011/12 Standard Terms and Conditions for Acute Hospital Services, 12.1.217: The provider shall participate in the national Justification Hospital identifier Field Description 1.01 Sequence Number The following table shows the core dataset items mapped to the NICE clinical guideline and quality standard for chronic heart failure, or otherwise explains why the audit collects each data item. 6 Clinical guidelines Clinical guidelines National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 17 Which of the following did the patient see? Breathlessness Peripheral oedema Previous IHD Previous AMI Previous valve disease Previous hypertension Previous diabetes Previous asthma Previous COPD Height Weight Heart rate Blood pressure - systolic Hb Urea Creatinine Electrolytes: Sodium (Na) Electrolytes: Potassium (K) BNP QRS Duration ECG 3.01 3.04 4.00 4.01 4.09 4.12 4.14 4.14a 4.17 8.01 8.02 8.04 8.06 9.01 9.02 9.03 9.04 9.05 9.13 9.16 9.21 Field Description 2.04ai Sequence Number 18 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 NICE CG108, 1.1.1.13: Perform an ECG…to evaluate possible aggravating factors and/or alternative diagnoses. have their serum natriuretic peptides measured. NICE quality standard 2: People presenting in primary care with suspected heart failure without previous myocardial infarction peptide [NTproBNP]) in patients with suspected heart failure without previous MI. NICE CG108, 1.1.1.3: Measure serum natriuretic peptides (B-type natriuretic peptide [BNP] or N-terminal pro-B-type natriuretic full blood count electrolytes, urea and creatinine diagnoses: NICE CG108, 1.1.1.13: Consider the following [blood] tests to evaluate possible aggravating factors and/or alternative Required for developing risk adjusted data e.g. mortality. Required for developing risk adjusted data e.g. mortality. Needed to calculate BMI, which is required for developing risk adjusted data e.g. mortality. Symptoms, NYHA class and previous medical history are all used in risk adjustment of data. NICE CG108, 1.1.1.1: Take a detailed history and perform a clinical examination. This includes severity of HF. multidisciplinary heart failure team. NICE quality standard 11: People admitted to hospital because of heart failure receive input to their management plan from a Used to establish whether treatment by specialists has an effect on diagnostics, treatment, outcomes and follow up care. Justification Clinical guidelines Treatment ACE inhibitor Treatment ARB 11.04 transthoracic Doppler 2D echocardiography and specialist assessment within 2 weeks. the optimal tolerated or target dose with monitoring after each increase. with angiotensin-converting enzyme inhibitors) and beta-blockers licensed for heart failure, which are gradually increased up to converting enzyme inhibitors (or angiotensin II receptor antagonists licensed for heart failure if there are intolerable side effects NICE quality standard 7: People with chronic heart failure due to left ventricular systolic dysfunction are offered angiotensin- failure due to left ventricular systolic dysfunction who have intolerable side effects with ACE inhibitors. NICE CG108, 1.2.2.14: Consider an ARB licensed for heart failure as an alternative to an ACE inhibitor for patients with heart [NYHA class II–III]). an angiotensin II receptor antagonist (ARB) licensed for heart failure (especially if the patient has mild to moderate heart failure optimal therapy with an ACE inhibitor and a beta-blocker: NICE CG108, 1.2.2.4: Seek specialist advice and consider adding one of the following if a patient remains symptomatic despite the optimal tolerated or target dose with monitoring after each increase. with angiotensin-converting enzyme inhibitors) and beta-blockers licensed for heart failure, which are gradually increased up to converting enzyme inhibitors (or angiotensin II receptor antagonists licensed for heart failure if there are intolerable side effects NICE quality standard 7: People with chronic heart failure due to left ventricular systolic dysfunction are offered angiotensin- start first. to all patients with heart failure due to left ventricular systolic dysfunction. Use clinical judgement when deciding which drug to NICE CG108, 1.2.2.2: Offer both angiotensin-converting enzyme (ACE) inhibitors and beta-blockers licensed for heart failure referral. failure and intermediate serum natriuretic peptide levels are seen by a specialist and have an echocardiogram within 6 weeks of NICE quality standard 4: People referred for specialist assessment including echocardiography because of suspected heart a specialist and have an echocardiogram within 2 weeks of referral. heart failure and previous myocardial infarction or suspected heart failure and high serum natriuretic peptide levels, are seen by NICE quality standard 3: People referred for specialist assessment including echocardiography, either because of suspected transthoracic Doppler 2D echocardiography. magnetic resonance imaging or transoesophageal Doppler 2D echocardiography) when a poor image is produced by NICE CG108, 1.1.1.10: Consider alternative methods of imaging the heart (for example, radionuclide angiography, cardiac systolic (and diastolic) function of the (left) ventricle, and detect intracardiac shunts. NICE CG108, 1.1.1.7: Perform transthoracic Doppler 2D echocardiography to exclude important valve disease, assess the and specialist assessment within 6 weeks. litre) or an NTproBNP level between 400 and 2000 pg/ml (47–236 pmol/litre) to have transthoracic Doppler 2D echocardiography NICE CG108, 1.1.1.5: Refer patients with suspected heart failure and a BNP level between 100 and 400 pg/ml (29–116 pmol/ litre) urgently, to have transthoracic Doppler 2D echocardiography and specialist assessment within 2 weeks. suspected heart failure and a BNP level above 400 pg/ml (116 pmol/litre) or an NTproBNP level above 2000 pg/ml (236 pmol/ NICE CG108, 1.1.1.4: Because very high levels of serum natriuretic peptides carry a poor prognosis, refer patients with NICE CG108, 1.1.1.2: Refer patients with suspected heart failure and previous myocardial infarction (MI) urgently, to have Nuclear Scan or Angiogram) Justification ECHO (or other gold standard test e.g. MRI, Field Description 11.01 9.23 Sequence Number Clinical guidelines National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 19 Treatment beta blocker Treatment loop diuretic Treatment thiazide diuretic Treatment ARA Treatment digoxin Treatment device therapy Diagnosis of heart failure HF liaison service Cardiac rehabilitation 11.09 11.11 11.13 11.20 12.01 14.00 15.00 15.01 Field Description 11.06 Sequence Number 20 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 group exercise-based cardiac rehabilitation programme that includes education and psychological support. NICE quality standard 8: People with stable chronic heart failure and no precluding condition or device are offered a supervised The programme may be incorporated within an existing cardiac rehabilitation programme. Include a psychological and educational component in the programme. Ensure the patient is stable and does not have a condition or device that would preclude an exercise-based rehabilitation programme. NICE CG108, 1.3.1.1: Offer a supervised group exercise-based rehabilitation programme designed for patients with heart failure. assessment by a multidisciplinary heart failure team within 2 weeks of discharge. NICE quality standard 12: People admitted to hospital for heart failure are discharged only when stable and receive a clinical including a review of medication and measurement of renal function. NICE quality standard 9: People with stable chronic heart failure receive a clinical assessment at least every 6 months, confirmed should be managed in accordance with this guideline. NICE CG108, 1.1.2.1: The basis for historical diagnosis of heart failure should be reviewed, and only patients whose diagnosis is despite first- and second-line treatment for heart failure. NICE CG108, 1.2.2.16: Digoxin is recommended for worsening or severe heart failure due to left ventricular systolic dysfunction III–IV] or has had an MI within the past month). an aldosterone antagonist licensed for heart failure (especially if the patient has moderate to severe heart failure [NYHA class optimal therapy with an ACE inhibitor and a beta-blocker: NICE CG108, 1.2.2.4: Seek specialist advice and consider adding one of the following if a patient remains symptomatic despite with heart failure, and titrated (up and down) according to need following the initiation of subsequent heart failure therapies. NICE CG108, 1.2.2.17: Diuretics should be routinely used for the relief of congestive symptoms and fluid retention in patients the optimal tolerated or target dose with monitoring after each increase. with angiotensin-converting enzyme inhibitors) and beta-blockers licensed for heart failure, which are gradually increased up to converting enzyme inhibitors (or angiotensin II receptor antagonists licensed for heart failure if there are intolerable side effects NICE quality standard 7: People with chronic heart failure due to left ventricular systolic dysfunction are offered angiotensin- chronic obstructive pulmonary disease (COPD) without reversibility. interstitial pulmonary disease and diabetes mellitus erectile dysfunction peripheral vascular disease dysfunction, including older adults and patients with: NICE CG108, 1.2.2.7: Offer beta-blockers licensed for heart failure to all patients with heart failure due to left ventricular systolic patients with heart failure due to left ventricular systolic dysfunction. Use clinical judgement when deciding which drug to start first. NICE CG108, 1.2.2.2: Offer both angiotensin-converting enzyme (ACE) inhibitors and beta-blockers licensed for heart failure to all Justification Clinical guidelines NICE CG108, 1.1.1.4: Refer patients to the specialist multidisciplinary heart failure team for the initial diagnosis of heart failure and the management of: COTE/medical follow up Cardiology follow up GP Date of discharge Discharge planning Was a review appointment with the specialist multidisciplinary HF team made? 15.07 15.08 15.10 15.11 15.12 discharge planning? Patient died assessment by a multidisciplinary heart failure team within 2 weeks of discharge. Was the patient stable on oral therapy after 15.14 15.15 NICE quality standard 12: People admitted to hospital for heart failure are discharged only when stable and receive a clinical Date of heart failure review appointment 15.13 assessment by a multidisciplinary heart failure team within 2 weeks of discharge. NICE quality standard 12: People admitted to hospital for heart failure are discharged only when stable and receive a clinical healthcare community. NICE CG108, 1.5.3.1: Heart failure care should be delivered by a multidisciplinary team with an integrated approach across the heart failure that can no longer be managed effectively in the home setting. heart failure that does not respond to treatment severe heart failure (NYHA class IV) shared with them, their carer(s) and their GP. NICE quality standard 10: People admitted to hospital because of heart failure have a personalised management plan that is NICE CG108, 1.5.2.2: The primary care team, patient and carer must be aware of the management plan. level of care and support that can be provided in the community. is stable and the management plan is optimised. Timing of discharge should take into account patient and carer wishes, and the NICE CG108, 1.5.2.1: Patients with heart failure should generally be discharged from hospital only when their clinical condition Used to calculate length of stay and to calculate audit participation rates. including a review of medication and measurement of renal function. NICE quality standard 9: People with stable chronic heart failure receive a clinical assessment at least every 6 months, assessment by a multidisciplinary heart failure team within 2 weeks of discharge. NICE quality standard 12: People admitted to hospital for heart failure are discharged only when stable and receive a clinical including a review of medication and measurement of renal function. NICE quality standard 9: People with stable chronic heart failure receive a clinical assessment at least every 6 months, including a review of medication and measurement of renal function. NICE quality standard 9: People with stable chronic heart failure receive a clinical assessment at least every 6 months, heart failure and a palliative care service. NICE quality standard 13: People with moderate to severe chronic heart failure, and their carer(s), have access to a specialist in within the heart failure team. NICE CG108, 1.5.9.3: Patients with heart failure and their carers should have access to professionals with palliative care skills 15.06 NICE CG108, 1.5.9.2: The palliative needs of patients and carers should be identified, assessed and managed at the earliest opportunity. Justification Palliative care Field Description 15.05 Sequence Number Clinical guidelines National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 21 National Heart Failure Audit pro forma 7 National Heart Failure Audit pro forma (dataset version 3) Patient Record Hospital Valid from 26/03/12 Hospital # Forename NHS # Surname Date of birth / / Postcode Sex Admission and Symptoms History Admission date / / IHD Breathlessness 1. No limitation of physical activity MI 2. Slight limitation of ordinary physical activity Valve disease 3. Marked limitation of ordinary physical activity Hypertension 4. Symptoms at rest or minimal activity Diabetes 9. Unknown COPD Asthma Physical Examination [Heart rate, blood pressure, oedema on admission; height & weight at last available recording] Peripheral Oedema Height (cm) 0. No Weight (kg) 1. Mild Heart rate (bpm) 2. Moderate Systolic blood pressure 3. Severe 9. Unknown Investigations [Last available recording] ECG (current/previous admission) Blood tests [More than one value can be selected] BNP 1. Sinus rhythm Hb 2. Atrial fibrillation Urea 3. LBBB Creatinine 4. Previous MI Electrolytes-NA 6. Not done - planned after discharge Electrolytes-K 7. Not done - not yet planned 8. Other 9. Unknown QRS width Treatment on discharge ARB Beta blocker Loop diuretic 0. No 0. No 0. No 1. Candesartan 1. Bisoprolol 1. Bumetanide 2. Losartan 2. Cardvedilol 2. Ethancrynic acid 3. Valsartan 3. Nebivolol 3. Frusemide 4. Other ARB 4. Other beta blocker 4. Torasemide 8. Not applicable 8. Not applicable 5. Other loop diuretic 9. Unknown 9. Unknown 8. Not applicable 10. Drug therapy 9. Unknown 10. Drug therapy stopped stopped 11. Contraindicated 11. Contraindicated 10. Drug therapy stopped 12. Declined by patient 12. Declined by patient 11. Contraindicated 12. Declined by patient Male / Female 0. No Diagnosis 1. Yes 9.Unknown Confirmed diagnosis of heart failure? 0. No 1. Yes 9. Unknown ECHO (or other gold standard test) e.g MRI,Nuclear Scan or Angio [More than one value can be selected] 0. Normal 1. LV systolic dysfunction 2. LV hypertrophy 3. Valve disease 4. Diastolic Dysfunction 6. Not done - planned after discharge 7. Not done - not yet planned 8. Other 9.Unknown ARA 0. No 1. Eplerenone 2. Spironolactone 3. Other ARA 8. Not applicable 9. Unknown 10. Drug therapy stopped 12. Declined by patient 22 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 National Heart Failure Audit pro forma 7 National Heart Failure Audit pro forma (dataset version 3) Valid from 26/03/12 Treatment on discharge (cont.) ACE Inhibitor Digoxin Thiazide diuretic 0. No 1. Captopril 2. Enalapril 3. Lisinopril 4. Perindopril 5. Ramipril 6. Trandolapril 7. Other ACEI 8. Not applicable 9. Unknown 10. Drug therapy stopped 11. Contraindicated 12. Declined by patient Discharge Date of discharge 0. No 1. Yes 8. Not applicable 9. Unknown 10. Drug therapy stopped 11. Contraindicated 12. Declined by patient 0. No 1. Bendroflumethazide 2. Metolazone 3. Other thiazide 8. Not applicable 9. Unknown 10. Drug therapy stopped 11. Contraindicated 12. Declined by patient / / Referral to services Previous device therapy? 0. None 1. CRT-D 2. CRT-P 3. ICD 4. PM 12. Declined by patient Did the patient die during this Yes / No admission? [If yes, fields relating to treatment on discharge and followup services are not mandatory] 0. No 1. Yes 9. Unknown Cardiac rehabilitation HF liaison service Palliative care COTE/Medical Cardiology follow-up GP Main place of care Did the patient receive input from a multidisciplinary HF team? 1. Cardiology ward 0. No 2. General medical ward 1. Yes 3. Other 9. Unknown 9. Unknown Which of the following did the patient see? Was a review appointment with the specialist MD HF team made? 1. Consultant cardiologist 0. No 2. Other consultant with interest in heart failure 1. Yes 3. Heart failure specialist nurse 9. Unknown 4. Other 9. Unknown Date of appointment / / Discharge planning 1. A pre-discharge heart failure management plan is in place 2. The management plan has been discussed with the patient 3. The management plan has been communicated to the primary care team 4. All of the above 5. None of the above 9. Unknown Was the patient stable on oral therapy after discharge planning? 0. No 1. Yes 9. Unknown National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 23 Sequence Number 1.01 1.02 1.03 1.04 1.05 1.06 1.07 1.09 2.00 2.04 2.04a 2.04ai 1,2,3,4,54 1,2,3,4,5 1 1 1 1 1 1 2,3 2,3 2,3 2,3 24 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 patient see? Which of the following did the team? from a multidisciplinary HF Did the patient receive input Main place of care Date of admission Postcode Patient gender Birth date Patient name (Forename) Patient name (Surname) NHS number Local patient identifier Hospital identifier Field Description 2. Female 9. Not specified 2 9 0. No 0 2. Other consultant with interest in HF 3. HF Specialist nurse 4. Other 9. Unknown 2 3 4 9 1. Consultant cardiologist 9. Unknown 9. Unknown 9 9 3. Other 3 1. Yes 2. General Medicine 2 1 1. Cardiology 1 Date of Admission (dd/mm/yyyy) Valid Post Code 1. Male 1 Valid date ≥1901 and ≤=1995 Free text Free text 0. Not known 1 Long Code 10 digit (no spaces) valid NHS Number Free text 0 Short Code The dataset can be downloaded in Excel format from the NICOR website at http://www.ucl.ac.uk/nicor/audits/heartfailure/dataset. Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Date (dd/mm/yyyy) Free text Text (single value) Text (single value) Text (single value) Text (single value) Date (dd/mm/yyyy) Free text Free text Free text Free text Text (single value) Field Type M M M M M M M M M M M Mandatory National Heart Failure Audit core dataset, version 317Valid from 26/03/2012 Record Type 17 8 National Heart Failure Audit core dataset 3.04 4.00 4.01 4.09 4.12 4.14 2,3 2,3 2,3 2,3 2,3 3.01 2,3 2,3 Sequence Number Record Type Previous diabetes Previous hypertension Previous valve disease Previous AMI Previous IHD Peripheral oedema Breathlessness Field Description 1. Yes 9. Unknown 1 9 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 3. Severe 3 0 2. Moderate 2 9. Unknown 9 1. Mild 4. Symptoms at rest or minimal activity 4 1 3. Marked limitation of ordinary physical activity 3 0. No 2. Slight limitation of ordinary physical activity 2 0 1. No limitation of physical activity Long Code 1 Short Code Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Field Type M M M M M M M Mandatory National Heart Failure Audit core dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 25 Sequence Number 4.14a 4.17 8.01 8.02 8.04 8.06 9.01 9.02 9.03 9.04 9.05 9.13 9.16 9.21 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 ECG QRS Duration BNP Electrolytes: Potassium (K) Electrolytes: Sodium (Na) Creatinine Urea Hb Blood pressure - systolic Heart rate Weight Height Previous COPD Previous Asthma Field Description 9. Unknown 9 Long Code 1. Sinus rhythm 2. Atrial fibrillation 3. LBBB 4. Previous MI 6. Not done - planned after discharge 7. Not done - not yet planned 8. Other 9. Unknown 1 2 3 4 6 7 8 9 QRS Duration BNP Electrolytes-K Electrolytes-NA Full blood count creatinine Full blood count urea Full blood count Hb Blood pressure - systolic (mmHg) Heart rate on admission (bmp) Weight (Kg) Height (cm) 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 Short Code 26 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Numeric (integer) Numeric (integer) Numeric (real) Numeric (integer) Numeric (integer) Numeric (real) Numeric (real) Numeric (integer) Numeric (integer) Numeric (real) Numeric (real) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Field Type M M M Mandatory National Heart Failure Audit core dataset 11.01 9.23 2,3 2,3 Sequence Number Record Type Treatment ACE inhibitor Angiogram) test e.g MRI,Nuclear Scan or ECHO (or other gold standard Field Description 3. Lisinopril 4. Perindopril 5. Ramipril 6. Trandolapril 7. Other ACEI 8. Not applicable 9. Unknown 10. Drug therapy stopped 11. Contraindicated 12. Declined by patient 4 5 6 7 8 9 10 11 12 9. Unknown 9 3 8. Other 8 2. Enalpril 7. Test not done - not yet planned 7 2 6. Test not done - planned after discharge 6 1. Captopril 4. Diastolic dysfunction 4 1 3. Valve disease 3 0. No 2. LV hypertrophy 2 0 1. LV systolic dysfunction 0. Normal Long Code 1 0 Short Code Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Text (multivalue; separated) Field Type M M Mandatory National Heart Failure Audit core dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 27 Sequence Number 11.04 11.06 Record Type 2,3 2,3 Treatment beta blocker Treatment ARB Field Description 4. Other beta blocker 8. Not applicable 9. Unknown 10. Drug therapy stopped 11. Contraindicated 12. Declined by patient 8 9 10 11 12 12. Declined by patient 12 4 11. Contraindicated 11 3. Nebivolol 10. Drug therapy stopped 10 3 9. Unknown 9 2. Carvedilol 8. Not applicable 8 2 4. Other ARB 4 1. Bisoprolol 3. Valsartan 3 1 2. Losartan 2 0. No 1. Candesartan 1 0 0. No 0 Short Code Long Code Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Field Type M M Mandatory National Heart Failure Audit core dataset 28 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 11.11 11.09 2,3 2,3 Sequence Number Record Type Treatment thiazide diuretic Treatment loop diuretic Field Description 9. Unknown 10. Drug therapy stopped 11. Contraindicated 12. Declined by patient 9 10 11 12 12. Declined by patient 12 8. Not applicable 11. Contraindicated 11 8 10. Drug therapy stopped 10 3. Other thiazide 9. Unknown 9 3 8. Not applicable 8 2. Metolazone 5. Other loop diuretic 5 2 4. Torasemide 4 1. Bendroflumethazide 3. Furosemide 3 1 2. Ethancrynic acid 2 0. No 1. Bumetanide 1 0 0. No 0 Short Code Long Code Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Field Type M M Mandatory National Heart Failure Audit core dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 29 Sequence Number 11.13 11.20 12.01 14.00 Record Type 2,3 2,3 2,3 2,3 30 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Diagnosis of heart failure Treatment device therapy Treatment digoxin Treatment ARA Field Description 9. Unknown 9 12. Declined by patient 12 1. Yes 4. PM 4 1 3. ICD 3 0. No 2. CRT-P 2 0 1. CRT-D 1 12. Declined by patient 12 0. None 11. Contraindicated 11 0 10. Drug therapy stopped 10 12. Declined by patient 12 9. Unknown 11. Contraindicated 11 9 10. Drug therapy stopped 10 8. Not applicable 9. Unknown 9 8 8. Not applicable 8 1. Yes 3. Other ARA 3 1 2. Spironolactone 2 0. No 1. Eplerenone 1 0 0. No 0 Short Code Long Code Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Field Type M M M M Mandatory National Heart Failure Audit core dataset 15.06 15.07 15.08 15.10 2,3 2,3 2,3 2,3 15.01 2,3 15.05 15.00 2,3 2,3 Sequence Number Record Type Date of discharge GP Cardiology follow up COTE/medical follow up Palliative care Cardiac rehabilitation HF liaison service Field Description 9. Unknown 9 Long Code Date of discharge (dd/mm/yyyy) 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 8. Not applicable 8 0 1. Yes 12. Declined by patient 12 1 9. Unknown 9 0. No 8. Not applicable 8 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 Short Code Date (dd/mm/yyyy) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Field Type M M M M M M M Mandatory National Heart Failure Audit core dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 31 Sequence Number 15.11 15.12 15.13 15.14 15.15 16.01 16.02 17.01 17.02 Record Type 2,3 2,3 2,3 2,3 2,3 4 4 5 32 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 5 Life status Life status date Event Event date Patient died planning? oral therapy after discharge Was the patient stable on appointment Date of heart failure review HF team made? the specialist multidisciplinary Was a review appointment with Discharge planning Field Description 1. Yes 1 2. Admission for CHF 3. Other CV admission 4. Other non-CV admission 5. Unscheduled OP visit 6. Other event 2 3 4 5 6 1. Alive 2. Dead 1 2 Life status date (dd/mm/yyyy) 1. Death 1 Event Date (dd/mm/yyyy) 0. No 9. Unknown 9 0 1. Yes 0. No 1 0 Date of review appointment (dd/mm/yyyy) 9. Unknown 0. No 0 9 9. Unknown 9 1. Yes 5. None of the above 5 1 4. All of the above the primary care team 3. A heart failure management plan has been communicated to 4 3 2. A heart-failure management plan has been discussed with the 2 patient 1. A heart failure pre-discharge management plan is in place Long Code 1 Short Code Text (single value) Text (single value) Date (dd/mm/yyyy) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Date (dd/mm/yyyy) Text (single value) Text (single value) Text (single value) Text (single value) Date (dd/mm/yyyy) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Field Type M M M M M M M M Mandatory National Heart Failure Audit core dataset 18 Sequence Number 1.01 1.02 1.03 1.04 1.05 1.06 1.07 1.08 1.09 1.10 1.11 1,2,3,4,5 1,2,3,4,5 1 1 1 1 1 1 1 1 1 Other Social Issues Living Alone Postcode Of Usual Address Patient Ethnic Group Patient Gender Birth Date Patient Name (Forename) Patient Name (Surname) NHS Number Local Patient Identifier Hospital identifier Field Description Long Code 3. Asian 4. Oriental 8. Other 9. Unknown 3 4 8 9 2. Transport 3. Carer 4. Accommodation 2 3 4 9. Unknown 9 1. Stairs at home 1. Yes 1 1 0. No 0 Valid Post Code 2. Black 9. Not specified 9 2 2. Female 2 1. Caucasian 1. Male 1 1 0. Not known Valid date >1901 and <=1995 Free text Free text 10 digit (no spaces) valid NHS Number Free text 0 Short Code The dataset can be downloaded in Excel format from the NICOR website at http://www.ucl.ac.uk/nicor/audits/heartfailure/dataset. Text (multivalue; separated) Text (single value) Free text Text (single value) Text (single value) Date (dd/mm/yyyy) Free text Free text Free text Free text Text (single value) Field Type National Heart Failure Audit full dataset, version 318Valid from 26/03/2012 Record Type 9 National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 33 Sequence Number 1.12 1.13 2.00 2.01 2.02 Record Type 1 1 2,3 2 2 Referral Route Referral Reason Date of Admission GP Name Occupation Field Description 2. Clerical 3. Manual 4. Unemployed 5. Retired 6. Other 2 3 4 5 6 3. Hospital out-patient from secondary care (could include cardiology, COTE and other) 4. Urgent admission for or with heart failure 5. In-patient diagnosis of HF after urgent admission for other CV condition 6. In-patient diagnosis of HF after urgent admission for non-CV condition 7. In-patient diagnosis of HF after routine CV admission 8. In-patient diagnosis of HF after routine non-CV admission 9. Other referral route 3 4 5 6 7 8 9 5. Other 5 2. Hospital out-patient from primary care 4. Investigation of need for (loop) diuretics 4 2 3. Suspected LV dysfunction (eg:- post-MI, subsequent to an arrhythmia) 3 1. Diagnosed and managed in primary care alone 2. Suspected heart failure (eg:- admission with acute breathlessness or referral with oedema or increasing breathlessness on exertion) 2 1 1. Known case of heart failure prior to referral 1 Date of Admission (dd/mm/yyyy) GP Name 1. Professional/Managerial Long Code 1 Short Code Text (single value) Text (multivalue; separated) Date (dd/mm/yyyy) Free text Text (single value) Field Type National Heart Failure Audit full dataset 34 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 2.04ai 2.05 2.06 2.07 3.01 2,3 3 3 3 2,3 2.04 2,3 2.04a 2.03 2,3 2,3 Sequence Number Record Type Breathlessness Outpatient Inpatient Unscheduled Event Which of the following did the patient see? Received input from a multidisciplinary HF Team Main place of care Recent inpatient Field Description 1. No limitation of physical activity 2. Slight limitation of ordinary physical activity 3. Marked limitation of ordinary physical activity 4. Symptoms at rest or minimal activity 9. Unknown 2 3 4 9 1. Yes 1 1 0. No 1. Yes 1 0 0. No 0 9. Unknown 9 9. Unknown 9 1. Yes 4. Other 4 1 3. HF Specialist nurse 3 0. No 2. Other consultant with interest in heart failure 2 0 1. Consultant cardiologist 9. Unknown 9 Long Code 1 1. Yes 1 9. Unknown 9 0. No 3. Other 3 0 2. General Medicine 2 3. Other 3 1. Cardiology 2. General Medicine 2 1 1. Cardiology 1 Short Code Text (single value) Text (single value) Text (single value) Text (single value) Text (multivalue; separated) Text (single value) Text (single value) Text (single value) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 35 Sequence Number 3.02 3.03 3.04 3.05 4.00 4.01 4.02 4.03 4.04 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 36 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 2,3 2,3 CABG Date Previous CABG Previous MI Date Previous AMI Previous IHD Other Symptom Peripheral Oedema Fatigue CCS Angina Status Field Description 2. Moderate 3. Severe 9. Unknown 2 3 9 9. Unknown 9 1. Yes 9. Unknown 1 9 CABG Date (dd/mm/yyyy) 0. No 0 Previous MI Date (dd/mm/yyyy) 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 Other Symptom 1. Mild 1 9. Unknown 9 0. No 3. Severe 3 0 2. Moderate 2 4. Inability to perform any physical activity without discomfort 4 1. Mild 3. Marked limitation of ordinary physical activity 3 1 2. Slight limitation of ordinary activity 2 0. No 1. Angina which does not limit ordinary physical activity. 1 0 0. No angina Long Code 0 Short Code Date (dd/mm/yyyy) Text (single value) Date (dd/mm/yyyy) Text (single value) Text (single value) Free text Text (single value) Text (single value) Text (single value) Field Type National Heart Failure Audit full dataset Sequence Number 4.05 4.06 4.07 4.08 4.09 4.10 4.11 4.12 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 Previous Hypertension Previous Arrhythmia Previous Congenital heart disease Previous Valve Disease Previous Device Mode Previous Device Therapy PCI Date Previous PCI Field Description 1. Yes 9. Unknown 1 9 Long Code 0. No 1. Yes 9. Unknown 1 9 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 9. Unknown 7. VVIR 7 9 6. VVI 6 1. Yes 5. OOO 5 1 4. DDDR 4 0. No 3. DDD 3 0 2. AAIR 4. PM 4 2 3. ICD 3 1. AAI 2. CRT-P 2 1 1. CRT-D 1 PCI Date (dd/mm/yyyy) 0. No 0 Short Code Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Date (dd/mm/yyyy) Text (single value) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 37 Sequence Number 4.13 4.14 4.14a 4.15 4.16 4.17 4.18 4.19 4.20 5.01 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 38 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 2,3 2,3 Social History Alcohol Past Medical History Other Previous Gout Previous Arthritis Previous COPD Previous PVD Previous CVA Previous Asthma Previous Diabetes Previous Chronic Renal Impairment Field Description 9. Unknown 9 Long Code Social History Alcohol (units/week) Past Medical History Other 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 Short Code Numeric (integer) Free text Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Field Type National Heart Failure Audit full dataset 6.03 6.04 7.01 7.02 2,3 2,3 2,3 2,3 6.01 2,3 6.02 5.02 2,3 2,3 Sequence Number Record Type ACEI Dose ACEI Family history Cardiomyopathy Family history Muscular Dystrophy Family history IHD/Other cardiac Family history HF Social History Smoking Field Description 2. Enalapril 3. Lisinopril 4. Perindopril 5. Ramipril 6. Trandolapril 7. Other ACEI 9. Unknown 2 3 4 5 6 7 9 ACEI Dose 1. Captopril 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 3. Never 3 0. No 2. Ex 2 0 1. Yes 1 Short Code Long Code Numeric (real) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 39 Sequence Number 7.03 7.04 7.05 7.06 7.07 7.08 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 Beta blocker Reason Beta Dose Beta Blocker ARB Dose ARB ACE I Reason Field Description 3. Valsartan 4. Other ARB 9. Unknown 3 4 9 1. Bisoprolol 2. Cardvedilol 3. Nebivolol 4. Other beta blocker 9. Unknown 1 2 3 4 9 1. Bradycardia or Heart Block 2. Low Arterial Pressure 3. Worstening Heart Failure 4. Intolerable Fatigue 5. Respiratory Disease 6. Other Intolerance 7. Not indicated 1 2 3 4 5 6 7 Beta blocker Dose 0. No 0 ARB Dose 2. Losartan 2 5. Not indicated 5 1. Candesartan 4. Other intolerance to ACE 4 1 3. Renal dysfunction 3 0. No 2. Low Arterial Pressure 2 0 1. Cough Long Code 1 Short Code Text (single value) Numeric (real) Text (single value) Numeric (real) Text (single value) Text (single value) Field Type National Heart Failure Audit full dataset 40 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 7.10 7.11 7.12 7.13 7.14 7.15 7.16 7.17 2,3 2,3 2,3 2,3 2,3 2,3 2,3 7.09 2,3 2,3 Sequence Number Record Type Aspirin Dose Aspirin SARA Dose SARA Reason SARA Thiazide Dose Diuretic: Thiazide Loop Dose Diuretic: loop Field Description 1. Bumetanide 2. Ethancrynic acid 3. Frusemide 4. Torasemide 9. Unknown 1 2 3 4 9 1. Bendroflumethazide 2. Metolazone 3. Other Thiazide 9. Unknown 1 2 3 9 3. Gynaecomastia 4. Other 5. Not indicated 3 4 5 1. Yes 9. Unknown 1 9 Aspirin Dose 0. No 0 SARA Dose 2. Renal Dysfunction 9. Unknown 9 2 2. Spironolactone 2 1. Hyperkalemia 1. Eplerenone 1 1 0. No 0 Thiazide Dose 0. No 0 Loop Dose 0. No 0 Short Code Long Code Numeric (integer) Text (single value) Numeric (real) Text (single value) Text (single value) Numeric (real) Text (single value) Numeric (real) Text (single value) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 41 Sequence Number 7.18 7.18 7.18 7.18 7.19 7.20 7.21 7.22 7.23 7.24 7.25 7.26 7.26 7.26 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 42 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 2,3 Warfarin HF Therapy for Lipids Dose Therapy for Lipids CCB Dose CCB Digoxin Dose Digoxin Other Anti-platelet Dose Other oral anti-platelet Field Description 1. Clopidogrel 2. Other oral antiplatelet 9. Unknown 1 2 9 1. Yes 9. Unknown 1 9 1. Amlodipine 2. Felodipine 3. Diltiazem 4. Verapamil 5. Other CCB 9. Unknown 1 2 3 4 5 9 1. Atorvastatin 2. Pravastatin 3. Rosuvastatin 4. Simvastatin 9. Unknown 1 2 3 4 9 0. No 1. Yes 9. Unknown 0 1 9 Therapy for Lipids Dose 0. No 0 CCB Dose 0. No 0 Digoxin Dose 0. No 0 Other Anti-platelet Dose 0. No Long Code 0 Short Code Text (single value) Numeric (integer) Text (single value) Numeric (integer) Text (single value) Numeric (real) Text (single value) Numeric (integer) Text (single value) Field Type National Heart Failure Audit full dataset 7.31 7.32 7.33 7.34 7.35 7.36 2,3 2,3 2,3 2,3 2,3 7.29 2,3 2,3 7.28 2,3 7.30 7.27 2,3 2,3 Sequence Number Record Type Bronchodilators Nitrate Dose Nitrates HF NSAID Allopurinol Dose Allopurinol Amiodarone Dose Amiodarone Warfarin Dose INR Field Description 1. Yes 9. Unknown 1 9 1. Yes 9. Unknown 1 9 2. ISMN 9. Unknown 2 9 0. No 1. Yes 9. Unknown 0 1 9 Nitrate Dose 1. ISDN 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 Allopurinol Dose 0. No 0 Amiodarone Dose 0. No Warfarin Dose INR 0 Short Code Long Code Text (single value) Numeric (integer) Text (single value) Text (single value) Numeric (integer) Text (single value) Numeric (integer) Text (single value) Numeric (real) Numeric (real) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 43 Sequence Number 7.37 7.38 7.39 8.01 8.02 8.03 8.04 8.05 8.06 8.07 8.08 8.09 8.10 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 44 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 2,3 Added Heart Sounds Murmurs JVP Blood pressure - diastolic Blood pressure - systolic Heart Rhythm Heart rate BMI Weight Height Other treatment Current Trial Medication Current Diabetes Therapy Field Description 1. Diabetes (dietary control) 2. Metformine 3. Sulphonylurea 4. Glitazone 5. Other Oral 6. Diabetic (insulin) 7. Newly diagnosed diabetic 9. Unknown 1 2 3 4 5 6 7 9 2. Irregular 2 1. S3 2. S4 1 2 2. Diastolic 2 3. Normal 3 1. Systolic 2. Raised 2 1 1. Invisible 1 Blood pressure - diastolic Blood pressure - systolic (mmHg) 1. Regular 1 Heart rate on admission (bpm) BMI Weight (Kg) Height (cm) Other treatment Current Trial Medication 0. Not diabetic Long Code 0 Short Code Text (multivalue; separated) Text (multivalue; separated) Text (single value) Numeric (integer) Numeric (integer) Text (single value) Numeric (integer) Numeric (real) Numeric (real) Numeric (real) Free text Free text Text (single value) Field Type National Heart Failure Audit full dataset Sequence Number 8.11 8.13 9.01 9.02 9.03 9.04 9.05 9.06 9.07 9.08 9.09 9.10 9.11 9.12 9.13 9.14 9.15 9.16 9.17 9.18 9.19 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 RBBB LBBB QT Duration (Uncorrected) QRS Duration Total Cholesterol NT-BNP BNP T4 TSH Glucose GammaGT ALT AST Bilirubin Electrolytes-K Electrolytes-NA Creatinine Urea Hb Physical Exam Other Lung Fields Field Description 2. Rales 2 Long Code 1. Yes 9. Unknown 1 9 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 QT Duration (uncorrected) QRS Duration Total Cholesterol NT-BNP BNP TFTs T4 TFTs TSH Glucose LFTs GammaGT LFTs ALT LFTs AST LFTs Bilirubin Electrolytes-K Electrolytes-NA Full blood count creatinine Full blood count urea Full blood count Hb Physical Exam Other 1. Clear 1 Short Code Text (single value) Text (single value) Numeric (integer) Numeric (integer) Numeric (real) Numeric (integer) Numeric (integer) Numeric (real) Numeric (real) Numeric (real) Numeric (integer) Numeric (integer) Numeric (integer) Numeric (integer) Numeric (real) Numeric (integer) Numeric (integer) Numeric (real) Numeric (real) Free text Text (single value) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 45 Sequence Number 9.20 9.21 9.22 9.23 9.24 9.25 Record Type 2,3 2,3 2,3 2,3 2,3 46 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 2,3 Echo Diastolic dysfunction Echo Systolic dysfunction ECHO (or other gold standard test e.g MRI,Nuclear Scan or Angiogram) ECG Rate ECG ECG Previous MI Field Description 3. LBBB 4. Previous MI 6. Not done - planned after discharge 7. Not done - not yet planned 8. Other 9. Unknown 3 4 6 7 8 9 7. Test not done - not yet planned 8. Other 9. Unknown 7 8 9 0. No 1. Yes 9. Unknown 0 1 9 9. Unknown 6. Test not done - planned after discharge 6 9 4. Diastolic dysfunction 4 1. Yes 3. Valve disease 3 1 2. LV hypertrophy 2 0. No 1. LV systolic dysfunction 1 0 0. Normal 0 ECG Rate 2. Atrial fibrillation 2 9. Unknown 9 1. Sinus rhythm 1. Yes 1 Long Code 1 0. No 0 Short Code Text (single value) Text (single value) Text (multivalue; separated) Numeric (integer) Text (multivalue; separated) Text (single value) Field Type National Heart Failure Audit full dataset 9.27 9.28 9.29 9.30 9.31 9.32 9.33 9.34 2,3 2,3 2,3 2,3 2,3 2,3 2,3 9.26 2,3 2,3 Sequence Number Record Type Chest X ULVD Chest X Cardiothoracic ratio MUGA Inducible Ischaemia MUGA LVEF Abnormal MRI Diastolic Dysfunction MRI Systolic Dysfunction Echo Other Echo Mitral Valve Disease Echo Aortic Valve disease Field Description 3. Stenosis and Regurgitation 9. Unknown 3 9 9. Unknown 9 0. No 1. Yes 9. Unknown 0 1 9 Cardiothoracic ratio 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 Echo Other 2. Regurgitation 2 9. Unknown 9 1. Stenosis 3. Stenosis and Regurgitation 3 1 2. Regurgitation 2 0. No 1. Stenosis 1 0 0. No Long Code 0 Short Code Text (single value) Numeric (real) Text (single value) Text (single value) Text (single value) Text (single value) Free text Text (single value) Text (single value) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 47 Sequence Number 9.35 9.36 9.37 9.38 9.39 9.40 9.41 9.42 9.43 9.44 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 48 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Angio LCX Angio LAD dist Angio LAD prox Angio L Main Angio LV dysfunction ETT ST Depression ETT Chest Pain Total Excercise seconds Total Excercise minutes Chest X Pulmonary Oedema Field Description 1. Yes 9. Unknown 1 9 Long Code 0. No 1. Yes 9. Unknown 1 9 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 Total Exercise seconds Total Exercise minutes 0. No 0 Short Code Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Numeric (integer) Numeric (integer) Text (single value) Field Type National Heart Failure Audit full dataset Sequence Number 9.45 9.46 11.01 11.02 11.03 Record Type 2,3 2,3 2,3 2,3 2,3 Treatment ACE I reason Treatment ACEI Dose Treatment ACE I Other test Angio RCA Field Description 1. Yes 9. Unknown 1 9 Long Code 1. Captopril 2. Enalpril 3. Lisinopril 4. Perindopril 5. Ramipril 6. Trandolapril 7. Other ACEI 8. Not applicable 9. Unknown 10. Drug therapy stopped 11. Contraindicated 12. Declined by patient 1 2 3 4 5 6 7 8 9 10 11 12 1. Cough 2. Low Arterial Pressure 3. Renal dysfunction 4. Other intolerance to ACE 5. Not Indicated 1 2 3 4 5 Treatment ACEI Dose 0. No 0 Past Medical History Other 0. No 0 Short Code Text (single value) Numeric (real) Text (single value) Free text Text (single value) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 49 Sequence Number 11.04 11.05 11.06 11.07 Record Type 2,3 2,3 2,3 2,3 50 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Treatment Beta blocker Dose Treatment Beta blocker Treatment ARB Dose Treatment ARB Field Description 1. Candesartan 2. Losartan 3. Valsartan 4. Other ARB 8. Not applicable 9. Unknown 10. Drug therapy stopped 11. Contraindicated 12. Declined by patient 1 2 3 4 8 9 10 11 12 1. Bisoprolol 2. Carvedilol 3. Nebivolol 4. Other beta blocker 8. Not applicable 9. Unknown 10. Drug therapy stopped 11. Contraindicated 12. Declined by patient 1 2 3 4 8 9 10 11 12 Treatment beta blocker Dose 0. No 0 Treatment ARB Dose 0. No Long Code 0 Short Code Numeric (real) Text (single value) Numeric (real) Text (single value) Field Type National Heart Failure Audit full dataset 11.09 11.10 2,3 11.08 2,3 2,3 Sequence Number Record Type Treatment Loop Dose Treatment Loop Diuretic Treatment Beta reason Field Description 4. Torasemide 5. Other loop diuretic 8. Not applicable 9. Unknown 10. Drug therapy stopped 11. Contraindicated 12. Declined by patient 4 5 8 9 10 11 12 Treatment Loop Dose 3. Furosemide 3 7. Not Indicated 7 2. Ethancrynic acid 6. Other Intolerance 6 2 5. Respiratory Disease 5 1. Bumetanide 4. Intolerable Fatigue 4 1 3. Worsening Heart Failure 3 0. No 2. Low Arterial Pressure 2 0 1. Bradycardia or Heart Block Long Code 1 Short Code Numeric (real) Text (single value) Text (single value) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 51 Sequence Number 11.11 11.12 11.13 11.14 11.15 Record Type 2,3 2,3 2,3 2,3 2,3 52 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Treatment ARA Dose Treatment ARA Reason Treatment ARA Treatment Thiazide Dose Treatment Thiazide Diuretic Field Description 1. Bendroflumethazide 2. Metolazone 3. Other thiazide 8. Not applicable 9. Unknown 10. Drug therapy stopped 11. Contraindicated 12. Declined by patient 1 2 3 8 9 10 11 12 ARA Dose 5. Not Indicated 5 12. Declined by patient 12 4. Other 11. Contraindicated 11 4 10. Drug therapy stopped 10 3. Gynaecomastia 9. Unknown 9 3 8. Not applicable 8 2. Renal Dysfunction 3. Other ARA 3 2 2. Spironolactone 2 1. Hyperkalemia 1. Eplerenone 1 1 0. No 0 Thiazide Dose 0. No Long Code 0 Short Code Numeric (real) Text (single value) Text (single value) Numeric (real) Text (single value) Field Type National Heart Failure Audit full dataset Sequence Number 11.16 11.17 11.18 11.19 11.20 11.21 11.22 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 Treatment CCB Treatment Digoxin Dose Treatment Digoxin Treatment Other Anti-platelet Dose Treatment Other oral anti-platelet Treatment Aspirin Dose Treatment Aspirin Field Description 1. Yes 9. Unknown 10. Drug therapy stopped 1 9 10 1. Clopidogrel 2. Other oral antiplatelet 9. Unknown 10. Drug therapy stopped 1 2 9 10 1. Yes 8. Not applicable 9. Unknown 10. Drug therapy stopped 11. Contraindicated 12. Declined by patient 1 8 9 10 11 12 0. No 1. Amlodipine 2. Felodipine 3. Diltiazem 4. Verapamil 5. Other CCB 9. Unknown 10. Drug therapy stopped 0 1 2 3 4 5 9 10 Treatment Digoxin Dose 0. No 0 Treatment Other Anti-platelet Dose 0. No 0 Treatment Aspirin Dose 0. No Long Code 0 Short Code Text (single value) Numeric (real) Text (single value) Numeric (integer) Text (single value) Numeric (integer) Text (single value) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 53 Sequence Number 11.23 11.24 11.25 11.26 11.27 11.28 11.29 11.30 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 54 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Treatment Amiodarone Dose Treatment Amiodarone Treatment Warfarin Dose Treatment INR Treatment Warfarin Treatment Therapy for Lipids Dose Treatment Therapy for Lipids Treatment CCB Dose Field Description 1. Atorvastatin 2. Pravastatin 3. Rosuvastatin 4. Simvastatin 5. Other Lipid 6. Fibrate 7. Ezetimibe 8. Other Lipid Therapy 9. Unknown 10. Drug therapy stopped 1 2 3 4 5 6 7 8 9 10 1. Yes 9. Unknown 10. Drug therapy stopped 1 9 10 1. Yes 9. Unknown 10. Drug therapy stopped 1 9 10 Treatment Amiodarone Dose 0. No 0 Treatment Warfarin Dose Treatment INR 0. No 0 Treatment Therapy for Lipids Dose 0. No Treatment CCB Dose Long Code 0 Short Code Numeric (integer) Text (single value) Numeric (real) Numeric (real) Text (single value) Numeric (integer) Text (single value) Numeric (integer) Field Type National Heart Failure Audit full dataset Sequence Number 11.31 11.32 11.33 11.34 11.35 11.36 11.37 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 Treatment Diabetes therapy Treatment Bronchodilators Treatment Nitrate Dose Treatment Nitrates Treatment NSAID Treatment Allopurinol Dose Treatment Allopurinol Field Description 1. Yes 9. Unknown 10. Drug therapy stopped 1 9 10 2. ISMN 9. Unknown 10. Drug therapy stopped 2 9 10 1. Diabetes (dietary control) 2. Metformine 3. Sulphonylurea 4. Glitazone 5. Other Oral 6. Diabetic (insulin) 7. Newly diagnosed diabetic 9. Unknown 2 3 4 5 6 7 9 10. Drug therapy stopped 10 1 9. Unknown 9 0. Not diabetic 1. Yes 1 0 0. No 0 Treatment Nitrate Dose 1. ISDN 10. Drug therapy stopped 10 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 Treatment Allopurinol Dose 0. No Long Code 0 Short Code Text (single value) Text (single value) Numeric (integer) Text (single value) Text (single value) Numeric (integer) Text (single value) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 55 Sequence Number 11.38 11.39 12.01 12.02 12.03 12.04 12.05 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 56 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Treatment VAD Treatment PCI Treatment cardiac surgery Treatment Device Mode Treatment Device therapy Treatment clinical trial medication Other Treatment Field Description 0. No 1. Yes 9. Unknown 1 9 9. Unknown 9 0 1. Yes 1 8. Other 8 0. No 4. Cardiac transplant 4 0 3. Other valve surgery 3 7. VVIR 7 2. MVR 6. VVI 6 2 5. OOO 5 1. CABG 4. DDDR 4 1 3. DDD 12. Declined by patient 12 3 4. PM 4 2. AAIR 3. ICD 3 2 2. CRT-P 2 1. AAI 1. CRT-D 1 1 0. None Free text Free text Long Code 0 Short Code Text (single value) Text (single value) Text (multivalue; separated) Text (single value) Text (single value) Free text Free text Field Type National Heart Failure Audit full dataset Sequence Number 12.06 13.01 13.02 13.03 14.00 14.01 14.02 14.03 14.04 14.05 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 Dx Alcohol Dx Arrhythmia Dx Hypertension Dx Valve disease Dx Ischaemic heart disease Dx Heart Failure QOL Other QOL VAS QOL Minnesota Treatment cardiac rhythm management Field Description 2. Intervention (unspecified) 3. Intervention (pulmonary vein isolation) 4. Other 2 3 4 1. Yes 9. Unknown 1 9 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 QOL Other QOL VAS QOL Minnesota 1. EP study Long Code 1 Short Code Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Numeric (integer) Numeric (integer) Numeric (real) Text (single value) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 57 Sequence Number 14.06 14.07 14.08 14.09 14.10 14.11 14.12 14.13 15.00 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 2,3 58 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 2,3 HF Liaison Service Other diagnosis Dx Pulmonary Embolism Dx Anaemia Dx Deconditioning Dx Obesity Dx COPD Dx Asymptomatic LVSD Dx Cardiomyopathy Field Description 1. Yes 9. Unknown 1 9 0. No 1. Yes 9. Unknown 0 1 9 Other diagnosis 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 9. Unknown 9 9. Unknown 9 1. Yes 8. Other 8 1 2. HCM 2 0. No 1. DCM 1 0 0. No 0 Short Code Long Code Text (single value) Free text Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Field Type National Heart Failure Audit full dataset 15.02 15.03 15.04 15.05 15.06 15.07 15.08 2,3 2,3 2,3 2,3 2,3 2,3 15.01 2,3 2,3 Sequence Number Record Type GP Cardiology FU COTE/Medical Palliative Care Transplant Cardiothoracic Surgery Social Work Cardiac Rehabilitation Field Description 1. Yes 9. Unknown 1 9 9. Unknown 9 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 9. Unknown 9 1 8. Not applicable 8 0. No 1. Yes 1 0 0. No 9. Unknown 9 0 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 9. Unknown 9 12. Declined by patient 12 1. Yes 9. Unknown 9 1 8. Not applicable 8 0. No 1. Yes 1 0 0. No Long Code 0 Short Code Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Text (single value) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 59 Sequence Number 15.09 15.10 15.11 15.12 15.13 15.14 15.15 16.01 16.02 Record Type 2,3 2,3 2,3 2,3 2,3 2,3 2,3 4 4 Event Event date Patient died Was the patient stable on oral therapy after discharge planning? Date of heart failure review appointment A review appointment with the specialist MD heart failure team made Discharge Planning Date of discharge Other Field Description 1. Death 2. Admission for CHF 3. Other CV admission 4. Other non-CV admission 5. Unscheduled OP visit 6. Other event 1 2 3 4 5 6 Event Date (dd/mm/yyyy) 1. Yes 1 9. Unknown 9 0. No 1. Yes 1 0 0. No 0 Date of review appointment (dd/mm/yyyy) 9. Unknown 9. Unknown 9 9 5. None of the above 5 1. Yes 4. All of the above 4 1 3. A heart failure management plan has been communicated to the primary care team 3 0. No 2. A heart-failure management plan has been discussed with the patient 2 0 1. A heart failure pre-discharge management plan is in place Date of discharge (dd/mm/yyyy) FU Other Long Code 1 Short Code Text (single value) Date (dd/mm/yyyy) Text (single value) Text (single value) Date (dd/mm/yyyy) Text (single value) Text (single value) Date (dd/mm/yyyy) Text (single value) Field Type National Heart Failure Audit full dataset 60 • National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 Sequence Number 16.03 16.04 17.01 17.02 17.03 17.04 Record Type 4 4 5 5 5 5 Death (Info Source) Death (reason) Life status Life status date Hospitalisation (duration) Hospitalisation (treatment) Field Description 2. Need for CPAP 2 Long Code 2. Death Certificate 3. ONS 4. Hospital records 5. G.P records 6. Verbal contract 9. Other 3 4 5 6 9 4. Non CV 4 2 3. Other CV 3 1. Autopsy 2. Worsening HF 2 1 1. Sudden 2. Dead 2 1 1. Alive 1 Life status date (dd/mm/yyyy) Hospitalisation (duration) 1. Need for IV diuretics 1 Short Code Text (single value) Text (single value) Text (single value) Date (dd/mm/yyyy) Numeric (integer) Text (multivalue; separated) Field Type National Heart Failure Audit full dataset National Heart Failure Audit – Application Notes: Dataset Version 3 Valid From 26th March 2012 • 61 NATIONAL HEART FAILURE AUDIT Application Notes Dataset version 3. Valid from 26th March 2012