Identification of factors contributing to the utilization of home health agencies in North Dakota by LaVerne Elizabeth Lee A thesis submitted in partial fulfillment of the requirements for the degree of MASTER OF NURSING Montana State University © Copyright by LaVerne Elizabeth Lee (1975) Abstract: The purpose of this study was to identify those factors contributing to the limited utilization of the home health agencies in North Dakota. Data were collected by use of an open-ended questionnaire devised by the researcher and sent to 228 physicians, 52 public health nurses, and 60 hospital nurses, employed in the geographic areas of the nine home health agencies in North Dakota. A total of 151 questionnaires were returned. This included 39 percent of physicians, 62 percent of public health nurses, and 45 percent of hospital nurses. The respondents identified those factors limiting the effectiveness of the home health programs to be: 1. limited physician referrals 2. cost to the home health agency as well as to the patient 3. restrictive government regulations 4. lack of knowledge of the program by physicians, hospital nurses and the public In spite of obvious problems, the prevailing feeling is that there is a future for the home health programs in North Dakota. STATEMENT OF PERMISSION TO COPY I n p r e s e n tin g t h i s t h e s i s i n p a r t i a l f u l f i l l m e n t o f th e r e ­ q u ir e m e n ts f o r a n a d v a n c e d d e g r e e a t M ontana S t a t e U n i v e r s i t y , I a g r e e t h a t t h e L i b r a r y s h a l l make i t f r e e l y a v a i l a b l e f o r i n s p e c t i o n . I f u r t h e r a g r e e t h a t p e r m i s s i o n f o r e x t e n s i v e c o p y in g o f t h i s t h e s i s f o r s c h o l a r l y p u r p o s e s may b e g r a n t e d by my m a jo r p r o f e s s o r , o r , i n h i s a b s e n c e , by t h e D i r e c t o r o f L i b r a r i e s . I t i s u n d e r s to o d t h a t any c o p y in g o r p u b l i c a t i o n o f t h i s t h e s i s f o r f i n a n c i a l g a i n s h a l l n o t b e a llo w e d w i t h o u t my w r i t t e n p e r m i s s i o n . S ig n a tu re D a te ; I IDENTIFICATION OF FACTORS CONTRIBUTING TO THE UTILIZATION OF HOWE HEALTH AGENCIES IN NORTH DAKOTA S' I by LAVERNE ELIZABETH LEE A t h e s i s s u b m i t te d in . p a r t i a l f u l f i l l m e n t o f t h e r e q u i r e m e n ts f o r t h e d e g r e e of MASTER OF NURSING A p p ro v ed : H e a d , M a jo r D e p a rtm e n t . ^ C hairtrfdn, E x a m in in g C o m m itte e " G r a d u a te i D ean MONTANA STATE UNIVERSITY Bozem an, M ontana M a rc h , 1975 iii ACKNOWLEDGMENT S i n c e r e a p p r e c i a t i o n i s e x te n d e d t o M rs. M a r g a r e t V o jn o v ic h , c h a ir m a n o f my c o m m itte e , t o M iss S u s a n D o w e ll, D r. D o u g la s B is h o p , an d D r. R ic h a r d H o r s w e ll f o r t h e i r g e n e r o u s a s s i s t a n c e w h ic h made t h e c o m p le tio n o f t h i s p a p e r p o s s i b l e . In a d d itio n , a d eb t o f g ra titu d e i s owed t o M iss I rm a B lo c k , D i r e c t o r , D i v i s i o n o f N u r s in g , N o rth D a k o ta S t a t e D e p a rtm e n t o f H e a l t h and M rs. Mary L a n c a s t e r , E x e c u tiv e S e c r e t a r y , N o r th D a k o ta S t a t e N u rs e s A s s o c i a t i o n , f o r t h e i r s u p p o r t and a s s is ta n c e i n t h i s e n d e av o r. iv TABLE OF CONTENTS Page V I T A ................. ....................................................................................... ..................................... ii ACKNOWLEDGMENT ........................................................................................................... ............i l l L IST OF TABLES ......................................................................................................... .. vi ABSTRACT........................................ .................................................................................. . . . . v i i i C h a p te r 1. 2. INTRODUCTION............................ I M a jo r P u r p o s e o f t h e S tu d y ................................................................... 2 S p e c i f i c O b j e c t i v e s ............................................................ 2 Need f o r t h e S t u d y ........................ ............................................................. 3 A s s u m p tio n s o f t h e S tu d y 5 ................................................ .. L i m i t a t i o n s o f t h e S tu d y ................. ................................................. 6 D e f i n i t i o n of. Term s ...................................... 6 REVIEW OF LITERATURE .................................................................... M e d ic a re .................................... Home C a re T oday ...................... ...... ........................................................... .... 3. 4. METHODOLOGY ...................................................................................... 9 9 16 19 P i l o t S tu d y ............................... 19 S e l e c t i o n o f t h e P o p u l a t i o n .......................................................... 20 M ethod o f C o l l e c t i n g t h e D a t a ...................... ..................................... 21 PRESENTATION OF DATA ................ 23 V • C h a p te r 5. Page CONCLUSIONS, IMPLICATIONS AND RECOMMENDATIONS ................. ...... 42 Summary ...................... .................... ..................................... ........... .... 42 G e n e r a l C o n c lu s io n s .................................. .................. ............................... 43 S p e c i f i c C o n c lu s io n s ........................ .............................. ....................... 44 Im p lic a tio n s 45 .......................................................................... ................ .. R eco m m en d atio n s f o r P ro g ra m D ev elo p m en t and F u r t h e r S tu d y .................................................. ............................ .............. 46 P ro g ra m D e v e l o p m e n t .............*................ ............................................... 46 F u r t h e r S t u d y .......... ............... 47 APPENDIXES A. COVER LETTERS AND SURVEY QUESTIONNAIRE ...................... ................ 4f8 B. MAP OF NORTH DAKOTA INDICATING THE LOCATIONS OF HOME HEALTH AGENCIES ................. ........................................................ .. 55 C. CATEGORIZATION OF RESPONSES ......................................... ................ 57 D. HOME HEALTH RELATED SECTIONS OF TITLE X V III HEALTH INSURANCE FOR THE AGED P .L . 8 9 -9 7 OF THE SOCIAL SECURITY ACT ......................................... ............................................ ............. 67 VERBATIM STATEMENTS MADE BY RESPONDENTS TO . "ADDITIONAL COMMENTS" ON QUESTIONNAIRE ..................................... 74 E. SELECTED BIBLIOGRAPHY ..................................................................................................... 77 vi • LIST OF TABLES T a b le Page 1. RESPONSES TO QUESTIONNAIRE BY GROUPS OF RESPONDENTS ............ 22 2. EFFECTIVENESS OF HOME HEALTH PROGRAMS IN NORTH DAKOTA AS PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES, AND HOSPITAL NURSES ........................................ ........... ........... 24 INDICATORS OF THE EFFECTIVENESS OF THE HOME HEALTH PROGRAMS IN NORTH DAKOTA AS PERCEIVED BY THE PHYSICIANS, PUBLIC HEALTH NURSES, AND HOSPITAL NURSES ........................ ................................................................... 25 3. 4 . . FACTORS LIMITING THE EFFECTIVENESS OF THE HOME HEALTH PROGRAMS IN NORTH DAKOTA AS. PERCEIVED BY THE PHYSICIANS, PUBLIC HEALTH NURSES AND HOSPITAL NURSES ................... 5. 6. 7. 8. 27 FACTORS CONTRIBUTING TO.THE SUCCESS OF THE HOME HEALTH PROGRAMS IN NORTH DAKOTA, AS PERCEIVED . EY THE PHYSICIANS, PUBLIC HEALTH NURSES AND HOSPITAL NURSES ......................................................... 29 PHYSICIANS' REACTIONS TO THE HOME HEALTH PROGRAMS IN NORTH DAKOTA, AS PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES, AND HOSPITAL NURSES ................................ 31 PHYSICIANS' RESPONSIBILITIES IN THE HOME HEALTH PROGRAMS IN NORTH DAKOTA, AS PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES, AND HOSPITAL NURSES .............................................................................................. 32 FACTORS THAT MIGHT CONTRIBUTE TO GREATER UTILIZATION OF THE HOME HEALTH PROGRAMS IN NORTH DAKOTA, BY PHYSICIANS, AS PERCEIVED BY PHYSICIANS, PUBLIC. . HEALTH NURSES AND HOSPITAL NURSES ............ .. .... .............. ................ 33 v ii T a b le 9. 10. 11. 12. Page HOSPITAL NURSES' RESPONSIBILITIES IN THE HOME HEALTH PROGRAMS IN NORTH DAKOTA, AS i PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES, AND HOSPITAL NURSES .......... ................................. .................. V 35 MOST EFFECTIVE METHOD OF PROMOTING THE HOME HEALTH PROGRAMS WITH THE HOSPITAL NURSES, IN NORTH DAKOTA, AS PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES, AND HOSPITAL NURSES .................................................................. 36 FUTURE OF THE HOME HEALTH PROGRAMS IN NORTH DAKOTA, AS PERCEIVED BY THE PHYSICIANS, PUBLIC HEALTH NURSES, AND HOSPITAL NURSES .............................. 38 POSSIBLE CHANGES WHICH COULD BE MADE IN THE HOME HEALTH PROGRAMS IN NORTH DAKOTA, AS PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES, AND HOSPITAL NURSES ............................................. 40 v iii. ABSTRACT The p u r p o se o f t h i s s tu d y w as t o i d e n t i f y t h o s e f a c t o r s c o n ­ t r i b u t i n g t o t h e l i m i t e d u t i l i z a t i o n o f t h e hom e h e a l t h a g e n c i e s i n N o r th D a k o ta . D a ta w e re c o l l e c t e d by u s e o f an o p e n -e n d e d q u e s t i o n n a i r e d e v is e d by t h e r e s e a r c h e r and s e n t t o 228 p h y s i c i a n s , 52 p u b l i c h e a l t h n u r s e s , a n d 60 h o s p i t a l n u r s e s , em ployed i n t h e g e o g r a p h ic a r e a s o f t h e n i n e home h e a l t h a g e n c i e s i n N o rth D a k o ta . A t o t a l o f 151 q u e s t i o n n a i r e s w e re r e t u r n e d . T h i s in c lu d e d 39 p e r c e n t o f p h y s i c i a n s , 62 p e r c e n t o f p u b l i c h e a l t h n u r s e s , and 45 p e r c e n t o f h o s p i t a l n u r s e s . T he r e s p o n d e n t s i d e n t i f i e d t h o s e f a c t o r s l i m i t i n g t h e e f f e c t i v e n e s s o f t h e home h e a l t h p ro g ra m s t o b e : 1. lim ite d p h y s ic ia n r e f e r r a l s 2. c o s t t o t h e home h e a l t h a g e n c y a s w e l l a s t o t h e p a t i e n t 3. r e s t r i c t i v e g o v e rn m e n t r e g u l a t i o n s 4. l a c k o f k n o w le d g e o f t h e p ro g ra m by p h y s i c i a n s , h o s p i t a l n u rs e s and th e p u b lic . I n s p i t e o f o b v io u s p r o b le m s ,. t h e p r e v a i l i n g f e e l i n g i s t h a t t h e r e i s a f u t u r e f o r t h e home h e a l t h p ro g ra m s i n N o r th D a k o ta . . u C h a p te r I INTRODUCTION A d v an ces i n m e d ic a l s c i e n c e h a v e made i t p o s s i b l e f o r human b e in g s t o a t t a i n s e n e s c e n c e i n w ays n e v e r , b e f o r e t h o u g h t p o s s i b l e . l o n g e v i t y h a s r e s u l t e d h o w e v e r i n m y ria d h e a l t h p r o b le m s . T h is Such h e a l t h p ro b le m s a r e com pounded by t h e f a c t t h a t t h e m a j o r i t y o f t h e ag ed p o p u ­ l a t i o n i s e c o n o m ic a lly d e p r i v e d a n d , t o a l a r g e e x t e n t , m e d i c a l l y in d ig e n t. B e c a u s e o f t h i s t h e e l d e r l y o f t e n f o r e g o n e e d e d m e d ic a l tre a tm e n t. I t was w i t h t h e s e p e o p le i n m ind t h a t t h e g o v e rn m e n t e n v is i o n e d h e a lth in s u ra n c e f o r th e ag ed . A lth o u g h s u c h i n s u r a n c e was. c o n s id e r e d a s e a r l y a s 1935 j i t was n o t u n t i l t h i r t y y e a r s l a t e r , i n 1965., t h a t am endm ents t o t h e S o c i a l S e c u r i t y A ct ( e n a c te d i n P u b l i c Law 8 9 -9 7 ) e s t a b l i s h e d a c o m p re h e n s iv e p ro g ra m o f h e a l t h i n s u r a n c e , commonly known a s " M e d ic a r e ," f o r i n d i v i d u a l s 65 y e a r s and o v e r . T h is law p r o v id e d a m ech an ism f o r f i n a n c i n g a n a r r a y o f h e a l t h s e r v i c e s , i n c l u d i n g i n h o s p i t a l c a r e , e x te n d e d c a r e b e n e f i t s , and home h e a l t h s e r v i c e s . re s u lt of th is As a l e g i s l a t i o n home h e a l t h a g e n c ie s w e re e s t a b l i s h e d t h r o u g h ■ • o u t t h e c o u n t r y , n in e o f w h ich a r e l o c a t e d i n N o rth D a k o ta . U n f o r t u n a t e l y t h e home h e a l t h a g e n c i e s , s p e c i f i c a l l y i n N o rth D a k o ta , a r e e x p e r i e n c i n g l i m i t e d u t i l i z a t i o n . c o n tr ib u tin g to t h is O f t h e many p ro b le m s lim ite d u t i l i z a t i o n th e g r e a t e s t o f th e s e a p p e ars ■■ I t o b e l i m i t e d u n d e r s t a n d in g (a n d t h u s , l i m i t e d s u p p o r t ) o f ; t h e home . 2 h e a l t h p ro g ra m by t h o s e p h y s i c i a n s an d n u r s e s who a r e i n a p o s i t i o n t o im p lem e n t t h e p ro g ra m a t th e l o c a l l e v e l . W ith o u t r e f e r r a l s from p h y s i c i a n s and f o llo w - u p fro m t h e n u r s e s , home h e a l t h a g e n c i e s c a n n o t, s u rv iv e . T h is s tu d y w i l l a tt e m p t t o i d e n t i f y t h e r e a s o n s why home h e a l t h a g e n c i e s i n N o rth D a k o ta a r e u n d e r u t i l i z e d . I t i s h o p ed t h e r e s u l t s o f t h i s s tu d y w i l l p r o v id e b o t h p h y s i c i a n s and n u r s e s w ith in s ig h t r e le v a n t to th e d e liv e ry o f h e a lth c a re s e rv ic e s to th e e ld e r ly i n t h e i r h o m e s. M a jo r P u r p o s e o f t h e S tu d y The. m a jo r p u r p o s e o f t h i s s tu d y i s t o i d e n t i f y t h o s e f a c t o r s w h ic h a r e c o n t r i b u t i n g t o t h e l i m i t e d u t i l i z a t i o n o f t h e home h e a l t h a g e n c i e s i n N o rth D a k o ta .. S p e c if ic O b je c tiv e s 1. To d e te r m in e t h e a c c e p ta n c e o f and w i l l i n g n e s s t o p a r t i c i p a t e i n t h e home h e a l t h p ro g ra m b y : a. b. c. 2. p h y s ic ia n s h o s p ita l n u rses p u b lic h e a lth n u rse s To d e te r m in e t h e i n d i v i d u a l s ' u n d e r s t a n d in g o f t h e i r r o l e i n t h e u t i l i z a t i o n o f t h e home h e a l t h p ro g ra m b y: a. b. c. p h y s ic ia n s h o s p ita l n u rses p u b lic h e a lth n u rse s < 3 Need f o r t h e S tu d y Home h e a l t h p ro g ra m s a r e d e s ig n e d t o s e r v e t h e p a t i e n t i n h i s hom e, b y o f f e r i n g a n a r r a y o f s e r v i c e s t o a c h ie v e and s u s t a i n an optim um s t a t e o f h e a l t h , a c t i v i t y , and in d e p e n d e n c e f o r t h e i n d i v i d u a l s Some a d v a n ta g e s o f t h e home h e a l t h p ro g ra m s a r e t o : 1. r e d u c e t h e l e n g t h o f h o s p i t a l i z a t i o n by m ak in g e a r l y d is c h a rg e p o s s ib le . 2. d i m i n is h t h e n e e d f o r r e a d m is s i o n t o t h e h o s p i t a l . 3. p r e v e n t many a d m is s io n s t o n u r s i n g hom es. 4. I p r o v id e a m ore e c o n o m ic a l a l t e r n a t i v e t o i n s t i t u t i o n a l c a re . 5. r e l e a s e h o s p i t a l and i n s t i t u t i o n b e d s f o r t h e a c u t e l y i l l p a tie n ts . .6 . p r o v id e p a t i e n t c a r e i n t h e n o rm a lc y o f t h e home e n v i r o n ­ m e n t. 7. t e a c h hom ebound p a t i e n t s t o l i v e i n d e p e n d e n t l y . ^ A lth o u g h home h e a l t h p ro g ra m s w ould a p p e a r t o p r o v id e t h e s o l u ­ t i o n t o many h e a l t h n e e d s o f t h e e l d e r l y , t h e s e p ro g ra m s a r e u n d e r u t i l i z e d , u n d e r - f i n a n c e d , and d i m i n i s h i n g a s t h e n e e d i n c r e a s e s . T h e re a r e c u r r e n t l y e i g h t home h e a l t h a g e n c ie s , i n N o rth D a k o ta , s e v e n o f w h ic h a r e s t i l l o p e r a t i n g . (S e e A p p e n d ix B f o r a map i d e n t i ­ f y in g t h e l o c a t i o n s o f t h e home h e a l t h a g e n c i e s i n N o rth D a k o ta .) ^ B r a ja n T r a g e r , Home H e a l th S e r v i c e s i n t h e U n ite d S t a t e s , A R e p o r t t o t h e S p e c i a l C om m ittee o n A g in g , G overnm ent P r i n t i n g O f f i c e , W a s h in g to n , D .C ., 1 9 7 2 , p . 6 0 . 4 The home h e a l t h a g e n c i e s i n N o rth D a k o ta a r e c o n f r o n t e d w ith lim ite d p h y s ic ia n r e f e r r a l s , i n s u f f i c i e n t p u b lic h e a lth n u rs in g s t a f f , g r e a t d i s t a n c e s t o t r a v e l fro m t h e home h e a l t h a g e n c y t o t h e p a t i e n t ' s hom e, and in a d e q u a te f u n d in g . A l l t h e s e p ro b le m s a p p e a r t o b e c o n ­ t r i b u t i n g t o t h e l i m i t e d u t i l i z a t i o n o f t h e home h e a l t h a g e n c i e s . G overnm ent f u n d in g f o r t h e d e v e lo p m e n t o f v i a b l e home h e a l t h s e r v i c e s h a s b e e n m in im a l. The r e g u l a t o r y c o n d i t i o n s a r e s o n a rro w t h a t th e y make t h e p r o d u c t n e g l i g i b l e i n te r m s o f m e e tin g r e a l n e e d . ^ , 1 . O f t h e a b o v e m e n tio n e d p ro b le m a r e a s , l i m i t e d p h y s i c i a n r e f e r r a l s h a s h a d t h e g r e a t e s t im p a c t. home h e a l t h a g e n c i e s c a n n o t s u r v i v e . W ith o u t p a t i e n t r e f e r r a l s t h e T he f e d e r a l law s t a t e s t h a t home h e a l t h s e r v i c e s may b e f u r n i s h e d t o an y i n d i v i d u a l who i s u n d e r t h e c a re o f a p h y s ic ia n ; i t . r e q u i r e s t h e r e f o r e , t h a t th e a tte n d in g p h y s ic ia n e s t a b l i s h a w r i t t e n p l a n o f c a r e a lo n g w i t h a s t a t e m e n t c e r t i f y i n g t h a t t h e r e i s a n e c e s s i t y f o r t h e home h e a l t h s e r v i c e s . (S e e A p p e n d ix D f o r t h e p o r t i o n s o f t h e S o c i a l S e c u r i t y A c t r e l a t i n g t o home h e a l t h s e r v i c e s .) T h e re a p p e a r s t o b e a n a p p r e c i a b l e l a c k o f u n d e r s t a n d in g o f t h e home h e a l t h p ro g ra m by t h e p h y s i c i a n s . It i s a w id e ly a c c e p t e d f a c t t h a t some p h y s i c i a n s n e e d p ro m p tin g t o i n i t i a t e a r e f e r r a l . W ith o u t p h y s i c i a n p r o m p tin g , a r e f e r r a l i s n o t fo rth c o m in g and t h e p a t i e n t , i s 2 2I b i d . , p . 5 . 5 d e n ie d home h e a l t h c a r e . T h e re a r e o t h e r p h y s i c i a n s who s e e m in g ly r e f e r e v e r y p a t i e n t f o r home h e a l t h c a r e , a p p r o p r i a t e l y o r n o t , and w i l l n o t a c c e p t th e l im it a ti o n s o f th e s e r v i c e s .^ A l a c k o f u n d e r s t a n d in g and i n t e r e s t i n t h e home h e a l t h p ro g ra m by t h e n u r s i n g p r o f e s s i o n i s a n o t h e r a r e a c o n t r i b u t i n g t o t h e l i m i t e d u t i l i z a t i o n o f t h e home h e a l t h p ro g ra m s . Some h o s p i t a l n u r s e s a p p e a r u n a w a re t h a t t h e r e i s s u c h a p ro g ra m a v a i l a b l e f o r t h e i r p a t i e n t s u p o n d i s c h a r g e w h i l e o t h e r h o s p i t a l n u r s e s a p p a r e n t l y l a c k th e .k n o w ­ le d g e and u n d e r s t a n d in g o f t h e home h e a l t h p ro g ra m and t h e ty p e s o f p a t i e n t s who a r e e l i g i b l e fo r s e rv ic e s . I d e a l l y , p l a n s f o r home h e a l t h c a r e s h o u ld b e g in when t h e p a t i e n t i s a d m itte d t o t h e h o s p i t a l . T h is i s n o t o c c u r i n g i n a m a j o r i t y o f h o s p i t a l s i n N o rth D a k o ta . S t i l l o th e r f a c t o r s c o n tr ib u tin g to th e lim ite d u t i l i z a t i o n o f t h e home h e a l t h p ro g ra m s i n c l u d e l i m i t e d p u b l i c h e a l t h n u r s i n g s t a f f , t h e g r e a t d i s t a n c e s t o b e t r a v e l e d fro m t h e home h e a l t h a g e n c i e s t o t h e p a t i e n t s ' h o m es, and i n s u f f i c i e n t f u n d i n g . A s s u m p tio n s o f t h e ,S t u d y I t was assum ed by t h e r e s e a r c h e r a t t h e b e g in n i n g o f t h e s tu d y th a t: j M a rie B r e n n a n , "Home H e a lth A g e n c ie s i n R u r a l C o m m u n itie s ," ( u n p u b li s h e d p a p e r , N p r t h . D a k o ta S t a t e D e p a rtm e n t o f H e a l t h , 1 9 7 3 ), p. 3. 6 1. t h e home h e a l t h a g e n c i e s i n N o rth D a k o ta a r e e x p e r i e n c i n g l i m i t e d u t i l i z a t i o n , r e s u l t i n g i n d im in is h e d b e n e f i t s b e in g o f f e r e d t o t h e e l d e r l y . 2. t h e s u c c e s s o f t h e home h e a l t h p ro g ra m i s d e p e n d e n t upon t h e p h y s i c i a n s a n d n u r s e s i n a p o s i t i o n t o im p lem e n t t h e p ro g ra m i n t h e i r a r e a . .3 . 4. g e n e r a l l y , t h e e l d e r l y a r e e c o n o m ic a lly d e p r i v e d and m e d ic a lly in d ig e n t. e l d e r l y p e o p le w is h t o m a i n t a i n t h e i r in d e p e n d e n c e , p r e f e r r i n g t o re m a in i n t h e i r own hom es. L i m i t a t i o n s o f t h e S tu d y The l i m i t a t i o n s o f t h i s s tu d y a r e t h o s e i n h e r e n t i n s u rv e y r e s e a r c h u t i l i z i n g a m a i l e d , o p e n -e n d e d q u e s t i o n n a i r e . It i s a g r e e d by r e s e a r c h e r s t h a t t h e s u b j e c t i v e ty p e o f q u e s tio n n a ir e , as u sed i n t h i s s tu d y , le n d s i t s e l f to p o s s ib le m is in ­ te rp re ta tio n . D e f i n i t i o n o f Term s The f o l l o w i n g d e f i n i t i o n s w e re f o r m u la te d f o r t h e p u r p o s e s o f t h i s s t u d y t o p r o v id e c l a r i f i c a t i o n o f t h e te r m in o lo g y u s e d . 1. P u b l i c H e a l th N u rs e - a r e g i s t e r e d n u r s e , em ployed by a com m unity o r h o s p i t a l t o o f f e r home h e a l t h c a r e . 2. P r o v i d e r o f S e r v i c e s - a h o s p i t a l , e x te n d e d c a r e f a c i l i t y , o r a home h e a l t h a g e n c y . 3. Home H e a l th A gency - a p u b l i c o r p r i v a t e o r g a n i z a t i o n , o r a s u b d i v i s i o n o f s u c h a h a g e n c y o r o r g a n i z a t i o n , w h ic h : a. i s p r i m a r i l y e n g a g e d i n p r o v id i n g s k i l l e d n u r s i n g and o th e r th e ra p e u tic s e r v ic e s , 7 4. b. h a s p o l i c i e s e s t a b l i s h e d by a p r o f e s s i o n a l g ro u p a s s o c ia te d w ith th e agency o r o r g a n iz a tio n , c. m a i n t a i n s c l i n i c a l r e c o r d s on a l l p a t i e n t s . 4 Home H e a l th S e r v i c e s - i n c l u d e t h o s e ite m s and s e r v i c e s f u r n i s h e d t o a n i n d i v i d u a l , who i s u n d e r t h e c a r e o f a p h y s i c i a n , and a home h e a l t h a g e n c y , w h ic h g i v e s c a r e on a v i s i t i n g b a s is in th e c l i e n t 's p la c e o f r e s id e n c e : a. p a r t tim e o r i n t e r m i t t e n t s k i l l e d n u r s i n g c a r e ; b . . p h y s ic a l, o c c u p a tio n a l, o r sp eech th e ra p y ; c. m e d ic a l s o c i a l s e r v i c e s ; d. i n t e r m i t t e n t s e r v i c e s o f a home h e a l t h a i d e ; 5 m e d ic a l s u p p l i e s . e. i 5. C o v e re d S e r v i c e - t h o s e home h e a l t h s e r v i c e s f o r w hich re im b u rs e m e n t w i l l b e r e c e i v e d from M e d ic a re . 6. B e n e f i t P e r i o d - a p e r i o d o f c o n s e c u t i v e d a y s d u r in g w h ic h s e r v i c e s f u r n i s h e d t o a p a t i e n t , up t o a c e r t a i n s p e c i f i e d maximum, am o u n t, c a n b e p a id f o r by t h e h o s p i t a l i n s u r a n c e p la n . 7. F i s c i a l I n t e r m e d i a r y - B lu e C ro s s o f N o rth D a k o ta h a n d le s t h e M e d ic a re c la im s f o r t h e home h e a l t h a g e n c i e s i n N o rth D a k o ta . *56 U n ite d S t a t e s D e p a rtm e n t o f H e a l t h , E d u c a ti o n and W e lf a r e , S o c i a l S e c u r i t y A d m i n i s t r a t i o n , T i t l e 18 H e a lth I n s u r a n c e f o r th e A g ed , P u b l i c Law 8 9 -9 7 o f t h e S o c i a l S e c u r i t y A c t , G overnm ent P r i n t i n g O f f i c e , W a s h in g to n , D .C ., J u l y 3 , 1 9 6 5 , p . 3 8 . 5I b i d . , p . 3 7 . 6 U n ite d S t a t e s D e p a rtm e n t o f H e a l t h , E d u c a tio n and W e lf a r e , S o c i a l S e c u r i t y A d m i n i s t r a t i o n , S o c i a l S e c u r i t y H an dbook, 4 t h e d i t i o n , G overnm ent P r i n t i n g O f f i c e , W a s h in g to n , D .C ., 1 9 6 9 , p . 3 5 2 . 8 8. H o s p i t a l B a se d Home H e a l th A gency - t h o s e a g e n c i e s f in a n c e d by a h o s p i t a l and h a v in g t h e i r o f f i c e s i n t h e s p o n s o r in g h o s p ita l. 9. Community B ased Home H e a l th A gency - t h o s e home h e a l t h a g e n c i e s w h ic h a r e a p a r t o f a g e n e r a l i z e d p u b l i c h e a l t h n u r s i n g p ro g ra m i n a c i t y o r c o u n ty . T h e s e a g e n c i e s a r e s u p p o r t e d by l o c a l t a x e s . ^ 10. G e n e r a l iz e d P u b l i c H e a l th N u r s in g P ro g ra m - t h i s i n v o lv e s a l l a s p e c ts o f p u b lic h e a lth n u r s in g , in c lu d in g sc h o o l h e a l t h , h e a l t h c o u n s e l i n g arid t e a c h i n g , v a r i o u s c l i n i c s ( i . e . , i m m u n iz a tio n ) , a s w e l l a s home h e a l t h s e r v i c e s . 11. Homebound - a c l i e n t who i s c o n f in e d t o h i s hom e, u n a b le t o l e a v e w i t h o u t a s s i s t a n c e an d t h e n o n ly f o r o u t - p a t i e n t c a re . 12. S k i l l e d N u r s in g - t h o s e s e r v i c e s w h ic h m u st b e f u r n i s h e d by o r u n d e r t h e d i r e c t s u p e r v i s i o n o f a l i c e n s e d n u r s e t o a s s u r e t h e s a f e t y o f t h e p a t i e n t and t o a c h ie v e t h e m e d ic a lly d e s ir e d r e s u l t s . . C h a p te r I I i I • REVIEW OF LITERATURE I . The 1965 am endm ents t o t h e S o c i a l . S e c u r i t y A c t e n a c t e d i n P u b l i c Law 8 9 -9 7 e s t a b l i s h e d a c o m p re h e n s iv e p ro g ra m o f h e a l t h i n s u r ­ a n c e , commonly known a s " M e d ic a r e ," f o r i n d i v i d u a l s s i x t y - f i v e y e a r s I o f a g e and o v e r . T h is law p r o v id e s a m ech an ism f o r f i n a n c i n g an a r r a y o f h e a l t h s e r v i c e s , i n c l u d i n g i n - h o s p i t a l c a r e , e x te n d e d c a r e b e n e f i t s , and home h e a l t h s e r v i c e s . The c o n c e p t e n v is i o n e d by M e d ic a re i s t o a llo w f o r c o n t i n u i t y , o f c a r e a s t h e p a t i e n t moves fro m o n e l e v e l o f i c a re to a n o th e r. MEDICARE Its In c e p tio n A t t h e o n s e t o f M e d ic a r e , t h e r e w e re few r e g u l a t i o n s s p e c i f y i n g t h e k in d s o f c a r e w h ic h w o u ld be c o v e r e d . As a r e s u l t , any p e r s o n s i x t y - f i v e y e a r s o f a g e and o v e r h a v in g m e d ic a r e i n s u r a n c e , c o u ld r e c e i v e up t o one h u n d re d f r e e v i s i t s upon t h e o r d e r o f a p h y s i c i a n . fro m a p u b l i c h e a l t h n u r s e , Much o f t h e c a r e g i v e n c o n s i s t e d o f p e r s o n a l c a r e , s u c h a s a s s i s t a n c e w i t h b a t h i n g , sham poo, and a m b u la tio n . S k i l l e d n u r s i n g was n o t a lw a y s a p a r t o f t h i s c a r e . At t h i s p o in t, many o f th e n e e d s o f t h e e l d e r l y w e re b e in g m e t, and t h e p ro g ra m was w id e ly u s e d . I n A u g u st o f 1 9 6 9 , I n t e r m e d i a r y L e t t e r No. 395 was s e n t t o a l l t h e p a r t i c i p a t i n g home h e a l t h a g e n c i e s . T h is l e t t e r u s h e r e d i n . , 10 a d r a s t i c c h a n g e i n t h e c o v e r e d s e r v i c e s a v a i l a b l e u n d e r M e d ic a re . T h is l e t t e r s t a t e d : j I . . . . p a y m e n t s may n o t b e made f o r home h e a l t h s e r v i c e s u n l e s s th e s e r v i c e s w e re r e q u i r e d b e c a u s e t h e i n d i v i d u a l n e e d e d " s k i l l e d n u r s i n g c a r e " on a n i n t e r m i t t e n t b a s i s , o r p h y s i c a l o r s p e e c h th e r a p y .7 ' B ecause o f t h i s l e t t e r t h e te r m " s k i l l e d n u r s in g " h a s p la y e d an im p o r­ ta n t r o le in p a tie n t c a r e . E v e ry o n e , in c lu d in g th e p h y s ic ia n s , p u b lic h e a l t h n u r s e s , h o s p i t a l n u r s e s a n d t h e p u b l i c , in v o lv e d w i t h M e d ic a re , h a s h a d a d i f f e r e n t i n t e r p r e t a t i o n o f t h e te r m . R e c e n tl y t h e ra n g e o f n u r s i n g and o t h e r s e r v i c e s c o v e re d b y M e d ic a r e .h a s b e e n n a rro w e d s t i l l m ore by " t e c h n i c a l d e f i n i t i o n s . " T hese d e f i n i t i o n s have been a p p l i e d w i t h o u t c o g n iz a n c e o f n u r s i n g c a r e o r t h e p a t i e n t s ' n e e d s , e x c lu d i n g a l l c a r e g i v e n t o m a i n t a i n o r p ro m o te h e a l t h o r p r e v e n t . ' . r e g r e s s i o n o f m e n ta l o r p h y s i c a l w e l l b e i n g . Thus a c o n f l i c t a r o s e b e tw e e n t h e c a r e o r d e r e d and t h e ty p e s o f c a r e .w h i c h a r e c o v e re d u n d e r M e d ic a r e . The c o v e ra g e a v a ila b le * u n d e r M e d ic a re i s d i v i d e d i n t o two p a r t s , P a r t A and P a r t B. P a rt A P a r t A , known a s h o s p i t a l i n s u r a n c e , c o v e r s i n - p a t i e n t c a r e i n 7 U n ite d S t a t e s D e p a rtm e n t o f H e a l t h , E d u c a ti o n , and W e lf a r e , S o c i a l S e c u r i t y A d m i n i s t r a t i o n , B u re a u o f H e a l th I n s u r a n c e , " I n t e r ­ m e d ia ry L e t t e r No. 3 9 5 ," G overnm ent P r i n t i n g O f f i c e , W a s h in g to n , D .G ., A u g u s t, 1969. 11 . h o s p i t a l s , e x te n d e d c a r e f a c i l i t i e s , and i n t e r m i t t e n t c a r e i n t h e hom e. The h o s p i t a l i n s u r a n c e d e s c r i b e d i n P a r t A p a y s f o r a l l c o v e re d s e r v i c e s , f o r a s many a s o n e h u n d re d home v i s i t s a f t e r th|e s t a r t o f o n e b e n e f i t p e r i o d and b e f o r e t h e s t a r t o f a n o t h e r . T h e se b e n e f i t s c a n b e p a i d f o r up t o one y e a r a f t e r t h e m o st r e c e n t d i s ­ c h a r g e fro m a h o s p i t a l o r p a r t i c i p a t i n g s k i l l e d n u r s i n g f a c i l i t y , b u t o n ly i f t h e f o l l o w i n g c o n d i t i o n s a r e m et: C o s t. 1. t h e p a t i e n t was i n a p a r t i c i p a t i n g h o s p i t a l f o r a t l e a s t th r e e c o n s e c u tiv e d a y s. 2. t h e c o n t i n u i n g c a r e n e e d e d i n c l u d e s p a r t tim e s k i l l e d n u rs in g c a r e , p h y s ic a l, o r sp eech th e ra p y . j 3. t h e p a t i e n t i s hom ebound. 4. th e p h y s ic ia n e s ta b l is h e s a w r i tt e n p la n o f c a re w ith in f o u r t e e n d a y s a f t e r t h e p a t i e n t ' s d i s c h a r g e fro m t h e ■ h o s p it a l o r p a r t i c i p a t i n g s k i l l e d n u rs in g f a c i l i t y . ! 5. t h e home c a r e i s f u r t h e r t r e a t m e n t o f a c o n d i t i o n f o r w h ic h t h e p a t i e n t was h o s p i t a l i z e d . The p a t i e n t m u st p a y t h e f i r s t $ 6 0 .0 0 . I i j A f t e r t h e $ 6 0 .0 0 d e d u c t i b l e h a s b e e n m e t, t h e p a t i e n t i s n o t r e q u i r e d t o make any I a d d i t i o n a l p a y m e n ts f o r home h e a l t h v i s i t s , i f t h e c a r e n e e d e d i s ' a 8 c o v e re d s e r v i c e . 8 8 U n ite d S t a t e s D e p a rtm e n t o f H e a l t h , E d u c a tio n and W e lf a r e , S o c i a l S e c u r i t y A d m i n i s t r a t i o n , Y o u r M e d ic a re H an d b o o k , P u b l i c a t i o n # (SSA) 7 3 0 1 0 0 5 0 , U. S . G overnm ent P r i n t i n g O f f i c e , W a s h in g to n , D .C ., 1 9 7 3 , p . 11. 12 P a rt B P a r t B, known a s S u p p le m e n ta ry M e d ic a l I n s u r a n c e , a s s i s t s w i t h p a y m e n ts o f p h y s i c i a n s ' f e e s , o u t - p a t i e n t s e r v i c e s , and some home h e a lth b e n e f its . h e a lth v i s i t s P a r t B e n t i t l e s t h e p a t i e n t up t o o n e h u n d re d home f o r each c a le n d a r y e a r , w ith o u t r e q u ir in g p r io r h o s p i t a l i ­ z a t i o n , b u t o n ly i f t h e f o ll o w i n g c o n d i t i o n s a r e m et: C o s t. 1. t h e p a t i e n t n e e d s p a r t tim e s k i l l e d n u r s i n g c a r e , p h y s i c a l o r sp eech th e ra p y . 2. t h e p a t i e n t i s hom ebound. 3. t h e p h y s i c i a n d e te r m i n e s t h a t t h e p a t i e n t n e e d s home c a r e . 4. t h e p h y s i c i a n i n i t i a t e s and p e r i o d i c a l l y r e v ie w s t h e p l a n o f c a re . U n d er P a r t B, t h e p a t i e n t m u st p a y t h e f i r s t $ 6 0 .0 0 and 20 p e r - c e n t o f t h e t o t a l c o s t o f t h e c o v e re d s e r v i c e s . 9 U tiliz a tio n W ith t h e p a s s a g e o f tim e and t h e m ore r e s t r i c t i v e r e g u l a t i o n s , a p p r o p r i a t e p a t i e n t r e f e r r a l s h a v e b e g u n t o d e c r e a s e , u n t i l a num ber o f t h e home h e a l t h a g e n c i e s i n N o rth D a k o ta a r e s t r u g g l i n g f o r s u r v i v a l . T he l i m i t e d u t i l i z a t i o n o f home h e a l t h a g e n c ie s i s a c o n c e r n o f many s t a t e s , i n c l u d i n g N o rth D a k o ta . Home h e a l t h s e r v i c e s a r e t h e l e a s t c o s t l y o f a l l t h e m e d ic a l s e r v i c e s , y e t i t i s t h e o n e s e r v i c e r ~ I b i d . , p . 20. 13 t h a t i s se ld o m u s e d . Ambrose*® e m p h a s iz e s t h a t , a f t e r d i s c h a r g e , a p a t i e n t u s u a l l y g o e s . t o h i s home o r t h a t o f a r e l a t i v e f o r w eeks o r m o n th s o f r e c u p e r a t i o n . I t h a s becom e a p p a r e n t t h a t h o s p i t a l s a r e n o t p r e p a r in g p a t i e n t s f o r c o n tin u ity o f c a re upon d is c h a r g e . To r e c e i v e c o n t i n u i t y o f c a r e , t h e h e a l t h c a r e s y s te m a s a w h o le m u s t.u s e a l l t h e e x i s t i n g p u b l i c and p r i v a t e s e r v i c e s , f a c i l i t i e s , and a g e n c ie s . t h a t w i l l i n a v e r y r e a l way make h e a l t h c a r e a v a i l a b l e and a c c e s s i b l e . The d e c i s i o n f o r home c a r e l i e s w i t h a v a r i e t y o f i n t e r e s t s , m a in ly t h e p h y s i c i a n s and n u r s e s , b u t a l s o w i t h t h e p a t i e n t . T he p a t i e n t c a n b e i n f l u e n t i a l i n t h e d e c i s i o n t o r e c e i v e home c a r e b u t o n ly i f h e i s in fo rm e d o f t h e v a lu e o f s u c h s e r v i c e s and i s a b l e t o a r t i c u l a t e h i s n e e d t o t h e n u r s e s an d d o c t o r s . L ew is 11 s t r e s s e s t h a t c o o p e r a t i o n i s a n e s s e n t i a l a s p e c t o f any home h e a l t h p ro g ra m . The m e d ic a l s t a f f m u st c o o p e r a te i n r e f e r ­ r i n g and e d u c a t in g t h e p a t i e n t s r e g a r d i n g t h e b e n e f i t s o f t h e home h e a l t h p ro g ra m . P h y s ic i a n s 1 R o le . I n r e c e n t m o n th s home c a r e h a s r e c e i v e d c o n s i d e r a ­ t i o n by t h e A m e ric an M e d ic a l A s s o c i a t i o n . An a r t i c l e i n t h e A m erican *®Anne A m b ro se, S r . , " D i s c h a r g e P l a n s - - T h e W e a k e st L in k ," H o s p i t a l P r o g r e s s , M a rc h , 1 9 7 3 , p . 5 8 . 11 D av id L ew is and M a rie M ackey, "Home C a re P ro g ra m s C u ts D o l l a r s an d D a y s ," C a n a d ia n H o s p i t a l s , May 1 9 7 3 , p . 3 7 . 14 M e d ic a l News i n d i c a t e s t h a t home c a r e p ro g ra m s c a n n o t b e s u c c e s s f u l u n l e s s t h e q u a l i t y o f c a r e i s h i g h and i t i s e f f e c t i v e l y u t i l i z e d . P h y s i c i a n s , i n d i v i d u a l l y and c o l l e c t i v e l y h a v e i m p o r ta n t r e s p o n s i b i l i ­ t i e s i n a s s u r i n g t h a t t h i s s t a n d a r d i s m e t. T he a u t h o r s t a t e d t h a t : The m e d ic a l s o c i e t i e s ' r o l e s h o u ld be g iv e n t o s t i m u l a t i n g p h y s i c i a n s ' i n t e r e s t i n and a c c e p t a n c e o f home c a r e . The s o c i e t y m u st a l s o t a k e t h e l e a d i n im p ro v in g t h e c o o r d i n a t i o n o f e x i s t i n g home c a r e s e r v i c e s and s t i m u l a t i n g t h e d e v e lo p m e n t o f new o n es w h e re t h e y a r e n e e d e d .13 I t m u st b e k e p t i n m ind t h a t e f f e c t i v e p ro g ra m s c a n o f f e r h i g h q u a l i t y c a r e and be a n e x t e n s i o n o f t h e p h y s i c i a n s a t l i t t l e cost an d e f f o r t t o t h e p h y s i c i a n and a t c o n s i d e r a b l e s a v in g s t o t h e p a t i e n t . B u t home c a r e p ro g ra m s c a n n o t f l o u r i s h w i t h o u t t h e s u p p o r t and g u id a n c e o f t h e m e d ic a l com m unity. A m b r o s e ^ s t a t e s t h a t " m e d ic a r e c o v e ra g e i s p r e d i c a t e d u p o n t h e p h y s i c i a n s p r o f e s s i o n a l ju d g m e n t and h i s p l a n o f t r e a t m e n t ; some p h y s i c i a n s a r e s t i l l s k e p t i c a l o r , a t b e s t , p a s s i v e . " N u rs e s' R o le . P r o f e s s i o n a l n u r s i n g i s r e s p o n s i b l e f o r m e e tin g t h e n e e d s o f a l l p e o p le r e g a r d l e s s o f a g e . The r a p i d l y i n c r e a s i n g num bers o f i n d i v i d u a l s i n t h e o l d e r a g e g ro u p m u st b e a c o n c e r n o f a l l p r o ­ f e s s i o n a l n u r s e s , i f t h i s seg m en t o f t h e p o p u l a t i o n i s t o r e c e i v e \ E d i t o r i a l , A m e ric a n M e d ic a l N ew s, J a n u a r y 8 , 1 9 7 3 , p . 5 . Ib id . 4A m brose, o p . c i t . , p . 5 9 . 15 ' a d e q u a te n u r s i n g c a r e . Dawson 16 b e l i e v e s t h a t c o n t i n u i t y o f c a r e i s d e p e n d e n t on t h e n u r s i n g p r o f e s s i o n 's a w a re n e s s o f p a t i e n t s ' n e e d s and t h e p r o f e s s i o n s p l a n n i n g f o r w ays o f m e e tin g t h e s e n e e d s . The h o s p i t a l n u r s e i s i n a p o s i t i o n t o i d e n t i f y p o s t - h o s p i t a l n u r s i n g n e e d s o f p a t i e n t s t h a t may b e m et by p u b l i c h e a l t h n u r s i n g i n t e r v e n t i o n . The h o s p i t a l n u r s e i s a ls o i n f l u e n t i a l in a id in g th e p h y s ic ia n in i n i t i a t i n g a p p ro p ria te r e f e r r a l s t o t h e home h e a l t h a g e n c i e s . Upon r e c e i p t o f a p h y s i c i a n 's r e f e r r a l , t h e p u b l i c h e a l t h n u r s e i s a b l e t o p r o v id e home h e a l t h c a r e t o t h e p a t i e n t i n h i s hom e. An a r t i c l e i n NLN News 17 f a c e tio u s ly s ta te d th a t,, " p u b lic h e a lth n u r s e s do f a r m ore t h a n w ash and i r o n t h e p a t i e n t and c a r r y o u t th o s e t a s k s w h ic h a r e deem ed s k i l l e d . " The a r t i c l e s t r e s s e d t h a t , i n a d d i t i o n t o m e d ic a l o r d e r s and p r o v i d i n g d i r e c t n u r s i n g c a r e t r e a t m e n t s t h e p u b l i c h e a l t h n u r s e m akes t o t a l a s s e s s m e n t o f p a t i e n t s ' n e e d s , e v a l u a t e s f a m ily r e s o u r c e s and home s i t u a t i o n s , m akes o b s e r v a t i o n s o f d i s e a s e p r o c e s s and sy m p to m s, d e v e lo p s n u r s i n g c a r e p l a n s , d e m o n s tr a te s 15 " C h a ll e n g e s t o N u r s in g i n M e d ic a r e ," A m e ric an J o u r n a l o f N u r s in g , N ovem ber, 1 9 6 5 , Volume 1 3 , p . 6 8 . 16 Norma Dawson and M a rth a S t e r n , " P e r c e p t i o n s o f P r i o r i t i e s f o r Home N u r s in g C a r e ," N u r s in g R e s e a r c h , M arch - A p r i l , 1 9 7 3 , Volume 2 2 , p . 145. 17 E d i t o r i a l , NLN N ew s, Volume 2 1 , No. 8 , N a t i o n a l L eag u e f o r N u r s in g , S e p te m b e r, 1 9 7 3 , p . 3 . 16 c a r e an d i n s t r u c t s t h e p a t i e n t ' s f a m i l y , s u p e r v i s e s c a r e p r o v id e d by a u x i l i a r y p e r s o n n e l , and c o o r d i n a t e s s e r v i c e s . A long w i t h t h e s e s e r ­ v ic e s th e p u b lic h e a lth n u rse i s r e s p o n s ib le f o r th e e d u c a tio n o f p h y s i c i a n s , h o s p i t a l n u r s e s * and t h e p u b l i c r e g a r d i n g t h e M e d ic a re b e n e f i t s a v a i l a b l e th r o u g h t h e home h e a l t h p ro g ra m . T he A m e ric an H o s p i t a l A s s o c i a t i o n s u p p o r t s t h e i d e a t h a t " t h e p u b l i c s h o u ld b e in fo rm e d o f t h e p o t e n t i a l f o r e x p e r t c a r e i n t h e home t h r o u g h v a r i o u s t y p e s o f home c a r e p r o g r a m s ." 18 HOME CARE TODAY N a tio n w id e I n a r e c e n t r e p o r t R yder 19 s ta te d : . . . . h o m e c a r e o f f e r s a p e r s o n a l c h o ic e i n m e d ic a l c a r e . S t u d i e s o f o l d e r p e o p le show t h a t up t o 50 p e r c e n t o f t h o s e i n i n s t i t u t i o n s w o u ld r e a l l y r a t h e r b e i n t h e i r own h o m e s. Home c a r e m o st im p o r­ t a n t l y p r o v i d e s u s w i t h a way o f a llo w in g t h e i n d i v i d u a l t o re m a in i n c o m f o r t and d i g n i t y i n h i s own home w h i l e a t t h e same tim e i t p r e v e n t s d e p e n d e n c y and l o s s o f hum an r e s o u r c e s . D e s p i te t h e s e v i r t u e s , home c a r e i n t h e U n ite d S t a t e s a t t h i s moment i s a t a s t a n d s t i l l , i f n o t i n r e g r e s s i o n . T h e re a r e a b o u t 2 ,3 0 0 home h e a l t h a g e n c i e s c e r t i f i e d f o r M e d ic a re , r e im b u rs e m e n t, and y e t t h e r e a r e l a r g e g e o g r a p h ic a r e a s o f t h e n a t i o n s t i l l w i t h no s u c h s e r v i c e . F i f t y p e r c e n t o f o u r c o u n t i e s h a v e no home h e a l t h s e r v i c e s a n d , a lt h o u g h t h e s e c o u n t i e s r e p r e s e n t a s m a l l p r o p o r t i o n ^ A m e r ic a n H o s p i t a l A s s o c i a t i o n , T he H o s p i t a l a n d t h e Home C a re P ro g ra m , 1 9 7 2 , p . 14. 19 C l a i r e F . R y d e r , "In-H om e C a re T ow ards a N a t i o n a l P o l i c y a n d S t r a t e g y , " P a p e r p r e s e n t e d a t 1972 R e g io n a l M e e tin g s o f Home H e a lth A g e n c ie s and Com m unity H e a l th S e r v i c e s . I 17 o f o u r p o p u l a t i o n , th e y p o s e p a r t i c u l a r p ro b le m s o f d i s t a n c e and i s o l a t i o n i n r u r a l a r e a s . O ver h a l f t h e a g e n c i e s t h a t a r e c e r t i ­ f i e d h a v e o n ly o n e o r tw o n u r s e s o n s t a f f . S in c e o v e r 60 p e r c e n t o f t h e c e r t i f i e d a g e n c i e s a r e a d m i n i s t e r e d by h e a l t h d e p a r t m e n t s , t h e s e n u r s e s o f t e n h a v e many o t h e r r e s p o n s i b i l i t i e s beyond t h e d e l i v e r y o f c a r e t o t h e p a t i e n t i n h i s h o m e ... I n N o r th D a k o ta Home c a r e i n N o r th D a k o ta i s e x p e r i e n c i n g d i f f i c u l t i e s . In 1 9 6 9 , t h e r e w e re n in e a g e n c i e s c e r t i f i e d f o r M e d ic a re re im b u rs e m e n t. As M e d ic a re r e g u l a t i o n s becam e m ore r e s t r i c t i v e and p a t i e n t r e f e r r a l s b e g a n t o d e c l i n e , t h e home h e a l t h a g e n c i e s fo u n d i t d i f f i c u l t t o m a i n t a i n t h e i r p r o g ra m s . h e a lt h agency te r m in a te d i t s D a k o ta . in c re a s in g ly As a r e s u l t , i n 1 9 7 4 , one home s e r v i c e s , l e a v i n g e i g h t a g e n c i e s i n N o rth Of t h e r e m a in in g e i g h t a g e n c i e s , o n ly s e v e n a r e c o n t i n u i n g t o o f f e r home c a r e . The e i g h t h a g e n c y i s i n s e r i o u s f i n a n c i a l t r o u b l e , w ith th e p o s s i b i l i t y o f c lo s u r e w ith in th e y e a r. A lth o u g h N o rth D a k o ta h a s e i g h t home h e a l t h a g e n c i e s , t h e r e a r e l a r g e a r e a s o f t h i s r u r a l s t a t e w h ic h do n o t h a v e a c c e s s t o home c a re . N o rth D a k o ta h a s f i f t y - o n e c o u n t i e s , tw e n ty o f w h ic h h a v e a c c e s s t o home h e a l t h p r o g r a m s . W ith t h e p o s s i b l e c l o s u r e o f a n o t h e r a g e n c y , N o rth D a k o ta w o u ld b e l e f t w i t h o n ly tw e lv e c o u n t i e s o f f e r i n g home h e a lth c a re . An a r t i c l e i n t h e NLN News 20 20 q u o te d S e n a to r M uskie a s s a y in g NLN N ew s, o p . c i t . , Volume 2 1 , No. 8 , p . 3 . 18 " r e s t r i c t i v e re im b u rs e m e n t p o l i c i e s h a v e l i m i t e d p a y m e n ts f o r home h e a l t h s e r v i c e s t o l e s s t h a n one p e r c e n t o f M e d ic a re e x p e n d i t u r e s . VJhat s h o u ld b e a n im p o r ta n t se g m e n t o f o u r n a t i o n a l h e a l t h s y s te m h a s b e e n b a d ly c r i p p l e d by a c o m b in a tio n o f n e g a t i v e a t t i t u d e s .V A s t a t e m e n t fro m T r a g e r ' s 21 r e p o r t sums up t h e s i t u a t i o n w e l l . A r e v ie w o f home h e a l t h s e r v i c e s a v a i l a b l e i n t h e U n ite d S t a t e s m u st l e a d t o t h e c o n c l u s i o n t h a t t h e y do n o t c o n s t i t u t e a v a l i d r e s o u r c e f o r t h e p o p u l a t i o n w h ic h c o u ld make a p p r o p r i a t e u s e o f th em . They a r e i n s h o r t s u p p ly , t h e y do n o t o f f e r t h e c o m p re h e n s iv e r a n g e o f s e r v i c e s r e q u i r e d , th e y a r e l i m i t e d i n t h e i r c a p a c i t y t o p r o v id e f o r any s i g n i f i c a n t volum e o f t h e p o p u l a t i o n i n n e e d , and t h e y h a v e no g e o g r a p h ic c o v e r a g e . W here th e y do e x i s t , t h e s e r v i c e s a r e . fra g m e n te d and a r e d e c r e a s i n g r a t h e r t h a n e x p a n d in g . 21 B r a ja n T r a g e r , Home H e a l th S e r v i c e s i n t h e U n ite d S t a t e s , A R e p o r t t o t h e S p e c i a l C o m m ittee on A g in g , G overnm ent P r i n t i n g O f f i c e , W a s h in g to n , D. C. , 1 9 7 2 , p . 6 1 . \ C h a p te r I I I METHODOLOGY The d a t a p r e s e n t e d i n t h i s s t u d y w e re c o l l e c t e d th r o u g h t h e u s e . o f a su rv e y in s tru m e n t. T he w r i t t e n q u e s t i o n n a i r e w as c o n s id e r e d t o b e t h e b e s t m eth o d f o r c o l l e c t i o n o f d a t a i n t h i s n o n e x p e r im e n ta l d e s c rip tiv e re se a rc h e f f o r t. T he d e s i g n i s a l s o c o n d u c iv e t o d a t a c o l l e c t i o n o v e r a. l a r g e g e o g r a p h ic a r e a w i t h r e l a t i v e s p e e d and e a s e . 22 An o p e n -e n d e d q u e s t i o n n a i r e w as d e v is e d by t h e r e s e a r c h e r t o be s e n t t o t h e t a r g e t p o p u l a t i o n l o c a t e d i n t h e g e o g r a p h ic a r e a s o f t h e n i n e home h e a l t h a g e n c i e s i n N o rth D a k o ta . PILOT STUDY I n o r d e r t o v a l i d a t e and r e f i n e t h e p r o p o s e d t o o l f t h e i n i t i a l q u e s t i o n n a i r e w as m a ile d t o f o u r p u b l i c h e a l t h n u r s e s , f o u r p h y s i c i a n s and f o u r h o s p i t a l n u r s e s a s s o c i a t e d w i t h home h e a l t h a g e n c i e s i n M o n ta n a . S e v e r a l p ro b le m a r e a s r e l a t i n g t o c l a r i t y and e a s e o f r e s p o n s e w e re i d e n t i f i e d i n t h e i n i t i a l q u e s t i o n n a i r e . R e v is io n s w e re t h e n made t o p ro d u c e t h e f i n a l v e r s i o n o f t h e q u e s t i o n n a i r e . 2^ H illw a y T y r u s , I n t r o d u c t i o n t o R e s e a r c h (B o s to n : H o u g h to n M i f f l i n Com pany, 1 9 5 6 ) , p . 2 0 1 . 20 SELECTION OF THE POPULATION A p u r p o s i v e sa m p le was s e l e c t e d fro m p h y s i c i a n s , p u b l i c h e a l t h n u r s e s , an d h o s p i t a l n u r s e s em p lo y ed i n t h e g e o g r a p h ic a r e a s o f t h e n in e home h e a l t h a g e n c i e s i n N o rth D a k o ta . P h y s ic ia n s T h e r e a r e a p p r o x im a te ly 500 p h y s i c i a n s i n N o r th D a k o ta . t h i s g ro u p 228 w e re s e l e c t e d . From A c u r r e n t l i s t i n g o f p h y s i c i a n s was a c q u i r e d fro m t h e N o r th D a k o ta S t a t e D e p a rtm e n t o f H e a l t h . , T h is l i s t ­ in g w as re v ie w e d by t h e r e s e a r c h e r and t h o s e p h y s i c i a n s w e re e l i m i n a t e d who w e re deem ed l e a s t l i k e l y t o u t i l i z e agency. t h e s e r v i c e s o f a home h e a l t h The p h y s i c i a n s e l i m i n a t e d a r e a s f o ll o w s : 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. 14. p e d ia tric ia n s o b s te tric ia n s g y n e c o lo g is ts e a r , n o s e and t h r o a t s p e c i a l i s t s o s te o p a th s d e rm a to lo g is ts a lle rg y s p e c ia lis ts d e n tis ts p s y c h o lo g is ts a d o l e s c e n t m e d ic in e n e u ro su rg e o n s ra d io lo g is ts p s y c h ia tris ts p h y s i c i a n s em ployed by V e te r a n s H o s p i t a l s and A i r B ase H o s p ita ls . 21 H o s p i t a l N u rs e s A t o t a l o f s i x t y h o s p i t a l n u r s e s w e re s e l e c t e d f o r t h e r e s e a r c h e r by t h e e x e c u t i v e s e c r e t a r y o f t h e N o rth D a k o ta S t a t e N u rs e s A s s o c ia tio n . T he e x e c u t i v e s e c r e t a r y w as p r o v id e d w i t h t h e c r i t e r i a f o r th e s e l e c t i o n o f th e s e n u r s e s . The c r i t e r i a w e re a s f o llo w s : 1. f o u r n u r s e s w e re t o be s e l e c t e d fro m e a c h o f t h e s p e c i f i e d h o s p i t a l s . T he tw e n ty - tw o h o s p i t a l s s e l e c t e d f o r t h e s tu d y w e re l o c a t e d i n t h e g e o g r a p h ic a r e a s o f t h e n i n e home h e a lth a g e n c ie s . 2. e a c h n u r s e m u st b e e m p lo y e d . T he sa m p le p o p u l a t i o n s e l e c t e d t o p a r t i c i p a t e i n t h i s s tu d y was s m a l l e r t h a n a n t i c i p a t e d . I n some c a s e s , fe w e r t h a n f o u r n u r s e s w e re s e l e c t e d , b e c a u s e some o f t h e s m a l l , r u r a l h o s p i t a l s d i d n o t em ploy f o u r r e g i s t e r e d n u r s e s . P u b l i c H e a l t h N u rs e s T h e re w e re s e v e n t y - f i v e p u b l i c h e a l t h n u r s e s em p lo y ed i n N o rth D a k o ta . O f t h e s e s e v e n t y - f i v e p u b l i c h e a l t h n u r s e s , f i f t y - t w o w ork i n l o c a l a g e n c i e s o f f e r i n g home h e a l t h s e r v i c e s u n d e r m e d ic a r e . T h e se f i f t y - t w o p u b l i c h e a l t h n u r s e s w e re s e l e c t e d t o p a r t i c i p a t e i n t h i s s tu d y . METHOD OF COLLECTING THE DATA T he q u e s t i o n n a i r e , a c o v e r l e t t e r e x p l a i n i n g t h e p u r p o s e o f t h e s tu d y and r e q u e s t i n g t h e p a r t i c i p a t i o n o f t h e r e s p o n d e n t , a lo n g 22 w i t h a s e l f a d d r e s s e d e n v e lo p e , w e re s e n t t o t h e sa m p le p o p u l a t i o n s e le c te d f o r t h i s s tu d y . E v e ry e f f o r t was made t o m a i n t a i n t o t a l a n o n y m ity th r o u g h o u t t h e s t u d y . One m onth f o l l o w i n g t h e i n i t i a l m a i l i n g , a f o llo w - u p l e t t e r was s e n t t o a l l s tu d y p a r t i c i p a n t s . and c o v e r l e t t e r s (An ex am p le o f t h e q u e s t i o n n a i r e a r e l o c a t e d i n A p p e n d ix A .) The sa m p le p o p u l a t i o n f o r t h i s s tu d y t o t a l e d 340 p h y s i c i a n s , p u b l i c h e a l t h n u r s e s , and h o s p i t a l n u r s e s . T a b le I i n d i c a t e s t h e p e r c e n t a g e o f q u e s t i o n n a i r e s r e t u r n e d by t h e r e s p o n d e n t s . T a b le I RESPONSE TO QUESTIONNAIRE BY GROUPS OF RESPONDENTS Number Sent Number R e tu rn e d P e rc e n ta g e 228 91 39 P u b l i c H e a l th N u rs e s 52 32 62 H o s p ita l N u rs e s 60 28 45 R e s p o n d e n ts P h y s ic ia n s C h a p te r .IV PRESENTATION OF DATA T he d a t a p r e s e n t e d i n t h i s s tu d y w e re c o l l e c t e d by t h e s u rv e y q u e s t i o n n a i r e m e th o d . th e r e s e a rc h e r. A p p e n d ix C .) c a n t f in d in g s . c h a p te r. E ach r e s p o n s e w as re v ie w e d a n d c a t e g o r i z e d by (A c a t e g o r i z a t i o n o f r e s p o n s e s i s p r e s e n t e d i n T he d a t a g a t h e r e d w e re t h e n a n a ly z e d f o r p o s s i b l e s i g n i f i T h e s e f i n d i n g s a r e p r e s e n t e d i n t a b u l a r fo rm i n t h i s I t s h o u ld b e n o te d t h a t t h e p e r c e n ta g e s i n e a c h t a b l e h a v e b e e n ro u n d e d t o t h e n e a r e s t w h o le num ber. T he r e a d e r w i l l n o t e t h a t e a c h t a b l e c o n t a i n s a l a r g e p e r c e n t ­ a g e o f " n o r e s p o n s e ," o c c u r i n g m o st f r e q u e n t l y i n t h e r e s p o n s e s made by t h e p h y s i c i a n s and h o s p i t a l n u r s e s ; I t i s t h e o p i n i o n o f th e r e s e a r c h e r , t h a t t h e s e tw o g ro u p s w e re u n a b le t o a n s w e r t h o s e q u e s t i o n s , d u e t o l i m i t e d k n o w le d g e o f , o r a s s o c i a t i o n w i t h , a home h e a lth agency. 24 • T a b le 2 EFFECTIVENESS OF HOME HEALTH PROGRAMS IN, NORTH DAKOTA AS PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES AND HOSPITAL NURSES D e g re e o f E ffe c tiv e n e s s P h y s ic ia n s PHN N -91 N -32 No. % No. 8 9 6 E ffe c tiv e 25 27 In e ffe c tiv e 32 No R e sp o n se T o ta l V ery E f f e c t i v e H o s p ita l N u rs e s N-28 T o ta l N-151 No. % No. 7. 25 2 7 16 16 12 22 5 18 42 28 35 10 41 14 50 56 32 26 29 4 12 7 25 37 24 91 100 32 100 28 100 151 100 % A f a i r l y e v e n d i s t r i b u t i o n o f r e s p o n s e s w as o b s e r v e d i n t h e d a t a p r e s e n t e d i n T a b le 2 . Of th o s e re s p o n d in g , th e l a r g e s t p e rc e n t f e l t t h e home h e a l t h p ro g ra m s w e re l e s s t h a n a d e q u a te i n N o rth D a k o ta . A f u r t h e r a n a l y s i s o f t h e r e s p o n s e s show t h a t 35 p e r c e n t o f th e p h y s i c i a n s , 41 p e r c e n t o f t h e p u b l i c h e a l t h n u r s e s , and 50 p e r c e n t o f t h e h o s p i t a l n u r s e s f e l t t h e home h e a l t h p ro g ra m s w e re i n e f f e c t i v e . I t s h o u ld b e n o te d t h a t 6 o r 25 p e r c e n t o f t h e p u b l i c h e a l t h n u r s e s f e l t t h e p ro g ra m was v e r y e f f e c t i v e , w h i l e o n ly 8 o r 9 p e rc e n t o f t h e p h y s i c i a n s r e s p o n d in g f e l t t h e p ro g ra m was v e r y e f f e c t i v e . 25 T a b le 3 INDICATORS OF THE EFFECTIVENESS OF THE HOME HEALTH PROGRAMS IN NORTH DAKOTA AS PERCEIVED BY THE PHYSICIANS, PUBLIC HEALTH NURSES, AND HOSPITAL NURSES __________________ ' ' P h y s ic ia n s ' N -32 No. % Nd. P h y s ic ia n R e fe rra ls I I 10 Number o f p e o p le s e r v e d 7 8 11 F e e d b a c k fro m p a t i e n t s and fa m ilie s 31 ■ \ H o s p ita l N u rs e s N -28 PHN In d ic a to rs N-91 : % Np . ■ % 31 I 4 12 8 34 8 29 26 17 . 31 21 T h o se who w e re a b l e t o re m a in o u t o f th e in s titu tio n s 2 2 M et p h y s i c i a n s ' needs 5 .5 A c c e s s a b ility o f p ro g ra m i n r e ­ g a rd s to geo g ­ ra p h y an d s t a f f . 5 5 F o llo w up r e ­ p o r t s fro m PHN 4' 4 No r e s p o n s e 36 40 7 21 16 T o ta l 91 100 32 100 28 2 N-.151. No. % 34 2 . T o ta l 6 6 2 I 7 4 6 4. •5 3 8 ' . 5 ■’ 4 3 56 59 39 100 151 100 26 • The. d a t a i n T a b le 3 i n d i c a t e t h a t t h e l a r g e s t p e r c e n t o f t h e r e s p o n d e n t s m e a s u re t h e i r home h e a l t h p ro g ra m ’s e f f e c t i v e n e s s by t h e num ber o f p a t i e n t s w h ic h i t s e r v e s . F u rth e r a n a ly s is o f th e d a ta show t h a t 34 p e r c e n t o f t h e p u b l i c h e a l t h n u r s e s and 29 p e r c e n t o f t h e h o s p i t a l n u r s e s f e l t t h a t t h e num ber o f p a t i e n t s s e r v e d was a good i n d i c a t o r o f t h e i r p r o g ra m ’ s e f f e c t i v e n e s s . T h i r t y - f o u r p e r c e n t of- t h e p h y s i c i a n s i d e n t i f i e d f e e d b a c k fro m t h e p a t i e n t s and t h e i r f a m i l i e s a s t h e m eans by w h ic h th e y m e a s u re t h e p r o g r a m 's e f f e c t i v e n e s s I t i s i n t e r e s t i n g t o n o te t h a t o n l y 8 p e r c e n t o f a l l r e s p o n ­ d e n t s fo u n d p h y s i c i a n r e f e r r a l s a n im p o r ta n t m eans o f m e a s u r in g t h e e f f e c t i v e n e s s o f t h e home h e a l t h p ro g ra m . The p u b l i c h e a l t h n u r s e s w e re t h e o n ly g ro u p who i d e n t i f i e d t h i s a s a n a r e a o f im p o r ta n c e . 27 T a b le 4 FACTORS LIMITING THE EFFECTIVENESS OF THE HOME HEALTH PROGRAMS IN NORTH DAKOTA AS PERCEIVED BY THE PHYSICIANS, PUBLIC HEALTH NURSES AND HOSPITAL NURSES P h y s ic ia n s L i m i ti n g F a c to rs N -91 No. C o st L im ite d p h y s ic ia n re fe rra ls H o s p ita l N u rs e s . N-28. PHN N-32 % No. 16 18 5 2 2 6 % , No. 19 % T o ta l N -151 ' Np. -- -- 21 3 11 11 % 14 7. ■. R e s tric tiv e g o v e rn m e n t re g u la tio n s . 11 PHN s t a f f lim ita tio n s 15. . 12 9 28 16 3 . 2 7 22 9 8 29 26 7 5 3 9 15 17 L ack o f k n o w le d g e ,RN 2 . 2 I 3 2 L ack o f k n o w le d g e ,MD 6. 7 5 16 2 • 7 13 L ack o f k n o w le d g e ,P t . 7 8 1I 3 I 4 9 L im ite d com m unity p u b lic ity 2 2 I 3 I 4 4 3 No r e s p o n s e 30 33 I 3 9 32 40 26 T o ta l 91 100 32 28 100 151 100 100 . . . 6 . •• 28 The d a t a p r e s e n t e d i n T a b le 4 i d e n t i f y two a r e a s , c o n s id e r e d by t h e r e s p o n d e n t s , t o b e t h e g r e a t e s t l i m i t i n g f a c t o r s o f t h e home h e a l t h p ro g ra m s . S e v e n te e n p e r c e n t o f t h e r e s p o n d e n ts f e l t t h a t t h e l i m i t a t i o n s o f t h e p u b l i c h e a l t h n u r s i n g s t a f f was t h e g r e a t e s t lim itin g f a c to r . R e s t r i c t i v e g o v e rn m e n t r e g u l a t i o n s w e re i d e n t i f i e d by 15 p e r c e n t o f t h e r e s p o n d e n t s t o b e t h e s e c o n d . g r e a t e s t l i m i t i n g fa c to r. I t s h o u ld b e n o te d t h a t 9 o r 19 p e r c e n t o f t h e p u b l i c h e a l t h n u r s e s f e l t t h a t l i m i t e d p h y s i c i a n r e f e r r a l s was a l i m i t i n g f a c t o r f o r t h e home h e a l t h p ro g ra m s i n N o rth D a k o ta , w h ile o n ly 2 o r 2 p e r c e n t o f t h e p h y s i c i a n s i n d i c a t e d t h i s t o be a p ro b le m . 29 T a b le 5 FACTORS CONTRIBUTING TO THE SUCCESS OF THE HOME HEALTH PROGRAMS IN NORTH DAKOTA, AS PERCEIVED BY THE PHYSICIANS, PUBLIC HEALTH NURSES AND HOSPITAL NURSES P h y s ic ia n s H o s p ita l N u rs e s N-28 PHN F a c to rs N-91 N-32 No. % No. % No. 6 7 3 9 3 Q u a lifie d PHNti 33 36 6 19 P u b lic a w a re n e s s I I 4 In cre a se d re fe rra ls 4 4 P a tie n t fee d b a c k 2 C o m m u n icatio n w ith o th e r p ro fe s s io n a ls . T o ta l . N -151 No. % 11 12 8 2 7 41 27 13 2. 7 7 5 2 6 3 11 9 6 2 .5 16 I 4 8 5 % No r e s p o n s e 45 50 12 38 17 61 74 49 T o ta l 91 100 32 100 28 100 151 100 The a r r a y o f d a t a i n T a b le 5 i n d i c a t e t h a t t h e l a r g e s t p e r c e n t o f t h e r e s p o n d e n t s f e l t t h a t t h e s u c c e s s o f t h e home h e a l t h p ro g ra m s . was t h e r e s u l t o f q u a l i f i e d p u b l i c h e a l t h n u r s i n g s t a f f . A d ic h o to m y h a s o c c u r r e d , w i t h T a b le 4 p r e s e n t i n g c o n f l i c t i n g d a t a . I t id e n tifie d t h e g r e a t e s t l i m i t i n g f a c t o r o f t h e home h e a l t h p ro g ra m t o b e t h e 30 l im it a ti o n s o f th e p u b lic h e a lth n u rs in g s t a f f . P u b l i c a w a re n e s s o f t h e home h e a l t h p ro g ra m s was i d e n t i f i e d by 7 o r 5 p e rc e n t o f th e re s p o n d e n ts to be a f a c t o r i n th e s u c c e s s o f th e home h e a l t h p r o g ra m s . k n o w led g e by p a t i e n t s D a ta i n T a b le 4 a l s o i n d i c a t e d t h a t , l a c k o f ( p u b l i c ) was a l i m i t i n g f a c t o r . A g a in , t h e r e a p p e a r s t o b e d i s p a r i t y among t h e r e s p o n s e s . I t s h o u ld b e n o te d t h a t 7 p e r c e n t o f t h e p h y s i c i a n s , 9 p e r c e n t o f t h e p u b l i c h e a l t h n u r s e s , and 11 p e r c e n t o f t h e h o s p i t a l n u r s e s f e l t t h a t c o m m u n ic a tio n w i t h o t h e r p r o f e s s i o n a l s was c o n t r i b u t i n g t o t h e s u c c e s s o f t h e home h e a l t h p r o g r a m s . I 31 . T a b le 6 PHYSICIANS1 REACTIONS TO THE HOME HEALTH PROGRAMS IN NORTH DAKOTA, AS PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES, AND HOSPITAL NURSES P h y s ic ia n s P h y s ic ia n R e a c tio n s H o s p ita l N u rs e s N-28 PHN N -32 N -91 T o ta l N -151 No. 5 No. F a v o r a b le . 28 31 5 16 6 21 39 25 M ixed 13 14 7 22 6 21 26 17 In d iffe re n t 17 19 8 25 11 39 36 24 I I I I 32 35 12 12 5 19 49 32 91 100 32 100 28 100 151 100 N e u tra l No r e s p o n s e T o ta l . % No. % No. . % ; . ■ E x a m in a tio n o f t h e d a t a p r e s e n t e d i n T a b le 6 show a n i n t e r e s t i n g p i c t u r e o f t h e p h y s i c i a n s ’ r e a c t i o n s t o t h e home h e a l t h p r o g ra m s , a s i ! p e r c e iv e d by a l l r e s p o n d e n t s . Of t h o s e r e s p o n d i n g , 25 p e r c e n t f e l t t h e p h y s i c i a n s ' r e a c t i o n s w e re f a v o r a b l e , 17 p e r c e n t f e l t t h e r e a c t i o n s ; w e re m ix e d , and 24 p e r c e n t f e l t t h e p h y s i c i a n s ' r e a c t i o n s w e re i n d i f ­ fe re n t. I t s h o u ld b e n o te d t h a t 31 p e r c e n t o f th e p h y s i c i a n s saw t h e i r r e a c t i o n s a s f a v o r a b l e , 14 p e r c e n t a s m ixed and 19 p e r c e n t a s i n d i f ­ fe re n t. Of t h e n u r s e s r e s p o n d i n g , 36 p e r c e n t o f t h e p u b l i c h e a l t h z 32 . n u r s e s and 38 p e r c e n t o f t h e h o s p i t a l n u r s e s f e l t t h e p h y s i c i a n s ' r e a c t i o n s t o t h e home h e a l t h p ro g ra m w e re i n d i f f e r e n t . T a b le 7 PHYSICIANS1 RESPONSIBILITIES IN THE HOME HEALTH PROGRAMS IN NORTH DAKOTA, AS PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES, AND HOSPITAL NURSES P h y s ic ia n s P h y s ic ia n R e s p o n s ib ilitie s H o s p ita l N u rs e s N-28 T o ta l N -151 R e fe rra ls S u p p o r t and a s s is ta n c e C om m unicate w i t h PHN Be a w a re o f s e rv ic e s a v a ila b le No r e s p o n s e T o ta l T a b le 7 i n d i c a t e s t h a t 60 p e rc e n t^ o f t h e r e s p o n d e n t s f e l t t h a t . t h e p h y s i c i a n s ' m a jo r r e s p o n s i b i l i t y w as t h e w r i t i n g o f c o m p le te re fe rra ls . A f u r t h e r r e v ie w o f t h e d a t a r e v e a l s t h a t o n ly 2 p e r c e n t o f a l l r e s p o n d e n t s f e l t t h a t c o m m u n ic a tio n w i t h t h e p u b l i c h e a l t h n u r s e was a 33 r e s p o n s i b i l i t y o f t h e p h y s i c i a n , y e t T a b le 5 i n d i c a t e s t h a t com m unica­ t i o n among p r o f e s s i o n a l s was a f a c t o r i n t h e s u c c e s s o f t h e home h e a l t h p ro g ra m s. The d a t a c o l l e c t e d i n t h i s s t u d y c o n ti n u e t o p o i n t o u t a d is c re p a n c y in r e s p o n s e s . T a b le 8 FACTORS THAT MIGHT CONTRIBUTE TO GREATER UTILIZATION OF THE HOME HEALTH PROGRAMS.IN NORTH DAKOTA, BY PHYSICIANS, AS PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES AND HOSPITAL NURSES P h y s ic ia n s H o s p ita l N u rs e s N-28 PHN F a c to rs N -91 No. N -32 T o ta l N-151 No. % No. 10 2 .6 3 11 14 9 28 31 11 34 12 43 51 34 Im p ro v ed c o m m u n ic a tio n w i t h PHN 9 10 8 25 2 7 19 13 C o n fid e n c e i n PHN 3 3 -- —- 2 7 5 3 PHN d e m o n s tr a te th a t th is is a needed s e r v ic e 3 3 .. __ I 4 4 3 No r e s p o n s e 39 43 11 34 8 29 58 38 T o ta l 91 100 32 100 28 100 151 100 In cre a se d p u b lic ity A w a re n e ss and u n d e r s t a n d in g o f H .H .p ro g ra m 9 % . % No. ’% 34 • An e x a m in a tio n o f t h e d a t a p r e s e n t e d i n T a b le 8 r e v e a l t h a t t h e l a r g e s t p e r c e n t o f r e s p o n d e n t s f e l t t h a t t h e f a c t o r w h ic h w ould c o n t r i ­ b u t e m o st t o t h e p h y s i c i a n s ’ u t i l i z a t i o n o f t h e home h e a l t h p ro g ra m was t h e i r a w a re n e s s and u n d e r s t a n d in g o f t h e s e r v i c e s o f f e r e d by t h e p ro g ra m . T h i r t y - o n e p e r c e n t o f t h e p h y s i c i a n s , 34 p e r c e n t o f t h e p u b l i c h e a l t h n u r s e s , and 43 p e r c e n t o f t h e h o s p i t a l n u r s e s i d e n t i f i e d t h i s a s t h e m a jo r a r e a o f im p o r ta n c e . Im p ro v e d c o m m u n ic a tio n s w i t h t h e p u b l i c h e a l t h n u r s e was a g a in n o te d a s b e in g a c o n t r i b u t i n g f a c t o r . T en p e rc e n t o f th e p h y s ic ia n s , 36 p e r c e n t o f t h e p u b l i c h e a l t h n u r s e s , and 7 p e r c e n t o f fche h o s p i t a l n u r s e s f e l t t h e p h y s i c i a n s w ould u t i l i z e t h e home h e a l t h p ro g ra m m o re , i f c o m m u n ic a tio n s w ere, im p ro v e d . 35 T a b le 9 , HOSPITAL NURSES' RESPONSIBILITIES IN THE HOME HEALTH PROGRAMS IN NORTH DAKOTA, AS PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES AND HOSPITAL NURSES P h y s ic ia n s H o s p ita l N u rse s1 R e s p o n s ib ilitie s N o. Id e n tify p a tie n ts need­ in g home c a r e . N -91 % H o s p ita l N u rs e s N -28 PHN N -32 No. 7o No. % T d ta l N -1 5 1 . No. % 44 48 22 69 18 64 84 56. K now .scope o f p ro g ra m . 3 3 5 16 2 7 10 7 I n fo r m p a tie n ts re: H .H . b e n e f i t s 6 7 4 13 3 11 13 9 No re s p o n s ib ility 7 8 -- -- ■ -- 7 5 No r e s p o n s e 31 34 I 3 5 18 37 25 T o ta l 91 100 32 100 28 100 151 100 . The d a t a p r e s e n t e d i n T a b le 9 i n d i c a t e t h a t 56 p e r c e n t o f a l l r e s p o n d e n t s f e l t t h e m a jo r r e s p o n s i b i l i t y o f h o s p i t a l n u r s e s was t h e i d e n t i f i c a t i o n o f p a t i e n t s n e e d in g home c a r e . O f t h o s e r e s p o n d i n g , 7 p e r c e n t f e l t th e . h o s p i t a l n u r s e s m u st b e k n o w le d g e a b le r e g a r d i n g t h e s c o p e o f t h e home h e a l t h p ro g ra m . N ine p e r c e n t f e l t t h e h o s p i t a l n u r s e s s h o u ld in fo r m t h e p a t i e n t s o f th e 36 b e n e f i t s o f t h e p ro g ra m . I t i s o f i n t e r e s t t o n o te t h a t 8 p e rc e n t o f th e p h y s ic ia n s r e s p o n d in g f e l t t h a t t h e h o s p i t a l n u r s e s h a d no r e s p o n s i b i l i t y i n t h e , home h e a l t h p ro g ra m , T a b le 10 MOST EFFECTIVE METHOD OF PROMOTING THE HOME HEALTH PROGRAMS, WITH THE HOSPITAL NURSES, IN NORTH DAKOTA, AS PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES, AND HOSPITALMISES P h y s ic ia n s PHN H o s p ita l N u rs e s N -28 M ethods N -91 No . ' In cre a se d p e rso n a l c o n t a c t w ith . RNs . % 38 Nr 3 2 No. 41 27 5 -- 5 I No. % 84 . % T o ta l N -151 , No. % .. 12 43 77 50 5 18 10 7 I 4 7 5 5 18 7 5 P u b lic ity 5. ■ H o s p ita l v i s i t s to p a tie n ts by PHN 5 D e m o n s tra te d u s e fu ln e ss by PHN 2 2 No r e s p o n s e 41 45 5 16 5 18 51 33 T o ta l 91 100 32 100 28 100 151 100 . ' . 3 . ■ 37 The a r r a y o f d a t a i n T a b le 10 show t h a t 50 p e r c e n t o f t h o s e r e s p o n d in g f e l t t h e m o st e f f e c t i v e m ethod o f p ro m o tin g t h e home h e a l t h p ro g ra m w as f r e q u e n t p e r s o n a l c o n t a c t by t h e p u b l i c h e a l t h n u r s e w ith I • th e h o s p ita l n u rs e . I t was i n t e r e s t i n g t o n o te t h a t 5 o r 5 p e r c e n t o f t h e p h y s i ­ c i a n s and 5 o r 18 p e r c e n t o f t h e h o s p i t a l n u r s e s f e l t t h a t p u b l i c i t y p la y e d a n im p o r ta n t r o l e i n p ro m o tin g t h e home h e a l t h p ro g ra m . o f t h e p u b l i c h e a l t h n u r s e s saw t h i s a s b e in g i m p o r t a n t . None E i g h te e n p e rc e n t o f th e h o s p i t a l n u rs e s in d ic a te d a d e s ir e to have th e p u b lic h e a l t h n u r s e d e m o n s t r a t e t h a t t h e home h e a l t h p ro g ra m i s a n e e d e d and u s e fu l s e rv ic e . 3 8 T a b l e F U T U R E O F T H E T H E H O M E H E A L T H P H Y S I C I A N S , 1 1 P R O G R A M S P U B L I C I N H E A L T H N O R T H N U R S E S , D A K O T A , A N D " Y E S P h y s i c i a n s T h e r e I s a i t m a i n t a i n s i t s h o r t e n s t h e r e n e e d e d i s o f i t s s u c c e s s t o d a t e T o t a l o f T h e r e n o Y E S R e s p o n s e s i s n o c o o p e r a t i o n R N s B e c a u s e c o s t s a r e h i g h B e c a u s e r e g u l a t i o n s a r e r e s t r i c t i v e t o o B e c a u s e TL N o . 7. N o . % N o . 7. 4 4 I 3 I 4 6 4 4 4 5 1 6 3 1 1 1 2 8 5 1 6 5 3 4 2 2 8 1 0 o f 2 2 2 5 9 2 8 1 0 1 1 4 1 3 I 4 1 5 1 3 1 4 2 6 6 2 1 2 1 1 4 5 3 6 8 2 6 8 2 3 2 7 8 1 0 1 7 6 I I F u t u r e : M D s t o o N o . •a— c o m m e n t W i t h o u t a n d " N O " w i t h T o t a l N o o f n o N O r e s p o n s e F i n a l T o t a l s 1 1 3 8 R E S P O N S E S o f I 3 .. . . 2 2 I 3 3 I 2 2 2 2 4 3 I I __ 2 I —— ■»*» p o o r m a n a g e m e n t N o N - 1 5 1 a s e r v i c e w i t h N - 2 8 h o s p i t a l r e f e r r a l s i t B e c a u s e Y e s N - 3 2 w e r e i n c r e a s e d B e c a u s e T o t a l N u r s e s p a t i e n t s ' s t a y I f B Y N U R S E S H o s p i t a l F u t u r e : i n d e p e n d e n c e I f P E R C E I V E D R E S P O N S E S P H N N - 9 1 I f A S H O S P I T A L c o m m e n t R e s p o n s e s I 6 7 1 1 1 2 5 8 2 7 3 0 2 6 9 1 1 0 0 3 2 1 0 0 —■ 4 —— 6 4 4 1 6 1 1 5 1 8 3 4 2 3 2 8 1 0 0 1 5 1 1 0 0 I 39 The a r r a y o f d a t a p r e s e n t e d i n T a b le 11 i s d i v i d e d i n t o two I g e n e ra l c a te g o rie s o f re sp o n se s: 11Y ES," t h e home h e a l t h p ro g ra m s h a v e a f u t u r e , and "N O ," t h e home h e a l t h p ro g ra m s h a v e no f u t u r e . A I , t o t a l o f 101 o r 76 p e r c e n t o f t h e r e s p o n d e n t s f e e l t h a t t h e r e i s a I f u t u r e f o r t h e home h e a l t h p ro g ra m i n t h e i r a r e a . F u r t h e r e x a m in a tio n o f t h e d a t a r e v e a l s t h a t 28 p e r c e n t f e e l t h e p ro g ra m h a s a f u t u r e , b e c a u s e i t i s a n e e d e d s e r v i c e , w h i l e 10 p e r c e n t i n d i c a t e d t h a t t h e p ro g ra m w ould h a v e a f u t u r e b a s e d on t h e p r o g r a m 's su c c e ss to d a te . . : I. Of t h o s e r e s p o n d in g "Y E S ," o n ly 2 p e r c e n t i n d i c a t e d t h a t t h e I f u t u r e o f t h e home h e a l t h p ro g ra m d e p e n d s on i n c r e a s e d r e f e r r a l s , y e t T a b le 4 i d e n t i f i e s l i m i t e d p h y s i c i a n r e f e r r a l s a s one o f t h e f a c t o r s , c o n t r i b u t i n g t o t h e l i m i t e d s u c c e s s o f t h e p ro g ra m . I ; O n ly 16 o r 11 p e r c e n t Of t h e r e s p o n d e n t s f e l t t h e r e i s no f u t u r e f o r t h e home h e a l t h p ro g ra m i n t h e i r a r e a . The l a r g e s t p e r c e n t o f r e s p o n d e n t s i d e n t i f i e d r e s t r i c t i v e g o v e rn m e n t r e g u l a t i o n s as. a f a c t o r h i n d e r i n g t h e s u c c e s s o f t h e home h e a l t h p ro g ra m s . 40 . T a b le 12 POSSIBLE CHANGES WHICH COULD BE MADE IN THE HOME HEALTH PROGRAMS IN NORTH DAKOTA, AS PERCEIVED BY PHYSICIANS, PUBLIC HEALTH NURSES, AND.HOSPITAL NURSES . P h y s ic ia n s P o s s ib le C hanges H o s p ita l N u rs e s N-28 PHN N -91 N-32 T o ta l N-151 No. % No. % No. U p d a te PHN s k ills 3 3 I 3 3 11 7 5 I n c r e a s e g o v t. r e im b u rs e m e n t 3 3 10 31 2 7 15 10 C o n tin u in g e d u ­ c a t i o n f o r MDs and RNs r e : HHP I I 5 16 I 4 7 5 10 11 4 13 5 18 19 13 3 3 3 9 2 ■7 8 5 - E xpand t h e s e rv ic e s o f HHP More p u b lic ity B e t t e r com­ m u n ic a tio n s b e tw e e n MDs, PHNs a n d RNs . % . No. % . i I 3 I 4 2 I 4 13 I 4 6 4 4 3 More c o m p le te re fe rra ls I I No c h a n g e s n e c e ssa ry 4 4 No r e s p o n s e 66 73 4 13 13 44 83 54 T o ta l 91 100 32 100 28 lo o 151 100 - ' 41 The d a t a p r e s e n t e d i n T a b le 12 i n d i c a t e t h a t 13 p e r c e n t o f t h e r e s p o n d e n t s f e l t t h a t t h e m o st n e e d e d c h a n g e i n t h e home h e a l t h p r o ­ gram w o u ld b e t h e e x p a n s io n o f s e r v i c e s o f f e r e d . T h is e x p a n s io n w o u ld i n c l u d e a t w e n t y - f o u r h o u r c a l l s y s te m and m ore d i v e r s i f i e d s e r v i c e s t o m ee t t h e e v e r c h a n g in g h e a l t h n e e d s o f e l d e r l y : C o m m u n icatio n a p p e a r s a g a i n i n t h i s t a b l e , w i t h o n ly I p e r c e n t o f a l l r e s p o n d e n t s i d e n t i f y i n g t h e n e e d f o r b e t t e r c o m m u n ic a tio n s among p h y s i c i a n s , p u b l i c h e a l t h n u r s e s , a n d h o s p i t a l n u r s e s a s a c h a n g e n e e d e d t o p ro m o te a n d e n c o u ra g e t h e g ro w th o f home h e a l t h p ro g ra m s . F u r t h e r a n a l y s i s o f t h e d a t a show t h a t 3 p e r c e n t o f t h e p h y s i c i a n s , 36 p e r c e n t o f t h e p u b l i c h e a l t h n u r s e s , and 15 p e r c e n t o f t h e h o s p i t a l n u r s e s f e l t t h a t i n c r e a s e d g o v e rn m e n t r e im b u rs e m e n t i s n e c e ssa ry . I t s h o u ld b e n o te d t h a t 16 p e r c e n t o f t h e p u b l i c h e a l t h n u r s e s f e l t t h a t c o n t i n u i n g e d u c a t i o n f o r t h e p h y s i c i a n s and h o s p i t a l n u r s e s was n e e d e d . A n o th e r 13 p e r c e n t o f t h e p u b l i c h e a l t h n u r s e s i n d i c a t e d a n e e d f o r m ore c o m p le te r e f e r r a l s . A d d i t i o n a l Comments . The q u e s t i o n n a i r e u t i l i z e d i n t h i s s tu d y a llo w e d f o r a d d i t i o n a l com m ents t o b e mdde by t h e r e s p o n d e n t s . th e re s p o n d e n ts u sed t h i s s e c t i o n . O nly s e v e n t e e n o r 11 p e r c e n t o f A v e r b a t im l i s t i n g r e l e v a n t t o t h i s s t u d y i s in c l u d e d i n A p p e n d ix E . o f t h o s e com m ents C h a p te r V CONCLUSIONS, IMPLICATIONS AND RECOMMENDATIONS Summary The p u r p o s e o f t h i s s tu d y w as t o i d e n t i f y t h o s e f a c t o r s c o n ­ t r i b u t i n g t o t h e l i m i t e d u t i l i z a t i o n o f t h e home h e a l t h a g e n c i e s i n N o rth D a k o ta . D a ta w e re c o l l e c t e d by u s e o f a n o p e n -e n d e d q u e s t i o n n a i r e d e v is e d by t h e r e s e a r c h e r and s e n t t o 228 p h y s i c i a n s , 52 p u b l i c h e a l t h n u r s e s , a n d 60 h o s p i t a l n u r s e s , em ployed i n t h e g e o g r a p h ic a r e a s o f t h e n i n e home h e a l t h a g e n c i e s i n N o rth D a k o ta . A t o t a l o f 151 q u e s t i o n n a i r e s w e re r e t u r n e d . T h i s i n c lu d e d 39 p e r c e n t o f p h y s i c i a n s , 62 p e r c e n t o f p u b l i c h e a l t h n u r s e s , and 45 p e r c e n t o f h o s p i t a l n u r s e s . T he r e s p o n d e n t s i d e n t i f i e d t h o s e f a c t o r s l i m i t i n g t h e e f f e c t i v e n e s s o f t h e home h e a l t h p ro g ra m s t o b e : . I. lim ite d p h y s ic ia n r e f e r r a l s 2. c o s t t o t h e home h e a l t h a g e n c i e s a s w e l l a s t o t h e p a t i e n t s 3. r e s t r i c t i v e g o v e rn m e n t r e g u l a t i o n s 4. l a c k o f k n o w le d g e o f t h e p ro g ra m by p h y s i c i a n s , h o s p i t a l n u r s e s and t h e p u b l i c I n s p i t e o f o b v io u s p r o b le m s , t h e p r e v a i l i n g f e e l i n g i s t h a t t h e r e i s a . f u t u r e f o r t h e home h e a l t h p ro g ra m s i n N o r th D a k o ta . I n l i g h t o f t h e f o r e g o i n g d a t a , t h e f o l l o w i n g c o n c lu s i o n s 43 h a v e b e e n f o r m u la te d by t h e r e s e a r c h e r . G e n e r a l C o n c lu s io n s 1. R e s t r i c t i v e g o v e rn m e n t r e g u l a t i o n s , c o n t r o l l i n g p a t i e n t c a r e an d f u n d in g , i s c o n t r i b u t i n g t o t h e l i m i t e d s u c c e s s o f t h e p ro g ra m . 2. S i x t y p e r c e n t o f a l l t h o s e r e s p o n d in g i n d i c a t e d t h a t t h e p h y s i c i a n s ' m a jo r r e s p o n s i b i l i t y t o t h e home h e a l t h p r o ­ gram i s t h e w r i t i n g o f c o m p le te r e f e r r a l s , i n c l u d i n g a p la n o f c a r e . 3. I n s p i t e o f o b v io u s p r o b le m s , t h e p r e v a l e n t f e e l i n g i s t h a t t h e r e i s a f u t u r e f o r t h e home h e a l t h p ro g ra m s i n N o r th D a k o ta . 4. Home h e a l t h s e r v i c e s w o u ld b e m ore e f f e c t i v e i f th e y w ere o f f e r e d on a t w e n t y - f o u r h o u r , s e v e n d a y a w eek b a s i s ; and l a r g e r , m ore d i v e r s i f i e d s t a f f t t i m eet t h e h e a l t h n e e d s o f th e e ld e r ly . 5. F i f t y - s i x p e rc e n t o f a l l re s p o n d e n ts in d ic a te d t h a t th e h o s p i t a l n u r s e s ' m a jo r r e s p o n s i b i l i t y t o t h e home h e a l t h p ro g ra m i s i d e n t i f y i n g t h o s e p a t i e n t s n e e d in g home h e a l t h s e r v i c e s a n d b r i n g i n g them t o t h e a t t e n t i o n o f t h e p h y s ic ia n . 6. A m a j o r i t y o f t h e r e s p o n d e n t s f e l t t h a t p r o m o tio n o f t h e home h e a l t h p ro g ra m s c o u ld b e s t b e a c c o m p lis h e d by t h e p u b lic h e a lt h n u rse th ro u g h p e rs o n a l c o n ta c t w ith p h y s i­ c i a n s and h o s p i t a l n u r s e s . 7. M ost r e s p o n d e n t s i d e n t i f i e d t h e n e e d f o r im p ro v e d communi­ c a t i o n among n u r s e s and m e d ic a l s t a f f . 8. M ore p u b l i c i t y i s n e e d e d t o in f o r m t h e p u b l i c o f s e r v i c e s o f f e r e d th r o u g h a home h e a l t h p ro g ra m . 44 . S p e c i f i c C o n c lu s io n s P h y s ic ia n s 1. The p h y s i c i a n s d i v e r g e d i n t h e i r p e r c e p t i o n o f t h e home h e a l t h p ro g ra m s w i t h 27 p e r c e n t i n d i c a t i n g i t was e f f e c t i v e , and 35 p e r c e n t i n d i c a t i n g i t w as i n e f f e c t i v e . O nly 9 p e r c e n t v ie w e d t h e p ro g ra m a s v e r y e f f e c t i v e . 2. A lth o u g h b o t h g ro u p s o f n u r s e s p e r c e iv e d t h e p h y s i c i a n s ’ r e l u c t a n c e t o make r e f e r r a l s a s a l i m i t i n g f a c t o r , t h e p h y s i c i a n s th e m s e lv e s d i d n o t s e e i t a s a l i m i t i n g f a c t o r i n t h e e f f e c t i v e n e s s o f t h e home h e a l t h p r o g ra m s . 3. G r e a t e r a w a re n e s s and u n d e r s t a n d in g o f t h e s e r v i c e s a v a i l ­ a b l e th r o u g h t h e home h e a l t h p ro g ra m s w o u ld l e a d t o b e t t e r u t i l i z a t i o n o f t h e p ro g ra m s by t h e p h y s i c i a n s . 4. A d ic h o to m y e x i s t s b e tw e e n t h e p h y s i c i a n s ' p e r c e p t i o n o f t h o s e f a c t o r s w h ic h l i m i t t h e p r o g r a m 's s u c c e s s and t h o s e f a c t o r s c o n t r i b u t i n g t o i t s s u c c e s s . On t h e o n e h a n d , t h e y i d e n t i f i e d th e g r e a t e s t lim it in g f a c t o r as t h e i r la c k o f c o n f id e n c e i n t h e p u b l i c h e a l t h n u r s e s ' a b i l i t y t o c a r e f o r p a t i e n t s i n t h e hom e. (S e e T a b le 4 ) On t h e o t h e r h a n d , th e y i n d i c a t e d t h a t t h e o n e f a c t o r c o n t r i b u t i n g m ost t o t h e s u c c e s s o f t h e home h e a l t h p ro g ra m was t h e q u a l i f i e d p u b lic h e a lth n u rs in g s t a f f . (S e e T a b le 5) H o s p i t a l N u rs e s 1. R e g u la r i n s e r v i c e e d u c a t i o n , p r o v id e d by t h e p u b l i c h e a l t h n u r s e , w o u ld e n l a r g e t h e i r u n d e r s t a n d in g and a c c e p ta n c e o f t h e p ro g ra m , e n a b l i n g them t o i d e n t i f y p a t i e n t s n e e d in g home h e a l t h s e r v i c e s . 2. A m a j o r i t y o f t h e h o s p i t a l n u r s e s v iew e d t h e home h e a l t h p ro g ra m a s i n e f f e c t i v e . 3. T w e n ty - n in e p e r c e n t o f t h e h o s p i t a l n u r s e s p e r c e iv e d t h e p u b lic h e a lth n u rse s a s n o t p o s s e s s in g th e n e c e s s a ry s k i l l s n e e d e d t o p r o v id e t h e r e q u i r e d h e a l t h c a r e i n t h e hom e. 4. The h o s p i t a l n u r s e s f e l t t h a t g r e a t e r u n d e r s t a n d in g o f t h e s e r v i c e s p r o v id e d t h r o u g h t h e home h e a l t h p ro g ra m s w ould 45 a s s i s t h e r i n e x p l a i n i n g t h e p ro g ra m t o p a t i e n t s and th e ir fa m ilie s . P u b l i c H e a l th N u rs e s 1. T h e re i s a d i s c r e p a n c y i n t h e p u b l i c h e a l t h n u r s e s ' p e r ­ c e p t i o n o f t h e home h e a l t h p ro g ra m . F o r t y - o n e p e r c e n t v ie w e d t h e p ro g ra m a s i n e f f e c t i v e , 22 p e r c e n t a s e f f e c t i v e , and 25 p e r c e n t v iew e d i t a s v e r y e f f e c t i v e . 2. The p u b l i c h e a l t h n u r s e s i d e n t i f i e d t h e l i m i t e d k n o w le d g e . and u n d e r s t a n d i n g o f t h e home h e a l t h p ro g ra m by t h e p h y s i c i a n s , a s w e l l a s l a c k o f p h y s i c i a n r e f e r r a l s , t o be im p o r ta n t f a c t o r s c o n t r i b u t i n g t o t h e l i m i t e d s u c c e s s o f t h e home h e a l t h p ro g ra m . Im p lic a tio n s The f o l l o w i n g i m p l i c a t i o n s h a v e b e e n draw n fro m t h e f i n d i n g s o f t h i s s t u d y a n d t h e r e s e a r c h e r 's p a s t e x p e r i e n c e w i t h t h e home h e a l t h p ro g ra m s i n N o r th D a k o ta . 1. B e c a u s e t h e home h e a l t h p ro g ra m s i n N o r th D a k o ta w e re f e l t t o b e g r e a t l y n e e d e d , b u t a t t h e sam e tim e i n e f f e c t i v e , i t w o u ld a p p e a r t h a t t h e r e i s a d i s p a r i t y i n r e c o g n i z i n g t h e n e e d and a c t u a l l y p r o v i d i n g t h e c a r e . 2. I f g o v e rn m e n t r e g u l a t i o n s c o n t r o l l i n g p a t i e n t c a r e and f u n d in g c o n ti n u e t o b e r e s t r i c t i v e , t h e home h e a l t h p r o ­ gram s w i l l f i n d i t d i f f i c u l t , i f n o t i m p o s s i b l e , t o m a in ­ t a i n o r im p ro v e t h e i r s e r v i c e s . 3. B e c a u s e t h e home h e a l t h p ro g ra m s i n N o rth D a k o ta a r e v ie w e d a s i n e f f e c t i v e by many o f t h e r e s p o n d e n t s , i t w ould a p p e a r t h a t a m a jo rity o f th e h e a lth n eed s o f th e e ld e r ly a r e n o t b e in g m e t. 4. T he home h e a l t h p ro g ra m s w i l l c o n ti n u e t o e x p e r i e n c e d i f f i c u l t i e s a s lo n g a s p h y s i c i a n s , n u r s e s , an d t h e p u b l i c r e m a in u n in fo rm e d r e g a r d i n g t h e s e r v i c e s a v a i l a b l e th r o u g h t h e home h e a l t h p r o g r a m s . 46 5. Home h e a l t h p ro g ra m s w i l l c o n ti n u e t o f l o u n d e r w i t h o u t im p ro v e d c o m m u n ic a tio n among t h e n u r s e s and p h y s i c i a n s . R ecom m endations f o r P ro g ra m D ev elo p m en t and F u r t h e r S tu d y The f o l l o w i n g re c o m m e n d a tio n s a r e b a s e d on t h e r e s e a r c h e r 's f i n d i n g s , h e r k n o w le d g e o f t h e r e l a t e d l i t e r a t u r e and r e s e a r c h , h e r k n o w led g e g a in e d i n c o n d u c tin g t h i s s t u d y , a s w e l l a s h e r p a s t e x p e r i e n c e w i t h t h e home h e a l t h p ro g ra m s i n N o rth D a k o ta . P ro g ra m D ev elo p m en t 1. E d u c a t i o n a l p ro g ra m s r e l a t i n g t o M e d ic a re s h o u ld be p r o v id e d f o r t h e f o l l o w i n g : a. p h y s ic ia n s b. p u b lic h e a lth n u rse s c. h o s p ita l n u rses d. p u b lic 2. R e g u la r p u b l i c i t y i n l o c a l news m e d ia s h o u ld b e u t i l i z e d t o a c q u a i n t t h e p u b l i c w i t h t h e s e r v i c e s a v a i l a b l e th r o u g h t h e home h e a l t h p r o g ra m s . 3. P e r i o d i c m e e tin g s b e tw e e n p u b l i c h e a l t h n u r s e s and t h e N o rth D a k o ta i n t e r m e d i a r y s h o u ld b e h e l d t o re v ie w t h e r e g u l a t i o n s g o v e r n in g t h e home h e a l t h p r o g r a m s . 4. Home h e a l t h , s e r v i c e s s h o u ld be ex p a n d ed t o i n c l u d e a t w e n t y - f o u r h o u r c a l l s y s te m . 5. T he S t a t e D e p a rtm e n t o f H e a l t h s h o u ld p r o v id e r e g u l a r c o n s u l t a t i v e s e r v i c e s t o t h e home h e a l t h s t a f f . 6. T h e re s h o u ld b e m ore p u b l i c h e a l t h n u r s i n g in v o lv e m e n t i n o n - g o in g , p e r s o n a l c o n t a c t w i t h h o s p i t a l n u r s e s and 47 p h y s ic ia n s . 7. W orkshops an d f o llo w - u p f o r p u b l i c h e a l t h n u r s e s s h o u ld b e p r o v id e d t o a id e th em i n e f f e c t i v e d o c u m e n ta tio n o f p a t i e n t s ' n e e d s , t o j u s t i f y paym ent by t h e i n t e r m e d i a r y . F u r t h e r S tu d y The f o ll o w i n g re c o m m e n d a tio n s a r e b a s e d on t h e r e s e a r c h e r 's f i n d i n g s , a s w e l l a s h e r p a s t e x p e r i e n c e w i t h t h e home h e a l t h p ro g ra m s i n N o rth D a k o ta . T h e r e s h o u ld b e : 1. a su rv e y o f in te r m e d ia r ie s r e g a rd in g t h e i r i n t e r p r e t a t i o n o f g o v e rn m e n t r e g u l a t i o n s . 2. a s u r v e y c o n t r a s t i n g and c o m p a rin g h o s p i t a l - b a s e d p ro g ra m s and c o m m u n ity -b a se d p r o g r a m s . 3. a s u r v e y o f p o t e n t i a l c l i e n t s , e v a l u a t i n g t h e i r k n ow ledge o f home h e a l t h p r o g ra m s , a s w e l l a s t h e i r e x p e c t a t i o n s o f t h e p ro g ra m . 4. a p i l o t o r d e m o n s t r a t i o n p ro g ra m , i l l u m i n a t i n g t h e r o l e and im p o r ta n c e o f t h e home h e a l t h p ro g ra m s > t o t h e fo llo w in g : a. p h y s ic ia n s b. p u b lic h e a lth n u rse s c. h o s p it a l n u rse s. d. p u b lic APPENDIX A COVER LETTERS AND SURVEY QUESTIONNAIRE 49 8 1 6 17 t h . A v e n u e N o r th B o z e m a n , M o n ta n a 5 9 7 1 5 J u n e 1 2 , 1974 D ear As a g r a d u a t e s t u d e n t a t M o n tan a S t a t e U n i v e r s i t y , I am w r i t i n g my t h e s i s o n t h e " U t i l i z a t i o n o f Home H e a l th A g e n c ie s i n N o rth D a k o ta ." I n a n e f f o r t t o a c q u i r e s i g n i f i c a n t i n f o r m a t i o n , I am r e ­ q u e s t i n g y o u r a s s i s t a n c e . . I w o u ld a p p r e c i a t e y o u r c o m p le tin g t h e e n c lo s e d q u e s t i o n n a i r e and r e t u r n i n g i t t o me i n t h e s e l f - a d d r e s s e d sta m p e d e n v e lo p e a t y o u r e a r l i e s t c o n v e n ie n c e . P l e a s e f e e l f r e e t o . e x p re s s y o u r o p in io n o p e n ly , as th e q u e s tio n n a ir e need n o t be s ig n e d . May I e x p r e s s i n a d v a n c e my s i n c e r e a p p r e c i a t i o n f o r t h e tim e a n d e n e rg y you h a v e i n v e s t e d i n m aking t h i s a m e a n in g f u l s tu d y . x S in c e re ly , ( M i s s ) L a V e r n e L e e , R .N . LL: Im 50 QUESTIONNAIRE UTILIZATION OF HOME HEALTH AGENCIES IN NORTH DAKOTA I. 2. 3. a) I n y o u r p e r s o n a l o p i n i o n , how e f f e c t i v e i s t h e Home H e a lth P ro g ra m i n y o u r a re a ? b) How do you m e a s u re i t s e f f e c t i v e n e s s ? W hat do y o u f e e l a r e t h e g r e a t e s t l i m i t i n g , f a c t o r s a n d / o r p ro b le m s i n t h e Home H e a l th P ro g ra m i n y o u r a r e a ? W hat a s p e c t s o f t h e P ro g ra m i n y o u r a r e a a r e c o n t r i b u t i n g t o i t s . success? 4. W h at, i n y o u r o p i n i o n , h a s b e e n t h e r e a c t i o n o f t h e p h y s i c i a n s t o t h e Home H e a l t h P ro g ra m i n y o u r a r e a ? 5. W hat do you f e e l a r e t h e p h y s i c i a n s ' r e s p o n s i b i l i t i e s H e a l th P rogram ? 6. W h at, i n y o u r o p i n i o n , w ould c o n t r i b u t e to w a rd g r e a t e r u t i l i z a t i o n by t h e p h y s i c i a n s o f . t h e Home H e a l t h P ro g ra m i n y o u r a re a ? 7. What do y o u f e e l a r e t h e r e s p o n s i b i l i t i e s o f t h e h o s p i t a l n u r s e s i n t h e Home H e a l th Program ? i n t h e Home 51 8. W hat do y o u f e e l a r e t h e m o st e f f e c t i v e m eth o d s o f p ro m o tin g t h e Home H e a l th P ro g ra m w i t h h o s p i t a l n u r s e s ? 9. Do y o u f e e l t h a t . t h e Home H e a l th P ro g ra m , i n y o u r a r e a , h a s a f u tu r e ? YES NO P le a s e g iv e re a s o n s f o r y o u r a n sw e r. 10. W hat c h a n g e s do y o u f e e l s h o u ld b e made i n t h e Home H e a l th P rogram ? ADDITIONAL COMMENTS 52 8 1 6 N o r t h 1 7 t h A v en u e B o z e m a n , M o n ta n a 5 9 7 1 5 A u g u st 2 7 , 1974 D ear N u rs e : Some tim e ago you w e re s e n t a q u e s t i o n n a i r e c o n c e r n in g a s tu d y on "T h e U t i l i z a t i o n o f Home H e a l th A g e n c ie s i n N o rth D a k o ta ." Many o f t h e c o m p le te d q u e s t i o n n a i r e s h a v e b e e n r e t u r n e d . S in c e o n ly a s e l e c t e d num ber o f n u r s e s w e re in c l u d e d i n t h e s t u d y , i t i s i m p o r ta n t t h a t I r e c e i v e y o u r r e p l y . W ould you t a k e a few moments t o c o m p le te t h e q u e s t i o n n a i r e ? I n t h e e v e n t t h a t you h a v e a l r e a d y r e t u r n e d t h e q u e s t i o n n a i r e p le a s e d is re g a rd t h i s l e t t e r . T hank you f o r y o u r a s s i s t a n c e i n m aking t h i s a m e a n in g fu l stu d y . S in c e re ly , ( M is s ) L a V ern e L e e , R .N . 53 8 1 6 N o r t h 1 7 t h A v en u e B o z e m a n , M o n ta n a 5 9 7 1 5 A u g u st 2 7 , 1 9 7 4 ' D ear D o c t o r , Some tim e ago y o u w e re s e n t a q u e s t i o n n a i r e c o n c e r n in g a s tu d y on "T h e U t i l i z a t i o n o f Home H e a l t h A g e n c ie s i n N o r th D a k o ta ." Many o f t h e c o m p le te d q u e s t i o n n a i r e s h a v e b e e n r e t u r n e d . S in c e o n ly a s e l e c t e d num ber o f d o c t o r s w e re i n c l u d e d i n t h e s t u d y , i t i s i m p o r ta n t t h a t I r e c e i v e y o u r r e p l y . W ould y o u t a k e a few m om ents t o c o m p le te t h e q u e s t i o n n a i r e ? . I n th e e v e n t t h a t you have a lr e a d y r e tu r n e d th e q u e s tio n n a ir e p le a s e d is re g a rd t h is l e t t e r . T h an k y o u f o r y o u r a s s i s t a n c e i n m aking t h i s a m e a n in g f u l stu d y . S in c e re ly , ( M is s ) L a V ern e L e e , R .N 54 8 1 6 N o r t h 1 7 t h A v en u e B o z e m a n , M o n ta n a 5 9 7 1 5 A u g u st 2 7 , 1974 D e a r P u b l i c H e a l th N u rs e : Some tim e ago you w e re s e n t a q u e s t i o n n a i r e c o n c e r n in g a s t u d y on "T h e U t i l i z a t i o n o f Home H e a l t h A g e n c ie s i n N o r th D a k o ta ." Many o f t h e c o m p le te d q u e s t i o n n a i r e s h a v e b e e n r e t u r n e d . S in c e o n ly a s e l e c t e d num ber o f p u b l i c h e a l t h n u r s e s w e re in c lu d e d i n t h e s t u d y , i t i s i m p o r ta n t t h a t I r e c e i v e y o u r r e p l y . W ould you t a k e a few m om ents t o c o m p le te t h e q u e s t i o n n a i r e ? I n . t h e e v e n t t h a t you h a v e a l r e a d y r e t u r n e d t h e q u e s t i o n n a i r e p le a s e d is re g a rd t h is l e t t e r . T h an k y o u f o r y o u r a s s i s t a n c e i n m aking t h i s a m e a n in g f u l stu d y . S in c e re ly , ( M is s ) L a V e r n e L e e , R . N . APPENDIX B MAP OF NORTH DAKOTA INDICATING THE LOCATIONS OF HOME HEALTH AGENCIES ; HOME H E A L T H - H O S P I T A L T h e B A S E D a g e n c y I n H O M E W H E A L T H i l l i a m s C o . A G E N C IE S IN NORTH DAKOTA A G E N C I E S d i s c o n t i n u e d I t s p r o g r a m a s o f A p r i l I , 1 9 7 4 . APPENDIX C CATEGORIZATION OF RESPONSES 58 CATEGORIZATION OF RESPONSES The f o llo w in g a c c o r d in g t o I. a. a r e e x a m p le s o f r e s p o n s e s m ade t o e a c h q u e s t i o n , c a te g o r ie s . I n y o u r p e r s o n a l o p i n i o n , how e f f e c t i v e i s t h e Home H e a l th P ro g ra m i n y o u r a re a ? V ery E f f e c t i v e E ffe c tiv e . 1. 2. v e r y good v e r y much so - I . q u i t e good 2 . . m o d e r a te ly 3 . a d e q u a te In e ffe c tiv e 1. 2. 3. 4. I. b. lukew arm so -so o f m in o r im p o r ta n c e g a in in g e f f e c tiv e n e s s How do y o u m e a s u re i t s e f f e c t i v e n e s s ? P h y s ic ia n s ' r e f e r r a ls I, la c k o f p a tie n t r e f e r r a l s Number o f p e o p le s e r v e d 1 . - num ber o f p e o p le s e e n 2. f o ll o w up r e p o r t s F e e d b a c k fro m p a t i e n t and f a m ily 1. 2. p e r s o n a l c o n ta c t, w i t h p a t i e n t and f a m ily resp o n se s o f p a tie n t T h o se who w e re a b le t o re m a in o u t o f i n s t i t u t i o n s 1. 2. 3. 4. end r e s u l t s o f c a r e n e e d p r o v id e d i n t h e home la c k o f r e t u r n v i s i t s re c u rrin g illn e s s 59 C a t e g o r i z a t i o n o f R e s p o n s e s ., ( c o n t i n u e d ) Met p h y s i c i a n s n e e d s 1. 2. s a tis fa c tio n s e rv ic e s to p a tie n ts as o rd ered A c c e s s i b i l i t y o f p ro g ra m i n r e g a r d s t o g e o g ra p h y and s t a f f 1. 2. 3. a v a i l a b i l i t y o f home h e a l t h p ro g ra m p a t i e n t s n e e d in g h e l p g e t i t p ro m p t u s e o f s e r v i c e . F o llo w up r e p o r t s fro m p u b l i c h e a l t h n u r s e 1. 2. 2. w r i t t e n r e p o r t s fro m p u b l i c h e a l t h n u r s e s c o m m u n ic a tio n w i t h p u b l i c h e a l t h n u r s e r e g a r d i n g p a tie n ts W hat do y o u f e e l a r e t h e g r e a t e s t l i m i t i n g f a c t o r s a n d / o r p ro b le m s i n t h e Home H e a l th P ro g ra m i n y o u r a re a ? C ost 1. 2. d i s t a n c e , and tim e o v e rh e a d L im ite d p h y s i c i a n r e f e r r a l s I. la c k o f r e f e r r a l s R e s t r i c t i v e g o v e rn m e n t r e g u l a t i o n s 1. 2. 3. d e f i n i t i o n o f s k i l l e d n u rs in g lim ita tio n s on s e r v ic e s p h y s ic ia n s ' v i s i t s lim ite d P u b lic h e a lth n u rs in g s t a f f l im ita tio n s I. 2 .. 3. 4. s t a f f e d by n o n - d e g r e e d p e o p le lim ite d s t a f f l a c k o f e q u ip m e n t n o t e n o u g h a d e q u a t e ly t r a i n e d p e r s o n n e l C a te g o r iz a tio n o f R e sp o n se s, (c o n tin u e d ) L a c k o f k n o w le d g e , RN 1. 2. l i m i t e d k n o w led g e o f p ro g ra m n e e d e d u c a t i o n a l p ro g ra m r e g a r d i n g home h e a l t h s e r v i c e s L a c k o f k n o w le d g e , M.D. 1. 2. lim ite d need n o t many p a t i e n t s n e e d i t L a c k o f k n o w le d g e , p a t i e n t 1. 2. p a t i e n t u n a w a re o f s e r v i c e s p u b l i c i t y f o r t h e com m unity r e g a r d i n g home h e a l t h b e n e f i t s L im ite d com m unity p u b l i c i t y 1. 2. 3. n e e d m ore p u b l i c i t y p e o p le do n o t know a b o u t t h e p ro g ra m W hat a s p e c t s o f t h e P ro g ra m i n y o u r a r e a a r e c o n t r i b u t i n g t o i t s success? C o m m u n ic a tio n s w i t h o t h e r p r o f e s s i o n a l s I. f r e q u e n t c o m m u n ic a tio n w i t h p u b l i c h e a l t h n u r s e r e g a r d in g p a tie n t c a re Q u a lif ie d p u b lic h e a lth n u rse s 1. 2. in te r e s te d n u rses good p a t i e n t c a r e . P u b l i c a w a re n e s s I. p u b l i c a s k in g f o r c a r e , In cre a se d r e f e r r a ls 1. 2. 3. home h e a l t h a g e n cy l o c a t e d i n h o s p i t a l h o s p ita l n u rse s r e f e r p a tie n ts ' . e f f o r t s o f d i s t r i c t m e d ic a l s o c i e t y 61 C a te g o r iz a tio n o f R e sp o n se s, (c o n tin u e d ) P a t ie n t feed b ack I. 4. p a t i e n t p le a s e d w ith s e r v ic e s W h a t, i n y o u r o p i n i o n , h a s b e e n t h e r e a c t i o n o f t h e p h y s i c i a n s t o t h e Home H e a l th P ro g ra m i n y o u r a re a ? F a v o ra b le I. 2. 3. in te re s te d p o s itiv e re c e p tiv e In d iffe re n t I. 2. 3. slo w t o a c c e p t lukew arm r e f u s e to use i t M ixed 1. 2. 3. 4. 5. 5. some u s e — some n o t im p ro v in g w arm er m o d e ra te t o f a v o r a b l e some a p a th y W hat do you f e e l a r e t h e p h y s i c i a n s ' r e s p o n s i b i l i t i e s i n t h e Home H e a l th P rogram ? C o m p le te r e f e r r a l s I, ' 2. 3. w rite o rd e rs make r e f e r r a l s p la n o f c a re S u p p o r t and a s s i s t a n c e 1. 2. 3. g iv e s u p p o rt be a v a ila b le to n u rse s c o o p e ra tio n C o m m u n icatio n w i t h p u b l i c h e a l t h n u r s e s 1. 2. d is c u s s p a tie n t c a re fre q u e n t c o n ta c t w ith p u b lic h e a lth n u rse 62 C a te g o r iz a tio n o f R e sp o n se s, (c o n tin u e d ) Be a w a re o f s e r v i c e s a v a i l a b l e 1. 2. 6. know a b o u t home h e a l t h p ro g ra m aw are o f p ro g ra m W h a t, i n y o u r o p i n i o n , w o u ld c o n t r i b u t e to w a rd g r e a t e r u t i l i z a t i o n by t h e p h y s i c i a n s o f t h e Home H e a l t h P ro g ra m i n y o u r a re a ? In c re a se d p u b lic ity 1. 2. 3. p r o m o tio n m ore p u b l i c i t y h e e d PR w ork A w a re n e ss and u n d e r s t a n d in g o f p ro g ra m 1. 2. 3. a w a re n e s s e d u c a tio n d is c h a r g e p la n n in g Im p ro v e d c o m m u n ic a tio n w i t h p u b l i c h e a l t h n u r s e . I. 2. PHN i n v o lv e d i n d i s c h a r g e p l a n n i n g team w ork C o n f id e n c e i n p u b l i c h e a l t h n u r s e 1. 2. 3. s k il l e d p u b lic h e a lth n u rse s q u a lif ie d p u b lic h e a lth n u rse s b e t t e r p re p a re d p u b lic h e a lth n u rse s P u b l i c h e a l t h n u r s e s d e m o n s tr a te t h a t t h i s i s a n e e d e d s e r v i c e 1. 2. 3. d e m o n s t r a t io n p ro g ra m show n e e d i d e n t i f y need 63 C a te g o r iz a tio n o f R e sp o n se s, 7. (c o n tin u e d ) W hat do you f e e l a r e t h e r e s p o n s i b i l i t i e s o f t h e h o s p i t a l n u r s e s i n t h e Home H e a l th P rogram ? I d e n t i f y p a t i e n t s n e e d in g c a r e 1. 2. 3. recommend home h e a l t h s e r v i c e s d is c h a rg e p la n n in g c o o rd in a tio n Know s c o p e o f t h e p ro g ra m I. know w h a t s e r v i c e s a r e o f f e r e d by t h e Home H e a l th P ro g ra m I n f o r m p a t i e n t s r e g a r d i n g Home H e a l th b e n e f i t s 1. 2. 8. te a c h p a t i e n t s i n t e r p r e t Home H e a l th P ro g ra m t o p a t i e n t s W hat do y o u f e e l a r e t h e m o st e f f e c t i v e m eth o d s o f p ro m o tin g t h e Home H e a l t h P ro g ra m w i t h h o s p i t a l n u r s e s ? I n c r e a s e d p e r s o n a l c o n t a c t w i t h RNs 1. 2. f r e q u e n t i n s e r v i c e g i v e n by PHN PHN v i s i t h o s p i t a l w e e k ly P u b lic ity 1. 2. d i s t r i b u t e m a t e r i a l s r e g a r d i n g t h e Home H e a l th P ro g ra m PR w ork H o s p i t a l v i s i t s t o p a t i e n t s by PHN I. e x p la in s e r v ic e s to p a ti e n ts D e m o n s tra te d u s e f u l n e s s by PHN I. \ show t h a t t h e Home H e a l th P ro g ra m w o rk s 64 C a te g o r iz a tio n o f R e sp o n se s, 9. (c o n tin u e d ) Do you f e e l t h a t t h e Home H e a l th P r o g r a m ,in y o u r a r e a , h a s a fu tu re ? YES _______ NO___________ P l e a s e g i v e r e a s o n s f o r y o u r a n s w e r. Y es t h e r e i s a f u t u r e : I f i t m a i n t a i n s p a t i e n t in d e p e n d e n c e 1. 2. 3. k e e p s p a t i e n t s i n t h e i r homes g iv e s , c a r e t o p a t i e n t s a t home k e e p s p a t i e n t s o u t o f h o s p i t a l s and n u r s i n g homes I f s h o rte n s h o s p ita l s ta y 1. 2. f r e e s h o s p i t a l b e d s by e a r l y d i s c h a r g e a llo w s c o n t i n u i t y o f d a r e I f re fe rra ls 1. 2. in c re a s e n e e d m ore r e f e r r a l s m ore r e f e r r a l s from p h y s i c i a n s B ecause i t i s a needed s e r v ic e 1. 2. 3. g r e a t need f i l l s a need v e r y b a d ly n e e d e d B ecause o f i t s 1. 2. 3. s u c c e ss to d a te m e e tin g t h e n e e d s o f t h e e l d e r l y s u c c e s s f u l up t o now w o rk in g w e l l 65 • C a te g o r iz a tio n o f R e sp o n se s, (c o n tin u e d ) N o, t h e r e i s no f u t u r e : W ith o u t c o o p e r a t i o n o f p h y s i c i a n s and h o s p i t a l n u r s e s 1. 2. 3. 4. c o o p e ra tio n feed b ack m u st know and u s e p ro g ra m m ore r e f e r r a l s B e c a u s e c o s t s a r e t o o h ig h 1. 2. to o c o s t l y e x p e n s iv e s e r v i c e B e c a u s e g o v e rn m e n t r e g u l a t i o n s a r e to o r e s t r i c t i v e 1. 2. 3. r e g u la tio n s v e ry r e s t r i c t i v e r e g u l a t i o n s l i m i t c a r e g iv e n r e g u l a t i o n s r e s t r i c t paym ent B e c a u s e o f p o o r m anagem ent 1. 2. 10. m anaged p o o r ly n e e d s b e t t e r m anagem ent W hat c h a n g e s do you f e e l s h o u ld b e made i n t h e Home H e a lth Program ? U p d a te p u b l i c h e a l t h n u r s i n g s k i l l s 1. 2. 3. h i g h l y t r a i n e d PHN b e t t e r q u a l i f i e d PHN m ore k n o w le d g e a b le PHN I n c r e a s e g o v e rn m e n t re im b u rs e m e n t 1. 2. 3. b e t t e r pay m en t by i n t e r m e d i a r y im p ro v e d r e g u l a t i o n s r e l a t i n g t o re im b u rs e m e n t i n c r e a s e d c o v e ra g e 66 C a t e g o r iz a t io n o f R e s p o n s e s , (c o n tin u e d ) C o n tin u in g e d u c a t i o n f o r p h y s i c i a n s and h o s p i t a l n u r s e s r e g a r d i n g t h e Home H e a lth P ro g ra m 1. 2. 3. i n s e r v ic e e d u c a tio n o n g o in g i n s e r v i c e e d u c a t i o n p e r s o n a l c o n t a c t by PHN t o e x p l a i n Home H e a lth P ro g ra m E xpand t h e s e r v i c e s o f t h e Home H e a l th P ro g ra m 1. 2. 3. 4. i n c l u d e 24 h o u r d a y , 7 d a y s p e r week h a v e 24 h o u r c a l l s y s te m i n c l u d e m ore n u r s i n g p r o c e d u r e s o f f e r m ore a i d e s e r v i c e s More p u b l i c i t y 1. 2. 3. 4. w ord o f m outh p r in te d m a te ria ls n e w sp a p e r a r t i c l e s r a d i o and TV s p o t s B e t t e r c o m m u n ic a tio n s b e tw e e n PHN, MDs and RNs 1. 2. 3. 4. r e g u l a r m e e tin g s b e tw e e n PHN, MDs, and RNs one t o one c o n t a c t p e rs o n a l c o n ta c t w r i t t e n r e p o r t s o f p a t i e n t c a r e from PHN t o MDs and RNs More c o m p le te r e f e r r a l s 1. 2. 3. 4. c o m p le te o r d e r s p la n o f c a re r e f e r r a l s c o m p le te d a l l in c lu s iv e r e f e r r a ls No c h a n g e s n e c e s s a r y I. . 2. 3. no c h a n g e n e e d e d O.K. t h e way i t i s n o th in g t o c h a n g e APPENDIX D HOME HEALTH RELATED SECTIONS OF TITLE X V III HEALTH INSURANCE FOR THE AGED P .L . 8 9 -9 7 OF THE SOCIAL SECURITY ACT 68 HOME HEALTH RELATED SECTIONS OF SOCIAL SECURITY ACT S ec. 1831. E s t a b l is h m e n t o f s u p p le m e n ta r y m e d ic a l i n s u r a n c e p ro g ra m f o r th e a g e d . T h e re i s h e r e b y e s t a b l i s h e d a v o l u n t a r y i n s u r a n c e p ro g ra m t o p r o v id e m e d ic a l i n s u r a n c e b e n e f i t s i n a c c o r d a n c e w i t h t h e p r o v i s i o n o f t h i s p a r t f o r i n d i v i d u a l s 65 y e a r s o f a g e o r o v e r who e l e c t t o e n r o l l u n d e r s u c h p ro g ra m , t o be f in a n c e d from prem ium p a y m e n ts by e n r o l l e e s t o g e t h e r w i t h c o n t r i b u t i o n s from f u n d s a p p r o p r i a t e d by t h e F e d e r a l G o v e rn m e n t. S ec. 1832. S co p e o f b e n e f i t s . ( a ) The b e n e f i t s p r o v id e d t o an i n d i v i d u a l by t h e . i n s u r a n c e p ro g ra m e s t a b l i s h e d i n t h i s p a r t s h a l l c o n s i s t o f — 1. e n t i t l e m e n t t o h a v e p ay m en t made t o him o r on h i s b e h a l f ( s u b j e c t t o t h e p r o v i s i o n o f t h i s p a r t ) f o r m e d ic a l and o t h e r h e a l t h s e r v i c e s , e x c e p t t h o s e d e s c r i b e d i n p a r a g r a p h (2 ) ( B ) ; and . 2. e n t i t l e m e n t t o h a v e paym ent made on h i s b e h a l f ( s u b j e c t to th e p ro v is io n s o f t h i s p a r t) f o r — (A) home h e a l t h s e r v i c e s f o r up t o 100 v i s i t s d u r in g a c a le n d a r y e a r; (B) m e d ic a l a n d o t h e r h e a l t h s e r v i c e s ( o t h e r t h a n p h y s i c i a n s ' s e r v i c e s u n l e s s f u r n i s h e d by a r e s i d e n t o r i n t e r n o f a h o s p i t a l and t h e s e r v i c e s f o r w h ic h paym ent may be made p u r s u a n t t o s e c t i o n 1 8 3 5 ( b ) (2 ) f u r n i s h e d by a p r o v i d e r o f s e r v i c e s o r by o t h e r s u n d e r a rr a n g e m e n ts w i t h them made by a p r o v i d e r o f s e r v i c e s ; and (C ) . o u t p a t i e n t p h y s i c a l t h e r a p y s e r v i c e s . (b ) F o r d e f i n i t i o n s o f " s p e l l o f i l l n e s s " , " m e d i c a l and o t h e r h e a l t h s e r v i c e s " , and o t h e r te rm s u s e d i n t h i s p a r t , s e e s e c t i o n 1861. Sec. 1834. L i m i t a t i o n on home h e a l t h s e r v i c e s . ( a ) P ay m en t u n d e r t h i s p a r t may be made f o r home h e a l t h s e r v i c e s f u r n i s h e d a n i n d i v i d u a l d u r in g any c a l e n d a r y e a r f o r 100 69 v i s i t s d u r in g s u c h y e a r . T he num ber o f v i s i t s t o b e c h a rg e d f o r p u r p o s e s o f t h e l i m i t a t i o n i n t h e p r e c e d in g s e n t e n c e , i n c o n n e c t io n w i t h ite m s and s e r v i c e s d e s c r i b e d i n s e c t i o n 186I(m ) s h a l l b e d e t e r ­ m ined i n a c c o r d a n c e w i t h r e g u l a t i o n s . (b ) F o r p u r p o s e s o f s u b s e c t i o n ( a ) , home, h e a l t h s e r v i c e s s h a l l b e t a k e n i n t o a c c o u n t o n ly i f paym ent u n d e r t h i s p a r t i s o r w o u ld b e , e x c e p t f o r t h i s s e c t i o n o r t h e f a i l u r e t o com ply w i t h t h e r e q u e s t , and c e r t i f i c a t i o n r e q u i r e m e n ts o f o r u n d e r s e c t i o n 1835 ( a ) , made w ith r e s p e c t to su ch s e r v i c e s . S e c . 18 3 6 . E lig ib le in d iv id u a ls . E v e ry i n d i v i d u a l who---(1 ) h a s a t t a i n e d t h e a g e o f 6 5 , and (2 ) (A) i s a r e s i d e n t o f t h e U n ite d S t a t e s , and i s e i t h e r ( i ) a c i t i z e n o r ( i i ) a n a l i e n l a w f u l l y a d m i tt e d f o r p e rm a n e n t r e s i d e n c e who h a s r e s i d e d i n t h e U n ite d S t a t e s c o n ti n u o u s ly d u r in g t h e 5 y e a r s im m e d ia te ly p r e c e d in g t h e m onth i n w h ich h e a p p l i e s f o r e n r o l l m e n t u n d e r t h i s p a r t , o r (B) i s e n t i t l e d t o h o s p i t a l i n s u r a n c e b e n e f i t s u n d e r p a r t A, i s e l i g i b l e t o e n r o l l i n t h e i n s u r a n c e p ro g ra m e s t a b l i s h e d by t h i s p a r t . S ec. 1861. D e fin itio n s o f s e r v ic e s , in s titu tio n s ^ e tc . F o r p u rp o se s o f t h i s t i t l e — S p e ll o f I lln e s s ( a ) T he te r m " s p e l l o f i l l n e s s " w i t h r e s p e c t t o any i n d i v i d u a l m eans a p e r i o d o f c o n s e c u t i v e d a y s — (1 ) b e g in n in g w i t h t h e f i r s t d ay ( n o t i n c l u d e d i n a p r e ­ v i o u s s p e l l o f i l l n e s s ) (A) o n w h ic h s u c h i n d i v i d u a l i s f u r ­ n i s h e d i n p a t i e n t h o s p i t a l s e r v i c e s o r e x te n d e d , c a r e s e r v i c e s , and (B) w h ic h o c c u r s i n a m onth f o r w h ich h e i s e n t i t l e d t o b e n e f i t s u n d e r p a r t A, and (2 ) e n d in g w i t h t h e c l o s e o f t h e f i r s t p e r i o d o f 60 c o n s e c u t i v e d a y s t h e r e a f t e r o n e a c h o f w h ic h h e i s n e i t h e r an i n p a t i e n t o f a h o s p i t a l n o r a n i n p a t i e n t o f a n e x te n d e d c a r e fa c ility . 70 Home H e a l th S e r v i c e s (m) The, te rm "hom e h e a l t h s e r v i c e s " m eans t h e f o ll o w i n g ite m s and s e r v i c e s f u r n i s h e d t o a n i n d i v i d u a l , who i s u n d e r t h e c a r e o f a p h y s i c i a n , by a home h e a l t h a g e n cy o r by o t h e r s u n d e r a r r a n g e m e n ts w i t h them made by s u c h a g e n c y , u n d e r a p l a n ( f o r f u r n i s h i n g s u c h ite m s and s e r v i c e s t o s u c h i n d i v i d u a l ) e s t a b l i s h e d and p e r i o d i c a l l y re v ie w e d by a p h y s i c i a n , w h ich ite m s and s e r v i c e s a r e , e x c e p t a s p r o v id e d i n p a r a g r a p h ( 7 ) , p r o v id e d on a v i s i t i n g b a s i s i n a p l a c e o f r e s i d e n c e u s e d a s s u c h i n d i v i d u a l 's home---(1 ) p a r t - t i m e o r i n t e r m i t t e n t n u r s i n g c a r e p r o v id e d by o r u n d e r th e s u p e r v is io n o f a r e g i s t e r e d p r o f e s s io n a l n u rs e ; (2 ) p h y s i c a l , o c c u p a t i o n a l , o r s p e e c h t h e r a p y : (3 ) m e d ic a l s o c i a l s e r v i c e s u n d e r t h e d i r e c t i o n o f a p h y s i c i a n ; (4 ) t o t h e e x t e n t p e r m i t t e d i n r e g u l a t i o n s , p a r t - t i m e o r i n t e r ­ m i t t e n t s e r v i c e s o f a home h e a l t h a i d e ; (5 ) m e d ic a l s u p p l i e s ( o t h e r t h a n d r u g s and b i o l o g i c a l s ) , and t h e u s e o f m e d ic a l a p p l i a n c e s , w h i l e u n d e r s u c h a p l a n ; (6 ) i n t h e c a s e o f a home h e a l t h a g e n cy w h ic h i s a f f i l i a t e d o r . u n d e r common c o n t r o l w i t h a h o s p i t a l , m e d ic a l s e r v i c e s p r o v id e d by an i n t e r n o r r e s i d e n t - i n - t r a i n i n g o f s u c h h o s p i t a l , u n d e r a t e a c h i n g p ro g ra m o f s u c h h o s p i t a l a p p ro v e d a s p r o v id e d i n t h e l a s t s e n te n c e o f s u b s e c t i o n ( b ) ; and (7 ) any o f t h e f o r e g o i n g ite m s and s e r v i c e s w h ic h a r e p r o v id e d on an o u t p a t i e n t b a s i s , u n d e r a rr a n g e m e n ts made by t h e home h e a l t h a g e n c y , a t a h o s p i t a l o r e x te n d e d c a r e f a c i l i t y , o r a t a r e h a b i l i t a t i o n c e n t e r w h ic h m e e ts su c h s t a n d a r d s a s may be p re s c rib e d in r e g u la tio n s , a n d -(A) t h e f u r n i s h i n g o f w h ic h in v o lv e s t h e u s e o f e q u ip m e n t o f s u c h a n a t u r e t h a t t h e ite m s and s e r v i c e s c a n n o t r e a d i l y b e made a v a i l a b l e t o t h e i n d i v i d u a l i n s u c h p l a c e o f re s id e n c e , o r (B) w h ic h a r e f u r n i s h e d a t s u c h f a c i l i t y w h i l e h e i s t h e r e t o r e c e i v e any su c h ite m o r s e r v i c e d e s c r i b e d i n c la u s e (A ), b u t n o t in c lu d in g t r a n s p o r t a ti o n o f th e in d iv id u a l in con­ n e c t i o n w i t h any s u c h ite m o r s e r v i c e s ; e x c l u d i n g , h o w ever 71 any ite m o r s e r v i c e i f i t w o u ld n o t be in c l u d e d u n d e r s u b s e c t i o n (b ) i f f u r n i s h e d t o an i n p a t i e n t o f a h o s p i t a l . P o s t - H o s p i t a l Home H e a l th S e r v i c e s (n ) The te r m " p o s t - h o s p i t a l home h e a l t h s e r v i c e s " m eans home h e a l t h s e r v i c e s f u r n i s h e d a n i n d i v i d u a l w i t h i n I y e a r a f t e r h i s m ost r e c e n t d i s c h a r g e fro m a h o s p i t a l o f w h ic h h e was a n i n p a t i e n t f o r n o t l e s s t h a n 3 c o n s e c u t i v e d a y s o r ( i f l a t e r ) w i t h i n I y e a r a f t e r h i s m o st r e c e n t d i s c h a r g e from a n e x te n d e d c a r e f a c i l i t y o f w h ic h h e was a n i n p a t i e n t e n t i t l e d t o paym ent u n d e r p a r t A f o r p o s t h o s p i t a l e x te n d e d c a r e s e r v i c e s , b u t o n ly i f t h e p l a n c o v e r i n g t h e home h e a l t h s e r v i c e s ( a s d e s c r i b e d i n s u b s e c t i o n (m) i s e s t a b l i s h e d w i t h i n 14 d a y s a f t e r h i s d i s c h a r g e fro m s u c h h o s p i t a l o r e x te n d e d c a r e f a c i l i t y . Home H e a l th A gency (0 ) The te r m "hom e h e a l t h a g e n cy " m eans a p u b l i c a g e n cy o r p r i v a t e o r g a n i z a t i o n j o r a s u b d i v i s i o n o f s u c h a n a g e n cy o r o r g a n i z a ­ t i o n , w h ic h -(1 ) i s p r i m a r i l y e n g a g e d i n p r o v id i n g s k i l l e d n u r s i n g s e r v i c e s and o t h e r t h e r a p e u t i c s e r v i c e s ; (2 ) h a s p o l i c i e s , e s t a b l i s h e d by a g ro u p o f p r o f e s s i o n a l p e rs o n n e l ( a s s o c ia te d w ith th e agency o r o r g a n i z a t i o n ) , i n ­ c l u d i n g one o r m ore p h y s i c i a n and one o r m ore r e g i s t e r e d p r o f e s s i o n a l n u r s e s , t o g o v e rn t h e s e r v i c e s ( r e f e r r e d t o i n p a r a g r a p h ( I ) ) w h ic h i t p r o v i d e s , and p r o v id e s f o r s u p e r ­ v i s i o n o f s u c h s e r v i c e s by a p h y s i c i a n o r r e g i s t e r e d p r o f e s ­ s io n a l n u rse ; (3 ) m a i n t a i n s c l i n i c a l r e c o r d s on a l l p a t i e n t s ; (4 ) i n t h e c a s e o f a n a g e n cy o r o r g a n i z a t i o n i n any su c h S t a t e o r a p p l i c a b l e l o c a l law p r o v id e s f o r t h e l i c e n s i n g o f a g e n c ie s o r o r g a n i z a t i o n s o f t h i s n a t u r e , (A) i s l i c e n s e d p u r s u a n t t o . s u c h la w , o r (B) i s a p p r o v e d , by t h e ag en cy o f s u c h S t a t e o r l o c a l i t y r e s p o n s i b l e f o r l i c e n s i n g a g e n c ie s o r o r g a n i z a t i o n s o f t h i s n a t u r e , a s m e e tin g t h e s t a n d a r d s e s t a b l i s h e d f o r s u c h l i c e n s i n g ; and ( 5 ) m e e ts s u c h o t h e r c o n d i t i o n s o f p a r t i c i p a t i o n a s t h e S e c r e t a r y may f i n d n e c e s s a r y i n t h e i n t e r e s t o f t h e h e a l t h and s a f e t y o f. i n d i v i d u a l s who a r e f u r n i s h e d s e r v i c e s by s u c h a g e n cy 72 o r o rg a n iz a tio n ; e x c e p t t h a t su c h te r m s h a l l n o t i n c l u d e a p r i v a t e o r g a n i z a t i o n w h ic h i s n o t a n o n p r o f i t o r g a n i z a t i o n exem pt from F e d e r a l incom e t a x a t i o n u n d e r s e c t i o n 501 o f t h e I n t e r n a l R evenue Code o f 1954 ( o r a s u b d i ­ v i s i o n o f su c h o r g a n i z a t i o n ) u n l e s s i t i s l i c e n s e d p u r s u a n t t o S t a t e law and i t m e e ts s u c h a d d i t i o n a l s t a n d a r d s and r e q u i r e m e n ts a s may be p r e s c r i b e d i n r e g u l a t i o n s ; and e x c e p t t h a t f o r p u r p o s e s o f . p a r t A s u c h te r m s h a l l n o t i n c l u d e any a g e n c y o r o r g a n i z a t i o n w h ic h i s p r i ­ m a r i ly f o r t h e c a r e and t r e a t m e n t o f m e n ta l d i s e a s e s . S ec, 1862. E x c l u s i o n fro m c o v e r a g e . ( а ) N o t w i t h s t a n d in g any o t h e r p r o v i s i o n o f t h i s t i t l e , no paym ent may b e made u n d e r p a r t A o r p a r t B f o r any e x p e n s e s i n c u r r e d f o r ite m s o r s e r v i c e s — (1 ) w h ic h a r e n o t r e a s o n a b l e and n e c e s s a r y f o r t h e d i a g n o s i s o r t r e a t m e n t o f i l l n e s s o r i n j u r y o r t o im p ro v e t h e f u n c t i o n ­ in g o f a m a lfo rm e d body m em ber; (2 ) f o r w h ic h t h e i n d i v i d u a l f u r n i s h e d su c h ite m s o r s e r v i c e s h a s no l e g a l o b l i g a t i o n t o p a y , and w h ic h no o t h e r p e r s o n (b y r e a s o n o f s u c h i n d i v i d u a l 's m em b ersh ip i n a p re p a y m e n t p l a n o r o t h e r w i s e ) h a s a l e g a l o b l i g a t i o n t o p r o v id e o r p ay f o r ; (3 ) w h ic h a r e p a id f o r d i r e c t l y o r i n d i r e c t l y by a g o v e rn m e n ta l e n t i t y ( o t h e r t h a n u n d e r t h i s A c t and o t h e r th a n u n d e r a h e a l t h b e n e f i t s o r i n s u r a n c e p l a n e s t a b l i s h e d f o r e m p lo y e e s o f su c h a n e n t i t y ) , e x c e p t i n s u c h c a s e s a s t h e S e c r e t a r y may s p e c i f y ; (4 ) w h ic h a r e n o t p r o v id e d w i t h i n t h e U n ite d S t a t e s ( e x c e p t f o r em erg en cy i n p a t i e n t h o s p i t a l s e r v i c e s f u r n i s h e d o u t s i d e t h e U n ite d S t a t e s u n d e r t h e c o n d i t i o n s d e s c r i b e d i n s e c t i o n 1814 (f); ( 5 ) w h ic h a r e r e q u i r e d a s a r e s u l t o f w a r , o c c u r r i n g a f t e r t h e e f f e c t i v e d a t e o f su c h i n d i v i d u a l 's c u r r e n t c o v e ra g e u n d e r su ch p a r t ; (б ) w h ic h c o n s t i t u t e p e r s o n a l c o m f o r t ite m s ; (7 ) w h e re s u c h e x p e n s e s a r e f o r r o u t i n e p h y s i c a l c h e c k u p s , e y e g l a s s e s o r e y e e x a m in a tio n s f o r t h e p u r p o s e o f p r e s c r i b i n g , f i t t i n g , o r c h a n g in g e y e g l a s s e s , p r o c e d u r e s p e rfo rm e d ( d u r in g . 73 t h e c o u r s e o f a n e y e e x a m in a tio n ) t o d e te r m in e t h e r e f r a c t i v e s t a t e o f t h e e y e s , h e a r i n g a i d s o r e x a m in a tio n s t h e r e f o r , o r im m u n iz a tio n s ; (8 ) w h ere s u c h e x p e n s e s a r e f o r o r t h o p e d i c s h o e s o r o t h e r s u p p o rtiv e d e v ic e s f o r th e f e e t ; (9 ) w h ere s u c h e x p e n s e s a r e f o r c u s t o d i a l c a r e ; (1 0 ) w h ere s u c h e x p e n s e s a r e f o r c o s m e tic s u r g e r y , o r a r e i n c u r r e d i n c o n n e c t io n t h e r e w i t h , e x c e p t a s r e q u i r e d f o r t h e p ro m p t r e p a i r o f a c c i d e n t a l i n j u r y o r f o r im p ro v em en t o f t h e f u n c t i o n i n g o f a m alfo rm ed body member; (1 1 ) w h ere s u c h e x p e n s e s c o n s t i t u t e . c h a n g e s im posed by im m e d ia te r e l a t i v e s o f s u c h i n d i v i d u a l o r m em bers o f h i s h o u s e h o ld ; (1 2 ) w h e re s u c h e x p e n s e s a r e f o r s e r v i c e s i n c o n n e c t io n w i t h t h e c a r e , t r e a t m e n t , f i l l i n g , r e m o v a l, o r r e p la c e m e n t o f t e e t h o r s tr u c tu r e s d i r e c t l y s u p p o rtin g te e th ; o r (1 3 ) w h e re s u c h e x p e n s e s a r e f o r ---(A) t h e t r e a t m e n t o f f l a t f o o t c o n d i t i o n s and t h e p r e s ­ c r i p t i o n o f s u p p o rtiv e d e v ic e s t h e r e f o r . (B) t h e t r e a t m e n t o f s u b l u x a t i o n s o f t h e f o o t , o r (C) r o u t i n e f o o t c a r e ( i n c l u d i n g t h e c u t t i n g o r re m o v a l o f c o r n s , w a r t s , o r c a l l u s e s , t h e trim m in g o f n a i l s , and o t h e r h y g e n ic c a r e ) (b ) P aym ent u n d e r t h i s t i t l e may n o t b e made w i t h r e s p e c t t o any, ite m o r s e r v i c e t o t h e e x t e n t t h a t p aym ent h a s b e e n m ad e , o r c a n r e a s o n a b ly be e x p e c te d t o b e made ( a s d e te r m in e d i n a c c o r d a n c e w ith r e g u l a t i o n s ) , w i t h r e s p e c t t o s u c h ite m o r s e r v i c e , u n d e r a w o rk m en 's c o m p e n s a tio n law o r p l a n o f t h e U n ite d S t a t e s o r a S t a t e . Any paym ent u n d e r t h i s t i t l e w i t h r e s p e c t t o any i te m o r s e r v i c e s h a l l b e c o n d i­ t i o n e d on r e im b u rs e m e n t t o t h e a p p r o p r i a t e T r u s t Fund e s t a b l i s h e d by t h i s t i t l e w hen n o t i c e o r o t h e r i n f o r m a t i o n i s r e c e i v e d t h a t paym ent f o r s u c h ite m o r s e r v i c e h a s b e e n made u n d e r su c h a law o r p l a n . APPENDIX E VERBATIM STATEMENTS MADE BY RESPONDENTS TO "ADDITIONAL COMMENTS" ON QUESTIONNAIRE 75 VERBATIM STATEMENTS MADE BY RESPONDENTS TO "ADDITIONAL COMMENTS" ON QUESTIONNAIRE P h y s ic ia n s " . . . E d u c a t i o n o f n u r s e s and p h y s i c i a n s i s p r o b a b ly t h e k ey t o d e m o n s t r a t in g w h a t c a n b e done by an a g e n c y o f t h i s s o r t , p l u s t h e home, h e a l t h n u r s e m u st make w e e k ly c o n t a c t w i t h t h e p h y s i c i a n s t o k e e p i t . a liv e .V " T h e r e n e e d s t o be a c a r e f u l l y s c r e e n i n g o f i n d i v i d u a l s who p e r f o r m t h i s s e r v i c e , t o make s u r e t h a t th e y a r e c a p a b le o f com pre­ h e n d in g t h e p ro b le m s o f o t h e r s , t h a t th e y a r e c o m p a s s io n a te and u n d e r ­ s t a n d i n g , y e t h a v e a f ir m n e s s t o g e t a c r o s s t h e i r p o i n t and t o f i n d a way t h a t i s a c c e p t a b l e t o e a c h p h y s i c i a n i n v o l v e d , s o t h a t th e y c a n r e p o r t t o him a t a n a p p r o p r i a t e t i m e , e i t h e r i n w r i t i n g o r v e r b a l l y , a t a tim e w h ere h i s p a t i e n t s a r e n o t i n t e r r u p t e d by i n a p p r o p r i a t e o r u n tim e ly c o m m u n ic a tio n s .." " I n my m in d , i n t h i s a r e a , t h e p ro g ra m i s a FLOP!" "T oo much p a p e r w ork i n v o l v e d ." " P u b l i c h e a l t h n u r s e s s h o u ld b e in v o lv e d i n d i s c h a r g e p la n n in g and p o s t d i s c h a r g e c a r e c o n f e r e n c e s ." ( "O u r p ro g ra m d i e d f o r l a c k o f fu n d s and l a c k o f u t i l i z a t i o n . ” P u b l i c H e a l th N u r s e s "We a r e p a y in g m ore f o r p a p e r w ork t h a n n u r s i n g s e r v i c e s . " "M o st p h y s i c i a n s r e f e r p a t i e n t s who n e e d lo n g te r m c a r e , b u t t h o s e who w o u ld b e n e f i t fro m j u s t a few v i s i t s a r e n o t b e in g r e f e r r e d o f t e n t i m e s ." "We h a v e d i s c o n t i n u e d o u r p ro g ra m a s o f A p r i l I , 1 9 7 4 , due t o l a c k o f r e f e r r a l s ." 1 76 . V e rb a tim S t a te m e n t s Made by R e s p o n d e n ts t o " A d d i t i o n a l Comments" on Q u e s tio n n a ir e , (c o n tin u e d ) H o s p i t a l N u rs e s " I n many s i t u a t i o n s . . . . d o c t o r s d o n 't n e c e s s a r i l y l i k e s u g ­ g e s t i o n s fro m h o s p i t a l n u r s e s . " " T h e r e n e e d s t o b e a good r e c o r d k e e p in g s y s te m t h a t c u t s down on t h e m u l t i t u d e o f p a p e r w ork t h a t i s done by m o st home h e a l t h a g e n c ie s ;" » "T h e p ro g ra m s h o u ld b e g i v e n m ore p u b l i c i t y t o a c q u a i n t th e m e d ic a l and n u r s i n g p r o f e s s i o n s a s w e l l a s t h e p u b l i c o f i t s s e rv ic e s ." SELECTED BIBLIOGRAPHY 78 ' SELECTED BIBLIOGRAPHY Books T y r u s , H illw a y . In tr o d u c tio n to R e se a rc h . Com pany, 1956. B o s to n : H o u g h to n M i f f l i n P e rio d ic a ls A n d r u s , L .H . "Home C a re f o r R u r a l P o o r ," H o s p i t a l s , Volum e 5 , M arch I , 1 9 7 0 , p . 4 3 . ; I • j A u s t i n , C a t h e r i n e . " T h e B a s i c S ix N eeds o f t h e A g in g ," N u r s in g O u tlo o k , Volume 7 , Number 3 , M a rc h , 1 9 5 9 , p . 138. A m brose, S r . A nne. " D i s c h a r g e P l a n s - The W e ak e st L i n k ," H o s p i t a l P r o g r e s s , M arch 1 9 7 3 , p . 5 8 . ' B u llo u g h , B o n n ie . " T h e M e d ic a re - M e d ic a d e A m endm ents," A m erican J o u r n a l o f N u r s i n g , Volum e 7 3 , Number 1 1 , p . 1 9 26. , VC h a lle n g e s t o N u r s in g i n M e d ic a r e ," A m e ric a n J o u r n a l o f N u r s in g , I . Volume 6 5 , Number 8 , Novem ber 1 9 6 5 , p . 6 8 . ■ ■■ I D aw son, N orm a, and M a rth a S t e r n . " P e r c e p t i o n s o f P r i o r i t i e s f o r Home N u r s in g C a r e ," N u r s in g R e s e a r c h , Volume 2 2 , Number 2 , A p r i l 1973, p . 145. G r e e n l i c k , M .R ., A .V . H u r ta d o , and E . W. Sa w a rd . "T h e O b j e c t i v e M easu rem en t o f t h e P o s t - H o s p i t a l N eeds o f a Known P o p u l a t i o n ," A m e ric a n J o u r n a l o f P u b l i c H e a l t h , Volume 5 6 , Number 8 , A u gust 1 9 6 6 , p . 1193. L e w is , D a v id , and M a rie M ackey. "Home C a re P ro g ra m s C u ts D o l l a r s a n d D a y s ," C a n a d ia n H o s p i t a l s , Volume 2 7 , Number 3 , May 1 9 7 3 , p . 3 7 . M o z a r e l l a , M .C. " B a n d in g T o g e th e r f o r R u r a l Home C a r e ," A m erican J o u r n a l o f N u r s in g , Volume 6 9 , Number 1 0 , A p r i l 1 9 7 0 , p . 26 5 8 . 79 R y d e r , C l a i r e , P a u l i n e S t i t t , and W illia m E l k i n . "Home H e a l th S e r v i c e s - P a s t , P r e s e n t , F u t u r e , " A m e ric a n J o u r n a l o f P u b l ic H e a l t h , Volume 5 7 , Number 9 , S e p te m b e r 1 9 6 9 , p . 1720. R y d e r , C l a i r e , and F r a n k B. R y d e r. " C o o r d in a te d Home C a re P ro g ram s i n Community H e a l th A g e n c ie s ," A m e ric a n J o u r n a l o f P u b l i c H e a l t h , Volume 5 7 , Number 2 , F e b r u a r y 1 9 6 7 , p . 2 6 1 . Wegem, M .E. " C o m p re h e n s iv e P e r s o n a l H e a l t h S e r v i c e s ," A m e ric a n J o u r n a l o f P u b l i c H e a l t h , Volume 5 7 , Number I , J a n u a r y 1 9 6 7 , p . I . G ov ernm ent P u b l i c a t i o n s . T r a g e r , B r a j a n . Home H e a l th S e r v i c e s i n t h e U n ite d S t a t e s , A R e p o rt t o t h e S p e c i a l C om m ission on A g in g , U .S . G overnm ent P r i n t i n g O f f i c e , W a s h in g to n , D .C ., A p r i l 1 9 7 2 , p . 6 1 . U n ite d S t a t e s D e p a rtm e n t o f H e a l t h , E d u c a t i o n , and W e lf a r e . S o c i a l S e c u rity A d m in is tra tio n . 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G ov ern m en t P r i n t i n g O f f i c e , W a s h in g to n , D .C ., 1969. _____ . S o c i a l S e c u r i t y A d m i n i s t r a t i o n . S o c i a l S e c u r i t y P ro g ra m s i n t h e U n ite d S t a t e s , U .S . G ov ern m en t P r i n t i n g O f f i c e , W a s h in g to n , D .C ., 1 9 7 3 , p . 10. _____ . S o c i a l S e c u r i t y A d m i n i s t r a t i o n . T i t l e X V III H e a l th I n s u r ­ a n c e f o r t h e Aged P u b l i c Law 8 9 -9 7 o f t h e S o c i a l S e c u r i t y A c t, U. S . G o vernm ent P r i n t i n g O f f i c e , W a s h in g to n , D .C ., J u l y 3 , 1965, p. 40. 80 U n ite d S t a t e s D e p a rtm e n t o f H e a l t h , E d u c a t i o n , and W e lf a r e . S o c i a l S e c u r i t y A d m i n i s t r a t i o n . You and Home H e a l th C a r e , U .S . G o v e rn ­ m ent P r i n t i n g O f f i c e , W a s h in g to n , D .C ., 1 9 7 3 , p . 3 . _________ . S o c i a l S e c u r i t y A d m i n i s t r a t i o n . Y our M e d ic a re H andbook, U .S . G overnm ent P r i n t i n g O f f i c e , W a s h in g to n , D .C ., F e b r u a r y 19 7 3 , •p. 10. U n p u b lis h e d W orks B r e n h e n , M a rie . Home H e a l th A g e n c ie s i n R u r a l C o m m u n itie s . D a k o t a .S t a t e D e p a rtm e n t o f H e a l t h , F e b r u a r y 1 9 7 3 , p . 3 . N o rth I l l i n o i s C o u n c il o f Home H e a l th A g e n c ie s . P o s i t i o n P a p e r o n "Home H e a l th S e r v i c e s U n d er t h e M e d ic a re P ro g ra m ,!' Novem ber 1 9 6 9 , p . 4 . O th e r S o u r c e s E d i t o r i a l , A m e ric a n M e d ic a l.N e w s , J a n u a r y 8 , 1 9 7 3 , p . 5 . E d i t o r i a l , A m e ric a n M e d ic a l News, May 1 4 , 19 7 3 , p . 8 . E d i t o r i a l , The A m e ric a n N u r s e , O c to b e r 1 9 7 4 , p . 4 , A m e ric a n N u rs e s A s s o c i a t i o n , K a n sa s C i t y , M i s s o u r i . A m e ric a n H o s p i t a l A s s o c i a t i o n . The H o s p i t a l and t h e Home C a re P ro g ra m , A m e ric a n H o s p i t a l A s s o c i a t i o n , I l l i n o i s , 1 9 7 2 , p . 7 . R y d e r , C l a i r e . "In-H om e C a re - T ow ards a N a t i o n a l P o l i c y and S t r a t e g y P a p e r p r e s e n t e d a t t h e 1972 R e g io n a l M e e tin g o f C o u n c il o f Home H e a l th A g e n c ie s and Com m unity H e a l th S e r v i c e s . E d i t o r i a l , NLN N ew s, Volume 2 1 , Number 8 , S e p te m b e r 1 9 7 3 , N a t i o n a l . L eag u e f o r N u r s in g , New Y o rk , p . 3 . M O N T A N A S T A T E U N IV E R S IT Y L IB R A R IE S 3 1762 1001 4485 4 L e e , L aV erne E Id e n tific a tio n o f f a c to r s c o n trib u tin g to t h e u t i l i z a t i o n o f home h e a l t h a g e n c ie s . . . DATE fS S U E D TO V t d U H O -U jk x n x sri v I m t-I s (U & y