Patient reactions to transfers from rural to urban health care institutions by Judy Diane Schmidt A thesis submitted in partial fulfillment of the requirements for the degree OF MASTER OF NURSING Montana State University © Copyright by Judy Diane Schmidt (1981) Abstract: Patient transfers from rural to urban hospitals are commonplace in Montana. This practice is influenced by the fact that specialized care and diagnostic equipment are located in the urban hospitals. The purpose of the study was to determine patient reactions to transfers from rural to urban health care institutions. The study had an exploratory descriptive design. Interview questions addressed patient reactions to the rural health care institution, the transfer process, and the urban health care institution. Questions were based on the conceptual framework of Parsons' theory of sick role behavior and Wu's theory of patient needs in relation to illness. Fourteen patients transferred from rural to urban hospitals were interviewed to determine their reactions. The data were analyzed using descriptive statistics. The transferred patients in the study did not express any concerns in regard to the rural hospitals, the transfer process, or entry into the urban hospitals. Both participants and their families cooperated with the medical regime, including the decision for transfer. Transfer from the rural to the urban hospital was viewed as a necessary action in order to regain health. Results of the study indicated that patients react to rural-to-urban transfers by demonstrating Parsons' sick role behavior. Concerns for costs, family separation, distance to medical care, length of stay, and others were expressed. However, these were not expressed unless patients were less seriously ill or convalescence had begun. Small sample size does not allow corroboration with Wu's theory. Nurses were frequently identified as major care-givers during all three phases of the rural-to-urban transfer. This indicates the important role of the nurse in meeting the needs of rural patients in both rural and urban health care settings. STATEMENT OF PERMISSION TO COPY In p r e s e n t i n g t h i s t h e s i s in p a r t i a l - f u l f i l l m e n t of t h e r e q u i r e m e n t s f o r an advanced degree a t Montana S t a t e U n i v e r s i t y , I a g r e e t h a t t h e L i b r a r y s h a l l make i t f r e e l y available for inspection. I f u r t h e r a g re e t h a t p e rm is si on f o r e x t e n s i v e copying o f t h i s t h e s i s f o r s c h o l a r l y purposes' may be g r a n t e d by my ma jor p r o f e s s o r , o r , in h is a b s e n c e , by t h e D i r e c t o r of L i b r a r i e s . I t i s unde rs too d t h a t any copying o r p u b l i c a t i o n o f t h i s t h e s i s f o r f i n a n c i a l gain s h a l l n o t be allow ed w i t h o u t my w r i t t e n pe rm is si o n . Signature PATIENT REACTIONS TO TRANSFERS FROM RURAL TO URBAN HEALTH CARE INSTITUTIONS BY JUDY DIANE SCHMIDT A t h e s i s s ubm itt ed in p a r t i a l f u l f i l l m e n t o f t h e re qui re m e nts f o r t h e degree OF MASTER OF NURSING Approved: GfIairpersc^K' G radua te Committee Head, Major Department Gra duat e Dean MONTANA STATE UNIVERSITY Bozeman, Montana Jun e, 1981 iii ACKNOWLEDGEMENTS I would l i k e t o t a k e t h i s o p p o r t u n i t y to ex pre ss my a p p r e c i a t i o n t o s e v e ra l people f o r t h e i r l o y a l t y and su p p o rt during my work on t h i s t h e s i s . F i r s t , , I would l i k e t o thank th e members of my t h e s i s committee. Dr. P a t r i c i a L a r s o n , Dr. J a c q u e l i n e Taylor,, and Frances Eakman, f o r t h e i r p a t i e n c e and a s s i s t a n c e . A d d i t i o n a l l y , I would l i k e to ex press my d e e p e s t a p p r e c i a t i o n t o my p a r e n t s and s i s t e r s f o r t h e i r support. And f i n a l l y , I would l i k e t o thank my husband^ R ob er t, f o r h i s unwavering encouragement and su p p o rt during t h e s e two y e a r s . I d e d i c a t e t h i s work to him. iv TABLE OF. CONTENTS Page VITA ...................................................................................................................... i i ACKNOWLEDGEMENTS........................................................... ................................i i i LIST OF TABLES.......................................................................... ............ . . . vi . ABSTRACT.....................................................'....................................................... v i i CHAPTER 1 INTRODUCTION ................................................................................... I Sta te m e nt o f t h e Problem............... ....................... .......... 1-3 Purpose of t h e S t u d y ......................................................... 3 Basic Assumptions............... ................... *.................. 3-4D e f i n i t i o n o f Terms............................................................. 4-5 2 REVIEW OF THE LITERATURE AND CONCEPTUAL FRAMEWORK••-6 Montana's Health Care System ................................. — 6-11 P a t i e n t Reac tio ns to T r a n s f e r s ....................................... 11-13 . Conceputal Framework......................................................... 13-20 Chapter -Summary......................................................................20-21 3 METHODOLOGY •................................................................................... 22 Research D e s i g n ..................................................................... 22 S e t t i n g and Sample............. *............................'.................. 22-23 Data C o l l e c t i o n I n s t r u m e n t ................................... .......... 23-25 Data C o l l e c t i o n Method .................................................... 25 P i l o t Study .............................................................................25-26 Human R i g h t s ............................................................................ 26 Data A n a l y s i s ............. ............................................................ 27 4 FINDINGS........................................................................................... 28 S c r e e n i ng D a t a ...................... .............................................. .28 Demographic D a t a ................................................ ................... 28-30 Background Data - ................................................................... 30-33 V CHAPTER ' Page • P a t i e n t Reactions, to R ura l-t o-U rb an T r a n s f e r s . .33 P a t i e n t Reac tio ns R e l a t i v e t o t h e Rural Health Care I n s t i t u t i o n .............................................33-34 Summary..................................................................: ...............,34 P a t i e n t Rea ctions R e l a t i v e to th e T r a n s f e r P r o c e s s ............................. 35-39 Summary ..........................................'........................................ 39 P a t i e n t Reac tio ns R e l a t i v e t o the.Urban Health Care I n s t i t u t i o n .......................................................... .39-43 Summary........................................... 43-44 Data Rel eva nt t o Demographic Data and General Findings ..............................................................................44-46 Summ ary----- ''......................................................................... 46 Chap ter Summary and D is cu ssi on ......................... 46-49 5 CONCLUSIONS ........................ ............................................. ....50 Conclusions ........................ ....50-53 Nursing I m p l i c a t i o n s ................. 53-55 L i m i t a t i o n s .................. 55-56 Recommedations f o r Further. S tu dy ..................... 56-67 REFERENCES .................................... 58-63 APPENDICES .............................••................................ ................................ * .64 Appendix A - I n t e r v i e w Schedule ................................... .64-66 Appendix B - Approval L e t t e r s .........................................67-70Appendix C - Consent f o r P a r t i c i p a t i o n ........................71-73 vi LIST' OF TABLES TABLE 1 2 PAGE Montana's Po pu la ti o n Ranges and Number of C i t i e s Within Each Range ................................................... 7 Montana Counties and P e rc e nta ge of Residents Who Went t o E i t h e r B i l l i n g s ' H o s p i t a l s Between J u l y and December, 1978 .......................................... 12 3 Demographic Data of P a t i e n t s T r a n s f e r r e d from Rural to Urban Health Care I n s t i t u t i o n s (-N=IA)...................31 4 P a t i e n t Reac tio ns t o Being Told About th e Rural to-Urban T r a n s f e r ............................. 36 Person P erce iv ed as R espons ible f o r P a t i e n t Care P r i o r t o T r a n s f e r .......................................... 37 Person Percei ved as R espons ible f o r P a t i e n t Care During t h e T r a n s f e r .............................. 38 r 5 6 7 P a t i e n t Reac tio ns Upon En t er i n g t h e Urban Health Care I n s t i t u t i o n .......................................................................41 8 Concerns Expressed on En te ri ng Urban Hospital and Who Handled Them .....................................................................41 9 Concerns Expressed A f t e r Admission to the Urban Hosp it al and Who Handled Them ....................•...................42 10 F u r t h e r Concerns Expressed Regarding th e R u r a l - t o Urban T r a n s f e r .................................................. 43 v ii ABSTRACT P a t i e n t t r a n s f e r s from r u r a l t o urban h o s p i t a l s a r e commonplace in Montana. This p r a c t i c e i s in f l u e n c e d by the f a c t t h a t s p e c i a l i z e d c a r e and d i a g n o s t i c equipment a r e l o c a t e d in t h e urban h o s p i t a l s . The purpose o f th e study was to determine p a t i e n t r e a c t i o n s to t r a n s f e r s from r u r a l to urban h e a l t h c ar e institutions. The s tu dy had an e x p l o r a t o r y d e s c r i p t i v e d e s ig n . I n t e r ­ view q u e s t i o n s a dd re ss ed p a t i e n t r e a c t i o n s to t h e r u r a l h e a l t h c a r e i n s t i t u t i o n , the t r a n s f e r p r o c e s s , and th e urban h e a l t h , c a r e i n s t i t u t i o n . Questions were based on the conceptual frame­ work of Pa rs ons ' theory, of s i c k r o l e b e h a v i o r and Wu1s the ory of p a t i e n t needs in r e l a t i o n t o i l l n e s s . Fourteen p a t i e n t s t r a n s f e r r e d from r u r a l to urban h o s p i ­ t a l s were in te r v ie w e d t o determine t h e i r r e a c t i o n s . The data were analyzed us in g d e s c r i p t i v e s t a t i s t i c s . The t r a n s f e r r e d p a t i e n t s in t h e stu dy did not e x p re ss any concerns in re g a rd t o t h e r u r a l h o s p i t a l s , the t r a n s f e r pro ­ c e s s , o r e n t r y i n t o t h e urban h o s p i t a l s .' Both p a r t i c i p a n t s and t h e i r f a m i l i e s c o ope r at e d with th e medical regime, i n ­ c l u d in g t h e d e c i s i o n f o r t r a n s f e r . T r a n s f e r from t h e r u r a l to t h e urban h o s p i t a l was viewed as a ne c e s s a ry a c t i o n in o r d e r to regain health . R e s u l t s o f th e st udy i n d i c a t e d t h a t p a t i e n t s r e a c t to r u r a l - t o - u r b a n t r a n s f e r s by dem onst rat ing Pa rs ons ' s i c k r o l e b e h a v i o r . Concerns f o r c o s t s , fa m ily s e p a r a t i o n , d i s t a n c e t o medical c a r e , l e n g t h of s t a y , and o t h e r s were e x p re s s e d . How­ e v e r , t h e s e were not ex pre sse d u n l e s s p a t i e n t s were l e s s s e r i ­ ous ly i l l or c o nvale sce nce had begun. • Small sample s i z e does no t allow c o r r o b o r a t i o n with Wu' s t h e o r y . Nurses were f r e q u e n t l y i d e n t i f i e d as major c a r e - g i v e r s during a l l t h r e e phases of the r u r a l - t o - u r b a n t r a n s f e r . This i n d i c a t e s t h e im p o r ta n t r o l e of t h e nurs e in meeting th e needs of r u r a l p a t i e n t s in both r u r a l and urban h e a l t h c a r e s e t t i n g s . CHAPTER I INTRODUCTION St a te m e nt o f t h e Problem Nursing i s a p a t i e n t - o r i e n t e d p r o f e s s i o n , p ro v id i n g c a r e f o r p a t i e n t s w it h v a r i e d dia gnoses and in d i f f e r e n t s e t t i n g s . With t h e advances in emergency medicine in t h e l a s t deca de , p a t i e n t s who have been t r a n s f e r r e d between i n s t i t u t i o n s a r e numerous and a new c h a l l e n g e to both r u r a l and urban n u r s e s . In Montana, t r a n s f e r r e d p a t i e n t s from r u r a l t o urban h e a l t h c a r e i n s t i t u t i o n s a r e commonplace, f o s t e r e d by i t s unique h e a l t h c a r e system. Thi s system c o n s i s t s of g e n e r a l i s t s l o c a t e d i n r u r a l a r e a s and s p e c i a l i s t s in urban a r e a s . The r u r a l a r e a i s s erved by medical and n u rs in g g en eral p r a c t i t i o n e r s in s m a l l , si m pl y- e qui pp e d h o s p i t a l s . Both medical and n u r s i n g p r o f e s s i o n a l s in t h e s e s e t t i n g s must have a broad knowledge and s k i l l base in o r d e r t o c a r e f o r t h e d i v e r s i t y of p a t i e n t s th e y s e e . S p e c i a l t y c a r e f o r th e Ea st er n p a r t o f t h e s t a t e i s l o c a t e d in t h e c i t i e s o f B i l l i n g s and Great. F a l l s . A large number o f medical and nur s in g s p e c i a l i s t s , drawn t o Montana by i t s wide open sp ace s and r e c r e a t i o n a l o p p o r t u n i t i e s , con­ g r e g a t e in B i l l i n g s and Great F a l l s , Here the y p r a c t i c e t h e i r s p e c i a l i z e d s k i l l s , develop p r o f e s s i o n a l n e tw o rk s , and have a c c e ss 2 to c o n t i n u i n g e d u c a ti o n and s p e c i a l i z e d equipment. Rural p a t i e n t s from E a s t e r n Montana must be t r a n s f e r r e d to B i l l i n g s and Great Falls to re c eiv e these sp e c ia liz e d s e rv ic e s . P a t i e n t s come to t h e s e s e t t i n g s by s e l f - r e f e r r a l , p h y s i c i a n - r e f e r r a l , o r by.being t r a n s f e r r e d from r u r a l to urban h o s p i t a l s . Concern f o r t r a n s f e r r e d p a t i e n t s , e v o l v e d from t h e i n v e s t i ­ g a t o r ' s e x p e r i e n c e in r u r a l h o s p i t a l s , which o f t e n i n c lu d e d p r e p a r i n g p a t i e n t s f o r t r a n s f e r t o urban h o s p i t a l s and a s s i s t ­ ing p a t i e n t s duri ng t r a n s f e r s . The problems a s s o c i a t e d with d i s t a n c e , communications, and t r e a t m e n t p r o t o c o l s have been i d e n t i f i e d and a r e in t h e p ro c e ss o f being s o l v e d . The d i s ­ t a n c e s t h e s e pe rsons have t o t r a v e l a r e o f t e n g r e a t , up t o 350 m i l e s in some c a s e s . Besides t r a v e l l i n g by c a r , a v a r i e t y of e l a b o r a t e t r a n s p o r t a t i o n systems have developed and a r e used, f i n c l u d i n g ground and a i r ambulance s e r v i c e s . The two urban h o s p i t a l s in G re at F a l l s and B i l l i n g s have ta ken t h i s d e vel op­ ment one s t e p f u r t h e r by p ro v id i n g s p e c i a l l y equipped a i r p l a n e s and h e l i c o p t e r s and t r a i n e d medical personnel f o r t r a n s f e r r i n g p a t i e n t s from r u r a l s e t t i n g s . E l a b o r a t e communication systems between h o s p i t a l s and between ambulances a r e u t i l i z e d . Pro­ t o c o l s o f s p e c i f i c t r e a t m e n t m o d a l i t i e s t o be a d m i n i s t e r e d be­ f o r e and d urin g t r a n s f e r a r e o u t l i n e d and f o l l o w e d . Of s p e c i a l i n t e r e s t t o t h e i n v e s t i g a t o r a r e t h e p a t i e n t s who a r e t r a n s f e r r e d 3 to B i l l i n g s . The medical p r o t o c o l s of t r a n s f e r r i n g p a t i e n t s have been c a r e f u l l y and d e l i b e r a t e l y devel ope d. To t h e i n v e s t i g a t o r , con­ s i d e r a t i o n f o r th e p a t i e n t has not been u n d e r t a k e n . t h e i r r e a c t i o n s t o being t r a n s f e r r e d ? What a re Nursing i s a p a t i e n t - o r i e n t e d p r o f e s s i o n where concern i s f o r t h e t o t a l p a tie n t, in­ c l u d i n g p h y s i o l o g i c a l , p s y c h o l o g i c a l , and s o c i o - c u l t u r a l f a c t o r s . R ea c ti o n s o f t r a n s f e r r e d p a t i e n t s toward r u r a l - t o - u . r b a n t r a n s f e r must be c o n s i d e r e d . U n d e r s t a n d i n g . o f t h e t r a n s f e r s i t u a t i o n :is needed i f n u rs e s a r e going t o a d e q u a t e l y c a r e f o r r u r a l p a t i e n t s and meet t h e i r t o t a l needs. Purpose o f t h e Study , The purpose o f t h e st udy was t o i d e n t i f y p a t i e n t r e a c t i o n s t o t r a n s f e r s from r u r a l t o urban h e a l t h c a r e i n s t i t u t i o n s in r e l a t i o n to s i c k r o l e b e h a v io r and t h e e f f e c t s of i l l n e s s and h o s p i t a l i z a t i o n on b e h a v i o r . The a c t i o n s of n u r s e s in r u r a l and urban s e t t i n g s w i l l be a d d re s s e d r e l a t i v e t o t h e s e f i n d i n g s . Basic Assumptions Se ve ra l b a s i c assumptions were made r e g a r d i n g t h e s tu dy: 1. T r a n s f e r s from r u r a l t o urban h e a l t h c a r e i n s t i t u t i o n s can cause r e a c t i o n s in p a t i e n t s . 2. Reac tio ns can be e x p re ss e d v e r b a l l y . 4 3. P a tie n ts are able to v e rb a liz e t h e i r re a c tio n s to t r a n s f e r a f t e r 12 hours in urban h e a l t h c a r e institutions. D e f i n i t i o n o f Terms The d e f i n i t i o n of terms as used in t h e stu dy a r e as fo ll ows P a t i e n t - i l l person o f e i t h e r sex between t h e ages of 18 and 8 0 , who v o l u n t a r i l y o r i n v o l u n t a r i l y i n i t i a l l y se e ks medical t r e a t m e n t a t a r u r a l h e a l t h c a r e i n s t i t u t i o n and i s s u b s e q u e n tl y t r a n s f e r r e d t o an urban h e a l t h c a r e i n s t i t u t i o n f o r s p e c i a l i z e d c a r e o r d i a g n o s t i c p u rp o s e s. Rea ct ion - a verba l re s p o n s e t o being t r a n s f e r r e d from r u r a l t o urban h e a l t h ca.re i n s t i t u t i o n s . T r a n s f e r - t h e t r a n s p o r t i n g o f a p a t i e n t v i a ground, a i r p l a n e , or h e l i c o p t e r ambulance from a r u r a l t o an urban h e l a t h c a r e i n s t i t u t i o n f o r s p e c i a l i z e d c a r e o r d i a g n o s t i c proce dures and t e s t s . Rural Health Care I n s t i t u t i o n - any h o s p i t a l f u n c t i o n i n g in a c i t y wit h a p o p u l a t i o n of 2 ,5 00 o r l e s s and l o c a t e d in E a s te r n and So uth - C e n tr a l Montana and North ern Wyoming. *. Urban Health Care I n s t i t u t i o n - t h e h o s p i t a l s l o c a t e d in B i l l i n g s , Montana: B i l l i n g s Deaconess Hospital . 5 and S t . V i n c e n t ' s H o s p i t a l . Seriously i l l patient - a patient transferred a fte r s t a b i l i z a t i o n from a r u r a l t o an urban h e a l t h c a r e i n s t i ­ tu tio n for specialized care. Less s e r i o u s l y i l l patient - a patient transferred from a r u r a l to an urban h e a l t h c a r e i n s t i t u t i o n f o r d i a g n o s t i c proce dures and t e s t s and .sub seq ue nt t r e a t m e n t . CHAPTER 2 REVIEW .OF THE LITERATURE AND CONCEPTUAL FRAMEWORK Review o f t h e l i t e r a t u r e focus ed on two main a r e a s . First, background i n f o r m a t i o n on Montana as a r u r a l s t a t e and i t s h e a lt h c a r e system was reviewed. The sec on d, and major emphasis of t h e l i t e r a t u r e re v ie w , focus ed on how p a t i e n t s r e a c t t o i l l n e s s , h o s p i t a l i z a t i o n , and movement i n t o t h e s i c k r o l e . The l i t e r a t u r e pro vid ed a co nceptual framework f o r t h e s t u d y based on Wu1s (1973) t h e o r y o f p a t i e n t needs in r e l a t i o n to i l l n e s s , h o s p i ­ t a l i z a t i o n , and t r e a t m e n t , and P a r s o n s 1 (1958) t h e o r y of s ic k role behavior. Montana's Health Care System Montana i s c o n s id e r e d a r u r a l s t a t e s i n c e 94.3% o f i t s c i t i e s have p o p u l a t i o n s of 2,500 or l e s s (Copp, 1976; Montana Department o f Highways, 1979). Montana's p o p u l a t i o n i s p r e ­ s e n te d in Tabl e I . Because o f t h i s f a c t , a unique h e a l t h c a r e system has develop­ ed. E a s t of t h e Rocky Mountains, Montana's h e a l t h c a r e system c o s i s t s o f a l a r g e r u r a l h e a l t h c a r e system dependent upon two urban h e a l t h c a r e o r g a n i z a t i o n s o f s p e c i a l i z e d s e r v i c e s l o c a t e d in B i l l i n g s and Great F a l l s . I These s p e c i a l i z e d s e r v i c e s in c lu de 7 Table I . Montana's P o p u la ti o n Ranges and Number of C i t i e s ■ Within Each,Range. ; ____________ • • !Number or c i t i e s w i t h i n t h i s P o p u l a t i o n range________________ p o p u l a t i o n r a n g e ............... 1-500 368 501-1,000 41 1 ,0 0 1 - 2 ,0 0 0 29 2 , 0 0 1 - 2 ,5 0 0 6 - 2 , 5 0 1 - 4 ,0 0 0 8 4,000-5,000 6 5, 0 0 0 -1 0 ,0 0 0 ' 5 10 ,0 00-15 ,000 2 15 ,0 01-2 0,0 00 I 2 0 ,001 -3 0,0 00 3 6 0 ,0 00- 70,0 00 2 (Montana Department o f Highways, 1979) .h ig h ly t e c h n i c a l medical and n u r s i n g c a r e and t h e l a t e s t d i a g ­ n o s t i c p ro c e d u r e s and t e s t s . P a t i e n t s t h a t e n t e r t h e h e a l t h c a r e system in r u r a l a re a s a r e o f t e n t r a n s f e r r e d to urban a r e a s f o r d i a g n o s t i c proc ed ures and t e s t s o r s p e c i a l i z e d c a f e . t i o n s by s e l f - r e f e r r a l ' . Many a l s o e n t e r urban o r g a n i z a ­ The i n v e s t i g a t o r ' s work in r u r a l h o s p i t a l s 8 revealed a f a i r l y c o n s is te n t p r a c tic e of e i t h e r t r a n s f e r r i n g p a t i e n t s f o r d i a g n o s t i c pro c e dures and t e s t s , or s t a b i l i z i n g p a t i e n t s in s e r i o u s c o n d i t i o n and t r a n s f e r r i n g them f o r s p e c i a l i z e d care. P a t i e n t s who were t r a n s f e r r e d f o r d i a g n o s t i c rea so ns were not s e r i o u s l y i l l , bu t were t r a n s f e r r e d t o urban h o s p i t a l s where s p e c i a l t e s t s and d i a g n o s t i c p ro c e dure s c ould be performed and s u b se q u e n t t r e a t m e n t a d m i n i s t e r e d . T r a n s f e r u s u a l l y occu rr ed a f t e r having s p e n t s e v e r a l days in the rural h o s p ita l. S e r i o u s l y i l l p a t i e n t s were s t a b i l i z e d and then t r a n s f e r r e d from r u r a l t o urban h o s p i t a l s . This p r a c t i c e f o l l o w s t h e American C o lle ge o f Surgeons c l a s s i f i c a t i o n system t h a t d e f i n e s t h e kind s of i n j u r i e s h o s p i t a l s a r e c a p a b l e of h a n d l i n g . c l a s s i f i c a t i o n system has f o u r l e v e l s . 'The Level I h o s p i t a l s hand le s e r i o u s trauma and have some s p e c i a l i s t s . Level I I I h o s p i t a l s hand le moderate i n j u r i e s , such as "uncomplicated i n j u r i e s and c h e s t i n j u r i e s , b u t no n e u r o l o g i c a l , c a r d i a c , o r abdominal i n j u r i e s " ( " T r a n s f e r of P a t i e n t s , " ' 1980:140). Level IV h o s p t i a l s pro vid e s t a b i l i z a t i o n and management o f major b o d i l y i n j u r i e s fo ll ow e d by th e t r a n s f e r o f t h e p a t i e n t to a hospital c l a s s i f i e d a t a higher level C a r e , " ' 1980:227)'. ("New Rules f o r Trauma According t o t h i s systayi.,Montana's r u r a l h o s p i t a l s meet t h e req u ir e m e n ts f o r , c l a s s i f i c a t i o n a t Level I I I o r IV, n e c e s s i t a t i n g t r a n s f e r o f s e r i o u s l y i l l p a tie n ts to 9 Level I I h o s p i t a l s . B i l l i n g s ' h o s p i t a l s , t h e urban h e a l t h c a r e o r g a i n z a t i o n s s e l e c t e d f o r t h i s s t u d y , meet Level I I r e ­ q u i r e m e n t s , alth ough "no formal . d e s i g n a t i o n p ro c e s s f o r h o s p i t a l c l a s s i f i c a t i o n has been made.in Montana" (Dawson, 1981). Rural h o s p i t a l s a r e una ble t o p r o v id e ad equ at e c r i t i c a l c a r e d e l i v e r y f o r s e r i o u s l y . i l l . p a t i e n t s because o f problems w it h ge ogr ap hy, f i n a n c i n g , and u t i l i z a t i o n , as i d e n t i f i e d by t h e Montana Health Systems Agency, Ihc.'' ( 1 9 7 9 : 4 - 4 5 ) . The d i s t a n c e between h o s p i t a l s in Montana n e c e s s i t a t e s t h e need f o r small h o s p i t a l s to have t h e c a p a c i t y to t r e a t c r i t i c a l l y ill patients. This s e r v i c e i s l i k e l y t o be pro vided a t a l o s s to r u r a l h o s p i t a l s . Because o f low u t i l i z a t i o n t h e r e is d e c r e a s e d s t a f f p r o f i c i e n c y in t h e a b i l i t y t o p ro vi de c a r e . Co nti nuing e d u c a ti o n i s needed t o m a i n t a i n s t a f f s k i l l s , y e t small h o s p i t a l s do not have s t a f f f l e x i b i l i t y t o a ll ow time f o r t h e s e programs or funding to send s t a f f ,to programs in d i s t a n t communities (Montana He alth Systems Agency, I n c . , 1979:4-45). E l l i s , in a survey o f '36 r e g i s t e r e d nurs es in Western Montana, i d e n t i f i e d problems r u r a l h o s p i t a l s have in r e g a r d t o emergency c a r e d e l i v e r y . These i n c lu d e d s t a f f i n g pr obl em s, keeping s k i l l s u p - d a t e d . Tack of f a c i l i t i e s , and l a c k o f equipment (19 80 :4 7). 10 I t has been noted t h a t p r o f e s s i o n a l people with s p e c i a l i z e d knowledge a r e a t t r a c t e d t o urban r a t h e r tha n r u r a l a r e a s ( H u r l h u r t , 1975; Mas si nge r, 1976).' "With i n c r e a s i n g s p e c i a l i s a t i o n , t r a n s f e r of c r i t i c a l l y i l l p a t i e n t s to s p e c i a l u n i t s i s l i k e l y t o i n c r e a s e " (Waddell, 1975:1939). T ransferring p a tie n ts fo r sp ecialized care and d i a g n o s t i c proce dures and t e s t s i s a l s o r e p o r t e d by Massinger, I who s t a t e s t h a t general p r a c t i t i o n e r s in r u r a l a r e a s depend on urban s p e c i a l i s t s f o r medical s e r v i c e s (1 976: 174) . The y e ll o w pages of B i l l i n g s ' t e l e p h o n e d i r e c t o r y l i s t 173 medical and s u r g i c a l s p e c i a l i s t s c u r r e n t l y in p r a c t i c e . (The Mountain S t a t e s Telephone and Te le graph C o . , 1980:468-472). Medical s e r v i c e s in c l u d e emergency m e d i c i n e , c a r d i o l o g y , endo­ c r i n o l o g y , ne ph ro lo gy , n e u ro lo g y , ophtha lmolo gy, and pulmonary diseases. S u r g ic a l s e r v i c e s i n c l u d e a r e a s of c a r d i o v a s c u l a r , n e u r o l o g i c a l , o r t h o p e d i c , t h o r a c i c , o p h th a lm o lo g ic , and p l a s t i c s u r g e r y (The Mountain S t a t e Telephone and Te legraph C o . , 1 9 8 0 :4 7 2 -6 ) . Among t h e s p e c i a l t y a r e a s s u p p l i e d by B i l l i n g s ' h o s p i t a l s a r e a d i a l y s i s u n i t , a burn t r e a t m e n t u n i t , two comp ute rize d a x ia l tomogram (C:A :T .) s c a n n e r s , and open heart surgery. The a v a i l a b i l i t y o f t h e s e s p e c i a l i z e d s e r v i c e s i n B i l l i n g s i s a major reaso n f o r many o f t h e r u r a l - t o - u r b a n transfers. 11 B i l l i n g s ' s p e c i a l i s t s o f f e r t h e i r s e r v i c e s to a broad ge o g ra p h ic a re a which i n c l u d e s S o u t h - C e n t r a l and E a s te r n Mon­ t a n a and p a r t s of Northern Wyoming. Data in Table 2 a r e from Research S e r v i c e s West (1979) and d e p i c t t h e p e r c e n ta g e o f each c o u n t y ' s r e s i d e n t s d i s c h a r g e d from Mo ntana's r u r a l h o s p i t a l s between J u l y and December, 1978 and a d m i t t e d to t h e urban h e a l t h c e n t e r s o f B i l l i n g s Deaconess H o sp i ta l o r S t . V i n c e n t ' s Ho spital (1 9 7 9 : 1 5 ) . These c o u n t i e s compose S o u t h - C e n t r a l and E a s te r n Montana, t h e r u r a l a r e a s s er ved by t h e urban h e a l t h c a r e i n ­ s titu tio n s of B illings. B illin g s ' h o sp itals receive a s ig n i­ f i c a n t p e r c e n t a g e o f p a t i e n t s from t h e s e su rro undin g c o u n t i e s , w ith 28.2% o f S t . V i n c e n t ' s h o s p i t a l , p a t i e n t s and 44% o f B i l l i n g s Deaconess H os pit al p a t i e n t s being from them (Research S e r v i c e s West, 1979). P a t i e n t Reac tio ns t o T r a n s f e r s Review o f l i t e r a t u r e did not re v e a l any s p e c i f i c s t u d i e s r e g a r d i n g p a t i e n t r e a c t i o n s to t r a n s f e r s from r u r a l t o urban health care i n s t i t u t i o n s . The l i t e r a t u r e ad dre sse d only i n t r a ­ h o s p i t a l and i n t e r - a g e n c y t r a n s f e r s . Data re g a r d in g i n t r a ­ h o s p i t a l t r a n s f e r s were s p e c i f i c - t o t h e t r a n s f e r r i n g o f p a t i e n t s in g e ne r al and t r a n s f e r r i n g c o ro na ry c a r e u n i t p a t i e n t s in p a r t i ­ cular. Se ve ra l s t u d i e s o f i n t r a - h o s p i t a l t r a n s f e r s r e v e a l e d 12 Montana Counties and P e r c e n t a g e of R esi de nts Who went to e i t h e r B i l l i n g s ' h o s p i t a l s between J u l y and December 1978. Tabel 2. Perc e nt ag e County County Percentage County Pe rcen tag e Yellowstone 97.4% Sweet Grass 33.7% C u st e r 15.5% Mussel she! I 93.0 Wheat!and 30 .2 Sherida n 10.8 Golden V a lley 71.2 Powder R iv er 29.6 Richland 10.6 Big Horn 62.1 Dawson 19.5 Park 9 .8 Carbon 59.0 Wibaux 18.8 McCone 9.1 Rosebud 54.2 Fal I on 18.7 Roosevelt 8.7 Treasure 49.0 Carter 17.7 Dan iels 8 .3 P e t r o l eum 47.7 Prairie 17.4 Fergus 7.7 Valley Garfield 15.6 38.9 (Research S e r v i c e s West, 1979:15) 5.9 Stillw ater c o n t r o v e r s i a l f i n d i n g s with r e p o r t s o f f a v o r a b l e , n e u t r a l , and d e t r i m e n t a l e f f e c t s on p a t i e n t s ( K o r n f e l d , 1968; Shannon, 1973; Smith, 1976; Welch, 1977; Tot h, 1980). Data re g a r d in g i n t e r ­ agency t r a n s f e r s were in r e l a t i o n to t h e e l d e r l y and t h e newborn. T r a n s f e r r i n g the e l d e r l y was seen as a r i s k with r e p o r t e d i n ­ c r e a s e d m o r t a l i t y r a t e s ( S e li f m a n , 1974; Zweig and Csank, 1975; B i r r e n and S c h a i e , 1977; H a s s e lk u s , 1978; Fanslow and M a s s e t , 1979). T r a n s f e r r i n g th e newborn was r e p o r t e d as having d e f i n i t e ph ys ic a l b e n e f i t s t h a t had to be weighed a g a i n s t t h e importance 13 . o f p a r e n t - b a b y bonding (TooTey and Go lds mith, 1977; Young, 1978). Conceptual. Framework The l i t e r a t u r e on Wu1s (1974) t h e o r y of p a t i e n t needs in r e l a t i o n to i l l n e s s , h o s p i t a l i z a t i o n , and t r e a t m e n t , and Parsons' (1958) th e o r y of s i c k r o l e b e h a v i o r pro v id e s a conceptual framework f o r th e s t u d y . The f o l l o w i n g examination o f t h e l i t e r a ­ tu re addresses the concepts. ' P a t i e n t Needs ' ■ Wu's. (1973) th e o r y o f p a t i e n t needs a d d r e s s e s t h e s t r e s s e s o f i l l n e s s , h o s p i t a l i z a t i o n , and t r e a t m e n t . Wu i d e n t i f i e d h o s p i t a l i z a t i o n and t r e a t m e n t as " s t r e s s o r s t h a t t h e i n d i v i ­ dual may have to deal with in a d d i t i o n to th e i l l n e s s i t s e l f " ( 1 9 7 3 :4 7 ) . T r a n s f e r s made w i t h i n t h e h o s p i t a l a r e seen as a potential additional s tr e s s . "Not only must they I earn t o a d j u s t t o a s i n g l e ward b u t in t o d a y ' s h o s p i t a l s i t is n o t uncommon to have t o a d j u s t to s e v e r a l a r e a s . This f r e q u e n t movement and change o f environments can become an added s t r e s s f o r many p a t i e n t s " (Wu, 1973:67). P a t i e n t needs in r e l a t i o n t o s t r e s s e s of i l l n e s s , h o s p i ­ t a l i z a t i o n , and t r e a t m e n t t o which Wu r e f e r s a r e o p e r a t i o n a l i ­ zed in t h e s tu d y as p a t i e n t c o n c e r n s . These in c l u d e con cerns a bou t c o s t s , fa m ily s e p a r a t i o n , f e a r o f t h e unknown, and modes 14 o f t r a n s p o r t a t i o n used t r a n s f e r r i n g p a t i e n t s . Costs a s s o c i a t e d with medical c a r e i n c r e a s e w it h t r a n s f e r . Added expenses of t h e t r a n s p o r t a t i o n t o t h e second medical f a c i l i t y , s p e c i a l i z e d c a r e , arid t h e c o s t o f m ote ls and meals f o r family, members, as well as m a i n t a i n i n g p a r t o f t h e fa m i l y in t h e home, may be co nce rns of t r a n s f e r r e d p a t i e n t s . Locke r e p o r t e d t h a t p a t i e n t t r a n s f e r s t o urban a r e a s f o r s p e c i a l i z e d c a r e can cause emotional and economic p r o b l e m s . ( 1 9 7 8 : 2 3 ) . Wu i s in agreement . s t a t i n g t h a t " f a c t o r s o t h e r th a n t h o s e t h a t i n i t i a t e d t h e i l l - . ne ss p r o c e s s can s i g n i f i c a n t l y i n f l u e n c e i t s c o u rs e s and o u t ­ come. For example, f i n a n c i a l w o r r i e s could slow down and impede f u l l re c ove ry " ( 1 9 7 3 :1 2 ) . : In a d d i t i o n to f i n a n c i a l c o n c e r n s , p a t i e n t s have concerns a bo ut s e p a r a t i o n . H o s p i t a l i z a t i o n means s e p a r a t i o n of p a t i e n t s from f a m i l y and f r i e n d s , s u p p o r t systems u t i l i z e d in everyday l i f e and times of c r i s i s (Cap!an, 1964; Wu, 1973). l e a v e s p a t i e n t s f e e l i n g i s o l a t e d and h e l p l e s s . S e p a r a ti o n When p a t i e n t s a r e t r a n s f e r r e d and h o s p i t a l i z a t i o n : i s a t a d i s t a n c e from the f a m i l y home, t h e e f f e c t s o f s t r e s s , may be more s e v e r e . Trans­ f e r r e d p a t i e r i t s a r e t e m p o r a r i l y c u t o f f from a l l p r e v io u s . systems o f s u p p o r t . ' " I t i s t h e s im u lt a n e o u s r u p t u r e o f a whole ra nge o f e x i s t i n g r e l a t i o n s h i p s t h a t makes r e l o c a t i o n .15 p s y c h o l o g i c a l l y t a x i n g f o r many"; ( T o f f I e r , 1970:103.). As a consequence o f h o s p i t a l i z a t i o n , s o c i a l c o n t a c t s a re lim ited. S e p a r a t i o n n o t only a f f e c t s : p a t i e n t s , b u t f a m il y and f r i e n d s as w e l l . These s i g n i f i c a n t o t h e r s must r e a d j u s t t h e i r l i v e s ( Capla n , 1964:115). T r a n s f e r r e d p a t i e n t s a r e c ar ed f o r a t d i s t a n t h o s p i t a l s which f u r t h e r a c c e n t u a t e s t h e s e p a r a t i o n - f r o m f a m il y and friends. Most people in t h e E a s t e r n h a l f o f t h e . U n i t e d . S t a t e s a r e w i t h i n 100 m ile s of h e a l t h c a r e f a c i l i t i e s . This i s not t h e c a s e in t h e Western p a r t o f t h e United S t a t e s (Massinger and W h it in g , 1976). H o s p ita liz a tio n .a t considerable distance from home was i d e n t i f i e d by V oli cer , in two . s t u d i e s o f s t r e s s f u l e v e n ts a s s o c i a t e d with h o s p i t a l i z a t i o n , as being a h i g h l y s t r e s s f u l e v e n t ( V o l i c e r , 1973; 1974). In c o n t r a s t , Snyder, in a s t u d y o f 15 home d i a l y s i s p a t i e n t s in Western Montana, found t h a t d i s t a n c e s up to 900 m il e s were d e f i n e d as bei ng c l o s e and c o n v e n i e n t in terms of t r a v e l t o h e a l t h c a r e f a c i l i t i e s ( 1 9 79 :1 00) . V arious f e a r s may be o f concern f o r t r a n s f e r r e d p a t i e n t s . T r a n f e r t o t h e urban h o s p i t a l s i n . a l l probability indicates t h e s e r i o u s n e s s o f t h e h e a l t h problem. ' P a t i e n t s may be f r i g h t e n e d when faced with t h e . p r o s p e c t o f t r a n f e r to urban ■16 h o s p i t a l s with a l l i t s i m p l i c a t i o n s o f s e r i o u s i l l n e s s . Along with f e a r a s s o c i a t e d : w i t h . t h e meaning of being t r a n s ­ f e r r e d comes' t h e f e a r o f going to: u n f a m i l i a r p l a c e s with un­ f a m i l i a r people r e s p o n s i b l e f o r p a t i e n t c a r e and l i f e . Hasselkus d i s c u s s e s Markus' c o n c e p ts o f . r e l o c a t i o n , in t h a t r e l o c a t i o n i n c l u d e s " f i r s t , t h e d e p r i v a t i o n of f a m i l i a r cues and e n v i r o n ­ mental s u p p o r t s ; and s e c o n d , t h e need t o . c o p e with new s e t s of s t i m u l i in an u n f a m i l i a r environment" ( 1 9 78: 632) : T r a n s p o r t a t i o n modes may ,a ls o be o f concern t o t r a n s f e r r e d patients. I f p a t i e n t s a r e t o be t r a n s f e r r e d more than 100 m i l e s , an a i r ambulance s e r v i c e , e i t h e r fi x e d -w in g o r h e l i ­ c o p t e r , i s recommended ( Hensl e r , e t a l . , 1976; McCombs., 1978). D i f f e r e n t modes of t r a n s p o r t a t i o n used in t r a n s f e r s and th e importance of ve rbal and w r i t t e n communication between th e t r a n s f e r r i n g h o s p i t a l s and t h e r e c e i v i n g h o s p i t a l s a r e well documented in t h e l i t e r a t u r e (Goodman, 19.75; H u r l b u r t , 1975; Cowper-Smit h , 1976; Hensle r , e t a l . , 1976; S h i r c o f e , 1976; Edlich e t a l . , 1978; Locke, 1978; McCombs, 1978; Norland, 1978; Fanslow and M a s s e t , 1979). V o l i c e r , in two s t u d i e s w ith a t o t a l of 263 p a t i e n t s , i d e n t i fi.ed some of t h e same c oncer ns o u t l i n e d above. .Events a s s o c i a t e d w ith h o s p i t a l i z a t i o n t h a t were c o n s i d e r e d as h ig h l y s t r e s s f u l . 17 i n c lu d e d "admission f o r :l i f e - t h r e a t e n i n g i l l n e s s , in a d e q u a te i n s u r a n c e t o cover h o s p i t a l i z a t i o n , ad mission f o r s u r g e r y , un­ dia gn os ed a i l m e n t a t time o f a d m i s s i o n , and h o s p i t a l i z a t i o n a t c o n s i d e r a b l e d i s t a n c e from home" ( V o l i c e r , 1974:237). Other e v e n t s c o n s i d e r e d l o w - s t r e s s e v e n t s in c lu d e d "admission f o r d i a g n o s t i c t e s t s o n l y , ho t h a v i n g , v i s i t o r s , being c a r e d f o r by u n f a m i l i a r p h y s i c i a n s , and ! i s o l a t i o n from f r i e n d s " ( V o l i c e r , 1974:237). Smith, in a s tu d y o f 320 p a t i e n t s , found t h a t t r a n s f e r i t s e l f was not i d e n t i f i e d as a s t r e s s f u l e ven t of h o s p i t a l i z a t i o n (1 97 6: 192 ). Summary From t h e review o f t h e l i t e r a t u r e on p a t i e n t ne ed s , o p e r a t i o n a l i z e d as. p a t i e n t c oncer ns in t h i s s t u d y , s e v e r a l a r e a s of concern were i d e n t i f i e d and s u p p o r t e d . How p a t i e n t s r e a c t t o t r a n s f e r s from r u r a l t o urban h e a l t h c a r e i n s t i t u t i o n s can be de mo nstrated by v e r b a l i z a t i o n o f t h e s e concerns. Sick Role Behavior P a r s o n s ' (1958) t h e o r y of s i c k r o l e be h a v io r pro v id e s a n o t h e r p e r s p e c t i v e f o r t h e con cep tua l framework o f t h i s s tu d y . The works o f Parsons' and Wu's i n t e g r a t i o n of th e e f f e c t s of i l l n e s s on p a t i e n t b e h a v i o r p r o v id e t h e b a s i s f o r t h e fo ll o w i n g d i s c u s s i o n of s i c k r o l e b e h a v i o r . •18 Parsons d e f i n e s i l l n e s s as a ! " s o c i a l l y i n s t i t u t i o n a l i z e d r o l e - t y p e , " ' d i s t u r b i n g t h e c a p a c i t y o f an i n d i v i d u a l f o r normallyex pe c te d t a s k or r o l e performance; (1 9 5 8 :1 7 6 ) . I l l n e s s i s viewed as a c r i s i s , something i n t e r r u p t i n g t h e normal flow of e v e n t s . I l l n e s s caus es changes in a person t h a t make f u n c t i o n i n g a t an optimal phy si cal and p s y c h o l o g i c a l c a p a c i t y im p o s s i b l e (Wu, 1973) . ' According to P a r s o n s ' d e s c r i p t i o n o f s i c k r o l e b e h a v i o r , t h e p a t i e n t "can not be ' h e l d r e s p o n s i b l e 1 f o r t h e i n c a p a c i t y " ( 1 9 5 8 :1 7 6 ) , bu t does have two o b l i g a t i o n s t o f u l f i l l . First, t h e p a t i e n t has an o b l i g a t i o n " to t r y t o ' g e t w e l l ' and c o o p er at e w it h o t h e r s t o t h i s end. (1 9 5 8 :1 7 7 ) . To be i l l .is i n h e r e n t l y uYideAXsiabZo. The p a t i e n t has t h e o b l i g a t i o n to Ae.e.k comp&t&nt he£p and t o c o o p e r a te w it h competent a g en c ie s in t h e i r a t t e m p t s t o he lp him g e t w e l l " (1 9 5 8 :1 7 7 ) . In o r d e r t o f a c i l i t a t e r e c o v e r y , t h e p a t i e n t in t h e s i c k r o l e i s e x e m p t ." t o v a ry in g ways and f o r va ryi ng p e r i o d s a cc o rd in g t o t h e n a t u r e of th e i l l n e s s , from h is normal r o l e a n d . t a s k o b l i g a t i o n s " ( P a r s o n s , 19 58:17 6). Withdrawal from normal a d u l t a c t i v i t i e s and c o n c e n t r a ­ t i o n on g e t t i n g well i s e x p e c t e d . . The p a t i e n t i s preoccu pie d w it h i l l n e s s (Wu,- 1973:16 0). Re gre s s io n o c c u r s , and i s c h a r a c t e r i z e d by e g o c e n t r i c i t y , 19 c o n s t r i c t i o n o f i n t e r e s t s , dep end en cy , and h y p o c h o n d r i a s i s , e s ­ p e c i a l l y in t h o s e s e r i o u s l y o r a c u t e l y i l l (Wu, 1973:16 0). The p a t i e n t , who now i s exempt from a d u l t r e s p o n s i b i l i t i e s , i s con­ cerned w it h s e l f and with what i s happening w i t h i n t o t h e p o i n t of hypochondriasis. egocentricity. O u ts id e i n t e r e s t s a r e reduced because of Much e n e r g y : i s needed t o deal with t h e i l l n e s s , l e a v i n g l i t t l e energy f o r o t h e r " a c t i v i t i e s (Wu, 1973.) The p a t i e n t becomes depend en t upon o t h e r s , p a r t i a l Iy because o f t h e i l l n e s s and p a r t i a l l y be ca us e o f t h e e g o c e n t r i c i t y and co n strictio n of in te r e s ts . Compliance and c o o p e r a t i o n with the p r e s c r i b e d medical regime i n f l u e n c e r e c o v e r y (Wu, 1973). As t h e i l l n e s s becomes l e s s s e v e r e and l e s s demanding, th e p a t i e n t g r a d u a l l y resumes a dul’t r e s p o n s i b i l i t i e s with a broadened scope o f i n t e r e s t s . More energy f o r o u t s i d e a c t i v i t i e s and th o u g h t s i s a v a i l a b l e (Wu, 1973 :1 63) . No two people r e a c t t o . i l l n e s s and h o s p i t a l i z a t i o n in t h e same manner. . P e r c e p t i o n s an i n d i v i d u a l has r e g a r d i n g i l l ­ ne ss and t o s p i t a l . j z a t i o n a r e i n f l u e n c e d by a mi xtu re o f i n t e r n a l and e x t e r n a l f a c t o r s . . Personal v a r i a b l e s t h a t i n f l u e n c e s i c k ro le behavior include " p e r s o n a lity , so cial s t a t u s , occupation, e d u c a t i o n , a ge, and sex" (Wu, '1973:166)'. Other v a r i a b l e s t h a t i n f l u e n c e s i c k r o l e b e h a v i o r a r e " t h e n a t u r e of t h e i l l n e s s , 20 s o c i a l r o l e norms, i n t e r a c t i o n w it h . r e l e v a n t o t h e r s , t h e h o s p i t a l c u l t u r e , and t h e medical c a r e sy st e m " (Wu, 1973:1975). Today's medical c a r e system encourages a d o p t i o n o f s i c k r o l e b e h a v i o r by t h e p a t i e n t . P a t i e n t p e r c e p t i o n s a bout h o s p i t a l i z a t i o n and t r e a t m e n t a r e i n f l u e n c e d by p e r c e p t i o n s and r o l e e x p e c t a t i o n s o f c a r e - g i v e r s (Wu, 1973; Orem, 1973). On t h e o t h e r hand, t o d a y ' s s o c i a l r o l e norms a r e changing w it h advances o f th e prosumer movement. With many people t a k i n g r e s p o n s i b i l i t y f o r t h e i r own h e a l t h , s i c k r o l e b e h a v i o r may be i n f l u e n c e d ( T o f f l e r , 1980). Summary Adopting s i c k r o l e b e h a v i o r i s an ex pected a c t i v i t y f o r a person who i s i l l . s ee ki ng h e l p . The p a t i e n t e n t e r s t h e h e a l t h c a r e system In o r d e r t o g e t w e l l , c o o p e r a t i o n w it h th e medical team i s n e c e s s a r y . To f a c i l i t a t e t h i s c o o p e r a t i o n , the p a t i e n t i s t e m p o r a r i l y exempt from n o r m a l l y - e x p e c t e d , d a y - t o day a c t i v i t i e s and d u t i e s . R esponsibility fo r illn e s s is no t t h e p a t i e n t ' s , b u t , to. r e g a i n h e a l t h , t h e p a t i e n t i s t o do what must be done t o g e t w e l l . Chap ter SUmMiary Montana i s a r u r a l s t a t e w it h a unique h e a l t h c a r e system c o n s i s t i n g of a l a r g e r u r a l a r e a - d e p e n d e n t upon urban o r g a n i ­ zations for specialized services. S c a tte re d , lim ited services 21 c r e a t e a common e v e n t in M o n t a n a ' s . h e a l t h c a r e system: . t r a n s f e r r i n g p a t i e n t s from r u r a l to urban h o s p i t a l s . P a t i e n t r e a c t i o n s to r u r a l - t o - u r b a n t r a n s f e r s may be i n f l u e n c e d by p a t i e n t con cerns a n d / o r s i c k r o l e b e h a v i o r , and may.be e l i c i t e d as p a t i e n t s e n t e r t h e h e a l t h c a r e system a t t h e r u r a l h e a l t h c a r e i n s t i t u t i o n , d ur in g t h e t r a n s f e r p r o c e s s , o r a t t h e urban h e a l t h c a r e i n ­ stitution. The purpose o f t h i s s tu dy.w as t o de te r m in e how p a t i e n t s . r e a c t t o t r a n s f e r s from r u r a l t o urban h e a l t h c a r e i n s t i t u t i o n s . Review o f t h e l i t e r a t u r e and t h e co n ce p tu a l framework s e t t h e pa ra me te rs o f t h e s t u d y . The fo c us o f th e s t u d y was on r u r a l p a t i e n t s ' movement from w e l l n e s s t o i l l n e s s , i n c o r p o r a t i n g ' t h e framework o f p a t i e n t con cerns and s i c k r o l e b e h a v i o r . CHAPTER 3 METHODOLOGY The purpose o f t h e s tu d y was t o d e t e r m i n e p a t i e n t r e a c t i o n s t o t r a n s f e r s from r u r a l t o urban h e a l t h c a r e i n s t i t u t i o n s . In t h i s c h a p t e r methodology o f t h e s t u d y i s p r e s e n t e d . ' Research Design The s tu dy was an e x p l o r a t o r y d e s c r i p t i v e desi gn a d d r e s s in g t h e q u e s t i o n , "What a r e p a t i e n t r e a c t i o n s t o t r a n s f e r s from r u r a l t o urban h e a l t h c a r e i n s t i t u t i o n s ? " The st ud y u t i l i z e d a s t r u c t u r e d i n t e r v i e w developed by t h e i n v e s t i g a t o r . When l i t t l e i s known on a t o p i c , perso nal i n t e r v i e w s a r e powerful methods o f s e c u r i n g i n f o r m a t i o n ( P o l i t . a n d Hungler, 1978:203). I n t e r v i e w d a ta p ro vid e depth and q u a l i t y w it h o p p o r t u n i t i e s f o r v e r i f i c a t i o n ( K e r l i n g e r , 1973). S in c e i n t e r v i e w s c h e d u le s ■r e g a r d i n g p a t i e n t r e a c t i o n s t o r u r a l - t o - u r b a n t r a n s f e r s were n o t a v a i l a b l e , one was developed a d d r e s s i n g p a t i e n t con cerns and s i c k r o l e b e h a v io r e x p e r ie n c e d by p a t i e n t s w hil e in r u r a l h e a l t h c a r e i n s t i t u t i o n s , duri ng t h e t r a n s f e r p r o c e s s , and upon e n t r y i n t o urban h e a l t h c a r e i n s t i t u t i o n s . S e t t i n g ' a n d Sample Montana i s a r u r a l s t a t e with only two urban a r e a s . 23 B i l l i n g s and G reat F a l l s , p ro v id i n g s p e c i a l i z e d medical c a r e f o r Ea st er n and So ut h - C e n tr a l Montana. : Because o f th e i n v e s t i g a t o r ' s i n t e r e s t , B i l l i n g s Deaconess H osp i ta l and S t . V i n c e n t ' s H o s p i t a l , l o c a t e d in B i l l i n g s , were s e l e c t e d to. r e p r e s e n t th e urban h e a l t h care i n s t i t u t i o n s . Both h o s p i t a l s r e c e i v e a l a r g e number of p a t i e n t s from s u rr o u n d in g r u r a l c o u n t i e s (Research S e r v i c e s West, 1979). These h o s p i t a l s house s p e c i a l i z e d u n i t s and e q u i p ­ ment wit h medical and n u r s i n g s p e c i a l i s t s from m a n y . f i e l d s s e r v i n g them. The t a r g e t p o p u l a t i o n were p a t i e n t s who had been t r a n s f e r r e d from r u r a l h o s p i t a l s t o t h e s e B i l l i n g s ' h o s p i t a l s . Other c r i t e r i a t h a t had t o be met f o r p a t i e n t s t o be c o n s i d e r e d f o r p a r t i c i ­ p a t i o n in th e s tu d y were in r e l a t i o n t o age a n d . p l a c e o f r e s i ­ dence. P a r t i c i p a n t s s e l e c t e d f o r t h e s tu d y were between th e ages o f 18 and 80,. a l e r t , o r i e n t e d , c o h e r e n t , and r e p r e s e n t i n g a v a r i e t y of medical d i a g n o s e s . ' P a t i e n t s who were s e l e c t e d were from a r u r a l a r e a with a p o p u l a t i o n o f 2,500 or l e s s w ith a f u n c t i o n i n g h o s p i t a l . P a t i e n t s of e i t h e r s e x , and any r a c e , r e l i g i o n , o c c u p a t i o n , ' o r e d u c a t i o n a l le v el were e l i g i b l e f o r p a r t i c i p a t i o n in t h e s t u d y . ' D ata'C o ! I e c tio n ' Instrument A s t r u c t u r e d i n t e r v i e w was developed by th e i n v e s t i g a t o r to e l i c i t p a tie n t re a ctio n s to ru ra l-to -u rb a n . t r a n s f e r s . ■24 Q ue sti ons r e l a t e d t o t h e r u r a l h e a l t h c a r e i n s t i t u t i o n , th e t r a n s f e r p r o c e s s , and t h e urban h e a l t h c a r e i n s t i t u t i o n . Que stions a d d r e s s i n g demographic and background d a t a , as well as r e a c t i o n s t o r u r a l - t p - u r b a n t r a n s f e r s in r e l a t i o n to p a t i e n t concerns and s i c k r o l e b e h a v i o r were asked. . Demographic questions e l i c i t e d information regarding age, sex, m arital s t a t u s , o c c u p a t i o n , town of r e s i d e n c e , y e a r s a t t h a t r e s i d e n c e , d i a g n o s i s , and r u r a l and urban a dm is si on d a t e s . Que stion s s p e c i f i c a l l y a d d r e s s i n g t h e r u r a l h e a l t h c a r e i n s t i t u t i o n , th e t r a n s f e r p r o c e s s , and t h e urban h e a l t h c a r e i n s t i t u t i o n made up t h e major p a r t o f t h e i n t e r v i e w . Appendix A c o n t a i n s t h e data c o l l e c t i o n instrument. V a l i d i t y of t h e d a t a c o l l e c t i o n i n s t r u m e n t was a s s e s s e d through p i l o t i n t e r v i e w s . The pre sum ption was held t h a t each p a r t i c i p a n t h a d . f a c e v a l i d i t y as an in f o r m a n t (Brink and Wood, 1978:123) and t h a t s e l f - r e p o r t would be t r u t h f u l . To a s s e s s t h e i n s t r u m e n t ' s r e l i a b i l i t y , two q u e s t i o n s a d d r e s s i n g t h e same concept were p r e s e n t e d d i f f e r e n t l y by rewording t h e q u e s t i o n s . With e v e r y i n t e r v i e w , th e same q u e s t i o n s were asked in th e same o r d e r in o r d e r to reduce i n v e s t i g a t o r b i a s and : " i h s u r e . - c o m p a r a b i l i t y of r e s p o n se s" (Pol i t and ' liu ngle r, 1978:326). Each p a r t i c i p a n t was giv en .25 t h e o p p o r t u n i t y to g i v e ' a d d i t i o n a l ,i n f o r m a t i o n a t th e end o f . the interview . Data C o l l e c t i o n Method Data f o r t h e s tu d y were c o l l e c t e d ;between Janu ary 9 , '1981 and Febru ary 4 , 1981. Using th e c r i t e r i a o u t l i n e d f o r t h e s t u d y , HO p a t i e n t s were s c r e e n e d . were i n t e r v i e w e d . O n l y '14 . p a t i e n t s ' met th e c r i t e r i a and The remainder s c r e e n e d were e i t h e r too i l l t o p a r t i c i p a t e , were in B i l l i n g s by s e l f - r e f e r r a l o r p h y s i c i a n r e f e r r a l , o r did not meet t h e c r i t e r i a o f age. I n t e r v i e w s were he ld in t h e p a t i e n t ' s h o s p i t a l room and r e q u i r e d from 3 0 . t o 60 minutes f o r c o m p l e t i o n , with an aver age time o f 30 m in u te s . I n t e r v i e w s were h e l d '12 t o 72 hours a f t e r t h e p a t i e n t ' s ad mission to t h e urban h e a l t h c a r e i n s t i t u t i o n . Verbatim r e c o r d i n g of t h e d a t a was done a t th e time of th e i n t e r v i e w by t h e i n v e s t i g a t o r . P i l o t Study A p i l o t s tu d y with a sample o f f o u r p a t i e n t s was f i r s t conducted t o a s s e s s t h e adequacy o f t h e i n t e r v i e w and t o i d e n t i f y I , problems t h a t may be en cou nte red or a r e a s of i n q u i r y which may have been o ve rl oo ke d. As a r e s u l t o f t h i s p i l o t s t u d y , a d d i ­ t i o n a l q u e s t i o n s were added r e g a r d i n g o c c u p a t i o n , m a r i t a l s t a t u s , and how p a t i e n t s planned t o r e t u r n home. P atien t's 26 o c cu pa tio n and m a r i t a l s t a t u s were d i s c u s s e d by p a r t i c i p a n t s o f t h e p i l o t s tu d y and i n d i c a t e d a n . i n f l u e n c e on th e p a t i e n t s ' r e a c t i o n s to t r a n s f e r s . The q u e s t i o n a d d re ss in g , th e r e t u r n - t r i p home was added as t h e i n v e s t i g a t o r b e l i e v e d t h i s may be an a re a of concern f o r t r a n s f e r r e d p a t i e n t s . ' R e s u l t s o f t h i s p i l o t stu dy with t h e s e f o u r p a t i e n t s a r e in c l u d e d in t h e o v e r a l l f i n d i n g s of t h e s t u d y because p a t i e n t s s p o n t a n e o u s l y provided t h e i n ­ v e s t i g a t o r w it h t h i s i n f o r m a t i o n . Human R ig hts - . P r o v i s i o n s were made in t h e s t u d y f o r p r o t e c t i o n o f th e p a r t i c i p a n t s ' human r i g h t s . The human r i g h t s committees o f Montana S t a t e U n i v e r s i t y School o f N u rs in g , B i l l i n g s Extended Campus, B i l l i n g s Deaconess H o s p i t a l , and S t . V i n c e n t ' s Hosp it al reviewed t h e s tu d y and g r a n t e d approval f o r conducting i t . Copies o f t h e l e t t e r s o f approval a r e found in Appendix B. Signed c o n se n t f o r p a r t i c i p a t i o n in t h e s t u d y was r e c e i v e d from each participant. A copy of t h e c o n s e n t form i s in Appendix C. Each p a t i e n t ' s c a p a b i l i t y t o p a r t i c i p a t e in t h e s t u d y was a s s e s s e d by t h e h o s p i t a l u n i t ' s head nurs e and t h e i n v e s t i g a t o r . Each p a r t i c i p a n t r e c e i v e d v e rb a l and w r i t t e n e x p l a n a t i o n of t h e s tu d y and a s s u r a n c e o f anonymity and c o n f i d e n t i a l i t y . rf ■27 Data Anal ysi s Upon completion o f t h e d a t a c o l l e c t i o n , da ta were summarized, c a t e g o r i z e d and t a b u l a t e d . P e r t i n e n t demographic d a ta were c r o s s - t a b u l a t e d with t h e g en eral f i n d i n g s . Data a r e p r e s e n t e d in t a b l e s us in g numerical f r e q u e n c i e s '. a n d in n a r r a t i v e form in t h e f o ll o w i n g c h a p t e r . CHAPTER.' 4 FINDINGS AND DISCUSSION The s tu d y was an e x p l o r a t o r y d e s c r i p t i v e survey of 14 p a t i e n t s 1 r e a c t i o n s to t r a n s f e r s from r u r a l t o urban h e a l t h c a r e i n s t i t u t i o n s r e l a t i v e t o co nce rn s and s i c k r o l e b e h a v i o r . Data was g a t h e r e d by an i n t e r v i e w de vel oped by th e i n v e s t i g a t o r . The r e s u l t s were an aly ze d with t h e f i n d i n g s and d i s c u s s i o n p r e s e n t e d in t h i s c h a p t e r . Screen ing Data One hundred and t e n p e r s o n s w it h r u r a l a d d re ss e s h o s p i t a l ­ iz ed in two B i l l i n g s h o s p i t a l s were i d e n t i f i e d by th e i n v e s t i g a t o r . Of t h e s e 110, only 14 had been t r a n s f e r r e d from r u r a l h o s p i t a l s . The g r e a t m a j o r i t y (n=85) were s e l f - r e f e r r e d or p h y s i c i a n r e f e r r e d w it h s u b s e q u e n t h o s p i t a l ad m is si o n f o r d i a g n o s t i c p r o c e d u r e s , t e s t s , and s u r g e r y . The r e m a in de r ( n = l l ) were e i t h e r too i l l t o p a r t i c i p a t e o r did n o t meet t h e age c r i t e r i o n . Demographic Data The d a t a r e p o r t e d were patients. c o l l e c t e d from t h e s e 14 t r a n s f e r r e d These p a r t i c i p a n t s in c l u d e d a r e p r e s e n t a t i o n of males (n=8) and fema les (n=6), who were e i t h e r employed (n=7) o r r e t i r e d ( n = 7 ) . All were a l e r t , o r i e n t e d , and co- 29 . h e r e n t . . The m a j o r i t y ( n = l l ) were' '43 y e a r s of age or o l d e r . Six p a r t i c i p a n t s l i v e d 200 or more ;miTes from B i l l i n g s ; th e remaining e i g h t l i v e d from '53' t o . TOOTmiTes from B i l l i n g s . The m a j o r i t y (n=10) were m a r r i e d . ' . E i g h t p a r t i c i p a n t s had l i v e d a t t h e i r p r e s e n t r u r a l r e s i d e n c e 32 :years or more; th e remaining s i x had m a in ta in e d t h e i r p r e s e n t r u r a l r e s i d e n c y f o r seven y e a r s or l e s s . P a r t i c i p a n t s had dia gno ses o f e i t h e r s e r i o u s i l l n e s s ( n=9) o r l e s s s e r i o u s i l l n e s s ■(n=5)..:. D e te r m in a t io n of s e r i o u s and l e s s s e r i o u s d ia gno se s was based upon r e a s o n s f o r t r a n s f e r and l e n g t h of time b e f o r e t r a n s f e r from t h e r u r a l h o s p i t a l . For example, t h e p a r t i c i p a n t who s u f f e r e d a head i n j u r y and m u l t i ­ pl e f r a c t u r e s was d e f i n e d as having a s e r i o u s d i a g n o s i s . Rural - t o - u r b a n t r a n s f e r was i n s t i t u t e d f o r t h i s p a t i e n t immediately a f t e r s t a b i l i z a t i o n due to th e need f o r t h e s p e c i a l i z e d c a r e o f a n e u r o l o g i s t , o r t h o p e d i c su rg e o n , and i n t e n s i v e c a r e m o n it o r in g . Another p a r t i c i p a n t who had oneside d p a r e s t h e s i a was d e f i n e d as having a l e s s s e r i o u s d i a g n o s i s . This p a t i e n t ' s t r a n s f e r took p l a c e a f t e r se v e n .d a y s o f . r u r a l h o s p i t a l i z a t i o n . The d i a g n o s t i c proc ed ures and s o p h i s t i c a t e d t e s t i n g n e c e s s a r y to deter mine t h e cause o f t h e p a r e s t h e s i a was only a v a i l a b l e in urban h o s p i t a l s e t t i n g s . 30 The m a j o r i t y of p a r t i c i p a n t s ' ( n'=9)■ had s p e n t l e s s tha n two days in th e r u r a l h o s p i t a l b e f o r e t r a n s f e r ; s p e n t f i v e o r l e s s days in t h e urban h o s p i t a l b e f o r e being i n t e r v i e w e d ; and had seven or more t o t a l s i c k days, .''Teble 3 p r e s e n t s t h e s p e c i f i c demographic d a ta on a l l '14 p a r t i c i p a n t s . . ■ Background,Data Background d a t a were g a t h e r e d i n r e l a t i o n to th e r u r a l h e a l t h c a r e i n s t i t u t i o n and th e t r a n s f e r p ro c e s s t o f a c i l i t a t e p a r t i c i p a n t - i n v e s t i g a t o r r a p p o r t and g a i n background i n f o r m a t i o n r e g a r d i n g th e b a s i s f o r t h e r u r a l - t o - u r b a n t r a n s f e r as p e r c e iv e d by t h e p a r t i c i p a n t s . Appendix A c o n t a i n s t h e for mat o f th e interview . Rural Health Care I n s t i t u t i o n Background d a t a r e g a r d i n g problems t h a t brought p a r t i c i p a n t s to r u r a l h o s p i t a l s and means of g e t t i n g t h e r e were a d d r e s s e d . The g r e a t m a j o r i t y o f t h e p a r t i c i p a n t s (n=12) d e s c r i b e d t h e problem t h a t l e d t o r u r a l h o s p i t a l adm is sio n with symptomology, f o r example, "I was coughing up a l o t o f b lo o d ." Others used common d i a g n o s t i c t e r m s , such as "I had a h e a r t a t t a c k . " P a r t i c i p a n t s were bro ug ht t o r u r a l h o s p i t a l s e i t h e r by a c a r d r i v e n by t h e p a r t i c i p a n t ' s s p o u s e , a r e l a t i v e , or thems elve s (n-10) or by l o c a l ambulance ( n - 4 ) . 31 Table 3. Demographic Data o f P a t i e n t s T r a n s f e r r e d from Rural to ___________ Urban Health Care I n s t i t u t i o n s (N=14).__________________ Sex Age M a r it a l s t a t u s Working s t a t u s Diagnosis Ma 19 Sb Employed S Ic F W 76 Reti fed LSI M S Employed 47 SI M M 72 Reti red SI M M 32 Employed SI F M Employed 61 SI F M 62 Reti red SI F W Ret i red SI 71 F M 65 Reti red LSI M M 43 Employed LSI M M Employed LSI 35 M M Employed SI 55 F 81 W Reti red LSI M M 66 Reti red SI aM=male ; F=female; 0S=S ingle ; W=widowed; M=married; cS I = s e r io u s i l l n e s s , LSI=I ess s e r i o u s i l l n e s s . Rural r e s i d e n c y Miles t r a n s f e r r e d Rural S t a y d Urban Sta y0Sick days0 8 Days 0 Days 8 Days 60 Miles 7 Years 4 81 0 4 Si 21 93 0 21 43 81 0 2 2 72 8 I 32 340 7 17 10 53 7 40 2 I I 100 4 2 I I 308 40 8 15 209 7 45 3 2 I 306 43 15 5 210 10 3 7 5 2 283 Ii 9 2 81 7 3i 10 9 I 60 65 5.5 Days 8 .8 Days 162.4 Miles 3 . 3 Days Means-28.8 Years dRural Stay=Uays a t r u r a l h o s p i t a l b e f o r e t r a n s f e r ; 0Urban stay= days a t urban h o s p i t a l b e f o r e i n t e r v i e w ; c Sick days=tota1 s i c k days. 32 T h e ' T r a n s f e r Pr oce ss Several r e a s o n s f o r t h e t r a n s f e r s , as pe rc ei ve d by th e p a r t i c i p a n t s ' , were r e p o r t e d . The' need t o be under t h e c a r e o f . a s p e c i a l i s t was r e p o r t e d t h e m o s t . f r e q u e n t l y ( n = 5 ) . For example, one p a r t i c i p a n t s t a t e d , :" I- n e e d ed to g e t to my h e a r t doctor." Other r e a s o n s f o r t h e t r a n s f e r s inc lu de d t h e need t o g e t a b e t t e r equipped f a c i l i t y ( n = 4 ) , t h e need f o r t h e performance o f s p e c i a l t e s t s in o r d e r t o det ermi ne " th e r o o t o f t h e problem" ( n = 3 ) , and t h e p e r c e p t i o n t h a t th e p r e ­ c a r i o u s n e s s o f t h e p a r t i c i p a n t ' s p h y s ic a l c o n d i t i o n n e c e s s i t a t e d the t r a n s f e r (n=2). For example, in r e s p o n s e t o t h e q u e s t i o n , "Why were you t r a n s f e r r e d ? " one p a r t i c i p a n t re s ponded, "They were worr ie d a bo ut hemorrhaging on t h e b r a i n . " Various modes of t r a n s p o r t a t i o n were used in th e t r a n s f e r p r o c e s s , with c om bin at ion s o f d i f f e r e n t modes used in some transfers. Local r u r a l ambulance s e r v i c e s were r e p o r t e d as being used t h e most in r u r a l - t o - u r b a n t r a n s f e r s ' ( n = 5 ). Other modes u t i l i z e d i n c l u d e d l o c a l a i r ambulance s e r v i c e s ( n=3) , c a r s (n=2), and B i l l i n g s ' h e l i c o p t e r s and a i r ambulances (n=2). Combinations of d i f f e r e n t modes in c lu d e d a B i l l i n g s a i r ambulance w it h a h e l i c o p t e r . a n d a l o c a l ambulance w it h a B i l l i n g s Advanced C a r d i a c - L i f e Su pport (A.C iL. S. ) ambulance. ' 33. which were u t i l i z e d a f t e r one p a r t i c i p a n t re f u s e d to g e t in a Billings h elico p ter. ' Patient' ReactionsVto',Ruhal TtdrUrban Transfers • P a t i e n t r e a c t i o n s t o t r a n s f e r s from r u r a l t o urban h o s p i t a l s a r e p r e s e n t e d in r e l a t i o n t o t h e :r u r a l h e a l t h c a r e i n s t i t u t i o n , ■the t r a n s f e r p r o c e s s , and t h e urban h e a l t h c a r e i n s t i t u t i o n . P a r t i c i p a n t s ' r e a c t i o n s t o each o f t h e s e a r e p r e s e n t e d in t h e fo ll o w i n g pages. P a t i e n t R ea c tio ns R e l a t i v e ' , t o ' t h e . , R u r a l Health Care I n s t i t u t i o n The r u r a l h e a l t h c a r e . i n s t i t u t i o n was a d d re ss e d as one area o f i n f l u e n c e on p a t i e n t r e a c t i o n s t o r u r a l - t o - u r b a n t r a n s f e r s . Questions were asked t o e l i c i t r e a c t i o n s in r e l a t i o n t o p a t i e n t concerns and s i c k r o l e b e h a v i o r . The m a j o r i t y of t h e p a r t i c i p a n t s (n=12) remembered t h e i r e n t r y to t h e r u r a l h e a l t h c a r e i n s t i t u t i o n and c l e a r l y r e c a l l e d t h e .events t h a t f o l l o w e d . Responses i n c lu d e d th e f o l l o w i n g , "They put me on t h e emergency room t a b l e , s t a r t e d an I . V . , gave me Oxygen, and wheeled me in f o r X - r a y s ." One p a r t i c i p a n t had vague remembrance o f t h e c i r c u m s t a n c e s su rro un din g t h e e n t r a n c e to t h e rur al, h o s p i t a l s . N o doubt t h i s was due t o t h e s ev e re myocardial . . i n f a r c t i o n t h e p a r t i c i p a n t was e x p e r i e n c i n g . Another could not remember a n yth in g a bout t h e r u r a l h o s p it a l, . 34 even though "I guess I was t e l l i n g pe ople my name, m y . p l l e r g i e s , and who to cal I ." Twelve p a r t i c i p a n t s knew a t l e a s t one p e rs o n , nurs e or p h y s i c i a n , who c a r e d f o r them i n i t i a l l y in t h e r u r a l h o s p i t a l , with 9 i n d i c a t i n g th e y knew "everyone" ( n u r s e s , p h y s i c i a n s , a i d e s , and ambulances a t t e n d a n t s ) . As one p a r t i c i p a n t s t a t e d , "In a small town, everyone knows ev erybody ." Most p a r t i c i p a n t s (n=10). r e p o r t e d n o t having any concerns entering the ru ral h o s p i t a l . O the rs r e p o r t e d concerns in r e l a t i o n t o p a i n , d i a g n o s i s , where t o go f o r s p e c i a l i z e d c a r e , and n e g a t i v e f e e l i n g s toward t h e r u r a l h o s p i t a l due t o problems en cou nte red with pre vi ous a d m i s s i o n s . from t h e p a i n . " One p a r t i c i p a n t s a i d , "I j u s t wanted r e l i e f Another a s k e d , "What's t h e m a t t e r with me?" While a n o t h e r s t a t e d . , "I d i d n ' t know Where t o go ( f o r s p e c i a l i z e d care)." These co nce rns were handled by n u r s e s , r e l a t i v e s , or were l e f t , unanswered. Summary On e n t e r i n g t h e r u r a l h o s p i t a l , most p a r t i c i p a n t s r e p o r t e d not having any c o n c e r n s . They remembered t h e i r e n t r y to th e r u r a l h o s p i t a l and were a b l e t o d e s c r i b e t h e events t h a t fo ll ow e d. The p a r t i c i p a n t s , in g e n e r a l , knew a t l e a s t one person who c a r e d f o r them i n i t i a l l y in t h e r u r a l h o s p i t a l . 35 . P a t i e n t ,.Reactio n s ' Rel a t i Ve t o : t h e ^ T ra n sf e r Process The t r a n s f e r p ro c e s s was a d d r e s s e d :as a n o t h e r a r e a o f i n f l u e n c e on p a t i e n t r e a c t i o n s to r u r a l - t o - u r b a n t r a n s f e r s . Again, q u e s t i o n s were :asked t o r . e l i c i t ' r e a c t i o n s in r e l a t i o n , t o p a t i e n t con cerns a n d , s i c k r o l e b e h a v i o r . Various r e a c t i o n s were ;el i c i t e d .from t h e p a r t i c i p a n t s when t h e y were t o l d t h a t th e y were .being " t r a n s f e r r e d . Half. . • o f the p a r t i c i p a n t s b e l i e v e d t h e . t r a n s f e r was n e c e s s a ry and were w i l l i n g t o go. As one p a r t i c i p a n t , s t a t e d , "I wanted t o . f i g u r e o u t what was wrong::with me." The o t h e r h a l f had mixed r e a c t i o n s . " S e v e ra l d i d n ' t want t o be t r a n s f e r r e d , but wanted e i t h e r t o s t a y in t h e r u r a l h o s p i t a l o r go to a n o t h e r urban h o s p i t a l o t h e r th a n t h o s e . i n B i l l i n g s . One p a r t i c i p a n t wanted t o be t r a n s f e r r e d t o . G r e a t . F g l l s as fa m ily members l i v e d there. Qrily two p a r t i c i p a n t s were .-frightened when t o l d a bout being t r a n s f e r r e d . me. One s t a t e d , " I t s c a r e d t h e h e ll ou t o f . I j u s t knew I was going t o kick t h e b u c k e t ; " s a i d , "I d i d n ' t know i t was t h a t s e r i o u s . ". Another Another p a r t i c i ­ pan t r e p o r t e d n o t being t o l d :about t h e t r a n s f e r , bu t t h a t knowledge o f being t r a n s f e r r e d t o - B i l l i n g s ' w a s gained when "I heard the' ( a m b u l a n c e ) , s i r e n g o i n g . " P a t i e n t r e a c t i o n s to ' 36. being t o l d about t h e t r a n s f e r t o t h e urban h o s p i t a l a r e p r e s e n t e d in Table 4. Table 4. P a t i e n t R e a c ti o n s t o Being Told About th e R u r a l - t o ___________Urban T r a n s f e r . , ,_______ ._______ •_____________ , ______ Patient reactions .................... Seen as a n e c e s s a r y a c t i o n . Number of res ponse s 7 S t a t e d did no t want t o go 3 Were s u r p r i s e d / s c a r e d 2 Not t o l d / d i d n o t remember . . : . :______ 2_____________________ The m a j o r i t y o f p a r t i c i p a n t s ' (n=9) r e p o r t e d not having any concerns upon bei ng t o l d t h a t t h e t r a n s f e r was sc h e d u le d . Concerns r e p o r t e d were i n r e g a r d t o c o s t s o f t h e t r a n s f e r and s p e c i a l i z e d c a r e , the e s t i m a t e d l e n g t h o f time t h a t would be s p e n t in th e urban h o s p i t a l , and wh e th er s u r g e r y would be r e q u i r e d . One p a r t i ­ c i p a n t r e p o r t e d , "I t o l d them I wanted t o go t o Great F a l l s , b u t they d i d n ' t l i s t e n t o me." For t h e p a r t i c i p a n t who voiced them, p h y s i c i a n s d i s c u s s e d t h e co nce rns o f s u rg e ry and l e n g t h of stay. I t was r e p o r t e d t h a t no one d i s c u s s e d c o s t s o r t h e d e c i s i o n on where t o be t r a n s f e r r e d with t h e p a r t i c i p a n t s who voic ed t h e s e c o n c e r n s . . Being in v o lv e d in a t r a n s f e r p re v io u s t o t h i s p a r t i c u l a r one was r e p o r t e d b y :e i g h t p a r t i c i p a n t s . . Those who had not been 37 invol ve d in p re v io u s t r a n s f e r s did not v o ic e any concern r e ­ ga rdi ng t h a t i n e x p e r i e n c e . Nurses were i d e n t i f i e d by s i x ' p a r t i c i p a n t s as pe rsons responsible fo r t h e i r care before.being tra n s fe rre d . Physi­ c i a n s were seen as r e s p o n s i b l e f o r : f i v e o f th e t r a n s f e r s . hysband" and t h e p a r t i c i p a n t w e r e . a l s o i d e n t i f i e d . "My Persons p e rc ei v e d as r e s p o n s i b l e f o r p a t i e n t c a r e p r i o r to t r a n s f e r a r e p r e s e n t e d in Ta b le 5. ' Table 5. Person P e r c e i v e d . a s R e s p o n s ib le f o r P a t i e n t Care P r i o r ___________ t o T r a n s f e r . ______________________ _________________ C a r e - g i v e r i d e n t i f i e d ________________ Number of re s p o n se s Nurse 6 Physician 5 Spouse or o t h e r f a m i l y member 2 __________Did n o t remember________________________ I____________________ P r e p a r a t i o n f o r t r a n s f e r was seen by most p a r t i c i p a n t s in r e g a r d s to p h y s i c a l c a r e ( n=5) and s p e c i f i c t r e a t m e n t s (n=7). This p r e p a r a t i o n in c l u d e d a d m i n i s t r a t i o n of m e d ic at io n s and i n t r a ­ venous f l u i d s , e x p l a n a t i o n s , and g e t t i n g th e p a r t i c i p a n t s dre sse d appropriately fo r tr a n s fe r. Nurses were p e r c e iv e d as t h e ones doing p a t i e n t c a r e by f o u r o f t h e p a r t i c i p a n t s . Other i d e n t i f i e d as being in vol ve d in p a t i e n t p r e p a r a t i o n inc lud ed p h y s i c i a n s 38. ■ (n =3 ) , emergency medical t e c h n i c i a n s (E. M. T. ) ( n = 2 ) , fa m i l y members ( n=2) and t h e p a r t i c i p a n t . In d e s c r i b i n g t h e t r i p from th e r u r a l h o s p i t a l t o t h e urban h o s p i t a l , most p a r t i c i p a n t s ..responded by d e s c r i b i n g the, ph y s ic a l en vironment ( n - 1 2 ) . The t r i p was "smooth," o ve r "rough r o a d s , " and " l i k e a n y . o t h e r a i r p l a n e r i d e . " As mentioned p r e v i o u s l y , a l l m ode s' of t r a n s p o r t a t i o n , gro und, f i x e d - w i n g , and h e l i c o p t e r , w e r e . u t i l i z e d . Nurses and EJM.T.'s were i d e n t i f i e d . a s t h e main pe rsons r e s p o n s i b l e f o r p a t i e n t c a r e during th e t r a n s f e r (n= 8) . Other l i s t e d as r e s p o n s i b l e i n c lu d e d r e l a t i v e s and t h e p a r t i c i p a n t . In one c a s e , t h e c a r e was sh ared by a n u rs e and an E.M.T. Persons p e r c e i v e d as r e s p o n s i b l e f o r p a t i e n t c a r e d u ri n g th e t r a n s f e r a r e p r e s e n t e d in T a b l e '6. Table 6. Person P e r c e i v e d as Responsible f o r P a t i e n t Care During ' the Transfer. Care-giver id e n tif ie d Nurse ■ ■ Number of r e s p o n s e s 4 E.M.T. 4 Relative 3 Did n o t remember 2 Participant I -* 39 The g e n e r a l r e a c t i o n o f th e p a r t i c i p a n t s towards t h e t r a n s f e r p r o c e s s was p o s i t i v e : t h i n g was handled ve ry w e l l . " ab out t h e t r a n s f e r p r o c e s s . :As .one p a r t i c i p a n t s t a t e d , "Every­ E i g h t p a r t i c i p a n t s had no concerns Concerns r e p o r t e d were in re g a rd to who was d r i v i n g t h e ambulance,:' t h e a d d i t i o n a l c o s t o f t h e t r a n s f e r , t h e w e a t h e r c o n d i t i o n s , and "What1s happening t o me?" Summary Va rio us r e a c t i o n s t o being t o l d a bout t h e impending t r a n s f e r were r e p o r t e d w ith h a l f of the p a r t i c i p a n t s b e l i e v i n g t h e t r a n s f e r was n e c e s s a r y in o r d e r to g e t w e l l . The o t h e r h a l f r e p o r t e d not wanting t o be t r a n s f e r r e d , being s c a r e d , and not being t o l d . The m a j o r i t y o f t h e p a r t i c i p a n t s d id n o t have any a d d i t i o n a l co ncerns a f t e r being t o l d t h a t t h e t r a n s f e r was s c h e d u l e d . Most p a r t i c i p a n t s did n o t have any concerns r e g a r d i n g th e tra n s fe r process. Nurses were i d e n t i f i e d as major c a r e - g i v e r s p r i o r t o t h e t r a n s f e r and in p r e p a r a t i o n f o r t h e t r a n s f e r , wit h n u r s e s and E .M .T .' s s h a r in g p a t i e n t c a r e d urin g t h e t r a n s f e r . In g e n e r a l , r e a c t i o n t o t h e t r a n s f e r p ro c e s s was p o s i t i v e . P a t i e n t R e a c ti o n s R e l a t i v e t o t h e Urban Health Care I n s t i t u t i o n Urban h e a l t h c a r e i n s t i t u t i o n s were t h e t h i r d a r e a address ed in t h e s t u d y w it h q u e s t i o n s f o c u s in g on e l i c i t i n g r e a c t i o n s in r e l a t i o n t o p a t i e n t concerns and s i c k r o l e b e h a v i o r . Al I of • 40 the p a r t i c i p a n t s e n t e r e d t h e , u r b a n h e a l t h c a r e i n s t i t u t i o n .as " d i r e c t a d m i t s " b y p a s s i n g t h e emergency ward and being taken d i r e c t l y t o t h e pro pe r medical u n i t f o r a d m is si on. On a d ­ m is si on t o t h e medical u n i t , p a r t i c i p a n t s were o r i e n t e d by nurs es ( n = 7 ) , p h y s ic i an s ' (n=5), r e l a t i v e s ( n = l ) , o r not oriented a t a ll (n=2). Va rie d r e a c t i o n s t o admission to t h e urban h o s p i t a l were r e p o r t e d . Half of t h e p a r t i c i p a n t s were "happy t o be in a pl a ce where I can g e t help and g e t b e t t e r . " They e x p r e s s e d t h a t th e y were f i n a l l y g e t t i n g t o th e h o s p i t a l where th e y co uld c o n c e n t r a t e on g e t t i n g w e l l . Others had v a r i o u s r e s p o n s e s . Two p a r t i c i p a n t s were "so s i c k , i t d i d n ' t m a t t e r " where th e y were. Two o t h e r s were concerned a bout the mselves w it h one s t a t i n g , "AlI I was concerned a bout was me." Another responded w i t h , "I knew i t was a' s t r a n g e e nv ir o n m e n t. " P a tie n t reactions upon e n t e r i n g t h e urban h e a l t h c a r e i n s t i t u t i o n a r e p r e s e n t e d in Tabl e 7. Most p a r t i c i p a n t s (n=10) did not have any co nce rn s on e n t e r i n g t h e urban h o s p i t a l . Of t h e co ncerns e x p r e s s e d by o t h e r s , t h o s e of 3 p a r t i c i p a n t s were in rega rd to t h e i r ph y s ic a l c o n d i t i o n s and were a d d r e s s e d by t h e i r urban p h y s i c i a n s . For example, one p a r t i c i p a n t a sk e d , "What's going to happen to 1 1N 41 Table 7. P a t i e n t R eactions Upon E n t e r i n g t h e Urban He alth Care . . Institution. Reaction Happy t o be a t urban h o s p i t a l me?" Number o f res pons e s 7 Did not m a t t e r where th e y were 2 S elf-concern 2 P hys ic al environment s t r a n g e I P hys ic al e n v i ro n m e n t/ d id not m a t t e r I S u r p r i s e d t o be a t urban h o s p i t a l I Concerns e xpr ess ed by t h e p a r t i c i p a n t s on e n t e r i n g th e urban h o s p i t a l and who handled t h e s e co ncerns a r e p r e s e n t e d in Table 8 . ; Tabl e 8 . Concerns Expressed on E n t e r i n g Urban H o sp i ta l and Who . Handled Them. Concern s/ ha ndl ed by None Physical co n d itio n /p h y sic ian Phys ic al c o n d i t i o n / r e l a t i ve Number of re s p o n s e s 10 3 f .I The m a j o r i t y o f t h e p a r t i c i p a n t s (n=10) had n e v e r p r e v i o u s l y been p a t i e n t s in t h e urban h e a l t h c a r e i n s t i t u t i o n . None of t h e p a r t i c i p a n t s knew any of t h e peop le who cared f o r them in t h e urban h o s p i t a l . N e i t h e r o f t h e s e f a c t o r s e l i c i t e d any 42 concern from t h e p a r t i c i p a n t s . A f t e r t h e i r admission t o t h e urban h o s p i t a l , f i v e p a r t i c i ­ p a n ts were concerned a bout t h e i r p h y s ic a l . c o n d i t i o n a n d / o r diagnosis and what had to be done " t o remedy i t . " these concerns. Physicians a d d re ssed ' Other con cerns were e x p r e s s e d and a r e p re s e n te d i n Tabl e 9. Tabl e 9. Concerns Expressed A f t e r Admission t o t h e Urban ___________ Ho spital and Who Handled Them.______________■ ■■ Concern s/ ha ndl ed by________ Number of re s p o n s e s Phys ical c o n d i t i o n / p h y s i c i a n 5 None 4 Length of s t a y / p h y s i c i a n 2 Costs/nurse I Job and f a m i l y / n u r s e I Loneli ness/1 e f t unanswered I H al f of t h e p a r t i c i p a n t s had no f u r t h e r co nce rns t o sh are a t t h e end of t h e i n t e r v i e w . Concerns e x p re s s e d by t h e o t h e r h a l f in c l u d e d t h e s t a t e m e n t s o f "The ro a ds s u r e were r o u g h . " , " I t ' s to o bad I have t o come a l l t h i s way f o r t e s t s . " , and " I' m s u r e th a n k fu l I have i n s u r a n c e . ". Concerns e x p r e s s e d a t t h e end of th e i n t e r v i e w r e g a r d i n g t h e r u r a l - t o - u r b a n t r a n s f e r a r e p r e s e n t e d in Table 10. 43 Table 10. F u r t h e r Concerns Expressed Regarding t h e R u r a l - t p . . . .______ Urban . T r a n s f e r , ______________ . ________________ Concerns None .. .. Number of re s p o n se s' 7 Phys ical c o n d i t i o n 2 Road c o n d i t i o n s 2 D is ta nc e t o mediqal c a r e I Family s e p a r a t i o n . I D is ta nc e to medical c a r e / c d s t s ■' ' ' • ■I None o f t h e p a r t i c i p a n t s had any co nce rns r e g a r d i n g t h e i r r e t u r n t r i p home". T h i r t e e n p a r t i c i p a n t s ex pected to r e t u r n home by c a r d r iv e n by a f a m il y member. One ex pec te d t o r e t u r n home by a i r p l a n e . Summary On e n t e r i n g t h e urban h o s p i t a l , a l l p a r t i c i p a n t s were a d m i t t e d d i r e c t l y to a medical u n i t . The main r e a c t i o n t o t h e urban admission was a f e e l i n g t h a t now they could " g e t down t o t h e b u s i n e s s o f g e t t i n g w e l l . " They did not have ainy co nce rns on e n t e r i n g th e urban h o s p i t a l , even though most of them had never been p a t i e n t s t h e r e b e f o r e and none o f them knew any of t h e people who were c a r i n g f o r them. The most f r e q u e n t concern r e p o r t e d by th e p a r t i c i p a n t s 44 a f t e r ad mis sion to t h e urban h o s p i t a l was in r e g a r d s to t h e i r physical con d itio n . i t c ou ld be remedied. They wanted t o know what was wrong and how None o f t h e p a r t i c i p a n t s had any concerns r e g a r d i n g t h e i r r e t u r n - t r i p home. The p a r t i c i p a n t s i d e n t i f i e d n u r s e s as th e main peop le r e ­ s p o n s i b l e f o r t h e i r o r i e n t a t i o n t o t h e i r s u r r o u n d in g s and t o what was happening to them on a dmi ssi on t o t h e urban h o s p i t a l . P h y s i c i a n s were i d e n t i f i e d as t h e pe ople who handled t h e i r c o nce rn s r e g a r d i n g phy s ic a l c o n d i t i o n , d i a g n o s i s , and t r e a t ­ ment. Data R el ev a nt to Demographic Data .and General Findings The p e r t i n e n t f i n d i n g s in r e l a t i o n to t h e t a b u l a t i o n of demographic d a t a with g en eral f i n d i n g s of t h e s tu dy were in r e g a r d to d i s t a n c e t r a n s f e r r e d and d i a g n o s i s . Eig ht p a r t i ­ c i p a n t s were t r a n s f e r r e d l e s s than 100 m i l e s in o r d e r to a r r i v e a t t h e urban h o s p i t a l and were t r a n s p o r t e d mainly by l o c a l ground ambulance s e r v i c e s . Othe rs were t r a n s p o r t e d by c a r , h e l i c o p t e r , and t h e comb ina tio n of a l o c a l ambulance w it h a B i l l i n g s A.C.L..S. ambulance. Emergency medical t e c h n i c i a n s were r e p o r t e d as t h e pe rs on s r e s p o n s i b l e f o r c a r e of h a l f (n=7) o f t h e p a r t i c i p a n t s d uri ng t h e s e t r a n s f e r s . Others r e p o r t e d as being r e s p o n s i b l e f o r p a t i e n t c a r e ' 45 i n c lu d e d nurs es and f a m il y members. Six p a r t i c i p a n t s were t r a n s f e r r e d more than 200 m il e s in o r d e r to a r r i v e a t t h e urban h o s p i t a l and were t r a n s p o r t e d by both r u r a l and urban a i r a m b u la n c e ^ s e r v ic e , in f i v e o f t h e s ix transfers,. Nurses were i d e n t i f i e d .as t h e persons r e s p o n s i b l e f o r t h e c a r e o f h a l f of t h e p a r t i c i p a n t s during t h e s e l on g­ distance t r a n s f e r s . Of t h e : s i x who were t r a n s f e r r e d more than 200 m i l e s , t h r e e were t r a n s f e r r e d more th a n 300 m ile s by lo c al o r B i l l i n g s a i r ambulances and r e l a t i v e s were i d e n t i f i e d as t h e pe rsons r e s p o n s i b l e f o r p a t i e n t c a r e in two o f t h e t h r e e . transfers. P a r t i c i p a n t s who were d e f i n e d a s b e in g s e r i o u s l y i l l e x p re s s e d l e s s con cerns than t h o s e d e f i n e d as being l e s s seriously i l l . Less s e r i o u s l y i l l p a r t i c i p a n t s e x p re ss e d con­ c e r n s r e g a r d i n g c o s t s , l e n g t h of s t a y , t h e p o s s i b i l i t y of . s u r g e r y , l o n e l i n e s s , fa m il y s e p a r a t i o n , and d i s t a n c e t o medical c a r e . Many of t h e s e a r e t h e same concerns i d e n t i f i e d by V o l i c e r (1973; 1974) in her s t u d i e s o f s t r e s s f u l e v e n ts of hospitalization. S e r i o u s l y i l l p a r t i c i p a n t s d id not v o i c e concerns u n t i l a f t e r t h e e i g h t h day of urban h o s p i t a l i z a t i o n . From one to e i g h t days a f t e r t h e i r urban a d m i s s i o n , t h e i r main concern was 46 t h e i r ph ys ic a l c o n d i t i o n . . Then, a f t e r t h e e i g h t h day, concerns r e g a r d i n g f a m ily s e p a r a t i o n , ' c o s t s , l e n g t h of s t a y a t t h e urban h o s p i t a l , and d i s t a n c e to medical c a r e were e x p r e s s e d . ' Summary P e r t i n e n t f i n d i n g s . i n r e l a t i o n to t h e t a b u l a t i o n of demographic d a ta with g e ner al - f i n d i n g s of t h e study were in r e g a r d t o d i s t a n c e t r a n s f e r r e d and d i a g n o s i s . Differences in t h e modes of t r a n s p o r t a t i o n and medical personnel used du rin g t r a n s f e r were i d e n t i f i e d a c c o r d i n g to d i s t a n c e t r a n s ­ ferred . Less s e r i o u s l y i l l p a r t i c i p a n t s r e c a l l e d having con cerns s h o r t l y a f t e r urban a d m i s s i o n . ; " S i m i l a r concerns were voiced by s e r i o u s l y i l l p a r t i c i p a n t s a f t e r t h e e i g h t h day o f urban hospitalization. C hap te r Summary a n d - D is c u s s i o n The purpose o f t h e s tu d y was t o de te rm in e p a t i e n t r e a c t i o n s t o t r a n s f e r s - f r o m .r u r a l t o urban h e a l t h c a r e i n ­ stitutions. Data were p r e s e n t e d in f o u r s e c t i o n s : screening d a t a , demographic d a t a , background d a t a , and p a t i e n t r e a c t i o n s t o r u r a l - t o - u r b a n t r a n s f e r s in r e l a t i o n t o t h e r u r a l h e a l t h c a r e i n s t i t u t i o n , t h e t r a n s f e r p r o c e s s , and t h e urban h e a l t h care i n s t i t u t i o n . 47 One hundred and t e n p a t i e n t s were s cr ee ned f o r t h e s t u d y with only 14 meeting t h e s t u d y ' s c r i t e r i a . The m a j o r i t y of th o s e sc r e e n e d had come t o t h e urban h o s p i t a l by s e l f - r e f e r r a l or physician-referral. I n ' g e n e r a l , p a r t i c i p a n t s did not have any co ncerns in re g a r d t o t h e r u r a l h e a l t h c a r e i n s t i t u t i o n . These f i n d i n g s s u g g e s t t h a t t h i s la c k of concern was due to t h e p a r t i ­ c i p a n t s ' p e r c e p t i o n of t h e s e r i o u s or emergency n a t u r e o f . t h e i r problems. Because o f t h i s p e r c e p t i o n , p a r t i c i p a n t s saw a need t o go t o t h e r u r a l h o s p i t a l f o r c a r e . Lack of concerns a l s o may have been due to being c ar ed f o r by f a m i l i a r p e o p l e , t h u s , f a c i l i t a t i n g f u l f i l l m e n t o f t h e s i c k r o l e o b l i g a t i o n s of s ee ki ng he lp and c o o p e r a t i n g , as d e s c r i b e d by Parsons' (195 8) . The p a r t i c i p a n t s did no t have any c o n c e r n s , i n re g a r d to the t r a n s f e r process. I t i s r e a s o n a b l e to assume from t h e s e f i n d i n g s t h a t s i c k r o l e b e h a v io r was being de m onst rate d. Parti­ c i p a n t s were c o o p e r a t i n g with t h e p r e s c r i b e d medical regime, which i n c lu d e d being t r a n s f e r r e d , in o r d e r to g e t w e l l . Fa m il ie s o f t h e p a r t i c i p a n t s a l s o i n d i c a t e d s i c k r o l e b e h a v io r wit h t h e i r c o o p e r a t i o n w it h t h e d e c i s i o n f o r t r a n s f e r . Once t h e p a r t i c i p a n t s had adopted t h e s i c k rtiTe, i n t e r e s t s were r e s t r i c t e d and e g o c e n t r i c i s m de vel op e d. Pr eo c c up at io n w it h i l l n e s s reduced i n t e r e s t s t o s e l f and away from o u t s i d e 48 activities. T r a n s f e r s from r u r a l t o urban h o s p i t a l s were seen as n e c e s s a r y a c t i o n s in t h e p a r t i c i p a n t s ' p l i g h t t o g e t w e l l . Nurses were f r e q u e n t l y i d e n t i f i e d :as th e persons r e ­ s p o n s i b l e f o r p a t i e n t c a r e b e f o r e t h e t r a n s f e r and f o r p r e p a r in g p a t i e n t s f o r t r a n s f e r . ' P a t i e n t c a r e d uri ng most t r a n s f e r s was t h e r e s p o n s i b i l i t y o f n urs e s or emergency medical t e c h n i c i a n s . On ad mis sion t o t h e urban h o s p i t a l , a l l of the p a r t i c i ­ pa nts were taken d i r e c t l y ' t o a .m e d i c a l u n i t . The p a r t i c i p a n t s b e l i e v e d t h a t once the y w e r e . a t t h e urban h o s p i t a l t h e pro ce ss o f g e t t i n g well co uld b e g i n . T h e i r main conce rn was t h e i r ph y s ic a l c o n d i t i o n or d i a g n o s i s and t r e a t m e n t . None were concerned a bout t h e i r r e t u r n t r i p home. • These f i n d i n g s i n d i c a t e c o n t i n u a t i o n o f s i c k r o l e b e h a v io r i n t o t h e urban h e a l t h c a r e i n s t i t u t i o n . Regression c o n ti n u e d and t h e h y p o c h o n d ri a s is Wu (1973) d e s c r i b e d became e v i d e n t in th e e g o c e n t r i c i t y e x p re ss e d by t h e p a r t i c i p a n t s . Most energy was c o n c e n t r a t e d on i l l n e s s and i t s remedy. Lack o f concern e x p re ss e d on adm is sio n to th e urban h o s p i t a l may have been due t o t h e p a r t i c i p a n t s ' : b e l i e f t h a t th e y were in competent hands.. Al s o , t h e p a r t i c i p a n t s ' pre vio us e x p e r ie n c e with h o s p i t a l i z a t i o n . m a y have made s u rr o u n d in g s and people l e s s s t r a n g e and more p r e d i c t a b l e . For t h o s e who had never been h o s p i t a l i z e d p r e v i o u s l y , e xper ie nc e drawn from ... v 49 h o s p i t a l v i s i t s , t e l e v i s i o n programs, o r movies may have added to t h e i r p e r c e p t i o n s (.Wu, 1973').. Nurses were i d e n t i f i e d as t h e p e r s o n s r e s p o n s i b l e f o r ■ o r i e n t i n g p a r t i c i p a n t s d uri ng t h e i r a d m is s io n . Physicians were r e c ogn iz e d as t h e :person who hand led t h e i r concern r e g a r d i n g d i a g n o s i s and t r e a t m e n t . D i f f e r e n c e s in modes o f . t r a n s p o r t a t i o n and who gave p a t i e n t c a r e d uri ng t r a n s f e r were note d in r e l a t i o n t o d i s ­ ta n c e s t r a n s f e r r e d . O ve rall , local: s e r v i c e s were u t i l i z e d ' in most t r a n s f e r s with n u r s e s and E.M JT .' s in a t t e n d a n c e o f the p a tie n t. Concerns r e p o r t e d were vo ic ed by l e s s s e r i o u s l y i l l participants. S e r i o u s l y i l l p a r t i c i p a n t s did not vo ic e concerns u n t i l a f t e r t h e e i g h t h day o f urban h o s p i t a l i z a t i o n , and they then had many of th e. sam e c o n c e rn s as voiced by t h e less seriously i l l . These f i n d i n g s s u p p o r t Wu's (1973) r e p o r t t h a t as i l l n e s s becomes l e s s s e v e r e and l e s s demanding, p a t i e n t s g r a d u a l l y resume a d u l t r e s p o n s i b i l i t i e s and t h e i r scope of i n t e r e s t br oa de ns . More energy i s a v a i l a b l e f o r o u t s i d e th ou g h ts and a c t i v i t i e s , which could be i n t e r p r e t e d as concerns f o r c o s t s , l e n g t h o f , s t a y , and t h e . o t h e r c o n c e rn s r e p o r t e d by t h e p a r t i c i p a n t s CHAPTER 5 CONCLUSIONS The purpose o f t h e s tu d y was t o de te r m in e p a t i e n t r e a c t i o n s t o t r a n s f e r s from r u r a l to urban h e a l t h c a r e i n s t i t u t i o n s . Con­ c l u s i o n s t h a t were d e r i v e d from t h e s t u d y a r e p r e s e n t e d in t h i s c h a p t e r along w it h n u rs in g i m p l i c a t i o n s , recommendations f o r f u r t h e r s t u d y , and l i m i t a t i o n s o f t h e s t u d y . Conclusions Montana i s a r u r a l s t a t e . S p e c i a l i z e d medical c a r e e a s t of th e Rocky Mountains is l o c a t e d i n two c i t i e s . Of t h e HO p a t i e n t s s c r e e n e d f o r t h i s s t u d y , t h e g r e a t m a j o r i t y came t o urban h o s p i t a l s by s e l f - r e f e r r a l or p h y s ician -referral. A small number (N=14)' came on a more emergency b a s i s , t r a n s ­ f e r r e d d i r e c t l y from r u r a l h o s p i t a l s t o urban c e n t e r s because o f t h e i r need f o r immediate or s p e c i a l i z e d c a r e . The l a r g e number of r e f e r r a l s may i n d i c a t e an a d a p t a t i o n t o Montana's unique h e a l t h c a r e system. In t h e s t u d y , p a t i e n t s t r a n s f e r r e d from r u r a l , h o s p i t a l s to B i l l i n g s ' h o s p i t a l s de mo nst rat ed s i c k r o l e b e ha vio r as a r e a c t i o n t o be ing t r a n s f e r r e d . They demonstrated c o o p e r a ­ t i o n with h e a l t h c a r e p r o f e s s i o n a l s ^ withdrawal from a d u l t 51 r e s p o n s i b i l i t i e s , and e g o c e n t r i c i s m . Sick r o l e b e h a v i o r began wit h e n t r y to t h e r u r a l h o s p i t a l where medical he lp was f i r s t sought. I t c o n ti n u e d on through t h e t r a n s f e r pro c e ss and i n t o t h e urban h e a l t h c a r e i n s t i t u t i o n s . Cooperation with p r o f e s ­ s i o n a l s , an a s p e c t o f s i c k r o l e b e h a v i o r , inc lu de d a c c e p ta n c e o f transfer. Withdrawal from a d u l t r e s p o n s i b i l i t i e s was i n d i c a t e d when no concerns were vo ic ed in r e g a r d to t h e r u r a l h e a l t h c a r e i n s t i t u t i o n and t r a n s f e r p r o c e s s . Upon e n t e r i n g t h e urban h o s p i t a l , p a t i e n t e g o c e n t r i c i s m was de m onst rate d. were r e s t r i c t e d t o d i a g n o s i s and t r e a t m e n t . Interests During t h e e n t i r e pro c e ss o f t r a n s f e r , p a t i e n t s depended on nurses and o t h e r s f o r c a r e and e x p l a n a t i o n s . Very l i t t l e concern was e xpre ss ed regarding the p a r t i c i p a n t s ' fa m ilie s . Findi ngs from t h e s tu d y s u p p o r t P a rs o n s ' (1958) t h e o r y of s i c k r o l e b e h a v i o r . These r u r a l p a t i e n t s demo nst rat ed s i c k r o l e b e h a v i o r b e gin ni ng with t h e e n t r y i n t o a r u r a l h o s p i t a l , d uri ng t h e t r a n s f e r p r o c e s s , and c o n t i n u i n g i n t o t h e e a r l y days o f urban h o s p i t a l i z a t i o n . After th is p eriod, t h e r u r a l p a t i e n t began t o move o u t o f t h e s i c k r o l e , The p a t i e n t s in t h e s t u d y were in agreement wi th S m i th 's (1976) f i n d i n g t h a t t r a n s f e r between h e a l t h c a r e s e t t i n g s i s n o t p e rc e iv e d as a s t r e s s f u l e v e n t . 52 When i l l n e s s became l e s s demanding o r with l e s s s e r i o u s i l l n e s s , t h e s e r u r a l p a t i e n t s tended t o de m onst rate l e s s sick ro le behavior. Adu lt r e s p o n s i b i l i t i e s were resumed and con cerns were e x p r e s s e d . At t h i s p o i n t t h e r u r a l p a t i e n t s begin to e x p r e s s c oncer ns r e l a t e d t o t h e i r i l l n e s s and associated fa c to rs . Concerns r e g a r d i n g c o s t s , l e n g t h o f s t a y , d i s t a n c e t o medical c a r e , f a m i l y s e p a r a t i o n , th e p o s s i b i l i t y of s u r g e r y , and l o n e l i n e s s were e xpre ss ed by t h e l e s s s e r i o u s l y ill patients. A f t e r t h e e i g h t h day of urban h o s p i t a l i z a t i o n , the s e r io u s ly i l l cerns. p a t i e n t s v e r b a l i z e d many o f t h e same con­ S e v e ra l o f t h e s e c o n c e r n s , c o s t s , d i s t a n c e , f a m il y s e p a r a t i o n , and s u r g e r y , have a l s o been^i d e n t i f i e d by V o l i c e r (1973;1974) i n s t u d i e s o f s t r e s s f u l e v en ts a s s o c i a t e d w it h h o s p i t a l i z a t i o n with p a t i e n t s in an E a s te r n h e a l t h c a r e s e t t i n g . Wu1s (1973) t h e o r y o f p a t i e n t n e e d s , o p e r a t i o n a l i zed to p a t i e n t c o nce rn s f o r c o s t s , fa m ily s e p a r a t i o n , f e a r o f t h e unknown, and modes o f t r a n s p o r t a t i o n , were v e r b a l i z e d by t h e s t u d y ' s p a r t i c i p a n t s . Due t o t h e sm al ln es s o f t h e sample, t h e s i g n i f i c a n c e of p a t i e n t concerns r e l a t e d t o p a t i e n t r e a c t i o n s . i n r u r a l - t o - u r b a n t r a n s f e r s can n o t be de te rm in e d. A r e l a t i o n s h i p between p a t i e n t s co nce rn s and diagnosis is in d ic a te d . Less s e r i o u s l y i l l p a t i e n t s 53 e xp re ss ed co ncerns s h o r t l y a f t e r urban h o s p i t a l i z a t i o n ^ Seriously i l l p a t i e n t s d id not e x p re s s concerns u n t i l a f t e r . ' t h e e i g h t h day o f urban h o s p i t a l i z a t i o n . Nursing I m p l i c a t i o n s Nurses were f r e q u e n t l y i d e n t i f i e d as major c a r e - g i v e r s to p a t i e n t s e x p e r i e n c i n g t r a n s f e r from r u r a l t o urban h o s p i t a l s . Nurses c a r e d f o r p a t i e n t s i n t h e r u r a l h o s p i t a l , were in volv e d in p a t i e n t p r e p a r a t i o n f o r t r a n s f e r , c ar ed f o r p a t i e n t s during t r a n s f e r , and o r i e n t e d p a t i e n t s upon e n t e r i n g t h e urban h o s p i t a l s . They c o n ti n u e d t o be t h e major c a r e - g i v e r s in th e urban h e a l t h care s e ttin g . Rural and urban n u r s e s ap pea r t o be in p o s i t i o n s t o influence the behavior of tra n s fe rre d p a tie n ts . Nurses in r u r a l s e t t i n g s need t o promote communication between h o s p i t a l s and c o o r d i n a t i o n o f p a t i e n t c a r e . Nurses in urban s e t t i n g s need t o r e c o g n i z e t h e l o s s of f a m il y s u p p o rt with t r a n s f e r r e d patients. These p a t i e n t s a r e used t o being in f a m i l i a r s e t t i n g s and may n o t know anyone in t h e urban s e t t i n g , a s i t u a t i o n d i s t u r b i n g t o many p a t i e n t s . I n i t i a t i o n Of o r i e n t a t i o n programs and s u r r o g a t e s u p p o r t system o r g a n i z a t i o n s f o r r u r a l p a t i e n t s i n urban h e a l t h c a r e s e t t i n g s may h e l p . Nurses in both s e t t i n g s must be aware of th e i n f l u e n c e -1N 54 o f s i c k r o l e b e h a v i o r on p a t i e n t r e a c t i o n s t o r u r a l - t o - u r b a n transfers. P e r c e p t i o n s o f i l l n e s s a r e not only i n f l u e n c e d by p a t i e n t s ' b e l i e f s , b u t a l s o by p e r c e p t i o n s o f t h o s e who a d m i n i s t e r p a t i e n t c a r e (Wu, 1973). Knowing t h i s , nurs e s must be aware o f p a t i e n t b e h a v i o r de mo nstrated in r u r a l - t o - u r b a n transfers. I t i s n e c e s s a r y to no te both t h e dependent s i c k r o l e b e h a v i o r and t h e e v e n tu a l emergence from e g o c e n t r i c i s m t o awareness and e x p r e s s i o n o f c o n c e r n s . • By acknowledging t h e s e as normal r e a c t i o n s t o both p a t i e n t s and t h e i r f a m i l i e s , n ur s e s w i l l a i d p a t i e n t s in coping b e t t e r with t h e i r i l l n e s s and movement towards r e c o v e r y . Rec ognit ion o f t h e s e f a c t o r s w i l l a i d n urs e s i n t h e i r a ss e ss m e n t of p a t i e n t r e a d i n e s s f o r t e a c h i n g and d i s c h a r g e p la n n i n g . Even though a m a j o r i t y o f t h e p a r t i c i p a n t s i d e n t i f i e d nu rs es as major c a r e - g i v e r s in t h e r u r a l and urban s e t t i n g s , emergency medical t e c h n i c i a n s (E.M.T.) were a l s o i d e n t i f i e d as being r e s p o n s i b l e f o r c a r e o f p a t i e n t s during t r a n s f e r s of l e s s th a n 100 m i l e s . F u r t h e r i t was found t h a t r e l a t i v e s were o f t e n i d e n t i f i e d as being r e s p o n s i b l e f o r p a t i e n t c a r e when t r a n s f e r s were more than 300 m i l e s . I t i s pro ba bly a p p r o p r i a t e f o r E .M .T .1s t o be in charg e of p a t i e n t c a r e d u ri n g t r a n s f e r , but d e l e g a t i n g c a r e o f p a t i e n t s d u ri n g (9 55 t r a n s f e r t o r e l a t i v e s i s no t a p p r o p r i a t e . Nurses, or E . M . T . ' s , sho uld be u t i l i z e d in t h e s e t r a n s f e r s as r e l a t i v e s a r e e m o t i o n a l l y in vol ve d with t h e p a t i e n t and not t r a i n e d f o r such r e s p o n s i b i l i t y . ■ The q u a l i t y of c a r e given d u ri n g ■ t r a n s f e r was n o t a d d re s s e d in t h i s s tu d y . Limitations - . The time c r i t e r i o n proved to be ve ry l i m i t i n g . . p a t i e n t s were too i l l • Several t o be i n t e r v i e w e d w i t h i n 72 hours of t h e i r a dm is si on t o urban h o s p i t a l and were l o s t from t h e s tu d y However, whenever p o s s i b l e , t h e s e p a t i e n t s were i n t e r v i e w e d a t a l a t e r date. This may have e f f e c t e d t h e r e s u l t s s i n c e p a r t i c i p a n t s u t i l i z e d r e c a l l t o p r o v id e t h e d a ta f o r t h e stud y I n t e r v i e w s were conducted up t o 21 days a f t e r urban a d m is s io n . Interview s a re considered an a p p r o p r i a t e means f o r d a ta c o l l e c t i o n in an e x p l o r a t o r y d e s c r i p t i v e d e si g n . Limitations of t h e i n t e r v i e w f o r t h i s s tu d y i n c lu d e d the f o l l o w i n g : t h e g r e a t m a j o r i t y of q u e s t i o n s focus ed on p a t i e n t c o n c e r n s ; p r o v i s i o n s f o r fo l l o w - u p q u e s t i o n s were not provided i n t h e i n t e r v i e w , s c h e d u l e ; and t h e c o n s e n t form was to o long f o r many o f t h e p a r t i c i p a n t s t o read and had to be read by th e investigator. E x t e n s i v e t e s t s of r e l i a b i l i t y and v a l i d i t y were n o t 56 conducted on the- i n t e r v i e w t o o l . In t h i s type of study using p a t i e n t s as i n f o r m a n t s , r e l i a b i l i t y o f th e in s t r u m e n t v a r i e s ■ g r e a t l y w ith mood, physica l c o n d i t i o n , o r environmental f a c t o r s su rro und in g p a t i e n t s (Brink and,Wood, 1978; P o l i t and Hungle r , 1978). Even though c o n t r o l s f o r t h e s e v a r i a b l e s were pro vid e d, they were not c omp le tely c o n t r o l l e d and may have i n f l u e n c e d t h e r e s u l t s of th e s tu d y . Recommendations f o r F u r t h e r Study Due to t h e small sample s i z e , r e s u l t s o f t h e stud y can not be g e n e r a l i z e d . R e p l i c a t i o n of th e st ud y i s recommended us in g a l a r g e r sample. The p r e s e n t i n t e r v i e w survey tool r e q u i r e s f u r t h e r re f i n e m e n t and v a l i d a t i o n p r i o r t o f u r t h e r us e. To broaden t h e focus of th e s t u d y , a comparison of r e a c t i o n s to t r a n s f e r o r t r a n s p o r t o f th o s e who were p h y s i c i a n - r e f e r r e d , s e l f - r e f e r r e d , and t r a n s f e r r e d from r u r a l h o s p i t a l s should be un derta ken . In t h i s s t u d y , p a t i e n t s who re g a in ed co n sc io u s n es s a f t e r urban admission were o r i e n t e d by r e l a t i v e s or not o r i e n t e d a t all. I n v e s t i g a t i o n of how comatose p a t i e n t s a re o r i e n t e d i s a n o t h e r area to be i n v e s t i g a t e d . I n v e s t i g a t i n g r e a c t i o n s ' of f a m i l i e s of p a t i e n t s who were t r a n s f e r r e d i s a n o t h e r im p o r ta n t a re a f o r f u r t h e r st udy , 57 Spouses and s i g n i f i c a n t o t h e r s a r e so invol ve d in r u r a l - t o urban t r a n s f e r s t h a t t h e i r r e a c t i o n s need to be a d d r e s s e d . R eac tio ns of n u rs e s t o r u r a l - t o - u r b a n t r a n s f e r s i s a n o t h e r area for fu r th e r study. The i n v e s t i g a t o r noted d i f f e r e n t r e a c ti o n ' s from r u r a l and urban n u rs e s invol ve d in p a t i e n t t r a n s f e r s , i n c l u d i n g r e l i e f , d i s i n t e r e s t , and c once rn . Another a r e a f o r f u r t h e r i n v e s t i g a t i o n may be th e examination o f t h e f a c i l i t a t i o n o f s i c k r o l e b e h a v io r by f a m il y and h e a l t h c a r e p ro fe s sio n a ls , including nurses. A ls o, where do co ncerns o r i g i n a t e , fr o m t h e p a t i e n t , f a m i l y , or h e a l t h c a r e p r o f e s s i o n a l s ? LIST OF REFERENCES REFERENCES B i r r e n , James £. and S h a l e , K. Warner 1977 Handbook of th e Psychology o f Aging. Nostrand Reinhoid Company. New York: B ri nk , Pamela J . and Wood, Marilyn J . 1978 Basic Steps in Planning Nursing Research. S c i t u a t e , M as sa c h u se tt s : Duxbury P r e s s . BushnelI , Marilyn E. 1979 " I n s t i t u t i o n s in T r a n s i t i o n . " P s y c h i a t r i c Care 17:260-5. Van North . . ^ P e r s p e c t i v e s in Cap!an, Gerald 1964 P r in c i p le ' s o f P r e v e n t a t i v e P s y c h i a t r y . Basic Books. New York: Copp, James H. ' 1976 " D i v e r s i t y of Rural S o c i e t y and Health N e e d s ." Pp. 26-37 in H a s s i n g e r , Edward W. and W h i t i n g , Larry ■ R. ( E d s . ) , Rural Health S e rv ic e s: - O r g a n i z a t i o n , D e l i v e r y , and Use. Ames: Iowa S t a t e U n i v e r s i t y P r e s s . Cowper-Smith, Frances 1976 "RAF f l i e s home t h e s i c k . " Nursing M ir ro r 142:55-8. Dawson, Drew 1981 Emergency Medical S e r v ic e s D i r e c t o r , Personal Communication, April 28. E d l i c h , Richard F . , Haynes, Boyd W., Larkham, Nancy, A ll e n , Mary S c o t t , R u f f i n , Wilcox, H i e b e r t , John M., and E d g e rt o n , Mil ton I . 1978 "Emergency Department Tr ea tm e nt, T r ia g e and T r a n s f e r P r o t o c o l s f o r t h e Burn P a t i e n t . " Journal o f th e American College of Emergency P hys ic ia ns 7:1 52-8 . E l l i s , Daniel J . 1980 A D e s c r i p t i v e Survey of Rural Emergency Room Nurses' Knowledge and Role P e r c e p ti o n of Advanced Cardiac Life S uppor t. Unpublished m a s t e r ' s t h e s i s , Montana S t a t e University. 60 Fans!ow, Cath leen and M a s s e t5 Evelyn 1979 "Building S t a f f Rapport Between I n s t i t u t i o n s ." American Jou rnal of Nursing 79:1441-2. Goodman5 Joy 1975 " S p e c i a l i s t in P a t i e n t T r a n s f e r . " Emergency Nursing 1:17-19. Journal of H a s s e l k u s 5 B e t ty R is t ee n . 1978 " R e lo c a tio n S t r e s s and t h e E l d e r l y . " The American Journal of Occupational Therapy 32:631-6. - H a s s i n g e r 5 Edward W. 1976 "Pathways of Rural People to Health S e r v i c e s . " pp. 164-187 in H a s s i n g e r 5 Edward W. and W h i t i n g 5 Larr y R. ( E d s . ) , Rural Health S e r v i c e s : O r g a n iz a ti o n s D e l i v e r y , and Use.- Ames: Iowas S t a t e U n i v e r s i t y Press. H a s s i n g e r 5 Edward W. and W h it in g , Larry R . , Eds. 1976 Rural Health S e r v i c e s : O r g a n i z a t i o n 5 D e l i v e r y , and Use. Ames: Iowa S t a t e U n i v e r s i t y P r e s s . H e n s l e r 5 Eugene C ., Johnson, Alexander C . , a n d . Zy d l o 5 S t a n l e y 1976 "Air T r a n s p o r t : How to move a p a t i e n t f a r and f a s t . " P a t i e n t Care 10:112-6. H u r l b u r t 5 Ward B. 1975 "Health Care Programs f o r S c a t t e r e d P o p u l a t i o n s . " P ubl i c Health Reviews 4:297-325. . K e r l i n g e r 5 Fred N. 1973 Foundations o f Behavioral Research., - R in e h a r t and Winston5 Inc. New. York: H olt , K or nf e ld, Donald S . , Maxwell, T e r e s i t a 5 and Momrow5 Dawn. 1968 "Psy cho log ical Hazards of th e I n t e n s i v e Care U nitNursing Care A s p e c ts ." Nursing C l i n i c s of North America 3:4 1-5 1. Locke, S. Jack 1978 "Emergency P a t i e n t T r a n s p o r t in Rural A r e a s . " Nurse P r a c t i t i o n e r 3:23+. 61 McCombs, Carolyn M. 1978 "Air Ambulance S e r v i c e s : New Horizons f o r Emergency .N urs in g." Jou rnal of Emergency Nursing 4 : 2 1 - 3 . . Montana Department o f Highways 1979 The O f f i c i a l Montana 1979 Highway Map. H.M. Gousha Company. Montana Health Systems Agency, Inc. 1979 Montana Health Systems Plan. Helena: Health and Environmental S c ie n c e s . Helena, Montana: Department of The Mountain S t a t e s Telephone and Telegraph Company 1980 B i l l i n g s and S o u t h e a s t e r n Montana Telephone D i r e c t o r y . Mountain B e l l , pp. 468-476. N e rl and, E l a in e 1978 " P a t i e n t T r a n s f e r Form Provides C o n t i n u i t y of C a r e . " H o s p i t a l s 52:151-2+. "New Rules f o r Trauma C a r e . " ,19 80 Emergency Medicine 12:227. Orem, Dorothea E. 1971 Nursing: Concepts of P r a c t i c e . Hill Book Company. New York: McGraw- Parsons, T a lc o tt 1958 " D e f i n i t i o n s o f Health and H i n e s ' s in th e L i g h t of American Values and Social S t r u c t u r e . " Pp. 165-187 in J a c o , E.G. ( E d . ) , P a t i e n t , Ph y s ic ia n s and I l l n e s s . . New York: Free P r e s s . Pol i t , Denise and Hungle r , B e r n a d e tt e • 1978 Nursing R e s e a r c h : P r i n c i p l e s and Methods. J . B . L i p p i n c o t t Company. Research S e r v ic e s West 1979 Planning Data Book. Hospital. Philadelphia B i l l i n g s : B i l l i n g s Deaconess S e l i f m a n 5 Martin E. _ 1974 "Submissive Death: Giving Up On L i f e . " Psycholgoy Today 23:80-85. Shannon, V a l e r i e J . 1973 - "The t r a n s f e r pro c e ss :\ A n area o f concern f o r t h e . CCU'n u r s e . " Heart and Lung 2:364-67. S h i r c o r e 5 Richard S. ' 1976 " P a t i e n t management on t h e r o a d . " 143:45-46. Nursing M irr or S m i t h 5 Mary C o l e t t e 1976 ■" P a t i e n t Responses to Being T r a n s f e r r e d during H o s p i t a l i z a t i o n . " Nursing Research 25:192-6. Sn y d e r5 Teresa E l i z a b e t h . 1979 A Study of t h e I n i t i a l Problems Encounterd by Home D i a l y s i s P a t i e n t s R el ate d t o th e Proximity to t h e Home T r a in i n g C en te r. Unpublished m a s t e r ' s t h e s i s , Montana S t a t e U n i v e r s i t y . T o f f l e r 5 Alvin 1970 Future Shock. New York: Random House I n c . 1980 The Th ir d Wave. New York: William Morrow and Company, Inc. T o o l e y 5 William H. and Goldsmith, Jay 1977 "Neonatal T r a n s p o r t : A D i s c u s s i o n . " 22:1138-45. R e s p i r a t o r y Care T o t h 5 Jean 1980 " E f f e c t of S t r u c t u r e d P r e p a r a t i o n f o r T r a n s f e r on P a t i e n t Anxiety on Leaving Coronary Care U n i t . " Nursing Research 29:28-34. " T r a n s f e r of P a t i e n t s . " 1980 Emergency Medicine 12:140. V o l i c e r 5 Beverly J . 1973 "Perceiv ed S t r e s s Levels of Events A sso c ia te d with the Experience of H o s p i t a l i z a t i o n . " Nursing Research 22:491-97. j 63 . V o l i c e r 5 Beverly J . 1974 " P a t i e n t P e r c e p t i o n s o f S t r e s s f u l Events A ss oc ia te d With H o s p i t a l i z a t i o n . " Nursing Research 23:235-38. Waddell, Gordon 1975 "Moving th e c r i t i c a l Iy i l l . " Nursing Times 71:1937-39. Welch, Benjamin 1977 "Some C o n s id e r a ti o n s Before Using th e A eria l Ambulance. Jou rnal of t h e American Co!l e g e o f Emergency P h y s i c i a n s . ■ 6:1 55-57. Wu, Ruth 1973 Behavior and I l l n e s s . P r e n tic e -H a ll, Inc. Englewood C l i f f s , New J e r s e y : Young, Diony , 1978 Bonding-How P a re n ts Become Attached To T h e i r Baby. Minneapolis: I n t e r n a t i o n a l C h i l d b i r t h Education Association. Zweig, J . P . and Csank, J . Z . 1975 " E f f e c t s of R el o ca ti o n on C h r o n i c a l l y 111 G e r i a t r i c P a t i e n t s of a Medical Un it: M o r t a l i t y R a t e s ." Journal of t h e American G e r i a t r i c s So c ie ty 23:132-136. < APPENDIX'A 65 P a t i e n t Reac tio ns to T r a n s f e r s from Rural to Urban Health Care Institutions P a t i e n t I n t e r v i e w Guide (Case #_______ ) "Sex (Optional) Occupation (Optional) Age (Optional) Mari tal S t a t u s (Optional) Town o f Residence________________ Length of time a t t h a t r e s i d e n c e Diagnosis_________________________ Admission Date ( R u r a l )___________ (Urban)___________ Today's Date_____.________________________________________________ A. Introduction 1. Purpose 2. Rights a. 30-60 minute i n t e r v i e w b. No s p e c i a l r i s k s / b e n e f i t s c. V oluntary p a r t i c i p a t i o n ■ d. Confidentiality/anonymity e. V olu nte er t o be in te rv ie w e d ? i. Sign c onse nt i i . Copy with p a r t i c i p a n t B. Rural Health Care I n s t i t u t i o n 1. What problem brought you to t h e _______________ H osp it al ? 2. Who brou ght you to the ______________________ Hosp it al ? 3. What do you remeber about e n t e r i n g t h a t H o sp i ta l ? 4. Did you know any of t h e people who cared f o r you? 5. Did you have any q u e s t i o n s or concerns on e n t e r i n g t h a t H o s p i t a l ? How were they handled and by whom? 6. What was your r e a c t i o n when you were t o l d you were being t r a n s f e r r e d ? • 7. Did you have any o t h e r q u e s t i o n s or concerns a f t e r you were t o l d ab out t h e t r a n s f e r ? How were they handled and by whom? 6 6 C. The T r a n s f e r 1. Why were you t r a n s f e r r e d ? 2. How were you t r a n s f e r r e d ? 3. Who was r e s p o n s i b l e f o r your c a r e b e f o r e t h e t r a n s f e r ? 4. How were you pre pared f o r th e t r a n s f e r and by whom? 5. Describe y o u r t r i p he re . 6. Who was r e s p o n s i b l e f o r your c a r e during yo ur t r a n s f e r ? 7. How were t h i n g s handled in th e t r a n s f e r pro ce ss? 8. What was yo ur imp ressi on of t h e t r a n s f e r pro ce ss? 9. Did you have any q u e s t i o n s or concerns about your t r a n s f e r ? How were t h e s e handled? 10. Have you been involved in an ambulance t r a n s f e r b e fo re ? D. Urban Health Care I n s t i t u t i o n 1. Describe yo ur e n t r y i n t o t h i s H o s p i t a l . What do you remember about e n t e r i n g t h i s H o s p i t a l ? When did you f i r s t r e a l i z e you were he re and who o r i e n t e d you to what did happen/was happening? 2. What was you r i n i t i a l r e a c t i o n on e n t e r i n g t h i s Hospital ( o r when you f i r s t r e a l i z e d you were ■ • h e re )? 3. Did you have any q u e s t i o n s or concerns on e n t e r i n g t h i s H o s p i t a l ? How were th e y handled and by whom? 4. Have you been a p a t i e n t in t h i s Hospital be for e? 5. Did you know any of t h e people who car ed f o r you? 6. Did you have any a d d i t i o n a l concerns or q u e s ti o n s a f t e r you were a dmi tte d? How were th e y handled and by whom? 7. How w i l l you r e t u r n t o your home? 8. Are t h e r e any o t h e r t h i n g s about your t r a n s f e r I h a v e n ' t asked about t h a t you would l i k e to d i s c u s s ? APPENDIX B 68 Approval L e t t e r from MSU School of Nursing - B il li n g s Extended Campus SCHOOL OF NURSING BILLINGS EXTENDED CAMPUS EM C CAMPUS BOX 5 74. BILLINGS. M O N TA N A 59101 Judy Schmidt, R.N., Graduate Student - School of Nursing Montana State University Dear Ms. Schmidt: Your research proposal, "Patient Reactions to Transfers from Rural to Urban Settings", was reviewed and approved for protection of human subjects on November 12, 1980. Al I consent forms will be secured and held in a locked file in this office for three years. Best wishes for a successful study. Sincerely, Ruth Vanderhorst, R.N., M.S., Education Director RV/dk a . ... ' S O n? \ / ^ ‘ X , _ r, 69 ■ Approval l e t t e r from S t. Vincent's Hospital V inCViii H O S p irO l 1233 North 30th Street P.O .B ox 2505 Billings, Montana 59103 ■ 406-657-7000 • December 11, 1980 Judy Schmidt, R.N. P o s t Office Box 654 Roundup, Montana 59072 Dear Judy: The Research Review Committee has approved your research " P a t i e n t Reactions to Trans fers from Rural to Urban Health Care I n s t i t u t i o n s " . As discussed per phone, your research will" occur between mid January and extend int o February as needed. Also, the Head Nurse meeting will be sched­ uled f o r December 19, 1980 a t 0930 enabling you to share your research pro­ j e c t and goals. We are looking forward to p a r t i c i p a t i n g in t h i s study. S in c e re ly , Lorraine Reinhardt, R.N. A s s i s t a n t D ire ct or of Nursing Service LR/jb 70 Approval L e t t e r from B i l l i n g s Deaconess Hospital "G-3 D Z A C O H E S S HOSPITAL Decanber 26, 1980 Judy D. Schmidt, RN P.O. Box 654 ' Roundup, Montana 59073 Dear Judy: After committee review and your consideration of our suggestion, the Research Cormittee of Billings Deaconess Hospital grants permission to conduct data collection for your study at Deaconess. The unit supervisors have a copy of the abstract and enclosed you will find a list of key people for each nursing unit. It wauld be helpful to present a copy of this letter to the unit staff prior to interviewing any patient. We will be looking forward to receiving the results of your study and utilizing the material to improve our services to patients and their'families. <3-1 Y V C T - O l X 7 Sue T. Cable, RN Chairperson, Research Committee STC:ch enc 'APPENDIX'C 11 Con1Sent t o A c t as a P a r t i c i p a n t • in th e study e n t i t l e d : P a t i e n t Reactions to T r a n s f e r s from Rural to Urban Health Care I n s t i t u t i o n s The purpose of t h e s t u d y , as e x p la i n e d to me by Judy Schmidt, a r e g i s t e r e d nurs e in th e g r a d u a te program a t t h e Montana S t a t e U n i v e r s i t y School o f N ur si ng , :is t o - e x p l o r e t h e p a t i e n t ' s needs in a r u r a l - t o - u r b a n t r a n s f e r . To p a r t i c i p a t e in t h e . s t u d y , I w i l l ta k e p a r t in an i n t e r ­ view a ski ng q u e s ti o n s a b o u t 'my r e a c t i o n s t o my t r a n s f e r from a r u r a l to an, urban h e a l t h c a r e i n s t i t u t i o n . The i n t e r v i e w w il l r e q u i r e ab ou t 30 to 60 minutes of my time. I will p a r t i c i p a t e in th e s tu dy a t my c o nve ni e nc e. ' I have t h e r i g h t to st o p the i n t e r v i e w a t any time because of f a t i g u e , t r e a t m e n t s , or nursing • c a r e and c o n t i n u e on when' I choose. stu dy a t any time. I can withdraw from the My d e c i s i o n to p a r t i c i p a t e , not to p a r t i ­ c i p a t e , or my d e c i s i o n to withdraw from th e study w i l l be kept c o n f i d e n t i a l and w il l n o t i n f lu e ce my c a r e and t r e a t m e n t . My r e p l i e s w i l l be k e p t c o n f i d e n t i a l and a l l in fo rm at io n w il l be coded to p r o t e c t my anonymity. The in f or m at io n I g iv e w i l l be d e s tr o y e d a f t e r the d a ta i s analyzed and t a b u l a t e d , and th e r e s u l t s o f the stu dy w il l be sh ared with o t h e r nurses ■ j 7 3 through p u b l i c a t i o n . There w i l l be no b e n e f i t to me p e r s o n a l l y from p a r t i c i p a t i n g in t h e s t u d y , but th e i n fo r m a t io n gained from th e s tu dy may help nurs es provid e b e t t e r p a t i e n t c a r e in th e f u t u r e . There w il l be l i t t l e or no r i s k in p a r t i c i p a t i n g in th e st udy . I , t h e r e f o r e , ag re e to p a r t i c i p a t e in the study " P a t i e n t . Rea ctions to T r a n s f e r s from Rural to Urban Health Care I n s t i t u ­ tions." I f I have any q u e s t i o n s re g a rd in g t h i s s t u d y , I may c o n t a c t Judy Schmidt by c a l l i n g (406)-323-1758 c o l l e c t . S i g n a t u r e _________________________ Date » MONTANA STATE UNIVERSITY LIBRARIES stks N378.Sch533@Theses RL Patient reactions to transfers from rura 3 1762 00112241 3 N3 7 8 Sch533 cop.2 DATE Schmidt, J u d y D Patient reactions to transfers from rural to urban health care insti tutions IS S U E D TO Sik 533 aop