Improving Cancer Care for Children & Teenagers in Scotland
Wednesday 16 December 2009
9.30 – 4.15
eScience Centre
South College Street, Edinburgh
Programme
9.30
Registration, Tea and coffee
10.00
Introduction and Welcome – Dr Hamish Wallace
10.20
Managing Bone Tumours in Children and Teenagers
Speaker;
•
Dr Bernadette Brennan, Consultant Paediatric Oncologist, Royal
Manchester Children's Hospital
11.20 -12.00
Participants split to attend Group 1 of 2 below.
Session 1
1. Panel Discussion - How should age appropriate care work?
Chaired by Dr Bob Grant, CATSCAN Working Group on Teenagers &
Transition
Panel Members:
•
Dr Morgan Jamieson,
•
Prof Tim Eden,
•
One other patient representative (to be confirmed)
2. Developing Multi-disciplinary team meetings for children’s cancer
Speakers;
•
Dr Annie Ingram, Director of Regional Planning & Workforce
Development , North of Scotland Planning Group
•
Wendy Croll, National MDT Programme Manager - Children’s
Cancer, North of Scotland Planning Group
12.00 – 12.40
Participant attend the other Group.
Session 2
12.30
Lunch
Improving Cancer Care for Children & Teenagers in Scotland
Programme
13.30 – 14.30
Setting up a comprehensive palliative care service for children
Chaired by Dr Rosalie Wilkie, CATSCAN Palliative care consultant
Speakers;
•
CATSCAN Paediatric Palliative Care for Children and Teenagers
- Role of Consultant Post - Dr Rosalie Wilkie
•
Good practice in the delivery of comprehensive regional
based children and young people's palliative care
service. Katrina McNamara-Goodger, Head of Policy and Practice,
Association of Children’s Palliative Care (ACT)
•
Use of the ePalliative Care Summary with Children - Peter
Kiehlmann, ePCS Project Clinical Lead, Scottish Government Health
Department
•
How to ensure good symptom management at the end of life for
patients dying at home - Francis Edwards, Nurse Consultant for
Paediatric for Children and Young Peoples Palliative Care
14.30 – 15.10
Participants split to attend Group 1 of 2 below.
Session 3
1. Giving Information to Patients and Parent/Carers – using case studies
•
Video Project - Andrew Leslie, CATSCAN Patient/Parent
Representative
•
Clinical trials – Dr Hamish Wallace, CATSCAN Clinical Lead
2. Co-ordinating Follow-up Care
•
Dr Angela Edgar, Paediatric Oncologist, Edinburgh
15.10-15.50
Participant attend the other Group.
Session 4
15.50
Closing Remarks – Dr Hamish Wallace
16.15
Close
As of 1 Dec 09