A Mutual NHS
through
Effective Public
Involvement
Chest Heart and Stroke Scotland
Nicola Cotter
Patient Focus
Public Involvement
The Scottish Government’s vision for the NHS…
‘ … a new ethos for health in Scotland that sees the Scottish people
and the staff of the NHS as partners, or co-owners, in the NHS. I
want us to move to a more mutual NHS where partners have real
involvement, representation and a voice that is heard’
Nicola Sturgeon, Better Health Better Care 2007
Chest, Heart & Stroke Scotland
www.chss.org.uk
Barriers to Patient Focus
Public Involvement?
‘We want to involve patients/carers but its too
expensive’
‘Patients harp on
about their own
individual stories
too much!’
‘What we discuss is
confidential so we
can’t invite them to
our meetings’
‘Patients and carers don’t
understand the constraints we work
under’
Chest, Heart & Stroke Scotland
www.chss.org.uk
Benefits to staff
and the NHS
Restoration
of public
confidence

Chest, Heart & Stroke Scotland
www.chss.org.uk
Benefits for patients

Better outcomes of
treatment and care.

“We have seen an
improvement in the
services we have been
involved with.”
Chest, Heart & Stroke Scotland
www.chss.org.uk
Benefits to staff
and the NHS
Contribution
to problem resolution

“Patients can highlight what
is not working.”
Chest, Heart & Stroke Scotland
www.chss.org.uk
Benefits for patients

More accessible,
sensitive and
responsive health
services.
“There is more
understanding
between us now”
Chest, Heart & Stroke Scotland
www.chss.org.uk
NHS
Board
Information
Days
MCN Core
Group
Email/mail
patient and
carer network
MCN
Steering
Group
Discussion
Groups
Open Days
Patient and and
Patient
Carer Sub-group
Carer
Subgroup
PFPI
Strategic
Planning
Group
Chest, Heart & Stroke Scotland
www.chss.org.uk
Other
Subgroups
MCN PPG
The Fife Story

40 core members (130 in total) – started with 4!

3 patient conferences in 2008

Links with 3 Heart Clubs in Fife

Work in partnership with CHSS

Have a work programme developed by members
Chest, Heart & Stroke Scotland
www.chss.org.uk
Examples of Work
Activity Leaflets
Conferences
This leaflet was produced by
members of the CHD MCN
Patients Participation Group
to encourage
you get active again
Emergency Health Card
Chest, Heart & Stroke Scotland
www.chss.org.uk
Voices Scotland

Support Session








understand the structure of the NHS in Scotland
find out which NHS bodies are looking for their involvement and views
discover how to effectively communicate with health professionals
share ideas and experiences in a relaxed environment
produce a case for change to present your ideas to health professionals
learn to improve services for the next patient
develop the skills to become a patient or carer representative planning, monitoring and improving health services
Information on Voices Scotland from nicola.cotter@chss.org.uk
Chest, Heart & Stroke Scotland
www.chss.org.uk
Hearty Voices Scotland
Achievements







Approx 200 patients/carers received training across Scotland
All mainland Health Boards (and Orkney) delivered or planned
Supports, and in some areas established, Managed Clinical Network (MCN)
patient/carer involvement groups across Scotland
Steering Group made up mostly of patients
National Conference attended by over 160 patients, carers and health professionals
Scottish Health Council and Scottish Government endorsement
REAL patient/carer issues being addressed by MCNs
Chest, Heart & Stroke Scotland
www.chss.org.uk
Voices Scotland
Development


Chest Voices – currently being developed by Nicola Cotter
 Consulting with respiratory stakeholders – MCNs, Pulmonary Rehab
 Pilots completed in Lothian, Lanarkshire, Glasgow & Highland
 Potential ‘National’ Day to be offered
 In association with British Lung Foundation
Affiliated Groups
 Supporting Chest, Heart & Stroke groups to have their voices heard
Chest, Heart & Stroke Scotland
www.chss.org.uk
Issues Raised in Hearty Voices Scotland
Support
43
Self -M anagement
6
Pharmacy
10
Out of Hours
17
Inf ormat ion
49
Hospit al Environment
34
Equit y
34
Communicat ion
29
Clinical Care
25
Care Pat hway
37
Accessibilit y
5
0
10
20
30
Chest, Heart & Stroke Scotland
www.chss.org.uk
40
50
60
Voices Scotland Feedback
‘ Chest Voices really increased my confidence to get involved and gave
me some valuable tips about how to positively influence the local
health professionals’
Lothian Patient February 2009
‘Our experience of patient reps had not been particularly positive
however after going through the Hearty Voices session, the patients
seemed to have an increased understanding of the constraints the
NHS sometimes has to work under’
Lanarkshire Health Professional 2008
Chest, Heart & Stroke Scotland
www.chss.org.uk
“The patient needs to be at
the heart of the services.”
Chest, Heart & Stroke Scotland
www.chss.org.uk