National
e-Science
Centre
Data/Quality Usability Issues in e-Health: Practice,
Process and Policy.
e-Science Institute 9th May 2006
The event was the first in a series (Integrating Clinical and Genetic Datasets: Nirvana or
Pandora's Box) co-hosted by the e-Science Centre and Generation Scotland, to look at
issues of data quality and usability in the aggregation of genetic and clinical data for eHealth and e-Science.
The aim was to raise awareness of how and where quality and usability issues need to
be addressed in the data life-cycle, and drew on the experience of communities in escience, bio-informatics, genetics, epidemiology, health informatics, statistics and
medicine and social science.
It was well attended and drew on expertise from a wide range of expertise, using the
Grid-enabling of genetic and clinical data for the Generation Scotland initiative
(www.generationscotland.com) as a focus for scoping core issues to be addressed.
The November follow-up workshop will focus on the core issues raised, contextualized
in the use of multiple datasets for neuro-psychiatric illnesses and cancer. The aim will be
to agree a roadmap across multiple Grid projects on the these disease areas, in
collaboration with the clinical and research communities.
This workshop was supported by funding from the NeSC and the Scottish Funding
Council (Generation Scotland: Genetic Health in the 21st Century) and we also wish to
acknowledge the collaboration of the Edinburgh e-Health Network.
Jenny Ure