Rehabilitation and stem cell transplant Preparing for a stem cell transplant Stem cell transplantation (SCT) has been recommended as the best treatment for your child. SCT is physically demanding, but there is much you can do to help your child maintain strength, flexibility and endurance throughout treatment. If your child is medically able, regular exercise in the weeks before a transplant will help keep him or her in the best possible shape. Ideally, it should be some kind of exercise he or she enjoys, such as biking. Young children will benefit from playground activities and tricycles. A vigorous daily 15-minute walk is a simple but effective exercise. While in the hospital Exercise and a high level of activity are important for: • Keeping muscles strong and flexible; • Improving circulation; • Maintaining independence in everyday tasks; • Increasing energy levels; • Increasing appetite; and • Helping to manage stress. Exercise should be a part of your child’s daily routine and needs to be done at least three times a day. Younger children usually like to be up and playing. If your child is older, it is often harder to get him or her out of the bed to exercise, especially if he or she is not feeling well. We know it is hard, but exercise is vital. Getting out of bed to sit in a chair, or work at a table is a great start. An exercise bike may be available for older children and adults. For toddlers and young children, nurses will mark off an area of the floor with tape, special cleaning will be performed, and the child will have a safe and quiet place for floor play. If there are times when your child feels too ill to get out of bed, some stretching and flexibility can help. Even when your child feels at his or her worst, you should encourage him or her to get up and out of bed to get dressed, get into a chair three times a day, and walk to the bathroom. Using a calendar A stem cell transplant is stressful for both the child and the family. Children usually handle stress better when they have a familiar routine to follow. Developing and keeping a daily schedule is a reminder of Page 1 of 2 w w w. u c d m c . u c d a v i s . e d u / c a n c e r Continued what is expected each day. It provides clear directions for daily activities. It also is a way to assure that fun activities and plenty of rest can fit into the day. Working with your child to develop a daily schedule also allows your child to feel some control. Feeling that your child has a say in how his or her days are spent increases cooperation. Family and friends can help After weeks of long and exhausting treatment, it is very difficult to keep motivated for rehabilitation. Here are a few ways to help. Respect Children and teens may feel that they have no control over the situation. Allow your child to set goals and aid in the decision-making during rehabilitation to ease these feelings of helplessness. Respecting their feelings is also very important for their self-esteem. Clarify With so much new information about diagnosis and treatment, your child may be overwhelmed and confused. Try to simplify the information for him or her to make things easier to understand. Reassure Stem cell transplants can be scary for young patients. Feeling overwhelmed, isolated and helpless, children need others for support and reassurance. Setting realistic goals for your child during rehabilitation can help with this. Try to make the exercise sessions fun and rewarding. In addition, try following a daily routine to help ease your child into a regular lifestyle again. Encourage Even after treatment and rehab, encouraging your child to remain active is very important. Try including active family outings into day-to-day activities. For example, walking, hiking, biking and dancing can be fun activities for friends and family. Encourage group activities that involve movement and interaction. Interactive activities can also help develop social skills for children who have been separated from their peers. Goal-oriented activities also keep children motivated and can improve their self-esteem. Adapted with permission from St. Jude Children’s Research Hospital. Revised 2003 UC Davis Cancer Center 12/06 w w w. u c d m c . u c d a v i s . e d u / c a n c e r Page 2 of 2